New to all this

[Guest guest]

My Liz, who just turned 13, is the same way. She has a few close friends but spends a lot of time by herself. She is physically mature but in other respects young for her age. From: maureen.grady@...Date: Thu, 29 Apr 2010 20:26:38 +0000Subject: ( ) Re: New to all this

Anytime! Totally agree with the comment re: Aspies maturing slower than most kids. Mine is fortunate & determined enough to have a few close friends, but at this age (turning 13), he could easily be left behind as he is definitely showing signs of being less mature. The others' interests are changing and my Aspie has not caught up...fingers crossed they don't leave him in the dust. I know he is spending more and more time home alone, but think it is by choice...so far.

> > > >

> > > >

> > > >

> > > > School definitely triggers his anxiety. In addition to the AS, he also

> > was diagnosed with a learning disability. While he is very intelligent and

> > has normal cogntive abilities, he really struggles (no surprise) in areas

> > that require good communication skills and certain types of memory work. He

> > is so stressed about appearing "stupid" or different in front of his peers

> > that he is totally spent by the time he gets home. He is fortunate and

> > >

> >

> >

> >

>

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[Guest guest]

Thanks for your reply!! That is great that you have a support group and that your son also has is own social group. I've been searching around to no avail. Again, if anybody is from So. Calif., in San Bernardino County- particularly the city of Chino-pls. get in touch w/ me. I will check at private AS schools around. My son weekly goes to a psychologist that does neurofeedback on him, but he does not run a group. My son is 18 and has been driving since last yr, and thankfully has not been in any accidents- although he has reported close ones. BTW, what does your son plan to take as a major later?? What are his interests?? Does he have any friends at this point?? Does he have a Face Book Acct? Maybe our sons could communicate via FB? My son also is very introverted and shy. Right now, he's

really struggling w/ his senior yr. How did your son do in HS?? My was eligible to start taking college classes at the CalPoly University which he did, about 3 classes total but at separate times and he kept dropping it as it was, too, hard for him Good thing we only paid $10/sem being that he was only in HS. Thanks again for your response. I do like this group except that I wish there were more teens. oh well. VickieFrom: <tamaoki_s@...>Subject: ( ) Re: New to all this Date: Friday, April 30, 2010, 10:26 AM

This is a note to Vicki -

I'm in Northern California in the Bay Area and I found a support group through a private school for AS kids, where my son went to high school. The group isn't affiliated with the school, but the school lets them use a classroom once a month for meetings. If you know of a school like this in your area - maybe you can call and see if they have something similar like this? A church may also have something like this, too.

The group was founded by four moms a few years ago. They take turns leading the meetings. When there isn't a speaker, we just go around the room and talk about a topic or share what's going on in our lives now. When we put our heads together, it's amazing how much we can help each other out.

There's usually about 20 parents who come. I feel so lucky to have this group - but just wish I really had the time to follow up on all the information they have to share. We have an informal mailing list, but that's it. They don't have an online presence and so they are hard to find. I don't think that our group even has a name! One of my personal goals for this year is to come up with a way to share their resources online - maybe a blog or a webpage. We know about the resources that are local, but I'd love to hear what's going on in other places, too.

My son started college classes during his senior year of high school and so he was already registered as a DS student by the time he graduated. The advice we got for college was for my son to not worry about being a fulltime student for the first year or two or to worry about a major. That he should start by taking a couple of classes where he has a good chance of success and won't be too anxious. And then gradually he can get the required classes out of the way and figure out what he wants to do. So that's what we are doing. He is registed with the disability office on campus and so gets early registration. He is purposely avoiding taking any classes where he might need other accommodations & I'm not looking forward to that time since he is doing so well now. He loves the classes he has (BUT I don't know his grades & so don't really know if he really is doing OK.) He actually joined a martial arts club and so spends most of Fridays working out

with the club on campus.

The other bit of advice we got in high school was for him to join a social group. I've looked for one for years and suddenly found one that he actually likes. So he does this once a week, plus an occasional private session with the doctor who runs this group.

But he still does not drive. He can use public transportation though. Still insists on wearing a jacket all the time, even in summer. Still rarely talks to anyone. Still has such a long, long way to go.

[Guest guest]

This is in response to Roxanna & her question about the club that my son has

joined on campus. He is taking Japanese and is also taking an Aikido class. He

has been studying both since he was in grade school and so these are easy

classes for him. He joined a club for Kendo, another martial art. Some of the

kids in his Japanese class are also in the Kendo club, which is great. This kind

of club has a lot of rules - what to wear, what to do, and so on, so he knows

what is expected.

I encouraged my son to join a club on campus to make some friends & so has his

doctor. I told him that I did the same thing when I was in college and that's

were I met my boyfriend in college. In the fall, I found a list of clubs that

the college sponsers, but the days & times they meet weren't published on the

school's web site until around December. I printed the list and highlighted some

stuff that I thought would interest him. He did the rest himself.

Anyway, if you have a child in college, check the school's web site for

information on clubs.

[Guest guest]

Thanks for the ideas!

Roxanna

Whenever I feel blue, I start breathing again.

