Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Dave, Thank you for your words of encouragement. Wow, you have really had a rough time. To be honest, I am so glad I haven't had surgery and really don't plan to because I know it is only a short term fix with many problems later down the road as stress on adjoining levels will cause them to break down. In my intro, I failed to mention I also have multilevel lumbar disc disease which is compounding my problems with work. I have had severe muscle cramping in my low back which really stops me in my tracks. Muscle relaxing meds help a lot but make me so dizzy and spacy I can't perform my job safely. I can live with the sciatica and leg pain but when I fell into a patient sitting in a recliner when my back seized up, I knew this wasn't going to work for me. I am SO GLAD I opted for long term disability insurance when I took this job. It may be my salvation down the road. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Dave, Thank you for your words of encouragement. Wow, you have really had a rough time. To be honest, I am so glad I haven't had surgery and really don't plan to because I know it is only a short term fix with many problems later down the road as stress on adjoining levels will cause them to break down. In my intro, I failed to mention I also have multilevel lumbar disc disease which is compounding my problems with work. I have had severe muscle cramping in my low back which really stops me in my tracks. Muscle relaxing meds help a lot but make me so dizzy and spacy I can't perform my job safely. I can live with the sciatica and leg pain but when I fell into a patient sitting in a recliner when my back seized up, I knew this wasn't going to work for me. I am SO GLAD I opted for long term disability insurance when I took this job. It may be my salvation down the road. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 -Hi Carol first welcome to the group. Second go get another opinion from a surgeon. I had 3 turn me down for neck surgery and finally after a 1 1/2 and into horrible pain that was out of control by then I found a dr who helped me. I too got told by my dr " there is nothing more I can offer you and I know how you felt, I Felt betrayed, it was like I had no one to help me at all anymore. SO I decided I had to help myself and I did. DOn't believe one dr ask another and another if you want too. If you need the surgery to work and you need to work then they should do it.I had no arm pain and very little shoulder pain, and alot of pain in my upper back. But My neck pain was by far the worse it hurt to hold up my head. My surgeon cleaned things all out,fused a layer and did alot of other stuff in there and I feel pretty good still. Go back into the messages and find the one about Stenosis it had an study in there that said most people DO NOT GET better without sooner or later having surgery. Good Luck to you and let us know how you are doing are doing, I wish you happy dr hunting. Sharon Group Owner TheNeck-Back , " Carol Beckman " <galtgirlrn@...> wrote: > > Hello, > I am a new member and here's my story. I am a 59 year old RN who > has worked my whole life until this past week, when pain finally > forced me to take a LOA from my job as an IV therapist in an > outpatient infusion center. My initial injury dates back 25 years > when I suffered a severe whiplash injury. I've had neck pain over > the years, but have always managed it by avoiding activities I know > will cause me trouble, as well as conservative treatment with ice > and rest and OTC meds when I do have pain. > After taking my current job two years ago, I began having more > frequent and increasingly intense pain in my neck. It is a stabbing, > burning pain in the left side of my neck which I rate as an 8-9 when > it's really bad. I usually walk around work with a ice pack on my > neck most of the day. Some days I have to stop and sit down with an > ice pack on my neck for 15 minutes or so until the pain subsides. > Pain pills take the edge off but make me spaced outvand I'm scared > because I can't afford to be less than 100% when I'm putting in IVs > and giving chemotherapy and other drugs all day. > My PCP sent me to a PM & R specialist a year ago after my pain became > a daily thing. After an MRI and CT Myelogram, my diagnosis is 3 > level moderate to severe cervical stenosis. I have seen a > neurosurgeon and been told I am not a surgical candidate since I do > not have any arm or shoulder pain, and surgery is unlikely to > relieve my pain. > I've had two selective nerve blocks as well as the usual muscle > relaxers and pain meds. The first block totally eliminated my pain > for six wonderful weeks, but then the pain gradually returned until > it was worse than before the block. I had a second block three weeks > ago, but when I returned to work the following week the pain was as > bad as ever. I had a follow-up appointment with the doctor last week > and he told me he had nothing further to offer me. I told him I had > hit the wall as far as pain was concerned and his only advice was to > find a different job. He did give me six weeks off work and told me > to follow up with my PCP. After being very encouraging over the past > year that he could help me, he suddenly said that was it, he > couldnt' do anything more for me. I felt like someone kicked me in > the gut. > So, as of now, I am on a six week LOA, and after that I don't know > what will happen. I know that when I go back to work the pain will > most likely return. My employer has told me that I have to be able > to perform all aspects of my job and that they will not make > accommodations such as restricting some of my activities. > Where do I go from here? I have no idea. I do have LTD insurance > but the idea of not being able to work is totally foreign to me. The > sad thing is, this job is the best one I've ever had and I really > love the work and the people I work with. > I hope to gain support and information from all of you who have been > down this road ahead of me. > Best Wishes > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 -Hi Carol first welcome to the group. Second go get another opinion from a surgeon. I had 3 turn me down for neck surgery and finally after a 1 1/2 and into horrible pain that was out of control by then I found a dr who helped me. I too got told by my dr " there is nothing more I can offer you and I know how you felt, I Felt betrayed, it was like I had no one to help me at all anymore. SO I decided I had to help myself and I did. DOn't believe one dr ask another and another if you want too. If you need the surgery to work and you need to work then they should do it.I had no arm pain and very little shoulder pain, and alot of pain in my upper back. But My neck pain was by far the worse it hurt to hold up my head. My surgeon cleaned things all out,fused a layer and did alot of other stuff in there and I feel pretty good still. Go back into the messages and find the one about Stenosis it had an study in there that said most people DO NOT GET better without sooner or later having surgery. Good Luck to you and let us know how you are doing are doing, I wish you happy dr hunting. Sharon Group Owner TheNeck-Back , " Carol Beckman " <galtgirlrn@...