questions??

[Guest guest]

Hi ,

It does sound like a possibility. It's so hard to know for sure, though.

Be patient and try not to get too discouraged. Even the doctors have to

take a wait and see approach sometimes, when the onset is not obvious.

And even if it is obvious, sometimes the pattern of symptoms will

change. JRA is a condition often diagnosed by exclusion. The symptoms

have to be long-lasting, at least 6 weeks but as long as 6 months.

Sometimes the systemic signs like the fevers will come on first, and it

may take a while before any joint symptoms become apparent. Still, so

many other things can cause a fever and the weakness you describe so

they have to rule out what they can before they settle on JRA. Keeping a

log is a great idea, as it will help you and the doctor to find any

patterns. It's better to be more thorough and not to settle right away

on a diagnosis that may be incorrect. A friend of ours, who used to be

on this list, had a little boy who was diagnosed and treated for

systemic JRA. After about a year they discovered that he actually had a

form of leukemia. That little boy passed away not too long ago.

Please keep us updated. Let us know if there is any change in symptoms

or if the doctors learn anything more. For the time being, is your son

taking any medicines for the pain?

Take care,

Georgina

lambing@... wrote:

>

> Hi my name is and my son Nolan has undergone several tests

> these last six weeks to find out whats going on. They think he has

> systemic JRA. Although the Doctor can't figure out whats going on.

> I have been reading you posts for the last few weeks and was

> wondering if you thought this is what he has also. I go this

> afternoon to see a infectious disease specialist. Here are his

> symptoms. It started in February (or that's when I started keeping a

> log) fevers spiking as high as 107. They would last for four days

> and then they were gone. During this time he did nothing but lay on

> the couch. He is 2 1/2 years old. He's potty trained and I would

> have to carry him to the bathroom he was so weak. No rash, and no

> joint swelling or redness. His only main complaint was his neck hurt

> and his back. And he wouldn't eat for several days. His fevers come

> and go anywhere from 2-4 weeks apart. He started another fever last

> night. In June they did blood work and his sed rate was 35 and his c-

> reactive protein was 13. Again blood work was performed when he

> wasn't running a fever and the ANA and the RF were negative. After

> reading plenty I heard it's common for these tests to be negative.

> The pediatrician doesn't know now whats wrong and so he is passing me

> along. Any Ideas??

[Guest guest]

Dear , Your son sounds very much like what n went through. With

systemic they have to rule everything else out first. n didn't get any

joint pain for 4-5 months after the initial symtom. Keep on top of your

doctor. Good luck.

>From: lambing@...

>Reply- egroups

> egroups

>Subject: Questions??

>Date: Fri, 04 Aug 2000 15:38:06 -0000

>

>Hi my name is and my son Nolan has undergone several tests

>these last six weeks to find out whats going on. They think he has

>systemic JRA. Although the Doctor can't figure out whats going on.

>I have been reading you posts for the last few weeks and was

>wondering if you thought this is what he has also. I go this

>afternoon to see a infectious disease specialist. Here are his

>symptoms. It started in February (or that's when I started keeping a

>log) fevers spiking as high as 107. They would last for four days

>and then they were gone. During this time he did nothing but lay on

>the couch. He is 2 1/2 years old. He's potty trained and I would

>have to carry him to the bathroom he was so weak. No rash, and no

>joint swelling or redness. His only main complaint was his neck hurt

>and his back. And he wouldn't eat for several days. His fevers come

>and go anywhere from 2-4 weeks apart. He started another fever last

>night. In June they did blood work and his sed rate was 35 and his c-

>reactive protein was 13. Again blood work was performed when he

>wasn't running a fever and the ANA and the RF were negative. After

>reading plenty I heard it's common for these tests to be negative.

>The pediatrician doesn't know now whats wrong and so he is passing me

>along. Any Ideas??

>

>

>

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

hi everyone! i just had a quick question, does it seem like aspie kids gets sick

more often? is there any evidence 2 that? any comments would b great! thanx

again

[Guest guest]

I can't speak for aspie kids in general, but our daughter rarely gets sick and when she does, it doesn't really phase her. She's had one ear infection and probably maybe only 5 or less colds in her 7 years. However, a year ago she developed septicemia (blood infection), Fifths Disease and strep all in a two week period. She didn't bat an eye at any of it other to complain that her throat hurt.