( ) Re: New to all this

This is in response to Roxanna & her question about the club that my

son has joined on campus. He is taking Japanese and is also taking an

Aikido class. He has been studying both since he was in grade school

and so these are easy classes for him. He joined a club for Kendo,

another martial art. Some of the kids in his Japanese class are also in

the Kendo club, which is great. This kind of club has a lot of rules -

what to wear, what to do, and so on, so he knows what is expected.

I encouraged my son to join a club on campus to make some friends & so

has his doctor. I told him that I did the same thing when I was in

college and that's were I met my boyfriend in college. In the fall, I

found a list of clubs that the college sponsers, but the days & times

they meet weren't published on the school's web site until around

December. I printed the list and highlighted some stuff that I thought

would interest him. He did the rest himself.

Anyway, if you have a child in college, check the school's web site for

information on clubs.

[Guest guest]

Hi, Helen. I am way too new to the group to be part of the Welcome Wagon, but

everyone here has been so welcoming to me, they inspire me to want to make

others feel welcome, too.

So, Welcome Helen! You are in the best place ever to learn from and fellowship

with others in your same situation.

Robin

(my last post today, I PROMISE!)

>

> Hi there-I gather most of you are in the States-hello to you all from

" slightly yellow " of borough England. :-)

>

> It took my doctors nearly 4 years to diagnose hep C-by which time I had gone

from 119lbs to 98lbs. So apart from being a bit annoyed at losing any shape I

once had (and doubtful I'll get them back at 47 years old....), I was also

taking 8 paracetamol and codeine per day (as prescribed) because of the joint

pain from the arthritis,(I'm allergic to ibuprofen). What was really happening

was food moving through my system very very quickly which was masked by the

codeine-so I suffered 4 years of b12 deficiencies etc because I was getting

minimal nutrients. So I started upping the amount of dairy to get b12-I'm not a

big meat eater-and it just got worse. Anyway-now I'm here, I know what it is

and I have to say the virus is welcome to live inside me if it wants-but it wont

be comfortable for it....

> The thing is, its been a month and I've completely changed my diet to

macrobiotic/japanese and stopped taking paracetamol. But still the swift

digestion-my eyes arent so yellow and dry and the lividity in the palms of my

hands has faded-I definitely feel better, but urine is still very dark and the

other very pale. I didnt expect to see results overnight but this constant need

for the loo is getting me down now-any suggestions?

> Thanks guys.

>

[Guest guest]

Hi, my name is Dorris. My 13 y/o daughter received a diagnosis of Asperger's in

Oct 2010...very late to receive a diagnosis but it ALL makes sense - looking at

things from her childhood. Just completed the IEP evaluation with no education

diagnosis of Asperger's because her grades are too good. Any advice on next

steps?

[Guest guest]

Sounds to me like she/you have figured out how to work WITH her AS. Um,

if it ain't broke, don't fix it?

Eleanor, San , CA

Aspie son Isaac, 10.5 years old

On 03/09/2011 11:08 , Dorris wrote:

> Hi, my name is Dorris. My 13 y/o daughter received a diagnosis of

> Asperger's in Oct 2010...very late to receive a diagnosis but it ALL

> makes sense - looking at things from her childhood. Just completed the

> IEP evaluation with no education diagnosis of Asperger's because her

> grades are too good. Any advice on next steps?

[Guest guest]

ne,

Thank you for the info.

We have a lot of behavioral issues at home and she is beginning to show that at

school. We do have a great support system in the building which is nice (we

don't get nearly as many calls as 6 months ago) - they are learning how to

effectively communication with her and deal with those issues. I've very

thankful for that.

She does have sensory issues - she sleeps against a wall, a body pillow on the

other side and 4-5 blankets on top; she is in your space (and face) but don't

think about doing that to her - she would explode. Another issue is water - she

can't stand the water running in the shower (we have purchased several differet

shower heads). Baths aren't appealing either. We are making progress in that

area though.

SSD (Special School District) just completed the evaluation for an IEP and found

NO educational diagnosis for Aspergers. Sighing she sat with a table of peers at

lunch (duh, they have assigned seating), she was on task 83% of the time (she is

medicated for ADHD), and her grades are too high (not surprising when we spend

4-5 hours a night on homework). She is also taking Geodone to control the

impulsiveness. I let the meeting crying Our school administrators are great

- outstanding relationship and communication with them. I have a meeting this

morning with the main principal.

We are currently waiting for approval for different therapies/counseling to

begin. I am coping by reading as much as I can about Asperger's and staying true

to my faith and belief that God will see us through!

>

>

> From: Dorris <abcdefinnegan@...>

> Subject: ( ) New to all this

>

> Date: Wednesday, March 9, 2011, 2:08 PM

>

>

>  

>

>

>

> Hi, my name is Dorris. My 13 y/o daughter received a diagnosis of Asperger's

in Oct 2010...very late to receive a diagnosis but it ALL makes sense - looking

at things from her childhood. Just completed the IEP evaluation with no

education diagnosis of Asperger's because her grades are too good. Any advice on

next steps?

>