introducing myself

[Guest guest]

What is the diet?

Thanks!

sthpaclife <sthpaclife@...> wrote:

Hi I have been hypothyroid for several years now. I didn't take a

note of my levels but have stayed quite stable. I am on a very low

dosage Levothyroxine. My weight was higher than I wanted but approx

two years ago found a diet that did kickstart my own thyroid. My

results proved it. My concern is with calcium supplements which

always seem to interact with my med. Does anyone else have this

occurrence. Would value some comments.

[Guest guest]

> Hi I have been hypothyroid for several years now. I didn't take

a

> note of my levels but have stayed quite stable. I am on a very

low

> dosage Levothyroxine. My weight was higher than I wanted but

approx

> two years ago found a diet that did kickstart my own thyroid. My

> results proved it. My concern is with calcium supplements which

> always seem to interact with my med. Does anyone else have this

> occurrence. Would value some comments.

> Hi & ,

It was a Shomon one that I found in a magazine. I followed

it to the letter for about three weeks and lost 15 lbs. and over the

last two years have been able to keep down and now I mix and match

the items. The beauty is that you have flexibility of meals - it is

not rigid ie. eat a certain thing on Mon, Tues etc. My scanner is

on the blink at the moment - I am in Canada - if you send me an

address I will photocopy along with some hints and send on to you.

Janet

>

>

>

>

>

>

>

>

[Guest guest]

Hi , Veganism will not necessarily keep your weight down, it depends on

what you were eating. Some vegans are overweight from poor diet choices (lots

of candy and pasta). I take eco thyro, it is dried freezed thyroid tissue from

cows that live on organic farms in New Zealand. I was told not to exceed more

than 3 a day, but I couldn't listen to that after the pregnancy when everything

changed because I just wasn't feeling right and my goiter was too large for my

liking! So, now I am on 4 a day (spaced out) and I take them with fish oils and

a supplement called " rev it up " , a supplememt that helps support thyroid gland

function and health with L-Tyrosine. Don't get me wrong, I have to workout

atleast 6 days a week and eat very healthy (90% organice, no dairy, no meat,

very low sugar, I do eat fish though). My weight will go up in no time. When I

got pregnant I went from 128 to 139 in 2 weeks, now I am down to 134 (3 months

after pregnancy) and a size 4-5. I

work so hard at staying fit if someone without a thyroid condition did what I

do they would be transparent. Hang in there!

and Irwin <familyirwin@...> wrote: Hey and

,

I too got pregnant and then miscarried...then diagnosed with hashi, was on

synthroid...gained a ton a weight, became vegan...not a big difference...finally

went off synthroid all together...lost a bunch of weight...now levels are

creeping back up...I don't want to go on any animal products...only I would

consider sheep...I won't touch pig.

Thanks for sharing your stories.

Blessings!

<tiffany24mw@...> wrote:

My name is I have had problems with my thyroid since 1992. I was

pregnant and had a miscarriage too.

Stanziale <massageme429@...> wrote: Hi I am new to this

as well so I am assuming when I reply to you it is going to everyone??? Anyway,

I have been off of synthroid for 9 yrs. and on all natural remedies since, I

have felt great.......until I got pregnant, miscarried, and now my thyroid has

not been the same and I have a goiter. I am seeking alternative help because I

refuse to be on a synthetic drug for the rest of my life. I am currently taking

" dried freeze thyroid tissues " from cows in New Zealand. I also take a

supplement called " rev it up " which you can find on Dr. Dane's website. I am

doing acupuncture, chiropractice, zinc, calcium, sea vegetable, and yoga!!!

It's crazy I know but I can't see going western with this. Like I said, all of

this was completely helping me until I got pregnant and now I am not and can not

get my gland to go back the way it was. I wish you luck and I am hoping I can

find some holistic help on this site. :0)

michelle_poelsterl <michelle_poelsterl@...> wrote: Hi my name is

and I am new to this group. I was diagnosed

with hypothyroid disease in May 2004 after I went through an unusual

weight gain that began in January 2004. I have been through 2 family

physicans who have interest in thyroid issues and am seeing my second

endocronologist. She is finally explaining to me what a normal range

is and believes me when I say my weight problems are thyroid related.

I keep reading about a lot of herbal supplements and other vitamins

that may help. I guess I'm looking for weight management advice

besides diet and exercise, which I feel I do great with.

I look forward to hearing others share experiences.

Thanks,

[Guest guest]

Hi ,

Thanks for your reply... I apologize, but I got a little lazy with my details.

In 1999, I lost a baby, then I gained a ton a weight. I was majorly depressed,

docs said it was due to the miscarriage. Then, they tested my thyroid, and TSH

was 40ish. Put me on Synthroid...still had a ton of depression, weight gain,

dry skin....reflux, constipation, heartburn....fevers... the list goes on.

Well, I was only 27 at the time, and I thought I was dying. I fell flat on my

face and cried out for healing. Then, amazing things started to happen. I

became introduced to a vegan diet, cleansing, and things started to work for me.

