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Hi susan:

I take the gnc multivitamin for women without iron but you might find other

that you like better. and B-50 is a combination of B vitamins which are good for

your nerves. It has helped me tremendously with seizure control and memory. It

gives me a lot of enery and I feel great! Also check out the list of foods that

Arnold suggests that contain B-12. I still don't know how to find the archives

everyone talks about. So if you find them let me know.

Try all this and see how much better you feel and if it is not good enough,

keep search.

Ask and you shall receive, search and you shall find!

Good luck.

susan larsen <esusanlarsen@...> wrote:

What is B50?

multivitamin?

--- <lindae321@...> wrote:

> Hi:

> look into neurofeedback, magnesium, B- 50

> agood multivitamin

> proviotics

> Diet: No dairy, low salt and sugar, no eggs, no

> chicken, no red meat,

> rest, no staying up late. and you are getting

> to menopause time and that always makes your

> seizures worst. Estrogen makes them worst

> progesterone helps.

> good luck!

>

>

> Kopera <ginakopera1@...> wrote:

> What about trying raw milk?

>

>

>

> narrowguager <dbgrubb@...> wrote:

> This is my introduction to the group. I'm 46,

> female, and I had my

> first seizure after hitting the back of my head just

> before bedtime

> when I was 25 and then sleeping right afterward.

> Duh!!!

> I have seizures every now and then and like everyone

> - I am

> interested in not having them anymore. I am also

> very against

> medical doctors' intervention since I have had some

> very eye opening

> discussions with them and know that they are not!

> concerned with my

> health or well-being.

> I've gone for 10 years between seizures without

> medication before so

> I know it is possible. I've recently done some

> cleansing to rid

> myself of parasites and heavy metals and such and

> now I'm having more

> trouble with seizures. I figure it is a deficiency

> somewhere because

> it happens right after I have my period.

> I just took some sublingual B-complex and have

> ordered some Udo's oil

> (perfect balance of omegas) so I would like to know

> of anything else

> I should concentrate on or stay away from. My diet

> is mostly organic

> fruits and vegetables with a little dairy and meat

> tossed in that is

> without hormones and additives. I am slowly adding

> in whole grains

> as I can find them.

> Lately I have been taking scullcap to control the

> seizures and I also

> keep lobelia tincture close by since it shuts down a

> seizure

> immediately. Unfortunately, most of my seizure

> activity is while I'm

> sleeping. My last two grand mals made me bite my

> tongue. Boy is

> that not fun!

> Take care everyone.

> Love, moni

>

> Have a Happy and Healthy Day,

> Kopera

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr.

> We'll help. Small Business.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Messenger’s low

> PC-to-Phone call rates.

>

> [Non-text portions of this message have been

> removed]

>

>

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

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  • 1 month later...

>

Hi

Please read my post to . This would apply to u also.

I don't know about capsules. I buy the 450g jar of extra virgin

coconut oil. The Refined, bleached and deodorised stuff is cheaper

and is nutritional the same in the context of lauric acid. It is ok

to cook with but not so nice to eat neat apparently. I believe it

has less antioxidants and I think lacking in enzymes. Haven't yet

tried it myself. You can get the oil by drinking coconut milk too,

but if you don't like the taste that is probably not helpful. If

you made it into a smoothie you probably would not notice it. 250ml

gives you 40g of oil. So it works out cheap as well. It does help

with weight loss as well. I find it suppresses your appetite as

well as raising your metabolism. Hope this helps

Sally

> Hi! I'm fairly new to NT principles and have just begun adding

coconut oil to my diet. Just

> today found this group and am looking forward to being a part of

it - learning and

> contributing!

>

> I did a brief scan of some recent postings; please forgive me if

I'm asking questions that

> have previously gone around...

>

> I've been Armour thyroid for a couple of years - one of those

classic 'borderline'

> hypothyroid cases, but luckily I had an M.D. who understood and

tried me on A.T. It's

> helped somewhat, but I want to focus more on my nutrition to

support my thyroid (which

> has ironically gotten worse in the past 2 years,) hence one of the

main reasons for adding

> CO to my diet. I " m not looking for a miracle diet pill, but have

gained a lot of weight this

> past year, along with significant fatigue, constantly cold

(sometimes to the point of

> painful), depressed mood, etc. In just a week of CO capsules.

(I am nauseated by the

> taste and even smell of coconut) I feel noticeably better. Less

cold, less exhausted - this

> is huge for me right now!!

> Did I read correctly in previous postings that refined CO will be

as nutritionally beneficial

> as VCO?

> I've read that expeller-pressed CO has minimal taste/smell - can

anyone share their

> experiences with expeller-pressed CO? The capsules are just too

expensive!!

>

> Thanks!

>

>

>

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Hi Lori,

How sad your daughter is going through this. I don't have any knowledge of JRA

vs RA. My

son has juvenile psoriatic arthritis, and though all of these diseases are

similar, they are

quite different and I wouldn't want to speak on a subject I don't have

first-hand knowledge

about. However, I did want to let you know that I'm sure someone from this board

most

likely can help and that this sounds like a better place to find some help for

your daughter

and yourself. I don't know very many families who deal with JPsA and I also

turned to an

adult site. Though it might be the same disease, the social circumstances are

very, very

different. I sure hope you find what you are looking for here.

Also, I know what you mean about weighing the side effects of the medications

with the

benefits. My son also takes methotrexate, and until just a few weeks ago, he

would spend

the entire night and next day throwing up. As parents we saw little change in

the disease,

so we wanted to take him off. The doctor kept saying that we're not seeing an

improvement, but that the mtx is keeping him from getting worse, and she doesn't

want

to see what the disease would do if he came off the mtx. Finally, after 9

months, there was

no active arthritis and we kept him on full strength but cut in half his

naproxen dose.

Within 2 weeks he flared. Then got back on track. Then flared again and added

plaquenil

in August. Now, very little active arthritis again.

We're not happy about all of the drugs, and if we could, we'd stop everything

all together.

But I have seen Andy have pain-free days. Though they were few and far between,

this

does give me hope. Our end goal is to be in drug-free remission, but the doctor

has

already prepared us to be hopeful for medicated remission based on his specific

disease. I

know there are lots of other moms and dads who can tell you wonderful stories

how their

kids are in remission, and even some without drugs. Keep your spirits up and

don't give

up. Whatever you decide to do about the medication, know that you are doing what

you

feel is best.

