Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't " go with the flow " very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention, but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot. Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though. SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI " for free " . As an adult though, SSI is not so income dependent, although it is somewhat. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working). I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I know it can be hard, I used to put myself under real pressure to have perfect family outings, then when it all went wrong, son shouting, husband p**sed off, other people staring, I would loose the plot and just stick us all back in the car and go home. Now I have taken a step back, I ask my son what he would rather do, to give him the choice, I ask my husband if he wants to come, cause somethimes its easier if he doesn't and other people, I don't care what they think, if they are staring at us I ask them what it is they they are staring at, then they become the embarrassed party. From: r_woman2 <me2ruth@...>Subject: ( ) Re: Hyperactive? Also SSI Date: Saturday, 22 August, 2009, 4:40 PM >> Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies :)My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention, but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though. SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". As an adult though, SSI is not so income dependent, although it is somewhat. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > > > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't " go with the flow " very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention, > but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot. > > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI " for free " . > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working). > > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Oh, this was so my son at 7, 8, 9,..... We finally figured out my son was hungry or tired for pretty much any meltdown. Once he was about 11, 12, 13 we finally figured that out. As soon as he started acting nuts we would very quickly remind him that the last 15 times he acted nuts it was because he was hungry and wouldn't he rather just stop acting nuts and eat and then feel better again, or he could just simply choose to act nuts and deal with the ugly consequences. As he got older he finally got enough self control, barely, to agree to this, save face, eat, and then generally would feel better. Now, at almost 14, when he is melting down or generally just completely irrational and nuts, HE will stop and grumply yell "I'm hungry!" and go eat instead of carrying on. We can even point out to him that "you are acting crazy right now, stop and eat because you must be hungry" and he actually will do it!!! We are on 20 mg Abilify, 50 mg Zoloft, and 2 mg Tenex per day. The meds definitely help. We have tried to get rid of them over the years, slowly, but it isn't pretty without them..... We do the same thing with outings. Husband can come or not, short outings, try to make plans that will probably be successful for all. It is so much work though and so much coordinating. ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 My son 6 isn't on an meds, is obsessed with vehicles, we went to the shops and he spotted a toy cement mixer, all the way round the shops he kept going on about wanting the cement mixer, when we said no he started screaming after about an hour of screaming I finally relented and got the toy, I turned to my husband and said we could have just saved ourselves all that by spending £3 and buying the digger in the first place! It is obvious the usual discipline doesn't work with him, so now if we are out and he's not asking for anything outrageous we get him something on the agreement he doesn't ask for anything else and behaves well for the rest of the trip, and on the understanding that misbehaving will result in the toy being taken away. So we spend a small amount of money and he is really careful not to misbehave. I don't know how this would work when you have more children, surely they would be happy for your Aspie to receive a small toy and to get their day out, you could point out that they are enjoying the trip and chances are your Aspie is not. From: m.snyder78 <m.snyder78@...>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Lorraine....this is what I basically did with my son....but I think in the long run it backfires....and I not saying this to tell you not to do it....but now I have troubles with my son...I think I needed to say NO to him more often...I know he is my only child and I could and did do what you are doing...but it didn't work out good for my son....so be careful. I am not judging or telling you what to do ...none of us have that right and none of knows each others situation....just wanted you to know this....my son is 14 now. I regret not being stronger and making him learn NO. I gave in a lot because I hate fighting and his ragged on me and yes, it was easier and yes he is my only child and yes I wanted him to be Happy. But now I look back and say...omg...I did this. It has taken a while and we have a ways to go...but he is getting better with the NO. A lot of times when we go out to say Targets...I tell him ahead of time...I am not buying any video games or cds or anything...do you understand. The last time we went, he had his BF with him...of course he tried to talk me into a game ...I stuck to my guns....he marched off all MAD and Sulked...even with his friend there ...he didn't care....but by the time we got home ..he changed and was fine. I keep doing this and it is getting a little bit better. I even do this when he wants to go to BK and I had not planned on it or he has not been good...I tell him no. I want him to learn that he can't have his way and also, if he treats me poorly I am definitely not going to treat him nice by getting him BK or his Monster