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Starting to get a little worried. My LH level was

2.0-- within the acceptable range, but still pretty

low. Does that mean anything to you?

--- kaitain4 <no_reply > wrote:

> Petey wrote:

>

> " Here are my levels from my blood tests.

> My total testosterone was 218

> free testosterone was 2.3% 50.8 pg/ml

> My fsh,serum was 1.2(low levels) don't know what

> that is. "

>

> Well, testosterone levels are definitely low. Should

> be in the 500 to

> 600's. FSH = Follicle Stimulating Hormone - one of

> the chemical

> messengers from the brain that tells your nuts to

> " get to work " !

> There should also be a value for LH (Leutenizing

> Hormone). If it is

> also low, the probable diagnosis is secondary

> hypogonadism. This is

> the type that can be caused by a brain tumor

> (usually benign and very

> treatable). If you truly have secondary hypo, you

> should insist on an

> MRI of the brain and a Bone Density scan.

>

> Regards,

>

> K4

>

>

>

>

> > > > I'm a 50 year old male who has been having

> some problems

> lately.

> > I

> > > > went to an new urologist, was tested for

> testosterone levels,

> and

> > > > they came out around 204. He told me that was

> prety low, and

> > > > recommended I see an endocrinologist. What's

> that all about? He

> > > wants

> > > > me to see him for hypogonadism. I've only got

> 1 kidney and I'm

> a

> > > > little worried when trying to look this up

> online cause I'm not

> > > > really sure what I'm going to the endo for.

> Any help would be

> > > greatly

> > > > appreciated.

>

>

>

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,

The Clomid test is very interesting. Have never had any of my MDs

even mention it.

I guess the point I was trying to make is that you need to be sure

your MD does SOMETHING to rule out a tumor if you have Secondary

Hypo. Yes, most cases are idiopathic, but then again, most breast

lumps are benign...best to be sure. Especially since so many MDs

dismiss this stuff with hardly a thought!

K4

>

> > If you truly have secondary hypo, you should insist on an

> > MRI of the brain and a Bone Density scan.

>

> Not necessarily. A better first step would be a Clomid stimulation

> test. See the American Association of Clinincal Endocrinologists

> guidelines on hypogonadism at:

> http://www.aace.com/clin/guidelines/hypogonadism.pdf

>

> A positive response to a Clomid stimulation test would rule out a

> pituitary tumor or other pituitary abnormality and is much less

> stressful to the individual. Further, it is important to note that

> most cases of secondary hypogonadism are ideopathic (i.e, no tumor

or

> other abnormality exists and the doctors don't know why the

> pituitary/hypothalamus axis has reduced LH/FSH production).

>

> -

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Guest guest

LH low and FSH low and T low USUALLY mean secondary hypo. However, MD

must make that determination, not me.

Do NOT worry. As mentioned in a previous post, most of the time

it is NOT caused by a tumor - they simply don't know what causes it.

However, you need to rule out the possibility of the tumor. Pituitary

tumors are almost always BENIGN and if they need to be taken out, can

be removed through the nose. No head scar. Extremely treatable.

K4

> > > > > I'm a 50 year old male who has been having

> > some problems

> > lately.

> > > I

> > > > > went to an new urologist, was tested for

> > testosterone levels,

> > and

> > > > > they came out around 204. He told me that was

> > prety low, and

> > > > > recommended I see an endocrinologist. What's

> > that all about? He

> > > > wants

> > > > > me to see him for hypogonadism. I've only got

> > 1 kidney and I'm

> > a

> > > > > little worried when trying to look this up

> > online cause I'm not

> > > > > really sure what I'm going to the endo for.

> > Any help would be

> > > > greatly

> > > > > appreciated.

> >

> >

> >

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  • 3 weeks later...
Guest guest

> just beginning my search for

> a surgeon in the NW to do this procedure. Any recommendations? I

want

> to find the surgeon, then figure out if my insurance has ever paid

> for gastric surgery - my policy says no, but I've heard it's still

> possible to make it happen. Has Blue Shield covered anyone out

there?

The surgeons in the PNW region are Dr. Oh in Federal Way and Dr.

Srikanth (Dr. Fox's practice) in Tacoma. There's also Dr.

in Portland. I think I heard of a doctor or two in B.C., but don't

have any names to help you.

As far as Blue Cross, I didn't try real hard since my policy excluded

all weight loss surgeries - there's rumors that the fight might be

easier if it covers some WLS but not others. There's a special group

called BandstersInsurance that gets more into the details and has

information on how to approach the insurance companies.

