Re: Re: Top research universities on Aspergers

[Guest guest]

I don't know about the other facilities that Pam talked about, however, I can speak for the Children's Hospital of Philadelphia. They have been awarded the #1 children's hospital in the Nation for several years. I didn't take my dd who has aspies, but my son goes there for SEVERAL different medical problems. We first met with their Diagnostic Doctor who went over his medical history and did several tests. After meeting with him a couple of times he suggested which departments within the hospital that we needed to go to. My son has seen their Cardiologist, Gastroenterologist, and still sees their Endocrinologist, Neurologist, and Nephrologist. I just love the hospital and the people who work their. Everyone has been so helpful. I've had doctors who have either called me or sent me emails to fallow up on how he has

been doing. I live in Central PA, I will drive to burg the night before and spend the night at my moms, take the Amtrak train from there and then a cab to the hospital, because Philly is such a large place and the traffic is so CRAZY. I drove it once and never again. It made for a VERY long day. This way we can relax on the train. I definitely recommend this hospital for any child.

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From: Pamela <susanonderko@...>Subject: ( ) Re: Top research universities on Aspergers Date: Thursday, November 18, 2010, 11:36 AM

Where do you live? Boston's Children's Hospital is a greatcenter, Yale in CT has a famous Autism Center. Kennedy Kriegeris Baltimore has specialities in very specific autism areas.The genetic test is a very good starting point at a majorcenter. Another good center for genetics would be in NYC atone of the children's hospitals or Philidephia's Children'sHospital. Boston Children's hospital too.Pam >> Hello,> We've been introduced to a new symptom with my son (Dylan, 14) and it's really making me think there has to be some sort of additional explanation for the collection of issues he has. I keep hoping to find that missing piece to the puzzle,

but I never do. The latest symptom appears to be either vitiligo or something similar. He has a section of his forehead that starts about in the middle and moves over through part of his eyebrow and ends at the top of his right cheek. His skin in this area is a lighter color and some of the hair in his eyebrow is also starting to turn white. When I did some research online, I saw that children with vitiligo are also more likely to have auto-immune disorders. Dylan has never been diagnosed w/ those, but there is something about his internal sensitivity (allergies, asthma when younger, excema, reflux, occasional migraines, digestive problems) and his external sensitivities (lights, sounds, pressure, textures, etc...) when combined with this latest, where the body starts to attack melanin that just seems to have to be interrelated in some way. After we see a dermatologist next week, I'd really like to get some genetic testing done and/or see an auto-immune

disorder and/or an Aspergers Syndrome research facility somewhere and see if there has been any work done with anything related to what Dylan's experiencing. Any ideas about which universities might specialize in Autism/Aspergers/Auto-Immune Disorders? Any thoughts on this?> > Thanks!>

[Guest guest]

,

I have to agree with you about CHOP. I take Jonny there for Neuro, he also saw GI as a little guy. not sure how they are on aspergers or any autism though since we are new to it all. My daughter has Cystic Fibrosis and has been going to the pulmonologist there since she was 9 months, she also sees, ENT, Endocrine, GI, Cardiology, and she saw General surgery as a baby. she saw plastics there a few years ago for a gangleon cyst. If they do anything with autism/aspergers i will probably get with them for it too. CHOP is a fantastic place to be if you have to be in the hospital with a child. I cannot say enough good things about the staff. Docs all the way down to houskeeping and the nutrition staff...CHOP rocks. (and in this area we have 3 children's hospitals)

mom of Jonny 6 with ADHD, TS, and Aspergers

and 12 with CF

( ) Re: Top research universities on Aspergers Date: Thursday, November 18, 2010, 11:36 AM

Where do you live? Boston's Children's Hospital is a greatcenter, Yale in CT has a famous Autism Center. Kennedy Kriegeris Baltimore has specialities in very specific autism areas.The genetic test is a very good starting point at a majorcenter. Another good center for genetics would be in NYC atone of the children's hospitals or Philidephia's Children'sHospital. Boston Children's hospital too.Pam >> Hello,> We've been introduced to a new symptom with my son (Dylan, 14) and it's really making me think there has to be some sort of additional explanation for the collection of issues he has. I keep hoping to find that missing piece to the puzzle, but I never do. The latest symptom appears to be either vitiligo or something similar. He has a section of his forehead that starts about in the middle and moves over through part of his eyebrow and ends at the top of his right cheek. His skin in this area is a lighter color and some of the hair in his eyebrow is also starting to turn white. When I did some research online, I saw that children with vitiligo are also more likely to have auto-immune disorders. Dylan has never been diagnosed w/ those, but there is something about his internal sensitivity (allergies, asthma when younger, excema, reflux, occasional migraines, digestive problems) and his external sensitivities (lights, sounds, pressure, textures, etc...) when combined with this latest, where the body starts to attack melanin that just seems to have to be interrelated in some way. After we see a dermatologist next week, I'd really like to get some genetic testing done and/or see an auto-immune disorder and/or an Aspergers Syndrome research facility somewhere and see if there has been any work done with anything related to what Dylan's experiencing. Any ideas about which universities might specialize in Autism/Aspergers/Auto-Immune Disorders? Any thoughts on this?> > Thanks!>