I did a cleanse for 30 days of nothing but fresh veggie juices, whole foods, no

sugar, no salt, no meat, no dairy, and adding fiber shakes and herbs. I lost

about 20 pounds initially, then about 20 more later on following a good diet

with lots of carrot juice, went off all medication except synthroid..because

docs said that would be a lifetime of

treatment. AGHH! Oh well, I did great with that lifestyle, until I got

pregnant again, gained a bunch of weight, like 60 pounds. Had a healthy baby,

then I went to a natropath, and she told me to go off synthroid...and I started

juicing more, walking about 6 days a week for an hour each time, eating lots of

salads and fruits...did a liver flush, and after about 6 months I started

dropping weight like nothing! I was 200, and I got down to 130, and was a

size 4. Now, I am about a size 6-8, gained 20 pounds back, I am still walking

like 3 hours a day, and my TSH is going up and up. Of course, I didn't want to

check it while I was loosing the weight, because I thought it was great!

Afterall, I felt like a million bucks, so I just went by the way I felt. MY

TSH is back up to 37, and I just had it checked again, so I am awaiting the

results. I refuse to take Synthroid again...that stuff sucks! If you don't

mind my candidness. I won't take Pig, for reasons that it

is considered non kosher. So, I would consider Dr. Dane's products. I talked

with her, and I think she might have changed over to Sheep from Austrailia.

Which is what I would consider, as who knows the risks with Cows nowadays. So

anyway, I agree with you, my diet wasn't always a healthy Vegan diet, as I did

eat rice dream ice cream, etc. But, I am totally gluten-free...so I don't touch

the wheat stuff. I need to do more, I know that...but I am just scared to put

any animal in my body. Also, I have this hope that I will be cured, but I know

I have to work harder. This is a struggle.... ANyway, thanks for listening.

We have a lot in common. I want to have another baby too...but my levels won't

support a life within me. If I can't get the levels back, then perhaps I will

try the stuff from Dr. Dane, as a way to help support my body while working to

get pregnant and then hopefully wean of that as well.

Blessings to you!

Thanks for your response!

Stanziale <massageme429@...> wrote:

Hi , Veganism will not necessarily keep your weight down, it depends

on what you were eating. Some vegans are overweight from poor diet choices

(lots of candy and pasta). I take eco thyro, it is dried freezed thyroid tissue

from cows that live on organic farms in New Zealand. I was told not to exceed

more than 3 a day, but I couldn't listen to that after the pregnancy when

everything changed because I just wasn't feeling right and my goiter was too

large for my liking! So, now I am on 4 a day (spaced out) and I take them with

fish oils and a supplement called " rev it up " , a supplememt that helps support

thyroid gland function and health with L-Tyrosine. Don't get me wrong, I have

to workout atleast 6 days a week and eat very healthy (90% organice, no dairy,

no meat, very low sugar, I do eat fish though). My weight will go up in no

time. When I got pregnant I went from 128 to 139 in 2 weeks, now I am down to

134 (3 months after pregnancy) and a size 4-5. I

work so hard at staying fit if someone without a thyroid condition did what I do

they would be transparent. Hang in there!

and Irwin <familyirwin@...> wrote: Hey and

,

I too got pregnant and then miscarried...then diagnosed with hashi, was on

synthroid...gained a ton a weight, became vegan...not a big difference...finally

went off synthroid all together...lost a bunch of weight...now levels are

creeping back up...I don't want to go on any animal products...only I would

consider sheep...I won't touch pig.

Thanks for sharing your stories.

Blessings!

[Guest guest]

Wow! thanks for the details, I am a big fan of details. Yes, we seem to have a

lot in common. So, you spoke with Dr. Dane? The only thing I didn't like about

her was that when I called her and said " I am pregnant and I am on 4 eco thyros

and my TSH is 4.8 " she told me to immediately go back to 3 a day because she was

worried I would turn my hypo into hyper and miscarry, well I listened to her and

my levels went from 4.8 to 11.8 and then I miscarried, so I was weary of that.

I am not blaming anyone I am just saying I was quite skeptical after that. I'm

sure plenty of women carried a healthy baby to full term with TSH of 4.8, I'm

starting to realize that's not that high compared to many stories I read here.

I was/am very concerned myself with the cow glandulars, I often scare myself to

the point I want to throw them out the window. The PHP company assures that the

cows are living a complete natural organic life in New Zealand but I am curious

to know what Dr. Dane

said when you stressed your concern regarding cows. Keep in touch and good

luck! -

and Irwin <familyirwin@...> wrote: Hi ,

Thanks for your reply... I apologize, but I got a little lazy with my details.

In 1999, I lost a baby, then I gained a ton a weight. I was majorly depressed,

docs said it was due to the miscarriage. Then, they tested my thyroid, and TSH

was 40ish. Put me on Synthroid...still had a ton of depression, weight gain,

dry skin....reflux, constipation, heartburn....fevers... the list goes on.

Well, I was only 27 at the time, and I thought I was dying. I fell flat on my

face and cried out for healing. Then, amazing things started to happen. I

became introduced to a vegan diet, cleansing, and things started to work for me.