To answer your other post, the insurance is a big reason many of us

went out of the country. But the experience was also very

important. The local doctors have more experience now than when I

had my surgery, but knowing what I know now, I'd probably still

choose Mexico. Then again, if I had a better insurance plan, staying

close to home would be awfully tempting.

Try and join us at the Northend Soup Nite on June 10th - you'll meet

lots of folks at different stages of the banding journey. I know

it's a long way, but then I think my commute back from the meeting

may be about as long as it takes to get to Bellingham ;) (Do I have

to admit that I'd already be in Seattle that day?)

Jo in Silverdale

Dr. Rumbaut 10/23/01 + 1/31/02

318/243/240

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  • 1 year later...

Kathie

You need a lyme literate doctor. You can see the rheum. dr , but trust me you

need a LLMD. Just let people know what state you are in and they can refer you.

I wasted too much time w/drs that didn't know enough on lyme.

[ ] New to all this

Hello, My name is Kathie and I have been diagnosed with Lyme

recently. I am 46 y/o, but was biten when I was 10 yrs old. My

parents thought it was just a spider bite and nothing was ever done.

We were camping at the time. I do remember it getting infected and

my dad putting some kind of drawing salve on it and also hot towels

put on my leg but that was all I remembered until I was looking up

fibromyalgia, because my dr. thought that was what I had. I kept

coming across Lyme disease. I looked at the picture of the bit and

had this huge " light bulb moment " . I knew that bite! I alked my dr.

about testing me for Lyme and she said sure come on in. I think we

both thought that it would come back negative,k but loh and behold,

It came back positive! I have an appt with a rheumatologist on March

5th , but I was wondering if anybody could let me in on what I can

expect. This had been in my system for 36 yrs, and I am wondering if

there is anything that can be done after this long.

Any suggestions or comments would be greatly appreciated.

Thanks,

Kathie

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Wow, Kathie, you and I have a lot in common! I was 12 when I was bitten and I'm

now 42!

Please consider getting an appointment with a LLMD, Lyme literate medical

doctor.

If you check out http://www.lymenet.org you will see a multitude of stories

about patients who got very ill from immune suppressing steroids, prescribed by

" RHEUMOTOLOGISTS "

They consider long term lyme, or 3rd stage as you and I have, to be " Post " lyme

many times and their only concern is risidual " lyme arthritis " .

The steroids will temporarily reduce the swelling in your tissues, while

trashing your immune system.

Next thing you know, they'll be telling you that you have MS or Lupus.

Thank goodness I went to lymenet when I did. I was in the process of being

diagnosed with lupus when I found them!

They helped me to find a lyme literate doctor and I've been in treatment for 10

months.

Many things are better, but it's no picnic. I'm finding the pituitary damage in

my brain is the worst. I am still struggling to get " insurance approved " care.

I'm here for you. You are not alone!! My e-mail is carolkerr@... and my

home number is (219) 345-5671.

Best wishes,

Carol aka dizz of lymenet

[ ] New to all this

Hello, My name is Kathie and I have been diagnosed with Lyme

recently. I am 46 y/o, but was biten when I was 10 yrs old. My

parents thought it was just a spider bite and nothing was ever done.

We were camping at the time. I do remember it getting infected and

my dad putting some kind of drawing salve on it and also hot towels

put on my leg but that was all I remembered until I was looking up

fibromyalgia, because my dr. thought that was what I had. I kept

coming across Lyme disease. I looked at the picture of the bit and

had this huge " light bulb moment " . I knew that bite! I alked my dr.

about testing me for Lyme and she said sure come on in. I think we

both thought that it would come back negative,k but loh and behold,

It came back positive! I have an appt with a rheumatologist on March

5th , but I was wondering if anybody could let me in on what I can

expect. This had been in my system for 36 yrs, and I am wondering if

there is anything that can be done after this long.

Any suggestions or comments would be greatly appreciated.

Thanks,

Kathie

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  • 2 years later...
Guest guest

Hi babysuefleming,

One of the best books I've read is: Dr. Palmer's 'Guide to

Hepatitis and Liver Disease'. Also good are Dr. T.

Everson's 'Hepatitis C, a Survivor's Guide' and Cara Bruce &

Montanarelli's 'Hepatitis C, The First Year'. (Both Ms. Montanarelli

and Ms. Bruce are hepatitis C patients). Each of these should be

avaiable for under $20.00. Check Hepatitis Magazine's website or

Amazon, Border's, B. Dalton or and noble....or the library.