>

> Hi. My name is Lori Maynard and my daughter (the oldest of our

> five children) was diagnosed with RA in February of this year. She was

> 12 at the time but turned 13 in August. We travel out of state to see

> our pediatric rheumatologist, Dr. Lehman, whom we trust and have become

> comfortable with.

>

> I have some (OK, a ton of) questions and I'm not entirely sure where to

> start. I think my first question has to do with the difference with RA

> and JRA. Early in the year, my understanding was that patients with

> JRA tended not to have a positive RF. 's RF numbers were very,

> very high as was her sed rate back in February and throughout the

> spring. These numbers seem to be much more in the normal range now

> because of her drug regimine (Humira, Methotrexate, Folic Acid, Lodine,

> Prednisone)but her symptoms don't necessarily reflect this as she is

> always in pain and frequently in a lot of pain. Dr. Lehman has led me

> to believe that she has what would be consistant with adult onset RA as

> opposed to JRA. Does this make sense to any of you? How would he be

> able to tell that this isn't JRA? Could it still be JRA?

>

> has been taking Humira injections once a week for about 7 months

> and Methotrexate injections (25 mg) once a week for about 6 months.

> Her hair had been thinning from methotrexate, but this weekend it began

> falling out in clumps and now she has a huge bald spot on the top of

> her head. She takes 1 mg of folic acid. Tomorrow is her methotrexate

> dose day and I have told my doctor that I want to cut her dose in half

> because of her hair falling out. He reiterated to me how serious her

> arthritis is and that he would be reluctant to do this, but that I

> needed to weigh the risk vs. benefit of the drug. In other words, " go

> ahead and cut the dose, but I don't think it's the best thing. "

>

> Have any of you ever been in this position and what did you do?

>

> Another question I have is about expectations. Should I be expecting

> these drugs to put her into remission? Has anyone else done very

> poorly for a year or two and then gotten better or gone into

> remission? I know there is no cure for this, and I watched my dad

> suffer terribly with RA, but I am still so hopeful for some kind of

> remission. I guess this is why I'm still hopeful that has JRA

> instead of adult onset RA. At lease with JRA, I have heard that there

> are many people who have gone into remission and can somewhat put this

> nightmare behind them.

>

> I appreciate being able to post these questions. I am on another RA

> loop, but most of the people there are older and have the disease,

> where I am making medical decisions for a child who has the disease and

> that is quite different.

>

> Thank you for any help you can offer.

>

> Lori in NJ

>

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Lori,

I think the answer to your question about RA vs JRA is that positive

rheumatoid factor. It is my understanding that when a child has a positive

factor then there's a good chance that the arthritis is very early onset RA

or will more likely mirror RA. I may be wrong, and I'm sure someone else

will be able to better explain this to you.

As for the hair, boy do we understand! My daughter was on methotrexate for

many years with no hair loss. When we had to add a new med, though, she

started losing her hair. By November of 7th grade we could no longer hide

the bald spots and she continued to lose her hair. This was very difficult

for ~~ yes, that's my daughter's name, too, and she is the 5th of our 6

children~~ but her comment was that if she had to choose between having hair

and being able to walk, dress herself, etc, then there really was no choice.

She did eventually choose to start wearing a wig and has been pretty pleased

with that choice. Her hair is finally growing in again, though not as well

as we'd like, and she's still wearing a wig but also goes without it

sometimes. The thing to remember with the hair is that it won't physically

harm the kids, although you do have to figure out how to deal with the

emotional end of it. The arthritis, as you know, is a different story.

Please don't hesitate to ask if you have more questions about the hair loss.

I definitely don't have all the answers; I just know all too well what

you're dealing with.

Liz

_____

From: [mailto: ] On Behalf

Of Lori

Sent: Wednesday, October 25, 2006 9:03 PM

Subject: New member intro

Hi. My name is Lori Maynard and my daughter (the oldest of our

five children) was diagnosed with RA in February of this year. She was

12 at the time but turned 13 in August. We travel out of state to see

our pediatric rheumatologist, Dr. Lehman, whom we trust and have become

comfortable with.

I have some (OK, a ton of) questions and I'm not entirely sure where to

start. I think my first question has to do with the difference with RA

and JRA. Early in the year, my understanding was that patients with

JRA tended not to have a positive RF. 's RF numbers were very,

very high as was her sed rate back in February and throughout the

spring. These numbers seem to be much more in the normal range now

because of her drug regimine (Humira, Methotrexate, Folic Acid, Lodine,

Prednisone)but her symptoms don't necessarily reflect this as she is

always in pain and frequently in a lot of pain. Dr. Lehman has led me

to believe that she has what would be consistant with adult onset RA as

opposed to JRA. Does this make sense to any of you? How would he be

able to tell that this isn't JRA? Could it still be JRA?

has been taking Humira injections once a week for about 7 months

and Methotrexate injections (25 mg) once a week for about 6 months.

Her hair had been thinning from methotrexate, but this weekend it began

falling out in clumps and now she has a huge bald spot on the top of

her head. She takes 1 mg of folic acid. Tomorrow is her methotrexate

dose day and I have told my doctor that I want to cut her dose in half

because of her hair falling out. He reiterated to me how serious her

arthritis is and that he would be reluctant to do this, but that I

needed to weigh the risk vs. benefit of the drug. In other words, " go

ahead and cut the dose, but I don't think it's the best thing. "

Have any of you ever been in this position and what did you do?

Another question I have is about expectations. Should I be expecting

these drugs to put her into remission? Has anyone else done very

poorly for a year or two and then gotten better or gone into

remission? I know there is no cure for this, and I watched my dad

suffer terribly with RA, but I am still so hopeful for some kind of

remission. I guess this is why I'm still hopeful that has JRA

instead of adult onset RA. At lease with JRA, I have heard that there

are many people who have gone into remission and can somewhat put this

nightmare behind them.

I appreciate being able to post these questions. I am on another RA

loop, but most of the people there are older and have the disease,

where I am making medical decisions for a child who has the disease and

that is quite different.

Thank you for any help you can offer.

