Re: Eating question

[Guest guest]

It's entirely possible that it's the birth control pills making you queasy in

the morning. What time of day are you taking them? If it's in the morning or

right before bed then they're prime suspects. Maybe you could try a different

time of day or even talk to your doctor about a different brand or dosage.

Regarding the food, I'd just wait until the next normal meal. Don't force down

extra calories to make up for breakfast.

Eating Question

For the last three days I haven't been able to eat my

entire breakfast because I get queasy. This happened

to me before BFL, but I always attributed it to eating

too much junk the day before. Now I know I'm not, so

I'm not sure why it happens. Usually I can make it

through 2/3 of my breakfast, but today I don't think I

even ate half of it. Which should I do if this

happens in the future?

1) Eat something equivalent to the rest of my

breakfast in between breakfast and the next meal.

2) Increase the size of the next meal to equal the

same amount I missed during breakfast.

3) Just eat the next meal at its normal size without

any snack or extra food.

Luckily it is time for the next meal and I haven't

been hungry (although I am still a bit queasy). And

no, I'm sure I'm not pregnant as I've been through

this cycle bunches of times before. (I'm also taking

birth control pills).

Thanks!

Kerri

[Guest guest]

I'm sorry but I don't know how old your child is. When

Freddie, now 5, was in the NICU (at birth for a

month) he went through this. I hated the thought of a

tube feeding. He started off eating on his own just

fine then lost interest. What we finally realized was

we had to get him fed to get the strength to want to

eat. Does that make sense. Basically we had to pick

our battles carefully and sustainment won. It takes an

incredible amount of energy to eat. Between what the

mouth and tongue had to do he was exhausted after

eating. The tube allowed him to build the strength and

desire to want to eat. He would take one feeding by

tube then the next by bottle and so on until he was

taking all feeds from the bottle. If you don’t see the

desire to self feed return after getting some

nourishment consistently, seek out the advice of a

feeding therapist. If your child has stopped eating as

a result of a medical issue the doctors should have

automatically called in a ST or feeding specialist.

Call your doctor on that one. She also could be

developing oral sensory issue? Does she have a nuk or

pacifier? There are so many variables here. I am sure

someone here will help you resolve this. Good luck and

be strong!

nna

Mommy to Freddie 5yrs

School's Out !!!

On To Water Sports !!!

--- Kris Delaney <kdelaney@...> wrote:

> Dear listmembers,

>

> I'm almost at my wits end. My little , who is

> not gaining weight, is on her last effort to gain,

> over the weekend, before we insert the tube out of

> necessity. She has a VSD repair sometime in the

> next couple of months. Her heart failure is

> stable....she's actually not doing too bad from that

> perspective. Last week she had a toxic reaction to

> Digoxin and she developed loss of the little

> appetite that she had. She hasn't had that

> medication since Monday, but her eating is actually

> getting worse. She simply hates to eat. Cries and

> fusses, arches her back. The only way I can get a

> few oz in her is when she is sleeping. Have any of

> your kids just stopped eating? As far as I know,

> there is no obstruction or swallowing problem. She

> does not seem to have reflux. Any ideas? I'm afraid

> I cannot even last thru the weekend at this rate.

>

> Thanks,

> Kris

________________________________________________________________________________\

____

Need a vacation? Get great deals

to amazing places on Travel.

http://travel./

[Guest guest]

Kris, I know this is all so stressful. Try to relax .....ha ha ha , I know I know...Kids' with heart issues often times just can't eat. A child does not suddenly stop eating for no good reason. SOMETHING is bothering her. Arching is her way of telling you to "STOP! I can't do this." My first guess would be her VSD is larger then they think and is causing her feeding distress. Have you ever tried to drink a glass of water after extreme physical exercise? You know the kind where are are both dying of thirst and can't catch your breath at the same time? Breathing wins out, and for a baby, imagine trying to coordinate all that complicated breathing/swallowing stuff. It could also be un-dx GERD, arching is common with that too. There doesn't have to be any

outward symptoms for her to be suffering from GERD, and the only way to dx is with a ph probe. Have they tested her for it to rule it out? They couldn't test prior to her repair because she was just too darn sick- and as the Card said- we need to fix the engine before we work on the wipers ;-) When the heart is not working, it makes things very confusing and hard to sort out. After the repair, this may all resolve it's self.In the meantime- an ng tube is not the end of the world. It doesn't mean she won't ever eat. But it sounds as though she may need it right now til after her repair. At any rate, after the repair, you will better be able to tell what is going on. Have you talked to the card about this? Have they done a cardiac cath? Even if they have, I have heard of a number of kid's who's VSD was a lot larger then they thought from the tests and was the cause of feeding issues before. I really lean

towards that being the case.... but understand, this is just *my* guess based on what you have told me and what I have seen in the past. I could be all wrong, and she could be having something else going on that is being missed. Bottom line is, may be hard to figure it out pre-repair and might be a good idea to go with ng tube til you can cross one possible cause of the list and see if the repair resolves this for her. Carol in IL AIM doihavtasay1Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: Kris Delaney <kdelaney@...>Down Syndrome Treatment Sent: Thursday, July 26, 2007 6:43:43

