Need Advice

[Guest guest]

Thanks, I want to add in ALA but am very afraid(I was afraid to do the DMSA

too). We did several rounds last year and just recently started back up again.

Can I start the ALA at the same dose of the DMSA??

>

> I have a 4.5 year old boy who is making gains every week. We have been

chelating since February and he is doing well.

> If you are seeing gains, then you are doing the right thing obviously.

> I would add in ALA as soon as you feel comfortable to start removing mercury

from his brain.

> The sooner the better. As kids get older their brain takes longer to heal from

the damage caused by the metals.

> TJ

>

>

>

>

> ________________________________

> From: laura19982005 <laura19982005@...>

>

> Sent: Monday, August 17, 2009 6:41:09 AM

> Subject: [ ] Need advice

>

>  

> We recently started up chelation on my six yr old PDD son. Very high

functioning. However, he lacks in social skills, conversational skills, trouble

with Why, When questions still. Also, extremely shy. Doesn't like me to make

conversation with him, loves TV which I think I have to remove...... .

>

> Anyone have these issues resolved with chelation??. We started very low dose

DMSA. He recently did 7.5 mgs(he is 50 lbs). Can I up it to ten next. We are

doing biomedical now almost 4 yrs. He is on Valtrex, LDN, many, many supps.

>

> What am I missing, I need some encouragement. I think last round, even tho we

stirred yeast, now we have seen some speech gains.

>

> TIA

>

>

>

>

>

>

>

>

>

[Guest guest]

We use the same dose of ALA and DMSA. The way Andy explains it, ALA is the most

important because it pulls the metals out of the brain. DMSA is like a helper to

it and can increase the pull by 20-30%. DMSA also chelates Lead and other metals

that are in the body.

TJ

________________________________

From: laura19982005 <laura19982005@...>

Sent: Tuesday, August 18, 2009 5:37:00 AM

Subject: [ ] Re: Need advice

 

Thanks, I want to add in ALA but am very afraid(I was afraid to do the DMSA

too). We did several rounds last year and just recently started back up again.

Can I start the ALA at the same dose of the DMSA??

>

> I have a 4.5 year old boy who is making gains every week. We have been

chelating since February and he is doing well.

> If you are seeing gains, then you are doing the right thing obviously.

> I would add in ALA as soon as you feel comfortable to start removing mercury

from his brain.

> The sooner the better. As kids get older their brain takes longer to heal from

the damage caused by the metals.

> TJ

>

>

>

>

> ____________ _________ _________ __

> From: laura19982005 <laura19982005@ ...>

>

> Sent: Monday, August 17, 2009 6:41:09 AM

> Subject: [ ] Need advice

>

>  

> We recently started up chelation on my six yr old PDD son. Very high

functioning. However, he lacks in social skills, conversational skills, trouble

with Why, When questions still. Also, extremely shy. Doesn't like me to make

conversation with him, loves TV which I think I have to remove...... .

>

> Anyone have these issues resolved with chelation??. We started very low dose

DMSA. He recently did 7.5 mgs(he is 50 lbs). Can I up it to ten next. We are

doing biomedical now almost 4 yrs. He is on Valtrex, LDN, many, many supps.

>

> What am I missing, I need some encouragement. I think last round, even tho we

stirred yeast, now we have seen some speech gains.

>

> TIA

>

>

>

>

>

>

>

>

>

[Guest guest]

>

> We recently started up chelation on my six yr old PDD son. Very high

functioning. However, he lacks in social skills, conversational skills, trouble

with Why, When questions still. Also, extremely shy. Doesn't like me to make

conversation with him, loves TV which I think I have to remove.......

>

> Anyone have these issues resolved with chelation??.

Hi, ,

The issues you mention either have been resolved or are resolving at my house.

We're not done chelating yet.

My son started asking " why " after about 20 rounds of DMSA (for extremely high

lead). Previously he was verbal but markedly delayed, and I wondered if he would

ever ask " why. " He constantly questions things now.

Although he still lacks social skills, my son has developed a strong interest in

socializing with peers. For example, he approaches kids he doesn't know and

tries to initiate play. He didn't do that before chelation. He is also more

thoughtful. The other day when I was angry about something, he gently rubbed my

back and asked, " Why are you angry? "

As for conversation, his language is still delayed but better, and he engages in

dialogue now. Recently I took him to a park to practice basketball. He was

disappointed that no other kids were there. After a few minutes of playing by

himself, he came over to me. I asked if he was bored already. He answered: " No,

I just wanted to talk to you. What are you doing? " Wow. This is a kid with a

diagnosis of autism.