> wrote: > > Hello, > I am a new member and here's my story. I am a 59 year old RN who > has worked my whole life until this past week, when pain finally > forced me to take a LOA from my job as an IV therapist in an > outpatient infusion center. My initial injury dates back 25 years > when I suffered a severe whiplash injury. I've had neck pain over > the years, but have always managed it by avoiding activities I know > will cause me trouble, as well as conservative treatment with ice > and rest and OTC meds when I do have pain. > After taking my current job two years ago, I began having more > frequent and increasingly intense pain in my neck. It is a stabbing, > burning pain in the left side of my neck which I rate as an 8-9 when > it's really bad. I usually walk around work with a ice pack on my > neck most of the day. Some days I have to stop and sit down with an > ice pack on my neck for 15 minutes or so until the pain subsides. > Pain pills take the edge off but make me spaced outvand I'm scared > because I can't afford to be less than 100% when I'm putting in IVs > and giving chemotherapy and other drugs all day. > My PCP sent me to a PM & R specialist a year ago after my pain became > a daily thing. After an MRI and CT Myelogram, my diagnosis is 3 > level moderate to severe cervical stenosis. I have seen a > neurosurgeon and been told I am not a surgical candidate since I do > not have any arm or shoulder pain, and surgery is unlikely to > relieve my pain. > I've had two selective nerve blocks as well as the usual muscle > relaxers and pain meds. The first block totally eliminated my pain > for six wonderful weeks, but then the pain gradually returned until > it was worse than before the block. I had a second block three weeks > ago, but when I returned to work the following week the pain was as > bad as ever. I had a follow-up appointment with the doctor last week > and he told me he had nothing further to offer me. I told him I had > hit the wall as far as pain was concerned and his only advice was to > find a different job. He did give me six weeks off work and told me > to follow up with my PCP. After being very encouraging over the past > year that he could help me, he suddenly said that was it, he > couldnt' do anything more for me. I felt like someone kicked me in > the gut. > So, as of now, I am on a six week LOA, and after that I don't know > what will happen. I know that when I go back to work the pain will > most likely return. My employer has told me that I have to be able > to perform all aspects of my job and that they will not make > accommodations such as restricting some of my activities. > Where do I go from here? I have no idea. I do have LTD insurance > but the idea of not being able to work is totally foreign to me. The > sad thing is, this job is the best one I've ever had and I really > love the work and the people I work with. > I hope to gain support and information from all of you who have been > down this road ahead of me. > Best Wishes > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 -Hi Carol first welcome to the group. Second go get another opinion from a surgeon. I had 3 turn me down for neck surgery and finally after a 1 1/2 and into horrible pain that was out of control by then I found a dr who helped me. I too got told by my dr " there is nothing more I can offer you and I know how you felt, I Felt betrayed, it was like I had no one to help me at all anymore. SO I decided I had to help myself and I did. DOn't believe one dr ask another and another if you want too. If you need the surgery to work and you need to work then they should do it.I had no arm pain and very little shoulder pain, and alot of pain in my upper back. But My neck pain was by far the worse it hurt to hold up my head. My surgeon cleaned things all out,fused a layer and did alot of other stuff in there and I feel pretty good still. Go back into the messages and find the one about Stenosis it had an study in there that said most people DO NOT GET better without sooner or later having surgery. Good Luck to you and let us know how you are doing are doing, I wish you happy dr hunting. Sharon Group Owner TheNeck-Back , " Carol Beckman " <galtgirlrn@...> wrote: > > Hello, > I am a new member and here's my story. I am a 59 year old RN who > has worked my whole life until this past week, when pain finally > forced me to take a LOA from my job as an IV therapist in an > outpatient infusion center. My initial injury dates back 25 years > when I suffered a severe whiplash injury. I've had neck pain over > the years, but have always managed it by avoiding activities I know > will cause me trouble, as well as conservative treatment with ice > and rest and OTC meds when I do have pain. > After taking my current job two years ago, I began having more > frequent and increasingly intense pain in my neck. It is a stabbing, > burning pain in the left side of my neck which I rate as an 8-9 when > it's really bad. I usually walk around work with a ice pack on my > neck most of the day. Some days I have to stop and sit down with an > ice pack on my neck for 15 minutes or so until the pain subsides. > Pain pills take the edge off but make me spaced outvand I'm scared > because I can't afford to be less than 100% when I'm putting in IVs > and giving chemotherapy and other drugs all day. > My PCP sent me to a PM & R specialist a year ago after my pain became > a daily thing. After an MRI and CT Myelogram, my diagnosis is 3 > level moderate to severe cervical stenosis. I have seen a > neurosurgeon and been told I am not a surgical candidate since I do > not have any arm or shoulder pain, and surgery is unlikely to > relieve my pain. > I've had two selective nerve blocks as well as the usual muscle > relaxers and pain meds. The first block totally eliminated my pain > for six wonderful weeks, but then the pain gradually returned until > it was worse than before the block. I had a second block three weeks > ago, but when I returned to work the following week the pain was as > bad as ever. I had a follow-up appointment with the doctor last week > and he told me he had nothing further to offer me. I told him I had > hit the wall as far as pain was concerned and his only advice was to > find a different job. He did give me six weeks off work and told me > to follow up with my PCP. After being very encouraging over the past > year that he could help me, he suddenly said that was it, he > couldnt' do anything more for me. I felt like someone kicked me in > the gut. > So, as of now, I am on a six week LOA, and after that I don't know > what will happen. I know that when I go back to work the pain will > most likely return. My employer has told me that I have to be able > to perform all aspects of my job and that they will not make > accommodations such as restricting some of my activities. > Where do I go from here? I have no idea. I do have LTD insurance > but the idea of not being able to work is totally foreign to me. The > sad thing is, this job is the best one I've ever had and I really > love the work and the people I work with. > I hope to gain support and information from all of you who have been > down this road ahead of me. > Best Wishes > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 hi carol, welcome to the group, sorry that pain has brought you to us. I can't get over what your employer said to you. I just lost my job because i was unable to perform my duties anymore. It really hurt listening to them lie to the unemployment officer about why they fired me. I was the most senior employee for the company too. That can't be right (what he said to you) don't they legally have to make accomedations for you? oh, there goes my youngest covered in i don't know what; gotta go, but I'm glad you are here, this is a great bunch of people. ooh sticky mess, take care carol sorry this got cut short. rob No greater burden can be borne by an individual than to know no one cares or understands. >From: " Carol Beckman " <galtgirlrn@...