Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 Okay folks...please tell me what is glyconutrients and how to I get it for my son and how do I administer it !! Thanks, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 Mike Contact my friend Williss Langford who sells it at willissl@... . He also wrote an E book he can send to you for free for seizures as well as consult with you for free. It is the best decision you will make. I also implore you to use also PLUS which is a part of their product line as well. It is in a powder form (ambrotose) that you can put on foods or in drink, and the PLUS is a caplet that you can crush if you have a child who cannot swallow. My son takes 9 a day! Williss is lecturing at the Autism One conference in Chicago, so he will be back sometime later this week. Glyconutrients are essential for good cellular communication, which in my opnion in the seizure department has gone awry-let alone the premise that seizures are autoimmune in origin for many of us, which is a good deal, since glyco products work on MODULATION of the immune system but at the same time knows when to boost it as in biological response modification. {Please visit my website for more info on www.childscreen.org and why I feel it necessary for a child with autism, seizures and or other neuro conditions). They also have a official testimonial site at www.glycostory.com . I use to sell the stuff becuase I believed in it so much, but I can't lately becuase of my effots in my Non profit organization. However, I notice that if I run out of the stuff, I see the small seizures come back, this tells me something, and that is, that the nutrients are absolutely essential, like we need a balance of nutrients everyday. In fact many times list, you have seen the efforts of me getting off of meds. When I use the glyconutrients, I actually notice his body requires LESS meds, and or none at all,. this means the body is trying to find homeostasis and is trying to tell me it is not necessary to poisin the system to get seizure under control. I have also tried experiments of no ambrotose and plus, not a good thing!. This last month I have been extensively using the products. I cannot tell you the difference, night and day! In fact, while I was experimenting on dosages and putting it a bit highter as in 4 tablespoons of Ambrotose, two giant BEZOIRS came out of my son's gut-large, large, large obstructing undigested garbage poop! (description beyond belief, a fibrous ball of goo, poop and green mucous!)This was in my son's body which was producing toxins, and probably things into the blood stream that mess with the neurotransmitters/chemistry in the brain. How does that saying goes, if your knickers are in a knot, so is your brain? I am so thankful for this product. I know that the NORD organization underground speaks of this as a very good things for autoimmune and mitochondrial disorders-which in my opinion are at BASELINE of many of the problems of seizure disorders. It seems to make the ATP (energy metabolism) work better, the immune system, the gut and hormonal system come into balance and homeostasis, as well as work on cleaning, fixing, and recognition of what has to be done to clean up the bodies toxic wastes (which in my opinion is LARGE). This is not to say that " a supplement " can do all, for there are other thigns that must be accomplished, such as cleaning up the home, making it environmentally friendly, fixing and tweeking the diet, making sure you eat well, organic and all. The saying goes, you don't pop a pill and eat a snickers on the side. If you want the cells to work, give it the equipment it needs. The equipment is on cellular surfaces, which is the main communication system of the body. We know by research that children with autism and seizures seemingly do not produce very good communications on the orthomolecular level, many things are on self attack, and relative to that, toxins and viruses and huge hormonal shifts are being ignored or exasterbating the situation. The point being, if our children have lack of sugar chains as proven by Dr Hudson Freeze of the Burnham Institute at CAN organization, then why not give them SUGAR CHAINS or glycoproteins to bathe the cells more readily of the material they need to do the job? The interferences are what is causing seizure IMHO. Interferences are waste products, hormonal shifts, toxins, pesticides, heavy metals etc. Kathy Re: [ ] Introducing Myself > Okay folks...please tell me what is glyconutrients and how to I get it for my son and how do I administer it !! > > Thanks, > M > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 We get together in Centrally locted areas and socialize. There are pre-bands who are asking questions, newly banded who are bursting with joy and new experiences, long-time bandsters who have been there and done that. We laugh and eat, talk and listen. There are small gatherings like Issaquah and larger gatherings like Tacoma. Some of us can't get enough so we drive to several of them without regard to distance. It is one of the mainstays of my support system outside of my immediatly wonderful family. I would encourage anyone to come once and experience it for yourself. Myshalla 5/1/03 426/358/190 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Thanks Myshalla Do you post the upcoming activities, e.g. date/place and time? I work down in the Tacoma area and live near covington area, so I too could go to several venues. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 Hello Thang! I too found my recovery in newer forms of acupuncture and energy field therapies. It has offered me an incredible transformation and rapid healing. I was also on antidepressants that caused many mental and physical ailments while on the meds and much worse from the withdrawal of the drugs. Its wonderful to hear others using these highly effective forms of healing!! Best of all things to you Beverly -- In SSRI medications , " Thang Tran " <thang.tran@f...> wrote: > Hi Everyone! > > My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: > a.. Stelazine (Trifluoperazine), > b.. Effexor-XR (Venlafaxine), > c.. Lovan (Fluoxetine), > d.. Zybrexa (Olanzapine), > e.. Risperdal (Risperidone), > f.. Seroquel (Quetiapine), and > g.. Avanza (Mirtazapine) > I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. > > > Thang Tran > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 Thank you for sharing your experience. I am, too, new to this site, and welcome your story. My husband was on a long string of drugs, starting with the fluorexitine. He went for chest pains, got prescribed prozac, and this started a long list of problems, including insomnia, lack of appetite, got depression, lost of interest, had headaches, constant pacing 24 hours a day, etc. What natural supplements are you on now??? Is there any recourse thru the lawyers?? I know that the symptoms are listed on the drugs when you get them, but still..... Again, please share how you got healed. We are being refused health care because of this now, too. CB Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 Thank you for sharing your experience. I am, too, new to this site, and welcome your story. My husband was on a long string of drugs, starting with the fluorexitine. He went for chest pains, got prescribed prozac, and this started a long list of problems, including insomnia, lack of appetite, got depression, lost of interest, had headaches, constant pacing 24 hours a day, etc. What natural supplements are you on now??? Is there any recourse thru the lawyers?? I know that the symptoms are listed on the drugs when you get them, but still..... Again, please share how you got healed. We are being refused health care because of this now, too. CB Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 For those who have not heard me say this. I work in a health food store and people come in all the time saying they went to their GP with a sore throat and came out with a prescription of dangerous Pschy drugs. It's all to common. Some of these people are doing ok, but they don't realize the dangers their doc's put them in. It's happening all the time all over the world. Boy are we headed for trouble. AND THERES NOTHING TO STOP IT! There is way to much money and way to much corruption. Connie --- Your Name <remline@...> wrote: --------------------------------- Thank you for sharing your experience. I am, too, new to this site, and welcome your story. My husband was on a long string of drugs, starting with the fluorexitine. He went for chest pains, got prescribed prozac, and this started a long list of problems, including insomnia, lack of appetite, got depression, lost of interest, had headaches, constant pacing 24 hours a day, etc. What natural supplements are you on now??? Is there any recourse thru the lawyers?? I know that the symptoms are listed on the drugs when you get them, but still..... Again, please share how you got healed. We are being refused health care because of this now, too. CB Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 For those who have not heard me say this. I work in a health food store and people come in all the time saying they went to their GP with a sore throat and came out with a prescription of dangerous Pschy drugs. It's all to common. Some of these people are doing ok, but they don't realize the dangers their doc's put them in. It's happening all the time all over the world. Boy are we headed for trouble. AND THERES NOTHING TO STOP IT! There is way to much money and way to much corruption. Connie --- Your Name <remline@...> wrote: --------------------------------- Thank you for sharing your experience. I am, too, new to this site, and welcome your story. My husband was on a long string of drugs, starting with the fluorexitine. He went for chest pains, got prescribed prozac, and this started a long list of problems, including insomnia, lack of appetite, got depression, lost of interest, had headaches, constant pacing 24 hours a day, etc. What natural supplements are you on now??? Is there any recourse thru the lawyers?? I know that the symptoms are listed on the drugs when you get them, but still..... Again, please share how you got healed. We are being refused health care because of this now, too. CB Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Thanks for your email. I have been on a wide range of nutritional supplements and observing cautions when taking amounts. I have been taking men's multivitamins, fish oil, flaxseed oil, cod liver oil, gingko biloba and lecithin. The number of ingredients in the multivitamins is HUGE so I