Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 >Does anyone know what the doc's >would recommend if you give your child all 4 of the usual ones in one >appt >and then the child has a reaction? How do they know which one did it? Well good luck trying to get him to admit it was any of the vaccines that caused the reaction. That is the first step. And many drs will tell you " It is only a coincidence " . I don't know what area you are in, but I would find a doctor first who does not push vaccines. They are around, but they seem hard to find. That way he will hopefully be open-minded if your child has a reaction to any of the vaccines. >I was thinking that if we start >with DTaP, IPV, and MMR after 1 year, we'd do 1 shot, then wait 2 weeks and >go in to see the nurse for another shot, and then go in 2 weeks later for >another. I don't think that you could go in every 2 weeks even if you wanted to. First it takes several weeks sometimes for the child to recover from the shot. I am pretty sure that's why they are 2 mo. apart. You probably won't be able to do them more frequently than the 2 mo. apart even if you only gave him one shot at a time. I think that seems like the safest if you have decided to go ahead with the vaccinations. Hope this helps! Kim Mom to Sami (almost 11 mo!!) ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 diane, i probably don't have the best answers to all of these questions, there are people on this list that would be alot better at answering these questions with stats to back themselves up with, but there were a few things i thought of that you'd might like to tell this parent: 1. one risk factor of vaxing sooner rather than later is the level of thimerasol in the vaccines. on the other hand, the down side of deciding to wait to vax (other than these vaccines contain poisons! <smirk>)until they are 2, 3 or 4 years old, is that, by that age they are no longer being breastfed (usually) and BM probably helps keep babies strong after vaxes, and also, that they are generally around alot more people and places at that age, where they are exposed to more " things " . 2. i don't know the answer to the benefit of all doses of, dpat for example, as opposed to only 2 doses of it. (i tend to doubt the effeciency of any/all vaxes, personally, as people who do receive vaccines do get the very diseases they have been vaxed against and there really is no " proof " that vaxing works at all--the only proof anyone has is the theory behind the vaccination process and that many of the diseases we vax for, the incidence rate seems to have dropped (in the us at least) similarly in connection with vaccine introduction--but that's a whole other debate). 3. if this parent is inclined to give 1 vax at a time, just so she/he can then ascertain which vax their child is having a reaction to, then i ask, why are you vaxing, when you are that aware of the risk/danger in the first place?????? i would worry more about what the constant entry of toxins into my babies body, every 2 weeks or so (EEK !!!!!), that's got to be extremely tough on an immune system, instead of worrying that he'll be upset by going to the dr.s that often. basically, my advice for this parent is to decide why they feel the need to continue vaccinating their baby, when they obviously have concerns and are aware of the dangers. there are 2 things that i always have to think about in regards to vaccines; 1--once it goes in, you can't take it out and, 2--what are the chances of your child contracting any/all of these " vaccine-preventable " illnesses anyway and if they do, what are the chances that they'll have any serious complications with them?? i'll take my chances with what i get--naturally--not thru a needle. JMO. hope some of this helps. brigit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 Diane, You might want to read " Take Charge of Your Child's Health " by Wootan, M.D. He has a chapter specifically on immunizations which is extremely helpful. Cyndy North Carolina Question for you all > Sorry I keep doing this, but people come to me and I just don't have a great > answer, so I leave it up to your incredible collections of minds. LOL. Can > you help me with these questions? > > Diane > > Background: Jasper is just over 4 months and has had only 3 shots in his > life: Vit K at birth (after much consideration), and 2 installments of the > HIB vaccine. We are considering each vaccination separately as to whether > to give it to him at all, and if so, when to start the series. Other than > HIB, we aren't planning to start any other vaccinations until he is at least > 1 year old, ideally 2+. Here are my questions: > > 1. What are the " risk factors " that would suggest we should vaccinate > sooner as opposed to later? He won't be in daycare, we don't live in > unsanitary conditions and there's no rusty nails around the house, and we > aren't planning on going to any