Lori in NJ

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>

> Lori,

>

> I think the answer to your question about RA vs JRA is that

positive

> rheumatoid factor. It is my understanding that when a child has a

positive

> factor then there's a good chance that the arthritis is very early

onset RA

> or will more likely mirror RA. I may be wrong, and I'm sure

someone else

> will be able to better explain this to you.

>

> As for the hair, boy do we understand! My daughter was on

methotrexate for

> many years with no hair loss. When we had to add a new med,

though, she

> started losing her hair. By November of 7th grade we could no

longer hide

> the bald spots and she continued to lose her hair. This was very

difficult

> for ~~ yes, that's my daughter's name, too, and she is the

5th of our 6

> children~~ but her comment was that if she had to choose between

having hair

> and being able to walk, dress herself, etc, then there really was

no choice.

> She did eventually choose to start wearing a wig and has been

pretty pleased

> with that choice. Her hair is finally growing in again, though not

as well

> as we'd like, and she's still wearing a wig but also goes without

it

> sometimes. The thing to remember with the hair is that it won't

physically

> harm the kids, although you do have to figure out how to deal with

the

> emotional end of it. The arthritis, as you know, is a different

story.

>

> Please don't hesitate to ask if you have more questions about the

hair loss.

> I definitely don't have all the answers; I just know all too well

what

> you're dealing with.

>

> Liz

>

>

>

> _____

>

> From: [mailto: ]

On Behalf

> Of Lori

> Sent: Wednesday, October 25, 2006 9:03 PM

>

> Subject: New member intro

>

>

>

> Hi. My name is Lori Maynard and my daughter (the oldest of

our

> five children) was diagnosed with RA in February of this year. She

was

> 12 at the time but turned 13 in August. We travel out of state to

see

> our pediatric rheumatologist, Dr. Lehman, whom we trust and have

become

> comfortable with.

>

> I have some (OK, a ton of) questions and I'm not entirely sure

where to

> start. I think my first question has to do with the difference

with RA

> and JRA. Early in the year, my understanding was that patients

with

> JRA tended not to have a positive RF. 's RF numbers were

very,

> very high as was her sed rate back in February and throughout the

> spring. These numbers seem to be much more in the normal range now

> because of her drug regimine (Humira, Methotrexate, Folic Acid,

Lodine,

> Prednisone)but her symptoms don't necessarily reflect this as she

is

> always in pain and frequently in a lot of pain. Dr. Lehman has led

me

> to believe that she has what would be consistant with adult onset

RA as

> opposed to JRA. Does this make sense to any of you? How would he

be

> able to tell that this isn't JRA? Could it still be JRA?

>

> has been taking Humira injections once a week for about 7

months

> and Methotrexate injections (25 mg) once a week for about 6

months.

> Her hair had been thinning from methotrexate, but this weekend it

began

> falling out in clumps and now she has a huge bald spot on the top

of

> her head. She takes 1 mg of folic acid. Tomorrow is her

methotrexate

> dose day and I have told my doctor that I want to cut her dose in

half

> because of her hair falling out. He reiterated to me how serious

her

> arthritis is and that he would be reluctant to do this, but that I

> needed to weigh the risk vs. benefit of the drug. In other

words, " go

> ahead and cut the dose, but I don't think it's the best thing. "

>

> Have any of you ever been in this position and what did you do?

>

> Another question I have is about expectations. Should I be

expecting

> these drugs to put her into remission? Has anyone else done very

> poorly for a year or two and then gotten better or gone into

> remission? I know there is no cure for this, and I watched my dad

> suffer terribly with RA, but I am still so hopeful for some kind

of

> remission. I guess this is why I'm still hopeful that has

JRA

> instead of adult onset RA. At lease with JRA, I have heard that

there

> are many people who have gone into remission and can somewhat put

this

> nightmare behind them.

>

> I appreciate being able to post these questions. I am on another

RA

> loop, but most of the people there are older and have the disease,

> where I am making medical decisions for a child who has the

disease and

> that is quite different.

>

> Thank you for any help you can offer.

>

> Lori in NJ

>

>

>

>

>

>

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Annie (and group):

First, I want to thank the founders of this listserv for filling a

much needed roll - uniting parents of young people with disabilities

in Illinois. This holds strong potential for some much needed change,

and I look forward to being a part of it.

I'd like to respond to your question, Annie, about guardianship. I

have a daughter (whose name is also Annie) who is 23 years old, loves

Broadway musicals, Shakespeare, Award Shows, singing, going out to eat

and to a good horror movie, and making speeches. She also has Down

syndrome and is a person who might be typical of those who " need "

guardians. We have, despite some significant challenges to us as

decision-making partners with our daughter, investigated and refused

to proceed with guardianship for 2 reasons. Most importantly, legal

guardianship is almost impossible to revoke. The person with

disabilities must prove to a court that they are able to make their

own decisions by undergoing a series of tests. Tough for many of our

family members in the best of circumstances. The second reason is that

we believe in our souls, despite professional opinion, despite lack of

adaquate or appropriate adult services, transportation, etc.,that our

daughter can, given the right supports, live a full, happy,

independent, productive, and love-fulled life. We don't want to undo

her chance at that.

I hate long emails, but I'll be back. I look forward to getting to

know all of you.

Vicki Niswander

>

> Hi. My name is Annie, Park Ridge, IL. Son Al is 21 and a senior at

> Dominican University. He has Asperger's. Loves History, English,

> avid reader, and spends times at the movies and video games. Has

> three sisters 19, 16, 12. which is his only social interaction since

> he has no other friends, just school acquaintances. He has no work

> experience, was never successful getting a job, so we are very

> worried about his work opportunities after school is done. Looking

> for guidance on this transition and help with answers about

> guardianship and other long term decisions regarding his future.

>

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I have a more significantly challenged son, especially in regard to communication and believe me, if I could possibly NOT have proceeded with guardianship, I would have. It was so hard to take those rights away from him, because I know he is capable in many ways that are not apparent to others.

Vicki, your daughter is SO lucky to have you as her parent and advocate. ing independence may come at a cost but it is usually worth the price.

Often doing what is easy is not what is best.

Thank you for sharing your story.

Ellen

Ellen Garber Bronfeldegskb@...