AMSubject: eating question

Dear listmembers,

I'm almost at my wits end. My little , who is not gaining weight, is on her last effort to gain, over the weekend, before we insert the tube out of necessity. She has a VSD repair sometime in the next couple of months. Her heart failure is stable....she' s actually not doing too bad from that perspective. Last week she had a toxic reaction to Digoxin and she developed loss of the little appetite that she had. She hasn't had that medication since Monday, but her eating is actually getting worse. She simply hates to eat. Cries and fusses, arches her back. The only way I can get a few oz in her is when she is sleeping. Have any of your kids just stopped eating? As far as I know, there is no obstruction or swallowing problem. She does not seem to have reflux. Any ideas? I'm afraid I cannot even last thru the weekend at this rate.

Thanks,

Kris

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

[Guest guest]

Dear Kris, May the blessing of the LORD bring peace to your troubled heart! HE loves your little daughter even more than you do, and HE will keep her, HE IS keeping her in the palm of HIS hand, and HIS hand is BIG enough for this and every crisis! How old is ? What does she weigh now? What type of eating? breast feeding? bottle feeding? spoon feeding? What type of tube? NG tube? G tube? did not do well at all gaining weight. He had an NG tube for his first 2 1/2 mos. It really is not a bad short term solution. I pumped and fortified my milk and offered it by bottle first (a special Haberman bottle), then whatever he didn't drink in 20 min. went in by tube. He still gained very slowly, but at least the doctor was satisfied that we were doing all that could be done. And he had the "required"

number of wet diapers and poops per day. also had difficulty with digoxin. It took them 2 1/2 months to figure it out, but the digoxin was building up in his body, causing his heart rate to be too low and causing his heart to be out of normal sinus rhythm, which also made him lethargic. Feeding was just too much work for him. Once he was off the digoxin, he was a different boy! His appetite improved, and he actually wanted to eat every 2 hrs.! Then we were able to get rid of the NG tube. But he still gained weight slowly. He was alert and active though and steadily got stronger and stronger, so his doctors accepted things as they were. At his first birthday, he was only 13 lb. 12 oz.! Then, I discovered Nutrivene, special suppliments formulated specifically for children with DS. Nutrivene, and feeding therapy to help him learn to eat pureed foods, has really helped.

He will be 2 next month, and he weighs around 19 lbs. I read that it is common for children with DS and uncorrected heart defects to not reach 20 lbs. till around 2 yrs. of age, so he is pretty much on target, considering the challenges in his life. Everyone says that children with heart defects really begin to gain weight after they have their repair surgery. But 's defect cannot really be repaired. He will eventually need a valve replacement (they make these valves from the valve of a pig or a cow). It is better for him to be older, so he won't outgrow it and need it redone in a few years. And his heart is functioning quite well for him, at present. We just praise GOD for keeping in HIS BIG hand. Each crisis situation that could have had disastrous consequences was caught in time and disaster averted. And HE has led us in good paths. GOD's BEST to you and and your

entire family! P.S. Of course, everyone on this site will tell you that loss of appetite is one of the signs of heart failure and should be reported to 's cardiologist. But, if the card is certain that her heart is holding its own, many DS babies do struggle with feeding and need lots of time and extra help. Kris Delaney <kdelaney@...> wrote: Dear listmembers, I'm almost at my wits end. My little , who is not gaining weight, is on her last effort to gain, over the weekend, before we insert the tube out of necessity. She has a VSD repair sometime in the next couple of months. Her heart failure is stable....she's actually not doing too bad from that perspective. Last week she had a toxic reaction to Digoxin and she developed loss of the little appetite that she had. She hasn't had that medication since Monday, but her eating is actually getting worse. She simply hates to eat. Cries and fusses, arches her back. The only way I can get a few oz in her is when she is sleeping. Have any of your kids just stopped eating? As far as I know, there is no obstruction or swallowing problem. She does not seem to have reflux. Any ideas? I'm afraid I cannot even last thru the weekend at this rate. Thanks, Kris

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[Guest guest]

Kris,

we know how you're feeling right now. We were in the same situation last summer. Our son had stopped eating and drinking, gradually over the time of about two months. It started on day one after hiss MMR jab (not implying it's the same with ). To cut the story short, he needed to have an ng-tube fitted and it saved his life! Don't hesitate to do it if its necessary - it takes SOOOO much stress off everyone in the family, including the little one. He had it in for 4 months and after the first two months (with Zelnorm, which tragically has been swiped off the market by the FDA) with the tube in he started to eat again slowly, little by little, and after 4 months we took it out ourselves. Now he seems to be more or less back to normal. He was seen by about one hundred doctors, but nobody was able to diagnose his condition. We think it was the jab, but questioning that is like touching a holy cow here in Switzerland, don't know about the States though. I know it's terrible to go through, especially when you're in the middle of it. Anyway, rest assured that also this will pass.