parties with 10 babies who might carry > illnesses. We pretty much feel like he'll be exposed to more " risk " by > having the vaccinations too young (considering the doses are the same for a > 4 month old as for a 4 year old!). BUT, are there things I'm overlooking > that he might be exposed to? > > 2. We are planning a trip to St. Maarten when he's 17 months old, and a > trip to the UK when he's just over 2 years. I looked up these locations on > the CDC website for travel, and there doesn't seem to be any indication that > he'd be at risk for anything in these locations. No malaria in St. Maarten, > thank goodness, and he'd be old enough for some mild bug spray by then if > necessary. If we decided to start any vaccinations before he's 17 months, > which would you recommend? Does anyone know how effective it would be for > him to have only had 1-2 installments of DTaP, for instance? Of course, the > CDC website only says their usual recommended vaccination schedule, and > doesn't say anything effectiveness of lesser or later dosing. > > 3. I am very inclined to give him only 1 vaccination at a time, so we'd > know if he has a reaction to any of them. Does anyone know what the doc's > would recommend if you give your child all 4 of the usual ones in one appt > and then the child has a reaction? How do they know which one did it? Do > you think he'll be mentally " traumatized " by going to the doc more in order > to have the injections done separately? I was thinking that if we start > with DTaP, IPV, and MMR after 1 year, we'd do 1 shot, then wait 2 weeks and > go in to see the nurse for another shot, and then go in 2 weeks later for > another. Then, 2-3 months later, we'd go again for the same 3 appt routine. > I'm not concerned about the cost of extra appts, just whether Jasper might > be upset by going so many times. And how do I weigh that against the cons > of having 3 injections in one day. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 Dr Wootan wrote an exemption letter for my son in 1982. He had his med license challenged. But I don't know what happened to him since. Does he still reside in Hurley, NY. Or does he have a new address? (is it listed in the book?) gary On Wed, 2 Aug 2000 11:23:42 -0400 " Eddie Bunn " <bunnfam@...> writes: > Diane, > > You might want to read " Take Charge of Your Child's Health " by > > Wootan, M.D. He has a chapter specifically on immunizations which > is > extremely helpful. > > Cyndy > North Carolina > Question for you all > > > > Sorry I keep doing this, but people come to me and I just don't > have a > great > > answer, so I leave it up to your incredible collections of minds. > LOL. > Can > > you help me with these questions? > > > > Diane > > > > Background: Jasper is just over 4 months and has had only 3 shots > in his > > life: Vit K at birth (after much consideration), and 2 > installments of > the > > HIB vaccine. We are considering each vaccination separately as to > whether > > to give it to him at all, and if so, when to start the series. > Other than > > HIB, we aren't planning to start any other vaccinations until he > is at > least > > 1 year old, ideally 2+. Here are my questions: > > > > 1. What are the " risk factors " that would suggest we should > vaccinate > > sooner as opposed to later? He won't be in daycare, we don't live > in > > unsanitary conditions and there's no rusty nails around the house, > and we > > aren't planning on going to any parties with 10 babies who might > carry > > illnesses. We pretty much feel like he'll be exposed to more > " risk " by > > having the vaccinations too young (considering the doses are the > same for > a > > 4 month old as for a 4 year old!). BUT, are there things I'm > overlooking > > that he might be exposed to? > > > > 2. We are planning a trip to St. Maarten when he's 17 months old, > and a > > trip to the UK when he's just over 2 years. I looked up these > locations > on > > the CDC website for travel, and there doesn't seem to be any > indication > that > > he'd be at risk for anything in these locations. No malaria in > St. > Maarten, > > thank goodness, and he'd be old enough for some mild bug spray by > then if > > necessary. If we decided to start any vaccinations before he's 17 > months, > > which would you recommend? Does anyone know how effective it > would be for > > him to have only had 1-2 installments of DTaP, for instance? Of > course, > the > > CDC website only says their usual recommended vaccination > schedule, and > > doesn't say anything effectiveness of lesser or later dosing. > > > > 3. I am very inclined to give him only 1 vaccination at a time, > so we'd > > know if he has a reaction to any of them. Does anyone know what > the doc's > > would recommend if you give your child all 4 of the usual ones in > one appt > > and then the child has a reaction? How do they know which one did > it? Do > > you think he'll be