New Member Intro

Posted December 9, 2004 · December 9, 2004

Marge,

Thank you so much for your

suggestion! I printed out your

email and have it with me all of the time!

Great support when I do my exercises. The surgeon was able to break up the

scar tissue on Tuesday and got 130 degrees. I am getting 110 degrees now but it

really burns. My leg is really

swollen but I am on my CPM machine all night as I sleep and most of the

day. I will keep you posted on my

progress.

Thanks for your help!

Jeanne in Denver

Posted December 10, 2004 · December 10, 2004

After the TKR, how long is a person generally on the CPM machine?

sandiJeanne Rylatt <Jeanne@...> wrote:

Marge,

Thank you so much for your suggestion! I printed out your email and have it with me all of the time! Great support when I do my exercises. The surgeon was able to break up the scar tissue on Tuesday and got 130 degrees. I am getting 110 degrees now but it really burns. My leg is really swollen but I am on my CPM machine all night as I sleep and most of the day. I will keep you posted on my progress.

Thanks for your help!

Jeanne in Denver

Posted December 10, 2004 · December 10, 2004

Marge,

The surgeon was able to break up the scar tissue on Tuesday and got 130 degrees. I am getting 110 degrees now but it really burns.

That is wonderful for you! Keep moving it. I saw my surgeon yesterday for a five month check and he was delighted to see me pull both of my feet in under my chair.

My leg is really swollen but I am on my CPM machine all night as I sleep and most of the day. I will keep you posted on my progress.

My swelling has just now gone down. It will still come back a bit if I overdo. Give yourself a year, okay?

Thanks for your help! You are indeed welcome. This is why I stay on the list, even though I do not expect any more joints for now.

Marge

Posted December 10, 2004 · December 10, 2004

Our hospital has stopped using it. I was never on it. Marge

***************

After the TKR, how long is a person generally on the CPM machine?

sandi

Posted December 10, 2004 · December 10, 2004

> After the TKR, how long is a person generally on the CPM machine?

>

> sandi

>

I had TKR and was not on it at all....different theories for

different doctors.

Valeri

Posted December 10, 2004 · December 10, 2004

Thanks, it will be interesting to see the differences during this whole process. I just want a DATE!!!! It's like my life is in limbo right now because it's difficult to plan anything not knowing when my surgery will be and how soon I will be good to go places!

sandiValeri <vjshoem@...> wrote:

> After the TKR, how long is a person generally on the CPM machine? > > sandi> >I had TKR and was not on it at all....different theories for different doctors.Valeri

Posted December 10, 2004 · December 10, 2004

The doctors are all different on how much to use the CPM. Some only

use it in the hospital, others send it home w/ the patient for 2-3

weeks. Medicare will only pay for it for 21 days, so that is usually

how long patients have it. Usually I tell patients to find a balance

between using the CPM and doing exercies, and getting enough rest so

their body can heal.

Marilyn

sandi wrote:

After the TKR, how long is a person generally on the CPM

machine?

sandi

Jeanne Rylatt <Jeanne@...> wrote:

Marge,

Thank you so

much for your suggestion! I printed out your

email and have it with me all of the time! Great

support when I do my exercises. The surgeon was

able to break up the scar tissue on Tuesday and got 130 degrees. I am getting 110 degrees now but it really burns. My leg is really swollen but I am on my CPM machine

all night as I sleep and most of the day. I

will keep you posted on my progress.

Thanks for

your help!

Jeanne in Denver

Posted December 10, 2004 · December 10, 2004

Sandi I remember waiting for a date. It seems to take

forever and then before you know it you are post op.

Hang in there,

Liney x

___________________________________________________________

Win a castle for NYE with your mates and Messenger

http://uk.messenger.

