Re: New Member and in need of HELP!

[Guest guest]

Hi ,

Not sure if Jakob is on medication, but often times meds prescribed to kids on the spectrum have the side effect of wanting to eat and drink alot. I would check this out. Have you tried using a reward system for getting chores done, homework done, etc.? It sounds like Jakob wouldn't work as hard for toys, etc. as he would for maybe having special time with mom. Maybe also getting him to be your "helper" as much as you can in situations if you think that would work. Just some thoughts Hard to know how to help without seeing the situations in which he's getting upset.

Best of luck to you!

From: teamjakob06@...Date: Sun, 21 Feb 2010 18:04:39 +0000Subject: ( ) New Member and in need of HELP!

Hello everyone! My name is and my 7 years old son Jakob has AS along with Anxiety Disorder, ADHD, and has Bipolar symtoms. Everyday is a battle and I just don't know what to do. Here's what is happening.Jakob does not like to do anything that is asked of him. He screams at everyone. He doesn't listen to what you are saying and has screaming fits. Basically if he doesn't get his way he screams. He is also always hungry and thristy. I had him tested for diabetes and the test came back negative. I just don't know what to do. Nothing I try seems to work. This is something that only happens at home. Last night we went to my friends house for a Pampered Chef party. I was terrified that he was going to start running around her house screaming his head off. But to my surprise, he was so sweet and used his manners. He ate alot and had alot to drink, but other then that he played just fine. We left to go to the sports store to get his baseball pants and cleats and the store was closed. So Jakon started screaming and kicking his feet in the truck. I tried to explain to him that I would pick them up on Monday so its no big deal. Eventually he got over it. I noticed if we let him scream and ignore him, eventually he stops. Strangely he often doesn't remember why he was screaming or what happened. He can't really express his feelings. When he wants something to eat or drink, its right then and there. Not in a minute when you get out of the bathroom, its right then or he starts screaming. We've tried taking toys away, tv, DS, etc.. It doesn't effect him. I don't know what to do!! Any suggestion would be greatly appreciated!Thanks,

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[Guest guest]

,

Thanks for responding. I am going to try a rewards system and I'll let you know how it works. He isn't on any medications. As far as mommy time goes, he is the only child and gets all of our attention. So long as we don't ask him to pick up his toys or do anything he doesn't want to he is fine. This just started. I mean he has always given us a hard time picking up his toys, but he would do it. Now it is just out of control to the point that today on our way back from taking my mom to work, I stopped by my local Sheriff Department. There in the parking lot I explained to him that this is where grown ups go if they don't follow the rules and do as they are told. A Sheriff was out side and asked if we needed help, so I told him what was going on and he talked to Jakob about the fact that everyone has rules to follow and like I said, those who don't follow the rule and do bad things end up in jail. He asked him if he wanted to go to jail

and of course he said "no sir". The sheriff gave him a coloring book and some sticker and we were on our way. So far, no problems since. We will see in a little while when its time for bath and bed if it helped. LOL! Thanks for the advice.

TeamJakobSupport children with Aspergers,With your support their is no limit to Jakob's success!!

From: Mann <femphoenix@...>Aspergers Treatment Sent: Sun, February 21, 2010 3:30:29 PMSubject: RE: ( ) New Member and in need of HELP!

Hi , Not sure if Jakob is on medication, but often times meds prescribed to kids on the spectrum have the side effect of wanting to eat and drink alot. I would check this out. Have you tried using a reward system for getting chores done, homework done, etc.? It sounds like Jakob wouldn't work as hard for toys, etc. as he would for maybe having special time with mom. Maybe also getting him to be your "helper" as much as you can in situations if you think that would work. Just some thoughts Hard to know how to help without seeing the situations in which he's getting upset. Best of luck to you!

From: teamjakob06Date: Sun, 21 Feb 2010 18:04:39 +0000Subject: ( ) New Member and in need of HELP!