drink or whatever. Now as far as medicine...my son who is 14 ....is on Geodon for anger....it has helped A LOT. Don't get me wrong...he still can get angry but not like before and when he does get angry and yells at me...usually he comes back a little later and apologizes which is such a BIG step for him. He is also on adderall for ADHD and a small dose of prozac for depression. jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I have four kids, three that have been diagnosed with aspergers (boys ages 11 and 9 year old twins). I have tried every variation of mediacation on the market for my kids symptoms trying to figure out what works best for my kids. Their current medication has dramatically improved their quality of life! Two of my boys are taking 20mg of Adderall and one takes the Daytrana patch as he won't swallow pills. On their medication, they have impulse control, are able to focus on school work (all of their grades improved and all three are currently straight A students), meltdowns and uncontrollable outbursts are now rare. Off their medication, they are immediately sent home from school, can't focus or stay on task and have frequent meltdowns. Your son is on abilify, an antidepresant, and clonidine which docs prescribe to help with meltdowns. Those types of drugs didn't do anything positive for my kids.They actually acted worse on them! I especially found abilify to e a very bad drug. The only drugs that have worked well for my kids have been the ADHD drugs. My kids are all very quirky, but meltdowns and unmanageable outbreaks in public are now far and few between. My kids will remind me if I ever forget to give them their medication because they are unhappy without it now. They see a positive difference in themselves as well. I also noticed that my kids needed a stronger prescription when they were younger as their coping skills get better and better the older they get. My boys are all very different with different issues but all three of them are significantly better with their medication. San Ramon, California From: m.snyder78 <m.snyder78@...> Sent: Monday, August 24, 2009 5:27:42 AMSubject: ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Debra, This is such great advice. I will try it out next time my 6 yr old heads down the meltdown path. It makes perfect sense that a child would be irritable when hungry or tired! I have noticed my son is more prone to a meltdown if he gets overly hot and sweaty. sweats a lot, so I have him come inside pretty often to cool off before going back out to play. He is also on medication, which helps with the aggression and anger but does not resolve it or help get to the cause of the anger. The anger/aggression is so hard to manage, especially since the littlest thing can spark a fit! He is getting stronger and stronger, which concerns me a great deal as a single parent. Just last week, he hit me so hard in the side, I had to get x-rays done to make sure nothing was broken. The people staring really used to bug me, and there are times it still bothers me though I am trying to ignore it. Mostly, its the people who think they are whispering amongst themselves that get under my skin the most. Just last night, was happily running around before we left McDs indoor playground, and I overheard a couple talking about what they would do if he were their child. "That boy needs some discipline.. " "I wouldn't tolerate that for a second", etc. Just as I was about to burst, the guy got in line behind us for refills. He said "Looks like you could use a belt for your little problem, maam." I couldn't resist returning his sarcasm..."A belt for my problem? Oh no, are these darn pants sagging again? How nice of you to let me know!" I wanted to bless him out or educate him, but it felt better to be oblivious to his intentions. Maybe he thought I was an idiot, but I couldn't care any less. It would have been pointless to explain that was over stimulated as people assume it is an excuse, which it isn't. Im glad this group is here...I don't post much at all, but read each one. We are still in the diagnostic phase, but I can relate so much to the stories, behaviors and issues with the school systems. One day, will get the help he needs and deserves. ((hugs))) _______________________~Ashleigh~ "So you see! There's no end to the things you might know,Depending how far beyond Zebra you go!" ~Dr. Seuss www.picturetrail.com/ashleigh1976 ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 Yes, I agree ...my son is on Adderall and Geodon (at night for anger). When he is not on his medicine...he friends tell him..."Go take your medicine" ...they can tell right away. And, my son takes it too because he doens't want to lose his friends...off his meds. he can be soooooooooooooooooooooooooooooo annoying..he gets too silly, can not focus, clowns around too much..talks to much ....and people get fustrated with him..... The doctor wanted my son off the adderall for the summer and I said sounds nice but he will lose the two friends he has and I will have a nervous breakdown....so we compromsied ...kept him on for 5 days and two days break ...but I would chose the days of the breaks ...like monday and tuesday when no one was around.... And, you are right...as he is getting older and more mature...he is better at coping and controlling himself....so maybe one day he won't need Adderall...all I know is that he would not be able to function in school w/out it and he definitely would have lost his two friends. jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: Menache <laura.menache@...