> >Reply-neck pain >neck pain >Subject: New Member Intro >Date: Sun, 26 Feb 2006 19:44:58 -0000 > >Hello, >I am a new member and here's my story. I am a 59 year old RN who >has worked my whole life until this past week, when pain finally >forced me to take a LOA from my job as an IV therapist in an >outpatient infusion center. My initial injury dates back 25 years >when I suffered a severe whiplash injury. I've had neck pain over >the years, but have always managed it by avoiding activities I know >will cause me trouble, as well as conservative treatment with ice >and rest and OTC meds when I do have pain. >After taking my current job two years ago, I began having more >frequent and increasingly intense pain in my neck. It is a stabbing, >burning pain in the left side of my neck which I rate as an 8-9 when >it's really bad. I usually walk around work with a ice pack on my >neck most of the day. Some days I have to stop and sit down with an >ice pack on my neck for 15 minutes or so until the pain subsides. >Pain pills take the edge off but make me spaced outvand I'm scared >because I can't afford to be less than 100% when I'm putting in IVs >and giving chemotherapy and other drugs all day. >My PCP sent me to a PM & R specialist a year ago after my pain became >a daily thing. After an MRI and CT Myelogram, my diagnosis is 3 >level moderate to severe cervical stenosis. I have seen a >neurosurgeon and been told I am not a surgical candidate since I do >not have any arm or shoulder pain, and surgery is unlikely to >relieve my pain. >I've had two selective nerve blocks as well as the usual muscle >relaxers and pain meds. The first block totally eliminated my pain >for six wonderful weeks, but then the pain gradually returned until >it was worse than before the block. I had a second block three weeks >ago, but when I returned to work the following week the pain was as >bad as ever. I had a follow-up appointment with the doctor last week >and he told me he had nothing further to offer me. I told him I had >hit the wall as far as pain was concerned and his only advice was to >find a different job. He did give me six weeks off work and told me >to follow up with my PCP. After being very encouraging over the past >year that he could help me, he suddenly said that was it, he >couldnt' do anything more for me. I felt like someone kicked me in >the gut. >So, as of now, I am on a six week LOA, and after that I don't know >what will happen. I know that when I go back to work the pain will >most likely return. My employer has told me that I have to be able >to perform all aspects of my job and that they will not make >accommodations such as restricting some of my activities. >Where do I go from here? I have no idea. I do have LTD insurance >but the idea of not being able to work is totally foreign to me. The >sad thing is, this job is the best one I've ever had and I really >love the work and the people I work with. >I hope to gain support and information from all of you who have been >down this road ahead of me. >Best Wishes >Carol > > > > _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 hi carol, welcome to the group, sorry that pain has brought you to us. I can't get over what your employer said to you. I just lost my job because i was unable to perform my duties anymore. It really hurt listening to them lie to the unemployment officer about why they fired me. I was the most senior employee for the company too. That can't be right (what he said to you) don't they legally have to make accomedations for you? oh, there goes my youngest covered in i don't know what; gotta go, but I'm glad you are here, this is a great bunch of people. ooh sticky mess, take care carol sorry this got cut short. rob No greater burden can be borne by an individual than to know no one cares or understands. >From: " Carol Beckman " <galtgirlrn@...> >Reply-neck pain >neck pain >Subject: New Member Intro >Date: Sun, 26 Feb 2006 19:44:58 -0000 > >Hello, >I am a new member and here's my story. I am a 59 year old RN who >has worked my whole life until this past week, when pain finally >forced me to take a LOA from my job as an IV therapist in an >outpatient infusion center. My initial injury dates back 25 years >when I suffered a severe whiplash injury. I've had neck pain over >the years, but have always managed it by avoiding activities I know >will cause me trouble, as well as conservative treatment with ice >and rest and OTC meds when I do have pain. >After taking my current job two years ago, I began having more >frequent and increasingly intense pain in my neck. It is a stabbing, >burning pain in the left side of my neck which I rate as an 8-9 when >it's really bad. I usually walk around work with a ice pack on my >neck most of the day. Some days I have to stop and sit down with an >ice pack on my neck for 15 minutes or so until the pain subsides. >Pain pills take the edge off but make me spaced outvand I'm scared >because I can't afford to be less than 100% when I'm putting in IVs >and giving chemotherapy and other drugs all day. >My PCP sent me to a PM & R specialist a year ago after my pain became >a daily thing. After an MRI and CT Myelogram, my diagnosis is 3 >level moderate to severe cervical stenosis. I have seen a >neurosurgeon and been told I am not a surgical candidate since I do >not have any arm or shoulder pain, and surgery is unlikely to >relieve my pain. >I've had two selective nerve blocks as well as the usual muscle >relaxers and pain meds. The first block totally eliminated my pain >for six wonderful weeks, but then the pain gradually returned until >it was worse than before the block. I had a second block three weeks >ago, but when I returned to work the following week the pain was as >bad as ever. I had a follow-up appointment with the doctor last week >and he told me he had nothing further to offer me. I told him I had >hit the wall as far as pain was concerned and his only advice was to >find a different job. He did give me six weeks off work and told me >to follow up with my PCP. After being very encouraging over the past >year that he could help me, he suddenly said that was it, he >couldnt' do anything more for me. I felt like someone kicked me in >the gut. >So, as of now, I am on a six week LOA, and after that I don't know >what will happen. I know that when I go back to work the pain will >most likely return. My employer has told me that I have to be able >to perform all aspects of my job and that they will not make >accommodations such as restricting some of my activities. >Where do I go from here? I have no idea. I do have LTD insurance >but the idea of not being able to work is totally foreign to me. The >sad thing is, this job is the best one I've ever had and I really >love the work and the people I work with. >I hope to gain support and information from all of you who have been >down this road ahead of me. >Best Wishes >Carol > > > > _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 hi carol, welcome to the group, sorry that pain has brought you to us. I can't get over what your employer said to you. I just lost my job because i was unable to perform my duties anymore. It really hurt listening to them lie to the unemployment officer about why they fired me. I was the most senior employee for the company too. That can't be right (what he said to you) don't they legally have to make accomedations for you? oh, there goes my youngest covered in i don't know what; gotta go, but I'm glad you are here, this is a great bunch of people. ooh sticky mess, take care carol sorry this got cut short. rob No greater burden can be borne by an individual than to know no one cares or understands. >From: " Carol Beckman " <galtgirlrn@...