We'll keep our fingers crossed for .

Keep a stiff upper lip.

Cheers,

/Switzerlandwith Saskia, Nora-Jane/6yrs. & /2.5yrs./DS/ASDII/GERD (on Prilosec, Nutrivene-D, vegetarian fishoil, Ginkgo Biloba)

eating question

Dear listmembers,

I'm almost at my wits end. My little , who is not gaining weight, is on her last effort to gain, over the weekend, before we insert the tube out of necessity. She has a VSD repair sometime in the next couple of months. Her heart failure is stable....she's actually not doing too bad from that perspective. Last week she had a toxic reaction to Digoxin and she developed loss of the little appetite that she had. She hasn't had that medication since Monday, but her eating is actually getting worse. She simply hates to eat. Cries and fusses, arches her back. The only way I can get a few oz in her is when she is sleeping. Have any of your kids just stopped eating? As far as I know, there is no obstruction or swallowing problem. She does not seem to have reflux. Any ideas? I'm afraid I cannot even last thru the weekend at this rate.

Thanks,

Kris

[Guest guest]

A friend of mine had a similar problem with her daughter, I suggested she try BOOST, the chocolate flavor for awhile. It has nutrients and all and helps with the immune system. She tried the strawberry and vanilla flavored ones as well and she eventually "WOKE UP" and wanted more. It was very scary to say the least. Try if possible any probiotics too. They also come in a couple of flavors. Cassie's fave was the strawberry-banana. Maybe the sweet taste will stimulate her enough to want more. good luck to you. Müller <mueller-winter@...> wrote: Kris, we know how you're feeling right now. We were in the same situation last summer. Our son had stopped eating and drinking, gradually over the time of about two months. It started on day one after hiss MMR jab (not implying it's the same with ). To cut the story short, he needed to have an ng-tube fitted and it saved his life! Don't hesitate to do it if its necessary - it takes SOOOO much stress off everyone in the family, including the little one. He had it in for 4 months and after the first two months (with Zelnorm, which tragically has been swiped off the market by the FDA) with the tube in he started to eat again slowly, little by little, and after 4 months we took it out ourselves. Now he seems to be more or less back to normal. He was seen by about one hundred doctors, but nobody was able to diagnose

his condition. We think it was the jab, but questioning that is like touching a holy cow here in Switzerland, don't know about the States though. I know it's terrible to go through, especially when you're in the middle of it. Anyway, rest assured that also this will pass. We'll keep our fingers crossed for . Keep a stiff upper lip. Cheers, /Switzerlandwith Saskia, Nora-Jane/6yrs. & /2.5yrs./DS/ASDII/GERD (on Prilosec, Nutrivene-D, vegetarian fishoil, Ginkgo Biloba) eating question Dear listmembers, I'm almost at my wits end. My little , who is not gaining weight, is on her last effort to gain, over the weekend, before we insert the tube out of necessity. She has a VSD repair sometime in the next couple of months. Her heart failure is stable....she's actually not doing too bad from that

perspective. Last week she had a toxic reaction to Digoxin and she developed loss of the little appetite that she had. She hasn't had that medication since Monday, but her eating is actually getting worse. She simply hates to eat. Cries and fusses, arches her back. The only way I can get a few oz in her is when she is sleeping. Have any of your kids just stopped eating? As far as I know, there is no obstruction or swallowing problem. She does not seem to have reflux. Any ideas? I'm afraid I cannot even last thru the weekend at this rate. Thanks, Kris

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Hi Kris,

I am just sending my 2 cents to let you know, as others have said,

you are not alone. This is so darn stressful - eating *should* be the

simplest thing. And as mom, not being able to make that happen is

stressful and frightening.

My daughter, now 3.5, had her heart repair at 3 months old. I spent

night and day trying to get every oz down her I could. In the final

weeks before her surgery we had had to go to the ng tube. It was

necessary and temporary.

Keep us updated and hang in there.

Gail

mom to Teagan, 3.5 and Shealyn, 20mos

>

> Dear listmembers,

>

> I'm almost at my wits end. My little , who is not gaining

weight, is on her last effort to gain, over the weekend, before we

insert the tube out of necessity. She has a VSD repair sometime in

the next couple of months. Her heart failure is stable....she's

actually not doing too bad from that perspective. Last week she had a

toxic reaction to Digoxin and she developed loss of the little

appetite that she had. She hasn't had that medication since Monday,

but her eating is actually getting worse. She simply hates to eat.