>Subject: Re: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 1:56 PM I have four kids, three that have been diagnosed with aspergers (boys ages 11 and 9 year old twins). I have tried every variation of mediacation on the market for my kids symptoms trying to figure out what works best for my kids. Their current medication has dramatically improved their quality of life! Two of my boys are taking 20mg of Adderall and one takes the Daytrana patch as he won't swallow pills. On their medication, they have impulse control, are able to focus on school work (all of their grades improved and all three are currently straight A students), meltdowns and uncontrollable outbursts are now rare. Off their medication, they are immediately sent home from school, can't focus or stay on task and have frequent meltdowns. Your son is on abilify, an antidepresant, and clonidine which docs prescribe to help with meltdowns. Those types of drugs didn't do anything positive for my kids.They actually acted worse on them! I especially found abilify to e a very bad drug. The only drugs that have worked well for my kids have been the ADHD drugs. My kids are all very quirky, but meltdowns and unmanageable outbreaks in public are now far and few between. My kids will remind me if I ever forget to give them their medication because they are unhappy without it now. They see a positive difference in themselves as well. I also noticed that my kids needed a stronger prescription when they were younger as their coping skills get better and better the older they get. My boys are all very different with different issues but all three of them are significantly better with their medication. San Ramon, California From: m.snyder78 <m.snyder78 (DOT) com> Sent: Monday, August 24, 2009 5:27:42 AMSubject: ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 We saw the psyiatrist this afternoon. She suggested upping the abilify again to 20 mg which I said I didn't want to do since we upped it to 15 mg in May and had an awful summer where he had rage meltdowns everytime he didn't get his way. Of course we added the celexa in May too so maybe it also contributed to his anger. So we decided to try Risperdal. .05 in half for a week with the Abilify 7.5 in the PM. Then keep on the celexa. Plus keep the clonidine .01 in half twice a day. We did try the ADHD meds Adderall XR, Concerta, and Srattera. They all seemed to have opposie effects on him and he was more anxious, tics, and couldn't sleep. Plus he got diareah and encopresis after the srattera. I just wish there was a med that would help with his anxiety, and anger and tics. My husband does well on prozac so I don't get why they won't try it. This afternoon he wanted to rent a game, I said later, he ran out of the car, down the street, I had to chase him. Twenty minutes later I convinced him to get in. Then he wouldn't seat belt to the Dr. He said he wanted me to run him over, that he never wanted to see me again. All this because I wouldn't give in. My mom said part of his problem is we gave in to his tantrums for so long and bought him what he was obsessing over. Now he is manupulating us to get what he wants. I have never seen a 7 yr old kid who can tantrum to get what he wants like he does. Then the school always said he was so good? How could that be? --- In , Menache <laura.menache@...> wrote: > > I have four kids, three that have been diagnosed with aspergers (boys ages 11 and 9 year old twins). I have tried every variation of mediacation on the market for my kids symptoms trying to figure out what works best for my kids. Their current medication has dramatically improved their quality of life! Two of my boys are taking 20mg of Adderall and one takes the Daytrana patch as he won't swallow pills. On their medication, they have impulse control, are able to focus on school work (all of their grades improved and all three are currently straight A students), meltdowns and uncontrollable outbursts are now rare. Off their medication, they are immediately sent home from school, can't focus or stay on task and have frequent meltdowns. Your son is on abilify, an antidepresant, and clonidine which docs prescribe to help with meltdowns. Those types of drugs didn't do anything positive for my kids.They actually acted worse on them! I > especially found abilify to e a very bad drug.  The only drugs that have worked well for my kids have been the ADHD drugs. My kids are all very quirky, but meltdowns and unmanageable outbreaks in public are now far and few between. My kids will remind me if I ever forget to give them their medication because they are unhappy without it now. They see a positive difference in themselves as well. I also noticed that my kids needed a stronger prescription when they were younger as their coping skills get better and better the older they get.  My boys are all very different with different issues but all three of them are significantly better with their medication. > > San Ramon, California > > > > > ________________________________ > From: m.snyder78 <m.snyder78@...> > > Sent: Monday, August 24, 2009 5:27:42 AM > Subject: ( ) Re: Hyperactive? Also SSI > >  > Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and > Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > > > > > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't " go with the flow " very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like > inattention, > > but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot. > > > > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI " for free " . > > > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working). > > > > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I have often wondered if we would see a greater benefit from Daytrana rather than Vyvanse. He is currently on 50 mg which seems like a high dose to me. He also takes Remeron for his anxiety and Risperdal for the anger. I really dislike the reports I read about Risperdal, but we have tried tapering him off and the aggression increases tenfold. Has anyone successfully moved off of multiple medications to a single med? ~Ash _______________________~Ashleigh~ "So you see! There's no end to the things you might know,Depending how far beyond Zebra you go!" ~Dr. Seuss www.picturetrail.com/ashleigh1976 ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 I'll take on board you comments, because obviously your son is more than twice as old as mine, perhaps I am setting myself up for a fall. Will need to think about this one. lol There must be a big difference between medical practices is the US and UK, I've been to a couple of Dr's with my son, but they never even mention medication for my son. I think I am fortunate, my son will shout and scream, but so far has not been violent, and he calms down relatively quickly, so I don't think I would at this stage pursue medication to help him. But it is good to read you guys comments on what works for your kids. From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing.. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time.. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into.. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that.. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 oh...Lorraine...I am not advocating everyone medicate...but my son is also ADHD...and that is where I found for him that he needs medication...which we started when he was in 3rd grade....and that was all he had until 6th grade when his Poppy was dying we added prozac because his depression was so bad and he would not leave the house...Poppy had lived with us for 12 years.... We just went to the psychiatrist and he is weaning him off the prozac ....Geodon is for his anger which he mainly shows only at home and a couple time at school...he is angry because people don't undertand him and kids tease him....I think I would be angry too..he doesn't have meltdowns anymore like he did when he was little ...instead he has the anger which is more like throwing something or punching the wall...or cabinet ..he has never punched or hurt anyone...and mostly it is because of his lack of control and not knowing how to handle his anger which we are working on thru his Mobile Therapist (Mt) and his therapeutic staff support (TSS) which are services we receive thru a program offered here in PA, USA ...called 504 or Wrap Around Services. He also has a Behavior Services Casemanager (BSC) who oversees everyone on his case. ... Jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing.. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time.. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into.. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that.. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing.. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time.. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into.. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that.. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 My son was on Risperdal ....I hated it ...and it did not do much for him...or his anger... We took him off that and just recently have tried Geodon...for anger and it really has helped him. He is also on Adderall for his ADHD and he truly needs this to function at school...we are weaning him off the prozac and he no longer takes Xanax for anxiety....hopefully he will be down to two pills ...Adderall and Geodon and I do see him off medicine as he matures and gets older....but I think he will be on adderall for a while ..at least while he is in school... Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: Ashleigh Crane <ashleighcrane@...>Subject: Re: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 10:35 PM I have often wondered if we would see a greater benefit from Daytrana rather than Vyvanse. He is currently on 50 mg which seems like a high dose to me. He also takes Remeron for his anxiety and Risperdal for the anger. I really dislike the reports I read about Risperdal, but we have tried tapering him off and the aggression increases tenfold. Has anyone successfully moved off of multiple medications to a single med? ~Ash ____________ _________ __~Ashleigh~ "So you see! There's no end to the things you might know,Depending how far beyond Zebra you go!" ~Dr. Seuss www.picturetrail. com/ashleigh1976 ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 My son was like that too ..maybe not as extreme...but he was good in school and a different kid at home...I think it happens for a lot of reasons... 1. at home ...they are safe and know you will love him no matter what 2. he has gotten use to the routine...tantrum ...and got what I want 3. it maybe he is so overloaded. stimulated, hungry, tired and doesn't know how to handle the situation.... There are so many reason why our kids have meltdowns and act they way they do...just try to figure the triggers and work on ways to teach him how to calm himself. I find that as my son gets older the meltdowns have been way less... I also know that when I did stop giving into him ....which I did...the tantrums/meltdowns and behavior got Worse before it started getting better. All kids are different ...but this is what I discovered with my child. jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: m.snyder78 <m.snyder78@...>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 10:11 PM We saw the psyiatrist this afternoon. She suggested upping the abilify again to 20 mg which I said I didn't want to do since we upped it to 15 mg in May and had an awful summer where he had rage meltdowns everytime he didn't get his way. Of course we added the celexa in May too so maybe it also contributed to his anger. So we decided to try Risperdal. .05 in half for a week with the Abilify 7.5 in the PM. Then keep on the celexa. Plus keep the clonidine .01 in half twice a day. We did try the ADHD meds Adderall XR, Concerta, and Srattera. They all seemed to have opposie effects on him and he was more anxious, tics, and couldn't sleep. Plus he got diareah and encopresis after the srattera. I just wish there was a med that would help with his anxiety, and anger and tics. My husband does well on prozac so I don't get why they won't try it. This afternoon he wanted to rent a game, I said later, he ran out of the car, down the street, I had to chase him. Twenty minutes later I convinced him to get in. Then he wouldn't seat belt to the Dr. He said he wanted me to run him over, that he never wanted to see me again. All this because I wouldn't give in. My mom said part of his problem is we gave in to his tantrums for so long and bought him what he was obsessing over. Now he is manupulating us to get what he wants. I have never seen a 7 yr old kid who can tantrum to get what he wants like he does. Then the school always said he was so good? How could that be? > > >> > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like> inattention,> > but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > > > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > > > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: m.snyder78 <m.snyder78@...