I did a cleanse for 30 days of nothing but fresh veggie juices, whole foods, no

sugar, no salt, no meat, no dairy, and adding fiber shakes and herbs. I lost

about 20 pounds initially, then about 20 more later on following a good diet

with lots of carrot juice, went off all medication except synthroid..because

docs said that would be a lifetime of

treatment. AGHH! Oh well, I did great with that lifestyle, until I got

pregnant again, gained a bunch of weight, like 60 pounds. Had a healthy baby,

then I went to a natropath, and she told me to go off synthroid...and I started

juicing more, walking about 6 days a week for an hour each time, eating lots of

salads and fruits...did a liver flush, and after about 6 months I started

dropping weight like nothing! I was 200, and I got down to 130, and was a

size 4. Now, I am about a size 6-8, gained 20 pounds back, I am still walking

like 3 hours a day, and my TSH is going up and up. Of course, I didn't want to

check it while I was loosing the weight, because I thought it was great!

Afterall, I felt like a million bucks, so I just went by the way I felt. MY

TSH is back up to 37, and I just had it checked again, so I am awaiting the

results. I refuse to take Synthroid again...that stuff sucks! If you don't

mind my candidness. I won't take Pig, for reasons that it

is considered non kosher. So, I would consider Dr. Dane's products. I talked

with her, and I think she might have changed over to Sheep from Austrailia.

Which is what I would consider, as who knows the risks with Cows nowadays. So

anyway, I agree with you, my diet wasn't always a healthy Vegan diet, as I did

eat rice dream ice cream, etc. But, I am totally gluten-free...so I don't touch

the wheat stuff. I need to do more, I know that...but I am just scared to put

any animal in my body. Also, I have this hope that I will be cured, but I know

I have to work harder. This is a struggle.... ANyway, thanks for listening.

We have a lot in common. I want to have another baby too...but my levels won't

support a life within me. If I can't get the levels back, then perhaps I will

try the stuff from Dr. Dane, as a way to help support my body while working to

get pregnant and then hopefully wean of that as well.

Blessings to you!

Thanks for your response!

Stanziale <massageme429@...> wrote:

Hi , Veganism will not necessarily keep your weight down, it depends

on what you were eating. Some vegans are overweight from poor diet choices

(lots of candy and pasta). I take eco thyro, it is dried freezed thyroid tissue

from cows that live on organic farms in New Zealand. I was told not to exceed

more than 3 a day, but I couldn't listen to that after the pregnancy when

everything changed because I just wasn't feeling right and my goiter was too

large for my liking! So, now I am on 4 a day (spaced out) and I take them with

fish oils and a supplement called " rev it up " , a supplememt that helps support

thyroid gland function and health with L-Tyrosine. Don't get me wrong, I have

to workout atleast 6 days a week and eat very healthy (90% organice, no dairy,

no meat, very low sugar, I do eat fish though). My weight will go up in no

time. When I got pregnant I went from 128 to 139 in 2 weeks, now I am down to

134 (3 months after pregnancy) and a size 4-5. I

work so hard at staying fit if someone without a thyroid condition did what I do

they would be transparent. Hang in there!

and Irwin <familyirwin@...> wrote: Hey and

,

I too got pregnant and then miscarried...then diagnosed with hashi, was on

synthroid...gained a ton a weight, became vegan...not a big difference...finally

went off synthroid all together...lost a bunch of weight...now levels are

creeping back up...I don't want to go on any animal products...only I would

consider sheep...I won't touch pig.

Thanks for sharing your stories.

Blessings!

[Guest guest]

don't mean to but in .I found this

It is suppost to be all natural go to google

type inThyromine hope this helps

Re: Introducing myself

Hi ,

Thanks for your reply... I apologize, but I got a little lazy with my

details. In 1999, I lost a baby, then I gained a ton a weight. I was majorly

depressed, docs said it was due to the miscarriage. Then, they tested my

thyroid, and TSH was 40ish. Put me on Synthroid...still had a ton of

depression, weight gain, dry skin....reflux, constipation,

heartburn....fevers... the list goes on. Well, I was only 27 at the time, and

I thought I was dying. I fell flat on my face and cried out for healing. Then,

amazing things started to happen. I became introduced to a vegan diet,

cleansing, and things started to work for me. I did a cleanse for 30 days of

nothing but fresh veggie juices, whole foods, no sugar, no salt, no meat, no

dairy, and adding fiber shakes and herbs. I lost about 20 pounds initially,

then about 20 more later on following a good diet with lots of carrot juice,

went off all medication except synthroid..because docs said that would be a

lifetime of

treatment. AGHH! Oh well, I did great with that lifestyle, until I got

pregnant again, gained a bunch of weight, like 60 pounds. Had a healthy baby,

then I went to a natropath, and she told me to go off synthroid...and I started

juicing more, walking about 6 days a week for an hour each time, eating lots of

salads and fruits...did a liver flush, and after about 6 months I started

dropping weight like nothing! I was 200, and I got down to 130, and was a

size 4. Now, I am about a size 6-8, gained 20 pounds back, I am still walking

like 3 hours a day, and my TSH is going up and up. Of course, I didn't want to

check it while I was loosing the weight, because I thought it was great!