Re: New Member Intro

Annie (and group):First, I want to thank the founders of this listserv for filling amuch needed roll - uniting parents of young people with disabilitiesin Illinois. This holds strong potential for some much needed change,and I look forward to being a part of it.I'd like to respond to your question, Annie, about guardianship. Ihave a daughter (whose name is also Annie) who is 23 years old, lovesBroadway musicals, Shakespeare, Award Shows, singing, going out to eatand to a good horror movie, and making speeches. She also has Downsyndrome and is a person who might be typical of those who "need"guardians. We have, despite some significant challenges to us asdecision-making partners with our daughter, investigated and refusedto proceed with guardianship for 2 reasons. Most importantly, legalguardianship is almost impossible to revoke. The person withdisabilities must prove to a court that they are able to make theirown decisions by undergoing a series of tests. Tough for many of ourfamily members in the best of circumstances. The second reason is thatwe believe in our souls, despite professional opinion, despite lack ofadaquate or appropriate adult services, transportation, etc.,that ourdaughter can, given the right supports, live a full, happy,independent, productive, and love-fulled life. We don't want to undoher chance at that.I hate long emails, but I'll be back. I look forward to getting toknow all of you.Vicki Niswander>> Hi. My name is Annie, Park Ridge, IL. Son Al is 21 and a senior at > Dominican University. He has Asperger's. Loves History, English, > avid reader, and spends times at the movies and video games. Has > three sisters 19, 16, 12. which is his only social interaction since > he has no other friends, just school acquaintances. He has no work > experience, was never successful getting a job, so we are very > worried about his work opportunities after school is done. Looking > for guidance on this transition and help with answers about > guardianship and other long term decisions regarding his future.>

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Ellen-

I hope you did not take my input as criticism of those who made a

different decision than we. Each of our family members are unique

individuals. My hope is only to offer something to think about when

considering options. Thanks for your feedback.

Vicki

> >

> > Hi. My name is Annie, Park Ridge, IL. Son Al is 21 and a senior at

> > Dominican University. He has Asperger's. Loves History, English,

> > avid reader, and spends times at the movies and video games. Has

> > three sisters 19, 16, 12. which is his only social interaction

since

> > he has no other friends, just school acquaintances. He has no work

> > experience, was never successful getting a job, so we are very

> > worried about his work opportunities after school is done. Looking

> > for guidance on this transition and help with answers about

> > guardianship and other long term decisions regarding his future.

> >

>

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Hi Vicki:

On the contrary, I found your comments respectful and in no way felt that you were being judgemental.

Ellen

Ellen Garber Bronfeldegskb@...

Re: New Member Intro

Ellen-I hope you did not take my input as criticism of those who made adifferent decision than we. Each of our family members are uniqueindividuals. My hope is only to offer something to think about whenconsidering options. Thanks for your feedback.Vicki> >> > Hi. My name is Annie, Park Ridge, IL. Son Al is 21 and a senior at > > Dominican University. He has Asperger's. Loves History, English, > > avid reader, and spends times at the movies and video games. Has > > three sisters 19, 16, 12. which is his only social interactionsince > > he has no other friends, just school acquaintances. He has no work > > experience, was never successful getting a job, so we are very > > worried about his work opportunities after school is done. Looking > > for guidance on this transition and help with answers about > > guardianship and other long term decisions regarding his future.> >>

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  • 1 month later...

Hi,

Good for you on your progress. In my opinion if you have had Candida since

you were a child, then it likely has gone systemic. That means you must be very

patient in your efforts. It also means that you have to drastically change your

diet. No grains (they are stored in such a way as to invite mold), no sugar,

plenty of good quality vegetables, etc.

I have been working on ridding myself from yeast and fungus for most of this

year and have been following Doug Kaufmann's Phase I diet (link is

www.knowthecause.com). He has written quite a few books covering all aspects of

fungus and yeast overgrowth.

One of the things about taking Psyllium is that you must make sure to drink

plenty of pure water. The general consensus is to drink half your weight of

water (don't count soda, juice, etc. as part of this total). That should help.

Also I understand that Cascara Sagrada should only be taken short term.

This forum has been so helpful to me and they directed me to a great website

that has also been extremely beneficial to me, and that is

http://www.askmoreless.com/home. I have made leaps and strides since following

the PH balancing principles espoused there.

Good luck on your healing journey.

Warmly, Gloria

<amandasunshowers@...> wrote:

Hi! I'm and I've been trying to kill the candida in my body for

3 months. I believe I've had it since I was a child and am now 37. I

went super lo-carb for a few weeks and am still eating lo-carb with

more veggies. I took olive leaf for the first couple weeks then Yeast

Cleanse by Solaray for a week then switched to oil of oregano for a

week. I had alot of die-off symptoms during this time and was

expelling ALOT of yeast. I did a liver cleanse and will do another.

When I stopped having die-off symtoms I increased my oregano and still

had no die-off so I switched back to the Yeast Cleanse(caprilic acid,

tea tree oil, grapefriut seed extract and pau d'arco) still very little

die-off. What does this mean and do I need to add something else to

the protocol. I was very constipated before the YC and oregano and

these helped to expell tremendously. I'm back to not eliminating even

with the YC. BTW, I take many vitamins including 3000mg of Vit.C and

800-1200mg of magnesium plus cascara sagrada to try and help. I also

take psyllium almost every day, could this be constipating for some?

I'm at a loss, any ideas? I don't believe I've gotten rid of the yeast

because I still have a cyst deep inside the top of my leg, I really

want to get this under control without taking perscription drugs!

---------------------------------

Everyone is raving about the all-new beta.

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Hi . This is a long term problem that will take time to resolve.

In the beginning, you get die off due to the large number of yeast

organisms dying and letting out toxins. When the die off goes, that

doesn't mean that you have stopped killing the yeast, just that it is

dying in numbers your body can handle. That is perfectly normal.

I also have problems with constipation - are you sure that you don't

have IBS that is triggered by something you are eating?

Keen

New Member Intro

Hi! I'm and I've been trying to kill the candida in my body for

3 months. I believe I've had it since I was a child and am now 37. I

went super lo-carb for a few weeks and am still eating lo-carb with

more veggies. I took olive leaf for the first couple weeks then Yeast

Cleanse by Solaray for a week then switched to oil of oregano for a

week. I had alot of die-off symptoms during this time and was

expelling ALOT of yeast. I did a liver cleanse and will do another.