> >Reply-neck pain >neck pain >Subject: New Member Intro >Date: Sun, 26 Feb 2006 19:44:58 -0000 > >Hello, >I am a new member and here's my story. I am a 59 year old RN who >has worked my whole life until this past week, when pain finally >forced me to take a LOA from my job as an IV therapist in an >outpatient infusion center. My initial injury dates back 25 years >when I suffered a severe whiplash injury. I've had neck pain over >the years, but have always managed it by avoiding activities I know >will cause me trouble, as well as conservative treatment with ice >and rest and OTC meds when I do have pain. >After taking my current job two years ago, I began having more >frequent and increasingly intense pain in my neck. It is a stabbing, >burning pain in the left side of my neck which I rate as an 8-9 when >it's really bad. I usually walk around work with a ice pack on my >neck most of the day. Some days I have to stop and sit down with an >ice pack on my neck for 15 minutes or so until the pain subsides. >Pain pills take the edge off but make me spaced outvand I'm scared >because I can't afford to be less than 100% when I'm putting in IVs >and giving chemotherapy and other drugs all day. >My PCP sent me to a PM & R specialist a year ago after my pain became >a daily thing. After an MRI and CT Myelogram, my diagnosis is 3 >level moderate to severe cervical stenosis. I have seen a >neurosurgeon and been told I am not a surgical candidate since I do >not have any arm or shoulder pain, and surgery is unlikely to >relieve my pain. >I've had two selective nerve blocks as well as the usual muscle >relaxers and pain meds. The first block totally eliminated my pain >for six wonderful weeks, but then the pain gradually returned until >it was worse than before the block. I had a second block three weeks >ago, but when I returned to work the following week the pain was as >bad as ever. I had a follow-up appointment with the doctor last week >and he told me he had nothing further to offer me. I told him I had >hit the wall as far as pain was concerned and his only advice was to >find a different job. He did give me six weeks off work and told me >to follow up with my PCP. After being very encouraging over the past >year that he could help me, he suddenly said that was it, he >couldnt' do anything more for me. I felt like someone kicked me in >the gut. >So, as of now, I am on a six week LOA, and after that I don't know >what will happen. I know that when I go back to work the pain will >most likely return. My employer has told me that I have to be able >to perform all aspects of my job and that they will not make >accommodations such as restricting some of my activities. >Where do I go from here? I have no idea. I do have LTD insurance >but the idea of not being able to work is totally foreign to me. The >sad thing is, this job is the best one I've ever had and I really >love the work and the people I work with. >I hope to gain support and information from all of you who have been >down this road ahead of me. >Best Wishes >Carol > > > > _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 hey dave, we need something positive in our lives; all of us. I'm sure everyone has something positive, but i mean something huge, something great, something so big it even pushes the pain to the back ground. I get so worked up reading everyone's posts. I want to help everyone, fix things, offer up information that would really help; something. It just shouldn't be this way. I know i whine and vent alot and it's only been 4 yrs for me. I read your post and I don't know that I would be strong enough to deal with the pain and everything else you've gone through. You, Sharon, and Kat and a few others just amaze me. You've been going at this for so long but you don't give up. It's very inspiring. I have alot of respect for you guys, and it motivates me to keep going, to keep trying and not give up. I just wanted to thank everyone here that posts, I'm sure a lot of people get strenght from them. (the posts) thanks everyone, and take care. rob No greater burden can be borne by an individual than to know no one cares or understands. >From: Cruikshank <d.cruikshank@...> >Reply-neck pain >neck pain >Subject: Re: New Member Intro >Date: Mon, 27 Feb 2006 11:18:44 -0500 > >Carol, welcome ! I've had a couple of bad days lately myself, so I don't >know how much conversation I have in me right now. I just wanted to let >you know, that your not alone. I'm 45 and had to close a business that my >wife and I built up over 15 years, and move in with my mother in law in the >past year. I have fusion in 4 levels in my lower back, herniations in my >thoracic, and fusion in my neck, 1 level. I obviously, had operations, 2 >in the 80's and 2 in the year 2000. I've been to 3 top level neurosurgeons, >5 physical therapy groups, 4 pain management specialist, several healing >services at church etc. I had injections didn't work, tried acupuncture, >didn't work, my last great hope was to get a morphine pump installed. They >tell me I'm not a candidate, because they can't pin point the source of my >pain. So like you, I've been told this is as good as it gets, when your >back/neck has had 4 surgeries , and several trauma's over your lifetime. >The big one was I crashed a hang glider 24 years ago. So I've been told >right now Narcotics, antidepressant etc is my pain management. I also use >many ice packs, a massaging chair, a massaging pad in bed and the car, a >heavy duty hand held percussion massager, and a Tens to try to keep the >pain bearable. The levels of meds has ratcheted up significantly over the >past 2 years. I now have lots of stomach problems, on top of my pain, >which has been labled Myofacial disease. Had a really bad run this last >weekend. So I too have had the sting of " This is as good as it >gets " . I've hired a lawyer and filed for SSI, I got my first rejection >letter last week. We are appealing but It takes 1 year to get a court >date. In the mean time, I've got no personal income, I lost my home and >business, and my dear wife, is the soul breadwinner. I've been working >since I was 14. I'm not adapting well to Not Working ! SSI tells me there >is no evidence that I can't work. My lack of sleep and level of pain, >generally 8 this week off the charts, tells me different. > >O well I guess I had a little more story in me than I thought , this >morning. Frustration will do that to you. Welcome, we don't have all the >answers here, but we do have years of experience, and lots of compassion. > >Dave in PA > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 hey dave, we need something positive in our lives; all of us. I'm sure everyone has something positive, but i mean something huge, something great, something so big it even pushes the pain to the back ground. I get so worked up reading everyone's posts. I want to help everyone, fix things, offer up information that would really help; something. It just shouldn't be this way. I know i whine and vent alot and it's only been 4 yrs for me. I read your post and I don't know that I would be strong enough to deal with the pain and everything else you've gone through. You, Sharon, and Kat and a few others just amaze me. You've been going at this for so long but you don't give up. It's very inspiring. I have alot of respect for you guys, and it motivates me to keep going, to keep trying and not give up. I just wanted to thank everyone here that posts, I'm sure a lot of people get strenght from them. (the posts) thanks everyone, and take care. rob No greater burden can be borne by an individual than to know no one cares or understands. >From: Cruikshank <d.cruikshank@...> >Reply-neck pain >neck pain >Subject: Re: New Member Intro >Date: Mon, 27 Feb 2006 11:18:44 -0500 > >Carol, welcome ! I've had a couple of bad days lately myself, so I don't >know how much conversation I have in me right now. I just wanted to let >you know, that your not alone. I'm 45 and had to close a business that my >wife and I built up over 15 years, and move in with my mother in law in the >past year. I have fusion in 4 levels in my lower back, herniations in my >thoracic, and fusion in my neck, 1 level. I obviously, had operations, 2 >in the 80's and 2 in the year 2000. I've been to 3 top level neurosurgeons, >5 physical therapy groups, 4 pain management specialist, several healing >services at church etc. I had injections didn't work, tried acupuncture, >didn't work, my last great hope was to get a morphine pump installed. They >tell me I'm not a candidate, because they can't pin point the source of my >pain. So like you, I've been told this is as good as it gets, when your >back/neck has had 4 surgeries , and several trauma's over your lifetime. >The big one was I crashed a hang glider 24 years ago. So I've been told >right now Narcotics, antidepressant etc is my pain management. I also use >many ice packs, a massaging chair, a massaging