Glenn

ps: There is a 'Hepatitis C For Dummies', too.

>

> I WAS DIAGNOSED WHEN THEY ACCIDENTALLY FOUND OUT ABOUT IT WHEN I WAS

> PREGNANT. I DON'T KNOW ANYTHING ABOUT THIS VIRUS. EXCEPT IT EFFECTS

> THE LIVER. I ALSO KNOW THEY CHECKED MY LIVER FUNCTIONS AND THEY SAID

> IT WAS FINE. OTHER THAN THAT I KNOW NOTHING. CAN ANYONE RECCOMEND A

> HCV BOOK FOR DUMMIES?????

>

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  • 5 months later...

Hi Mike, Well anything above 8 million is considered high but I have heard of ppl with 25 or MORE million in virus,, WHY isnt he doing a biopsy? THAT IS standard of care and treatment??? You may have a high viral load but have NO DAMAGE,, I know you are probably relieved that he isnt doing one but he is NOT doing YOU any favors by not doing one as it IS THE ONLY WAY to see how much damage you have or do not have.. Viral load has no correlation to the amount of damage one has.. I had a low viral count , around 500,000 and I was stage 3-4 with early cirrhosis and yet I know several others who had 20 million and were stage 0 with NO damage... I'd sure ask him WHY he is not doing one,, maybe there are other reasons such as you have a high INR so that your clotting isnt good or something but still,, I'd want to know WHY he ISNT doing a biopsy,, its the GOLD STANDARD for knowing how much damage you have or do not

have... hmmmm,, Good luck hon,, let us know what you find out,, do you know what genotype you are? how are the rest of your labs? What we recommend to every person here is to get copies of ALL labs etc and keep them in a file at home.. That way YOU KNOW what is going on,, sometimes docs dont tell ya everything or it takes weeks for them to get back to you and let you know the results of labs,,its just an idea but we have found that it really helped members here, especially if they had questions on the weekend and the doc wasnt available! jax moderatorguitarclovismike <guitarclovismike@...> wrote: I am new to all this. But I have had Hep c for awhile. My viral count is 8 million, which sounds high because the doc is is'nt going to do a liver biopsy. Quess between that and all that goes with it, just thought i would ask for anybody's experiance and input.thanksMikeJackie

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  • 10 months later...
Guest guest

Hi everyone

I shouldnt say im new to all this i have been helping my Wife go

thru with tkr in both knees now for over a year. About a year ago i

fell going down some stairs and and am facing tkr in the right knee

myself.I am trying Synvisc soon and hope that will offset surgery for

alittle while. it is encouraging to hear how well you guys do with this

While i am a otr truck driver there are soo many things i cant do like

no pain meds. ect must be able to climb in and out of a truck/trailer

must be able to cary 50lbs for short distances for up to 2 hours at a

time. To say the least im terified this will mean the end of my career

as a driver. so anyone out there a driver thats going or has gone thru

with this lets hear from you

Jim Garrison

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Jim

Not a truck driver myself. The only thing I would suggest is to get

as physically fit as you can before the operation. It will reduce the

recovery time from 10% to 20% IMO. I would also say that you should

be able to return to driving after about 2 - 4 months after the

operation. Everyone is different.

Good Luck and keep us posted.

Don

>

> Hi everyone

> I shouldnt say im new to all this i have been helping my Wife go

> thru with tkr in both knees now for over a year. About a year ago i

> fell going down some stairs and and am facing tkr in the right knee

> myself.I am trying Synvisc soon and hope that will offset surgery for

> alittle while. it is encouraging to hear how well you guys do with this

> While i am a otr truck driver there are soo many things i cant do like

> no pain meds. ect must be able to climb in and out of a truck/trailer

> must be able to cary 50lbs for short distances for up to 2 hours at a

> time. To say the least im terified this will mean the end of my career

> as a driver. so anyone out there a driver thats going or has gone thru

> with this lets hear from you

> Jim Garrison

>

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  • 11 months later...
Guest guest

Hi Crystal....Dr. Aceves is GREAT! He's the best, you'll love him.I remember worrying about the same things when I was getting ready for surgery. It's all normal and we all go through the same things. You'll feel better when you get there and see the hospital and meet Dr. Aceves. He really does have a calming effect.

What to pack... keep it light. You don't want to carry a bunch of heavy suitcases with you after surgery. I would bring a baggy pair of pants to wear home so nothing is pressing on your incisions. Bring your laptop if you want, there is wireless internet connection at the hotel and hospital.

