Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hello , About sores, maybe gving MTX by injection will prevent that, but probably not the bold spot. Anyway, I'm expecting too the new medications as Embrel and cox-2 but it will take years to get it here in France, and I'd prefer a real cure. Vivien takes Mtx and cyclosporine, so far without much side effects. he has severe hip problems since october and now spends weekdays in a readaptation center near Grenoble. Anton [ ] Re: [sD] Looking for support >From: RPerre3314@... > >Hello Anoton, >Nice to meet you.Ny daughter Alecia has systemic JRA she is 7 and is taking >naproxen,folic acid,something to coat her somach and she currently started >methotrexate a few months ago.I just stopped giving it to her because she got >sores on her head along with a bold spot.The doc said let the sores heel and >we will give her a lower dose.I don't know i guess it is the only thing we can >do.When we gave her a lower dose it didn't seem to bother her much so we will >see.I am hoping to give her one of the new cox-2 medications soon i am going >to start pushing for it.It seems to be doing wonders for the adults that are >taking it.Well i hope Vivien is doing well and you too. >Bye e-mai me anytime, > >------------------------------------------------------------------------ >Start a new hobby. Meet a new friend. > >Onelist: The leading provider of free email list services > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hi Anton, Well we go see the doc on Monday so i am getting all my questions ready! Alecia is needle fobic so i don't know if we could do the injections i am willing to do anything,she's not most of the times. What does the readaption center do? Is it like physical and occupational therapy? We go to PT and OT every week, it seems to be helping her. So you live in France you are my first e-mail out of the states! That's cool, this is a great way to communicate isn't it. Do you get to the states? Maybe you can send me some pictures of France. I took French in high school don't remember much at all a few things. Well Anton hope this letter finds you and your son in good health, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 This list is a very good place to find support for OCD. Now that you have made your first post, it would be helpful for you and us to hear about the OCD situations that have brought you to the end ofo your ropes. Tell us who you are and where you are. Help may be closer than you think. jim in san diego >From: sfaust@... > >Hello, I am new to the list and have yet to write. I have never done anything >like this before and am still reluctant to do so. Would someone mind sharing >with me how this list works. I feel as though I am at the end of my ropes and >was given this list from an acquaintance who reads it daily. Thank you for >your help and time. > >>You may subscribe to the OCD-L by emailing >listserv@... . >In the body of your message write: >subscribe OCD-L your name. >The archives for the OCD and >Parenting List may be accessed by going to > . >Enter your email address and password. >Click on the highlighted list name and then click on index. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Hi and welcome, We have all been at the end of our ropes many times.I give these people allot of credit for being able the read my letters,but bless their hearts they figure them out and write back. We are all there to help you hang on. Please share. Beth in IN. Looking for support > From: sfaust@... > > Hello, I am new to the list and have yet to write. I have never done anything > like this before and am still reluctant to do so. Would someone mind sharing > with me how this list works. I feel as though I am at the end of my ropes and > was given this list from an acquaintance who reads it daily. Thank you for > your help and time. > > > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The archives for the OCD and > Parenting List may be accessed by going to > . > Enter your email address and password. > Click on the highlighted list name and then click on index. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 > From: sfaust@... > > Hello, I am new to the list and have yet to write. I have never done anything > like this before and am still reluctant to do so. Would someone mind sharing > with me how this list works. I feel as though I am at the end of my ropes and > was given this list from an acquaintance who reads it daily. Thank you for > your help and time. Hello and welcome. My name is Kathy and I'm the mom of Kellen (5) who had a sudden onset of ocd late last year. I have found this list to be invaluable and I'm glad you've found it. Maybe you could write again and tell us about your situation. You could also access the list archives to get an idea of the sorts of things discussed here. Basically anything that has to do with raising a child with ocd goes! I've found the list members to be kind, supportive, and eager to help. I believe reading this list and the ocd wisdom and experience pooled here has saved me years, perhaps, of unnecessary frustration in learning to live with this disorder in the family. I've learned how to be a good and effective ocd parent here. I look forward to hearing from you again. Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Hi Sandy, You have already received replies from Jim, Beth, and Kathy, and, as you can read from their posts, they are warm, kind, and caring members of our list. I have been blessed by their words and the words of so many of our fellow list members. They have all helped me in my journey as a parent of a child with OCD. I do believe that each of us draws strength and insight from the others in our times of trial and that we, in turn, bless others with our own perspectives during their times of trial. The realization of our community, the fact that we are not alone, and the profound value of the thoughts that I have read from others here make this list a true resource for me. Hope to read about your experiences and thoughts soon. Take care. Louis -owneronelist louisharkins_4@... /subscribe/ and /subscribe/ocdandhomeschooling Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Hi there !! What I learned is to eat lots of meat, seafood, fish, chicken and turkey. I learned to LOVE vegetables and went to a nutritionist to find out what I'm allergic too. There could be foods you're eating that are causing this to re-occur because you are allergic to them. I found I'm allergic to wheat, white flour, corn, walnuts, black tea, potatoes, and a few other things. I just avoid all sugar, starch (potatoes), vinegar products, and all the things I'm allergic to. I've gotten better in 3 months time but continue taking garlic daily, take my DTX for liver support, probiotics and pills that balance your intestinal flora. You also need something that will repair your intestinal wall (leaky gut) I think you should find a really good nutritionist that is aware of yeast and have them help you with your diet. I take nystatin 2x/day ( Rx only) and Yeast Defense 2x/day (health food store.) Good luck and write me if you have any questions. sandy (sandyblue2002@...) > Hey, would like to find some support, i am just starting out again, i > did this a few years ago and now i am starting all over again. I > think i have found a good doctor in Los Angeles who should be able to > help me. Have been trying on my own but have had no success. If > anyone out there would like to help, i would very much apprieciate > it. This is a very tough thing to beat! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Hello kate I have a nine year old son with OCD and anxiety and it is very scary for both him and I. He is on an all natural supplement right now and does cbt and other treatments with his psychotherapist....anytime you want to talk just email _blueeyescryin69@..._ (mailto:blueeyescryin69@...) Because of other issues we have not been able to put him on any ssri's... charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Hi Kate, Welcome to the list. You have come to the right place for support! My daughter, Billie was also diagnosed when she was 10. One of the best things I did was join this list. An other was to buy Tamar Chansky's book called " Freeing Your Child From OCD. " Reassuarance seeking and confessing are common compulsions experienced by many of the kids whose parents are on this list. By answering OCD questions over and over again, we can inadvertantly make the OCD stronger. I usually answer once. For example, when her OCD was really bad she would ask a million times a night " Are you sure that no bad guys are going to break into the house tonight? " The 1st time I would say " All of the doors and windows are locked and the burglar alarm is on and no bad guys can break into the house. " The second time I would say " Tell me what I told you when you asked before. " On subsequent times I would give increasingly outrageous responses. " Yes, 6 bad guys are going to break into the house and have a pizza party at midnight. " " Yes, 3 bad guys are going to break into the house and take a shower and dance naked in the livingroom. " At first she would get very anxious and upset and angry when I did not give the " correct " answer and reassure her but soon she would be rolling on the floor laughing at her ridiculous mother. With the proper treatment OCD does usually get better. Two of the best treatments for OCD are Exposure and Response Prevention (E/RP) therapy and SSRI medications. Sometimes one will work, other times kids may need both. I was very reluctant to use meds at first but I am now really glad that we did. Billie is 13 1/2 and her OCD has been in remission for almost 2 years. You didn't mention if your daughter sees a therapist or takes meds for her OCD. If she doesn't have a therapist, I would suggest finding one who is experienced in dealing with kids and OCD. Your daughter may also want to join the OCDKids list which is for kids 12 and under who have OCD. I am the moderator of the kids list. Sometimes it's very quiet but, usually if someone posts a message, they will get some responses. Feel free to ask lots of questions, complain, laugh and cry here because we all know exactly what you are going through. Kathy looking for support hello everyone, my name is kate,and i am here to look for some kind of support,my daughter was diagnosed three months ago with ocd. it has been the longest three months of my life, im not sure if what i am doing is going to help her or hurt her in the long run(i have been told both by differnt ppl) i tend to baby her,i try make everything better she is only ten,and cant understand what is happening to her,im not sure i can either. all she says is she wants it to stop.there is alot i dont understand,i was hoping someone here could give me