Re: rambling

March 6, 1999

In a message dated 3/6/99 6:33:52 AM Eastern Standard Time, mlmccoy@...

writes:

<< In my mail this morning, I also hear some rumbling that Forschner

from

the LDF is endorsing the LymeRix vaccine, and doing commercials???? I

haven't seen this yet? Has anyone else? I can't believe this? With no gold

standard Lyme tests available right this moment, this makes no sense to me,

it can only mean bad news for those of us already suffering from Lyme and

new victims who will soon be joining this list and others. >>

I passed this story on. Last night about 6:45 PM eastern time I heard a

commercial

in the other room about Lyme. It was different then the ones we're already

used to seeing. This one had a scientist saying how important it is to protect

yourself from

this horrible disease! Then Forchcher showed up saying something like

" you still would need to protect yourself even with the vaccine. " That a

paraphrase.

I contacted immediately as you can imagine. She said she did NOT do a

comical for SKB. Now I'm wondering if that was a part of the evening news, see

the time, and they spliced her in. It sounded like a commercial, but they get

the news to do that now, don't they?

So, let me investigate this a bit before we hang ---- which is exactly

what

I planned to do if she had sold out to them. Sorry for the confusion, but I'm

confused myself.

Marleen

December 16, 1999

In a message dated 12/16/99 2:55:35 PM Eastern Standard Time,

SDillinger@... writes:

<< I am on 1 mg

of folic acid a day. I get a small sore about every two weeks and it usually

takes about five days to heal. >>

My doc suggested increasing the folic acid. Right now, I take 4-5 mg and the

sores have quit giving me a problem.

MELISSA

December 16, 1999

Shayne,

Ask your dr. about leucovoran for mouth sores. I take

that and folic acid..i had the mouth sore problem--i

take 20 mg. now, i've been upped twice...the

leucovoran does wonders for the sores.

--- Shayne Dillinger <SDillinger@...> wrote:

> Hello all,

>

> Had my monthly Dr. visit yesterday. He knew I was

> feeling better right

> away since I was standing against the wall flipping

> through a mag. when

> he came in the door.

>

> I've been on MTX for about 5 months now. Three at

> 7.5 mgs and 2 at

> 10 mgs. I've seen a definite improvement in the

> last six weeks. I'm still

> pretty stiff in the mornings and evenings but as

> long as I don't over due

> it I feel pretty good through the bulk of the day.

> My SED rate has been

> cut down to 11 and my liver functions, which were

> great when I started,

> haven't changed.

>

> The plan was to go to 12.5 mgs a week at this visit.

> However I'm having a

> small problem with mouth sores since I was upped to

> 10 mgs. I am on 1 mg

> of folic acid a day. I get a small sore about every

> two weeks and it usually

> takes about five days to heal. Because of this,

> I'll stay at 10 mgs for two more

> months and add a multi vitamin. He said if I wasn't

> feeling so well or if the

> mouth sores were really bad he would be more

> aggressive. He took my input

> on all this and at least made me feel like we

> reached a decision together.

> I came away from the visit feeling pretty good.

>

> Since my blood work has been so good I don't have to

> go in until Feb.

>

> Bye the way I asked him how many PA'ers he had right

> now. After a little

> mental counting said about 14 or 15. I was a little

> surprised that there was

> that many since most people on the list have never

> met another PA'er

> face to face.

>

> Happy Holidays

> Shayne

> Dayton, OH.

>

------------------------------------------------------------------------

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

<HR>

<html>

>

__________________________________________________

August 10, 2004

Wow Bobby,

I for one am sooooooo happy for you..but sheesh fella, how about loaning one of us ur scooter (wink)

Re: rambling

nice letter gail,,i have to agree.....i was lying on the table yesterday while the surgeon was pulling the 40 staples out of my thigh and i told him i couldnt find the words to thank him enough for giving my life back to me....i mentioned to him that i had a dream the other night....i was a billionaire and after my hip surgery i built a state of the art orthopedic hospital for the doc and paid him a fortune every year just to teach young surgeons to be as good and caring as he is...his response "can't ask for a better response than that"i went from 61 to 50 overnight....and when the other hip is done next month i plan to be a 40 year old thinking like im 30 again...look out world ,,,here i come....30 pounds gone,,,,sugar near normal,,,,lots of exercise and lots more coming when i can throw the walker and cane away.... bobby in missippiPlease visit the Zapper homepage athttp://www.ZapLife.org