mentally " traumatized " by going to the doc more > in > order > > to have the injections done separately? I was thinking that if we > start > > with DTaP, IPV, and MMR after 1 year, we'd do 1 shot, then wait 2 > weeks > and > > go in to see the nurse for another shot, and then go in 2 weeks > later for > > another. Then, 2-3 months later, we'd go again for the same 3 > appt > routine. > > I'm not concerned about the cost of extra appts, just whether > Jasper might > > be upset by going so many times. And how do I weigh that against > the cons > > of having 3 injections in one day. > > > > > > > > > > > > > > > > > > > > > > ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Have any of you had a child with JRA who was misdiagnosed with hypermobility joint syndrome or any other syndrome? Maud, Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Hi Faye, If you have what's known as pretibial myxedema, which affects the skin on the lower legs, it might not clear up until you achieve remission from Grave's disease. Tapazole will help with this since it helps lower thryoid antibody production, and this condition is caused by the same thryoid antibodies that cause hyperthryoidism. Sometimes, topical corticosteroid creams are very helpful. Best, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Hi , No, I don't get any checkups in between casts. As a matter of fact has been in his current cast for 3 1/2 months and we leave for Utah on Sunday for his 4th cast. That is interesting though. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 , Sometimes our Dr. will xray him 24 hours after his cast is removed before his next cast. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Good luck with his 4th casting Crista. Interesting that you don't know what his curves are before he goes for casting. Perhaps we are x-rayed too much?cristab@... wrote: Hi ,No, I don't get any checkups in between casts. As a matter of fact has been in his current cast for 3 1/2 months and we leave for Utah on Sunday for his 4th cast.That is interesting though.Crista Moving house? Beach bar in Thailand? New Wardrobe? Win £10k with to make your dream a reality. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 hi, Its my understanding that the POP jackets should remain on the babe for no less than 8 to 12 weeks, depending on where you live and how the cast holds up. If the cast seems to be loosing its original form, suggest a very thin layer of fiberglass. HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. Thanks again for the all help and advice you have provided to me since I joined this group! Angi Clifton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 our most significant challenge is most definitely the meltdowns (associated with his rigidity and sensory issues). If we could take the meltdowns away, our child would be quirky, but life would be a lot less stressful Miranda > > I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). > > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. > > Thanks again for the all help and advice you have provided to me since I joined this group! > > Angi Clifton > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2010 Report Share Posted September 21, 2010 Hi there, I think it's great you are getting first hand experience and that you are studying.I have to say that there are alot of issues I deal with daily. The most difficult and heart wrenching would be the depression. Because he has spent the last 15 years trying to fit in and has been 'in trouble' alot and has struggled at school. The daily fight with depression is awful. When he was little he didn't seem to care that he didn't fit in but now he tries so hard. I know others deal with depression too. As a parent you feel so helpless when they say they want to end their life, that they don't fit in, they want it all too stop etc. I am sure you will get other feedback about other issues. I will keep climbing the mountain.Sent from Kel's iPhone On 21/09/2010, at 2:55 PM, "angela" <angi_400@...> wrote: I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. Thanks again for the all help and advice you have provided to me since I joined this group! Angi Clifton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 ne, I agree with you. If my 15yr DS can overcome both he will not have behaviors that is a daily struggle. - From: susanne hansen <s_hansen34@...> Sent: Tue, September 21, 2010 10:59:24 AMSubject: Re: ( ) Re: Question for you all Angi, I'd have to say the primary challenge is the lack of social skills and the difficulty learning/understanding social norms. If my son could get better at that he would have less issues in school, he would have friends and therefor he would probably have less meltdowns. So definitely social skills deficite would be the main challenge. Second, is getting teachers and others to understand Aspergers and know that our kids are different. Maybe they would be less judgemental of them and us. I'm working on my BS in Psych too. Good luck! ne From: baileybear64 <baileybear64@...