the answers,some of her obsessions are what if she lies, steals,cheats,gets in trouble at school and so on. im not sure what the compulsions are is needing reassured or needing to confess a compulsion? i feel so helpless,sometimes i can promise her for atleast thirty minutes, that she hasnt stole anything,but its not quite enough. i want to take all her hurt and pain away how do i do that without, making her feel like i am the only one who can make her feel better? is there anything that can make the ocd wors?i dont understand, how some days are ok and others are terrible. thanks for taking the time to listen. kate Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Hi Kate, welcome! I have a son, 16, dealing with OCD. His problems began before he turned 12. His began with mostly compulsions. I think all of us here can identify with your " the longest 3 months of my life " comment! Kathy gave you some great advice to use. The good news is your daughter wants it to stop! That means she might be well motivated to work on stopping, hard though it might be in the beginning. You might can limit the number of times you will answer her also to begin with. Were you given any advice by the doctor who diagnosed her?? Has OCD been explained to her in any way? You mentioned " 3 months " so did this come on suddenly? Had she been sick? Sometimes strep or other viruses can cause OCD, and then it's called PANDAS OCD (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus). My son's OCD seemed to suddenly " be there " overnight, but I haven't been able to relate it to PANDAS but haven't had testing done for it either. He'd had a few minor OCD " habits " growing up that weren't really troubling to an extreme, but I don't know what caused the sudden 24/7 compulsions & thoughts, maybe puberty as a guess. At any rate, whatever the cause, we had to deal with it! He even had reassurance type questions growing up also. PANDAS is sometimes treated with antibiotics I believe. And it can tend to wax & wane more, I think, than with non-PANDAS OCD. If you haven't yet visited the OCD Foundation website, go to http://ocfoundation.org and you'll find lots of info on therapy, medications, PANDAS...there. Also the FILES section of our group has a lot of information. Please ask any questions here and vent/cry to us during those rough times. This group saved my sanity that first year or so!! single mom, 3 sons , 16, with OCD, dysgraphia and Aspergers(autism) > > hello everyone, > my name is kate,and i am here to look for some > kind of support,my daughter was diagnosed > three months ago with ocd. > it has been the longest three months of my life, > im not sure if what i am doing is going to help her or hurt > her in the long run(i have been told both by differnt ppl) > i tend to baby her,i try make everything better > she is only ten,and cant understand what is > happening to her,im not sure i can either. > all she says is she wants it to stop.there is alot i dont > understand,i was hoping someone here could give > me the answers,some of her obsessions are what if she lies, > steals,cheats,gets in trouble at school and so on. > im not sure what the compulsions are > is needing reassured or needing to confess > a compulsion? > i feel so helpless,sometimes i can promise her > for atleast thirty minutes, > that she hasnt stole anything,but its not quite > enough. > i want to take all her hurt and pain away > how do i do that without, > making her feel like i am the only one who can make > her feel better? is there anything that can make > the ocd wors?i dont understand, > how some days are ok and others are terrible. > thanks for taking the time to listen. > > kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Kathy- I haunt this list without really posting ( my son has mild TS and more o than ocd ) You just cracked me up because that is how I have always dealt with my son- The examples you gave are exactly what my son might do ! I am reading Dr chanskys book - but did'nt quite relate because my son does'nt seem to have compulsion- but when you gave those examples ( about bad guys ) I realize that he does do that. I have used humor and he has'nt gone further with the obsession. Thanks for the reassurance I'm doing something right- and for the laugh! looking for support hello everyone, my name is kate,and i am here to look for some kind of support,my daughter was diagnosed three months ago with ocd. it has been the longest three months of my life, im not sure if what i am doing is going to help her or hurt her in the long run(i have been told both by differnt ppl) i tend to baby her,i try make everything better she is only ten,and cant understand what is happening to her,im not sure i can either. all she says is she wants it to stop.there is alot i dont understand,i was hoping someone here could give me the answers,some of her obsessions are what if she lies, steals,cheats,gets in trouble at school and so on. im not sure what the compulsions are is needing reassured or needing to confess a compulsion? i feel so helpless,sometimes i can promise her for atleast thirty minutes, that she hasnt stole anything,but its not quite enough. i want to take all her hurt and pain away how do i do that without, making her feel like i am the only one who can make her feel better? is there anything that can make the ocd wors?i dont understand, how some days are ok and others are terrible. thanks for taking the time to listen. kate Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Its just like any other business.. you will get what you put into it. If you work hard at making a high quality product, and market yourself well, you can be successful. there are millions of people out there doing the same thing, your products have to stand out somehow, offer something no one has or a better version of what they do. I would research you area.. how other brick and mortar businesses that are similar are doing..in some areas wholesale is the way to go... it can depend on a lot of things.