Cries and fusses, arches her back. The only way I can get a few oz

in her is when she is sleeping. Have any of your kids just stopped

eating? As far as I know, there is no obstruction or swallowing

problem. She does not seem to have reflux. Any ideas? I'm afraid I

cannot even last thru the weekend at this rate.

>

> Thanks,

> Kris

>

[Guest guest]

Thank you all for your support and information re 's eating troubles.

(BTW, she's almost 5 months.....I know someone had asked). We ended up being

admitted to the hospital on Thursday late afternoon because it was clear

that she really needed the ng tube (she had only had three oz that day

total, and I worked very hard at those!). She was starting to get

dehydrated. Reading all of your post beforehand really gave me peace about

the ng tube. She's doing very well now, and has gained almost 1/2 pound

since Thursday night! So, what we do is feed her with the haberman during

the day. If she's not taking enough, we put the rest in the tube. At night

she has a slow drip of 8 oz. And actually what this looks to be doing is

sort of jump starting her hunger feeling again. She cried for hunger

between feedings for the first time in a while. In addition there were many

more blessings that came from this stay....we had excellent doctors and

nurses who gave me some really good advice. I think soon we may be able to

get to the ng tube only at night. After the surgery all things will be

different. It was interesting for me to realize how much she's working to

eat with her VSD. Being hooked up to the machines made it easy to see how

much her respirations and heart rate went up with just eating. So I have no

doubts now that the ng tube was the right decision. Thank you again! Oh, and

we have a surgery date now, with our surgeon of choice, set for Sept. 4th.

Kris

[Guest guest]

I am so happy to hear that things are better at your house. :-)Makes sense she might feel hunger when she has food and in tummy, energy to try and eat and can relax about it a bit.Mom is most likely a lot more relaxed too. ;-)These are tough times, but things will get a lot better. You will be surprised at how much better she will do after her repair. Carol in IL AIM doihavtasay1Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see

me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: Kris Delaney

<kdelaney@...>Down Syndrome Treatment Sent: Sunday, July 29, 2007 6:05:58 AMSubject: Re: eating question

Thank you all for your support and information re 's eating troubles.

(BTW, she's almost 5 months.....I know someone had asked). We ended up being

admitted to the hospital on Thursday late afternoon because it was clear

that she really needed the ng tube (she had only had three oz that day

total, and I worked very hard at those!). She was starting to get

dehydrated. Reading all of your post beforehand really gave me peace about

the ng tube. She's doing very well now, and has gained almost 1/2 pound

since Thursday night! So, what we do is feed her with the haberman during

the day. If she's not taking enough, we put the rest in the tube. At night

she has a slow drip of 8 oz. And actually what this looks to be doing is

sort of jump starting her hunger feeling again. She cried for hunger

between feedings for the first time in a while. In addition there were many

more blessings that came from this stay....we had excellent doctors and

nurses who gave me some really good advice. I think soon we may be able to

get to the ng tube only at night. After the surgery all things will be

different. It was interesting for me to realize how much she's working to

eat with her VSD. Being hooked up to the machines made it easy to see how

much her respirations and heart rate went up with just eating. So I have no

doubts now that the ng tube was the right decision. Thank you again! Oh, and

we have a surgery date now, with our surgeon of choice, set for Sept. 4th.

Kris

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[Guest guest]

Glad to hear that things are better.  I meant to write earlier,

after I read Priscilla’s note to you the other day , to say that I agreed

that if needed a tube, to go for it;-) Danny had an ng tube until he was 5

½ months old because he had such a hard time with his feedings. He had an av

canal defect, and it took too much strength for  him to nurse or take his feeds

by mouth. Even after we got him to take his feeds by mouth, he could only take

about 20cc’s at a time…vomited a lot until he had his repair at 8 ½

months. So,,we were able to get him off of the tube before surgery, but it took

a lot of time and work to get him fed-we fed him every hour around the clock. The

change after his heart repair was amazing…he went from vomiting several

times a day to taking 6-7 oz at a feeding and keeping it all down. He still had

some ‘quirks’..would only drink Alsoy and eat strained sweet

potatoes (period) from 8 months to 16 months,,,but hasn’t had any

problems since then.  I was just thinking about this today at lunch today, as a

matter of fact. I remembered the months when I would write every cc he took

because between feeding him and him vomiting, I was never sure of how much he

took in unless I wrote it down..I worried that he would never learn to eat…today

at lunch he ate cantaloupe chunks, chicken, and salad w/broccoli, green peppers

and celery ;-) He is not overweight at all, but it is very safe to say that he

has not had any problems with eating for a very long time;-)

KathyR(mom to Danny, almost 9 yrs old and his 6 older sibs)

From:

Down Syndrome Treatment

[mailto:Down Syndrome Treatment ] On Behalf Of Carol in

IL

Sent: Sunday, July 29, 2007 9:49 PM

Down Syndrome Treatment

Subject: Re: eating question

I

am so happy to hear that things are better at your house. :-)

Makes sense she might feel hunger when she has food and in tummy, energy to try

and eat and can relax about it a bit.