>Subject: ( ) Re: Question for you all Date: Tuesday, September 21, 2010, 8:22 AM our most significant challenge is most definitely the meltdowns (associated with his rigidity and sensory issues). If we could take the meltdowns away, our child would be quirky, but life would be a lot less stressful Miranda>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 Angi, my daughter Liz is 13 with AS. I would say the biggest challenges we face are dealing with her high emotions (it takes very little to make her cry) and her lack of organization. we have to be constantly on her about getting her assignments done and handed in. From: baileybear64@...Date: Tue, 21 Sep 2010 12:22:51 +0000Subject: ( ) Re: Question for you all our most significant challenge is most definitely the meltdowns (associated with his rigidity and sensory issues). If we could take the meltdowns away, our child would be quirky, but life would be a lot less stressful Miranda > > I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). > > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. > > Thanks again for the all help and advice you have provided to me since I joined this group! > > Angi Clifton > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 Mine would be the meltdowns/anger/aggression. Used to be more panic attacks and crying and now it has become more outwardly directly (hitting, throwing things). He's 8 1/2. Really stinks. Without that, I would not mind the Asperger's so much. Could handle food sensitivity, rigidity, sensory issues, etc. if the resulting upset didn't involve hitting me or anyone else. Sigh.  E.V. Downey On Fri, Sep 24, 2010 at 1:23 PM, Barbara Pinckney <b-pinckney@...> wrote:  Angi, my daughter Liz is 13 with AS. I would say the biggest challenges we face are dealing with her high emotions (it takes very little to make her cry) and her lack of organization. we have to be constantly on her about getting her assignments done and handed in. From: baileybear64@...Date: Tue, 21 Sep 2010 12:22:51 +0000 Subject: ( ) Re: Question for you all our most significant challenge is most definitely the meltdowns (associated with his rigidity and sensory issues). If we could take the meltdowns away, our child would be quirky, but life would be a lot less stressful Miranda>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). > > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. > > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2010 Report Share Posted September 25, 2010 Hi , My biggest challenge is coping with the sheer exhaustion of raising this child. I am completely drained every day. The isolation & exhaustion combine to form a pretty fierce depression. -- (mom of 4yo Aspergian) From: angela <angi_400@...>Subject: ( ) Question for you all Date: Tuesday, September 21, 2010, 12:55 AM I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.Thanks again for the all help and advice you have provided to me since I joined this group!Angi Clifton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2010 Report Share Posted September 26, 2010 I really applaud people like you who can take on parenting challenged child, full time school, etc. I tried school but it didn't happen,was too much, will wait til kids are a little more independent or at least grown more. My son is also 7, ADHD, suspected AS. What are your challenges? I find the same thing but I have outside relatives, and his kindergarten teacher from 2 years ago, who said, "there's something wrong with your child." All the way to immediate family members who are in denial saying, he's just a boy, or they do not really take me seriously. Then I also have some people blaming my poor parenting skills saying, "if you were more strict, or more routined, or a calmer parent" etc. So my head is spinning. Do you find that also? cathleen From: dani_gallagher83 <Dmgallagher83@...> Sent: Sun, September 26, 2010 7:16:48 AMSubject: ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2010 Report Share Posted September 27, 2010 This totally describes how I feel as a mother of my aspie. My heart breaks and I cry when I think what the future holds. No one can understand unless they have an aspie child. From: jrushen@...Date: Sun, 26 Sep 2010 17:26:32 -0700Subject: Re: ( ) Re: Question for you all There are so many difficulties raising a child with Aspergers. 1. Your friends don't understand your problems or stress....for instance...I have a teenagers...and my friends always tell me ...oh he is just a typical teenagers...we all have that problem....but they don't. I end up not talking to them about it as they can never realize how much harder it is to raise a teen with AS. 2. Worry...the worry for your child...what does the future hold. Will he be able to function and hold down a job and take care of himself. 