Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 HI, I have a 9 year old daughter with AS and she has had a cd that she listens to at night since she was small. We take her music with us even when we travel. I know that transisitions are hard on these kiddos so having something familiar really helps her. Personally I would let your son keep it since it may help him in future in new environments. We have no plans on taking our daughters music away. It seems like a nusance sometimes but it is well worth it when she is agitated about being at her grandparents or in a hotel. I hope this helps. Patty ( ) music at night My 10 year old dd recently diagnosed with AS has to listen to a music cd at night and a fan. We started it when she was an infant and we lived very close to active railroad tracks It would come through several times a night. There were 2/3 crossings very close together so the train would basically just lay on the horn. We moved to another apartment in another city were it sounded like the people above us were stomping all the time. The place we live now is right next to an interstate.( we need to pick quieter places to live) Anyway, she has to listen ONE song on the cd repeated all night long. It is her favorite song on the cd. The fan no longer has to be on high, but on low setting (the whole family has one in their room to block interstate sounds. We have pondered making her stop with the one song all night long, but I am not sure if it is comforting,or if it is just a habit. When we have been without power she can tolerate not having the music, but she is not happy about it. We have bought batteries for one play through the whole cd which she tolerates but is not happy with. What would you all do? Let her keep her music or take it away gradually from her? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 I would not take the music away....I think if it does not bother anyone else it helps her and soothes her....she can not tell you what is wrong or what her anxiety is so whether it is a comfort or habit or both as long as it helps then dont mess with success:) By the way I am in NJ....my daughter is 9....where r u?? G. Wilder ( ) music at night My 10 year old dd recently diagnosed with AS has to listen to a music cd at night and a fan. We started it when she was an infant and we lived very close to active railroad tracks It would come through several times a night. There were 2/3 crossings very close together so the train would basically just lay on the horn. We moved to another apartment in another city were it sounded like the people above us were stomping all the time. The place we live now is right next to an interstate.( we need to pick quieter places to live) Anyway, she has to listen ONE song on the cd repeated all night long. It is her favorite song on the cd. The fan no longer has to be on high, but on low setting (the whole family has one in their room to block interstate sounds. We have pondered making her stop with the one song all night long, but I am not sure if it is comforting,or if it is just a habit. When we have been without power she can tolerate not having the music, but she is not happy about it. We have bought batteries for one play through the whole cd which she tolerates but is not happy with. What would you all do? Let her keep her music or take it away gradually from her? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 I don't see her song as being much different than the fans or 'sleep machines' that generate noise. It's something boring and repetitive that helps her sleep. Don't mess with a good thing. It isn't typical behavior, but it isn't negative either IMHO. A lot of AS parents have kids that have a hard time sleeping, so if you find something that works and is easy, stick with it. What I would do is put the CD on an MP3 player, so the battery option works all night. - > > My 10 year old dd recently diagnosed with AS has to listen to a music cd at > night and a fan. We started it when she was an infant and we lived very > close to active railroad tracks It would come through several times a > night. There were 2/3 crossings very close together so the train would > basically just lay on the horn. We moved to another apartment in another city were > it sounded like the people above us were stomping all the time. The place > we live now is right next to an interstate.( we need to pick quieter places > to live) Anyway, she has to listen ONE song on the cd repeated all night > long. It is her favorite song on the cd. The fan no longer has to be on > high, but on low setting (the whole family has one in their room to block > interstate sounds. > > We have pondered making her stop with the one song all night long, but I am > not sure if it is comforting,or if it is just a habit. When we have been > without power she can tolerate not having the music, but she is not happy > about it. We have bought batteries for one play through the whole cd which > she tolerates but is not happy with. > > What would you all do? Let her keep her music or take it away gradually > from her? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 I don't see anything wrong with it. I set my timer on my tv and fall asleep like that. Some read until their nodding off. The room air conditioner in our room in the summer makes my husband have his best sleep. I think if it works, then what's the harm, ya know? Can't see anything wrong with music. Have a good one. Robin From: kricketsmommy@... <kricketsmommy@...