Mom is most likely a lot more relaxed too. ;-)

These are tough times, but things will get a lot better. You will be surprised

at how much better she will do after her repair.

Carol in IL AIM doihavtasay1

Mom to seven including

, 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.

My problem is not how I look. It's how you see me.

Join our

Down Syndrome information group -

Down Syndrome Treatment/

Listen to

oldest dd's music http://www.myspace.com/vennamusic

Re: eating question

Thank you all for your support and information

re 's eating troubles.

(BTW, she's almost 5 months.....I know someone had asked). We ended up being

admitted to the hospital on Thursday late afternoon because it was clear

that she really needed the ng tube (she had only had three oz that day

total, and I worked very hard at those!). She was starting to get

dehydrated. Reading all of your post beforehand really gave me peace about

the ng tube. She's doing very well now, and has gained almost 1/2 pound

since Thursday night! So, what we do is feed her with the haberman during

the day. If she's not taking enough, we put the rest in the tube. At night

she has a slow drip of 8 oz. And actually what this looks to be doing is

sort of jump starting her hunger feeling again. She cried for hunger

between feedings for the first time in a while. In addition there were many

more blessings that came from this stay....we had excellent doctors and

nurses who gave me some really good advice. I think soon we may be able to

get to the ng tube only at night. After the surgery all things will be

different. It was interesting for me to realize how much she's working to

eat with her VSD. Being hooked up to the machines made it easy to see how

much her respirations and heart rate went up with just eating. So I have no

doubts now that the ng tube was the right decision. Thank you again! Oh, and

we have a surgery date now, with our surgeon of choice, set for Sept. 4th.

Kris

[Guest guest]

Hi Debbie,

I can empathize with you. Our son who is 20 now loves to eat also. (who doesn't lol)?

Ever since he's been a toddler he's always been hungry.

I even have him on video saying "I hungy mommy".

He is trying to get a job now, but while he is home all he wants to do

is watch tv, computer, video games and eat.

He says he is never really full, and is hungry alot.

Right now, i'm home so i can keep an eye on what he eats.

I sometimes have to tell him when I think he's had enough.

Through the years though, some meds he's been on have tabled his hunger pangs,

though that is not what they were prescribed for.

I've also read on here before, that it's seems to be a thing with Aspies;

they seem to just love food (more then most) and can't seem to get really satisfied.

I'm hoping when he gets a jobs, it will get better.

Like I said, I just keep an eye on him and put some limits on what he eats.

Other than that, I don't know what to tell you.

Have you discussed it with his doctor?

Maybe they can help .

Sharon

From: Debbie <debsnest6@...>Subject: ( ) Eating question"Asperger's Support" <Aspergers Treatment >, "Austinautismsupport" <austinautismsupport >Date: Tuesday, September 14, 2010, 7:32 PM

I know I can't be the onlly one dealing with this...my son, diagnosed with Asperger's want to do nothing but eat all day long. Does anyone else have this issue? And if u do, what do u do? I'm a loss, I've tried all I know. He thinks about food every minute of the day, and thats not exaggerating. It's constant. Would love to hear from others who are dealing with this issue.

Faith never wonders why.

Worry about nothing, pray about everything!

'Be kinder than necessary, for everyone you meet is fighting some kind of battle.'

"For every minute you are angry, you lose 60 seconds of happiness."

Sometimes the best gifts come in the ugliest packages.

April is Autism Awareness Month, show ur support!

[Guest guest]

Is he on a med?Sent via BlackBerry by AT&TFrom: Debbie <debsnest6@...>Sender: Date: Tue, 14 Sep 2010 16:32:19 -0700 (PDT)Asperger's Support<Aspergers Treatment >; Austinautismsupport<austinautismsupport >Reply Subject: ( ) Eating question I know I can't be the onlly one dealing with this...my son, diagnosed with Asperger's want to do nothing but eat all day long. Does anyone else have this issue? And if u do, what do u do? I'm a loss, I've tried all I know. He thinks about food every minute of the day, and thats not exaggerating. It's constant. Would love to hear from others who are dealing with this issue. Faith never wonders why.Worry about nothing, pray about everything!'Be kinder than necessary, for everyone you meet is fighting some kind of battle.' "For every minute you are angry, you lose 60 seconds of happiness."Sometimes the best gifts come in the ugliest packages.April is Autism Awareness Month, show ur support!