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 HI Robyn, I can't speak to opening a store, but I think that wholesale is worth doing. You need to have your prices high enough that you aren't working for pennies, and you need to find ways to increase production and reduce time. Sometimes that means making some substantial investments, but I think it is worth it. For example, I broke down last year and bought a 70 lb wax melter. It cost me a small fortune, but it increased my production time by leaps and bounds on my candles. This year I bought a heavy duty soap cutter with the metal wires. It ensures that each bar is uniformly sized and reduces my production time. If you can find ways to increase production while decreasing cost (like buying bottles by the case), wholesale can be very profitable. As to being able to make a living, it is difficult, but doable. I guess the trick is finding a niche (which I haven't done yet!). There are many success stories. Look at Sandy Maine of Sunfeather. She started as a home crafter just like the rest of us, and now she has something like 30 employees and makes her soap in 100 lb batches. Remember that Burts Bees, Kay, and Yankee Candle all started as basement businesses. I can tell you of a few people from my other lists that have done incredibly well. Check out www.bathbybettijo.com or www.thepamperedprincess.com I remember when both of these girls started, and now they are constantly in major magazines. It's not an easy road, but with perserverance there can be great success. I think the trick is one, finding a niche, and two being willing to take some chances, especially with some expensive investments. Best of luck to you and keep working at it. It will all pay off some day. in RI ----Original Message Follows---- From: " Robyn " <rayhay_3@...> Reply- Subject: Looking for support Date: Wed, 30 Nov 2005 22:29:53 -0000 Hello Everyone, I have a bath and body business in Canada and am looking for some support and encouragement. I guess my questions are multi faceted. First off...would you reccomend selling products wholesale or open up a store and sell retail> We recently recieved a large contract through a health food store and we sold retail...but for all the hard work we put in...there didnt seem to be that great of a pay out. Secondly, can a person in this field make a substantial living...Right now I am on maternity leave from a job I hate but unfortunately it brings in pretty good money. Please someone respond with some encouragement....I love doing my bath and body but I need to make a good living and pay bills! Hope you are all well! Robyn Angel Shadowz Vibrant Health! Daily tips for the body, mind and soul. From Glenbrook Farms Herbs and Such http://www.glenbrookfarm.com/herbs/vhform.html Flat Rate Shipping! Just $4.90 per order this week! See Site for details Don't miss the weekly specials! http://glenbrookfarm.com/store/specialsseeds_1.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 Todd, I am so sorry to hear of your wife's struggles. It sounds like what my partner Trudy is going through. Depression can be quite severe and debilitating. I wish I could offer you and your wife more support, but Trudy is in the same boat. We too are looking for a life line. We recently watched the Tom Hanks movie Castaway and have picked up on his line " keep breathing " as a survival technique. I would suggest that you do something for yourself, Todd. It is difficult being the caretaker. Take a little time for you--eat something decadent, go to a movie, talk to a friend...It is necessary for you to take care of yourself. Good luck. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Hi Todd, I beat lyme disease. I went several years misdx. When I was finally dx, I went on orals, bicillin injections, and IV abx. I didn't start feeling better until about five months into the IV abx. Tell your wife, it took me 5 months of IV abx before I started to feel better....and I went another 3 months on the IV abx before stopping. When I went off the abx, within a month I started to feel poorly. Everyone told me the lyme was still there to get back on the abx. I felt that a lot of my symptoms were gone. The fog, fatigue, and sleep issues and exhaustion still existed, but I was beginning to feel this was from the drugs not from the spirochetes rebuilding. I truly think my body was going through abx withdrawal. I believe we can become addicted to anything. I decided to not return to the abx, and work on rebuilding the distruction that took place in my body. The lyme and all the drugs take a terrible destructive toll on the body. My body needed rebuilding. I did that with a great Complimentary Dr. in NYC. It took another year before I started to come around and feel myself again. I was rebitten two years later, but went on abx right away