>Subject: ( ) music at night Date: Sunday, January 10, 2010, 4:21 PM My 10 year old dd recently diagnosed with AS has to listen to a music cd at night and a fan. We started it when she was an infant and we lived very close to active railroad tracks It would come through several times a night. There were 2/3 crossings very close together so the train would basically just lay on the horn. We moved to another apartment in another city were it sounded like the people above us were stomping all the time. The place we live now is right next to an interstate.( we need to pick quieter places to live) Anyway, she has to listen ONE song on the cd repeated all night long. It is her favorite song on the cd. The fan no longer has to be on high, but on low setting (the whole family has one in their room to block interstate sounds. We have pondered making her stop with the one song all night long, but I am not sure if it is comforting,or if it is just a habit. When we have been without power she can tolerate not having the music, but she is not happy about it. We have bought batteries for one play through the whole cd which she tolerates but is not happy with. What would you all do? Let her keep her music or take it away gradually from her? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 I see from the other posts that the concenses is to keep the music. I would. Maybe a radio with a certain type of music (like classical or something she likes). I used to listen to the radio and leave it on or put it on snooze when I was growing up. My son, who is 17 now, has AS, and he's used his ipod or something to have music to fall asleep with. Even his sisters leave their tv's on with the XM radio playing. I put my son who is 3, to sleep with the XM satellite music playing and then stop it when we come in to go to bed. I think he'd sleep better if he had the music on all night, but he is still in our room because we have no other room for him. My brother, who is 45, sleeps with a fan year round. Can't sleep without it. He has to have the "white noise" in order to sleep. So I'd keep it for your daughter. -Melinda, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 The CD is Night Songs...she has to listen to Whispering Willows. Before the diagnosis I was thinking of taking it away from her, but since then I have decided it is something she truly needs. I just dread the day it wears out and we have to buy a new one. HI, I have a 9 year old daughter with AS and she has had a cd that she listens to at night since she was small. We take her music with us even when we travel. I know that transisitions are hard on these kiddos so having something familiar really helps her. Personally I would let your son keep it since it may help him in future in new environments. We have no plans on taking our daughters music away. It seems like a nusance sometimes but it is well worth it when she is agitated about being at her grandparents or in a hotel. I hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 I have worried about the same thing concerning my son, now 19, for several years. He started doing pretty much the same thing, around the same age, although he does vary his music a bit, not much. All I can tell you is that he graduated valedictorian of his high school class and just very successfully completed his first semester at a tough college. He is happy and well-rested. And listens to music almost non-stop.Sarawww.aspergersupport.comhttp://nototherwisespecified.typepad.com/blog/>> My 10 year old dd recently diagnosed with AS has to listen to a music cd at > night and a fan. We started it when she was an infant and we lived very > close to active railroad tracks It would come through several times a > night. There were 2/3 crossings very close together so the train would > basically just lay on the horn. We moved to another apartment in another city were > it sounded like the people above us were stomping all the time. The place > we live now is right next to an interstate.( we need to pick quieter places > to live) Anyway, she has to listen ONE song on the cd repeated all night > long. It is her favorite song on the cd. The fan no longer has to be on > high, but on low setting (the whole family has one in their room to block > interstate sounds. > > We have pondered making her stop with the one song all night long, but I am > not sure if it is comforting,or if it is just a habit. When we have been > without power she can tolerate not having the music, but she is not happy > about it. We have bought batteries for one play through the whole cd which > she tolerates but is not happy with. > > What would you all do? Let her keep her music or take it away gradually > from her? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 We have threatened to take it away when we hear her talking to herself or her stuffed animals or her friends 2 hours after lights out. My husband it just tired of hearing the same song over and over and over again. We can hear it even with the door closed. So I thought I would pose the question to see if anyone else was going through the same thing. I am not going to take it away from her. Just hope we can find the same cd when this one wears out. I am in KY. I would not take the music away....I think if it does not bother anyone else it helps her and soothes her....she can not tell you what is wrong or what her anxiety is so whether it is a comfort or habit or both as long as it helps then dont mess with success:) By the way I am in NJ....my daughter is 9....where r u?? G. Wilder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Our son, who is now 13, enjoys music during sleep as well. We purchased an inexpensive CD/Radio for him and a station (rock-pop) plays quietly throughout the night. I don't see anything wrong with something that enhances sleep. Our daughter, who was quite cognitively impaired due to a chromosome duplication disorder also loved to listen to music. For her, I played a favourite music box each night with a lullaby. She often self-soothed with wind-up toys and simple devices that played music. I used to listen to music by radio during sleep as a teen too. I still can fall asleep rather well to a television (and have often missed the endings to shows!) I think it helps calm the brain by allowing one to focus on less urgent daily matters, perhaps. Velvet , Administrator for Tetrasomy 18p Canada http://www.tetrasomy18p.ca/ " 's Syndrome " > > My 10 year old dd recently diagnosed with AS has to listen to a music cd at > night and a fan. We started it when she was an infant and we lived very > close to active railroad tracks It would come through several times a > night. There were 2/3 crossings very close together so the train would > basically just lay on the horn. We moved to another apartment in another city were > it sounded like the people above us were stomping all the time. The place > we live now is right next to an interstate.( we need to pick quieter places > to live) Anyway, she has to listen ONE song on the cd repeated all night > long. It is her favorite song on the cd. The fan no longer has to be on > high, but on low setting (the whole family has one in their room to block > interstate sounds. > > We have pondered making her stop with the one song all night long, but I am > not sure if it is comforting,or if it is just a habit. When we have been > without power she can tolerate not having the music, but she is not happy > about it. We have bought batteries for one play through the whole cd which > she tolerates but is not happy with. > > What would you all do? Let her keep her music or take it away gradually > from her? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Hi , I don't see anything wrong with her listening to the music. It's not interfering with her life or academic skills nor did you mention if it's interfering with her sleep. If her night time music doesn't interfere with anything why not let her have her music. Rose From: chefsaramom <sesgardner@...> Sent: Mon, January 11, 2010 10:54:23 AMSubject: ( ) Re: music at night I have worried about the same thing concerning my son, now 19, for several years. He started doing pretty much the same thing, around the same age, although he does vary his music a bit, not much. All I can tell you is that he graduated valedictorian of his high school class and just very successfully completed his first semester at a tough college. He is happy and well-rested. And listens to music almost non-stop. Sara www.aspergersupport .comhttp://nototherwise specified. typepad.com/ blog/ >> My 10 year old dd recently diagnosed with AS has to listen to a music cd at > night and a fan. We started it when she was an infant and we lived very > close to active railroad tracks It would come through several times a > night. There were 2/3 crossings very close together so the train would > basically just lay on the horn. We moved to another apartment in another city were > it sounded like the people above us were stomping all the time. The place > we live now is right next to an interstate.( we need to pick quieter places > to live) Anyway, she has to listen ONE song on the cd repeated all night > long. It is her favorite song on the cd. The fan no longer has to be on > high, but on low setting (the whole family has one in their room to block > interstate sounds. > > We have pondered making her stop with the one song all night long, but I am > not sure if it is comforting,or if it is just a habit. When we have been > without power she can tolerate not having the music, but she is not happy > about it. We have bought batteries for one play through the whole cd which > she tolerates but is not happy with. > > What would you all do? Let her keep her music or take it away gradually > from her? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 My boys, age 16 and 5, both listen to music at night. My five year old has his own list of songs on my mp3 player and he listens to it every night. He needs to sing the first 2-4 songs so he always lays down half an hour earlier. My older son would listen to music 24/7 if he could but then he's also a teenager, lol! > > > > My 10 year old dd recently diagnosed with AS has to listen to a music cd at > > night and a fan. We started it when she was an infant and we lived very > > close to active railroad tracks It would come through several times a > > night. There were 2/3 crossings very close together so the train would > > basically just lay on the horn. We moved to another apartment in another city were > > it sounded like the people above us were stomping all the time. The place > > we live now is right next to an interstate.