You'll love having WLS, it's the best thing you can do for yourself. You'll see!On Mon, Jul 28, 2008 at 8:24 AM, Crystal <blue_eyes_21_2004@...> wrote:

I am considering getting the lap band done by Dr. A and was wondering

if anyone has any suggestions? I am very nervous right now about all of

it, i have done my intitial medical questionaire and am waiting to hear

back about that, but i'm not worried that i will be turned down.

My Stats

25 years old

5'6 "

290 lbs

46.8 BMI

What i am worried about is being turned down for financing, booking my

tickets, what to pack, finding a fill center that is resonable in price

and distance to travel to, and just everything in general.

Thanx for reading about my worries that i am sure you have felt or have

read before from everyone.

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Guest guest

Crystal:

You can go to several places for financing, including your own bank. Have you thought of the sleeve? Many of us here have had the sleeve, which is a restrictive procedure, but there are no fill worries or adjustment issues. You get the procedure and then you are done. However, you will have to decide which procedure is best for you.

I believe once the financing is taken care of, you will have a better idea of when you want it done and making the arrangements to get there and back.

Warmly,

Gail

From: Crystal <blue_eyes_21_2004@...>Subject: new to all this Date: Monday, July 28, 2008, 8:24 AM

I am considering getting the lap band done by Dr. A and was wondering if anyone has any suggestions? I am very nervous right now about all of it, i have done my intitial medical questionaire and am waiting to hear back about that, but i'm not worried that i will be turned down.My Stats25 years old5'6"290 lbs46.8 BMIWhat i am worried about is being turned down for financing, booking my tickets, what to pack, finding a fill center that is resonable in price and distance to travel to, and just everything in general.Thanx for reading about my worries that i am sure you have felt or have read before from everyone.

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Guest guest

Where are you from? Others on here might be able to help w/ ideas of where to do follow ups if you don't want to go back to Dr.A.

Personally, I want Dr. A, Dr. Campos, and Dr. checking on me, so I'll be going back to them for my first fill next week.

Burson

Pampered Chef

Independent Consultant

http://www.pamperedchef.biz/carrieb

new to all this

I am considering getting the lap band done by Dr. A and was wondering if anyone has any suggestions? I am very nervous right now about all of it, i have done my intitial medical questionaire and am waiting to hear back about that, but i'm not worried that i will be turned down.My Stats25 years old5'6"290 lbs46.8 BMIWhat i am worried about is being turned down for financing, booking my tickets, what to pack, finding a fill center that is resonable in price and distance to travel to, and just everything in general.Thanx for reading about my worries that i am sure you have felt or have read before from everyone.

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Guest guest

Dear Crystal...Dr Aceves and his group are very, very good. I was

impressed with their professionalism, the knowledge base and how they

educated the patients. I am a registered nurse working here in the

states and I would recommend Dr. Aceves to anyone! The hospital is

so clean. Everytime I turned around someone was mopping and

cleaning! (However, no powerful chemical odors). I paid in full so I

don't know about financing, but it will probably work out. Pack

light. Wear loose comfortable clothing. Their is a list of fill

doctors organized by state on this website. Click on links and you

will find it. A lot of folks decide to go back to Dr. A for fill or

fills. I will, even if it's just for the first fill but you can

start to research. Take care

Vanda Percy

>

> > I am considering getting the lap band done by Dr. A and was

wondering

> > if anyone has any suggestions? I am very nervous right now about

all of

> > it, i have done my intitial medical questionaire and am waiting

to hear

> > back about that, but i'm not worried that i will be turned down.

> > My Stats

> > 25 years old

> > 5'6 "

> > 290 lbs

> > 46.8 BMI

> > What i am worried about is being turned down for financing,

booking my

> > tickets, what to pack, finding a fill center that is resonable in

price

> > and distance to travel to, and just everything in general.

> > Thanx for reading about my worries that i am sure you have felt

or have

> > read before from everyone.

> >

> >

> >

>

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Guest guest

> > On Mon, Jul 28, 2008 at 8:24 AM, Crystal

> <blue_eyes_21_2004@>wrote:

I am considering getting the lap band done by Dr. A and was

wondering if anyone has any suggestions?

Have you looked into Vertical Sleeve Gastrectomy? I had that procedure

done 2.5 weeks ago and don't have to worry about fills. There is a good

bit of information on both VSG and Lab Band on Obsesityhelp.com and the

Lab Band web site. You can answers to a lot of questions on both sites.

Anne

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Guest guest

> What i am worried about is being turned down for financing.

