my son

[Guest guest]

Consider removing corn and chocolate for at least 3 days.Also consider testing for Lyme Disease.Sent from my Palm Pre on the Now Network from SprintOn Feb 12, 2011 7:10 PM, Abatangelo <stephanie.abatangelo@...> wrote:

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

[Guest guest]

Hi Robin thankyou for your reply, My Son isn't on any meds at the moment, since joining this group most of the replys have mentioned tablets, we are being referred to a childrens mental health group so I suppose meds may be a topic they will discuss with me, I must admit I'm a little freaked out at the thought of tablets. We have had a good weekend (no hitting) so its seems a little harsh to think about tablets, but after he has had an outburst- I will think totally the opposite- Why can't life be simple. Thanks again and good luck with whatever our babies put us through today!From: and/or Robin Lemke <jrisjs@...> Sent: Sun, February 13, 2011 5:46:46 AMSubject: Re: ( ) my son

Hi ,

It sucks when our kiddo's freak out.....and when you know they're worried and anxious or scared - it seems like it should make it easier, but it doesn't. Cause,.....no matter what the reason for the freak-out, they're still doing it.

How to make it stop...hmmm......

Not that meds are always the answer, but is he on any or anxiety?

My daughter has big-anxiety. She wouldn't get physical, but she'd get verbally mean. I mean, reallly brutal. Freak out over eveyrhing. I remember wondering if I made her that way by expectiing too much or asking for her help too much. Come to find out, she needed to feel in control of things. When she didn't, she freaked out on everyone.

Meds can calm them..............

Anyway, you're gonna get some good replies, here. It's a good bunch of people,

Hugs.

Robin

Karmageddon (n):

It's, like,

when everybody is sending off all these

really bad vibes, right?

And then, like,

the Earth explodes and it's, like, a serious bummer!

From: kirkhamrachael <kirkhamrachael@...>Subject: ( ) my son Date: Saturday, February 12, 2011, 8:34 AM

Hi my name is and I'm very new to this, I dont really know what I'm doing, My 9yr old son was diagnosed with aspergers syndrome in Nov'10, but feel as though i've struggled with him for a long time, from being a todddler actually, giong for days out is a nightmare, he is so anxious about places he doesn't know, change to routine, stufff i'm sure you are all too familiar with?! The situation has got worse over the past 6mths, he has 'violent episodes' towards me and his older brother, its as though he cannot respond to a sitiution or deal with something rationally (which i guess goes for any child) so he lashes out instead, when we get to the bottom of it its because hes worried about something ie; a change in the school day, or a trip hes heard his class are going on, something trivial to anybody else but a massive ordeal to him, I really dont know how too handle these situations and its very upsetting, we see the peadiatrition next month so

am hoping for some answers onm management skills for us, but has anybody been in the same situation, and how did you handle it, Iknow every child is differnet and responds differently but Ihave to start somewhere! Thankyou.

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[Guest guest]

Thanyou all so much for your replies to My Son , Your advice has been really helpful, and just the thought of knowing that your not alone, especially when you feel so isolated and alone. I'm so glad I joined this group. From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12,

2011 8:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?From: md l

<dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

[Guest guest]

Thank you Robyn,I'll give that a try. Chocolate won't be a problem but I know the corn will be a toughy. He loves his corn tortilla chips and PB & J on corn tortillas but I will do it:) Thank you for the suggestion!From: Robyn Iuliano <hamptonroadsaspergers@...>" " <Aspergers Treatment >Sent: Sat, February 12, 2011 10:31:15 PMSubject: Re: ( ) my son

Consider removing corn and chocolate for at least 3 days.Also consider testing for Lyme Disease.Sent from my Palm Pre on the Now Network from SprintOn Feb 12, 2011 7:10 PM, Abatangelo <stephanie.abatangelo@...> wrote:

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?From: md l

<dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

[Guest guest]

Thank you Misty-You seem so well versed on this topic. I appreciate you giving me direction!From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 4:54:25 PMSubject: Re: ( ) my son

An allergist is not going to do the correct testing.. They will test for IgE-mediated allergies (anaphylactic-type allergies) and then only for the top 8 allergens and maybe some seasonal and household allergies just for good measure. My daughter was negative for all of those things.

Our kids are having an IgG-mediated response to gluten.. So you would need a blood test that looks for IgG antibodies. Allergists simply will not run these tests and even if they did, the lab would be inexpererienced and likely botch the entire test.

Celiac testing is also inaccurate as it looks for IgA antibodies.. And even if you have full blown celiac disease, the celiac tests usually do not detect it.. Many celiacs are IgA deficient! And anyway, most of our kids who are sensitive to gluten are non-celiac gluten intolerants, which means they are having an IgG response to gluten. They would never test positive on a celiac test no matter how many times you run it.

We tested through Great Plains Labs http://www.greatplainslaboratory.com with great results.

Misty

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

Dont know what all symptoms your son has but you could try removing leucine.( basically meats among to name just one food its in) ... my best friend did the gfcf diet on her son for years with some improvement but not alot , and one day when she looked over all of his tests and lab work for allergies , the number one thing that was very high was leucine, so she looked up the link between that and autism and discovered the disorder maple syrup urine disease, she had ALWAYS complained to the doctors that her son had a very strong smell in his urine and breath like maple syrup , even when he sweats you can smell it!! I too always noticed that! SO right now she is in the middle of doing the testings to see if he has maple syrup urine disease , if left untreated this disease causes

neurological brain damage! Definetely not saying your son has this , but thought maybe it was a good topic to bring up with you guys, in my sisters son's case it makes A LOT of sense that he may have this disease! But i know most states now test new borns for this disease when they are first born , because it can be dangerous if left on treated on a new born! SO maybe your son was already tested for that!?Anyway , sorry to change the topic a little , just wanted to share that with ya :)MeaghanFrom: Abatangelo <stephanie.abatangelo@...> Sent: Sun, February 13, 2011 11:01:06 AMSubject: Re: ( ) my son

Thank you Misty-You seem so well versed on this topic. I appreciate you giving me direction!From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 4:54:25 PMSubject: Re: ( ) my son

An allergist is not going to do the correct testing.. They will test for IgE-mediated allergies (anaphylactic-type allergies) and then only for the top 8 allergens and maybe some seasonal and household allergies just for good measure. My daughter was negative for all of those things.

Our kids are having an IgG-mediated response to gluten.. So you would need a blood test that looks for IgG antibodies. Allergists simply will not run these tests and even if they did, the lab would be inexpererienced and likely botch the entire test.