and beat it. Tell your wife to hang in there, it will take time, but at some point she will know in her gut that it is time to stop abx. Some of he symptoms are not the lyme but instead the result of the abx. Tell her to hang in there, Connie _________________________________________________________________ Play Flexicon: the crossword game that feeds your brain. PLAY now for FREE. http://zone.msn.com/en/flexicon/default.htm?icid=flexicon_hmtagline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 > > My name is Staci. My husband is 35 years old. He has recently been > diagnosed with partical complex epilepsy, severe migraines, and > hyperhomocystenimia. I am looking for advice and support. Thanks! > Staci ,I understand I am 34 years old and have been diagnosed 2 years ago and have not driven. Have not had the support from my other half like I would want to. IF you need to talk please feel free to e-mail anytime @ tjlawsonn@... please, I think I may need it to :)its tough I know I am there. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 Hi Kate, I have a 6yo boy with OCD. I'm pretty new here, but everyone has been very supportive and helpful. OCD will not just " go away " but it can be controlled with cognitive- behavioral/ ERP therapy, medications or both. If you have questions about specific treatments, just post a question and someone here will have experience with it. It is so hard because the best treatment is treatment that doesn't feel good at first. Only answering a question ONE time, or not allowing them to wash hands, or whatever. It feels like you aren't being comforting and kind, but you are. You are helping them fight. I find that I blame myself a lot, even though I KNOW this is not caused by my parenting. It's a brain chemistry issue. But it's hard. My son is not taking meds right now, we're trying to control his symptoms with therapy at this point, with a certain degree of success. I suspect he may need meds at some point, but I'm taking it a day at a time. Good luck! Dawn > > > hello everyone, > my name is kate,and i am here to look for some > kind of support,my daughter was diagnosed > three months ago with ocd. > it has been the longest three months of my life, > im not sure if what i am doing is going to help her or hurt > her in the long run(i have been told both by differnt ppl) > i tend to baby her,i try make everything better > she is only ten,and cant understand what is > happening to her,im not sure i can either. > all she says is she wants it to stop.there is alot i dont > understand,i was hoping someone here could give > me the answers,some of her obsessions are what if she lies, > steals,cheats,gets in trouble at school and so on. > im not sure what the compulsions are > is needing reassured or needing to confess > a compulsion? > i feel so helpless,sometimes i can promise her > for atleast thirty minutes, > that she hasnt stole anything,but its not quite > enough. > i want to take all her hurt and pain away > how do i do that without, > making her feel like i am the only one who can make > her feel better? is there anything that can make > the ocd wors?i dont understand, > how some days are ok and others are terrible. > thanks for taking the time to listen. > > kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 Hi Kate, I have a 6yo boy with OCD. I'm pretty new here, but everyone has been very supportive and helpful. OCD will not just " go away " but it can be controlled with cognitive- behavioral/ ERP therapy, medications or both. If you have questions about specific treatments, just post a question and someone here will have experience with it. It is so hard because the best treatment is treatment that doesn't feel good at first. Only answering a question ONE time, or not allowing them to wash hands, or whatever. It feels like you aren't being comforting and kind, but you are. You are helping them fight. I find that I blame myself a lot, even though I KNOW this is not caused by my parenting. It's a brain chemistry issue. But it's hard. My son is not taking meds right now, we're trying to control his symptoms with therapy at this point, with a certain degree of success. I suspect he may need meds at some point, but I'm taking it a day at a time. Good luck! Dawn > > > hello everyone, > my name is kate,and i am here to look for some > kind of support,my daughter was diagnosed > three months ago with ocd. > it has been the longest three months of my life, > im not sure if what i am doing is going to help her or hurt > her in the long run(i have been told both by differnt ppl) > i tend to baby her,i try make everything better > she is only ten,and cant understand what is > happening to her,im not sure i can either. > all she says is she wants it to stop.there is alot i dont > understand,i was hoping someone here could give > me the answers,some of her obsessions are what if she lies, > steals,cheats,gets in trouble at school and so on. > im not sure what the compulsions are > is needing reassured or needing to confess > a compulsion? > i feel so helpless,sometimes i can promise her > for atleast thirty minutes, > that she hasnt stole anything,but its not quite > enough. > i want to take all her hurt and pain away > how do i do that without, > making her feel like i am the only one who can make > her feel better? is there anything that can make > the ocd wors?i dont understand, > how some days are ok and others