( we need to pick quieter places > > to live) Anyway, she has to listen ONE song on the cd repeated all night > > long. It is her favorite song on the cd. The fan no longer has to be on > > high, but on low setting (the whole family has one in their room to block > > interstate sounds. > > > > We have pondered making her stop with the one song all night long, but I am > > not sure if it is comforting,or if it is just a habit. When we have been > > without power she can tolerate not having the music, but she is not happy > > about it. We have bought batteries for one play through the whole cd which > > she tolerates but is not happy with. > > > > What would you all do? Let her keep her music or take it away gradually > > from her? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Burn another copy of the cd now.......or 2 or 3.......just in case. he he. Robin From: kricketsmommy@... <kricketsmommy@...>Subject: Re: ( ) music at night Date: Monday, January 11, 2010, 3:07 PM We have threatened to take it away when we hear her talking to herself or her stuffed animals or her friends 2 hours after lights out. My husband it just tired of hearing the same song over and over and over again. We can hear it even with the door closed. So I thought I would pose the question to see if anyone else was going through the same thing. I am not going to take it away from her. Just hope we can find the same cd when this one wears out. I am in KY. I would not take the music away....I think if it does not bother anyone else it helps her and soothes her....she can not tell you what is wrong or what her anxiety is so whether it is a comfort or habit or both as long as it helps then dont mess with success:) By the way I am in NJ....my daughter is 9....where r u?? G. Wilder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 We have a son who is younger than she is. She mostly talks aobut things she has seen on tv , but sometimes she is just talking to her stuffed animals about whatever pops into her head. I don't really listen in most of the time. Is your daughter an only child? My son is, he talks as well, but not really to himself more like he is just re running conversations he had earlier or scenes from a film, what does your daughter talk about? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 Rip it to the computer now before it wears our and then you can burn as many new cds for ever as long as you have the file on the computer. Vickie > > > We have threatened to take it away when we hear her talking to herself or > her stuffed animals or her friends 2 hours after lights out. My husband it > just tired of hearing the same song over and over and over again. We can > hear it even with the door closed. So I thought I would pose the question > to see if anyone else was going through the same thing. I am not going to > take it away from her. Just hope we can find the same cd when this one > wears out. > > I am in KY. > > > > I would not take the music away....I think if it does not bother anyone > else it helps her and soothes her....she can not tell you what is wrong or > what her anxiety is so whether it is a comfort or habit or both as long as it > helps then dont mess with success:) > > By the way I am in NJ....my daughter is 9....where r u?? > > > > G. Wilder > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 My son is 6, it took quite a bit of work to get him to just have a story at bedtime, but now he does it, however in the car is a different story, he wants the same song on over and over again, just now its gangster paradise, of all things! I tell him he can listen to it twice then it goes off. Is your daughter an only child? My son is, he talks as well, but not really to himself more like he is just re running conversations he had earlier or scenes from a film, what does your daughter talk about? From: baneline1 <baneline1@...>Subject: Re: ( ) music at night Date: Tuesday, 12 January, 2010, 14:59 Rip it to the computer now before it wears our and then you can burn as many new cds for ever as long as you have the file on the computer.Vickie>> > We have threatened to take it away when we hear her talking to herself or > her stuffed animals or her friends 2 hours after lights out. My husband it > just tired of hearing the same song over and over and over again. We can > hear it even with the door closed. So I thought I would pose the question > to see if anyone else was going through the same thing. I am not going to > take it away from her. Just hope we can find the same cd when this one > wears out. > > I am in KY.> > > > I would not take the music away....I think if it does not bother anyone > else it helps her and soothes her....she can not tell you what is wrong or > what her anxiety is so whether it is a comfort or habit or both as long as it > helps then dont mess with success:)> > By the way I am in NJ.....my daughter is 9....where r u??> > > > G.. Wilder> Quote Link to comment Share on other sites More sharing options...
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