Celiac testing is also inaccurate as it looks for IgA antibodies.. And even if you have full blown celiac disease, the celiac tests usually do not detect it.. Many celiacs are IgA deficient! And anyway, most of our kids who are sensitive to gluten are non-celiac gluten intolerants, which means they are having an IgG response to gluten. They would never test positive on a celiac test no matter how many times you run it.

We tested through Great Plains Labs http://www.greatplainslaboratory.com with great results.

Misty

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

That is interesting Meaghan.. I saw a Mystery Diagnosis on my DVR last night (but I didn't watch it yet) called "The Baby Who Smelled Like Pancakes". I'm going to have to watch it now!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Sun, February 13, 2011 12:46:32 PMSubject: Re: ( ) my son

Dont know what all symptoms your son has but you could try removing leucine.( basically meats among to name just one food its in) ... my best friend did the gfcf diet on her son for years with some improvement but not alot , and one day when she looked over all of his tests and lab work for allergies , the number one thing that was very high was leucine, so she looked up the link between that and autism and discovered the disorder maple syrup urine disease, she had ALWAYS complained to the doctors that her son had a very strong smell in his urine and breath like maple syrup , even when he sweats you can smell it!! I too always noticed that! SO right now she is in the middle of doing the testings to see if he has maple syrup urine disease , if left untreated this disease causes neurological brain damage! Definetely not saying your son has this , but thought maybe it was a good topic to bring up with you guys, in my sisters son's case it makes A

LOT of sense that he may have this disease! But i know most states now test new borns for this disease when they are first born , because it can be dangerous if left on treated on a new born! SO maybe your son was already tested for that!?Anyway , sorry to change the topic a little , just wanted to share that with ya :)Meaghan

From: Abatangelo <stephanie.abatangelo@...> Sent: Sun, February 13, 2011 11:01:06 AMSubject: Re: ( ) my son

Thank you Misty-You seem so well versed on this topic. I appreciate you giving me direction!

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 4:54:25 PMSubject: Re: ( ) my son

An allergist is not going to do the correct testing.. They will test for IgE-mediated allergies (anaphylactic-type allergies) and then only for the top 8 allergens and maybe some seasonal and household allergies just for good measure. My daughter was negative for all of those things.

Our kids are having an IgG-mediated response to gluten.. So you would need a blood test that looks for IgG antibodies. Allergists simply will not run these tests and even if they did, the lab would be inexpererienced and likely botch the entire test.

Celiac testing is also inaccurate as it looks for IgA antibodies.. And even if you have full blown celiac disease, the celiac tests usually do not detect it.. Many celiacs are IgA deficient! And anyway, most of our kids who are sensitive to gluten are non-celiac gluten intolerants, which means they are having an IgG response to gluten. They would never test positive on a celiac test no matter how many times you run it.

We tested through Great Plains Labs http://www.greatplainslaboratory.com with great results.

Misty

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

Hi and welcome to the group! Since your recent diagnosis, has your son been put on any medications yet? Is it something you'd consider? Most of us have AS kids that take medicaition for one thing or another. Most for anxiety. Meds are not the cure all, your son would still need other interventions, but they are a tool to help you and your son have a better quality of life.

Have you looked into ABA therapy or OT?

Just some of my thoughts...ne

From: kirkhamrachael <kirkhamrachael@...>Subject: ( ) my son Date: Saturday, February 12, 2011, 9:34 AM

Hi my name is and I'm very new to this, I dont really know what I'm doing, My 9yr old son was diagnosed with aspergers syndrome in Nov'10, but feel as though i've struggled with him for a long time, from being a todddler actually, giong for days out is a nightmare, he is so anxious about places he doesn't know, change to routine, stufff i'm sure you are all too familiar with?! The situation has got worse over the past 6mths, he has 'violent episodes' towards me and his older brother, its as though he cannot respond to a sitiution or deal with something rationally (which i guess goes for any child) so he lashes out instead, when we get to the bottom of it its because hes worried about something ie; a change in the school day, or a trip hes heard his class are going on, something trivial to anybody else but a massive ordeal to him, I really dont know how too handle these situations and its very upsetting, we see the peadiatrition next month so

am hoping for some answers onm management skills for us, but has anybody been in the same situation, and how did you handle it, Iknow every child is differnet and responds differently but Ihave to start somewhere! Thankyou.

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[Guest guest]

Yeah i know right ... i was floored when my sister told me about this.... and i never wanted to say anything to her because i didnt want to hurt her feelings , but i ALWAYS thought my nephew smelt different , i could never really put my finger on it tho , cuz its like it was regular body odor smell , it just smelt sweet , so it was very interesting to hear what she had discovered with his lab results and her own research! SHe is going to have him tested for it soon, so i will let you know what happens when i find out!! :)MeaghanFrom: md l <dontblinkhs@...> Sent: Sun, February 13, 2011 1:03:37 PMSubject: Re: ( ) my son

That is interesting Meaghan.. I saw a Mystery Diagnosis on my DVR last night (but I didn't watch it yet) called "The Baby Who Smelled Like Pancakes". I'm going to have to watch it now!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Sun, February 13, 2011 12:46:32 PMSubject: Re: ( ) my son

Dont know what all symptoms your son has but you could try removing leucine.( basically meats among to name just one food its in) ... my best friend did the gfcf diet on her son for years with some improvement but not alot , and one day when she looked over all of his tests and lab work for allergies , the number one thing that was very high was leucine, so she looked up the link between that and autism and discovered the disorder maple syrup urine disease, she had ALWAYS complained to the doctors that her son had a very strong smell in his urine and breath like maple syrup , even when he sweats you can smell it!! I too always noticed that! SO right now she is in the middle of doing the testings to see if he has maple syrup urine disease , if left untreated this disease causes neurological brain damage! Definetely not saying your son has this , but thought maybe it was a good topic to bring up with you guys, in my sisters son's case it makes A

LOT of sense that he may have this disease! But i know most states now test new borns for this disease when they are first born , because it can be dangerous if left on treated on a new born! SO maybe your son was already tested for that!?Anyway , sorry to change the topic a little , just wanted to share that with ya :)Meaghan

From: Abatangelo <stephanie.abatangelo@...> Sent: Sun, February 13, 2011 11:01:06 AMSubject: Re: ( ) my son

Thank you Misty-You seem so well versed on this topic. I appreciate you giving me direction!

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 4:54:25 PMSubject: Re: ( ) my son

An allergist is not going to do the correct testing.. They will test for IgE-mediated allergies (anaphylactic-type allergies) and then only for the top 8 allergens and maybe some seasonal and household allergies just for good measure. My daughter was negative for all of those things.