Allergies are another story...I'm pretty sure she's inherited my very rotten tendency to be allergic to everything.

~Cheryl S.

Hi everyone! I just had a quick question, does it seem like aspie kids gets sick more often? Is there any evidence 2 that? Any comments would b great! Thanx again

[Guest guest]

My husband has AS and he gets sick like once a year. He does have terrible hay fever allergies.From: <@...>Subject: ( ) Re: questions?? Date: Monday, April 26, 2010, 6:43 PM

Mine rarely gets sick.

>

> hi everyone! i just had a quick question, does it seem like aspie kids gets sick more often? is there any evidence 2 that? any comments would b great! thanx again

>

[Guest guest]

My son (now 7) has had allergy and ashtma problems and always has a runny nose

or cough. He had exema as a baby but I don't know if it has anthing to do with

his AS or if its just the fact that he is allergic to so much.

>

> > hi everyone! i just had a quick question, does it seem like aspie kids gets

sick more often? is there any evidence 2 that? any comments would b great! thanx

again

> >

> >

>

>

>

> " Here's to the crazy ones, the misfits, the rebels, the troublemakers, the

round pegs in the square holes... the ones who see things differently -- they're

not fond of rules... You can quote them, disagree with them, glorify or vilify

them, but the only thing you can't do is ignore them because they change

things... they push the human race forward, and while some may see them as the

crazy ones, we see genius, because the ones who are crazy enough to think that

they can change the world, are the ones who do. " - Steve Jobs

>

[Guest guest]

I am surprised so many people have responded with having very

healthy kids. My daughter was sick often from preschool on. I think it has to do

with her high anxiety and having such stress makes you more vulnerable to

viruses. Since she started at a smaller school and since she has also been on

zoloft she has been healthier. But she does

fatigue easily. She does have low muscle tone so that doesn't help.

My daughter has all the issues with Non verbal learning disorder.

She is weaker on a her left side than her right.

Pam

>

> hi everyone! i just had a quick question, does it seem like aspie kids gets

sick more often? is there any evidence 2 that? any comments would b great! thanx

again

>

[Guest guest]

Same with my daughter. She did have hand foot and mouth disease she caught from a very sharing child in Canada while we were there for Easter. That was miserable and so was she but thats the sickest shes been in a long time. I actually can't tell you how long its been since the last time before that she was sick. She does have horrible allergies too!! On Apr 26, 2010, at 7:12 PM, Cheryl wrote:

I can't speak for aspie kids in general, but our daughter rarely gets sick and when she does, it doesn't really phase her. She's had one ear infection and probably maybe only 5 or less colds in her 7 years. However, a year ago she developed septicemia (blood infection), Fifths Disease and strep all in a two week period. She didn't bat an eye at any of it other to complain that her throat hurt.

Allergies are another story...I'm pretty sure she's inherited my very rotten tendency to be allergic to everything.

~Cheryl S.

Hi everyone! I just had a quick question, does it seem like aspie kids gets sick more often? Is there any evidence 2 that? Any comments would b great! Thanx again

“Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.” - Steve Jobs

[Guest guest]

My 14 year old child has just been diagnosed with asperger's. We are having major problems with school. We are having to fight for testing even though his pdoc has sent a letter. I am frustrated and am considering homeschooling. What are your ideas on this?Sent on the Sprint® Now Network from my BlackBerry®From: and/or Robin Lemke <jrisjs@...>Date: Tue, 27 Apr 2010 07:42:15 -0700 (PDT)< >Subject: Re: ( ) questions?? Hi,I don't know if it's true and proven or not, but when we were in his last year of going to school (5th),,,,he was sick a lot. Not physically puking or anything,,,,but stomach aches and just not feeling well.Doc said it was psychological. And that people in bad situations can honestly feel sick although they aren't.The minute the stressors were gone, he didn't show any more symptoms.Ahhhhh, Laughter................RobinFrom: <kiwizmommy >Subject: ( ) questions?? Date: Monday, April 26, 2010, 4:21 PM hi everyone! i just had a quick question, does it seem like aspie kids gets sick more often? is there any evidence 2 that? any comments would b great! thanx again

[Guest guest]

my son seems to have the same thing, but when i ask him about the situation, with some pulling, he tells me that there are people or situations at the school bothering him.