Posted December 10, 2004 · December 10, 2004

Thank you Marilyn....you always have knowledgeable advice.

sandiMarilyn <mwelton@...> wrote:

The doctors are all different on how much to use the CPM. Some only use it in the hospital, others send it home w/ the patient for 2-3 weeks. Medicare will only pay for it for 21 days, so that is usually how long patients have it. Usually I tell patients to find a balance between using the CPM and doing exercies, and getting enough rest so their body can heal. Marilynsandi wrote:

After the TKR, how long is a person generally on the CPM machine?

sandiJeanne Rylatt <Jeanne@...> wrote:

Marge,

Thank you so much for your suggestion! I printed out your email and have it with me all of the time! Great support when I do my exercises. The surgeon was able to break up the scar tissue on Tuesday and got 130 degrees. I am getting 110 degrees now but it really burns. My leg is really swollen but I am on my CPM machine all night as I sleep and most of the day. I will keep you posted on my progress.

Thanks for your help!

Jeanne in Denver

Posted December 11, 2004 · December 11, 2004

What is a CPM machine? Ruth

--- sandi <vanillarwc@...> wrote:

> Thank you Marilyn....you always have knowledgeable

> advice.

>

> sandi

>

> Marilyn <mwelton@...> wrote:

> The doctors are all different on how much to use the

> CPM. Some only use it in the hospital, others send

> it home w/ the patient for 2-3 weeks. Medicare will

> only pay for it for 21 days, so that is usually how

> long patients have it. Usually I tell patients to

> find a balance between using the CPM and doing

> exercies, and getting enough rest so their body can

> heal.

> Marilyn

>

> sandi wrote:

> After the TKR, how long is a person generally on the

> CPM machine?

>

> sandi

>

> Jeanne Rylatt <Jeanne@...> wrote:

>

> st1\:*{behavior:url(#default#ieooui) }

>

> Marge,

>

> Thank you so much for your suggestion! I printed

> out your email and have it with me all of the time!

> Great support when I do my exercises. The surgeon

> was able to break up the scar tissue on Tuesday and

> got 130 degrees. I am getting 110 degrees now but

> it really burns. My leg is really swollen but I am

> on my CPM machine all night as I sleep and most of

> the day. I will keep you posted on my progress.

>

> Thanks for your help!

>

> Jeanne in Denver

>

Posted December 12, 2004 · December 12, 2004

The main public hospital for knee replacements in Brisbane South has

stopped using these. They say that they actually handicap the user,

and that it is better to use active rather than passive movement to

increase the range of movement.

One thing we learn on this list is that there is a great range of

ideas by the medical profession about what is successful and what is

not. This can be most confusing for the patients at times.

Margaret from Australia

> > >

> > > st1\:*{behavior:url(#default#ieooui) }

> > >

> > > Marge,

> > >

> > > Thank you so much for your suggestion! I printed

> > > out your email and have it with me all of the time!

> > > Great support when I do my exercises. The surgeon

> > > was able to break up the scar tissue on Tuesday and

> > > got 130 degrees. I am getting 110 degrees now but

> > > it really burns. My leg is really swollen but I am

> > > on my CPM machine all night as I sleep and most of

> > > the day. I will keep you posted on my progress.

> > >

> > > Thanks for your help!

> > >

> > > Jeanne in Denver

> > >

Posted December 12, 2004 · December 12, 2004

Thank you all for your thoughts on this

subject. I have mainly been using the

CPM at night… I have a hard time sleeping unless I elevate my leg and

also…. I am so stiff in the mornings when I wake up if I don’t

sleep with it on. (Maybe I am becoming dependent on the machine.) It

seems like I am doing my exercises (off

of the machine) almost constantly. I

really want to get the mobility back. I

would like to know how often all of you do your exercises during the day. My muscles are so sore. Sometimes I think it

might be the CPM.

Jeanne

Rylatt

Lakewood, CO

Posted December 13, 2004 · December 13, 2004

Ruth, do you go to Cannon?