Hello everyone! My name is and my 7 years old son Jakob has AS along with Anxiety Disorder, ADHD, and has Bipolar symtoms. Everyday is a battle and I just don't know what to do. Here's what is happening.Jakob does not like to do anything that is asked of him. He screams at everyone. He doesn't listen to what you are saying and has screaming fits. Basically if he doesn't get his way he screams. He is also always hungry and thristy. I had him tested for diabetes and the test came back negative. I just don't know what to do. Nothing I try seems to work. This is something that only happens at home. Last night we went to my friends house for a Pampered Chef party. I was terrified that he was going to start running around her house screaming his head off. But to my surprise, he was so sweet and used his manners. He ate alot and had alot to drink, but other then that he played just fine. We left to go to the sports store to

get his baseball pants and cleats and the store was closed. So Jakon started screaming and kicking his feet in the truck. I tried to explain to him that I would pick them up on Monday so its no big deal. Eventually he got over it. I noticed if we let him scream and ignore him, eventually he stops. Strangely he often doesn't remember why he was screaming or what happened. He can't really express his feelings. When he wants something to eat or drink, its right then and there. Not in a minute when you get out of the bathroom, its right then or he starts screaming. We've tried taking toys away, tv, DS, etc.. It doesn't effect him. I don't know what to do!! Any suggestion would be greatly appreciated!Thanks,

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[Guest guest]

Hi ,

Not that I advocate what might seem like scaring kids, but we had a similar situation with my sister who has AS. She got really into matches and curious about fire for a while so my mom plopped her in the car, took her to the fire station, and told her she needed to talk with the firemen. She's now 23 and it wasn't until a year ago or so that she lit a candle! That's where being rule-governed can be helpful

I have no clue about the eating and drinking then! Fresh out of ideas there. With him needing it right away though, do you think a social story about patient waiting or something similar would be helpful?

I hope the rewards system works well for you! Again, we had a similar situation and she could have cared less about earning/losing toys (similar situation with a student I had with AS actually). So frustrating for my parents! She was getting plenty of attention, but when she knew she could get extra attention or special time, she was sold. Different for every kid and even for one kid, things change.

Good luck with bathtime!

From: teamjakob06@...Date: Sun, 21 Feb 2010 13:05:10 -0800Subject: Re: ( ) New Member and in need of HELP!

,

Thanks for responding. I am going to try a rewards system and I'll let you know how it works. He isn't on any medications. As far as mommy time goes, he is the only child and gets all of our attention. So long as we don't ask him to pick up his toys or do anything he doesn't want to he is fine. This just started. I mean he has always given us a hard time picking up his toys, but he would do it. Now it is just out of control to the point that today on our way back from taking my mom to work, I stopped by my local Sheriff Department. There in the parking lot I explained to him that this is where grown ups go if they don't follow the rules and do as they are told. A Sheriff was out side and asked if we needed help, so I told him what was going on and he talked to Jakob about the fact that everyone has rules to follow and like I said, those who don't follow the rule and do bad things end up in jail. He asked him if he wanted to go to jail and of course he said "no sir". The sheriff gave him a coloring book and some sticker and we were on our way. So far, no problems since. We will see in a little while when its time for bath and bed if it helped. LOL! Thanks for the advice.

TeamJakobSupport children with Aspergers,With your support their is no limit to Jakob's success!!

From: Mann <femphoenixhotmail>Aspergers Treatment Sent: Sun, February 21, 2010 3:30:29 PMSubject: RE: ( ) New Member and in need of HELP!

Hi , Not sure if Jakob is on medication, but often times meds prescribed to kids on the spectrum have the side effect of wanting to eat and drink alot. I would check this out. Have you tried using a reward system for getting chores done, homework done, etc.? It sounds like Jakob wouldn't work as hard for toys, etc. as he would for maybe having special time with mom. Maybe also getting him to be your "helper" as much as you can in situations if you think that would work. Just some thoughts Hard to know how to help without seeing the situations in which he's getting upset. Best of luck to you!