pad in bed and the car, a >heavy duty hand held percussion massager, and a Tens to try to keep the >pain bearable. The levels of meds has ratcheted up significantly over the >past 2 years. I now have lots of stomach problems, on top of my pain, >which has been labled Myofacial disease. Had a really bad run this last >weekend. So I too have had the sting of " This is as good as it >gets " . I've hired a lawyer and filed for SSI, I got my first rejection >letter last week. We are appealing but It takes 1 year to get a court >date. In the mean time, I've got no personal income, I lost my home and >business, and my dear wife, is the soul breadwinner. I've been working >since I was 14. I'm not adapting well to Not Working ! SSI tells me there >is no evidence that I can't work. My lack of sleep and level of pain, >generally 8 this week off the charts, tells me different. > >O well I guess I had a little more story in me than I thought , this >morning. Frustration will do that to you. Welcome, we don't have all the >answers here, but we do have years of experience, and lots of compassion. > >Dave in PA > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Sharon I also have stenosis could you please send that one to the group as I don't know how to go back and get it I'm kinda new as far as posting.Thanks Shirley --- darkstarzz1019 <darkstarzz1019@...> wrote: > -Hi Carol first welcome to the group. Second go get > another opinion > from a surgeon. I had 3 turn me down for neck > surgery and finally > after a 1 1/2 and into horrible pain that was out of > control by then > I found a dr who helped me. I too got told by my dr > " there is > nothing more I can offer you and I know how you > felt, I Felt > betrayed, it was like I had no one to help me at all > anymore. SO I > decided I had to help myself and I did. DOn't > believe one dr ask > another and another if you want too. If you need the > surgery to work > and you need to work then they should do it.I had no > arm pain and > very little shoulder pain, and alot of pain in my > upper back. But My > neck pain was by far the worse it hurt to hold up my > head. My > surgeon cleaned things all out,fused a layer and did > alot of other > stuff in there and I feel pretty good still. Go back > into the > messages and find the one about Stenosis it had an > study in there > that said most people DO NOT GET better without > sooner or later > having surgery. Good Luck to you and let us know how > you are doing > are doing, I wish you happy dr hunting. Sharon Group > Owner > > TheNeck-Back , " Carol Beckman " > <galtgirlrn@...> wrote: > > > > Hello, > > I am a new member and here's my story. I am a 59 > year old RN who > > has worked my whole life until this past week, > when pain finally > > forced me to take a LOA from my job as an IV > therapist in an > > outpatient infusion center. My initial injury > dates back 25 years > > when I suffered a severe whiplash injury. I've > had neck pain over > > the years, but have always managed it by avoiding > activities I > know > > will cause me trouble, as well as conservative > treatment with ice > > and rest and OTC meds when I do have pain. > > After taking my current job two years ago, I began > having more > > frequent and increasingly intense pain in my neck. > It is a > stabbing, > > burning pain in the left side of my neck which I > rate as an 8-9 > when > > it's really bad. I usually walk around work with a > ice pack on my > > neck most of the day. Some days I have to stop and > sit down with > an > > ice pack on my neck for 15 minutes or so until the > pain subsides. > > Pain pills take the edge off but make me spaced > outvand I'm scared > > because I can't afford to be less than 100% when > I'm putting in > IVs > > and giving chemotherapy and other drugs all day. > > My PCP sent me to a PM & R specialist a year ago > after my pain > became > > a daily thing. After an MRI and CT Myelogram, my > diagnosis is 3 > > level moderate to severe cervical stenosis. I have > seen a > > neurosurgeon and been told I am not a surgical > candidate since I > do > > not have any arm or shoulder pain, and surgery is > unlikely to > > relieve my pain. > > I've had two selective nerve blocks as well as the > usual muscle > > relaxers and pain meds. The first block totally > eliminated my pain > > for six wonderful weeks, but then the pain > gradually returned > until > > it was worse than before the block. I had a second > block three > weeks > > ago, but when I returned to work the following > week the pain was > as > > bad as ever. I had a follow-up appointment with > the doctor last > week > > and he told me he had nothing further to offer me. > I told him I > had > > hit the wall as far as pain was concerned and his > only advice was > to > > find a different job. He did give me six weeks off > work and told > me > > to follow up with my PCP. After being very > encouraging over the > past > > year that he could help me, he suddenly said that > was it, he > > couldnt' do anything more for me. I felt like > someone kicked me in > > the gut. > > So, as of now, I am on a six week LOA, and after > that I don't know > > what will happen. I know that when I go back to > work the pain will > > most likely return. My employer has told me that > I have to be > able > > to perform all aspects of my job and that they > will not make > > accommodations such as restricting some of my > activities. > > Where do I go from here? I have no idea. I do > have LTD insurance > > but the idea of not being able to work is totally > foreign to me. > The > > sad thing is, this job is the best one I've ever > had and I really > > love the work and the people I work with. > > I hope to gain support and information from all of > you who have > been > > down this road ahead of me. > > Best Wishes > > Carol > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Sharon I also have stenosis could you please send that one to the group as I don't know how to go back and get it I'm kinda new as far as posting.Thanks Shirley --- darkstarzz1019 <darkstarzz1019@...> wrote: > -Hi Carol first welcome to the group. Second go get > another opinion > from a surgeon. I had 3 turn me down for neck > surgery and finally > after a 1 1/2 and into horrible pain that was out of > control by then > I found a dr who helped me. I too got told by my dr > " there is > nothing more I can offer you and I know how you > felt, I Felt > betrayed, it was like I had no one to help me at all > anymore. SO I > decided I had to help myself and I did. DOn't > believe one dr ask > another and another if you want too. If you need the > surgery to work > and you need to work then they should do it.I had no > arm pain and > very little shoulder pain, and alot of pain in my > upper back. But My > neck pain was by far the worse it hurt to hold up my > head. My > surgeon cleaned things all out,fused a layer and did > alot of other > stuff in there and I feel pretty good still. Go back > into the > messages and find the one about Stenosis it had an > study in there > that said most people DO NOT GET better without > sooner or later > having surgery. Good Luck to you and let us know how > you are doing > are doing, I wish you happy dr hunting. Sharon Group > Owner > > TheNeck-Back , " Carol Beckman " > <galtgirlrn@...