Afterall, I felt like a million bucks, so I just went by the way I felt. MY

TSH is back up to 37, and I just had it checked again, so I am awaiting the

results. I refuse to take Synthroid again...that stuff sucks! If you don't

mind my candidness. I won't take Pig, for reasons that it

is considered non kosher. So, I would consider Dr. Dane's products. I talked

with her, and I think she might have changed over to Sheep from Austrailia.

Which is what I would consider, as who knows the risks with Cows nowadays. So

anyway, I agree with you, my diet wasn't always a healthy Vegan diet, as I did

eat rice dream ice cream, etc. But, I am totally gluten-free...so I don't touch

the wheat stuff. I need to do more, I know that...but I am just scared to put

any animal in my body. Also, I have this hope that I will be cured, but I know

I have to work harder. This is a struggle.... ANyway, thanks for listening.

We have a lot in common. I want to have another baby too...but my levels won't

support a life within me. If I can't get the levels back, then perhaps I will

try the stuff from Dr. Dane, as a way to help support my body while working to

get pregnant and then hopefully wean of that as well.

Blessings to you!

Thanks for your response!

Stanziale <massageme429@...> wrote:

Hi , Veganism will not necessarily keep your weight down, it depends

on what you were eating. Some vegans are overweight from poor diet choices

(lots of candy and pasta). I take eco thyro, it is dried freezed thyroid tissue

from cows that live on organic farms in New Zealand. I was told not to exceed

more than 3 a day, but I couldn't listen to that after the pregnancy when

everything changed because I just wasn't feeling right and my goiter was too

large for my liking! So, now I am on 4 a day (spaced out) and I take them with

fish oils and a supplement called " rev it up " , a supplememt that helps support

thyroid gland function and health with L-Tyrosine. Don't get me wrong, I have

to workout atleast 6 days a week and eat very healthy (90% organice, no dairy,

no meat, very low sugar, I do eat fish though). My weight will go up in no

time. When I got pregnant I went from 128 to 139 in 2 weeks, now I am down to

134 (3 months after pregnancy) and a size 4-5. I

work so hard at staying fit if someone without a thyroid condition did what I

do they would be transparent. Hang in there!

and Irwin <familyirwin@...> wrote: Hey and

,

I too got pregnant and then miscarried...then diagnosed with hashi, was on

synthroid...gained a ton a weight, became vegan...not a big difference...finally

went off synthroid all together...lost a bunch of weight...now levels are

creeping back up...I don't want to go on any animal products...only I would

consider sheep...I won't touch pig.

Thanks for sharing your stories.

Blessings!

[Guest guest]

In a message dated 31/05/2006 18:45:32 GMT Standard Time, meadams@...

writes:

Thyromine

Hi Everyone

I am new to the site, aged 40 female from the UK, diagnosed with

Hypothyroidism in Sept 2005 so quite new, am on 100 mg Levothyroxin, just looked

at the

suggested website of Thyromine and went on Chat to ask if it can be taken

with the Levothyroxin and was referred to the health disclamer.......ie check it

out with your GP, anyone any ideas, only I guess my GP will say nope dont try

anything other than the Levothyroxin..........although am seeing the

Endocrinologist in July as GP has accepted that I am not getting better.!!!

So, nice in some ways to know I am not alone, but upsetting to see we arent

geting better (mind you that might be my depression, as I feel very down and

achy today)

So, anyone else out there.......aching, miserable, lacking in energy (30

mins of gardening today was my max) and with so many muscle aches or does anyone

have any info/research on fibromyalgia or upperlimb disorder being directly

linked to hypothyroidism (I dont much care about the weight gain - 14 lbs

increase in the 12 months and havent really tried to get rid of it as all I

really want is the pain to go!)

Best wishes

[Guest guest]

This sroty is sad and amazing... Ive heard things like this a lot...

the thing I don't get is HOW is it that she has RA now and not JRA. The " J "

reasoning has NOTHING to do with becoming an adult..... I don't understancd

why this fallacy exists b.c many doctors will tell their patients that but

its not the same disease and you don't become a RA just cause you turned

18.... =( always a fight somewhere

On 5/31/06, Gwen Orel <gwenorel@...> wrote:

>

> Hi there,

> on the rheumatoid arthritis group told me about this one so I

> joined. I was reading some of the articles posted and they are pretty

> incredible.

>

> I am 41, and was diagnosed with JRA at age 14. So I lived through

> that low-key approach to treating the disease and unfortunately and

> suffered severe deformities in hands and feet as a result. I really

> wish they had had the foresight to think differently-- I was going to

> be a classical violinist. I got as far as principal second of the New

> Jersey Youth Symphony at age 15, but after that the trigger fingers

> and swellings made it too difficult to improve. At age 18 I gave up

> the violin.

