New Member Intro

[Guest guest]

Your numbers are fantastic. You do not need to worry there. Sounds to me like

you are doing very well. I wish that doctors and therapists would really tell

us, as it is our first time out and we often don't know what to expect.

Advice? Keep on doing your exercises. Sometimes over doing them sent me back a

day or two, so do what you are supposed to do and not too many more....like I

did, in a hurry for better, I got worse, but all in all it keeps getting better

and better..........I had my tkr on Oct 14th. dash

Re: New Member Intro

Hello, I am a new member to this group. I had my TKR on Dec. 7th. I would like

to know how long after the surgery did you quit taking strong pain killers and

start taking an anti inflammatory like Advil or Aleve. My knee is quite swollen

still and pretty stiff. I seem to have had a bit of a relapse recently. Last

week the PT measured my mobility at 99 Degrees and this week it went back to 92

degrees. I am keeping up with my exercises, but don't know what has happened.

Any advice or suggestions? Happy New Year to everyone and good luck with

healing.

[Guest guest]

Dash, Thanks for the input. I really appreciate it. It's good to know that the

numbers are positive. Most likely I am overdoing something and need to be more

aware of my body's messages to slow down or stop. I am a dog walker so all I can

think of is getting back out there with my 4 legged buddies again. Are you still

taking pain medication?

Re: New Member Intro

Hello, I am a new member to this group. I had my TKR on Dec. 7th. I would like

to know how long after the surgery did you quit taking strong pain killers and

start taking an anti inflammatory like Advil or Aleve. My knee is quite swollen

still and pretty stiff. I seem to have had a bit of a relapse recently. Last

week the PT measured my mobility at 99 Degrees and this week it went back to 92

degrees. I am keeping up with my exercises, but don't know what has happened.

Any advice or suggestions? Happy New Year to everyone and good luck with

healing.

[Guest guest]

I am off pain meds, but I am back on my aspirin to just keep the blood thinner

because I have had a heart attack and to keep the inflammation down in my whole

body, but not for " pain " in my knee.

My doctor said that at 100 was terrific, when I went in for my check up, the

rest would come with use. So he was amazed with my progress and pleased.

What I find I tend to do, is OVERDO.......and then my knee swells and then it

gets more immobile. So the therapist warned me to not over do the exercises. I

keep moving my knee for flex and straightening it for keeping it straight. I

am doing the I think they would be called isometric exercises that were given to

me right after surgery, plus stretches so the leg continues to function

properly.

So what I learned, when that knee starts to feel like it is tightening up, to

lay down and get my feet up, or sit more or just rest it... Sometimes I went

to therapy and they worked it so hard that I could barely walk for a couple days

and I told them that. The deep tissue massage to loosen up the ligaments and

muscles where tight were intensely painful. They often put me down for a day,

making things harder. I found overworking my exercises did that for me too. So

now I am intensely listening to my knee and I hear it less and less as I keep

moving. I try and walk a lot and then sit and then walk and then sit... helps

keep it mobile and not stiffen up.

Walking is good but I don't know how long from surgery you are. I have to

watch it because I tend to over do that also. I am an active person and can

barely wait to do more walking and exercises. I am working on going up and down

the steps now normally. Am doing 2-5 steps at a time, (I have 15) and trying

not to overdo that either. My knee hurts, then I back it down.....if it feels

ok after a few hours, I try a few more. That is what I do....listen to the pain

and it kind of guides you.

Doctor said that rocking in a rocking chair and putting your body a bit forward

and just gently rocking that knee is good. I do that while I watch TV. I

stretch when I sit by the computer and then I also flex there.... keep it moving

gently and as much as you can think about.... also the therapists massaged the

incision and I continue to do that.....so adhesions don't form, and so that it

all loosens up. Mine is pretty good, but could be better. I still have pain,

but more and more it is ebbing away.......dash

Re: New Member Intro

Hello, I am a new member to this group. I had my TKR on Dec. 7th. I would like

to know how long after the surgery did you quit taking strong pain killers and

start taking an anti inflammatory like Advil or Aleve. My knee is quite swollen

still and pretty stiff. I seem to have had a bit of a relapse recently. Last

week the PT measured my mobility at 99 Degrees and this week it went back to 92

degrees. I am keeping up with my exercises, but don't know what has happened.

Any advice or suggestions? Happy New Year to everyone and good luck with

healing.