" Loves TV " was never a problem here, because my son couldn't pay attention to it

for more than a few minutes. Now he can concentrate better and prefers to watch

television *with* someone, as a shared experience.

He was diagnosed at 4 years; I would say he was moderately autistic, not severe.

I started chelating him at age 6 using the low, frequent dosing of the Cutler

protocol. He's now about 7 1/2. We have done 40+ rounds of DMSA, with the last

20+ rounds including ALA. (Copper was extremely high, so we lowered that before

introducing ALA.)

We still have problems, but things are much, much better now.

-Ann

>

> What am I missing, I need some encouragement. I think last round, even tho we

stirred yeast, now we have seen some speech gains.

>

> TIA

>

>

[Guest guest]

Hi Ann,

Thanks for writing. this is similar to my son. Doesn't get why, this is

probably why he can't hold a conversation with peers or us. My son did have

high copper when we tested that did go lower when we added zinc. I assume he

has lead, he did chew through toys when younger. I will continue with DMSA and

hopefully add ALA soon. What dose did you start at and what are you at now?

Glad to hear about the gains you are seeing, it gives me hope. I just want to

converse with my son, instead he gets mad that I ask him so many questions, I

bother him, so he says.

It must be so exciting, I hope we get there too some day.

thank you!

> >

> > We recently started up chelation on my six yr old PDD son. Very high

functioning. However, he lacks in social skills, conversational skills, trouble

with Why, When questions still. Also, extremely shy. Doesn't like me to make

conversation with him, loves TV which I think I have to remove.......

> >

> > Anyone have these issues resolved with chelation??.

>

>

> Hi, ,

>

> The issues you mention either have been resolved or are resolving at my house.

We're not done chelating yet.

>

> My son started asking " why " after about 20 rounds of DMSA (for extremely high

lead). Previously he was verbal but markedly delayed, and I wondered if he would

ever ask " why. " He constantly questions things now.

>

> Although he still lacks social skills, my son has developed a strong interest

in socializing with peers. For example, he approaches kids he doesn't know and

tries to initiate play. He didn't do that before chelation. He is also more

thoughtful. The other day when I was angry about something, he gently rubbed my

back and asked, " Why are you angry? "

>

> As for conversation, his language is still delayed but better, and he engages

in dialogue now. Recently I took him to a park to practice basketball. He was

disappointed that no other kids were there. After a few minutes of playing by

himself, he came over to me. I asked if he was bored already. He answered: " No,

I just wanted to talk to you. What are you doing? " Wow. This is a kid with a

diagnosis of autism.

>

> " Loves TV " was never a problem here, because my son couldn't pay attention to

it for more than a few minutes. Now he can concentrate better and prefers to

watch television *with* someone, as a shared experience.

>

> He was diagnosed at 4 years; I would say he was moderately autistic, not

severe. I started chelating him at age 6 using the low, frequent dosing of the

Cutler protocol. He's now about 7 1/2. We have done 40+ rounds of DMSA, with the

last 20+ rounds including ALA. (Copper was extremely high, so we lowered that

before introducing ALA.)

>

> We still have problems, but things are much, much better now.

> -Ann

>

>

> >

> > What am I missing, I need some encouragement. I think last round, even tho

we stirred yeast, now we have seen some speech gains.

> >

> > TIA

> >

> >

>

[Guest guest]

>

> I will continue with DMSA and hopefully add ALA soon. What dose did you start

at and what are you at now?

>

We have been cautious. I started at approximately 6.25 mg DMSA per dose (1/8 mg

per pound of body weight). He tolerated it well, so every 5 rounds I increased

the dose slightly. When I added ALA, we again started low and increased

gradually. Now we are at 25 mg each of DMSA and ALA.

It's a convenient dose, because DMSA comes in 25 mg capsules, and ALA in 50 mg

capsules.

The ALA seems to cause yeast (usually silly behavior here). I think that's just

part of the process, though.

Good luck and keep us posted, !

-Ann

[Guest guest]

You have lab data? Plz post. How do you know your E2 is high?