August 10, 2004

nice letter gail,,

i have to agree.....

i was lying on the table yesterday while the surgeon was pulling the 40

staples out of my thigh and i told him i couldnt find the words to thank

him enough for giving my life back to me....

i mentioned to him that i had a dream the other night....i was a

billionaire and after my hip surgery i built a state of the art orthopedic

hospital for the doc and paid him a fortune every year just to teach young

surgeons to be as good and caring as he is...

his response " can't ask for a better response than that "

i went from 61 to 50 overnight....and when the other hip is done next month

i plan to be a 40 year old thinking like im 30 again...look out world

,,,here i come....

30 pounds gone,,,,sugar near normal,,,,lots of exercise and lots more

coming when i can throw the walker and cane away....

bobby in missippi

August 16, 2004

I just was able to read this today but oh my gosh Gail you are one impressive lady....this was a wonderful read and the kind of person you are came shining through with brilliance... All I can say is WOW!!!

Debbie in Calif.

rambling

Well it has been a long couple of days. and I just lost a close friend over the weekend. He had a heart attack. Even though the doctor who saw him said his pulse was high (120) he felt everything would be fine and sent our friend on his way. His wife came to us crying saying she could not get her husband to respond to her and could I help her. I stayed with her till the end. The doctor at the hospital tried to speak to the wife and she walked away. He looked to me to help. It has really stirred up some feelings in me from the past with . The doctor came to me later and said "thank you for helping me" and I responded that I only did it because of what I have been through in the past with . The doctor cried and told me that he hopes he will not be there if this happens to .

I am glad has such a caring doctor. I told him I would prefer him to be with through everything. One thinks that everything you can say has been said, everything you want to do you try to do when you get sick.

I have learned from this experience to know what my partner in life wants, we have talked about little things that mean so much. I know what he wants when the time comes, but for today an unexpected kiss, reaching for a hand to hold. Forgiving those who hurt you, letting people know you care.

Most of all let people know you appreciate them. As and I appreciate the people here who have helped in so many ways. We love you all.

Gail and DavePlease visit the Zapper homepage athttp://www.ZapLife.org

October 22, 2009

Don't feel alone, I think we all go through the stage of hoping its a mistake or they'll grow out of it, and I really wish my husband got it, for some reason it had taken him about 2 yrs, and he still has his moments. lol. Your daughter sound similar to my son, he ticks a lot of the boxes for ASD but some don't apply at all. I also thought my son ate really well until we went to a dietician for he eczema, we had to write down everything he eats, we realised he only eats foods that are coloured white-orange-red, and the crisps are all cheese flavoured. My son has also focuses on a subject for weeks, we get him all the information we can on the subject, he really enjoys it.

I am in my sons pocket, when I am not at work he is stuck to me like glue. I know I won't always be here, but while I am I'll do my best to educate him, protect him and guide him through life, and hopefully he'll become an independant young man.

Go with your gut instinct, I think we Mums all know our children and what they need to get them through, and by the sounds of it your daughter knows when you need a hug to.

Lor B

From: dollyjane_pj <dollyjane_pj@...>Subject: ( ) rambling Date: Wednesday, 21 October, 2009, 16:54

Hello, I need someone to talk to. I feel so alone. My husband is still in denial. Our 5 year old,has not been dx yet. My husband took the paper work for the Children's hospital,and says he forgot where he put it. I think having a dx will help us to know what we can do to help her. But he still says she is normal. I am trying to get her into our school pre-school. We went through some testing with CDC,to see if she is delayed etc. I didn't feel like the testing went very well. She knew her colors,shapes, and some of the questions she was asked.Some of them she wouldn't answer,she was a bit nervous. She had a hard time sitting still,she gritted her teeth until she was shaking. She wouldn't let them know when she heard a beep in the head phones... They gave her fruit snacks. She wouldn't eat them. They were asking if she was a good eatter. etc. There are many foods she won't eat,she will only wear cotton chothing.. She lines things up

in a striaght line but doesn't seem to get upset if they are taken out of line.. These were questions they asked. She loves animals.I believe they are her focus. I have to say that I feel so afraid. I feel like screaming right now. I worry and stress about how she will do with others. She isn't social at all.But I have noticed she will play with 2 children at a time,for a brief period. I was so happy a few months ago because she had made a friend,and was using a potty her friend gave her,but that soon changed. She isn't using the potty anymore,she wasn't consistant even with me asking she went a few times then stopped. I notice that children who are disabled she takes to them right off like she has known them all her life. Where as others she doesn't. I had a bad experience this past summer with children her age throwing rocks at her. I have to tell you it took everything I had to keep from loosing my cool with those children. It doesn't take them long