From: teamjakob06Date: Sun, 21 Feb 2010 18:04:39 +0000Subject: ( ) New Member and in need of HELP!

Hello everyone! My name is and my 7 years old son Jakob has AS along with Anxiety Disorder, ADHD, and has Bipolar symtoms. Everyday is a battle and I just don't know what to do. Here's what is happening.Jakob does not like to do anything that is asked of him. He screams at everyone. He doesn't listen to what you are saying and has screaming fits. Basically if he doesn't get his way he screams. He is also always hungry and thristy. I had him tested for diabetes and the test came back negative. I just don't know what to do. Nothing I try seems to work. This is something that only happens at home. Last night we went to my friends house for a Pampered Chef party. I was terrified that he was going to start running around her house screaming his head off. But to my surprise, he was so sweet and used his manners. He ate alot and had alot to drink, but other then that he played just fine. We left to go to the sports store to get his baseball pants and cleats and the store was closed. So Jakon started screaming and kicking his feet in the truck. I tried to explain to him that I would pick them up on Monday so its no big deal. Eventually he got over it. I noticed if we let him scream and ignore him, eventually he stops. Strangely he often doesn't remember why he was screaming or what happened. He can't really express his feelings. When he wants something to eat or drink, its right then and there. Not in a minute when you get out of the bathroom, its right then or he starts screaming. We've tried taking toys away, tv, DS, etc.. It doesn't effect him. I don't know what to do!! Any suggestion would be greatly appreciated!Thanks,

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[Guest guest]

Hi

Welcome to this fantastic group of people. I love everyone here, they help me to keep myself together when I feel my world is falling apart.

My daugther used to do the same thing until she turns eleven. Being in therapy for five years have helped her to deal with those issues and they are getting better. Does you son see a therapist?

They also put her on medication and that helped her too..

By the way she still does not have the concept of time, she can't wait for food to be ready, she can not be punctual etc...I have found ways of dealing with it myself.

Because you son does not remember what he is screaming about, demand from her pediatrician a referral to see a pediatric neurologist to eliminate possible seizures and other neurological disorders...

Some seizures cause personality disturbances, that happened in my daugther's case, her seizures got undiagnosed for eight years, it is always good to check for all the problems that the spectrum could cause.

I am sending you a big hug.

( ) New Member and in need of HELP!Hello everyone! My name is and my 7 years old son Jakob has AS along with Anxiety Disorder, ADHD, and has Bipolar symtoms. Everyday is a battle and I just don't know what to do. Here's what is happening.Jakob does not like to do anything that is asked of him. He screams at everyone. He doesn't listen to what you are saying and has screaming fits. Basically if he doesn't get his way he screams. He is also always hungry and thristy. I had him tested for diabetes and the test came back negative. I just don't know what to do. Nothing I try seems to work. This is something that only happens at home. Last night we went to my friends house for a Pampered Chef party. I was terrified that he was going to start running around her house screaming his head off. But to my surprise, he was so sweet and used his manners. He ate alot and had alot to drink, but other then that he played just fine. We left to go to the sports store to get his baseball pants and cleats and the store was closed. So Jakon started screaming and kicking his feet in the truck. I tried to explain to him that I would pick them up on Monday so its no big deal. Eventually he got over it. I noticed if we let him scream and ignore him, eventually he stops. Strangely he often doesn't remember why he was screaming or what happened. He can't really express his feelings. When he wants something to eat or drink, its right then and there. Not in a minute when you get out of the bathroom, its right then or he starts screaming. We've tried taking toys away, tv, DS, etc.. It doesn't effect him. I don't know what to do!! Any suggestion would be greatly appreciated!Thanks,

[Guest guest]