3. Pain...the pain you have knowing your child has no friends or loses friends easily. The pain knowing your child feels different. The pain knowing your child has been bullied or teased. 4. Fustration because teachers don't understand your child and the way he thinks. 5. Frightened because your child is ANGRY! and won't talk to you...won't tell you what is going on... 6. Horrified that he/she may be misunderstood and end up in legal trouble. 7. Tired...tired from all the battles...battles with the school, battles at home doing homework.... 8. Depressed because I feel I can not help him. Depressed that he can not enjoy the things others do such as going to a dance or joining the swim team. 9. Sad because I love him so much and his life is hard and he is angry and depressed. 10. Hopeless at times until I connect with others on this site and know I am not the only one feeling this way. "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: dani_gallagher83 <Dmgallagher83@...> Sent: Sun, September 26, 2010 10:16:48 AMSubject: ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 I think one of the GREAT things about AS is that it doesn't effect them one way or the other. I had gone to Maddie's award assembly because she was getting an award. We were living in Hawaii at the time and the school she went to had a good amount of military children, but mostly local Hawaiian students. I had MANY struggles with the school so this was just the last straw. A few other students had gone up to get their awards and the kids were yelling and clapping and rooting for their classmates. Madeline went up to get her award..they misprounced her name (they can pronounce ALLLLL those other names, but not hers???) and the kids actually Boo'd quietly..I am hearing impaired and could hear them...I looked around at the teachers and not one of them said a DAMN thing. Madeline was oblivious to it. I had never been so extremely happy that she had AS at that moment. I went to bible study and sat there just bawling. We moved soon after that to Colorado. Mom to my 4 girls Madeline, Cayla, Arabella, & Vincenza "You are the TRIP I did not take You are the PEARLS I cannot buy You are the blue Italian LAKE YOU are my piece of foreign SKY" ---Anne ---- ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le > > I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). > > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. > > Thanks again for the all help and advice you have provided to me since I joined this group! > > Angi Clifton > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 I printed it out so I know I am not alone at those times when I feel like it's not her , it's me! Mom to my 4 girls Madeline, Cayla, Arabella, & Vincenza "You are the TRIP I did not take You are the PEARLS I cannot buy You are the blue Italian LAKE YOU are my piece of foreign SKY" ---Anne ---- ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le > > I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc). > > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed. > > Thanks again for the all help and advice you have provided to me since I joined this group! > > Angi Clifton > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 Very well said.. I feel this way too. I remind myself daily that God made our children perfect in his eyes..... just the way they are! From: debbie meyers <preciousdeb@...>Aspergers Treatment Sent: Mon, September 27, 2010 11:42:20 PMSubject: RE: ( ) Re: Question for you all This totally describes how I feel as a mother of my aspie. My heart breaks and I cry when I think what the future holds. No one can understand unless they have an aspie child. From: jrushen@...Date: Sun, 26 Sep 2010 17:26:32 -0700Subject: Re: ( ) Re: Question for you all There are so many difficulties raising a child with Aspergers. 1. Your friends don't understand your problems or stress....for instance...I have a teenagers...and my friends always tell me ...oh he is just a typical teenagers...we all have that problem....but they don't. I end up not talking to them about it as they can never realize how much harder it is to raise a teen with AS. 2. Worry...the worry for your child...what does the future hold. Will he be able to function and hold down a job and take care of himself. 3. Pain...the pain you have knowing your child has no friends or loses friends easily. The pain knowing your child feels different. The pain knowing your child has been bullied or teased. 4. Fustration because teachers don't understand your child and the way he thinks. 5. Frightened because your child is ANGRY! and won't talk to you...won't tell you what is going on... 6. Horrified that he/she may be misunderstood and end up in legal trouble. 7. Tired...tired from all the battles...battles with the school, battles at home doing homework.... 