I think Dr. Aceves's office can give you financing options too. It

might be worth a call. I used a loan from my 401K because I pay myself

back with interest. I also like to think of this whole thing as

something that will pay for itself if I am careful not to go out to eat.

Anne

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  • 1 year later...

Please get all hormones check properly so that when a person has been low for so

long your body will adapt to those levels. When you go changing things around

your body will adjust to maintain homeostatis. We evaluate the person once

staiblized on testosterone for adrenal and thyroid fuction to see how they have

change then adjust accordinly. Adding hcg should be done untill the T and E

have been stable for a few months because one body can change rapidly. Just

when you think you have every thing correct in a few weeks you body will trick

ya. We do not impliment HCG untill at least 2 months into stable levels to

prevent this from happening.

>

> Hello all,

>

> New to the group. Also new to HRT. Started on Androgel about month. Have

noticed a huge difference in how I feel. My energy, libido, etc are all back.

Starting about a week or so ago I started noticing an ache in my testicles

though. I read a posting from someone else experiencing the same thing who said

he was told that it was because they were shutting down and starting to atrophy.

The poster went on to say that getting on to HcG would correct this.

>

> Does anyone have any experience with this?

>

> Thanks

>

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Yes this can happen but I don't think this soon it might be your Estradiol

levels going to high this can drive your prostate nuts. What dose are you on

most start at a low 5 gram dose and for some this is not enough. What can

happen is you can end up lower then you started. Your brain sees the

Testosterone added to your blood and stops sending the LH and

FSH messages to your testis to make T. When this happens all your left with is

what the gel if doing and it might not be enough. So get in and get retested to

be sure your levels are going up not down. And check your Estradiol do a Quest

Labs test #4021 the range is 13 to 54 if your above 30 this can well be your

problem.

You need to get your Total T levels up into the upper 1/3 of your labs range for

a young man and to keep your Estradiol levels down to about 20 pg/ml if your

high you need to go on Arimidex to get and keep it down of you will not do good

on TRT. Most men only need about .25mgs every 2 to 3 days to keep levels down.

If you get leveled off into the upper 1/3 of your labs range and keep your

Estradiol levels down then add in HCG do 250 IU's in a shot every 3 days this

will keep your Testis working the best they can.

You see going on TRT LH and FSH gets shut down so all the cells in your body for

this stop working HCG acts like LH and FSH and keeps your testis and them cells

working.

If you don't get night time and morning wood I am thinking your Estradiol levels

are high. The first thing to come back getting Estradiol levels down is this

wood. So I tell men the following to not go to low on Arimidex.

Dr.'s that put men on TRT and don't check Estradiol are not up on TRT and if

they don't test and treat this with arimidex your wasting your time and money on

him.

=======================================================================

What I found is if you go to low taking arimidex, it's the length of time your

to low, if your too low say for 8 weeks it can take your body a longer time to

make more Estradiol. Bottom line is to know how not to go to low. Keep a log on

your dose and how you feel men going to low can't get it up taking Viagra. I

went to low when I first tried Arimidex and did not know about going to low or

how one feels to low, so I was low a good 8 weeks. I did not know I was low

until my next labs.

The best gage I have found to control your Estradiol levels is to gage your

night time and morning wood. At good levels or what I call the sweet spot you

get your night time and morning wood back so strong it will wake you up and you

can hang a coat on it.

Most men do good taking .25 mgs or 1/4 of a 1mg. pill, I use a pill cutter to

cut the small pill in half then I stand it on the cut end and use a single edge

razor to cut this in half. A good way to take arimidex is by how high your

levels are. I tested over 90 pg/ml so we tried doing .5 mgs every other day

after 8 weeks my next set of labs showed it did not move below 90, test said

>90. So we did .5 mgs. every day in about 2 weeks I got some strong night time

and morning wood back after not having them for many yrs.

I kept doing this dose and in 8 weeks my next set of labs said <20 back in the

day labs were like this they did not have to good labs we have today they could

not read lower the 20. My Dr. told me this looks to low to stop taking the

Arimidex. The one thing I noticed was my wood stopped and stopping the Arimidex

my wood came back in about 7 weeks my next test at 8 weeks was 24 pg/ml. So we

went back on the Arimidex but the Dr. told me to take .5 mgs every 3 days I was

on this dose not a week and lost wood. This is when I figured out going to low

you lose wood. And the longer your too low the longer it takes to get levels

back up.