Our kids are having an IgG-mediated response to gluten.. So you would need a blood test that looks for IgG antibodies. Allergists simply will not run these tests and even if they did, the lab would be inexpererienced and likely botch the entire test.

Celiac testing is also inaccurate as it looks for IgA antibodies.. And even if you have full blown celiac disease, the celiac tests usually do not detect it.. Many celiacs are IgA deficient! And anyway, most of our kids who are sensitive to gluten are non-celiac gluten intolerants, which means they are having an IgG response to gluten. They would never test positive on a celiac test no matter how many times you run it.

We tested through Great Plains Labs http://www.greatplainslaboratory.com/ with great results.

Misty

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

Well my nephew is 7, and i dont know when exactly they start screening for it in my state , but im assuming they did! But , while low, there are cases of late onset forms of MSUD so it isnt always just a new born thing! Classic Severe MSUDIntermediate MSUDIntermittent MSUDThiamine-responsive MSUDE3-Deficient MSUD with Lactic AcidosisTHese are i guess the different forms of the disease....its been a couple weeks since i have been able to talk to my sister so im gonna call her to see what her doctor said , if he thought he should be tested , or what?! I am by no means an expert or anything lol, and for sure not saying your son has this , its just all the symptoms and timing of things that my nephew went through , this disease really

fits for him! Knowing my sister , she will try taking out the leucine ( ? sorry cant spell) out of his diet anyway just to see if it helps at all!! She has tried everything else under the sun, so why not right? She is really smart too with all his diet stuff and always makes sure when she takes something out of his diet , that he is still getting all the nutrients he needs to be healthy!! I never realized how kinda careful you have to be when you do all these diet changes , especially with the gfcf , i didnt know it was in soooo many foods that our kids eat! Its a hard diet to stick too , i do know that! lolMeaghanFrom: md l <dontblinkhs@...> Sent: Mon, February 14, 2011 7:06:28 PMSubject: Re: ( ) my son

How old is your nephew? The Mystery Diagnosis I watched was about a baby who had Maple Syrup Urine Disease and they said that it is usually fatal early on (infancy) if it's not caught in time. They also said that all babies in the U.S. are now screened for it at birth before leaving the hospital. They said with this disease, the baby lacks an enzyme to break down those amino acids you mentioned. I wonder if there are severe cases and not-so-severe cases? This is very interesting!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Mon, February 14, 2011 12:03:19 PMSubject: Re: ( ) my son

Yeah i know right ... i was floored when my sister told me about this.... and i never wanted to say anything to her because i didnt want to hurt her feelings , but i ALWAYS thought my nephew smelt different , i could never really put my finger on it tho , cuz its like it was regular body odor smell , it just smelt sweet , so it was very interesting to hear what she had discovered with his lab results and her own research! SHe is going to have him tested for it soon, so i will let you know what happens when i find out!! :)Meaghan

From: md l <dontblinkhs@...> Sent: Sun, February 13, 2011 1:03:37 PMSubject: Re: ( ) my son

That is interesting Meaghan.. I saw a Mystery Diagnosis on my DVR last night (but I didn't watch it yet) called "The Baby Who Smelled Like Pancakes". I'm going to have to watch it now!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Sun, February 13, 2011 12:46:32 PMSubject: Re: ( ) my son

Dont know what all symptoms your son has but you could try removing leucine.( basically meats among to name just one food its in) ... my best friend did the gfcf diet on her son for years with some improvement but not alot , and one day when she looked over all of his tests and lab work for allergies , the number one thing that was very high was leucine, so she looked up the link between that and autism and discovered the disorder maple syrup urine disease, she had ALWAYS complained to the doctors that her son had a very strong smell in his urine and breath like maple syrup , even when he sweats you can smell it!! I too always noticed that! SO right now she is in the middle of doing the testings to see if he has maple syrup urine disease , if left untreated this disease causes neurological brain damage! Definetely not saying your son has this , but thought maybe it was a good topic to bring up with you guys, in my sisters son's case it makes A

LOT of sense that he may have this disease! But i know most states now test new borns for this disease when they are first born , because it can be dangerous if left on treated on a new born! SO maybe your son was already tested for that!?Anyway , sorry to change the topic a little , just wanted to share that with ya :)Meaghan

From: Abatangelo <stephanie.abatangelo@...> Sent: Sun, February 13, 2011 11:01:06 AMSubject: Re: ( ) my son

Thank you Misty-You seem so well versed on this topic. I appreciate you giving me direction!

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 4:54:25 PMSubject: Re: ( ) my son

An allergist is not going to do the correct testing.. They will test for IgE-mediated allergies (anaphylactic-type allergies) and then only for the top 8 allergens and maybe some seasonal and household allergies just for good measure. My daughter was negative for all of those things.

Our kids are having an IgG-mediated response to gluten.. So you would need a blood test that looks for IgG antibodies. Allergists simply will not run these tests and even if they did, the lab would be inexpererienced and likely botch the entire test.

Celiac testing is also inaccurate as it looks for IgA antibodies.. And even if you have full blown celiac disease, the celiac tests usually do not detect it.. Many celiacs are IgA deficient! And anyway, most of our kids who are sensitive to gluten are non-celiac gluten intolerants, which means they are having an IgG response to gluten. They would never test positive on a celiac test no matter how many times you run it.

We tested through Great Plains Labs http://www.greatplainslaboratory.com/ with great results.

Misty

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Don't pick lemons.See all the new 2007 cars at Autos.

[Guest guest]

Well, your sister is probably right.. Usually when a mom has a hunch about something she is usually right. Looks like there is a spectrum to this disease just like with everything else. I would be interested to know any updates that your sister gives you!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Tue, February 15, 2011 12:07:04 PMSubject: Re: ( ) my son

Well my nephew is 7, and i dont know when exactly they start screening for it in my state , but im assuming they did! But , while low, there are cases of late onset forms of MSUD so it isnt always just a new born thing!