are terrible. > thanks for taking the time to listen. > > kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 Hi! I am the mum of a 16 yr old boy also with severe ocd and poss. bipolar. I hear you! We have been struggling with this for a year now. The teen thing coupled with these disorders is, well, hell. We face the same limitations re sports, and movement anywhere, social. Also can relate to feeling like an enabler and disabler, sometimes it's just where you are....very frustrating I know. We are still waiting to start CBT treatment after a year of trying to get meds right. We lost a whole year of school with partial credits, now 2 years behind, kind of beyond worrying about this anymore, don't have enough energy. I recently bought the book Parenting Your Out of Control Teen, by Sells. He acknowledges that if there is a psychiatric disorder you need to handle things a bit differently than what he suggests, but the same principles apply. I found the chapter on dealing with aggressive behavior helpful, not sure if this is an issue for you? This has been our greatest challenge, as the " bad thought " OCD took over and led to threatening behavior in defence of the ocd. Anytime you want to vent or just connect, off-line directly to my email, please feel free. I will gladly lend a sympathetic ear, I get it... Big Hug! Barb > > I am mom of 14 yo boy with sever ocd and ?bipolar disorder. we have > been really struggling this last year,since growth spurt( went from > 130# to 200# and height 5'4 " to 5'9 " ) prior to this was able to > struggle with school and participated in sports. Now we struggle, and > fight . has not stated school this year, does not participate in > sports, limited where he can go out. he sees psychiatrist, a > psychologist, is on meds for ocd and bipolar. family almost too > supportive. ifeel like i am an enabler,and disabler. just need to vent > thanks... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2007 Report Share Posted August 29, 2007 Don't feel alone. My 15 yo son also with severe ocd has homeschooled for 8th and 9th grades. Trying school right now, but he's missed 3 of 8 days already. It's incredibly frustrating. And I do feel like an enabler also. However, I feel I'm doing my best, and that is all I can do. I'm exhausted from dealing with this the last couple weeks. I mean what can you do when (after a huge battle) you get your child to the school parking lot and he says " I can't do this. " After you sit there for a few minutes saying " You have done this for 4 days, I know you can do it, I'm so proud of you " what can you do? You can't push your child out of the car. Sorry, I'm just venting too, I really have no answers, just support for how you're feeling. Best of luck . > > I am mom of 14 yo boy with sever ocd and ?bipolar disorder. we have > been really struggling this last year,since growth spurt( went from > 130# to 200# and height 5'4 " to 5'9 " ) prior to this was able to > struggle with school and participated in sports. Now we struggle, and > fight . has not stated school this year, does not participate in > sports, limited where he can go out. he sees psychiatrist, a > psychologist, is on meds for ocd and bipolar. family almost too > supportive. ifeel like i am an enabler,and disabler. just need to vent > thanks... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Went through same thing for most of last school year - I would make it half way of a 30 mins drive and my son would be doing out loud rituals non stop, deer caught in headlights look, and I would just turn around. If he made it to school he would pace the halls and call me repeatedly to come and get him. At one point he just decided he should not have to " do " school because the ocd made it impossible. He was hospitalized shortly thereafter... You do what you can, what you think is " right " , even what is wrong because it feels right at the time... We seem to be in a better place now, in general, he starts school next week(only 2hrs/day part of hospital program), so we will see how that is going to work this year. I keep reminding myself, one day at a time, even as it feels like his future/life is slipping away sometimes... Beginnings/transitions are so hard for these kids. Somehow it does help knowing we are all in this together, fighting the good fight, even though it feels so futile some of the time. Barb > > > > I am mom of 14 yo boy with sever ocd and ?bipolar disorder. we have > > been really struggling this last year,since growth spurt( went from > > 130# to 200# and height 5'4 " to 5'9 " ) prior to this was able to > > struggle with school and participated in sports. Now we struggle, and > > fight . has not stated school this year, does not participate in > > sports, limited where he can go out. he sees psychiatrist, a > > psychologist, is on meds for ocd and bipolar. family almost too > > supportive. ifeel like i am an enabler,and disabler. just need to vent > > thanks... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Went through same thing for most of last school year - I would make it half way of a 30 mins drive and my son would be doing out loud rituals non stop, deer caught in headlights look, and I would just turn around. If he made it to school he would pace the halls and call me repeatedly to come and get him. At one point he just decided he should not have to " do " school because the ocd made it impossible. He was hospitalized shortly thereafter... You do what you can, what you think is " right " , even what is wrong because it feels right at the time... We seem to be in a better place now, in general, he starts school next week(only 2hrs/day part of hospital program), so we will see how that is going to work this year. I keep reminding myself, one day at a time, even as it feels like his future/life is slipping away sometimes... Beginnings/transitions are so hard for these kids. Somehow it does help knowing we are all in this together, fighting the good fight, even though it feels so futile some of the time. Barb > > > > I am mom of 14 yo boy with sever ocd and ?bipolar disorder. we have > > been really struggling this last year,since growth spurt( went from > > 130# to 200# and height 5'4 " to 5'9 " ) prior to this was able to > > struggle with school and participated in sports. Now we struggle, and > > fight . has not stated school this year, does not participate in > > sports, limited where he can go out. he sees psychiatrist, a > > psychologist, is on meds for ocd and bipolar. family almost too > > supportive. ifeel like i am an enabler,and disabler. just need to vent > > thanks... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Hi Kate, BIG HUG to you! It sounds like you are really struggling with this right now. It will get better as you find the right solutions for yourdd and your family. Do you have a professional working with you yet? Is your daughter on any medication? If it is very severe medication can make such a difference in turning down the volume on the intensity on the ocd, so CBT treatment can be started. Others have already suggested good books, if you don't have one yet that will really help for both you and your dd. To yourquestion " does anything make ocd worse " , yes. The books and professionals will explain it best, but providing reassurance reinforces the ocd. So ideally you do not. That said, at the beginning that can be impossible, so you try to reassure only once and tell your daughter that is what you will do. Depending where you are at with this though, you just do what you think/feel is right, even if according to the experts it's wrong. I say this because at the beginning I remember vividly the degree of suffering, every 5 mins, up to 2am sometimes...I say follow your gut until you get help to deal better with all this. One more book - " Mr Worry " , by Aureen Pinto Wagner (might be a bit young for 10yr old?) There are others geared toward children. Hang in there! Barb > > > hello everyone, > my name is kate,and i am here to look for some > kind of support,my daughter was diagnosed > three months ago with ocd. > it has been the longest three months of my life, > im not sure if what i am doing is going to help her or hurt > her in the long run(i have been told both by differnt ppl) > i tend to baby her,i try make everything better > she is only ten,and cant understand what is > happening to her,im not sure i can either. > all she says is she wants it to stop.there is alot i dont > understand,i was hoping someone here could give > me the answers,some of her obsessions are what if she lies, > steals,cheats,gets in trouble at school and so on. > im not sure what the compulsions are > is needing reassured or needing to confess > a compulsion? > i feel so helpless,sometimes i can promise her > for atleast thirty minutes, > that she hasnt stole anything,but its not quite > enough. > i want to take all her hurt and pain away > how do i do that without, > making her feel like i am the only one who can make > her feel better? is there anything that can make > the ocd wors?i dont understand, > how some days are ok and others are terrible. > thanks for taking the time to listen. > > kate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I too live in Wenatchee and drive once a month to Edmonds for nutrition and fills. I have someone checking on a Wenatchee group and will let you know what I find out. I heard there is a group and it meets the last week of each month but have not confirmed that. I had my band surgery in August and have lost almost 50 lbs. A local support group would be great and even better if I could carpool to appts. M.S. in Wenatchee > > Hi, I have just had my first fill, haven't lost any weight and I'm > looking for a support group that meets in the Wenatchee area, if > anyone has any information on this I would sure like to hear from > them. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 There is a support group that meets in the PUD building once a month. I think it is the last Wednesday of the month at 6pm. Robin mickshellk98802 <mickshellk98802@...> wrote: I too live in Wenatchee and drive once a month to Edmonds for nutrition and fills. I have someone checking on a Wenatchee group and will let you know what I find out. I heard there is a group and it meets the last week of each month but have not confirmed that. I had my band surgery in August and have lost almost 50 lbs. A local support group would be great and even better if I could carpool to appts. M.S. in Wenatchee > > Hi, I have just had my first fill, haven't lost any weight and I'm > looking for a support group that meets in the Wenatchee area, if > anyone has any information on this I would sure like to hear from > them. Thanks. > --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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