[Guest guest]

My son is 8 diagnosed with AS at 6.5. He also constantly thinks about food. For

some reason he can't tell when he's full. However, he never eats what he

doesn't like. He will go to bed without eating, if it means that he has to eat

somthing he doesn't like. We discovered that as long as we have him on a

schedule, we can control how much he eats as opposed to what he eats. He is

overweight, but we are working on it. With AS, scheduling is important, so we

will make him wait for seconds. As long as it's scheduled, he'll wait. That

way we can limit the amount. We also limit snacks. He has to have permission

and only one snack after 4:00pm. We buy everything in snack size to control

portion.

Again as long as he has a scheduled time to eat. He will wait to the next

eating opportunity even though he may not think he's full.

>

> I know I can't be the onlly one dealing with this...my son, diagnosed with

Asperger's want to do nothing but eat all day long.  Does anyone else have this

issue?  And if u do, what do u do?  I'm a loss, I've tried all I know.  He

thinks about food every minute of the day, and thats not exaggerating.  It's

constant.  Would love to hear from others who are dealing with this issue. 

>

>

>  

> Faith never wonders why.

> Worry about nothing, pray about everything!

> 'Be kinder than necessary, for everyone you meet

> is fighting some kind of battle.'

> " For every minute you are angry, you lose 60 seconds of happiness. "

> Sometimes the best gifts come in the ugliest packages.

> April is Autism Awareness Month, show ur support!

>

>  

>  

>             

>  

>

[Guest guest]

mine is quite the opposite - he is borderline anorexic, incredibly fussy and

resistant to trying new things

Miranda

> >

> > I know I can't be the onlly one dealing with this...my son, diagnosed with

Asperger's want to do nothing but eat all day long.  Does anyone else have this

issue?  And if u do, what do u do?  I'm a loss, I've tried all I know.  He

thinks about food every minute of the day, and thats not exaggerating.  It's

constant.  Would love to hear from others who are dealing with this issue. 

> >

> >

> >  

> > Faith never wonders why.

> > Worry about nothing, pray about everything!

> > 'Be kinder than necessary, for everyone you meet

> > is fighting some kind of battle.'

> > " For every minute you are angry, you lose 60 seconds of happiness. "

> > Sometimes the best gifts come in the ugliest packages.

> > April is Autism Awareness Month, show ur support!

> >

> >  

> >  

> >             

> >  

> >

>

[Guest guest]

My son was also 7 and 40 lbs. I was able to obtain feeding therapy for his

sensory feeding issues through Children's Rehab in our state. (AL) You might

want to check around with your state's children's rehab/vocational services. DS

is now receiving weekly feeding therapy w/ a speech pathologist (OT's can do it

too), and beginning to show some improvement. It sounds totally silly, but he

had his first ICEE 2 weeks ago, and has started chewing gum! He will at least

now tolerate non-preferred foods on his plate, and touch them to his lips and

lick the " flavor " . In my book, that is progress - in baby steps!

We are doing something called " food chaining " ...example would be progressing

from Mc's chicken nuggets, to eating other brands/restaurants to eating

homemade, to grilled. Baby steps one at a time - he'll eat american cheese, so

from that we progress to cheddar, to swiss, to mozarella, etc. It is

frustrating, I know!

> > >

> > > I know I can't be the onlly one dealing with this...my son, diagnosed with

> >Asperger's want to do nothing but eat all day long.  Does anyone else have

this

> >issue?  And if u do, what do u do?  I'm a loss, I've tried all I know.  He

> >thinks about food every minute of the day, and thats not exaggerating.  It's

> >constant.  Would love to hear from others who are dealing with this issue. 

> > >

> > >

> > >  

> > > Faith never wonders why.

> > > Worry about nothing, pray about everything!

> > > 'Be kinder than necessary, for everyone you meet

> > > is fighting some kind of battle.'

> > > " For every minute you are angry, you lose 60 seconds of happiness. "

> > > Sometimes the best gifts come in the ugliest packages.

> > > April is Autism Awareness Month, show ur support!

> > >

> > >  

> > >  

> > >             

> > >  

> > >

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>

[Guest guest]

it's a tricky one, as I do understand what it's like having a very fussy eater

child, but then again, someone continues to keep buying him what he wants

(mcDs). How long does he starve himself/have tantrums for if you refuse?

Miranda

>

> > > > >

>

> > > > > I know I can't be the onlly one dealing with this...my son, diagnosed

with

>

> >

>

> > > >Asperger's want to do nothing but eat all day long. Does anyone else

have

>

> > >this

>

> > >

>

> > > >issue? And if u do, what do u do? I'm a loss, I've tried all I know.Â

He

>

> >

>

> > > >thinks about food every minute of the day, and thats not exaggerating.Â

It's

>

> >

>

> > > >constant. Would love to hear from others who are dealing with this

issue.Â

>

> > > > >

>

> > > > >

>

> > > > > Â

>

> > > > > Faith never wonders why.

>

> > > > > Worry about nothing, pray about everything!