Sent via BlackBerry from T-Mobile

Need advice

> >

> > Date: Sunday, April 11, 2010, 2:15 AM

> > Started trt a month ago and have

> > received 2 400mg shots spaced 2 weeks apart. Went to new

> > doctor because previous one was an ass and he wants me to

> > start with 50 cyp a week. He also started me on hcg and I

> > took 250 on friday and the same on saturday. I am supposed

> > to take a testosterone shot today sunday and dont know what

> > I should do. I know the 50 is low but I wanna follow new

> > docs instructions so I'm willing to give it a go. Will I

> > crash hard being that my body is expecting another 400 shot?

> > Maybe I should take 100 instead of the 50? I guess there's

> > no way of him finding out. Will the addition of hcg make me

> > not crash as hard or maybe I'll be fine with new dose? I

> > dont want to call new doc yet and tell him that I think I

> > should take 100 per week until I see how I feel.

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Well today I definitely feel off. I took my shot on sunday and felt good almost

right after and today I'm off. I think it might also have to do with my estrogen

level which tested high. Should I go on dim or wait until my levels stabilize

with new dose?

>

> > From: andrenym007 <no_reply >

> > Subject: Need advice

> >

> > Date: Sunday, April 11, 2010, 2:15 AM

> > Started trt a month ago and have

> > received 2 400mg shots spaced 2 weeks apart. Went to new

> > doctor because previous one was an ass and he wants me to

> > start with 50 cyp a week. He also started me on hcg and I

> > took 250 on friday and the same on saturday. I am supposed

> > to take a testosterone shot today sunday and dont know what

> > I should do. I know the 50 is low but I wanna follow new

> > docs instructions so I'm willing to give it a go. Will I

> > crash hard being that my body is expecting another 400 shot?

> > Maybe I should take 100 instead of the 50? I guess there's

> > no way of him finding out. Will the addition of hcg make me

> > not crash as hard or maybe I'll be fine with new dose? I

> > dont want to call new doc yet and tell him that I think I

> > should take 100 per week until I see how I feel.

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Took blood work a week ago it's low 60's.

> >

> > > From: andrenym007 <no_reply >

> > > Subject: Need advice

> > >

> > > Date: Sunday, April 11, 2010, 2:15 AM

> > > Started trt a month ago and have

> > > received 2 400mg shots spaced 2 weeks apart. Went to new

> > > doctor because previous one was an ass and he wants me to

> > > start with 50 cyp a week. He also started me on hcg and I

> > > took 250 on friday and the same on saturday. I am supposed

> > > to take a testosterone shot today sunday and dont know what

> > > I should do. I know the 50 is low but I wanna follow new

> > > docs instructions so I'm willing to give it a go. Will I

> > > crash hard being that my body is expecting another 400 shot?

> > > Maybe I should take 100 instead of the 50? I guess there's

> > > no way of him finding out. Will the addition of hcg make me

> > > not crash as hard or maybe I'll be fine with new dose? I

> > > dont want to call new doc yet and tell him that I think I

> > > should take 100 per week until I see how I feel.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

My son has been seeing a therapist and Psychiatrist who has him on a Medication.

We recently got new insurance through my husbands work that wants us to reach a

out of pocket max of $1,000 before they will cover him to see the doctor. We can

not afford the fees for service and can not get the medication without seeing

the psychiatrist because only he can prescribe it. do not know what to do right

now. My mom mentioned that i should try to put him on social security disability

but I'm not sure about that either. Does anyone have any advice???

[Guest guest]

If Florida our insurance company "Goldenrule" told us they would not cover any occupational therapy over the phone. Later our OT told us that they had to cover it because in Florida the state laws required them to cover autism. So perhaps if you ask you doctor, etc... they will know what the laws in your state are regarding autism. We would have never known accept we were already going to OT and paying directly waiting for our OT to be picked up as a provider under our insurance policy. The point is that the insurance companies train their people to discourage you to use their policies. They will outright lie as well and not offer any help. Its sad but that is how they operate.

From: mateli0300 <mateli0300@...>Subject: ( ) Need Advice Date: Thursday, October 14, 2010, 11:04 AM

My son has been seeing a therapist and Psychiatrist who has him on a Medication. We recently got new insurance through my husbands work that wants us to reach a out of pocket max of $1,000 before they will cover him to see the doctor. We can not afford the fees for service and can not get the medication without seeing the psychiatrist because only he can prescribe it. do not know what to do right now. My mom mentioned that i should try to put him on social security disability but I'm not sure about that either. Does anyone have any advice???