[Guest guest]

sorry to hear all that, but almost everything sounds very familiar.

I suggest getting a good lymetest anyway (Western Blot from IgeneX?) and check

for coinfections as well, because the nightsweats could be something else than

Borrelia (maybe Babesia?). If you know what you are dealing with it is easier to

make a treatment plan.

You can also try an ABX course of a month or so and see what happens. If most

symptoms increase temporarily, that could be a 'herx' which is an indication

that the ABX are working. Even if you are not cured, it could help a bit.

However, if you have been ill for a long time, you will need to take them many

months before seeing real improvement.

My own experience is a bit similar to yours: I was first denied tests and

treatment despite very obvious symptoms. When they finally started treatment,

even 1 year of ABX could not cure me but it destroyed my gut. I now have gluten

intolerance and many related problems (never had that before the lyme).

After the ABX, I did about 1.5 years of Buhner herbs with good improvement, but

I'm still not really cured. I have been unable to work for the last few years (=

no income, I'm self employed). Treatment results vary strongly between

individuals, both for abx and herbs.

[Guest guest]

Yeah, all too familiar is what most people say. My doc operates under

IDSA guidelines, so I'm somewhat doomed as far as tests go. With that

being an out of pocket test cost, it would be a lot harder to afford

that test on my limited income. Out of the antibiotics I can take, that

would be cefuroxime. Now allergic to penicillin, Bactrim DS,

erythromycin, and maybe even tetracycline. with my history of reacting

to everything, I would be scared to try anything new.

I have both the gluten and wheat allergy besides a lot other food

allergies.

Perch

>

> sorry to hear all that, but almost everything sounds very familiar.

[Guest guest]

Can you get another doctor??????

On Mar 15, 2010, at 5:48 AM, fleabitten_percheron wrote:

> Yeah, all too familiar is what most people say. My doc operates under

> IDSA guidelines, so I'm somewhat doomed as far as tests go. With that

> being an out of pocket test cost, it would be a lot harder to afford

> that test on my limited income. Out of the antibiotics I can take,

> that

> would be cefuroxime. Now allergic to penicillin, Bactrim DS,

> erythromycin, and maybe even tetracycline. with my history of reacting

> to everything, I would be scared to try anything new.

>

> I have both the gluten and wheat allergy besides a lot other food

> allergies.

>

> Perch

>

> >

> > sorry to hear all that, but almost everything sounds very familiar.

>

>

[Guest guest]

>

> Out of the antibiotics I can take, that

> would be cefuroxime. Now allergic to penicillin, Bactrim DS,

> erythromycin, and maybe even tetracycline. with my history of reacting

> to everything, I would be scared to try anything new.

I have good experience with cefuroxime axetil (used together with

metronidazol/flagyl). In my country it is an unusual drug (especially against

Bb), probably because it is relatively expensive.

Erythromycin is totally ineffective against Borrelia and normal penicillin and

tetracyclin have certin disadvantages. So nothing lost there

> I have both the gluten and wheat allergy besides a lot other food

> allergies.

Are they allergies (immediate adverse reaction, even with tiny qty.) or

sensitivities? I have gluten sensitivity (and probably some other sensitivities

as well, haven't figured it out yet). If I eat a bit of normal bread, nothing

bad happens. If I continue for more than a few days with gluten products, I get

serious gut problems.

[Guest guest]

No, limited income means no choices on docs. Perch

>

> Can you get another doctor??????

[Guest guest]

Hi Sheryl! Welcome to the group. The things you are wondering about are talked about in the new member document you got when you joined, and can also be found in the files on . It would be good if you read that again, since it has lots of other information in it also. I reread that document probably once a month, and I have been in this group for 2ish years! Donna in ILGood morning everyone,I am a new member to your list and wanted to take a moment to introduce myself. I have just started on iodoral (working my way up slowly to 12.5mg dosage) along with some other thyroid and adrenal support supplements that were recommended to me by my nutritionist. I have been trying to educate myself about iodine and have been reading some of the past posts to do so. I keep on coming across some terms I'm not familiar with such as " companion supplements to iodine " and also " salt loading " . I'm getting a little concerned because I was never told about any companion supplements to iodine. My recommended supplements are: CLO, a daily green drink, digestive enzymes, an adrenal supplement, DHEA, a multimineral supplement, in addition to the daily iodoral.My major issues seem to be adrenal, thyroid, and anemia.Thanks for allowing me to be a member of this group. I look forward to learning a lot from all of you.Sheryl

[Guest guest]

Thanks so very much for pointing that out to me:)

I joined so long ago, that by the time I got around to posting my " new member

intro " I had forgotten about the new member email!