>

> In my early thirties I had MCP replacements on both hands and surgery

> on one foot. I'm hoping to take up the violin again if I can get a

> slight correction on one finger.

>

> I'm so glad they have a different attitude to treating this disease

> now-- especially for kids. Believe me it was not easy being hammered

> with this just as I was an adolescent. made me very self-conscious.

>

> Fortunately now it is pretty controlled with all the drugs and I think

> it is less active anyway. I was on enbrel but switched to Remicade

> for insurance reasons; however last week, one week after the infusion,

> I broke out in severe hives and angiodema so I don't know when or if I

> will try it again.

>

> Anyway, though they've reclassified me as RA since I'm not " J "

> anymore, just wanted to introduce myself.

>

> Any other adult " survivors " there?

>

> Gwen

>

>

>

>

>

>

>

>

>

[Guest guest]

Hello Gwen!!

Welcome to the group. This is an incredible group of folks. I am a 36 year

vet to JRA. I still call it JRA and have asked my docs to do the same. I firmly

believe the juvenile form is far different and whether I am 4 or 40 it is

still JRA. I am 40 and was diagnosed with scleroderma and JRA at age 4 and 5.

I have all joints involved and many deformities as well as surgeries,

including jaws, hands, feet, and hips. The knees, ankles, shoulders and left

hand

are awaiting their turns. if you ever want to chat drop me an email offlist.

Again welcome aboard!

Donna

[Guest guest]

Gwen,

Hi, and welcome to our group. I am so sorry to hear that your dreams were

dashed by the JRA. That saddens me so much. I am so thankful that there have

been so many new drugs developed in the past few years to help fight this.

Our kids today are so lucky.

My son has a lot of problems with this PIP and MCP joints. But

thankfully no damage yet ( and i hope and pray never) It does affect a lot

of daily tasks, but he does adapt.

Good luck with the violin again. I be tit will be a joy to you to be able to

play again.

hugs Helen and (8,systemic )

Subject: Introducing myself

Date: Wed, 31 May 2006 15:22:02 -0000

Hi there,

on the rheumatoid arthritis group told me about this one so I

joined. I was reading some of the articles posted and they are pretty

incredible.

I am 41, and was diagnosed with JRA at age 14. So I lived through

that low-key approach to treating the disease and unfortunately and

suffered severe deformities in hands and feet as a result. I really

wish they had had the foresight to think differently-- I was going to

be a classical violinist. I got as far as principal second of the New

Jersey Youth Symphony at age 15, but after that the trigger fingers

and swellings made it too difficult to improve. At age 18 I gave up

the violin.

In my early thirties I had MCP replacements on both hands and surgery

on one foot. I'm hoping to take up the violin again if I can get a

slight correction on one finger.

I'm so glad they have a different attitude to treating this disease

now-- especially for kids. Believe me it was not easy being hammered

with this just as I was an adolescent. made me very self-conscious.

Fortunately now it is pretty controlled with all the drugs and I think

it is less active anyway. I was on enbrel but switched to Remicade

for insurance reasons; however last week, one week after the infusion,

I broke out in severe hives and angiodema so I don't know when or if I

will try it again.

Anyway, though they've reclassified me as RA since I'm not " J "

anymore, just wanted to introduce myself.

Any other adult " survivors " there?

Gwen

[Guest guest]

Hi Gwen,

I am age 36 dx with JRA (still call it JRA) at age 3.

I have lots of disfigurement - several surgeries (Knuckles on both hands are

artificial, both ankles are fused) and eventually knees and hips will be

artficial.

My hubby of 17 yrs Greg, and my 5.5 year old daughter Destiny live in Alabama.

Look forward to getting to know you.

love, prayers, and blessings

( age 36 - poly since age 3 )

[Guest guest]

Gwen,

My puters been down since May 12th and don't mean to repeat anything but....

You will always be JRA and not RA unless you were RF positive back when you

were 15.If that was the case then it is likely that you developed RA as an

adolescent.

JRA or JIA as it is now called, is totaly differant.Your rheumy needs to be

educated on the differance because it is most definately differant.

I'm glad sent you our way.It is always nice having an adults

perspective on the whole thing and knowing and hearing that all our children

will be

ok,heck better then ok no matter what the outcome.

And yes the future just gets brighter and brighter and hopefuly no child will

suffer from that mean,ole,Arthur kid.

Hugs

Becki and 7 systemic

[Guest guest]

>Hello ,

My sympathies--I've got fibromyalgia too, caused by hypoT, in my case

undiagnosed for too many years. But I'm older than you, so in even

worse shape. Ten years ago I might have tried 30 minutes of

gardening, but not anymore. I do understand about the pain. I really

think you are going to require something with T3 in it. You might

want to read www.drlowe.com as this was a site that someone sent me a

couple of years ago. I tried T3, then went up to four grains of

Armour, and when none of these helped the fibro, I bought Dr. Lowe's

book and have got an understanding hormones doctor who is allowing me

to titrate upwards on T3. I'd love to be able to tell you it's

working, but so far I have not broken through the pain. I'm currently

taking huge amounts of T3 but it seems like I'm not taking anything

at all. I have faith that it will ultimately work though. If you can

find a Dr. who will give T3, you should also have your adrenals

checked, as there's a good chance they are low. Mine are, and I'm

also taking low-dose Cortef.