8. Depressed because I feel I can not help him. Depressed that he can not enjoy the things others do such as going to a dance or joining the swim team. 9. Sad because I love him so much and his life is hard and he is angry and depressed. 10. Hopeless at times until I connect with others on this site and know I am not the only one feeling this way. "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: dani_gallagher83 <Dmgallagher83@...> Sent: Sun, September 26, 2010 10:16:48 AMSubject: ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 Same here. From: cathleen.veloria@...Date: Sun, 26 Sep 2010 22:40:19 -0700Subject: Re: ( ) Re: Question for you all Your post brought tears to my eyes. I guess I never looked at it like that. The way you worded it really hit home. Cathleen From: rushen janice <jrushen@...> Sent: Sun, September 26, 2010 5:26:32 PMSubject: Re: ( ) Re: Question for you all There are so many difficulties raising a child with Aspergers. 1. Your friends don't understand your problems or stress....for instance...I have a teenagers...and my friends always tell me ...oh he is just a typical teenagers...we all have that problem....but they don't. I end up not talking to them about it as they can never realize how much harder it is to raise a teen with AS. 2. Worry...the worry for your child...what does the future hold. Will he be able to function and hold down a job and take care of himself. 3. Pain...the pain you have knowing your child has no friends or loses friends easily. The pain knowing your child feels different. The pain knowing your child has been bullied or teased. 4. Fustration because teachers don't understand your child and the way he thinks. 5. Frightened because your child is ANGRY! and won't talk to you...won't tell you what is going on... 6. Horrified that he/she may be misunderstood and end up in legal trouble. 7. Tired...tired from all the battles...battles with the school, battles at home doing homework.... 8. Depressed because I feel I can not help him. Depressed that he can not enjoy the things others do such as going to a dance or joining the swim team. 9. Sad because I love him so much and his life is hard and he is angry and depressed. 10. Hopeless at times until I connect with others on this site and know I am not the only one feeling this way. "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: dani_gallagher83 <Dmgallagher83@...> Sent: Sun, September 26, 2010 10:16:48 AMSubject: ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2010 Report Share Posted September 28, 2010 Just about every time I read the postings here, I am reduced to tears...finally someone really knows what I am going through every single day...the concern, the worrying about his future, and the fact that most people can't see that he needs a little more help/consideration than the "average" child and thinks that he's just being rude when he won't say "hi" or "good-bye". As a single mom, I recently made the decision to take a break from pursuing my MBA, so that I can be fully available for my 7 year-old son's homeschooling needs. Th past year was sooooo stressful...I have to stop and re-direct how we we're doing things.OforiwaFrom: Barbara Pinckney <b-pinckney@...>Subject: RE: ( ) Re: Question for you allAspergers Treatment Date: Tuesday, September 28, 2010, 4:48 PM Same here. From: cathleen.veloria@...Date: Sun, 26 Sep 2010 22:40:19 -0700Subject: Re: ( ) Re: Question for you all Your post brought tears to my eyes. I guess I never looked at it like that. The way you worded it really hit home. Cathleen From: rushen janice <jrushen@...> Sent: Sun, September 26, 2010 5:26:32 PMSubject: Re: ( ) Re: Question for you all There are so many difficulties raising a child with Aspergers. 1. Your friends don't understand your problems or stress....for instance...I have a teenagers...and my friends always tell me ...oh he is just a typical teenagers...we all have that problem....but they don't. I end up not talking to them about it as they can never realize how much harder it is to raise a teen with AS. 2. Worry...the worry for your child...what does the future hold. Will he be able to function and hold down a job and take care of himself. 3. Pain...the pain you have knowing your child has no friends or loses friends easily. The pain knowing your child feels different. The pain knowing your child has been bullied or teased. 4. Fustration because teachers don't understand your child and the way he thinks. 5. Frightened because your child is ANGRY! and won't talk to you...won't tell you what is going on... 6. Horrified that he/she may be misunderstood and end up in legal trouble. 7. Tired...tired from all the battles...battles with the school, battles at home doing homework.... 8. Depressed because I feel I can not help him. Depressed that he can not enjoy the things others do such as going to a dance or joining the swim team. 9. Sad because I love him so much and his life is hard and he is angry and depressed. 