>

> > > > > 'Be kinder than necessary, for everyone you meet

>

> > > > > is fighting some kind of battle.'

>

> > > > > " For every minute you are angry, you lose 60 seconds of happiness. "

>

> > > > > Sometimes the best gifts come in the ugliest packages.

>

> > > > > April is Autism Awareness Month, show ur support!

>

> > > > >

>

> > > > > Â

>

> > > > > Â

>

> > > > > Â Â Â Â Â Â Â Â Â Â Â Â

>

> > > > > Â

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[Guest guest]

pretty much same here. He is pretty healthy though

Miranda

> > > > >

> > > > > I know I can't be the onlly one dealing with this...my son, diagnosed

> >with

> >

> >

> > > >Asperger's want to do nothing but eat all day long.  Does anyone else

have

>

> > >this

> > >

> > > >issue?  And if u do, what do u do?  I'm a loss, I've tried all I

know. 

> >He

> >

> >

> > > >thinks about food every minute of the day, and thats not

exaggerating. 

> >It's

> >

> >

> > > >constant.  Would love to hear from others who are dealing with this

> >issue. 

> > > > >

> > > > >

> > > > >  

> > > > > Faith never wonders why.

> > > > > Worry about nothing, pray about everything!

> > > > > 'Be kinder than necessary, for everyone you meet

> > > > > is fighting some kind of battle.'

> > > > > " For every minute you are angry, you lose 60 seconds of happiness. "

> > > > > Sometimes the best gifts come in the ugliest packages.

> > > > > April is Autism Awareness Month, show ur support!

> > > > >

> > > > >  

> > > > >  

> > > > >             

> > > > >  

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Have you ever worked with a nutritionist? When my son was an infant, his weight

gain was poor, and we started seeing a nutritionist at about 8 months old. She

had some useful information, and also recommended a very good book called " Child

Of Mine; Feeding With Love and Good Sense " by Ellyn Satter (also a

nutritionist). A major point of both the nutritionist and the book was to get

away from letting food become a power struggle. Preparing special meals which

are different than the rest of the family eats would qualify as allowing food to

become a power struggle, according to what I read, because it shows the child

that you will do anything to get them to eat - advantage: child.

Satter's philosophy is that it is up to the parent to decide which healthy foods

to offer and when, and up to the child to decide if he will eat and how much. We

try to follow this advice, within reason. My 3 year old does not saucy or mixed

up foods, so we will generally serve him the same dinner as we the parents eat,

only we will omit the sauce on his noodles or separate the mixed vegetables. A

good principle is to put something on the plate they are likely to eat, along

with whatever else is for dinner that night, knowing that they might refuse to

eat the unfamiliar foods. So tonight we put potatoes on my son's plate, even

though he has always refused to try them, and did again tonight. He ate his

steak, carrots, and broccoli (separated and sauceless), and we did not say

anything about the potatoes.

The idea is to minimize the fuss about mealtimes to keep them from becoming

stressful. It can be easier said than done, but before we accepted the idea that

we could not make our son eat, we dreaded mealtimes and now we don't stress

about it. I won't say to starve your child by any means, but if he always gets

the one food he wants, he will never have any reason to try anything else and

may end up having an unbalanced diet. A good nutritionist might really be able

to help you with this.

Good luck!

Bridget

ps - when my son was under 1 year old, his weight was often in the 15th

percentile or below, and now at age 3, he is close to the 50th percentile, so

there is hope!

> >

> > > > > >

> >

> > > > > > I know I can't be the onlly one dealing with this...my son,

diagnosed

> >with

> >

> >

> > >

> >

> > > > >Asperger's want to do nothing but eat all day long. Does anyone else

have

> >

> >

> > > >this

> >

> > > >

> >

> > > > >issue? And if u do, what do u do? I'm a loss, I've tried all I

know. He

> >

> >

> > >

> >

> > > > >thinks about food every minute of the day, and thats not

exaggerating.Â

> >It's

> >

> >

> > >

> >

> > > > >constant. Would love to hear from others who are dealing with this

> >issue.Â

> >

> >

> > > > > >

> >

> > > > > >

> >

> > > > > > Â

> >

> > > > > > Faith never wonders why.

> >

> > > > > > Worry about nothing, pray about everything!

> >

> > > > > > 'Be kinder than necessary, for everyone you meet

> >

> > > > > > is fighting some kind of battle.'

> >

> > > > > > " For every minute you are angry, you lose 60 seconds of happiness. "

> >

> > > > > > Sometimes the best gifts come in the ugliest packages.

> >

> > > > > > April is Autism Awareness Month, show ur support!

> >

> > > > > >

> >

> > > > > > Â

> >

> > > > > > Â

> >

> > > > > > Â Â Â Â Â Â Â Â Â Â Â Â

> >

> > > > > > Â

> >

> > > > > >

> >

> > > > >

> >

> > > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

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> > >

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>

[Guest guest]

what does he do if you refuse McD? I'm guessing a tantrum or refusal to eat

results? or something else?