Classic Severe MSUD

Intermediate MSUD

Intermittent MSUD

Thiamine-responsive MSUD

E3-Deficient MSUD with Lactic AcidosisTHese are i guess the different forms of the disease....its been a couple weeks since i have been able to talk to my sister so im gonna call her to see what her doctor said , if he thought he should be tested , or what?! I am by no means an expert or anything lol, and for sure not saying your son has this , its just all the symptoms and timing of things that my nephew went through , this disease really fits for him! Knowing my sister , she will try taking out the leucine ( ? sorry cant spell) out of his diet anyway just to see if it helps at all!! She has tried everything else under the sun, so why not right? She is really smart too with all his diet stuff and always makes sure when she takes something out of his diet , that he is still getting all the nutrients he needs to be healthy!! I never realized how kinda careful you have to be when you do all these diet changes , especially with the

gfcf , i didnt know it was in soooo many foods that our kids eat! Its a hard diet to stick too , i do know that! lolMeaghan

From: md l <dontblinkhs@...> Sent: Mon, February 14, 2011 7:06:28 PMSubject: Re: ( ) my son

How old is your nephew? The Mystery Diagnosis I watched was about a baby who had Maple Syrup Urine Disease and they said that it is usually fatal early on (infancy) if it's not caught in time. They also said that all babies in the U.S. are now screened for it at birth before leaving the hospital. They said with this disease, the baby lacks an enzyme to break down those amino acids you mentioned. I wonder if there are severe cases and not-so-severe cases? This is very interesting!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Mon, February 14, 2011 12:03:19 PMSubject: Re: ( ) my son

Yeah i know right ... i was floored when my sister told me about this.... and i never wanted to say anything to her because i didnt want to hurt her feelings , but i ALWAYS thought my nephew smelt different , i could never really put my finger on it tho , cuz its like it was regular body odor smell , it just smelt sweet , so it was very interesting to hear what she had discovered with his lab results and her own research! SHe is going to have him tested for it soon, so i will let you know what happens when i find out!! :)Meaghan

From: md l <dontblinkhs@...> Sent: Sun, February 13, 2011 1:03:37 PMSubject: Re: ( ) my son

That is interesting Meaghan.. I saw a Mystery Diagnosis on my DVR last night (but I didn't watch it yet) called "The Baby Who Smelled Like Pancakes". I'm going to have to watch it now!

Misty

From: Meaghan Larson <meaghanlarson@...> Sent: Sun, February 13, 2011 12:46:32 PMSubject: Re: ( ) my son

Dont know what all symptoms your son has but you could try removing leucine.( basically meats among to name just one food its in) ... my best friend did the gfcf diet on her son for years with some improvement but not alot , and one day when she looked over all of his tests and lab work for allergies , the number one thing that was very high was leucine, so she looked up the link between that and autism and discovered the disorder maple syrup urine disease, she had ALWAYS complained to the doctors that her son had a very strong smell in his urine and breath like maple syrup , even when he sweats you can smell it!! I too always noticed that! SO right now she is in the middle of doing the testings to see if he has maple syrup urine disease , if left untreated this disease causes neurological brain damage! Definetely not saying your son has this , but thought maybe it was a good topic to bring up with you guys, in my sisters son's case it makes A

LOT of sense that he may have this disease! But i know most states now test new borns for this disease when they are first born , because it can be dangerous if left on treated on a new born! SO maybe your son was already tested for that!?Anyway , sorry to change the topic a little , just wanted to share that with ya :)Meaghan

From: Abatangelo <stephanie.abatangelo@...> Sent: Sun, February 13, 2011 11:01:06 AMSubject: Re: ( ) my son

Thank you Misty-You seem so well versed on this topic. I appreciate you giving me direction!

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 4:54:25 PMSubject: Re: ( ) my son

An allergist is not going to do the correct testing.. They will test for IgE-mediated allergies (anaphylactic-type allergies) and then only for the top 8 allergens and maybe some seasonal and household allergies just for good measure. My daughter was negative for all of those things.

Our kids are having an IgG-mediated response to gluten.. So you would need a blood test that looks for IgG antibodies. Allergists simply will not run these tests and even if they did, the lab would be inexpererienced and likely botch the entire test.

Celiac testing is also inaccurate as it looks for IgA antibodies.. And even if you have full blown celiac disease, the celiac tests usually do not detect it.. Many celiacs are IgA deficient! And anyway, most of our kids who are sensitive to gluten are non-celiac gluten intolerants, which means they are having an IgG response to gluten. They would never test positive on a celiac test no matter how many times you run it.

We tested through Great Plains Labs http://www.greatplainslaboratory.com/ with great results.

Misty

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Don't pick lemons.See all the new 2007 cars at Autos.

Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A.

[Guest guest]

find another allergist - doctors only see what they have their eyes open too- if he doesn't want to do the teesting int eh first place he will minimilaize evrything and honeslty our kids are effected at much lower levels than NT kids

From: Abatangelo <stephanie.abatangelo@...> Sent: Sat, February 12, 2011 2:13:04 PMSubject: Re: ( ) my son

I'm fighting my sons allergist to do food testing. He only wants to do the 8 most common allergy foods. We too removed all the gluten, casein and soy. He had been GF for some time but struggled with the casein because of the milk. Long story short, once we removed the casein he started sleeping! Going on 4 months now:)He still had crazy erratic behavior that we can't get a handle on. Last night his temper tantrum lasted almost 3 hours! I'm still exhausted from it. Any advice on the rages?

From: md l <dontblinkhs@...> Sent: Sat, February 12, 2011 8:31:33 AMSubject: Re: ( ) my son

My 7yr old daughter was extremely violent and aggressive until I took her off of gluten, casein, and soy. We first removed casein.. She stopped stimming and raging and climbing walls, running off, that sort of thing within 3 days.. Then we removed gluten.. We continued to see improvements in her behavior, eye contact, social interaction, etc. But she remained aggressive, impulsive, and just plain mean at times. So we went for the soy. As soon as I got all the soy out, her aggression completely went away. We were no longer being assaulted on a daily basis. She wasn't screaming and raging over the slightest change in routine or because her little brother pronounced a word wrong.. It was amazing!

We did do blood testing to confirm these food sensitivities before we removed them. She tested highly sensitive to all 3 foods and no others (we tested for 93 different foods).

Right now I feel like we are back to square one because her teacher gave her gluten 2 weeks ago (2 donuts!).. She has been a stimming, raging, screaming, aggressive mess ever since. She has developed her irrational fears again and her OCD has come back (even though she's on zoloft for her OCD!). It's been a nightmare 2 weeks for me. She hasn't acted like this since before I took her off of these foods over a year ago. She has been attacking us anytime things don't go her way. I truly have not seen these behaviors in over a year! She can no longer function at school so we have removed her and she is homeschooling again.

Let me know if you have any questions about any of this.

Misty

From: kirkhamrachael <kirkhamrachael@...> Sent: Fri, February 11, 2011 3:45:10 PMSubject: ( ) my son

Hi I,ve just joined this group in the hope of getting some advice from other parents who have a child with aspergers syndrome. My Son is 9 yrs old and was diagnosed with aspergers in Nov '10, although I knew from when he was little he acted differently to situations than my older son, for example, he hated crowds,loud noises, would only play with green toys, had an exeptionally good memory, and would and still will only eat foods that are bland, He panics over change, this ranges from changing class rooms to giong out for the day, I could go on forever, my problem and reason for joining this group is my Son is becoming very aggressive and even violent towards me and his brother, he seems to change from the loving funny little guy he is into a child Idon't recognise, he says terrible things and has started punching and kicking me, has anybody else experienced this with there child with aspergers or am Idealing with something else. Our peadiatrition has

referred us to a mental health team, and this has scared the life out of me, can anybody help.