From: and/or Robin Lemke <jrisjs@...> Sent: Tue, April 27, 2010 10:42:15 AMSubject: Re: ( ) questions??

Hi,

I don't know if it's true and proven or not, but when we were in his last year of going to school (5th),,,,he was sick a lot. Not physically puking or anything,,,, but stomach aches and just not feeling well.

Doc said it was psychological. And that people in bad situations can honestly feel sick although they aren't.

The minute the stressors were gone, he didn't show any more symptoms.

Ahhhhh, Laughter.... ......... ...

Robin

From: <kiwizmommy (DOT) com>Subject: ( ) questions?? Date: Monday, April 26, 2010, 4:21 PM

hi everyone! i just had a quick question, does it seem like aspie kids gets sick more often? is there any evidence 2 that? any comments would b great! thanx again

[Guest guest]

my husband has Aspergers and he has the worst seasonal allergies I have ever seen!

I can't speak for aspie kids in general, but our daughter rarely gets sick and when she does, it doesn't really phase her. She's had one ear infection and probably maybe only 5 or less colds in her 7 years. However, a year ago she developed septicemia (blood infection), Fifths Disease and strep all in a two week period. She didn't bat an eye at any of it other to complain that her throat hurt.

Allergies are another story...I'm pretty sure she's inherited my very rotten tendency to be allergic to everything.

~Cheryl S.

Hi everyone! I just had a quick question, does it seem like aspie kids gets sick more often? Is there any evidence 2 that? Any comments would b great! Thanx again

“Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.†- Steve Jobs

[Guest guest]

Hi,

I don't know if you were asking me or not, but thought I'd tell you what I felt.

he he.

When mornings were horrible - not just not wanting to go to school, but

breakdowns. Sadness.....pure and simple. WHen he'd get home and freak out so

badly on everyone....but not cause he could help it - it was like he just

couldn't be " ok " . When every single fricken day seemed like it was filled with

someone at the school letting me know something negative. Or with my son always

seem sad. But,,,,weekends were good. Then, bam!....Monday would come toooooo

fast and it would start all over.

For us,,,,,I just couldn't/wouldn't put him through it anymore.

I felt that without the " BS " he'd be better. I want' against meds, but it

seemed like there was always another one that " may work a little better' and

" make him fit a bit more'. He was miserable and wo were we as a family.

So.....that was our reason for doing it. It changed him.....immediately. It

was the best summer ever, cause he finished 5th grade, but knew 6th would be at

home. He was in Heaven and happy. When I say that the stressors were

gone,,,,,man, they really were!!! He changed.

Sorry for the book.

Ahhhhh, Laughter................Robin

>

>

> From: <kiwizmommy (DOT) com>

> Subject: ( ) questions??

>

> Date: Monday, April 26, 2010, 4:21 PM

>

>

>  

>

> hi everyone! i just had a quick question, does it seem

> like aspie kids gets sick more often? is there any evidence

> 2 that? any comments would b great! thanx again

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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>

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[Guest guest]

I dont know where you are located but you need to get yourself familiar with IDEA which is Federal. I know that in FL, they offered my son a scolarship to chose to go to another public school, or even a private chool (I chose private school) at the state's funding dependent upon his IEP. If there is not an IEP yet, push for one, this is important!!!! I will search through my IDEA notes on some key facts for you.

From: "deabakcp@..." <deabakcp@...> Sent: Tue, April 27, 2010 1:47:03 PMSubject: Re: ( ) questions??

My 14 year old child has just been diagnosed with asperger's. We are having major problems with school. We are having to fight for testing even though his pdoc has sent a letter. I am frustrated and am considering homeschooling. What are your ideas on this? Sent on the Sprint® Now Network from my BlackBerry®

From: and/or Robin Lemke <jrisjs (DOT) com>

Date: Tue, 27 Apr 2010 07:42:15 -0700 (PDT)

< >

Subject: Re: ( ) questions??