>From: ruth davenport <rmurfdav@...>

>Reply-Joint Replacement

>Joint Replacement

>Subject: Re: Re: New Member intro

>Date: Sat, 11 Dec 2004 16:22:12 -0800 (PST)

>

_________________________________________________________________

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Cara

Thanks for telling what a CPM machine is. My

replacement was hip so it didn't get involved with it.

HUGS RUTH

--- white_robin55 <white_robin55@...> wrote:

>

> Ruth,

>

> A CPM machine is a continuous passive motion machine

> which is used

> for knee replacements. It bends the knees for you,

> in a slow and

> minimal way to get the joint working.

> I have read that some doctors use it and others

> don't.

>

> Cara

>

> > >

> > > st1\:*{behavior:url(#default#ieooui) }

> > >

> > > Marge,

> > >

> > > Thank you so much for your suggestion! I

> printed

> > > out your email and have it with me all of the

> time!

> > > Great support when I do my exercises. The

> surgeon

> > > was able to break up the scar tissue on Tuesday

> and

> > > got 130 degrees. I am getting 110 degrees now

> but

> > > it really burns. My leg is really swollen but I

> am

> > > on my CPM machine all night as I sleep and most

> of

> > > the day. I will keep you posted on my progress.

> > >

> > > Thanks for your help!

> > >

> > > Jeanne in Denver

> > >

Posted January 22, 2005 · January 22, 2005

Wellcome to the group. I have very little I can ask or tell you as I am not very knowledgable about all the different complications, but stick around someone will talk exactly about the subject you want to hear!

Clara

[ ] New Member Intro

Hello everyone! My name is Nina (pronounced with a long i).

I am married for 33 1/2 years and we have one daughter. I call her my "professional student". She's been going to school forever, it seems. LOL She's finishing her Ph.D. in Psychology right now.

I live in far North Texas, about 90 miles North of Dallas. I have lots of animals: 9 dogs, 2 donkeys, 2 goats, 7 geese, 5 turkeys, 9 ducks and a multitude of chickens.

I am 53 years old and have a multitude of health problems, including Sjogren's, Fibro, and Primary Biliary Cirrhosis (autoimmune). I am on SSDI for the past four years. I became very ill with a major flare last August and since that time have been taking Prednisone (first time). I have also been in the hospital twice since August having the steroids administered by IV. I hate steroids. :-( The doctor suspects I may have Lymphoma because there is something showing up in the chest x-rays in addition to the lymph nodes showing up in them (apparently very unusual).

I am scheduled to see a specialist (rheumatologist) at the end of January to see if there's anything he can do that will help me get through this flare. I have opted not to continue the steroids by IV because of the health risks involved. I have recently weaned down from 40 mg. per day to 5 mg. per day.

Can't think of anything else about me that's relevant. Glad to be here and feel free to ask me questions if you have them.

Nina

Posted January 29, 2005 · January 29, 2005

In a message dated 1/22/2005 4:09:10 PM Eastern Standard Time, ncampbell@... writes:

:-( The doctor suspects I may have Lymphoma because there is something showing up in the chest x-rays in addition to the lymph nodes showing up in them (apparently very unusual).

Dear Nina

Please ask your doctor to check for thymoma which is often misdiagnosed as lymphoma. Thymoma is a tumor of the thymus gland and can cause all sorts of autoimmune disease including Sjogren's, Myasthenia Gravis, Lupus and others. I had a rather large thymoma removed last February and it was thought to be the cause of my AIH. It's very rare but with your symptoms it should definitely be ruled out. If you'd like more info let me know. And do keep us posted.

Regards

Elaine

Posted January 30, 2005 · January 30, 2005

----- Original Message -----

From: champk9@...

> Please ask your doctor to check for thymoma which is often misdiagnosed as lymphoma. Thymoma is a tumor of the thymus gland and can cause all sorts of autoimmune disease including Sjogren's, Myasthenia Gravis, Lupus and others. I had a rather large thymoma removed last February and it was thought to be the cause of my AIH. It's very rare but with your symptoms it should definitely be ruled out. If you'd like more info let me know. And do keep us posted.