If the eating and drinking continues, I WOULD HIGHLY RECOMMEND a retest of the sugar. YOU CAN BUY TEST STRIPS ON E-BAY FOR MUCH CHEAPER and you CAN buy your own meter (on-line, ebay, you can often get both!). I WOULD!!! Our 16 year old IS type I diabetic and seems STRANGE he would be eating and DRINKING all the time without an issue, but that is just my opinion. If his blood sugar WITH CLEAN HANDS (never assume a reading CORRECT if they could have sugar, food, on their hands-----seriously!----it can be a HUGE HUGE DIFFERENCE----has been one of well over 100 points difference of a reading for us!) IS ANYTHING OTHER THAN 80-120, HE IS DIABETIC (THAT APPLIES TO ALL OF US-----seems for adults, some will let one go over that, and call it borderline and all the crap but FOR YOUR HEALTH / HIS / if the sugar is EVER EVER EVER OVER 120, IT IS DIABETES!!!!!!! Delaying treatment is never a good choice!!!!!

Yes, my 16 year old was exactly as your son, so I WAS GIVEN EVERY LABEL OF MY OWN for years and by 4th grade, my son couldn't be good ANYWHERE, ANYTIME. It is soooo sad that we would be accused of lying about a living hell that REALLY IS REAL AND GOING ON but we are safe and the first place they act out.

Check in to your state waiver programs, I would suggest a sensory diet evaluation (which the psychiatrist that diagnosed should have ordered; if not, I WOULD GET THAT TO HAPPEN as the mom), read, learn, read, learn, and start doing whatever you read that sounds like it may work for you; a lot of it takes advocating but it IS what we must do. We medicate our sons and when they are medicated, they are nearly as normal children in any and all environments. My 8 year old has dad's personality and will never be the social butterfly; however, I thought the same of my 16 year old and he is the social butterfly now (still never wants to go anywhere but he is a chatty once there where the 8 year old will say things IF TALKED TO). So, we never know.

Hang in there. It gets better and easier!

Ruthie

From: tfitzge134@...Date: Mon, 22 Feb 2010 15:24:28 +0000Subject: Re: ( ) New Member and in need of HELP!

Hi

Welcome to this fantastic group of people. I love everyone here, they help me to keep myself together when I feel my world is falling apart.

My daugther used to do the same thing until she turns eleven. Being in therapy for five years have helped her to deal with those issues and they are getting better. Does you son see a therapist?

They also put her on medication and that helped her too..

By the way she still does not have the concept of time, she can't wait for food to be ready, she can not be punctual etc...I have found ways of dealing with it myself.

Because you son does not remember what he is screaming about, demand from her pediatrician a referral to see a pediatric neurologist to eliminate possible seizures and other neurological disorders...

Some seizures cause personality disturbances, that happened in my daugther's case, her seizures got undiagnosed for eight years, it is always good to check for all the problems that the spectrum could cause.

I am sending you a big hug.

( ) New Member and in need of HELP!Hello everyone! My name is and my 7 years old son Jakob has AS along with Anxiety Disorder, ADHD, and has Bipolar symtoms. Everyday is a battle and I just don't know what to do. Here's what is happening.Jakob does not like to do anything that is asked of him. He screams at everyone. He doesn't listen to what you are saying and has screaming fits. Basically if he doesn't get his way he screams. He is also always hungry and thristy. I had him tested for diabetes and the test came back negative. I just don't know what to do. Nothing I try seems to work. This is something that only happens at home. Last night we went to my friends house for a Pampered Chef party. I was terrified that he was going to start running around her house screaming his head off. But to my surprise, he was so sweet and used his manners. He ate alot and had alot to drink, but other then that he played just fine. We left to go to the sports store to get his baseball pants and cleats and the store was closed. So Jakon started screaming and kicking his feet in the truck. I tried to explain to him that I would pick them up on Monday so its no big deal. Eventually he got over it. I noticed if we let him scream and ignore him, eventually he stops. Strangely he often doesn't remember why he was screaming or what happened. He can't really express his feelings. When he wants something to eat or drink, its right then and there. Not in a minute when you get out of the bathroom, its right then or he starts screaming. We've tried taking toys away, tv, DS, etc.. It doesn't effect him. I don't know what to do!! Any suggestion would be greatly appreciated!Thanks,

[Guest guest]

Is he on medication. I couldn't really address my daughter's issues

until her anxiety was reduced a little. She has the same issues.