I stopped the arimidex right away and got my wood back in 4 days. I then after

playing with the dose for a time found the best dose is .25mgs every 2 to 3

days.

So lets say your labs are less the 50 pg/ml if your take .5 mgs you can go down

so dam fast your miss the sweet spot of your wood and go to low. It's best with

lower levels 50 and under to do less Arimidex .25mgs every 2 days if later your

lose wood when it comes back go to every 3 days.

I have found estradiol is the hardest hormone to control, it goes up or down

from month to month some times I need .25mgs every 2 days other times I need

..25mgs everyday most of the time I do well on every 3 days.

So between wood and labs I do great and so do most of the men I have told this

to. I keep a log on how much I am taking and how I feel. Doing this and reading

back in my log I was able to tell when I was going to high or to low my Dr. lets

me dose my arimidex by how I feel.

Over the yrs. I have posted this story until I am blue in the face.

==========================================================================

Here are some links for you to read and show your Dr.

http://www.griffinmedical.com/male_hormone_modulation_therapy.html

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

http://jcem.endojournals.org/cgi/content/full/89/3/1174

http://www.lef.org/magazine/mag2008/nov2008_Dangers-of-Excess-Estrogen-in-the-Ag\

ing-Male_01.htm

Co-Moderator

Phil

> From: Rbffire <rbffire@...>

> Subject: New to all this

>

> Date: Wednesday, October 21, 2009, 9:33 PM

> Hello all,

>

> New to the group.  Also new to HRT.  Started on

> Androgel about month.  Have noticed a huge difference

> in how I feel.  My energy, libido, etc are all

> back.  Starting about a week or so ago I started

> noticing an ache in my testicles though.  I read a

> posting from someone else experiencing the same thing who

> said he was told that it was because they were shutting down

> and starting to atrophy.  The poster went on to say

> that getting on to HcG would correct this.

>

> Does anyone have any experience with this?

>

> Thanks

>

>

>

>

> ------------------------------------

>

>

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I started Androgel in early April at the 5 dosage...did not do much for me so I

upped it to 10 in June. Periodically I get the aching sensation you have

described...and I admit...its a bit scary. It usually lasts a couple of days at

most and then, for some reason, subsides.

 

I cannot draw a nexus between this sensation and any other activities...I have

had other randomn symptoms like less tolerance to heat...more leg cramps...was

going to mention this to the doc when I see him...

 

From: Rbffire <rbffire@...>

Subject: New to all this

Date: Wednesday, October 21, 2009, 6:33 PM

 

Hello all,

New to the group. Also new to HRT. Started on Androgel about month. Have noticed

a huge difference in how I feel. My energy, libido, etc are all back. Starting

about a week or so ago I started noticing an ache in my testicles though. I read

a posting from someone else experiencing the same thing who said he was told

that it was because they were shutting down and starting to atrophy. The poster

went on to say that getting on to HcG would correct this.

Does anyone have any experience with this?

Thanks

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Well I feel is your Estradiol levels going up every men on TRT will have this

problem and a lot not on TRT have it. If you can't get Arimidex you can take

DIM. Start with one tablet at dinner time and look for your night time and

morning wood to come back very strong or for it to get very strong. Gage not

going to low by keeping your wood some men do good on half a tablet a day.

http://www.iherb.com/Enzymatic-Therapy-Pure-Rip-with-DIM-60-Tablets/12814?at=0

http://www.dimfaq.com/index.htm

Co-Moderator

Phil

>

>

> From: Rbffire <rbffire@...>

> Subject: New to all this

>

> Date: Wednesday, October 21, 2009, 6:33 PM

>

>

>  

>

>

>

> Hello all,

>

> New to the group. Also new to HRT. Started on Androgel

> about month. Have noticed a huge difference in how I feel.

> My energy, libido, etc are all back. Starting about a week

> or so ago I started noticing an ache in my testicles though.

> I read a posting from someone else experiencing the same

> thing who said he was told that it was because they were

> shutting down and starting to atrophy. The poster went on to

> say that getting on to HcG would correct this.

>

> Does anyone have any experience with this?

>

> Thanks

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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  • 6 months later...
Guest guest

Maureen, when got in middle school, he stood out more to me too, with

his Aspergers. For (as everyone differs) it was just more age-level

things he should be able to do for himself (daily living skills?). Like I was

still getting the shower turned on for him, he just couldn't manage the hot/cold

water and getting the temp right. He couldn't microwave a meal, etc., needed me

to instruct him (whereas, other sons would just read & do). Oh, in the shower

he would always holler to ask which shampoo to use, which wash cloth, etc. (1

bathroom, 4 people!); got to be so I would sit near after he got in and wait for

him to yell, as I could tell him BEfore he got in but he apparently paid not

much attention to me! Making a sandwich was complicated and awkard (motor skill

partly). Just all these little things, I could go on. Still worked with him on

conversation skills.