I'll mention that to the PCP the next time I see him. Thanks!

Nina

Posted February 15, 2005 · February 15, 2005

Hi , welcome to the group. I have not been here very long

myself.

When I want information about a book, I go to Amazon.com and search for

the title. Then look at buying information, customer reviews. For this

book there are 23 reviews. Good and bad. Very good information before

you buy. Be well, Virginia D.

Posted February 15, 2005 · February 15, 2005

At 01:09 PM 2/15/2005, you wrote:

>

>I have been dealing with severe candidiasis, adrenal exhaustion,

>hypo-thyroidism, menstrual issues, schizo-affective disorder (depressive

>type) and MS-like symptoms due to heavy metal toxicity. I have numerous

>food sensitivities that I’m hoping I can gradually eliminate. I have

>improved immensely since modifying my diet, taking prescribed

>supplements, herbs and homeopathics, chelation IVs, FIR saunas, yoga and

>meditation. I can now stay awake for longer than 4 hours at a time (up

>to 18 hours at a time now if I need to!!). I can walk normally and use

>my hands for fine motor skills. I have been off all forms of

>traditional medication (aside from Nystatin) for over a year now and no

>signs of depression! This was a very big deal for me since I had been

>hospitalized numerous times since 1994 for depression and related

>psychosis and had been on massive doses of anti-depressants and

>anti-psychotics. The depressed guinea pig survived! I still have my

>bad days where I am extremely irritable and my body doesn’t do what I

>want it to, but on the whole am I well on my road to recovery. I am

>alive… and loving it… and still utterly shocked!

Hi !

I'm glad your therapies are helping you. A lot of what you describe is commonly

caused by grain sensitivities (as I'm sure your Mercola readings have revealed)

.... they tend to cause " leaky gut " which triggers the other food sensitivities.

The other ones sometomes go away, which is the good part! I do know a person

personally whose son was schizophrenic ... now he only has attacks when he gets

gluten, so he's really careful about his diet. The grain-free diet plus

probiotics seems to be magical for a lot of people. Anyway, for me,

depression/anxiety is very much triggered by gluten. I tried one piece of pizza

to test the concept, about two years ago, and the experience scared me so much I

will not try it again. I think the " opioid " theory is probably the closes to the

truth ... the grains act like drugs, bad drugs, for some people. Anyway, I was

very depressed for about 20 years, now it's GONE, even though some sad things

have happened, it seems impossible for me to stay " down " for any length of time.

Oh, and no more migraines!

And fermented foods ROCK.

-- Heidi Jean

Posted February 16, 2005 · February 16, 2005

>

I look forward to

> hearing the how and the why of cultured foods.

>

That's a big question, as much is mysterious about digestion and nutrition,

however what has

worked for many is not eating what makes us ill - modern " processed " foods and

chemicals,

and replacing them with traditional foods that are proven over thousands of

years to be safe

and supportive of healthy life.

The book " Nutrition and Physical Degeneration " by Weston A. Price has been

essential for

me; the website http://www.westonaprice.org has been a gold mine for many.

As to why cultured foods, it seems that microbes convert foodstuffs into

something that is

better digested than other food, and support healthy population of gut critters

that prevent

candida overgrowth among other benefits.

Congratulations on your success so far. It only gets better.

PS real kefir works well for me, even though I can't tolerate pasteurized milk.

AEM might be

better, but I can't stand the required molasses. WS

Posted February 17, 2005 · February 17, 2005

-- In nutrition , Heidi Schuppenhauer

<heidis@t...> wrote:

Hi !

I'm glad your therapies are helping you. A lot of what you describe is

commonly caused by grain sensitivities (as I'm sure your Mercola

readings have revealed) ... they tend to cause " leaky gut " which

triggers the other food sensitivities. The other ones sometomes go

away, which is the good part! I do know a person personally whose son

was schizophrenic ... now he only has attacks when he gets gluten, so

he's really careful about his diet.