[Guest guest]

When my daughter was younger (she's 28 now) we had a similar problem. I talked

to the school and had them give me the heads up on when they were planning a

trip, if they were going to change the theme for that month in the classroom, or

things like that. Then I would prepare my daughter for it. I would show her

pictures or talk to her about it. This was before computers and the internet so

it made it harder, but we still managed. Also if we were going to go someplace

or had a change in routine I would let her know about it and talk to her about

what to expect. Sometimes we would act it out for her and play games about it.

For example when we would go to the store to try shoes on or clothes on. My

daughter is autistic, and when she was first diagnosed it was diagnosed as

moderate autism. Today you wouldn't know she was autistic because she seems so

normal. She still has trouble with change but at least it is easier than it used

to be.

One thing about those on the spectrum is that change of any kind is difficult.

They don't know what is going to happen or what is expected of them and how to

behave. By going through things with them and showing them and talking to them

about it it makes it easier for them to deal with.

Hope this helps.

Robin

>

> Hi my name is and I'm very new to this, I dont really know what I'm

doing, My 9yr old son was diagnosed with aspergers syndrome in Nov'10, but feel

as though i've struggled with him for a long time, from being a todddler

actually, giong for days out is a nightmare, he is so anxious about places he

doesn't know, change to routine, stufff i'm sure you are all too familiar with?!

The situation has got worse over the past 6mths, he has 'violent episodes'

towards me and his older brother, its as though he cannot respond to a sitiution

or deal with something rationally (which i guess goes for any child) so he

lashes out instead, when we get to the bottom of it its because hes worried

about something ie; a change in the school day, or a trip hes heard his class

are going on, something trivial to anybody else but a massive ordeal to him, I

really dont know how too handle these situations and its very upsetting, we see

the peadiatrition next month so am hoping for some answers onm management skills

for us, but has anybody been in the same situation, and how did you handle it,

Iknow every child is differnet and responds differently but Ihave to start

somewhere! Thankyou.

>

[Guest guest]

Hey Pam,

Our son is very similiar. He is very nervous about going places and it is a struggle to get him to go. We have found that when possible if we show him something about the place we are going ahead of time, like a web site that may have pictures or a map and even you tube videos, especially if it is a museum or an amusement park, like disneyland etc. This helps my son immensly as it gives him a frame of reference to something he has no knowledge of. hope it helps

( ) my son

Hi my name is and I'm very new to this, I dont really know what I'm doing, My 9yr old son was diagnosed with aspergers syndrome in Nov'10, but feel as though i've struggled with him for a long time, from being a todddler actually, giong for days out is a nightmare, he is so anxious about places he doesn't know, change to routine, stufff i'm sure you are all too familiar with?! The situation has got worse over the past 6mths, he has 'violent episodes' towards me and his older brother, its as though he cannot respond to a sitiution or deal with something rationally (which i guess goes for any child) so he lashes out instead, when we get to the bottom of it its because hes worried about something ie; a change in the school day, or a trip hes heard his class are going on, something trivial to anybody else but a massive ordeal to him, I really dont know how too handle these situations and its very upsetting, we see the peadiatrition next month so am hoping for som e answers onm management skills for us, but has anybody been in the same situation, and how did you handle it, Iknow every child is differnet and responds differently but Ihave to start somewhere! Thankyou.

[Guest guest]

You can work on teaching him different ways he can respond to frustration and anger that are not going to hurt others.

Roxanna

“Our lives begin to end the day we

become silent about things that matter.†- Luther King, Jr.

( ) my son

Hi my name is and I'm very new to this, I dont really know what I'm doing, My 9yr old son was diagnosed with aspergers syndrome in Nov'10, but feel as though i've struggled with him for a long time, from being a todddler actually, giong for days out is a nightmare, he is so anxious about places he doesn't know, change to routine, stufff i'm sure you are all too familiar with?! The situation has got worse over the past 6mths, he has 'violent episodes' towards me and his older brother, its as though he cannot respond to a sitiution or deal with something rationally (which i guess goes for any child) so he lashes out instead, when we get to the bottom of it its because hes worried about something ie; a change in the school day, or a trip hes heard his class are going on, something trivial to anybody else but a massive ordeal to him, I really dont know how too handle these situations and its very upsetting, we see the peadiatrition next month so am hoping for som

e answers onm management skills for us, but has anybody been in the same situation, and how did you handle it, Iknow every child is differnet and responds differently but Ihave to start somewhere! Thankyou.

[Guest guest]

For all these reasons listed, I went to due process with the school district and won (in just one minute) and they are now paying for a nonpublic school, one that has a gifted program for kids on the spectrum. They transport him every day, give him counseling.....he is now president of the student council, on "Odyssey of the Mind" team, and getting straight A's in honors classes. Sometimes he feels that the other kids are more spectrumy then he is, but I don't have to worry about him being bullied or tormented at school. I have peace of mind when he goes off to school every day. I wish this for all of you!! I know the torment because that is what happened in middle school. I had enough, and I'm sure he did too.

Jodie

In a message dated 4/30/2011 7:16:15 A.M. Pacific Daylight Time, izzme1967@... writes:

This is all a big help to me. I know that I'm not alone. I feel like going to school with my son. And I also said the harassment word at school and all of a sudden everyone wanted to have a big meeting. I informed the school that I have been talking to a lawyer and he said it is the schools responsibility to keep all kids safe. So far I have no intention on sending my son to school until they have steps in place to keep him safe. He also was called faggot (which I believe is a hate crime), freak, and because he has very curly hair the white n word. To me the biggest problems seem to be with the star athletes and it always amazes me that no one ever sees them torturing him but they always see him lash out. I told the school that maybe they should have the teachers hearing and vision tested and since I am a Medical Assistant going for my RN degree I would offer my services for free. They did not find that funny.

From: Jenn <WldWestWoman@...>Autism and Aspergers Treatment Sent: Sat, April 30, 2011 8:13:03 AMSubject: Re: My son

I know how u all feel! My 17 year old son is currently being bullied at school. Mostly in the gym locker room, and on the bus. One of the bullies recently broke into his gym locker, I am sure because Jonathon told on him. But the school says they don't know when the gym locker was broken into, so they will never catch the person who did it. The only thing stolen, was some workout sheets he had in there. But I had him bring home his gym clothes so I could wash them, just in case they did something to them.