AS, anxiety, executive function disorder and BP traits.

Prior to medication I keep her life highly structured, worked

hard to get her to bed by 9pm (her BP trait is this nighttime

activation and then difficult to get up in the morning). The

only socializing I did when she was younger was things that

were routine like classes at the YMCA.

We had such school anxiety we had to advocate for a smaller

supportive school. Her attendance issues were so bad we

would have been taken to court for truancy if we hadn't

taken steps ourselves to advocate. School anxiety/refusal

is common with BP kids too.

My daughter doesn't have BP though she sleeps well. She doesn't

have any manic (super hero type behavior) but she is very

irritiable.

I would look into a medication intervention. Start out at a

very low dose and make it a trial. She if it helps.

He is really suffering. These poor kids don't know what life

is like without anxiety.

Pam

>

> Hello everyone! My name is and my 7 years old son Jakob has AS along

with Anxiety Disorder, ADHD, and has Bipolar symtoms. Everyday is a battle and I

just don't know what to do. Here's what is happening.

>

> Jakob does not like to do anything that is asked of him. He screams at

everyone. He doesn't listen to what you are saying and has screaming fits.

Basically if he doesn't get his way he screams. He is also always hungry and

thristy. I had him tested for diabetes and the test came back negative. I just

don't know what to do. Nothing I try seems to work. This is something that only

happens at home. Last night we went to my friends house for a Pampered Chef

party. I was terrified that he was going to start running around her house

screaming his head off. But to my surprise, he was so sweet and used his

manners. He ate alot and had alot to drink, but other then that he played just

fine. We left to go to the sports store to get his baseball pants and cleats and

the store was closed. So Jakon started screaming and kicking his feet in the

truck. I tried to explain to him that I would pick them up on Monday so its no

big deal. Eventually he got over it. I noticed if we let him scream and ignore

him, eventually he stops. Strangely he often doesn't remember why he was

screaming or what happened. He can't really express his feelings. When he wants

something to eat or drink, its right then and there. Not in a minute when you

get out of the bathroom, its right then or he starts screaming.

>

> We've tried taking toys away, tv, DS, etc.. It doesn't effect him. I don't

know what to do!! Any suggestion would be greatly appreciated!

> Thanks,

>

[Guest guest]

Hey pam:

You said “(her BP trait is this nighttime

activation and then difficult to get up in the morning).

Could you please explain this further?

Regards, melody

[Guest guest]

Lots of people with anxiety have difficulty getting to sleep

at night. This apparently is common among anxiety suffers.

But my daughter wants to be active at night. She gets geared

up and wants to do stuff. Starts cleaning fishtanks at 9pm

when I reminded her earlier.

The Bipolar community tries to change this with using

light therapy and trying to get them back on a more

normal sleep wake schedule.

Some people may be night owls because it is quieter

in there house and less stimulation. But my daughter

is an only child there are no distractions earlier.

Sleep issues are often a problem for the bipolar community.

People can have BP traits and not have BP. Have you read the

BP child website?

http://www.bpchildresearch.org/

AS kids can have BP traits without having BP. My daughter

does. She is very bossy. Blames me for any issues.

AS and BP kids often have executive function disorders

which have a common set of behaviors associated with them.

But my daughter does not have mood swings she does not

have bad dreams ...she is not highly sexual at a young

age. There are lots of reasons she is not BP.

Hope this helps.

Pam

>

> Hey pam:

>

>

>

> You said " (her BP trait is this nighttime

> activation and then difficult to get up in the morning).

>

>

>

> Could you please explain this further?

>

>

>

> Regards, melody

>

[Guest guest]

Hi pam-

Thanx again for your response.

I am surprised to learn these symptoms about bipolar and seem

to describe megan in more ways then now, especially not being able to sleep at

night. There are so many of these disorders that overlap.

Thank you for the information, I will be looking into it further.

Regards, melody