> wrote: > > > > Hello, > > I am a new member and here's my story. I am a 59 > year old RN who > > has worked my whole life until this past week, > when pain finally > > forced me to take a LOA from my job as an IV > therapist in an > > outpatient infusion center. My initial injury > dates back 25 years > > when I suffered a severe whiplash injury. I've > had neck pain over > > the years, but have always managed it by avoiding > activities I > know > > will cause me trouble, as well as conservative > treatment with ice > > and rest and OTC meds when I do have pain. > > After taking my current job two years ago, I began > having more > > frequent and increasingly intense pain in my neck. > It is a > stabbing, > > burning pain in the left side of my neck which I > rate as an 8-9 > when > > it's really bad. I usually walk around work with a > ice pack on my > > neck most of the day. Some days I have to stop and > sit down with > an > > ice pack on my neck for 15 minutes or so until the > pain subsides. > > Pain pills take the edge off but make me spaced > outvand I'm scared > > because I can't afford to be less than 100% when > I'm putting in > IVs > > and giving chemotherapy and other drugs all day. > > My PCP sent me to a PM & R specialist a year ago > after my pain > became > > a daily thing. After an MRI and CT Myelogram, my > diagnosis is 3 > > level moderate to severe cervical stenosis. I have > seen a > > neurosurgeon and been told I am not a surgical > candidate since I > do > > not have any arm or shoulder pain, and surgery is > unlikely to > > relieve my pain. > > I've had two selective nerve blocks as well as the > usual muscle > > relaxers and pain meds. The first block totally > eliminated my pain > > for six wonderful weeks, but then the pain > gradually returned > until > > it was worse than before the block. I had a second > block three > weeks > > ago, but when I returned to work the following > week the pain was > as > > bad as ever. I had a follow-up appointment with > the doctor last > week > > and he told me he had nothing further to offer me. > I told him I > had > > hit the wall as far as pain was concerned and his > only advice was > to > > find a different job. He did give me six weeks off > work and told > me > > to follow up with my PCP. After being very > encouraging over the > past > > year that he could help me, he suddenly said that > was it, he > > couldnt' do anything more for me. I felt like > someone kicked me in > > the gut. > > So, as of now, I am on a six week LOA, and after > that I don't know > > what will happen. I know that when I go back to > work the pain will > > most likely return. My employer has told me that > I have to be > able > > to perform all aspects of my job and that they > will not make > > accommodations such as restricting some of my > activities. > > Where do I go from here? I have no idea. I do > have LTD insurance > > but the idea of not being able to work is totally > foreign to me. > The > > sad thing is, this job is the best one I've ever > had and I really > > love the work and the people I work with. > > I hope to gain support and information from all of > you who have > been > > down this road ahead of me. > > Best Wishes > > Carol > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Sharon I also have stenosis could you please send that one to the group as I don't know how to go back and get it I'm kinda new as far as posting.Thanks Shirley --- darkstarzz1019 <darkstarzz1019@...> wrote: > -Hi Carol first welcome to the group. Second go get > another opinion > from a surgeon. I had 3 turn me down for neck > surgery and finally > after a 1 1/2 and into horrible pain that was out of > control by then > I found a dr who helped me. I too got told by my dr > " there is > nothing more I can offer you and I know how you > felt, I Felt > betrayed, it was like I had no one to help me at all > anymore. SO I > decided I had to help myself and I did. DOn't > believe one dr ask > another and another if you want too. If you need the > surgery to work > and you need to work then they should do it.I had no > arm pain and > very little shoulder pain, and alot of pain in my > upper back. But My > neck pain was by far the worse it hurt to hold up my > head. My > surgeon cleaned things all out,fused a layer and did > alot of other > stuff in there and I feel pretty good still. Go back > into the > messages and find the one about Stenosis it had an > study in there > that said most people DO NOT GET better without > sooner or later > having surgery. Good Luck to you and let us know how > you are doing > are doing, I wish you happy dr hunting. Sharon Group > Owner > > TheNeck-Back , " Carol Beckman " > <galtgirlrn@...> wrote: > > > > Hello, > > I am a new member and here's my story. I am a 59 > year old RN who > > has worked my whole life until this past week, > when pain finally > > forced me to take a LOA from my job as an IV > therapist in an > > outpatient infusion center. My initial injury > dates back 25 years > > when I suffered a severe whiplash injury. I've > had neck pain over > > the years, but have always managed it by avoiding > activities I > know > > will cause me trouble, as well as conservative > treatment with ice > > and rest and OTC meds when I do have pain. > > After taking my current job two years ago, I began > having more > > frequent and increasingly intense pain in my neck. > It is a > stabbing, > > burning pain in the left side of my neck which I > rate as an 8-9 > when > > it's really bad. I usually walk around work with a > ice pack on my > > neck most of the day. Some days I have to stop and > sit down with > an > > ice pack on my neck for 15 minutes or so until the > pain subsides. > > Pain pills take the edge off but make me spaced > outvand I'm scared > > because I can't afford to be less than 100% when > I'm putting in > IVs > > and giving chemotherapy and other drugs all day. > > My PCP sent me to a PM & R specialist a year ago > after my pain > became > > a daily thing. After an MRI and CT Myelogram, my > diagnosis is 3 > > level moderate to severe cervical stenosis. I have > seen a > > neurosurgeon and been told I am not a surgical > candidate since I > do > > not have any arm or shoulder pain, and surgery is > unlikely to > > relieve my pain. > > I've had two selective nerve blocks as well as the > usual muscle > > relaxers and pain meds. The first block totally > eliminated my pain > > for six wonderful weeks, but then the pain > gradually returned > until > > it was worse than before the block. I had a second > block three > weeks > > ago, but when I returned to work the following > week the pain was > as > > bad as ever. I had a follow-up appointment with > the doctor last > week > > and he told me he had nothing further to offer me. > I told him I > had > > hit the wall as far as pain was concerned and his > only advice was > to > > find a different job. He did give me six weeks off > work and told > me > > to follow up with my PCP. After being very > encouraging over the > past > > year that he could help me, he suddenly said that > was it, he > > couldnt' do anything more for me. I felt like > someone kicked me in > > the gut. > > So, as of now, I am on a six week LOA, and after > that I don't know > > what will happen. I know that when I go back to > work the pain will > > most likely return. My employer has told me that > I have to be > able > > to perform all aspects of my job and that they > will not make > > accommodations such as restricting some of my > activities. > > Where do I go from here? I have no idea. I do > have LTD insurance > > but the idea of not being able to work is totally > foreign to me. > The > > sad thing is, this job is the best one I've ever > had and I really > > love the work and the people I work with. > > I hope to gain support and information from all of > you who have > been > > down this road ahead of me. > > Best Wishes > > Carol > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 -Hi Shirley I tried to send it back to the group but no luck its message 2609 just type it into the top where it says message # and it should take you to that message. I'll copy and paste it later but no time to right now. Hope this helps. I know what a (P A I N) it can be. Sharon Group Owner -- In neck pain , Shirley Kurburski <skurburski@...