10. Hopeless at times until I connect with others on this site and know I am not the only one feeling this way. "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: dani_gallagher83 <Dmgallagher83@...> Sent: Sun, September 26, 2010 10:16:48 AMSubject: ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 I am relieved to hear your story, because I felt very guilty about dropping my online classes last November. I had so much anxiety over the classes and home life that I got sick and fell behind. thanks, Cathleen From: Oforiwa <oforiwa27@...> Sent: Tue, September 28, 2010 3:50:57 PMSubject: RE: ( ) Re: Question for you all Just about every time I read the postings here, I am reduced to tears...finally someone really knows what I am going through every single day...the concern, the worrying about his future, and the fact that most people can't see that he needs a little more help/consideration than the "average" child and thinks that he's just being rude when he won't say "hi" or "good-bye". As a single mom, I recently made the decision to take a break from pursuing my MBA, so that I can be fully available for my 7 year-old son's homeschooling needs. Th past year was sooooo stressful...I have to stop and re-direct how we we're doing things.Oforiwa From: Barbara Pinckney <b-pinckney@...>Subject: RE: ( ) Re: Question for you allAspergers Treatment Date: Tuesday, September 28, 2010, 4:48 PM Same here. From: cathleen.veloria@...Date: Sun, 26 Sep 2010 22:40:19 -0700Subject: Re: ( ) Re: Question for you all Your post brought tears to my eyes. I guess I never looked at it like that. The way you worded it really hit home. Cathleen From: rushen janice <jrushen@...> Sent: Sun, September 26, 2010 5:26:32 PMSubject: Re: ( ) Re: Question for you all There are so many difficulties raising a child with Aspergers. 1. Your friends don't understand your problems or stress....for instance...I have a teenagers...and my friends always tell me ...oh he is just a typical teenagers...we all have that problem....but they don't. I end up not talking to them about it as they can never realize how much harder it is to raise a teen with AS. 2. Worry...the worry for your child...what does the future hold. Will he be able to function and hold down a job and take care of himself. 3. Pain...the pain you have knowing your child has no friends or loses friends easily. The pain knowing your child feels different. The pain knowing your child has been bullied or teased. 4. Fustration because teachers don't understand your child and the way he thinks. 5. Frightened because your child is ANGRY! and won't talk to you...won't tell you what is going on... 6. Horrified that he/she may be misunderstood and end up in legal trouble. 7. Tired...tired from all the battles...battles with the school, battles at home doing homework.... 8. Depressed because I feel I can not help him. Depressed that he can not enjoy the things others do such as going to a dance or joining the swim team. 9. Sad because I love him so much and his life is hard and he is angry and depressed. 10. Hopeless at times until I connect with others on this site and know I am not the only one feeling this way. "In the Midst of Difficulty lies Opportunity" Albert Einstein Success is not measured by one's position but by the obstacles one has overcome to obtain that position From: dani_gallagher83 <Dmgallagher83@...> Sent: Sun, September 26, 2010 10:16:48 AMSubject: ( ) Re: Question for you all The biggest challenges in regards to raising my son (7 y/o w/AS & ADHD) has been actually getting people..... whether it be family members, school officials or my friends to actually believe that my son has AS. They just don't 'see it' so it can't be so. Another challenge is the stress. I have found that not many of those around me can understand or relate to what I'm dealing with (as a single mom, mother of AS child, full time student), so really talking to them for stress relief is kind of pointless. Congrats at school! Keep at it! I'm only 2 semesters from garduating with a B.A. in Psych le>> I am the parent of a 12yo son with AS. Currently, I am half-way through getting my Bachelor's Degree in Psychology. For a paper I am writing currently, would any of you be willing to share some of the major challenges you face raising a child with this type of disorder. Challenges can be within your home and without (educational settings, problems with doctors, taking them out in public, etc).> > I would truly appreciate any help that anyone is willing to offer. If you would like to respond privately, please use my email address listed to do so. Responses on the group site are fine with me as well, if allowed.> > Thanks again for the all help and advice you have provided to me since I joined this group!> > Angi Clifton> Quote Link to comment Share on other sites More sharing options...
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