Anyways, he doesn't have autism, but he does have some mental issues. He is suffering from severe clinical depression, and I have talked to, and emailed the school many, many times this year about the bullying problem. My son has had suicidal thoughts, and he is on meds, but until the bully issue is taken care of, I don't see his depression going away, even with meds, because the meds are not helping much at all. I am planning on homeschooling him thru an online charter school next year because of it. I already homeschool his aspie brother.

It has gotten so bad that on the bus the other day, one of the bullies friends (who also is now bullying my son), accused him of hitting her in the face with his guitar case on the bus. Witnesses (who are friends of both my kids) told me that his guitar wasn't even near her face! My son had just sprained his ankle last weekend, and she tripped him, making him fall on his sprained ankle! So the bullies are now getting manipulative, I guess to cover their butts if they get into trouble. And now I am really concerned about my son's safety.

My husband and I are meeting with one of the Assistant Principals on Tuesday, because our son no longer feels safe at school, and no kid should be afraid to go to school. My little brother is a lawyer, so we got some legal advice on how to go about this, because it seems like the more he tells on these bullies, the worse the bullying gets for him.

In the meantime, his gym teacher is letting him change in a different locker room, and he can bring his clothes in his backpack to the gym, so he doesn't need to put them in a locker. And I have been driving him to school, and picking him up from school. For now, we are just trying to get him thru the rest of this school year without anymore incidents.

Jenn

On Sat, Apr 30, 2011 at 6:30 AM, Braasch <izzme1967@...> wrote:

Mindy, Hi my son was just diagnosed this week. All through his schooling he was bullied. And it was bad. I would be so angry with the school for not doing what I felt they should be doing to protect my son. As he got older and bigger the same kind of people kept at him and at him, until he blew. But he was the one that got into trouble and had the police called on him. I went to every meeting at school and it seemed that the people who bullied him never got in trouble. The people who bullied all seemed to be the schools best athletes. My son also never wanted to tell on others. And when he did the bullying just got worse. I can not find an answer to this problem. It was painful to drop my son off at school everyday. He hated going. Refusing to go to certain classes. I hope all works well for your son you will have to fight hard for him. As he becomes a teenager please watch for signs of depression. I almost lost my son because of bullying.

From: Mindy <mytoday2010@...> Autism and Aspergers Treatment Sent: Sat, April 30, 2011 7:18:00 AM Subject: Re: My son

My 11 year old is getting bullied and talked to to school several times and nothing gets done and he wont write it in a log because he doesnt want to get anyone in trouble and thinks they are friends.I told a friend doesnt call you names and threaten you.They say such horrific things.He is aspegers and they laugh at him

From: Braasch <izzme1967@...>Subject: Re: My sonAutism and Aspergers Treatment Date: Saturday, April 30, 2011, 11:13 AM

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

My 11 year old is getting bullied and talked to to school several times and nothing gets done and he wont write it in a log because he doesnt want to get anyone in trouble and thinks they are friends.I told a friend doesnt call you names and threaten you.They say such horrific things.He is aspegers and they laugh at him

From: Braasch <izzme1967@...>Subject: Re: My sonAutism and Aspergers Treatment Date: Saturday, April 30, 2011, 11:13 AM

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

Mindy, Hi my son was just diagnosed this week. All through his schooling he was bullied. And it was bad. I would be so angry with the school for not doing what I felt they should be doing to protect my son. As he got older and bigger the same kind of people kept at him and at him, until he blew. But he was the one that got into trouble and had the police called on him. I went to every meeting at school and it seemed that the people who bullied him never got in trouble. The people who bullied all seemed to be the schools best athletes. My son also never wanted to tell on others. And when he did the bullying just got worse. I can not find an answer to this problem. It was painful to drop my son off at school everyday. He hated going. Refusing to go to certain classes. I hope all works

well for your son you will have to fight hard for him. As he becomes a teenager please watch for signs of depression. I almost lost my son because of bullying.

From: Mindy <mytoday2010@...>Autism and Aspergers Treatment Sent: Sat, April 30, 2011 7:18:00 AMSubject: Re: My son

My 11 year old is getting bullied and talked to to school several times and nothing gets done and he wont write it in a log because he doesnt want to get anyone in trouble and thinks they are friends.I told a friend doesnt call you names and threaten you.They say such horrific things.He is aspegers and they laugh at him

From: Braasch <izzme1967@...>Subject: Re: My sonAutism and Aspergers Treatment Date: Saturday, April 30, 2011, 11:13 AM

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

There are great job opportunities out there for folks with aspergers. Our daughter is now 24 and got a job 4 years ago at our local Hannaford. I don't know which state you're in but I am in Vermont. I'm hopeful that there are agencies that can help your son get a job. The squeaky wheel gets the grease, you just got to know who to squeak to and when you do, make it loud. RhodaFrom: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Saturday, April 30, 2011 7:13 AMSubject: Re: My son

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

A great resource for wherever you are is to dial 211. They have information on who to contact for any need you may have. Hope this helps, Rhoda From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Saturday, April 30, 2011 8:43 AMSubject: Re: My son

There are great job opportunities out there for folks with aspergers. Our daughter is now 24 and got a job 4 years ago at our local Hannaford. I don't know which state you're in but I am in Vermont. I'm hopeful that there are agencies that can help your son get a job. The squeaky wheel gets the grease, you just got to know who to squeak to and when you do, make it loud. RhodaFrom: Braasch <izzme1967@...>To:

Autism and Aspergers Treatment Sent: Saturday, April 30, 2011 7:13 AMSubject: Re: My son

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

I know how u all feel! My 17 year old son is currently being bullied at school. Mostly in the gym locker room, and on the bus. One of the bullies recently broke into his gym locker, I am sure because Jonathon told on him. But the school says they don't know when the gym locker was broken into, so they will never catch the person who did it. The only thing stolen, was some workout sheets he had in there. But I had him bring home his gym clothes so I could wash them, just in case they did something to them. 

 

Anyways, he doesn't have autism, but he does have some mental issues. He is suffering from severe clinical depression, and I have talked to, and emailed the school many, many times this year about the bullying problem. My son has had suicidal thoughts, and he is on meds, but until the bully issue is taken care of, I don't see his depression going away, even with meds, because the meds are not helping much at all. I am planning on homeschooling him thru an online charter school next year because of it. I already homeschool his aspie brother.