>Yes, I do avoid gluten. It is difficult but I do find that the gluten

makes

>my other sensitivities all that much more troublesome. Causes the

> " leaky gut " you mentioned.

>I have not totally eliminated grains. I can tolerate brown rice and

>quinoa in limited quantities if eat it with some good solid protein

(due to candida). I do take lots of probiotics and digestive enzymes

>to help out too.

I tried one piece

of pizza to test the concept, about two years ago, and the experience

scared me so much I will not try it again. I think the " opioid " theory

is probably the closes to the truth ... the grains act like drugs, bad

drugs, for some people. Anyway, I was very depressed for about 20

years, now it's GONE, even though some sad things have happened, it

seems impossible for me to stay " down " for any length of time. Oh, and

no more migraines!

And fermented foods ROCK.

-- Heidi Jean

--- End forwarded message ---

>Wow, your post helps add inspiration to keep at my diet. I too haven't

>suffered anymore migraines where I used to have them several times

>a month. The clear headedness is a nice bonus too!

>Thank you for your response. It's nice to hear from others that have

>had success by cutting out the grains and adding probiotics.

>I wish you continued good health!

>

--

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Posted June 22, 2005 · June 22, 2005

At 03:07 PM 6/22/05, you wrote:

>Hello, My name is actually Christy, but close family and friends

>call me Trissie.

>

>I look forward to gleaning information and ideas on how to delay

>surgery a little longer. I still owe over 2500 from last surgery,

>so it really isn't an option right now.

>

>Thanks, Trissie

You are not alone in many ways. We have been paying 7-10 medical offices

$10/ a month for over 5 years. We did manage to pay several off. I put

off seeing Doctors until I have to because I know It will only mean a new

monthly bill I can't pay. I thank god I have an understanding

wife. Neither of us signed on for this, but that's what for Better or

Worse is all about. Vent away, that's why I'm here. Dave

Posted February 27, 2006 · February 27, 2006

Carol, welcome ! I've had a couple of bad days lately myself, so I don't

know how much conversation I have in me right now. I just wanted to let

you know, that your not alone. I'm 45 and had to close a business that my

wife and I built up over 15 years, and move in with my mother in law in the

past year. I have fusion in 4 levels in my lower back, herniations in my

thoracic, and fusion in my neck, 1 level. I obviously, had operations, 2

in the 80's and 2 in the year 2000. I've been to 3 top level neurosurgeons,

5 physical therapy groups, 4 pain management specialist, several healing

services at church etc. I had injections didn't work, tried acupuncture,

didn't work, my last great hope was to get a morphine pump installed. They

tell me I'm not a candidate, because they can't pin point the source of my

pain. So like you, I've been told this is as good as it gets, when your

back/neck has had 4 surgeries , and several trauma's over your lifetime.

The big one was I crashed a hang glider 24 years ago. So I've been told

right now Narcotics, antidepressant etc is my pain management. I also use

many ice packs, a massaging chair, a massaging pad in bed and the car, a

heavy duty hand held percussion massager, and a Tens to try to keep the

pain bearable. The levels of meds has ratcheted up significantly over the

past 2 years. I now have lots of stomach problems, on top of my pain,

which has been labled Myofacial disease. Had a really bad run this last

weekend. So I too have had the sting of " This is as good as it

gets " . I've hired a lawyer and filed for SSI, I got my first rejection

letter last week. We are appealing but It takes 1 year to get a court

date. In the mean time, I've got no personal income, I lost my home and

business, and my dear wife, is the soul breadwinner. I've been working

since I was 14. I'm not adapting well to Not Working ! SSI tells me there

is no evidence that I can't work. My lack of sleep and level of pain,

generally 8 this week off the charts, tells me different.

O well I guess I had a little more story in me than I thought , this

morning. Frustration will do that to you. Welcome, we don't have all the

answers here, but we do have years of experience, and lots of compassion.

Dave in PA

Posted February 27, 2006 · February 27, 2006