Having written all this, I know your main problem is going to be

finding a Dr. who can think past plain T4.

Gail

> Hi Everyone

>

> So, anyone else out there.......aching, miserable, lacking in

energy (30

> mins of gardening today was my max) and with so many muscle aches

or does anyone

> have any info/research on fibromyalgia or upperlimb disorder being

directly

> linked to hypothyroidism (I dont much care about the weight gain -

14 lbs

> increase in the 12 months and havent really tried to get rid of it

as all I

> really want is the pain to go!)

>

> Best wishes

>

>

>

>

>

[Guest guest]

Thanks Gail

So I read that T3 seems to be well recommended by many of you and yet many

of the messages also say they doesn't appear to be any improvement. Announced

last week here in the UK that Diclophenic and NSAIDS users have a greater

chance of heart failure - and this is all that seems to dull the pain. And all

this after the GP said you will feel better after 2 weeks. Mind you I have

sussed out one thing: Take the lyvothyroxine with a long glass of water and

eat nothing else for an hour......avoid the taking of vitamins etc and

certainly calcium and probiotic drinks until approx 4 hours later......and the

GP

didnt know that either.

Would welcome other people's thoughts and ideas about the aches and pains I

am experiencing in my neck and arms

Bless you all

[Guest guest]

Thanks Gail

So I read that T3 seems to be well recommended by many of you and yet many

of the messages also say they doesn't appear to be any improvement. Announced

last week here in the UK that Diclophenic and NSAIDS users have a greater

chance of heart failure - and this is all that seems to dull the pain. And all

this after the GP said you will feel better after 2 weeks. Mind you I have

sussed out one thing: Take the lyvothyroxine with a long glass of water and

eat nothing else for an hour......avoid the taking of vitamins etc and

certainly calcium and probiotic drinks until approx 4 hours later......and the

GP

didnt know that either.

Would welcome other people's thoughts and ideas about the aches and pains I

am experiencing in my neck and arms

Bless you all

[Guest guest]

Hi - not sure whose posts you have read that T3 doesn't help but

for me it has been nothing short of miraculous.

I found out about it nearly four years ago - within two weeks my severe

depression was gone - never to return except for the occasional low day.

I also had a debilitating wrist injury - this cleared up too and

subsequently whenever I would take less or no T3 this injury would begin

to hurt again.

What you might be reading as failure of treatments here on the board, is

that HypoT is a complex condition - often we need more than thyroid

hormones to feel well again - this may be due in part to most of us

being untreated for many years so other complications developed. Small

steps is how it usually works.

also many people simply don't get even enough Thyroid hormone - its no

use taking 5mcg of T3 and expecting miracles - I needed 180mcg per day

at the time!

I don't believe in antidepressants at all - or any drugs for that matter

- all my issues are gradually resolving using only bio-identical

hormones and good diet and plenty of supplements - oh and a healthy

change of attitude to my life as well.

Bless you back,

Kerry

Re: Re: Introducing myself

Thanks Gail

So I read that T3 seems to be well recommended by many of you and yet

many

of the messages also say they doesn't appear to be any improvement.

Announced

last week here in the UK that Diclophenic and NSAIDS users have a

greater

chance of heart failure - and this is all that seems to dull the pain.

And all

this after the GP said you will feel better after 2 weeks. Mind you I

have

sussed out one thing: Take the lyvothyroxine with a long glass of water

and

eat nothing else for an hour......avoid the taking of vitamins etc and

certainly calcium and probiotic drinks until approx 4 hours

later......and the GP

didnt know that either.

Would welcome other people's thoughts and ideas about the aches and

pains I

am experiencing in my neck and arms

Bless you all

[Guest guest]

,

I just read Kerry's reply and I agree with her, in that for those of

us who have had hypoT undiagnosed or undertreated for many years,

other, secondary problems can also develop. Like Kerry, I am taking

bio-identical hormone creams. And since my cortisol is low, I also

take Cortef. Plus of course the requisite vitamins. I am currently

taking 225 mcg of timed release T3 twice daily (total of 450 mcg/day)

and I will continue titrating upwards until either the fibro gets

better, or I go hyperT. So far neither has happened. The very fact

that I take 450 mcg T3 daily, and have no ill effects from it, says

something. So, for some of us, it does require very large amounts to

break through the cellular resistence to thyroid hormone that seems

to result in fibromyalgia. I wouldn't say there has been no

improvement, as there are times during the day, some days, when I

know I feel slightly better. When I do get rid of this fibro (and I

have a lot of confidence I will), I'll be sure to let everybody know.