Sheryl

>

> Hi Sheryl!

>

> Welcome to the group. The things you are wondering about are talked about in

the new member document you got when you joined, and can also be found in the

files on . It would be good if you read that again, since it has lots of

other information in it also. I reread that document probably once a month, and

I have been in this group for 2ish years!

>

> Donna in IL

>

> Good morning everyone,

>

> I am a new member to your list and wanted to take a moment to introduce

myself. I have just started on iodoral (working my way up slowly to 12.5mg

dosage) along with some other thyroid and adrenal support supplements that were

recommended to me by my nutritionist. I have been trying to educate myself about

iodine and have been reading some of the past posts to do so. I keep on coming

across some terms I'm not familiar with such as " companion supplements to

iodine " and also " salt loading " . I'm getting a little concerned because I was

never told about any companion supplements to iodine. My recommended supplements

are: CLO, a daily green drink, digestive enzymes, an adrenal supplement, DHEA, a

multimineral supplement, in addition to the daily iodoral.

>

> My major issues seem to be adrenal, thyroid, and anemia.

>

> Thanks for allowing me to be a member of this group. I look forward to

learning a lot from all of you.

>

> Sheryl

>

> ________________________________

>

[Guest guest]

Good morning all! I recently joined the list and wanted to introduce myself. My name is Nikki and I live in southeast Texas, near Houston. I have two kiddos: ,12, and , my Aspie, age 9. I was very glad to find an online support group such as this. I haven't been able to locate an in-person support group in this area. I welcome the opportunity to share ideas and experiences.

I've already learned much from this group! The weighted blankets - brilliant! My son's OT uses a weighted vest during his sessions and he LOVES having multiple blankets even in the hottest weather. My mother is a gifted seamstress and I'll be imposing upon her to create a pattern and make us a few. He also benefits from compression shirts and underwear.

We're also converting to a GFCF diet. We'd started this before with but got away from it for about several years due to job loss. Food banks don't generally have GF foods to distribute. lol (that's a whole 'nother rant!) My recent trek on the Atkin's diet uncovered a gluten sensitivity in me so I'll be switching with him.

I'm looking forward to getting to know everyone. You're all in my thoughts and prayers.

Nikki

[Guest guest]

hi nikki welcome it's nice bunch of ppl in this group god bless you alsoFrom: Nikki <ladygoodwrite@...>Subject: ( ) New Member Intro Date: Thursday, February 24, 2011, 4:06 PM

Good morning all! I recently joined the list and wanted to introduce myself. My name is Nikki and I live in southeast Texas, near Houston. I have two kiddos: ,12, and , my Aspie, age 9. I was very glad to find an online support group such as this. I haven't been able to locate an in-person support group in this area. I welcome the opportunity to share ideas and experiences.

I've already learned much from this group! The weighted blankets - brilliant! My son's OT uses a weighted vest during his sessions and he LOVES having multiple blankets even in the hottest weather. My mother is a gifted seamstress and I'll be imposing upon her to create a pattern and make us a few. He also benefits from compression shirts and underwear.

We're also converting to a GFCF diet. We'd started this before with but got away from it for about several years due to job loss. Food banks don't generally have GF foods to distribute. lol (that's a whole 'nother rant!) My recent trek on the Atkin's diet uncovered a gluten sensitivity in me so I'll be switching with him.

I'm looking forward to getting to know everyone. You're all in my thoughts and prayers.

Nikki

[Guest guest]

Hi Nikki,

I was told by an OT that some people sew washers into home made blankets to get the weighted part of the blanket.. Just an idea.. And welcome to the group!!

Sandy

In a message dated 2/24/2011 1:01:22 P.M. Eastern Standard Time, ladygoodwrite@... writes:

Good morning all! I recently joined the list and wanted to introduce myself. My name is Nikki and I live in southeast Texas, near Houston. I have two kiddos: ,12, and , my Aspie, age 9. I was very glad to find an online support group such as this. I haven't been able to locate an in-person support group in this area. I welcome the opportunity to share ideas and experiences.