>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 10:11 PM We saw the psyiatrist this afternoon. She suggested upping the abilify again to 20 mg which I said I didn't want to do since we upped it to 15 mg in May and had an awful summer where he had rage meltdowns everytime he didn't get his way. Of course we added the celexa in May too so maybe it also contributed to his anger. So we decided to try Risperdal. .05 in half for a week with the Abilify 7.5 in the PM. Then keep on the celexa. Plus keep the clonidine .01 in half twice a day. We did try the ADHD meds Adderall XR, Concerta, and Srattera. They all seemed to have opposie effects on him and he was more anxious, tics, and couldn't sleep. Plus he got diareah and encopresis after the srattera. I just wish there was a med that would help with his anxiety, and anger and tics. My husband does well on prozac so I don't get why they won't try it. This afternoon he wanted to rent a game, I said later, he ran out of the car, down the street, I had to chase him. Twenty minutes later I convinced him to get in. Then he wouldn't seat belt to the Dr. He said he wanted me to run him over, that he never wanted to see me again. All this because I wouldn't give in. My mom said part of his problem is we gave in to his tantrums for so long and bought him what he was obsessing over. Now he is manupulating us to get what he wants. I have never seen a 7 yr old kid who can tantrum to get what he wants like he does. Then the school always said he was so good? How could that be? > > >> > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like> inattention,> > but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > > > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > > > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Hi Janice, It is interesting to read that you all get different help from us in the UK, my sons Dr basically said we'll put him forward for a diagnosis, but nothing will change as there is no support or treatment. So we are just left to muddle through. I gave my son an introduction letter for his teacher, to which I have had no response, so I don't know her thoughts on the matter. I have spoke to the head as Gregor is being bullied, she said we as a school have not seen this, I said I took a couple of days off work and watched the playground, he was being chased and hit by the same group of children everyday, I asked if she could make sure the adult that is supervising the playground was aware of Gregors condition and to watch as he is a bit more vunerable, she said that wouldn't be possible, if anything is happening to him he will need to tell us, I said because he's an Aspie he won't tell, he'll suffer in silence. She just looked at me blankly. I am trying to organise a meeting with the school, but everything just seems to take months, its so frustrating, just want his school to be supportive. And by the sounds of it we have the teenage yrs to look forward to, yipee! From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 10:11 PM We saw the psyiatrist this afternoon. She suggested upping the abilify again to 20 mg which I said I didn't want to do since we upped it to 15 mg in May and had an awful summer where he had rage meltdowns everytime he didn't get his way. Of course we added the celexa in May too so maybe it also contributed to his anger. So we decided to try Risperdal. .05 in half for a week with the Abilify 7.5 in the PM. Then keep on the celexa. Plus keep the clonidine .01 in half twice a day. We did try the ADHD meds Adderall XR, Concerta, and Srattera. They all seemed to have opposie effects on him and he was more anxious, tics, and couldn't sleep. Plus he got diareah and encopresis after the srattera. I just wish there was a med that would help with his anxiety, and anger and tics. My husband does well on prozac so I don't get why they won't try it. This afternoon he wanted to rent a game, I said later, he ran out of the car, down the street, I had to chase him. Twenty minutes later I convinced him to get in. Then he wouldn't seat belt to the Dr. He said he wanted me to run him over, that he never wanted to see me again. All this because I wouldn't give in. My mom said part of his problem is we gave in to his tantrums for so long and bought him what he was obsessing over. Now he is manupulating us to get what he wants. I have never seen a 7 yr old kid who can tantrum to get what he wants like he does. Then the school always said he was so good? How could that be? > > >> > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like> inattention,> > but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > > > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > > > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid..> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Risperdal helped for a while, but seems to be pointless now. He took Adderall (short and long acting) and had terrible side effects in the afternoon. I think his doctor called it rebound, but its been so long ago, I frankly cant remember. He has an appointment today with his therapist who referred us for further testing, so Im crossing my fingers she will have good news for us. She has found a psychiatrist who is hopefully willing to treat and evaluate him herself. I will mention Geodon and Daytrana for sure. Strattera, Adderall & Ritalin made life worse. I hope this is all making sense. The past 5 years have been a merry-go-round between doctors...and I want to get off of it soon! =0) Hope you all have a blessed day! ~Ash _______________________ ~Ashleigh~ "So you see! There's no end to the things you might know,Depending how far beyond Zebra you go!" ~Dr. Seuss www.picturetrail.com/ashleigh1976 ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 I think it only backfires if you are "giving in" to bad behavior. If you are "earning points" to purchase something, then you are reinforcing good behavior. Earn those points all day long when not at the store, so when you go, you have something to spend. Basic token economy system..... but figure out what "the economy can afford" when you go out. Kid will still have to deal with "you don't have enough money to buy that expensive thing." Same principle, kid is entertained at store, using his "good behavior" points. The other kids can earn tokens for cell phone minutes, computer time, stay up late on non-school nights, who wants to "buy" the bigger piece of dessert, buy "get out of chore free card" etc.... We were selling diet sodas for a while at home as well. Anything you "give away for free" can be earned. Just make it positive, not negative..... ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing.. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time.. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into.. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that.. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 We kinda do that, G gets a chart that he gets stars on for good behaiour etc, if he fills the chart he gets rewarded, different thing each week, toy, swimming, bowling etc. We don't take anything off the chart, try to focus on the positive, just doesn't get stars added if he has misbehaved. And yep we have the energy saving bulbs lol. Only joined this site a week ago, its comforting to know others have similar issue, and good advice from actual experience. This is invaluable to me as myside of the family desided it was too much to cope with and despite living just a mile from my parents they have had no contact with us for over a year, Sad for G as he has such a good memory he remember spending time with them, he sometimes asks why he hasn't seen them, all I've told him so far is that they are in the huff and maybe he'll see them when they are in a better mood. Anyone else had the same problem? How did you deal with it? From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, 24 August, 2009, 1:27 PM Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing... They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time... I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into.. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that... If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 I know ....but we do what we gotta do. We went to the psychiatrisst yesterday...the appt. was for 1:30 and we didn't get in till 2:20....next time I am walking out....that is so unreal ....every time we go we have to wait and yesterday was the longest. And, on top of it, my son is there ...saying can we go , can we go about every minute. lfie stinks somedays.... jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: Ashleigh Crane <ashleighcrane@ charter.net>Subject: Re: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 10:35 PM I have often wondered if we would see a greater benefit from Daytrana rather than Vyvanse. He is currently on 50 mg which seems like a high dose to me. He also takes Remeron for his anxiety and Risperdal for the anger. I really dislike the reports I read about Risperdal, but we have tried tapering him off and the aggression increases tenfold. Has anyone successfully moved off of multiple medications to a single med? ~Ash ____________ _________ __~Ashleigh~ "So you see! There's no end to the things you might know,Depending how far beyond Zebra you go!" ~Dr. Seuss www.picturetrail. com/ashleigh1976 ( ) Re: Hyperactive? Also SSI Over the weekend we tried to do a street festival in town. As soon as my son got there he wanted a WEbkinz which he obsesses over and has over 30! We said no that we were just looking around. He started kicking and screaming and hitting and spitting at us, He is 7, and my husband had to pick him up and carry him down the street to the car as he was punching him in the face. When I arrived at the car he said he was hungry and wanted to eat. I'm like no not after that fit you eat at home and we drove home. He throws fits everytime he doesn't get his way or what he wants. He is on meds too. I wonder why they don't stop the anger? Yesterday he put two holes in the walls when on time out because he threw a fit because I wouldn't take him to the store. We see the psychiatrist AGAIN today but we haven't found a way to stop the meltdowns. Has anyone found their ASD kids were worse on meds? I wonder how he would be without them? He is on Abilify, Clonidine and Celexa. I feel sorry for my other kids 13, 9, 2. It does get annoying that he has to spoil every outing. > >> > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like inattention,> but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Oh Lorraine...that is too sad...too too sad. I don't like hearing that...what do they mean they can not provide an adult to supervise the playground....if our kids are out on the playground the teachers are out there too! Even in high school....teacher get assigned hall duty in the morning and afternoon...and there are teachers out by the buses both am and pm as well as hall monitors. Yes we do have a lot of support...but more is needed. It sounds awful for you over there....do you have IEP (individual educational programs) ...and Special Education Classes. Here in the US there are laws both State and Federal that protect our children's right to an education....and the schools must follow. I will wish you much luck...and if the school doesn't cooperate ..is there another school he can go to? Or homeschool or virtual (on-line)....???? I don't like hearing stories like this ...it truly breaks my heart....give you son a big hug from me and