So far as school, he did well, was good that he had a great memory, it helped!

OCD began in 6th grade and was severe, so that caused more " oddity " to peers and

messed up school too, ability to do his work. 's great strength was/is

his smartness. He took pride in being smart. And though all 3 of my sons are

smart, was just considered smartER, even by his brothers. So though

they might call him names and put him down, he could console himself - so to

speak - that he was smart. Other great strength, in my opinion, is that he's

really the nicest person I know (he hates me to say that!).

Luckily was always my patient, well-behaved son, somewhat quiet; my

couch potato vs the other 2 sons; he wasn't argumentative, did as was told

pretty much. By " luckily " I mean I think my hands were have been " fuller " with

either of my other 2 sons if they had OCD and/or Aspergers. Totally different

personalities.

wasn't strict about routine at home, but routine was helpful with

school, my opinion. Knowing what to do ahead of time, where this/that goes,

what's next, etc. Right before start of each school year, I always walked him

from class to class in order for the day, so it'd be familiar to him first day.

So - puberty was when his OCD began, he was going through puberty at the time

(growing, etc.); don't know if it was related. He had just started 6th grade

too, new school, lots of new students, etc. But between my 3 sons, puberty and

teenage years definitely the most emotional, more extreme with moods, reactions,

mouthy, etc. Such hard years, I know I wouldn't want to go through them again!

Well, I did just run on and ramble! Wish I could offer help with getting sis

not to get big brother going. Does she deliberately trigger stuff, or just more

they rub each other the wrong way?

>

>

>

> School definitely triggers his anxiety. In addition to the AS, he also was

diagnosed with a learning disability. While he is very intelligent and has

normal cogntive abilities, he really struggles (no surprise) in areas that

require good communication skills and certain types of memory work. He is so

stressed about appearing " stupid " or different in front of his peers that he is

totally spent by the time he gets home. He is fortunate and

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Thanks for reply, Chris. Every bit helps...my Aspie is unfortunately also very

intense by nature. He is not my easy-going one. Ah well...one day at a time. I

am envious that you are on the other end of the whole puberty thing, much as I

hate to wish away the years when they are young! As for his sister, she does

indeed stir the pot on a fairly regular basis. She is young and likes to get my

attention - especially in light of the fact that her brother consumes so much of

my time (he is also very dependent on me, as you described below). However, his

melt-downs related to her are often not at all her fault. He objects to her mere

existence. I know it is 95% due to his sensitivity to certain types of noise

(like her singing which is constant - she is is very loud and cheerful AND a

morning person - and he is NOT) but it does not make it any easier to live with.

It is a constant. The only peace we have is when one or the other is out of the

house. Makes taking a family vacation almost impossible but we just keep on

doing it in the hopes they will wake up one day and learn to appreciate

eachother. My middle son is a gem. Helps to keep me sane! He was my consolation

prize...reminds me every day that it is indeed all worth it! :)

> >

> >

> >

> > School definitely triggers his anxiety. In addition to the AS, he also was

diagnosed with a learning disability. While he is very intelligent and has

normal cogntive abilities, he really struggles (no surprise) in areas that

require good communication skills and certain types of memory work. He is so

stressed about appearing " stupid " or different in front of his peers that he is

totally spent by the time he gets home. He is fortunate and

>

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Pardon my interruption into this conversation, but I your conversation described our situation so closely, it was amazing.  I have a 20 yr old Aspie DS. He lives at home and attends a local University.  I would really love to find a support group for Aspie parents of late teens/young adults, but haven't so far.  He has matured more slowly than his peers, which, I believe is common for Aspies.  I'm wondering what the future will hold in the way of social resources, etc.