to figure out something is different with her. I know I can't be in her pocket all her life. It just breaks my heart. We have had a few melt downs this week but not to many it kind of depends. They don't seem to be as bad as they have been. The woman I talked to during the testing said,that she won't label her with Austium as young as she is,and that educational Autism doesn't always mean that the medical will be the same. I have so many concerns. I want her to be able to function as normal as she can be. As I won't be alive forever. All these things are overwhelming me today. I'm sorry that I have rambled as much as I have. I have noticed when I have these days she is so loving to me. Thanks for allowing me to be in the group,I just feel so alone.

October 22, 2009

I had the same problem with DH. Took him awhile to come around, and in the

meantime I had to be the one handling all the paperwork and appointments. He was

on-board after the school psych. dx'ed him with ASD. My DS was only 3 1/2 at the

time, so I don't see why you can't get a dx at 5. I would contact your school

district and get the educational eval done. I don't understand what you (she)

meant by educational Autism doesn't always mean that the medical will be the

same? My DS actually doesn't have a med dx, only from the school. It's enough to

get him the services he needs.

Don't feel alone! You have all of us now, and can look into local support groups

if you want some face-to-face talk time with other parents.

TJ

>

> Hello,

>

> I need someone to talk to. I feel so alone. My husband is still in denial.

Our 5 year old,has not been dx yet. My husband took the paper work for the

Children's hospital,and says he forgot where he put it. I think having a dx will

help us to know what we can do to help her. But he still says she is normal.

>

> I am trying to get her into our school pre-school. We went through some

testing with CDC,to see if she is delayed etc. I didn't feel like the testing

went very well. She knew her colors,shapes,and some of the questions she was

asked.Some of them she wouldn't answer,she was a bit nervous. She had a hard

time sitting still,she gritted her teeth until she was shaking. She wouldn't let

them know when she heard a beep in the head phones... They gave her fruit

snacks. She wouldn't eat them. They were asking if she was a good eatter. etc.

There are many foods she won't eat,she will only wear cotton chothing.. She

lines things up in a striaght line but doesn't seem to get upset if they are

taken out of line.. These were questions they asked. She loves animals.I believe

they are her focus. I have to say that I feel so afraid. I feel like screaming

right now. I worry and stress about how she will do with others. She isn't

social at all.But I have noticed she will play with 2 children at a time,for a

brief period. I was so happy a few months ago because she had made a friend,and

was using a potty her friend gave her,but that soon changed. She isn't using the

potty anymore,she wasn't consistant even with me asking she went a few times

then stopped. I notice that children who are disabled she takes to them right

off like she has known them all her life. Where as others she doesn't. I had a

bad experience this past summer with children her age throwing rocks at her. I

have to tell you it took everything I had to keep from loosing my cool with

those children. It doesn't take them long to figure out something is different

with her. I know I can't be in her pocket all her life. It just breaks my heart.

>

> We have had a few melt downs this week but not to many it kind of depends.

They don't seem to be as bad as they have been. The woman I talked to during the

testing said,that she won't label her with Austium as young as she is,and that

educational Autism doesn't always mean that the medical will be the same. I

have so many concerns. I want her to be able to function as normal as she can

be. As I won't be alive forever. All these things are overwhelming me today. I'm

sorry that I have rambled as much as I have. I have noticed when I have these

days she is so loving to me.

> Thanks for allowing me to be in the group,I just feel so alone.

>

October 22, 2009

dollyjane I am so sorry you are so overwhelmed. I get that way too. The key

is to help your daughter have a happy childhood,

and help her grow. Try not to compare her to other kids. This is

so hard because we have to make the point there is a problem

to get a diagnosis and the school support. But this is also the most

painful part ..all this comparing to other kids .

If you try to stay focused on a step at a time it's better. For know

you are focusing on getting a diagnosis to get school support for

classification for special services. Your goal is that she likes going to school

and isn't reprimanded for something due to a disability.

I wouldn't worry about the other steps like independent living skills.

That is when she is older.

There is so much information available to parents know but it is too much all at

once.

Pam