[Guest guest]

What is your son's diagnosis? We actually had to get Medical Assistance for him

so that he could receive the services he needed. We live in PA, and our health

insurance(which I pay a lot for out-of- pocket) would not cover any diagnosis on

the spectrum, and I do not work for an employer who has over 50 employees! How

crazy is that? Anyway, the MA covers all of his copays on his prescriptions,

and also picks up on anything his primary insurance doesn't cover that isn't

related to his Asperger's syndrome, provided MA is accepted as a secondary

insurance with the provider. He also has ADHD, and his meds are all covered. I

hope this helps-good luck.

>

> My son has been seeing a therapist and Psychiatrist who has him on a

Medication. We recently got new insurance through my husbands work that wants us

to reach a out of pocket max of $1,000 before they will cover him to see the

doctor. We can not afford the fees for service and can not get the medication

without seeing the psychiatrist because only he can prescribe it. do not know

what to do right now. My mom mentioned that i should try to put him on social

security disability but I'm not sure about that either. Does anyone have any

advice???

>

[Guest guest]

I feel for you, we're in the same boat but w/o insurance.

We haven't had insurance for four years, like millions of others out there we're

just scraping by BUT we still make too much to qualify for SSI or Medicaide. And

in our state they do offer reduced health insurance to those w/o it at a reduced

price but if you have ANY type of health insurance from your job (no matter how

high the deductibles etc.) you don't qualify.

My only suggestion is to ask your psych. if they'll work with you, either on a

sliding pay scale regarding how much you'll have to pay or see if they'll accept

payments from you. We explained our situation to our pdoc and he was willing to

write my sons prescriptions for 6mos and if we have any problems in between we

will call him.

I wish you the best of luck for your whole family

>

> My son has been seeing a therapist and Psychiatrist who has him on a

Medication. We recently got new insurance through my husbands work that wants us

to reach a out of pocket max of $1,000 before they will cover him to see the

doctor. We can not afford the fees for service and can not get the medication

without seeing the psychiatrist because only he can prescribe it. do not know

what to do right now. My mom mentioned that i should try to put him on social

security disability but I'm not sure about that either. Does anyone have any

advice???

>

[Guest guest]

Hi!I don't know if this will help.We got Social Security/Cal Optima when our Aspie as was 17. Since he is turned 20 9/19 he will be eligible for medicare. If your MD will complete form for Social Security he is totally disabled. Your son may also be entitled for state benefits. Our son receives a small amount from Social Security, but state benefits in CA depend on family's income.Normally, your spouses insurance would pay first always. Medicare is always considered secondary pay-or. But we had treatment that provider notified medicare wasn't covered by his primary insurance, and he sent Blue Cross denial. Medicare did pay. Actually they were pleasant when I've spoken to them on several occasions.It also has medication benefit with no copay.To apply the

the website is medicare.gov.Best of luck,arkFrom: mateli0300 <mateli0300@...> Sent: Thu, October 14, 2010 8:04:48 AMSubject: ( ) Need Advice My son has been seeing a therapist and Psychiatrist who has him on a Medication. We recently got new insurance through my husbands work that wants us to reach a out of pocket max of $1,000 before they will cover him to see the doctor. We can not afford the fees for service and can not get the medication without seeing the psychiatrist because only he can prescribe it. do not know what to do right now. My mom mentioned that i should try to put him on social security disability but I'm not sure about that either. Does anyone have any advice???

[Guest guest]

This is normal if you miss the muscle or don't inject deep enough into the

muscle. I found this out the hard way also. I use a 27g, 1/2 " long needle and

don't want to go with a longer one. Right after I inject myself, I roughly

massage the area for 15 seconds or so to " spread out " the T in the fat tissue.

Doing it this way has eliminated the lump and pain.

Jeff

[Guest guest]

Hi ,

I don't use this big needle and it's dam big I use a 27g 1ml x 1/2 " lg needle.

What might have happened to you is you went into a tendon I do this from time to

time and will have a lump there for weeks I know it's there and don't shoot

there again.

In this link read the info page and don't us the dam big needles they talk

about.