When I stopped having die-off symtoms I increased my oregano and still

had no die-off so I switched back to the Yeast Cleanse(caprilic acid,

tea tree oil, grapefriut seed extract and pau d'arco) still very little

die-off. What does this mean and do I need to add something else to

the protocol. I was very constipated before the YC and oregano and

these helped to expell tremendously. I'm back to not eliminating even

with the YC. BTW, I take many vitamins including 3000mg of Vit.C and

800-1200mg of magnesium plus cascara sagrada to try and help. I also

take psyllium almost every day, could this be constipating for some?

I'm at a loss, any ideas? I don't believe I've gotten rid of the yeast

because I still have a cyst deep inside the top of my leg, I really

want to get this under control without taking perscription drugs!

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>

> Hi . This is a long term problem that will take time to

resolve.

> In the beginning, you get die off due to the large number of yeast

> organisms dying and letting out toxins. When the die off goes, that

> doesn't mean that you have stopped killing the yeast, just that it

is

> dying in numbers your body can handle. That is perfectly normal.

>

> I also have problems with constipation - are you sure that you don't

> have IBS that is triggered by something you are eating?

>

> Keen

Sent: Tuesday, December 5, 2006 1:40 PM

THank you, Keen. I do need to be reminded that this will take a

looong time. IBS, yes! I am sensitive to wheat, I haven't eaten it

in almost a year. I haven't wanted to face the fact that dairy is a

problem for me as well. I gave up all milk, cheese and yogurt when I

began the candida cleanse but still have been having 2 T heavy cream

in my 1 cup of coffee a day and recently have been eating plain

bulgarian yogurt, it has alot of different kinds of probiotics in

it. I realized after posting in my frantic state (was constipated

for 3 days) I have had lots more dairy the previous 2 days!!!! I

will take this out of my diet and that will take care of the coffee,

I think I'm as addicted to the HC as the coffee! THis is sooo hard

sometimes and although I gave up sugar and wheat without anger, I'm

mourning the loss of dairy, it was a mainstay for many years!

So IBS, too. Or do candida and IBS go hand in hand? I've had

stomach aches my whole life and between the ages of 10-14 I had tiny

pockets of white stinky stuff on my throat I could feel it with my

tongue and could scrape it out but it always came back, I have no

idea why it stopped but now I'm wondering if that was yeast, too. I

have sufferred from depression and had bulimia for 10 years. I went

from a vegetarian full of carbs diet, trying to be healthy,

sufferring from all kinds of maladies in '96 to a lo carb diet over

night and couldn't believe how great I felt. I didn't understand the

roll candida played until recently. I want to be healthy and HAPPY!

Which I am more so now than ever! Thankyou!

Also, I got some whey that says it has glyconutrients from Vitamin

World, I couldn't find anywhere on the label about cold-processed but

it does list alot of the stuff Duncan said was important, is this a

good product? Anyone know?

THankyou all, support is a wonderful thing!

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Hi Colleen,

All the antidepressants have that warning about increased throughts of

suicide now. Personally, I think those warnings do more harm than

good. It just freaks people out.

According to some studies, there is some increased suicide attempts in

people who are just starting on antidepressants, particularly in

teenagers. I haven't read these studies but I'm suspicious of them.

In my opinion (opinion, not fact) it's not the meds. Think about it

this way... When you're really depressed you don't have the energy to

act on suicidal impulses. As you start to get better you have more

energy, but the depression may still be bad enough that you're

suicidal. That's my theory anyway.

If thoughts of suicide weren't part of your symptoms before the meds,

then I doubt you'll experience it now that you're on the meds. If you

do happen to feel suicidal while on the meds just be sure to tell your

doc right away so that she can work with you to get rid of those thoughts.

Welcome to the group. I hope the Lexapro works well for you.

Jen :)

>

> Hi,

>

> I just joined this group because my doctor just put me on Lexapro. I

> got a bit concerned when I read the medical info about it on the web.

> It says that at first your symptoms can become worse and you can become

> suicidal. Does anyone know anything about this?

>

> I'm Colleen, age 56, from Minnesota. I thought I was having a nervous

> breakdown because I couldn't stop crying, but my doctor said it was

> depression. She had me take that test where you answer certain

> questions and I got a 17, which is a high score. I wonder if I had

> taken it on a day that I felt better if I would have scored lower. I

> suspect I would have.

>

> Colleen

>

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Hi

Yes, I understand about dairy, I've also had a hard time giving it up.

I LOVE yoghurt, but it gives me horrible sinus problems (not

constipation, luckily). I allow myself one cup of decaf coffee a week

(I go for a skinny cappuccino as animal fat is hard for me to deal with,

it triggers IBS). I also love cheese and have found that I can have

small amounts of goat's milk cheese without too many problems.

It is really hard to get yourself into this diet, but my husband and I

have been on it for nearly 14 months now and we are getting used to it.

IBS, as far as I know (at least for us), is from small intestine

bacterial overgrowth (SIBO). I suppose that the imbalance that allowed

the candida to run riot in my system also allowed the SIBO to take over.

I take a probiotic that includes lactobacillus planetarum, which is

supposed to really help for IBS. I'm sure that, once I have my

dysbiosis sorted out, that it will also go away - it can't be soon

enough!!

Good luck, and feel better.

Keen

Re: New Member Intro

>

> Hi . This is a long term problem that will take time to

resolve.

> In the beginning, you get die off due to the large number of yeast

> organisms dying and letting out toxins. When the die off goes, that

> doesn't mean that you have stopped killing the yeast, just that it

is

> dying in numbers your body can handle. That is perfectly normal.

>

> I also have problems with constipation - are you sure that you don't

> have IBS that is triggered by something you are eating?

>

> Keen

Sent: Tuesday, December 5, 2006 1:40 PM

THank you, Keen. I do need to be reminded that this will take a

looong time. IBS, yes! I am sensitive to wheat, I haven't eaten it

in almost a year. I haven't wanted to face the fact that dairy is a

problem for me as well. I gave up all milk, cheese and yogurt when I

began the candida cleanse but still have been having 2 T heavy cream

in my 1 cup of coffee a day and recently have been eating plain

bulgarian yogurt, it has alot of different kinds of probiotics in

it. I realized after posting in my frantic state (was constipated

for 3 days) I have had lots more dairy the previous 2 days!!!! I

will take this out of my diet and that will take care of the coffee,

I think I'm as addicted to the HC as the coffee! THis is sooo hard

sometimes and although I gave up sugar and wheat without anger, I'm

mourning the loss of dairy, it was a mainstay for many years!