Hi,

I don't know if it's true and proven or not, but when we were in his last year of going to school (5th),,,,he was sick a lot. Not physically puking or anything,,,, but stomach aches and just not feeling well.

Doc said it was psychological. And that people in bad situations can honestly feel sick although they aren't.

The minute the stressors were gone, he didn't show any more symptoms.

Ahhhhh, Laughter.... ......... ...

Robin

From: <kiwizmommy (DOT) com>Subject: ( ) questions?? Date: Monday, April 26, 2010, 4:21 PM

hi everyone! i just had a quick question, does it seem like aspie kids gets sick more often? is there any evidence 2 that? any comments would b great! thanx again

[Guest guest]

That does not seem to be the case with my ds. She is always complaining that her sister gets more "sick days" from school than she does From: kiwizmommy@...Date: Mon, 26 Apr 2010 21:21:41 +0000Subject: ( ) questions??

hi everyone! i just had a quick question, does it seem like aspie kids gets sick more often? is there any evidence 2 that? any comments would b great! thanx again

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

If all else fails, homeschooling is an option, but may not be the best if your

son is like mine and craves to be around other people and is easily distracted

when left on his own.

I had a really, really hard time getting the school to do a thorough assessment,

even tho I already had 3 doctors reports stating that my son had AS. If I were

you, I would step back from the school work and let my child do it alone. Don't

go to extraordinary lengths to help with homework or follow up on homework

assignments so that teachers and the IEP team can get a more accurate picture of

where your son needs help. Your son's grades may drop dramatically, but that

will help your cause because then the school can't argue that his disability is

not having an impact on his education. Please get an advocate to go to the

meetings with you. The advocate will know what to say to get around the

roadblocks. Mine was able to get an assessment for my son. Then I got a lawyer

and the lawyer got the school district to pay for a private school for kids with

AS - which changed my son's life for the better. He started smiling again from

the first day he was at the new school.

My son's worst years were from 13 to 15. So hang in there.

[Guest guest]

OMG it was nice to hear the worst years are 13 - 15, not that you had it but

that I might be over the worst of it

Kel

Sent from my iPhone

[Guest guest]

Hi ,I am a new mom in this site, I have a 8 yrs old AS and dyslexic son and I am in the process of moving to a better district for our son. I read your post, could you please share the name of the school district that sent your son into a private school for Asperger's. I am willing to get an advocate and a lawyer but first I would like to try a good district. I am in NJ (northern) where did your son go to school? can you share also the name of your lawyer? please help I am so lost. Thank you.From: <tamaoki_s@...> Sent: Wed, April 28, 2010 12:50:30 PMSubject: ( ) Re: questions??

If all else fails, homeschooling is an option, but may not be the best if your son is like mine and craves to be around other people and is easily distracted when left on his own.

I had a really, really hard time getting the school to do a thorough assessment, even tho I already had 3 doctors reports stating that my son had AS. If I were you, I would step back from the school work and let my child do it alone. Don't go to extraordinary lengths to help with homework or follow up on homework assignments so that teachers and the IEP team can get a more accurate picture of where your son needs help. Your son's grades may drop dramatically, but that will help your cause because then the school can't argue that his disability is not having an impact on his education. Please get an advocate to go to the meetings with you. The advocate will know what to say to get around the roadblocks. Mine was able to get an assessment for my son. Then I got a lawyer and the lawyer got the school district to pay for a private school for kids with AS - which changed my son's life for the better. He started smiling again from the first day he was at the

new school.

My son's worst years were from 13 to 15. So hang in there.