When you try the 27g needle the oil is going to come out very slow so what I do

is the size of my shots I push this amount of air into the vial then I pull the

plunger all the way down until I get a little more then my dose I then push the

extrad back into the vial and I then do my shot. I do the shot into my thigh

just off the top to the outside mid why from my knee. I stick the needle in

then pull back on the Plunger looking for blood if none I do the shot go slow on

the shot if you do the shot to fast you will end up with a lump.

Co-Moderator

Phil

> From: <danderson4christ@...>

> Subject: Need Advice

>

> Date: Tuesday, December 28, 2010, 7:49 AM

> I took my first T shot on Sunday.  I

> administered 50 myself with a 24G 1/2 " needle in my thigh. 

> I didn't want to use the large needle because of information

> I learned in this group.  I think it was Phil that

> mentioned that he does the same and has seen very good test

> results.  The area where I administered has a knot.  It

> hurts to the touch but nothing I can't handle.  I just

> wanted to know if this is a normal side effect or did I do

> something wrong.  There is no signs of bruising.  Any

> advice would be appreciated. 

>  

>

>

>

[Guest guest]

Thanks and I want a baby! Its the woman equation that I need to solve first....

Ill pump whatever to boost my sperm count.

RE: Need Advice

>

> Date: Tuesday, January 25, 2011, 6:09 PM

> So Phil, if take one shot which is

> 1,000 (1ml) out of 10,000, its 10 shots total?

>

> Maybe I should buy the 10,000 instead of the 2,000 you

> recommended.....

>

>

>

> -----Original Message-----

> From: philip georgian <pmgamer18@...>

> Sent: Monday, January 24, 2011 10:38 AM

> To:

[The entire original message is not included]

[Guest guest]

I am sorry I don't remember you saying your on TRT if you are you can't test

your LH and FSH levels they are shut down. You can test your sprem but I would

not stop TRT to test it. It's like to late for testing this going on TRT.

Your brain sees the T in your blood and stops sending the LH and FSH messages to

your testis to make more T or will slow down sending this message to a very low

level.

You need to go to the files and links section here at the home page and read up

on this and learn about this so when your with your Dr. you know if he is doing

right by you.

Some Dr. not up on this don't get there men's levels up high enough and others

drive there levels up to high.

I say men need to start low after doing all the right testing to show they need

TRT and keep testing every 8 to 12 weeks and adj. levels of TRT until the feel

good not shoot for a number.

Co-Moderator

Phil

> From: uu1845@... <uu1845@...>

> Subject: RE: Need Advice

>

> Date: Friday, January 28, 2011, 10:53 AM

> I hear you Phil, and thanks. However

> can it be fair to say a man who's levels w and w/o TRT have

> always been under the 500 range for example, he will crash

> like a bodybuilder?

>

> So TRT doesn't suppress FSH and LH hormones?

>

> If not, my endo was incorrect. Out of fear of being w/o TRT

> for a few months, I refuse to do a sperm count test. I want

> too but I was told to be off TRT for a few

> months.   

>

> RE: Need Advice

>

>

> Sorry but I am not trying to confuse you I am just telling

> like it is going on TRT with good sperm levels men can make

> baby's they do it every day go to Dr. 's forum and post

> about this the men that made a baby will tell you.

> http://www.musclechatroom.com/forum/forumdisplay.php?2-All-Things-Male

>

> I say this over and over again Endo's are not good Dr. for

> treating men with low T I have seen 7 in the last 30 yrs not

> one was good or got it right.

>

> I talk to a huge amount of men everyday just do a Google

> Search on my nick pmgamer18 ane before I changed it pmgamer.

> You will get over 22,000 hits on one and 12,000 on the

> other.

>

> Men post to me seeing Endo's all the time complaining

> about the bad job they do.

>

> Your Endo is dead wrong saying your LH and FSH will start

> back up stopping TRT. It will do something but not what it

> was before you tried TRT.

>

> You stop TRT your going to crash and burn.

>

> Bodybuilders that use Steroids cycle them and use other

> meds Clomid and HCG to restart there brain to send LH and

> FSH to there Testis to keep them working. Yet most of the

> time this does not work for them and they end up on TRT. And

> they had good levels of Testosterone before going on

> Steroids.

>

> Test your sperm if it's good get it frozen for a back up.

> If you need to go on TRT if you don't and you need it your

> damaging your body and brain.

>

>

> [The entire original message is not included]

>

>