> wrote: > > Sharon > I also have stenosis could you please send that one to > the group as I don't know how to go back and get it > I'm kinda new as far as posting.Thanks Shirley > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Hi, I don't know if you have tried cortizone injections, but that may be an option for you. I had fusion surgury in December and am getting through the recovery one day at a time. Good days and bad days.... Take care, Ted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Ted, I have had two injections in the past year. The first one was very successful but the second has not been of much help. I have been off work for two weeks now, and am doing well as far as my neck is concerned; of course, I haven't done anything to aggrivate it...I'm pretty bored sitting around doing nothing. However, my low back is as bad as ever. I'm starting pool therapy next week and hopeful that will help. Thanks for your support. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Hi Carol, Well, Hang in there, I hope the pool works, it did wonders for my Dad. Take Care, Ted > > Ted, > I have had two injections in the past year. The first one was very > successful but the second has not been of much help. > I have been off work for two weeks now, and am doing well as far as my > neck is concerned; of course, I haven't done anything to aggrivate > it...I'm pretty bored sitting around doing nothing. > However, my low back is as bad as ever. I'm starting pool therapy > next week and hopeful that will help. > Thanks for your support. > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Hi Carol, Well, Hang in there, I hope the pool works, it did wonders for my Dad. Take Care, Ted > > Ted, > I have had two injections in the past year. The first one was very > successful but the second has not been of much help. > I have been off work for two weeks now, and am doing well as far as my > neck is concerned; of course, I haven't done anything to aggrivate > it...I'm pretty bored sitting around doing nothing. > However, my low back is as bad as ever. I'm starting pool therapy > next week and hopeful that will help. > Thanks for your support. > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Hi Carol, Well, Hang in there, I hope the pool works, it did wonders for my Dad. Take Care, Ted > > Ted, > I have had two injections in the past year. The first one was very > successful but the second has not been of much help. > I have been off work for two weeks now, and am doing well as far as my > neck is concerned; of course, I haven't done anything to aggrivate > it...I'm pretty bored sitting around doing nothing. > However, my low back is as bad as ever. I'm starting pool therapy > next week and hopeful that will help. > Thanks for your support. > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Hi , So glad you joined. You will add alot to the group as you do on Planet Thrive which I love. Blessings to your healing Joyce lunagirl32002 <j_genser@...> wrote: Hi all, LoveandLight1111 has encouraged me to get Healing Lyme and to join this group. I just finished the book and was so impressed with Buhner's knowledge of the intelligence of Lyme spirochetes. The information scared me, since Lyme seems to be one of the most clever, indestructible organism out there. I myself am very confused as to whether I have Lyme or not. I tested positive on the Igenex IgM Western Blot for both Igenex and CDC guidelines. I tested negative for IgG. I just completed 6 months of herbal treatment with Dr Zhang in NYC. I never experienced much die-off and don't know if I am any better after all that treatment. My biggest complaints right now are digestive (diarrhea for 2 years now) and food and chemical sensitivities. If I do have Lyme, my guess is I had it for over 30 years, as I had joint and digestive issues from a young age as well as lowgrade depression. I think Zhang's herbs did help with the arthritic symptoms I had in my hands - I haven't had the cracking/ popping joints in a while and I was having them almost every day for a while there. My back and hips have been fine too after a long stretch of pain and problems. I have not worked in 2 years due to the chemical sensitivities and have spent thousands of $$ on doctors and tests and treatments to no avail. I can't just jump into every new protocol and throw away thousands of dollars anymore, although this does sound extremely promising. Since I don't have the typical disabling neuro or pain symptoms most with Lyme have, I am wary of trying a lot of potent herbs that might not be appropriate for my situation. I want to start this protocol with the bare minimum of herbs required, as my Lyme infection seems to be chronic and entrenched in my gut but not primarily in the brain (as far as I can tell....). Does anyone else have primarily digestive issues wtih Lyme?? Can anyone recommend a good herbalist familiar with this protocol in NY/Conn area? I also want to mention my new website, which some of you are already members. I have posted the info for this approach here and would love it if you could take the time to rate/ review the protocol after you've been following it for a while and have definite results, one way or the other: http://planetthrive.com/cgi-bin/members/pub9990215236855.cgi? itemid=9990233014929 & action=viewad & categoryid=9990226361483 & page=1 & placeonp age=1 & totaldisplayed=10. I will post this support group there as well. Have not read through archives yet but will take some time to review what's already been posted. It's so nice to find you all, Genser, founder www.PlanetThrive.com --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Hi ,(Makayla'smom)here...you will certainly be a welcomed and rich addition to this group...I haven't had much time to be at my computer but I plan to spend more time here and on Planet thrive! Blessings, (Makayla'smom) lunagirl32002 <j_genser@...> wrote: Hi all, LoveandLight1111 has encouraged me to get Healing Lyme and to join this group. I just finished the book and was so impressed with Buhner's knowledge of the intelligence of Lyme spirochetes. The information scared me, since Lyme seems to be one of the most clever, indestructible organism out there. I myself am very confused as to whether I have Lyme or not. I tested positive on the Igenex IgM Western Blot for both Igenex and CDC guidelines. I tested negative for IgG. I just completed 6 months of herbal treatment with Dr Zhang in NYC. I never experienced much die-off and don't know if I am any better after all that treatment. My biggest complaints right now are digestive (diarrhea for 2 years now) and food and chemical sensitivities. If I do have Lyme, my guess is I had it for over 30 years, as I had joint and digestive issues from a young age as well as lowgrade depression. I think Zhang's herbs did help with the arthritic symptoms I had in my hands - I haven't had the cracking/ popping joints in a while and I was having them almost every day for a while there. My back and hips have been fine too after a long stretch of pain and problems. I have not worked in 2 years due to the chemical sensitivities and have spent thousands of $$ on doctors and tests and treatments to no avail. I can't just jump into every new protocol and throw away thousands of dollars anymore, although this does sound extremely promising. Since I don't have the typical disabling neuro or pain symptoms most with Lyme have, I am wary of trying a lot of potent herbs that might not be appropriate for my situation. I want to start this protocol with the bare minimum of herbs required, as my Lyme infection seems to be chronic and entrenched in my gut but not primarily in the brain (as far as I can tell....). Does anyone else have primarily digestive issues wtih Lyme?? Can anyone recommend a good herbalist familiar with this protocol in NY/Conn area? I also want to mention my new website, which some of you are already members. I have posted the info for this approach here and would love it if you could take the time to rate/ review the protocol after you've been following it for a while and have definite results, one way or the other: http://planetthrive.com/cgi-bin/members/pub9990215236855.cgi? itemid=9990233014929 & action=viewad & categoryid=9990226361483 & page=1 & placeonp age=1 & totaldisplayed=10. I will post this support group there as well. Have not read through archives yet but will take some time to review what's already been posted. It's so nice to find you all, Genser, founder www.PlanetThrive.