So IBS, too. Or do candida and IBS go hand in hand? I've had

stomach aches my whole life and between the ages of 10-14 I had tiny

pockets of white stinky stuff on my throat I could feel it with my

tongue and could scrape it out but it always came back, I have no

idea why it stopped but now I'm wondering if that was yeast, too. I

have sufferred from depression and had bulimia for 10 years. I went

from a vegetarian full of carbs diet, trying to be healthy,

sufferring from all kinds of maladies in '96 to a lo carb diet over

night and couldn't believe how great I felt. I didn't understand the

roll candida played until recently. I want to be healthy and HAPPY!

Which I am more so now than ever! Thankyou!

Also, I got some whey that says it has glyconutrients from Vitamin

World, I couldn't find anywhere on the label about cold-processed but

it does list alot of the stuff Duncan said was important, is this a

good product? Anyone know?

THankyou all, support is a wonderful thing!

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Hi Jen,

Thanks for responding and for the welcome. What you say makes sense. I won't

worry about it then. I often think of death, but I've never been suicidal. Some

days I just wake up and think, Oh, am I still here?

My doctor said that if you go to a movie theatre and look around at all the

people, about half will be on antidepressants, so I guess it's pretty common.

Has anyone tried St. 's Wort?

Colleen

Jen <jenniferm32@...> wrote:

Hi Colleen,

All the antidepressants have that warning about increased throughts of

suicide now. Personally, I think those warnings do more harm than

good. It just freaks people out.

According to some studies, there is some increased suicide attempts in

people who are just starting on antidepressants, particularly in

teenagers. I haven't read these studies but I'm suspicious of them.

In my opinion (opinion, not fact) it's not the meds. Think about it

this way... When you're really depressed you don't have the energy to

act on suicidal impulses. As you start to get better you have more

energy, but the depression may still be bad enough that you're

suicidal. That's my theory anyway.

If thoughts of suicide weren't part of your symptoms before the meds,

then I doubt you'll experience it now that you're on the meds. If you

do happen to feel suicidal while on the meds just be sure to tell your

doc right away so that she can work with you to get rid of those thoughts.

Welcome to the group. I hope the Lexapro works well for you.

Jen :)

>

> Hi,

>

> I just joined this group because my doctor just put me on Lexapro. I

> got a bit concerned when I read the medical info about it on the web.

> It says that at first your symptoms can become worse and you can become

> suicidal. Does anyone know anything about this?

>

> I'm Colleen, age 56, from Minnesota. I thought I was having a nervous

> breakdown because I couldn't stop crying, but my doctor said it was

> depression. She had me take that test where you answer certain

> questions and I got a 17, which is a high score. I wonder if I had

> taken it on a day that I felt better if I would have scored lower. I

> suspect I would have.

>

> Colleen

>

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I don't think St.'s Wort can be taken with ADs..again check it out before

you try it. Sue CHi Colleen,All the

antidepressants have that warning about increased throughts ofsuicide now.

Personally, I think those warnings do more harm thangood. It just freaks people

out.According to some studies, there is some increased suicide attempts inpeople

who are just starting on antidepressants, particularly inteenagers. I haven't

read these studies but I'm suspicious of them. In my opinion (opinion, not fact)

it's not the meds. Think about itthis way... When you're really depressed you

don't have the energy toact on suicidal

impulses. As you start to get better you have moreenergy, but the depression may

still be bad enough that you'resuicidal. That's my theory anyway.If thoughts of

suicide weren't part of your symptoms before the meds,then I doubt you'll

experience it now that you're on the meds. If youdo happen to feel suicidal

while on the meds just be sure to tell yourdoc right away so that she can work

with you to get rid of those thoughts.Welcome to the group. I hope the Lexapro

works well for you.Jen :) & gt; & gt; Hi, & gt; & gt; I just joined this group because my doctor just put

me on Lexapro. I & gt; got a bit concerned when I read the medical info about it

on the web. & gt; It says that at first your symptoms can become worse and you

can become & gt; suicidal. Does anyone know anything about this? & gt; & gt; I'm

Colleen, age 56, from Minnesota. I thought I was having a nervous & gt; breakdown

because I couldn't stop crying, but my doctor said it was

& gt; depression. She had me take that test where you answer certain & gt;

questions and I got a 17, which is a high score. I wonder if I had & gt; taken it

on a day that I felt better if I would have scored lower. I & gt; suspect I would

have. & gt; & gt; Colleen & gt;

Links********************************************************** Don't miss this

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Colleen,

If I may ask, how old are you? It seems that life can be dreary and lonesome at

times, but also the intensity may have to do with age. I am 45 and I often feel

the same way you do. And if your doctor says that at least half of the people

in a movie theater are on antidepressants, it's because life has become so

complicated and there are so many decisions we must make that in the past didn't

exist. That in itself can cause anxiety and depression.

Many times I feel that I am a freak for being on Lexapro and other meds, I don't

even want my brothers and neices to know. But I need the meds otherwise I

wouldn't function or I would function at a very low level. I know I wouldn't be

able to hold a job without meds. I am so thankful to this group for being here

and understanding.

Regards,

Liz

We must embrace pain and burn it as fuel for our journey.

-Kenji Miyazawa

Re: Re: New Member Intro

Hi Jen,

Thanks for responding and for the welcome. What you say makes sense. I won't

worry about it then. I often think of death, but I've never been suicidal. Some

days I just wake up and think, Oh, am I still here?

My doctor said that if you go to a movie theatre and look around at all the

people, about half will be on antidepressants, so I guess it's pretty common.

Has anyone tried St. 's Wort?

Colleen

Jen <jenniferm32@...> wrote:

Hi Colleen,

All the antidepressants have that warning about increased throughts of

suicide now. Personally, I think those warnings do more harm than

good. It just freaks people out.

According to some studies, there is some increased suicide attempts in

people who are just starting on antidepressants, particularly in

teenagers. I haven't read these studies but I'm suspicious of them.

In my opinion (opinion, not fact) it's not the meds. Think about it

this way... When you're really depressed you don't have the energy to

act on suicidal impulses. As you start to get better you have more

energy, but the depression may still be bad enough that you're

suicidal. That's my theory anyway.