prefer to keep this email brief. I tried sueing my psychiatrist but after hearing from a lawyer that I didn't have physical evidence to back it up, it was IMPOSSIBLE to sue the psychiatrist. Also, here in Australia, it is extremely difficult (if not impossible) to win a case on the grounds of mental illness misdiagnosis as government policies protect the medical profession. My experience is very complex and everything cannot be detailed through email. But it was a EXTREMELY TOUGH thing to go through and I wouldn't want anyone going through the same thing. Cheers Thang Tran Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Thanks for your email. I have been on a wide range of nutritional supplements and observing cautions when taking amounts. I have been taking men's multivitamins, fish oil, flaxseed oil, cod liver oil, gingko biloba and lecithin. The number of ingredients in the multivitamins is HUGE so I prefer to keep this email brief. I tried sueing my psychiatrist but after hearing from a lawyer that I didn't have physical evidence to back it up, it was IMPOSSIBLE to sue the psychiatrist. Also, here in Australia, it is extremely difficult (if not impossible) to win a case on the grounds of mental illness misdiagnosis as government policies protect the medical profession. My experience is very complex and everything cannot be detailed through email. But it was a EXTREMELY TOUGH thing to go through and I wouldn't want anyone going through the same thing. Cheers Thang Tran Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Thanks for your email. I have been on a wide range of nutritional supplements and observing cautions when taking amounts. I have been taking men's multivitamins, fish oil, flaxseed oil, cod liver oil, gingko biloba and lecithin. The number of ingredients in the multivitamins is HUGE so I prefer to keep this email brief. I tried sueing my psychiatrist but after hearing from a lawyer that I didn't have physical evidence to back it up, it was IMPOSSIBLE to sue the psychiatrist. Also, here in Australia, it is extremely difficult (if not impossible) to win a case on the grounds of mental illness misdiagnosis as government policies protect the medical profession. My experience is very complex and everything cannot be detailed through email. But it was a EXTREMELY TOUGH thing to go through and I wouldn't want anyone going through the same thing. Cheers Thang Tran Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Thanks for your email. I have been on a wide range of nutritional supplements and observing cautions when taking amounts. I have been taking men's multivitamins, fish oil, flaxseed oil, cod liver oil, gingko biloba and lecithin. The number of ingredients in the multivitamins is HUGE so I prefer to keep this email brief. I tried sueing my psychiatrist but after hearing from a lawyer that I didn't have physical evidence to back it up, it was IMPOSSIBLE to sue the psychiatrist. Also, here in Australia, it is extremely difficult (if not impossible) to win a case on the grounds of mental illness misdiagnosis as government policies protect the medical profession. My experience is very complex and everything cannot be detailed through email. But it was a EXTREMELY TOUGH thing to go through and I wouldn't want anyone going through the same thing. Cheers Thang Tran Introducing myself Hi Everyone! My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: a.. Stelazine (Trifluoperazine), b.. Effexor-XR (Venlafaxine), c.. Lovan (Fluoxetine), d.. Zybrexa (Olanzapine), e.. Risperdal (Risperidone), f.. Seroquel (Quetiapine), and g.. Avanza (Mirtazapine) I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. Thang Tran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Dear Thang, I am very glad you have survived and are prospering after your experience. Very well done!! Your experiences make you a great advocate for Health Promotion. Welcome, Jim Introducing myself > Hi Everyone! > > My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: > a.. Stelazine (Trifluoperazine), > b.. Effexor-XR (Venlafaxine), > c.. Lovan (Fluoxetine), > d.. Zybrexa (Olanzapine), > e.. Risperdal (Risperidone), > f.. Seroquel (Quetiapine), and > g.. Avanza (Mirtazapine) > I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. > > > Thang Tran > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Dear Thang, I am very glad you have survived and are prospering after your experience. Very well done!! Your experiences make you a great advocate for Health Promotion. Welcome, Jim Introducing myself > Hi Everyone! > > My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: > a.. Stelazine (Trifluoperazine), > b.. Effexor-XR (Venlafaxine), > c.. Lovan (Fluoxetine), > d.. Zybrexa (Olanzapine), > e.. Risperdal (Risperidone), > f.. Seroquel (Quetiapine), and > g.. Avanza (Mirtazapine) > I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. > > > Thang Tran > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Dear Thang, I am very glad you have survived and are prospering after your experience. Very well done!! Your experiences make you a great advocate for Health Promotion. Welcome, Jim Introducing myself > Hi Everyone! > > My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: > a.. Stelazine (Trifluoperazine), > b.. Effexor-XR (Venlafaxine), > c.. Lovan (Fluoxetine), > d.. Zybrexa (Olanzapine), > e.. Risperdal (Risperidone), > f.. Seroquel (Quetiapine), and > g.. Avanza (Mirtazapine) > I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. > > > Thang Tran > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Dear Thang, I am very glad you have survived and are prospering after your experience. Very well done!! Your experiences make you a great advocate for Health Promotion. Welcome, Jim Introducing myself > Hi Everyone! > > My name is Thang (Tang) Tran, I am a University student studying a Bachelor's degree in Health Science (with a view to majoring in Health Promotion) from the University of Western Sydney (Australia). I am a past victim of psychiatry who knows all too well the consequences of being on them. I was on a whole variety of drugs shifting from one to the next including: > a.. Stelazine (Trifluoperazine), > b.. Effexor-XR (Venlafaxine), > c.. Lovan (Fluoxetine), > d.. Zybrexa (Olanzapine), > e.. Risperdal (Risperidone), > f.. Seroquel (Quetiapine), and > g.. Avanza (Mirtazapine) > I strongly condemn the actions of the medical profession (namely psychiatry and general practice) for what they did to me. Despite being on all of the drugs listed above, I found hope when I was successfully cured for drug addiction to anti-psychiatric drugs in August 2002 through Advanced Acupuncture. Since then I have been taking a wide range of nutritional supplements to heal my brain from the damages the drugs have caused to me. Although I suffer from Tardive Dyskinesia (involuntary movement disorder), I am proud to say that this is hardly noticeable. I do not take any prescription drugs anymore but instead opt for alternative forms of treatment. I am presently living in Sydney and have high hopes for my future career. > > > Thang Tran > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi and welcome to the group! [ ] Introducing myself In light of the recent events I would like to introduce myself which I should have done in the first place! My name is I am a SAHM to my 2 kids, Lexi age 5 my spunky kindergartener and age 22 months my little fighter. Hence my user ID my emily is a former 26 wk preemie(26 and 5/7 to be exact). She has recieved HBOT in the past for bone infections she gets from using a particular anticonvulsant which *fingers crossed* we will start weaning next month. I am not certain why this drug is attributed but it also causes aplastic anemia. We are looking into continuing HBOT as she had lovely improvements while doing it before, and as you all know private insurance as well as medicaid is a toughy when it comes to using the treatment for other than the " approved " conditions. Thankfully our neurologist is extremely supportive of this therapy. She also has West Syndrome(infantile spasms/hypsarrhythmia) She has been completely seizure free for 4 weeks and 4 days, but had drastically reduced seizures since her last HBOT treatments(though I am not sure if it is from that or the drug change, or a combo of both) but nonetheless she is seizure free and it is glorious!!!!!!!!! I hope as a group we can be victorious and end the discrimination against our children, and the adults out there and get them the treatment they need without wasting valuable time fighting with insurance! And hopefully one day this group will not even exisit as HBOT will be avaiilable and paid for by insurance when needed! In addition I apologize for causing any confusion in the group as I did not introduce myself before and I have finally given up on the saved signature I tried to do as obviously it never shows up(if anyone has a clue on this I would appreciate it LOL) so from now on I will manually sign my name Niki Mom to Lexi my 5 yr old drama queen and my 22 month old miracle! Typo disclosure: I am the queen of typos, I have been known to spell my own name wrong, so please excuse my typos LOL personally I am fluent in " typo " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Thanks for the welcome!!!!!! niki mom to Lexi and emily --------- [ ] Introducing myself In light of the recent events I would like to introduce myself which I should have done in the first place! My name is I am a SAHM to my 2 kids, Lexi age 5 my spunky kindergartener and age 22 months my little fighter. Hence my user ID my emily is a former 26 wk preemie(26 and 5/7 to be exact). She has recieved HBOT in the past for bone infections she gets from using a particular anticonvulsant which *fingers crossed* we will start weaning next month. I am not certain why this drug is attributed but it also causes aplastic anemia. We are looking into continuing HBOT as she had lovely improvements while doing it before, and as you all know private insurance as well as medicaid is a toughy when it comes to using the treatment for other than the " approved " conditions. Thankfully our neurologist is extremely supportive of this therapy. She also has West Syndrome(infantile spasms/hypsarrhythmia) She has been completely seizure free for 4 weeks and 4 days, but had drastically reduced seizures since her last HBOT treatments(though I am not sure if it is from that or the drug change, or a combo of both) but nonetheless she is seizure free and it is glorious!!!!!!!!! I hope as a group we can be victorious and end the discrimination against our children, and