[Guest guest]

My son got sick a lot his first 2 years of life, but since then his immune

system has been amazing. He almost never gets anything, and when he does he

gets over it quickly.

ah

>

> hi everyone! i just had a quick question, does it seem like aspie kids gets

sick more often? is there any evidence 2 that? any comments would b great! thanx

again

>

[Guest guest]

14 is really late to be diagnosed, and it seems like everything in school works

so slowly. How is he doing in school? That should definitely figure in your

decision. It will take pretty much at least half of next school year to get him

tested by the school and then given an IEP. But if you have a good principal or

if you have a good advocate to help, you might be able to get him a 504 plan for

the next school year with your doctor's diagnosis. Your doctor would need to

write what things your child would need physically different to help with this.

This won't get him any therapies, but it might help when he has outbursts or if

he needs more space in lines and moving from class to class. You probably also

want to read as much as you can about Asperger's and approach each of his

teachers to help them understand that certain easy things they can do can help

them have an easier time with your son in class. (When talking with teachers

they always respond better when you're saying things will be easier). Let them

know that if they write instructions on the board, your son can understand and

respond better. Let them know that he won't learn well in groups, and that

he'll need the chance to work by himself when learning is going on. Let them

know that if he starts to have a meltdown, that there should be a way for them

to let him go somewhere he'll be safe (nurse, counselor, another teacher he

knows well) without getting in trouble for it. There are many more things that

can help him in each individual class while the district works on getting an IEP

in place. Good luck, and I hope you'll use this site to get some good ideas.

ah

>

>

> From: <kiwizmommy@...>

> Subject: ( ) questions??

>

> Date: Monday, April 26, 2010, 4:21 PM

>

>

>  

>

>

>

> hi everyone! i just had a quick question, does it seem like aspie kids gets

sick more often? is there any evidence 2 that? any comments would b great! thanx

again

>

[Guest guest]

My son was also diagnosed at 14, with ya on that one. He was denied funding and

I am on Oz so no help to you sorry.

Sent from my iPhone

[Guest guest]

Same here. Very sick for first 5 years but now good.

Sent from my iPhone

[Guest guest]

Batten down the hatches, Elinor!! Mine is turning 13 in a few months, was dx

just a yr ago...I can attest to the fact that things are definitely harder at

this age. I feel like we are being dragged into something we may not survive!!

Going to need my sense of humour to survive this phase FOR SURE!! He is like a

tornado...you see it coming, but you know there is nothing you can do but hang

on for dear life! Then, it passes...for a few hours at least...so you clean up

the damage and start again. The joys!

>

> I am going to ignore this post altogether !  lol

> Mine is just 11 newly diagnoised !  : O   

> Elinor

>

>

>

>

> ________________________________

> From: Mayne <jazjamloch@...>

> " " < >

> Sent: Wed, April 28, 2010 4:10:15 PM

> Subject: ( ) Re: questions??

>

>  

> OMG it was nice to hear the worst years are 13 - 15, not that you had it but

that I might be over the worst of it

> Kel

>

> Sent from my iPhone

>

[Guest guest]

if salivary gland is stimulated on one side there will be bilateral secretionPalatoglossus and palatopharyngeal are involves in snoring.i didnt get ur third questionFrom: Zindagi Smiles <zindagismiles@...> Sent: Friday, June 10, 2011 11:18 PMSubject: questions??

1. Distance of maxillary sinus from upper 2nd premolar?

2. If salivary gland is stimulated on one side what ll b the response,

Bilateral, ipsilateral or contralateral?

3.muscle involved in snoring?

4.why tounge should b touching the palate?

5. Venous drainage of premaxilla?

Plz help me wth answers .

Thanks.

Puja.

..

On Sat, 11 Jun 2011 01:27 IST Nidhi Kapoor wrote:

>I too downloaded your book Zubair..

>

>Thanx is the only word

>

>Regards

>Nidhi

>

>

>________________________________

>From: Zubair Mohammed <dr.zubairali@...>

>

>Sent: Friday, 10 June 2011, 20:05

>Subject: Re: link for netter atlas

>

>

>

>Hi Zindagi,

>

>I have the Netter atlas but I can't send it because the file size is too large. I am not sure where I downloaded it so I can't give a link to download. However, I have uploaded it on a virtual drive so you can download it from there. The virtual drive is at the following address:

>

>www.drivehq.com

>

>username: .Books

>Password: dentist01

>

>

>If you, or anyone else has a problem accessing it, please email me. I will be uploading more books on this virtual drive in the near future, so do look into it again. If anyone else has some books, please feel free to upload them on this drive. It is for all to use, as I have made a separate email address associated with the account. Hope it helps.