If thoughts of suicide weren't part of your symptoms before the meds,

then I doubt you'll experience it now that you're on the meds. If you

do happen to feel suicidal while on the meds just be sure to tell your

doc right away so that she can work with you to get rid of those thoughts.

Welcome to the group. I hope the Lexapro works well for you.

Jen :)

>

> Hi,

>

> I just joined this group because my doctor just put me on Lexapro. I

> got a bit concerned when I read the medical info about it on the web.

> It says that at first your symptoms can become worse and you can become

> suicidal. Does anyone know anything about this?

>

> I'm Colleen, age 56, from Minnesota. I thought I was having a nervous

> breakdown because I couldn't stop crying, but my doctor said it was

> depression. She had me take that test where you answer certain

> questions and I got a 17, which is a high score. I wonder if I had

> taken it on a day that I felt better if I would have scored lower. I

> suspect I would have.

>

> Colleen

>

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Hi Liz,

I'm 56. I've always cried easily, but it's gotten worse since menopause and

peri-menopause. I had my last period at age 55, just a year ago.

I've been through a lot of stress in my life. Right now I have job stress and

teenage son stress. My last child is 17 1/2. He just got suspended from school

today so I had to go to the school and have a meeting with Marcus (my son), the

Assistant Principal, the Behavior Specialist and a teacher. I said it was

nothing. They said he was insubordinate and disrespectful. He got caught wearing

his earphones, which we didn't know was against the rules this year, as it was

ok last year. A teacher saw him in the hall between classes and told him to take

them off, and he said why, and she said it's against the rules, and he took them

off while saying " that's a stupid rule. " Then she said, " Well, you're obviously

depressed. " How random!

Anyway, he'll graduate in 6 months. I'll be so glad. I've raised 4 kids

singlehandedly with barely any child support. No wonder I'm depressed.

I think I'll feel a lot better once I retire in five years.

Colleen

lizzstergiou@... wrote:

Colleen,

If I may ask, how old are you? It seems that life can be dreary and lonesome at

times, but also the intensity may have to do with age. I am 45 and I often feel

the same way you do. And if your doctor says that at least half of the people in

a movie theater are on antidepressants, it's because life has become so

complicated and there are so many decisions we must make that in the past didn't

exist. That in itself can cause anxiety and depression.

Many times I feel that I am a freak for being on Lexapro and other meds, I don't

even want my brothers and neices to know. But I need the meds otherwise I

wouldn't function or I would function at a very low level. I know I wouldn't be

able to hold a job without meds. I am so thankful to this group for being here

and understanding.

---------------------------------

Have a burning question? Go to Answers and get answers from real people

who know.

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  • 1 month later...

See ES UK site for details. Try turning off your electricity at night or

try to discover offending circuits (use trifeild) for me that is the lighting

cuircuit which has remained off for 7 yrs, use ocassional lamps from wall

plugs. Best start is to reduce all emfs in your home keep it low tech and/or

keep your distance from all things electrical particularly when you are

standing still/sitting for some time. Then you need to look at your work

life/out

of house life and adjust this as much as possible.....as for lying on beach

all things natural/outdoor will bring relief, walk,cycle etc..

good luck you will find much info on the subject here and other sites, seek

and you will find as they say.

Keep yourself positive and in time you will get used to the complications ES

puts in your way, try not to expect much from the uneffected, if you discuss

or tell of your problem be mentally prepared to get little back from those

who you indulge, try not to go down the evangilising/I might just save your

life mate thing with all but your closest of friends if you must, you are

likely

to become very demoralised by the average response. Be calculated in the

way you move things forward.

one positive thing is that we must be saving the planet I certainly have a

low electricity bill !

kind regards

- I have kept above brief for reasons that you have become aware,

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writes:

> I just joined this group after becoming aware of my ES the past month or

> two.

Welcome to the group, ! I also have noticed problems with certain

types of space heaters. I recently had bad reactions to an oil-filled

radiator and also a " mica " panel heater. However, I was never sure

if the reaction was due to offgassing of chemicals (which accelerate

when the heat is turned on), or due to the electromagnetic radiation.

In the end, I just stuck with the fan-type heater from Vornado that

I was using previously. I never had a bad reaction to that, even

when it was new.

As for high meter readings, I never worried too much about that,

and merely focused on things that were actually causing me symptoms.

Things like computers, florescent lights, cellphone, cellphone

transmitters, wi-fi, telephones, TV sets, etc.

I also agree that there is often no need to move to a new house, as

there are many things which can be done (supplements, devices,

avoidance) which can improve your situation. The devices which

have worked best for me are from Quantum Products and Springlife

Polarity, but like all things, I need to use these in moderation

or they cause their own adverse effects!

Marc

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Three to four mili gauss is quite high. If that was

my apartment I'd make it a priority to high tail out

of there.

Dr. Rea, and others have suggested that walking barefoot

om the sand of a beach, or a lawn can be beneficial.

Eli

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  • 2 months later...
Guest guest

Welcome Bre, sorry to hear of your problem. The first mri I had, that doctor

said nothing was wrong also. She gave me prescriptions and sent me on my way.

She also misdiagnosed my thigh pain and knee pain.

Do you have copies of your reports or films?

Is it possible you can go to another doctor?

Obviously you have a problem. If I'm not mistaken stenosis can cause bladder

problems.

Someone here may know more of that.

Is it one leg? It sounds like some nerve is being pinched as in sciatica.

It is such a frustrating experience. I have had my leg pains since 7/05 and

still haven't gotten to the root of it.

If you don't have your mri report or films, see if you can get them and maybe

see another doctor. I know it's hard without insurance.

When I was going to a chiropractor I think he was helping and he was the one

that said why I had such pain. Previously everyone I saw said nothing.

I am now seeing an ortho who is attempting to help. It is a long ordeal.

I hope you find help soon.

My best wishes,

Barbara

b fry <bre_sundquist@...> wrote:

Hi my name is Bre, I live in washington state.

Im not sure if i have a spinal disorder as my doctor has never given my back

problem a name.

I don have insurance so that does greatly decrease my resourses. ive had xrays

and an MRI. from what i was told, both came back showing nothing.