 

It has gotten so bad that on the bus the other day, one of the bullies friends (who also is now bullying my son), accused him of hitting her in the face with his guitar case on the bus. Witnesses (who are friends of both my kids) told me that his guitar wasn't even near her face! My son had just sprained his ankle last weekend, and she tripped him, making him fall on his sprained ankle! So the bullies are now getting manipulative, I guess to cover their butts if they get into trouble. And now I am really concerned about my son's safety.

 

My husband and I are meeting with one of the Assistant Principals on Tuesday, because our son no longer feels safe at school, and no kid should be afraid to go to school. My little brother is a lawyer, so we got some legal advice on how to go about this, because it seems like the more he tells on these bullies, the worse the bullying gets for him.

 

In the meantime, his gym teacher is letting him change in a different locker room, and he can bring his clothes in his backpack to the gym, so he doesn't need to put them in a locker. And I have been driving him to school, and picking him up from school. For now, we are just trying to get him thru the rest of this school year without anymore incidents.

 

Jenn

 

On Sat, Apr 30, 2011 at 6:30 AM, Braasch <izzme1967@...> wrote:

 

Mindy, Hi my son was just diagnosed this week. All through his schooling he was bullied. And it was bad. I would be so angry with the school for not doing what I felt they should be doing to protect my son. As he got older and bigger the same kind of people kept at him and at him, until he blew. But he was the one that got into trouble and had the police called on him. I went to every meeting at school and it seemed that the people who bullied him never got in trouble. The people who bullied all seemed to be the schools best athletes. My son also never wanted to tell on others. And when he did the bullying just got worse. I can not find an answer to this problem. It was painful to drop my son off at school everyday. He hated going. Refusing to go to certain classes. I hope all  works well for your son you will have to fight hard for him. As he becomes a teenager please watch for signs of depression. I almost lost my son because of bullying.

From: Mindy <mytoday2010@...> Autism and Aspergers Treatment Sent: Sat, April 30, 2011 7:18:00 AM Subject: Re: My son

 

My 11 year old is getting bullied and talked to to school several times and nothing gets done and he wont write it in a log because he doesnt want to get anyone in trouble and thinks they are friends.I told a friend doesnt call you names and threaten you.They say such horrific things.He is aspegers and they laugh at him

From: Braasch <izzme1967@...>Subject: Re: My sonAutism and Aspergers Treatment

Date: Saturday, April 30, 2011, 11:13 AM

 

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.  

From: Rhoda Forrest <rlfvt05733@...> " Autism and Aspergers Treatment " <Autism and Aspergers Treatment >

Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son 

It'll all be okay ,

  Don't blame yourself as people don't know what they don't know until you make the right connections.  It can be very frustrating and heartbreaking.  All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment

Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

 

Hi,

    My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

    Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

                        

                                                                              Thanks,

                                                                              Braasch

[Guest guest]

Jenn,

I have to tell you that my son was having the same problems. At the last IEP that I requested, a couple of months ago. I made it very clear that this bullying thing, was going way too far. I told them that it had excalated to harrasment. I'm not sure, but without knowing it, I think that word HARRASMENT was the magic word. I told them that if I heard of one more incident, I was going to the police to press charges, that if these were not children, but adults, someone would be in jail. We have not had ANY more problems. I told the school that they had better talk to the parents of these kids, and tell them that I was Not messing around any more, and that I Would be contacting the police if it happens again. I also asked them how they could allow a few kids to make someones life so miserable for their own amusement, and I started crying. (I had kept telling myself I wasn't going to, nut I couldn't hold it back.) One of the teachers

told me after the meeting that she was hoping I would, and that it was"just enough", it sounds funny that she would say that, but I huess it helped. Also, one of these kids called my son"gay" and he socked him in the mouth and told him not to do it again. That may have also helped because they saw that he would finally stand up for himself. Not sure, but if it works, i'm all for it. The kid didn't hit him back.

Good Luck,

Candy

From: Jenn <WldWestWoman@...>Autism and Aspergers Treatment Sent: Sat, April 30, 2011 6:13:03 AMSubject: Re: My son

I know how u all feel! My 17 year old son is currently being bullied at school. Mostly in the gym locker room, and on the bus. One of the bullies recently broke into his gym locker, I am sure because Jonathon told on him. But the school says they don't know when the gym locker was broken into, so they will never catch the person who did it. The only thing stolen, was some workout sheets he had in there. But I had him bring home his gym clothes so I could wash them, just in case they did something to them.

Anyways, he doesn't have autism, but he does have some mental issues. He is suffering from severe clinical depression, and I have talked to, and emailed the school many, many times this year about the bullying problem. My son has had suicidal thoughts, and he is on meds, but until the bully issue is taken care of, I don't see his depression going away, even with meds, because the meds are not helping much at all. I am planning on homeschooling him thru an online charter school next year because of it. I already homeschool his aspie brother.

It has gotten so bad that on the bus the other day, one of the bullies friends (who also is now bullying my son), accused him of hitting her in the face with his guitar case on the bus. Witnesses (who are friends of both my kids) told me that his guitar wasn't even near her face! My son had just sprained his ankle last weekend, and she tripped him, making him fall on his sprained ankle! So the bullies are now getting manipulative, I guess to cover their butts if they get into trouble. And now I am really concerned about my son's safety.

My husband and I are meeting with one of the Assistant Principals on Tuesday, because our son no longer feels safe at school, and no kid should be afraid to go to school. My little brother is a lawyer, so we got some legal advice on how to go about this, because it seems like the more he tells on these bullies, the worse the bullying gets for him.

In the meantime, his gym teacher is letting him change in a different locker room, and he can bring his clothes in his backpack to the gym, so he doesn't need to put them in a locker. And I have been driving him to school, and picking him up from school. For now, we are just trying to get him thru the rest of this school year without anymore incidents.

Jenn

On Sat, Apr 30, 2011 at 6:30 AM, Braasch <izzme1967@...> wrote:

Mindy, Hi my son was just diagnosed this week. All through his schooling he was bullied. And it was bad. I would be so angry with the school for not doing what I felt they should be doing to protect my son. As he got older and bigger the same kind of people kept at him and at him, until he blew. But he was the one that got into trouble and had the police called on him. I went to every meeting at school and it seemed that the people who bullied him never got in trouble. The people who bullied all seemed to be the schools best athletes. My son also never wanted to tell on others. And when he did the bullying just got worse. I can not find an answer to this problem. It was painful to drop my son off at school everyday. He hated going. Refusing to go to certain classes. I hope all works well for your son you will have to fight hard for him. As he becomes a teenager please watch for signs of depression. I almost lost my son because of bullying.