the adults out there and get them the treatment they need without wasting valuable time fighting with insurance! And hopefully one day this group will not even exisit as HBOT will be avaiilable and paid for by insurance when needed! In addition I apologize for causing any confusion in the group as I did not introduce myself before and I have finally given up on the saved signature I tried to do as obviously it never shows up(if anyone has a clue on this I would appreciate it LOL) so from now on I will manually sign my name Niki Mom to Lexi my 5 yr old drama queen and my 22 month old miracle! Typo disclosure: I am the queen of typos, I have been known to spell my own name wrong, so please excuse my typos LOL personally I am fluent in " typo " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 Welcome Penny If I were you, I would go for it. I spent 6 years in misery until I gave in (well, actually a lot of that time was spent waiting for my problem to get bad enough to show on the MRI's). I had a 3 level fusion in Jund for Spondy (also have DDD and a ruptured disc removed in 1999)- best thing I have ever done. You are young enough (and I say that as someone younger than you, 47) that you should be able to recover well, and also young enough that you shoudn't have a lifetime of suffering ahead of you. Most of my research of the years shows stenosis surgery is pretty successfull. Where are you located, just out of curiousity, never quite sure how far Kaiser goes....is it only California ? I am in Monterey County. Kris > Hello, my name is Penny. I have Lumbar Degenerative Disk Disease/Spinal Stenosis. I am 54, soon to be 55 on April 15. I came from another consult with a Spine Dr Tuesday. Surgery is now being considered. I told him I need to go home and study up about it and hopefully communicate with others with this problem who has had surgery and the outcome. I told him I would call him back in a week or 2. I have had this for many years and as you know, it does not get better. I do get injections for the pain, but am only allowed 3 in a 12 month period. I have also been getting these for several years now. I am just tired of the pain, 24/7 and am hoping that surgery will help my situation. Oral medications no longer work for me and have not for quite awhile. My Physical Med Dr at Kaiser does not want to refer me for any more injections after this year, as those are not good for you all the time too. But, for me, this is all that still works for me. It does dull the pain and makes it > more bearable. I am in charge of the Attendance Office at a high school. I am not much of a poster, but will try to keep up with the group. I am a member of a couple of other support groups also. (Not back related) I also have had Gastric Bypass Surgery in August of 2003 and have lost 120 pounds so far. My other Spine Dr wouldn't even consider surgery at that time(year,2000) because of my weight. I am still trying to loose but it is hard when you can't do much excersise. I did belong to Curves, but stopped going after a few months. My back just couldn't deal with it. I do walk on my treadmill, even though I do pay for it later. I use a heating pad most nights to help ease my back. Some say it doesn't help, but I use it anyway because it helps me. I think of it as my " security " blanket. haha. Anyway,the Dr is talking about a Laminectomy and Fusion. I hope this is a proper introduction. I am looking forward to getting to know you all, and thank you for your welcome. > Penny > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Hello, , (from another " list lurker " ). I read the posts and I am not even ill! Your story sounds a lot like my husband's, though, so I thought I'd say hello. Funny, when I check the messages in my morning (Holland) the only ones who have written at that time are those in New Zealand and Australia. I always get the Americans the next day. A word to : I am so sorry about your mother's death. I pray that your sadness is quickly replaced with happy memories. One last thing: My husband says that he is getting better! I am wary, but he truly feels that he is. He's now only taking the Sulfasalazine and 10mg of Prednisolone. The next Rheumy appointment is in one week. Everyone cross your fingers for us! ttfn, Analia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hi Analia, Thank God your prayers have been answered. I am so relieved your husband is feeling better. Every toe is cross. Bye Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Hi Ted, Congratulations on your new implant! My daughter had two switch on days. The initial activation was two days, but the mapping sessions after the initial activation were one day appointments lasting about 1-1/2 to two hours... This is standard at the center we attend. They did the initial activation and mapping and then sent us on our way to see how she handled the new hearing. Then the next day they mapped her again. The " highest " map from day one became her " lowest " map on day two. We went home after that (our center is four hours away, so we spent two nights for her activation) and was instructed to try to go though all four programs before the next mapping session which was two weeks later. She is four months post activation now and doing very well. I am sure that you will not be disappointed. For