tell him I think he is GREAT! jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: m.snyder78 <m.snyder78 (DOT) com>Subject: ( ) Re: Hyperactive? Also SSI Date: Monday, August 24, 2009, 10:11 PM We saw the psyiatrist this afternoon. She suggested upping the abilify again to 20 mg which I said I didn't want to do since we upped it to 15 mg in May and had an awful summer where he had rage meltdowns everytime he didn't get his way. Of course we added the celexa in May too so maybe it also contributed to his anger. So we decided to try Risperdal. .05 in half for a week with the Abilify 7.5 in the PM. Then keep on the celexa. Plus keep the clonidine .01 in half twice a day. We did try the ADHD meds Adderall XR, Concerta, and Srattera. They all seemed to have opposie effects on him and he was more anxious, tics, and couldn't sleep. Plus he got diareah and encopresis after the srattera. I just wish there was a med that would help with his anxiety, and anger and tics. My husband does well on prozac so I don't get why they won't try it. This afternoon he wanted to rent a game, I said later, he ran out of the car, down the street, I had to chase him. Twenty minutes later I convinced him to get in. Then he wouldn't seat belt to the Dr. He said he wanted me to run him over, that he never wanted to see me again. All this because I wouldn't give in. My mom said part of his problem is we gave in to his tantrums for so long and bought him what he was obsessing over. Now he is manupulating us to get what he wants. I have never seen a 7 yr old kid who can tantrum to get what he wants like he does. Then the school always said he was so good? How could that be? > > >> > > Are your Aspergers children really hyperactive? n is. He is always all over the place. He runs away from us. He always has a lot of energy. When I go outside with him, as soon as a close the door, he is right by the road. I hate keeping him in. We use when I call a baby leash on him when we go in big places like the mall. We always get looks from people. When we go in public, he always cries and screams when he doesn't get what he wants and we always get looks and whispers from people. It makes me mad because they don't know what we have to deal with. Do your kids have adhd? If so, how do you go about getting them on medication? And do our kids qualify for SSI? How do I find out? Thanks for all your help ladies > > > > My Asperger son is not hyperactive at all and has no attention problems at all. It just depends on the child. My son has problems that look like hyperactivity/ inattention to the untrained eye. He will avoid looking at people while they are talking to him and do something else to keep his hands and eyes busy elsewhere. But he is attending well, using his auditory senses--just not looking. This includes in class while the teacher is lecturing. They test him, and he is listening, can answer questions about what they are talking about, etc. Since he doesn't "go with the flow" very well, when he was young, he would also wonder off in public. We kept him in a stroller until he was almost 5yo; then he was too heavy, and I had to just really keep an eye on him. I had to really lessen my ambitions on what we would accomplish with a family outing, since I couldn't do as much and keep a very close eye on him at the same time. Again, that may seem like> inattention,> > but it really is a lack of ability to read non-verbal communications. They aren't seeing the body language and facial expressions that signal other's intents. It is important to distinguish between ADHD and the communication breakdowns of autism since medication isn't what is going to help the communication breakdowns. On the other hand, if your child has both ADHD and AS--medication may help a lot.> > > > Regarding SSI--seems some kids qualify and some don't--suggests some gray area. Unless you are low income or don't have medical insurance, I'm not sure what the point would be for a child. If you are low income, it seems like medicaid has more programs, and I don't think you can do both. At least that is what they told my husband. > > > > My husband is blind and has had SSI for decades, so we have been dealing with it for quite some time. I don't know that much about SSI for kids though.. > > > > SSI for adults--SSI is intended to be an insurance program that people pay into. You're supposed to have so many work credits to qualify and you have to wait a couple of years or something like that. I believe only kids get SSI "for free". > > > > As an adult though, SSI is not so income dependent, although it is somewhat.. Someone who has paid into the system and becomes disabled will get some kind of payment and medicare insurance. For all practical purposes, they are just getting their soc sec early (and probably a smaller amount than they would get if they were able to keep working).> > > > I'm posting the info on SSI for adults in response to some earlier posts. Some people were saying their kids qualified for SSI as kids, but then were told they didn't qualify as adults. It could have nothing to do with their disability, simply the fact that they haven't worked and earned enough work credits. I'm not so sure you can get past that. If they can't work at all, or just haven't worked much yet, they might need to go the medicaid/welfare route. One thing you can do for your kids is make sure their employers are filing social security taxes on them. With contract jobs or cash jobs, sometimes this doesn't happen unless someone makes it happen. Or you can try to make sure your child doesn't take a job where social security taxes aren't going to be paid..> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 This is for Lorraine in the UK. I'm so sorry that you are having to battle the schools on your own. My son was bullied in grade school, too, but at least the school had a firm policy in place and also went through the motions of training staff on handling bullies and so it was understood that the victims of bullies often are too afraid to tell anyone. The story that I heard from the school was that they couldn't do anything unless an adult actually saw my son being bullied. So it is really upsetting to hear that in your case an adult saw something and then didn't do the right thing, which was to protect your son. What is that supervisor being paid for anyway? There are a lot of programs in the US that schools have used to educate the staff on bullying. I'm sure the UK has something similar. If your school won't help you, there must be someone higher up you can go to. Is it possible for parents to volunteer to help watch the playground and keep kids safe? To help my son, I bought a book for him that had different strategies for dealing with bullies and so I went over a couple of things he could try that would fit his personality (like walking away, saying STOP, or running to an adult for help). I was watching from afar one day and I actually saw him just try to walk away from a bully and it was funny to see the bully follow him around here and there around the playground before giving up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 We have been to the Dr. and I have called her enough with concerns that she knows I don't think the meds are working very well. The social stories may help. I did explain before we went out that we were just looking not buying. The problem is he is obsessive in his thoughts and he can't get over what he wants. He won't take no. He just keeps badgering and then tries to make us miserable so we give in. I usually stick to my guns and am strict with him but he keeps persisting. Then he also makes alot of noises and says mean things and pesters, I guess they are tics and he acts impulsive. Does anyone here have ASD plus TS and obsessive compulsive? It is just a difficult combination. > > > > > > > > Are your Aspergers children really hyperactive? n is. He is > always all over the place. He runs away from us. He always has a lot of > energy. When I go outside with him, as soon as a close the door, he is > right by the road. I hate keeping him in. We use when I call a baby > leash on him when we go in big places like the mall. We always get > looks from people. When we go in public, he always cries and screams > when he doesn't get what he wants and we always get looks and whispers > from people. It makes me mad because they don't know what we have to > deal with. Do your kids have adhd? If so, how do you go about getting > them on medication? And do our kids qualify for SSI? How do I find out? > Thanks for all your help ladies > > > > > > My Asperger son is not hyperactive at all and has no attention > problems at all. It just depends on the child. My son has problems that > look like hyperactivity/ inattention to the untrained eye. He will > avoid looking at people while they are talking to him and do something > else to keep his hands and eyes busy elsewhere. > But he is attending > well, using his auditory senses--just not looking. This includes in > class while the teacher is lecturing. They test him, and he is > listening, can answer questions about what they are talking about, etc. > Since he doesn't " go with the flow " very well, when he was young, he > would also wonder off in public. We kept him in a stroller until he was > almost 5yo; then he was too heavy, and I had to just really keep an eye > on him. I had to really lessen my ambitions on what we would accomplish > with a family outing, since I couldn't do as much and keep a very close > eye on him at the same time. Again, that may seem like inattention, > > > but it really is a lack of ability to read non-verbal > communications. They aren't seeing the body language and facial > expressions that signal other's intents. It is important to distinguish > between ADHD and the communication breakdowns of autism since > medication isn't what is going to help the communication breakdowns. On > the other hand, if your child has both ADHD and AS--medication may help > a lot. > > > > > > Regarding SSI--seems some kids qualify and some don't--suggests some > gray area. Unless you are low income or don't have medical insurance, > I'm not sure what the point would be for a child. If you are low > income, it seems like medicaid has more programs, and I don't think you > can do both. At least that is what they told my husband. > > 0A> > > > My husband is blind and has had SSI for decades, so we have been > dealing with it for quite some time. I don't know that much about SSI > for kids though.. > > > > > > SSI for adults--SSI is intended to be an insurance program that > people pay into. You're supposed to have so many work credits to > qualify and you have to wait a couple of years or something like that. > I believe only kids get SSI " for free " . > > > > > > As an adult though, SSI is not so income dependent, although it is > somewhat.. Someone who has paid into the system and becomes disabled > will get some kind of payment and medicare insurance. For all practical > purposes, they are just getting their soc sec early (and probably a > smaller amount than they would get if they were able to keep working). > > > > > > I'm posting the info on SSI for adults in response to some earlier > posts. Some people were saying their kids qualified for SSI as kids, > but then were told they didn't qualify as adults. It could have nothing > to do with their disability, simply the fact that they haven't worked > and earned enough work credits. I'm not so sure you can get past that. > If they can't work at all, or just haven't worked much yet, they might > need to go the medicaid/welfare route. One thing you can do for your > kids is make sure their employers are filing social security taxes on > them. With contract jobs or cash jobs, sometimes this > doesn't happen > unless someone makes it happen. Or you can try to make sure your child > doesn't take a job where social security taxes aren't going to be paid. > > > > Quote Link to comment Share on other sites More sharing options...
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