From: Mindy <mytoday2010@...> Autism and Aspergers Treatment Sent: Sat, April 30, 2011 7:18:00 AM Subject: Re: My son

My 11 year old is getting bullied and talked to to school several times and nothing gets done and he wont write it in a log because he doesnt want to get anyone in trouble and thinks they are friends.I told a friend doesnt call you names and threaten you.They say such horrific things.He is aspegers and they laugh at him

From: Braasch <izzme1967@...>Subject: Re: My sonAutism and Aspergers Treatment Date: Saturday, April 30, 2011, 11:13 AM

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

This is all a big help to me. I know that I'm not alone. I feel like going to school with my son. And I also said the harassment word at school and all of a sudden everyone wanted to have a big meeting. I informed the school that I have been talking to a lawyer and he said it is the schools responsibility to keep all kids safe. So far I have no intention on sending my son to school until they have steps in place to keep him safe. He also was called faggot (which I believe is a hate crime), freak, and because he has very curly hair the white n word. To me the biggest problems seem to be with the star athletes and it always amazes me that no one ever sees them torturing him but they always see him lash out. I told the school that maybe they should have the teachers hearing and vision

tested and since I am a Medical Assistant going for my RN degree I would offer my services for free. They did not find that funny.

From: Jenn <WldWestWoman@...>Autism and Aspergers Treatment Sent: Sat, April 30, 2011 8:13:03 AMSubject: Re: My son

I know how u all feel! My 17 year old son is currently being bullied at school. Mostly in the gym locker room, and on the bus. One of the bullies recently broke into his gym locker, I am sure because Jonathon told on him. But the school says they don't know when the gym locker was broken into, so they will never catch the person who did it. The only thing stolen, was some workout sheets he had in there. But I had him bring home his gym clothes so I could wash them, just in case they did something to them.

Anyways, he doesn't have autism, but he does have some mental issues. He is suffering from severe clinical depression, and I have talked to, and emailed the school many, many times this year about the bullying problem. My son has had suicidal thoughts, and he is on meds, but until the bully issue is taken care of, I don't see his depression going away, even with meds, because the meds are not helping much at all. I am planning on homeschooling him thru an online charter school next year because of it. I already homeschool his aspie brother.

It has gotten so bad that on the bus the other day, one of the bullies friends (who also is now bullying my son), accused him of hitting her in the face with his guitar case on the bus. Witnesses (who are friends of both my kids) told me that his guitar wasn't even near her face! My son had just sprained his ankle last weekend, and she tripped him, making him fall on his sprained ankle! So the bullies are now getting manipulative, I guess to cover their butts if they get into trouble. And now I am really concerned about my son's safety.

My husband and I are meeting with one of the Assistant Principals on Tuesday, because our son no longer feels safe at school, and no kid should be afraid to go to school. My little brother is a lawyer, so we got some legal advice on how to go about this, because it seems like the more he tells on these bullies, the worse the bullying gets for him.

In the meantime, his gym teacher is letting him change in a different locker room, and he can bring his clothes in his backpack to the gym, so he doesn't need to put them in a locker. And I have been driving him to school, and picking him up from school. For now, we are just trying to get him thru the rest of this school year without anymore incidents.

Jenn

On Sat, Apr 30, 2011 at 6:30 AM, Braasch <izzme1967@...> wrote:

Mindy, Hi my son was just diagnosed this week. All through his schooling he was bullied. And it was bad. I would be so angry with the school for not doing what I felt they should be doing to protect my son. As he got older and bigger the same kind of people kept at him and at him, until he blew. But he was the one that got into trouble and had the police called on him. I went to every meeting at school and it seemed that the people who bullied him never got in trouble. The people who bullied all seemed to be the schools best athletes. My son also never wanted to tell on others. And when he did the bullying just got worse. I can not find an answer to this problem. It was painful to drop my son off at school everyday. He hated going. Refusing to go to certain classes. I hope all works well for your son you will have to fight hard for him. As he becomes a teenager please watch for signs of depression. I almost lost my son because of bullying.

From: Mindy <mytoday2010@...> Autism and Aspergers Treatment Sent: Sat, April 30, 2011 7:18:00 AM Subject: Re: My son

My 11 year old is getting bullied and talked to to school several times and nothing gets done and he wont write it in a log because he doesnt want to get anyone in trouble and thinks they are friends.I told a friend doesnt call you names and threaten you.They say such horrific things.He is aspegers and they laugh at him

From: Braasch <izzme1967@...>Subject: Re: My sonAutism and Aspergers Treatment Date: Saturday, April 30, 2011, 11:13 AM

Rhoda, Thank you. I understand that but I can't help but feel the way I do. I have said terrible things to him about getting a job because he is almost 18. He will not be able to work a regular teenage job because he can't talk to people. But it is a relief to know now.

From: Rhoda Forrest <rlfvt05733@...>"Autism and Aspergers Treatment " <Autism and Aspergers Treatment >Sent: Sat, April 30, 2011 5:57:44 AMSubject: Re: My son

It'll all be okay ,

Don't blame yourself as people don't know what they don't know until you make the right connections. It can be very frustrating and heartbreaking. All will be well as you're on the right track now. Blessings, Rhoda

From: Braasch <izzme1967@...>Autism and Aspergers Treatment Sent: Friday, April 29, 2011 9:39 AMSubject: Re: My son

Hi,

My son was bullied out of high school he is 17 years old. He has always tested off the charts with the schools IQ testing. Since he was a young boy I have always had problems with violent outbursts. In grade school he was put into a class for emotionally disturbed children. A teacher in that class asked me to get him tested for Aspergers. I only took him to see counselors who all said he did not have it.

Earlier this week he came to me and said he wanted to go to the hospital because he was so depressed about school that he felt he may hurt himself. I took him and he was admitted into the psych ward. After a physician met with him and did some testing for about three hours, he called me and asked if I had ever heard of Aspergers Syndrome, I just broke down and cried out of relief. My son is now diagnosed with this. I would like to receive any information that would help me help him. The hospital will be referring us to a person who specializes in this. I just feel horrible for all the torment that my son has been through not only from his peers but from us expecting things from him that he could not do. For 17 years my son has felt alone and that no one cared for him. Any information would be helpful.

Thanks,

Braasch

[Guest guest]

I'm so glad that you finally know. I think that what has been so helpful to me is reading a lot of different books that have helped me to understand what asperger's/autism is. Particularly books written by those with the disorder who are able to articulate what is going on with them. Look Me In The Eye by Robison is a great one. Once you understand it better, you will be able to help your son. Also documentaries have been very helpful. Just last week there was a 7 part series on PBS Newshour that covered many areas of ASD that I believe would be quite informative.

Shana