My problem is lower back pain, usually a constant pain level of about 7 or more.

when i walk or move wrong when im sitting down I can feel my vertabre sliding in

and out, with no popping. not like when you pop your back. I went to a

chiropractor and even he couldnt get my back to pop. just ended up feeling beat

up every time i left.

My lower back always hurts but at times it moves down my right leg all the way

down to my ankle. When it is at its worse it effects my bladder also *blush*

The treatment i get from my doctor is muscle relaxers 2 times a day and

Oxicodone 4 times a day. I would love to not have to take the drugs but without

them the pain is so bad that im pretty much stuck in bed. Walking is also very

difficult and makes my back and hips even worse.

I also have Fibromyalgia but both my doctor agree that its not the FMS that is

causing the problems.

does anybody have any idea which direction i can go to at least try and get the

3 year plus problem under control??

thank you all in advance. Im looking forward to getting to know you all:)

Bre

---------------------------------

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Guest guest

Bre,

Welcome to the group. Did your mri show anything? Sounds like you

definitely have a serious problem…I would think your mri would point you in

the direction you need to be in…? wht has your doctor said your problem is?

Have you asked? I kept after them til they pinned it down. I was always

told sciatica…but what is the cause? Now they say it is piriformis syndrome

and horrible pain in my left SI area post injection…but no one would confirm

it is a sacroiliac problem til an MRI was done. It really does help to

have a name , even if they just say – your xyz vertebrae are your

problem….from there you would know if you have options. If you do not have

insurance have you applied to medical assistance? Are you on disability?

If you needed surgery, would you be able to do that?

JP

new member intro

Hi my name is Bre, I live in washington state.

Im not sure if i have a spinal disorder as my doctor has never given my back

problem a name.

I don have insurance so that does greatly decrease my resourses. ive had

xrays and an MRI. from what i was told, both came back showing nothing.

My problem is lower back pain, usually a constant pain level of about 7 or

more.

when i walk or move wrong when im sitting down I can feel my vertabre

sliding in and out, with no popping. not like when you pop your back. I went

to a chiropractor and even he couldnt get my back to pop. just ended up

feeling beat up every time i left.

My lower back always hurts but at times it moves down my right leg all the

way down to my ankle. When it is at its worse it effects my bladder also

*blush*

The treatment i get from my doctor is muscle relaxers 2 times a day and

Oxicodone 4 times a day. I would love to not have to take the drugs but

without them the pain is so bad that im pretty much stuck in bed. Walking is

also very difficult and makes my back and hips even worse.

I also have Fibromyalgia but both my doctor agree that its not the FMS that

is causing the problems.

does anybody have any idea which direction i can go to at least try and get

the 3 year plus problem under control??

thank you all in advance. Im looking forward to getting to know you all:)

Bre

------------------------------------

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with the Search weather shortcut.

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Guest guest

Bre,

Nice to meet you!!! You said you don't have insurance. Is there a county

hospital or somewhere that you can go to see a neurologist, neurosurgeon or

orthopeidic doctor? They would be best at a diagnosis of the motion you feel.

Good luck and please keep us posted.

Annie

b fry <bre_sundquist@...> wrote:

Hi my name is Bre, I live in washington state.

Im not sure if i have a spinal disorder as my doctor has never given my back

problem a name.

I don have insurance so that does greatly decrease my resourses. ive had xrays

and an MRI. from what i was told, both came back showing nothing.

My problem is lower back pain, usually a constant pain level of about 7 or more.

when i walk or move wrong when im sitting down I can feel my vertabre sliding in

and out, with no popping. not like when you pop your back. I went to a

chiropractor and even he couldnt get my back to pop. just ended up feeling beat

up every time i left.

My lower back always hurts but at times it moves down my right leg all the way

down to my ankle. When it is at its worse it effects my bladder also *blush*

The treatment i get from my doctor is muscle relaxers 2 times a day and

Oxicodone 4 times a day. I would love to not have to take the drugs but without

them the pain is so bad that im pretty much stuck in bed. Walking is also very

difficult and makes my back and hips even worse.

I also have Fibromyalgia but both my doctor agree that its not the FMS that is

causing the problems.

does anybody have any idea which direction i can go to at least try and get the

3 year plus problem under control??

thank you all in advance. Im looking forward to getting to know you all:)

Bre

---------------------------------

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with the Search weather shortcut.

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Guest guest

Hi Bre,

It sounds like there might be a nerve issue, possibly sciatica. Bladder

problems and the leg pain you describe are often a result of nerve issues. There

are nerves in the low back (I forget if it's sacrum or lumbar or both) that

innervate the bladder. Unfortunately, it seems that many of us have had to see

several different doctors before getting some sort of diagnosis. I hope you can

get some assistance with medical bills, state or county possibly? I would

definitely see another doctor. Can you get your MRI results and get to a

neurologist and an ortho?

ann gourieux <fudgie4u@...> wrote:

Bre,

Nice to meet you!!! You said you don't have insurance. Is there a county

hospital or somewhere that you can go to see a neurologist, neurosurgeon or

orthopeidic doctor? They would be best at a diagnosis of the motion you feel.

Good luck and please keep us posted.

Annie

b fry <bre_sundquist@...> wrote:

Hi my name is Bre, I live in washington state.

Im not sure if i have a spinal disorder as my doctor has never given my back

problem a name.

I don have insurance so that does greatly decrease my resourses. ive had xrays

and an MRI. from what i was told, both came back showing nothing.

My problem is lower back pain, usually a constant pain level of about 7 or more.

when i walk or move wrong when im sitting down I can feel my vertabre sliding in

and out, with no popping. not like when you pop your back. I went to a

chiropractor and even he couldnt get my back to pop. just ended up feeling beat

up every time i left.

My lower back always hurts but at times it moves down my right leg all the way

down to my ankle. When it is at its worse it effects my bladder also *blush*

The treatment i get from my doctor is muscle relaxers 2 times a day and

Oxicodone 4 times a day. I would love to not have to take the drugs but without

them the pain is so bad that im pretty much stuck in bed. Walking is also very

difficult and makes my back and hips even worse.

I also have Fibromyalgia but both my doctor agree that its not the FMS that is

causing the problems.

does anybody have any idea which direction i can go to at least try and get the

3 year plus problem under control??

thank you all in advance. Im looking forward to getting to know you all:)

Bre

---------------------------------

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

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