>

>Regards,

>Zubair

>

>

>On Fri, Jun 10, 2011 at 7:00 PM, Zindagi Smiles <zindagismiles@...> wrote:

>

>

>>hi anyones got e- copy of netter atlas thn pls send it across.

>>Thanks.

>>Puja.

>>

>>On Fri, 10 Jun 2011 16:31 IST Faye wrote:

>>

>>>No problem!

>>>

>>>Sent from my iPhone

>>>

>>>On 10 Jun 2011, at 10:44, Rossana Valtes <rvaltes@...> wrote:

>>>

>>>> Thank you Faye!

>>>>

>>>>

>>>> Rossana

>>>>

>>>>

>>>>

>>>>

>>

>>

>

>

[Guest guest]

hi thanks cn i gimme th references pls..

Regards.

On Sat, 11 Jun 2011 21:30 IST Swati Sheokand wrote:

>if salivary gland is stimulated on one side there will be bilateral secretion

>Palatoglossus and palatopharyngeal are involves in snoring.

>i didnt get ur third question

>

>

>________________________________

>From: Zindagi Smiles <zindagismiles@...>

>

>Sent: Friday, June 10, 2011 11:18 PM

>Subject: questions??

>

>

> 

>1. Distance of maxillary sinus from upper 2nd premolar?

>

>2. If salivary gland is stimulated on one side what ll b the response,

>Bilateral, ipsilateral or contralateral?

>

>3.muscle involved in snoring?

>

>4.why tounge should b touching the palate?

>

>5. Venous drainage of premaxilla?

>

>Plz help me wth answers .

>Thanks.

>Puja.

>

>.

>

>On Sat, 11 Jun 2011 01:27 IST Nidhi Kapoor wrote:

>

>>I too downloaded your book Zubair..

>>

>>Thanx is the only word

>>

>>Regards

>>Nidhi

>>

>>

>>________________________________

>>From: Zubair Mohammed <dr.zubairali@...>

>>

>>Sent: Friday, 10 June 2011, 20:05

>>Subject: Re: link for netter atlas

>>

>>

>> 

>>Hi Zindagi, 

>>

>>I have the Netter atlas but I can't send it because the file size is too

large.  I am not sure where I downloaded it so I can't give a link to download.

 However, I have uploaded it on a virtual drive so you can download it from

there.  The virtual drive is at the following address:

>>

>>www.drivehq.com

>>

>>username: .Books

>>Password:  dentist01

>>

>>

>>If you, or anyone else has a problem accessing it, please email me.  I will be

uploading more books on this virtual drive in the near future, so do look into

it again.  If anyone else has some books, please feel free to upload them on

this drive.  It is for all to use, as I have made a separate email address

associated with the account.  Hope it helps.

>>

>>Regards, 

>>Zubair

>>

>>

>>On Fri, Jun 10, 2011 at 7:00 PM, Zindagi Smiles <zindagismiles@...>

wrote:

>>

>> 

>>>hi anyones got e- copy of netter atlas thn pls send it across.

>>>Thanks.

>>>Puja.

>>>

>>>On Fri, 10 Jun 2011 16:31 IST Faye wrote:

>>>

>>>>No problem!

>>>>

>>>>Sent from my iPhone

>>>>

>>>>On 10 Jun 2011, at 10:44, Rossana Valtes <rvaltes@...> wrote:

>>>>

>>>>> Thank you Faye!

>>>>>

>>>>>

>>>>> Rossana

>>>>>

>>>>>

>>>>>

>>>>>

>>>

>>>

>>

>>

>

>

[Guest guest]

tongue shud touch palate during swallowing so as to maintain oral seal .regards maryam

>>>>

>>>>> Thank you Faye!

>>>>>

>>>>>

>>>>> Rossana

>>>>>

>>>>>

>>>>>

>>>>>

>>>

>>>

>>

>>

>

>