I've already learned much from this group! The weighted blankets - brilliant! My son's OT uses a weighted vest during his sessions and he LOVES having multiple blankets even in the hottest weather. My mother is a gifted seamstress and I'll be imposing upon her to create a pattern and make us a few. He also benefits from compression shirts and underwear.

We're also converting to a GFCF diet. We'd started this before with but got away from it for about several years due to job loss. Food banks don't generally have GF foods to distribute. lol (that's a whole 'nother rant!) My recent trek on the Atkin's diet uncovered a gluten sensitivity in me so I'll be switching with him.

I'm looking forward to getting to know everyone. You're all in my thoughts and prayers.

Nikki

[Guest guest]

Welcome to the group Nikki, I hope you enjoy it here! It's hard sometimes t find a local support group and even if there is one it's hard to make the meetings with everything else going on. This group has been great therapy for me.ne

From: boogermeanie@... <boogermeanie@...>Subject: Re: ( ) New Member Intro Date: Thursday, February 24, 2011, 1:13 PM

Hi Nikki,

I was told by an OT that some people sew washers into home made blankets to get the weighted part of the blanket.. Just an idea.. And welcome to the group!!

Sandy

In a message dated 2/24/2011 1:01:22 P.M. Eastern Standard Time, ladygoodwrite@... writes:

Good morning all! I recently joined the list and wanted to introduce myself. My name is Nikki and I live in southeast Texas, near Houston. I have two kiddos: ,12, and , my Aspie, age 9. I was very glad to find an online support group such as this. I haven't been able to locate an in-person support group in this area. I welcome the opportunity to share ideas and experiences.

I've already learned much from this group! The weighted blankets - brilliant! My son's OT uses a weighted vest during his sessions and he LOVES having multiple blankets even in the hottest weather. My mother is a gifted seamstress and I'll be imposing upon her to create a pattern and make us a few. He also benefits from compression shirts and underwear.

We're also converting to a GFCF diet. We'd started this before with but got away from it for about several years due to job loss. Food banks don't generally have GF foods to distribute. lol (that's a whole 'nother rant!) My recent trek on the Atkin's diet uncovered a gluten sensitivity in me so I'll be switching with him.

I'm looking forward to getting to know everyone. You're all in my thoughts and prayers.

Nikki

[Guest guest]

Hi Nikki, welcome! I'm quiet new to the group myself and have found it extremely helpful. Just knowing your not alone is reassuring, I joined because my 9yr old had recently been diagnosed with aspergers, he always had funny since as long as I can remember, but as hes getting older hes getting more aggressive towards me, as a result I joined the group to see if other parents were giong through this and how they managed it, I was at an all time low and felt totally useless, this group has given me so much, just knowing I'm not alone is a greaty comfort. May I just ask what is a GFCF diet, I live in the UK and I'm not familiar with it, I've seen it written on other peoples messages too. Could you tell me what it is. Anyway welcome, good luck. - From: Nikki <ladygoodwrite@...> Sent: Thu, February 24, 2011 4:06:58 PMSubject: ( ) New Member Intro

Good morning all! I recently joined the list and wanted to introduce myself. My name is Nikki and I live in southeast Texas, near Houston. I have two kiddos: ,12, and , my Aspie, age 9. I was very glad to find an online support group such as this. I haven't been able to locate an in-person support group in this area. I welcome the opportunity to share ideas and experiences.

I've already learned much from this group! The weighted blankets - brilliant! My son's OT uses a weighted vest during his sessions and he LOVES having multiple blankets even in the hottest weather. My mother is a gifted seamstress and I'll be imposing upon her to create a pattern and make us a few. He also benefits from compression shirts and underwear.

We're also converting to a GFCF diet. We'd started this before with but got away from it for about several years due to job loss. Food banks don't generally have GF foods to distribute. lol (that's a whole 'nother rant!) My recent trek on the Atkin's diet uncovered a gluten sensitivity in me so I'll be switching with him.

I'm looking forward to getting to know everyone. You're all in my thoughts and prayers.