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 What about trying raw milk? narrowguager <dbgrubb@...> wrote: This is my introduction to the group. I'm 46, female, and I had my first seizure after hitting the back of my head just before bedtime when I was 25 and then sleeping right afterward. Duh!!! I have seizures every now and then and like everyone - I am interested in not having them anymore. I am also very against medical doctors' intervention since I have had some very eye opening discussions with them and know that they are not! concerned with my health or well-being. I've gone for 10 years between seizures without medication before so I know it is possible. I've recently done some cleansing to rid myself of parasites and heavy metals and such and now I'm having more trouble with seizures. I figure it is a deficiency somewhere because it happens right after I have my period. I just took some sublingual B-complex and have ordered some Udo's oil (perfect balance of omegas) so I would like to know of anything else I should concentrate on or stay away from. My diet is mostly organic fruits and vegetables with a little dairy and meat tossed in that is without hormones and additives. I am slowly adding in whole grains as I can find them. Lately I have been taking scullcap to control the seizures and I also keep lobelia tincture close by since it shuts down a seizure immediately. Unfortunately, most of my seizure activity is while I'm sleeping. My last two grand mals made me bite my tongue. Boy is that not fun! Take care everyone. Love, moni Have a Happy and Healthy Day, Kopera --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Hi: look into neurofeedback, magnesium, B- 50 agood multivitamin proviotics Diet: No dairy, low salt and sugar, no eggs, no chicken, no red meat, rest, no staying up late. and you are getting to menopause time and that always makes your seizures worst. Estrogen makes them worst progesterone helps. good luck! Kopera <ginakopera1@...> wrote: What about trying raw milk? narrowguager <dbgrubb@...> wrote: This is my introduction to the group. I'm 46, female, and I had my first seizure after hitting the back of my head just before bedtime when I was 25 and then sleeping right afterward. Duh!!! I have seizures every now and then and like everyone - I am interested in not having them anymore. I am also very against medical doctors' intervention since I have had some very eye opening discussions with them and know that they are not! concerned with my health or well-being. I've gone for 10 years between seizures without medication before so I know it is possible. I've recently done some cleansing to rid myself of parasites and heavy metals and such and now I'm having more trouble with seizures. I figure it is a deficiency somewhere because it happens right after I have my period. I just took some sublingual B-complex and have ordered some Udo's oil (perfect balance of omegas) so I would like to know of anything else I should concentrate on or stay away from. My diet is mostly organic fruits and vegetables with a little dairy and meat tossed in that is without hormones and additives. I am slowly adding in whole grains as I can find them. Lately I have been taking scullcap to control the seizures and I also keep lobelia tincture close by since it shuts down a seizure immediately. Unfortunately, most of my seizure activity is while I'm sleeping. My last two grand mals made me bite my tongue. Boy is that not fun! Take care everyone. Love, moni Have a Happy and Healthy Day, Kopera --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 What is B50? multivitamin? --- <lindae321@...> wrote: > Hi: > look into neurofeedback, magnesium, B- 50 > agood multivitamin > proviotics > Diet: No dairy, low salt and sugar, no eggs, no > chicken, no red meat, > rest, no staying up late. and you are getting > to menopause time and that always makes your > seizures worst. Estrogen makes them worst > progesterone helps. > good luck! > > > Kopera <ginakopera1@...> wrote: > What about trying raw milk? > > > > narrowguager <dbgrubb@...> wrote: > This is my introduction to the group. I'm 46, > female, and I had my > first seizure after hitting the back of my head just > before bedtime > when I was 25 and then sleeping right afterward. > Duh!!! > I have seizures every now and then and like everyone > - I am > interested in not having them anymore. I am also > very against > medical doctors' intervention since I have had some > very eye opening > discussions with them and know that they are not! > concerned with my > health or well-being. > I've gone for 10 years between seizures without > medication before so > I know it is possible. I've recently done some > cleansing to rid > myself of parasites and heavy metals and such and > now I'm having more > trouble with seizures. I figure it is a deficiency > somewhere because > it happens right after I have my period. > I just took some sublingual B-complex and have > ordered some Udo's oil > (perfect balance of omegas) so I would like to know > of anything else > I should concentrate on or stay away from. My diet > is mostly organic > fruits and vegetables with a little dairy and meat > tossed in that is > without hormones and additives. I am slowly adding > in whole grains > as I can find them. > Lately I have been taking scullcap to control the > seizures and I also > keep lobelia tincture close by since it shuts down a > seizure > immediately. Unfortunately, most of my seizure > activity is while I'm > sleeping. My last two grand mals made me bite my > tongue. Boy is > that not fun! > Take care everyone. > Love, moni > > Have a Happy and Healthy Day, > Kopera > > > --------------------------------- > Get your own web address for just $1.99/1st yr. > We'll help. Small Business. > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > How low will we go? Check out Messenger’s low > PC-to-Phone call rates. > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 > This is my introduction to the group. I'm 46, female, and I had my > first seizure after hitting the back of my head just before bedtime > when I was 25 and then sleeping right afterward. Duh!!! > I have seizures every now and then and like everyone - I am > interested in not having them anymore. I am also very against > medical doctors' intervention since I have had some very eye opening > discussions with them and know that they are not! concerned with my > health or well-being. > I've gone for 10 years between seizures without medication before so > I know it is possible. I've recently done some cleansing to rid > myself of parasites and heavy metals and such and now I'm having more > trouble with seizures. I figure it is a deficiency somewhere because > it happens right after I have my period. > I just took some sublingual B-complex and have ordered some Udo's oil > (perfect balance of omegas) so I would like to know of anything else > I should concentrate on or stay away from. My diet is mostly organic > fruits and vegetables with a little dairy and meat tossed in that is > without hormones and additives. I am slowly adding in whole grains > as I can find them. > Lately I have been taking scullcap to control the seizures and I also > keep lobelia tincture close by since it shuts down a seizure > immediately. Unfortunately, most of my seizure activity is while I'm > sleeping. My last two grand mals made me bite my tongue. Boy is > that not fun! > Take care everyone. > Love, moni > > > > > > > Have a Happy and Healthy Day, > Kopera > > > > --------------------------------- > Get your own web address for just $1.99/1st yr. We'll help. Small Business. > > Quote Link to comment Share on other sites More sharing options...
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