Gail

>

> Thanks Gail

>

> So I read that T3 seems to be well recommended by many of you and

yet many

> of the messages also say they doesn't appear to be any

improvement. Announced

> last week here in the UK that Diclophenic and NSAIDS users have a

greater

> chance of heart failure - and this is all that seems to dull the

pain. And all

> this after the GP said you will feel better after 2 weeks. Mind

you I have

> sussed out one thing: Take the lyvothyroxine with a long glass of

water and

> eat nothing else for an hour......avoid the taking of vitamins etc

and

> certainly calcium and probiotic drinks until approx 4 hours

later......and the GP

> didnt know that either.

>

> Would welcome other people's thoughts and ideas about the aches and

pains I

> am experiencing in my neck and arms

>

> Bless you all

>

>

>

>

>

[Guest guest]

>

> Hi - not sure whose posts you have read that T3 doesn't help but

> for me it has been nothing short of miraculous.

>

> I found out about it nearly four years ago - within two weeks my severe

> depression was gone - never to return except for the occasional low day.

> I also had a debilitating wrist injury - this cleared up too and

> subsequently whenever I would take less or no T3 this injury would begin

> to hurt again.

>

> What you might be reading as failure of treatments here on the board, is

> that HypoT is a complex condition - often we need more than thyroid

> hormones to feel well again - this may be due in part to most of us

> being untreated for many years so other complications developed. Small

> steps is how it usually works.

>

> also many people simply don't get even enough Thyroid hormone - its no

> use taking 5mcg of T3 and expecting miracles - I needed 180mcg per day

> at the time!

>

> I don't believe in antidepressants at all - or any drugs for that matter

> - all my issues are gradually resolving using only bio-identical

> hormones and good diet and plenty of supplements - oh and a healthy

> change of attitude to my life as well.

>

> Bless you back,

> Kerry

>

>

This was a truly uplifting post!!!! Often times it takes a while to

figure out the proper dosage (been there, done that for years). I am

only beginning to look into a more holistic approach as opposed to

popping a pill every day. Thanks for the info.....Amy

>

> Re: Re: Introducing myself

>

>

>

> Thanks Gail

>

> So I read that T3 seems to be well recommended by many of you and yet

> many

> of the messages also say they doesn't appear to be any improvement.

> Announced

> last week here in the UK that Diclophenic and NSAIDS users have a

> greater

> chance of heart failure - and this is all that seems to dull the pain.

> And all

> this after the GP said you will feel better after 2 weeks. Mind you I

> have

> sussed out one thing: Take the lyvothyroxine with a long glass of water

> and

> eat nothing else for an hour......avoid the taking of vitamins etc and

> certainly calcium and probiotic drinks until approx 4 hours

> later......and the GP

> didnt know that either.

>

> Would welcome other people's thoughts and ideas about the aches and

> pains I

> am experiencing in my neck and arms

>

> Bless you all

>

>

>

>

[Guest guest]

Hi Iam Debbie

iam new to the site to and iam 52 living in new york I have had this for about

3 years and I have to say as long as iam on my meds and the dose is right the

pain does subside it is still there but not so bad I can take advil to handle

the rest . yes Iam like you glad to know Iam not alone ! the pain and the

depression and lack of sex drive really suck Just ask my husband lol

thank god I have a good one he understands most of the time that its not my

fault I feel this way .

if ya ever need to vent Iam here lord knows we all have that feeling

Debbie

__________________________________________________

[Guest guest]

Thanks everyone for your replies, much appreciated

In a really bad way at the moment with very bad pain in neck,arms and back

so visited GP today and yippee another bloodtest but this time testing for

polymyalgia rheumatica, at least I can say that after nearly a year of going to

the GP with aches and pains, he is listening but I wonder how much he would

have listened if I hadnt found out as much as I could about this condition

like on groups like this. British medical information about HypoT actually

says

full recovery quite quickly following the taking of thyroxin......and as we

all know thats 'pants' - blood results should be back in a week and then we

might find I actually have a secondary condition.........and I can start

living again.......unless of course the steroids cause me even more problems

aahhhhhhhh!!!!

x

[Guest guest]

Well hello ,

I was two years younger than you when I had my first hip put in. I first

had problems with my arthritis when I was 22.

You will find many youngies on this list.

I'm an Aussie. There are a couple of southern hemisphere people on here, so

welcome to the list.

Of course the reason why we southern hemisphere people are so bright is that

all the blood rushes to our brains because we hand upside down.

Anyway, welcome

Aussie Margaret

RTHR 1990 revised 2004

Introducing myself

| Hi

| My name is and I'm 41 next month and live in Wellington, New

| Zealand. I have had a fairly rare form of inflammatory arthritis

| (called 'reactive arthritis') for 13 years now, off and on, but over

| the last 2 years I have had an aggressive flare up that has resulted

| in damage to my right hip. (And maybe also my right knee and elbow -

| I am having an MRI soon, to check that out.)

|

| I have 'secondary osteoarthritis' of the hip and an MRI and xray show

| joint space narrowing, a 13mm cyst (geode), frayed cartilege and

| general degeneration and so I am looking at having a total hip

| replacement done very soon. The pain increased over 6 months and is

| terrible: I am currently managing thanks to slow-release morphine and

| tramadol (for 'break-through' pain).

|

| This hip replacement business is kind of scary, especially at my age.

| What really shocked me though, was that my hip is not a joint that

| was ever affected by my inflammatory arthritis. (That is only in my

| knees, elbow and lower back.)

|

| I am so pleased to have found your group! I am lucky to have a

| brilliant husband (we just had our 20th anniversary) and a gorgeous

| nearly-13 year old daughter, so am really blessed. I work part-time

| as an archivist at NZ's government archives - a job I love.

|

| Look forward to talking with you all,

|

|

Send instant messages to your online friends http://au.messenger.