Thanks for letting me 'overhear' your convesation.On Wed, Apr 28, 2010 at 8:11 AM, momtocp <maureen.grady@...> wrote:

 

Thanks for reply, Chris. Every bit helps...my Aspie is unfortunately also very intense by nature. He is not my easy-going one. Ah well...one day at a time. I am envious that you are on the other end of the whole puberty thing, much as I hate to wish away the years when they are young! As for his sister, she does indeed stir the pot on a fairly regular basis. She is young and likes to get my attention - especially in light of the fact that her brother consumes so much of my time (he is also very dependent on me, as you described below). However, his melt-downs related to her are often not at all her fault. He objects to her mere existence. I know it is 95% due to his sensitivity to certain types of noise (like her singing which is constant - she is is very loud and cheerful AND a morning person - and he is NOT) but it does not make it any easier to live with. It is a constant. The only peace we have is when one or the other is out of the house. Makes taking a family vacation almost impossible but we just keep on doing it in the hopes they will wake up one day and learn to appreciate eachother. My middle son is a gem. Helps to keep me sane! He was my consolation prize...reminds me every day that it is indeed all worth it! :)

> >

> >

> >

> > School definitely triggers his anxiety. In addition to the AS, he also was diagnosed with a learning disability. While he is very intelligent and has normal cogntive abilities, he really struggles (no surprise) in areas that require good communication skills and certain types of memory work. He is so stressed about appearing " stupid " or different in front of his peers that he is totally spent by the time he gets home. He is fortunate and

>

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This is a note to Vicki -

I'm in Northern California in the Bay Area and I found a support group through a

private school for AS kids, where my son went to high school. The group isn't

affiliated with the school, but the school lets them use a classroom once a

month for meetings. If you know of a school like this in your area - maybe you

can call and see if they have something similar like this? A church may also

have something like this, too.

The group was founded by four moms a few years ago. They take turns leading the

meetings. When there isn't a speaker, we just go around the room and talk about

a topic or share what's going on in our lives now. When we put our heads

together, it's amazing how much we can help each other out.

There's usually about 20 parents who come. I feel so lucky to have this group -

but just wish I really had the time to follow up on all the information they

have to share. We have an informal mailing list, but that's it. They don't have

an online presence and so they are hard to find. I don't think that our group

even has a name! One of my personal goals for this year is to come up with a way

to share their resources online - maybe a blog or a webpage. We know about the

resources that are local, but I'd love to hear what's going on in other places,

too.

My son started college classes during his senior year of high school and so he

was already registered as a DS student by the time he graduated. The advice we

got for college was for my son to not worry about being a fulltime student for

the first year or two or to worry about a major. That he should start by taking

a couple of classes where he has a good chance of success and won't be too

anxious. And then gradually he can get the required classes out of the way and

figure out what he wants to do. So that's what we are doing. He is registed with

the disability office on campus and so gets early registration. He is purposely

avoiding taking any classes where he might need other accommodations & I'm not

looking forward to that time since he is doing so well now. He loves the classes

he has (BUT I don't know his grades & so don't really know if he really is doing

OK.) He actually joined a martial arts club and so spends most of Fridays

working out with the club on campus.

The other bit of advice we got in high school was for him to join a social

group. I've looked for one for years and suddenly found one that he actually

likes. So he does this once a week, plus an occasional private session with the

doctor who runs this group.

But he still does not drive. He can use public transportation though. Still

insists on wearing a jacket all the time, even in summer. Still rarely talks to

anyone. Still has such a long, long way to go.

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Hi , My son attends a state univ here in MO.  And it is not AS friendly... I can't even call it " AS aware " . lol  I spoke to the school about this early on and the school psy said he had thought that they didn't have any AS students in the school before that very day.  But, that morning he had rec'd a call from a mother of an AS girl, and he said they would accommodate her special needs. Well, I told him, you have another one, my son.  I also expressed my concern that they were omitting the ASD students from their programs, by assuming none attended this university (of 17,000 full time students!, and over 23,000 part time)

I would also like to find an AS friendly University.  My son has always loves meterology/atmospheric sciemce.  But the nearest school is a 5 hr drive, so he won't go.  He's not ready to live that far away yet.

I also cannot find a support group for parents of teens/young adults. Looks like I'll have to figure out a way to get one going., don't you wonder how life will be after your son completes his college day?  That is my concern.

m. sueOn Thu, Apr 29, 2010 at 4:47 PM, <tamaoki_s@...> wrote:

I'm also looking for a group for teens/young adults. I'm lucky to have a real one that meets locally once a month and it has been a real eye opener. Am thinking of starting a blog or a group just for teens/young adults... just not sure how to squeeze more into my day. In the meantime, let's keep in touch via this great group. My son is 18 and at the local community college. So far he is doing OK because he is just taking classes he is interested in. He's avoiding the required classes where he would absolutely have to have accommodations.

What university does your son go to? Is it AS-friendly? I need to figure what to do after community college and am starting a list of colleges that would give my son the extra hand holding he needs.

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