us it was a true miracle! Good luck on the 26th and 27th!! W. ________________________________ From: [mailto: ] On Behalf Of Ted F. Sent: Thursday, April 06, 2006 8:43 PM Subject: Introducing myself Gday from Down Under. My name is Ted and I'm in Australia. I received a Cochlear Implant at the Mater Hospital in Brisbane on Wednesday April 5th. My switch on dates are April 26th and 27th. Did anyone else have 2 switch on days? I was told that things can change overnight. Ted F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 > > Hi Ted, > > Congratulations on your new implant! Hello . Thanks. > > My daughter had two switch on days. The initial activation was two > days, but the mapping sessions after the initial activation were > one day appointments lasting about 1-1/2 to two hours... This is > standard at the center we attend. After the initial 2 switch-on dates, I have appointments on all four Thursdays in May for mapping. > They did the initial activation and mapping and then sent us on our > way to see how she handled the new hearing. Then the next day they > mapped her again. The " highest " map from day one became > her " lowest " map on day two. We went home after that (our center > is four hours away, so we spent two nights for her activation) and > was instructed to try to go though all four programs before the > next mapping session which was two weeks later. Mapped and mapping are still a foreign language to me at the moment, because I dont know whats involved. > She is four months post activation now and doing very well. Excellent, can I ask how old she is and do children adapt better than older people, I'm 61? > I am sure that you will not be disappointed. > For us it was a true miracle! It truly must be miraculous, because that word gets used a lot around cochlear implants. I cant wait. > Good luck on the 26th and 27th!! > Thank you and thanks for taking the time to reply. Ted F. > > > W. > > Gday from Down Under. > My name is Ted and I'm in Australia. I received a Cochlear Implant > at the Mater Hospital in Brisbane on Wednesday April 5th. My switch > on dates are April 26th and 27th. Did anyone else have 2 switch on > days? I was told that things can change overnight. > > Ted F. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Ted, All of the technical jargon evades me, so I just do the best I can in terms that I understand! LOL! The maps are basically where they hook your external processor up to their computer and they test each electrode to make sure that it is working and then what is the lowest level you can hear and the highest you can tolerate. I believe they are called T and C levels. (If someone else can explain this better, then my all means please do~smile!) From that they create programs. My daughter is going on three and we have four programs. Each time she is mapped they have gotten louder until this last time. They think she is really close to wear she needs to be. She will return in May for another mapping session. As for the features, that part is completely foreign to me. Sorry! I don't know who adapts better, children or adults. I think it depends a lot of how much, if any, hearing and language one had before the implant. What is your hearing history? ___________________________ A.Weinzapfel PURCHASING DEPARTMENT UNIVERSITY OF SOUTHERN INDIANA 812.464.1848 JWEINZAP@... ________________________________ From: [mailto: ] On Behalf Of Ted F. Sent: Friday, April 07, 2006 10:45 AM Subject: Re: Introducing myself > > Hi Ted, > > Congratulations on your new implant! Hello . Thanks. > > My daughter had two switch on days. The initial activation was two > days, but the mapping sessions after the initial activation were > one day appointments lasting about 1-1/2 to two hours... This is > standard at the center we attend. After the initial 2 switch-on dates, I have appointments on all four Thursdays in May for mapping. > They did the initial activation and mapping and then sent us on our > way to see how she handled the new hearing. Then the next day they > mapped her again. The " highest " map from day one became > her " lowest " map on day two. We went home after that (our center > is four hours away, so we spent two nights for her activation) and > was instructed to try to go though all four programs before the > next mapping session which was two weeks later. Mapped and mapping are still a foreign language to me at the moment, because I dont know whats involved. > She is four months post activation now and doing very well. Excellent, can I ask how old she is and do children adapt better than older people, I'm 61? > I am sure that you will not be disappointed. > For us it was a true miracle! It truly must be miraculous, because that word gets used a lot around cochlear implants. I cant wait. > Good luck on the 26th and 27th!! > Thank you and thanks for taking the time to reply. Ted F. > > > W. > > Gday from Down Under. > My name is Ted and I'm in Australia. I received a Cochlear Implant > at the Mater Hospital in Brisbane on Wednesday April 5th. My switch > on dates are April 26th and 27th. Did anyone else have 2 switch on > days? I was told that things can change overnight. > > Ted F. > Quote Link to comment Share on other sites More sharing options...
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