Nikki

[Guest guest]

GFCF is gluten free and casein free diet, google it and you will find many sites where they tell you what contains gluten (usually pasta) and casein (milk) and milk derivatives, look at the list, they will give you more information than me, LOL I don't remember the list of foods, but it means Gluten Free and Casein Free.good luck and welcome From: Kirkham <kirkhamrachael@...> Sent: Sat, February 26, 2011 2:54:47 PMSubject: Re: ( ) New Member Intro

Hi Nikki, welcome! I'm quiet new to the group myself and have found it extremely helpful. Just knowing your not alone is reassuring, I joined because my 9yr old had recently been diagnosed with aspergers, he always had funny since as long as I can remember, but as hes getting older hes getting more aggressive towards me, as a result I joined the group to see if other parents were giong through this and how they managed it, I was at an all time low and felt totally useless, this group has given me so much, just knowing I'm not alone is a greaty comfort. May I just ask what is a GFCF diet, I live in the UK and I'm not familiar with it, I've seen it written on other peoples messages too. Could you tell me what it is. Anyway welcome, good luck. - From: Nikki <ladygoodwrite@...> Sent: Thu, February 24, 2011 4:06:58 PMSubject: ( ) New Member Intro

Good morning all! I recently joined the list and wanted to introduce myself. My name is Nikki and I live in southeast Texas, near Houston. I have two kiddos: ,12, and , my Aspie, age 9. I was very glad to find an online support group such as this. I haven't been able to locate an in-person support group in this area. I welcome the opportunity to share ideas and experiences.

I've already learned much from this group! The weighted blankets - brilliant! My son's OT uses a weighted vest during his sessions and he LOVES having multiple blankets even in the hottest weather. My mother is a gifted seamstress and I'll be imposing upon her to create a pattern and make us a few. He also benefits from compression shirts and underwear.

We're also converting to a GFCF diet. We'd started this before with but got away from it for about several years due to job loss. Food banks don't generally have GF foods to distribute. lol (that's a whole 'nother rant!) My recent trek on the Atkin's diet uncovered a gluten sensitivity in me so I'll be switching with him.

I'm looking forward to getting to know everyone. You're all in my thoughts and prayers.

Nikki

[Guest guest]

I started LDN before I started the iodine protocol. Both have made big improvements in my health and energy. The LDN has been a life saver for me. It helps my energy levels, Crohn's disease and TMJ pain. Have you joined the LDN group? It is very helpful. I highly recommend it.MeaghanOn Jul 23, 2011, at 4:16 PM, "Datamaster Accounting Services, LLC" <datamaster2@...> wrote:

I'm new to the group and wanted to introduce myself. I'm so impressed with the information on the web site and with the comments shared by members. I've learned a lot already! I'm a 42 year old female living in Vermont and have been dealing with GI symptoms since I was 12. It was bothersome, but not limiting until I reached my early 20s when it became a daily struggle. After my third child was born (2001) I developed a Group A strep uterine infection which is uncommon. Treatment included several weeks of IV antibiotics then a variety of oral antibiotics for about 8 months. We all know how my GI tract reacted to all those antibiotics! To treat the GI symptoms my gastroenterologist put me on Prednisone - for 18 months! That killed my immune system and I started to get very sick all the time. Recurrent bronchitis, pneumonia that required hospitalization, my gums started to bleed, I developed odd acne-like cysts on my scalp, face, neck and breasts, lipomas started popping up around both ankles and I put on about 120 lbs. I'm self employed providing accounting & tax services so I'm fortunate to be able to work from home. I've kept up a 50+ hour work week despite the illnesses as I am the main provider for my family. In 2008, I felt I had exhausted everything traditional medicine had to offer and started to look at other options. I wish I had gone this route sooner! I began working with an acupuncturist who also practices traditional Chinese medicine. She's been amazing - and her suggestions have brought about much healing. I've visited a few naturopathic drs, but had not found one I trusted until recently. This new dr is attentive, intelligent, willing to discuss symptoms & ideas, and seems to actually care if his suggestions are helping. I like him and I trust him. Anyway, he has prescribed Iodoral which is why I joined this group. I'd like to learn more about it from people who are actually using it. I've done research online and understand how it works - but there's nothing better than communicating with other people going though similar treatment. BTW, he also wants me to start Low Dose Naltraxone. Is anyone using that along with iodine to work on thyroid/endocrine issues? I'm looking forward to learning more about each of you and, hopefully, sharing useful information. Thanks for reading.Brigitte

____________________________________________________________57 Year Old Mom Looks 27!Mom Reveals $5 Wrinkle Trick That Has Angered Doctors!ConsumerLifestyles.org