[Guest guest]

G'day from the Windy City (For our northern hemisphere members, Wellington NZ is notorious for its winds!)

Welcome to the group! We are a friendly and happy bunch with lots of excellent hints, advice and support ... plus the occasional off-topic banter. I'm sorry to hear about the degre of pain which you are currently experiencing, but you will find a number of people here of your age who have had replacements at your age and even younger.

Your job at the archives must be fascinating. I have done some archival research and the mysticism of the white gloves and "pencils only" policy makes it a stimulating time.

Every best wish for some good medical advice to get you some speedy relief.

Aussie (Replacement virgin but bad right hip)>Well hello ,>>I was two years younger than you when I had my first hip put in. I first>had problems with my arthritis when I was 22.>>You will find many youngies on this list.>>I'm an Aussie. There are a couple of southern hemisphere people on here, so>welcome to the list.>>Of course the reason why we southern hemisphere people are so bright is that>all the blood rushes to our brains because we hand upside down. >>Anyway, welcome>>Aussie Margaret>RTHR 1990 revised 2004>> Introducing myself>>>| Hi>| My name is and I'm 41 next month and live in Wellington, New>| Zealand. I have had a fairly rare form of inflammatory arthritis>| (called 'reactive arthritis') for 13 years now, off and on, but over>| the last 2 years I have had an aggressive flare up that has resulted>| in damage to my right hip. (And maybe also my right knee and elbow ->| I am having an MRI soon, to check that out.)>|>| I have 'secondary osteoarthritis' of the hip and an MRI and xray show>| joint space narrowing, a 13mm cyst (geode), frayed cartilege and>| general degeneration and so I am looking at having a total hip>| replacement done very soon. The pain increased over 6 months and is>| terrible: I am currently managing thanks to slow-release morphine and>| tramadol (for 'break-through' pain).>|>| This hip replacement business is kind of scary, especially at my age.>| What really shocked me though, was that my hip is not a joint that>| was ever affected by my inflammatory arthritis. (That is only in my>| knees, elbow and lower back.)>|>| I am so pleased to have found your group! I am lucky to have a>| brilliant husband (we just had our 20th anniversary) and a gorgeous>| nearly-13 year old daughter, so am really blessed. I work part-time>| as an archivist at NZ's government archives - a job I love.>|>| Look forward to talking with you all,>|>| >>Send instant messages to your online friends http://au.messenger.>>>

[Guest guest]

Hi Margaret

Thanks so much for your encouragement - what a nice group of people you are!

My family are visiting Melbourne next week (my husband does quite a bit of

work there) and I am looking forward to some of your lovely, warm Aussie

weather.

Best wishes,

[Guest guest]

wrote "G'day from the Windy City (For our northern hemisphere members, Wellington NZ is notorious for its winds!)"

Hi

You are right - Wellington is a notoriously windy place. My husband and I have often thought that we could easily generate our own electricity if we put a wind turbine in the backyard! Plus, we peg our washing very tightly on the line otherwise it ends up in the neighbour's section...

Being an archivist is a fun job. If any of you have ancestors that emigrated to New Zealand, email me privately and I'll see if we have any record of them at work.

Best wishes,

[Guest guest]

Hi , I just wanted to wish you luck and welcome to the group the people hear are nice and very helpful I wish you the best of luck and have a nice day :-) Susiegreencatzoe <wjkh@...> wrote: HiMy name is and I'm 41 next month and live in

Wellington, New Zealand. I have had a fairly rare form of inflammatory arthritis (called 'reactive arthritis') for 13 years now, off and on, but over the last 2 years I have had an aggressive flare up that has resulted in damage to my right hip. (And maybe also my right knee and elbow - I am having an MRI soon, to check that out.) I have 'secondary osteoarthritis' of the hip and an MRI and xray show joint space narrowing, a 13mm cyst (geode), frayed cartilege and general degeneration and so I am looking at having a total hip replacement done very soon. The pain increased over 6 months and is terrible: I am currently managing thanks to slow-release morphine and tramadol (for 'break-through' pain). This hip replacement business is kind of scary, especially at my age. What really shocked me though, was that my hip is not a joint that was ever affected by my inflammatory arthritis. (That is only in my knees,

elbow and lower back.)I am so pleased to have found your group! I am lucky to have a brilliant husband (we just had our 20th anniversary) and a gorgeous nearly-13 year old daughter, so am really blessed. I work part-time as an archivist at NZ's government archives - a job I love.Look forward to talking with you all,