Miranda

>

> >

>

> > > > > >

>

> >

>

> > > > > > I know I can't be the onlly one dealing with this...my son,

diagnosed with

>

> >

>

> > >

>

> >

>

> > > > >Asperger's want to do nothing but eat all day long. Does anyone else

have

>

> >

>

> > > >this

>

> >

>

> > > >

>

> >

>

> > > > >issue? And if u do, what do u do? I'm a loss, I've tried all I

know. He

>

> >

>

> > >

>

> >

>

> > > > >thinks about food every minute of the day, and thats not exaggerating.Â

It's

>

> >

>

> > >

>

> >

>

> > > > >constant. Would love to hear from others who are dealing with this

issue.Â

>

> >

>

> > > > > >

>

> >

>

> > > > > >

>

> >

>

> > > > > > Â

>

> >

>

> > > > > > Faith never wonders why.

>

> >

>

> > > > > > Worry about nothing, pray about everything!

>

> >

>

> > > > > > 'Be kinder than necessary, for everyone you meet

>

> >

>

> > > > > > is fighting some kind of battle.'

>

> >

>

> > > > > > " For every minute you are angry, you lose 60 seconds of happiness. "

>

> >

>

> > > > > > Sometimes the best gifts come in the ugliest packages.

>

> >

>

> > > > > > April is Autism Awareness Month, show ur support!

>

> >

>

> > > > > >

>

> >

>

> > > > > > Â

>

> >

>

> > > > > > Â

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[Guest guest]

Hi

Does anyone follow a GF/CF & soy free diet, we started this on our son who is 9

and saw a huge decrease in his AS behaviors, the general thoughts are that

gluten and casein act like opioids on our children creating a drugged like

affect and then they crave the food, Great plains laboratories do a urinary

peptide test to determine if this is actuallly happening. When I had my son

tested he had 7 times above the normal range of peptides (casein) in his urine

and 2times for gluten.

Just a thought for those with children craving foods, look at what it is they

crave. A word of warning withdrawals can be hard but only lasts 2-3 weeks then

he was willing to try all sorts of foods because he felt good.

Romily

Mum to Harry 9 AAs ADHD

>

> My DD is 7 and also wants to eat all the time. I believe it's part of her

> sensory issues that she simply has a harder time realizing when she is full.

> She is definitely a natural grazer, so we have to watch the clock to make

> sure she doesn't fill up on snacks and then won't eat at meals. I realize

> grazing " is actually supposed to be a healthier option, but reality is that

> the world functions on a schedule. She's also a very fussy eater, so her

> choices are extremely limited, but thankfully she's very healthy and has a

> great metabolism.

>

> Incidentally, my best friend's 5-year-old NT daughter is the same way,

> although she'll eat anything you put in front of her. We call our girls

> the hobbits. " :-)

>

> ~Cheryl S.

>

[Guest guest]

mine used to vomit a lot, have very low muscle tone and very very thin. Worked

out with elimination diet that dairy was the problem. He is fine with A2 casein

(sheep and the recent A2 cow's milk) but is very sick with all other dairy.

He's still slim, but has muscle tone, more energy, not in a " drugged " , spacey

state all the time. Still picky eater though

Miranda

> >> > > > >

> >> > > > > I know I can't be the onlly one dealing with this...my son,

diagnosed

> >> >with

> >> >

> >> >

> >> > > >Asperger's want to do nothing but eat all day long.  Does

anyone else

> >>have

> >>

> >>

> >> > >this

> >> > >

> >> > > >issue?  And if u do, what do u do?  I'm a loss, I've

tried all I

> >>know. 

> >>

> >> >He

> >> >

> >> >

> >> > > >thinks about food every minute of the day, and thats not

exaggerating. 

> >>

> >> >It's

> >> >

> >> >

> >> > > >constant.  Would love to hear from others who are dealing with

this

> >> >issue. 

> >> > > > >

> >> > > > >

> >> > > > >  

> >> > > > > Faith never wonders why.

> >> > > > > Worry about nothing, pray about everything!

> >> > > > > 'Be kinder than necessary, for everyone you meet

> >> > > > > is fighting some kind of battle.'

> >> > > > > " For every minute you are angry, you lose 60 seconds of happiness. "

> >> > > > > Sometimes the best gifts come in the ugliest packages.

> >> > > > > April is Autism Awareness Month, show ur support!

> >> > > > >

> >> > > > >  

> >> > > > >  

> >> > > > >

        ÂÂÂ\

 Ãƒâ€šÃ‚ Ã‚ Â 

> >> > > > >  

> >> > > > >

> >> > > >

> >> > >

> >> >

> >> >

> >> >

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>