Sleep Issues

[Guest guest]

Hi, New to group and wondering same thing with my son.....his diagnosis is PDD-NOS, and along with other problems, GW does not sleep consistently through the night. He always wakes up at least once or twice, especially if in his own bed. He could be out cold, but somehow realizes he is by himself, wakes up, and crawls into bed with us.....we don't know what to do to get him to sleep completely through the night, and not keep coming into our bed. AprilBrad Thibodaux <daux_family@...> wrote: , We have the same problem ... late night visits from . Not only does it take him almost two hours to get to sleep, if not longer, he wakes up several times a night and doesn't go right back to sleep. I know he is tired because he is on the go all day and doesn't nap. I have an appointment this week with his doctor because I think it would help him have a better day if he was properly rested. CeliaStacey <all4cam@...> wrote: Hi Celia,From what I understand it is very common.It can be due to various health issues as well,seizures,reflux etc.In my son's case he has always had a hard time regulating himself and when he was little (2 or 3yrs)he would be up till all hrs (2 or 3am)when he'd finally just pass out and go to sleep..from

exhaustion I'm sure.We tried Valerian but nothing happened.The melatonin worked really well for quite a few years and I have suggested it to many of my friends who have tried it with their kids with great success! I would just like to be able to say "goodnite" and see him in the morning ..instead of a few hrs later ..he's in my bed! I dunno maybe he just feels the need to be with me..kindof a parenting during the night sort or thing! I am a single parent so that could be a possibility. I dont mind it sometimes..but I'd sure like to have my bed to myself more!Stacey> >> > My son (9yrs old )has been using clonidine for years to help him > go to > > sleep at night.I think he may have built up an "immunity" he's > able to > > go down for bed but just not able to stay asleep,he's up within a > few > > hrs and climbs into bed with me..after a while he may go back to > sleep > > but most times he cannot and I have to give him a 1/2 of a > tablet.I > > give him 1 1/2 tablet at bedtime(0.1mg tablets)> > > > any suggestions?> > > > stacey> >> __________________________________________________Do You

?Tired of spam? has the best spam protection around http://mail.

[Guest guest]

I know what you mean ... does weird stuff like that. I also have the feeling that he is scared to go to sleep. He's not afraid of the dark or anything like that ... it just seems he worries about what will happen if he falls asleep. Celiareverseautism <reverseautism@...> wrote: ---My son is 15 now, but used to have sleep problems. Up 'til 2-3 AMdoing things like taking a bag full of apples, taking bites out ofthem and spitting them into the fish aquarium 'til it isFULL...filling the tub w/water, then pouring a large

bag of cheetosinto the water, emptying the ENTIRE refrigerator onto the kitchenfloor, etc. I never knew what I would wake up to! This was when he was3-6 years old. He has been falling asleep around 9PM on a regularbasis for several years.I also had many nights when I would lie down with him, and he wouldfall asleep looking into my eyes, this was one of the very few timeshe would make eye contact...it was almost like he was afraid to fallasleep, wondering if the world would be there when he woke up. I wouldalso gently run my fingers over his face and over his eyelids, closingthem. If he has trouble falling asleep now, Melatonin works for him, butthese nights are few and far between. I noticed big changes when Istarted him on the Gluten-Casein free diet, and began usingnutritional supplements.Peace and HOPE,

Lindy~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~In autism , Brad Thibodaux<daux_family@...> wrote:>> ,> > We have the same problem ... late night visits from . Notonly does it take him almost two hours to get to sleep, if not longer,he wakes up several times a night and doesn't go right back to sleep.I know he is tired because he is on the go all day and doesn't nap. Ihave an appointment this week with his doctor because I think it wouldhelp him have a better day if he was properly rested. > > Celia> > Stacey <all4cam@...> wrote:> Hi Celia,> From what I understand it is very common.It can be due to various > health issues as well,seizures,reflux etc.In my son's case he

has > always had a hard time regulating himself and when he was little (2 > or 3yrs)he would be up till all hrs (2 or 3am)when he'd finally just > pass out and go to sleep..from exhaustion I'm sure.We tried Valerian > but nothing happened.The melatonin worked really well for quite a > few years and I have suggested it to many of my friends who have > tried it with their kids with great success! > > I would just like to be able to say "goodnite" and see him in the > morning ..instead of a few hrs later ..he's in my bed! I dunno maybe > he just feels the need to be with me..kindof a parenting during the > night sort or thing! I am a single parent so that could be a > possibility. I dont mind it sometimes..but I'd sure like to have my > bed to myself more!> > Stacey> > > > >> > > My son (9yrs old )has been using clonidine for years to help him > > go to > > > sleep at night.I think he may have built up an "immunity" he's > > able to > > > go down for bed but just not able to stay asleep,he's up within > a > > few > > > hrs and climbs

into bed with me..after a while he may go back to > > sleep > > > but most times he cannot and I have to give him a 1/2 of a > > tablet.I > > > give him 1 1/2 tablet at bedtime(0.1mg tablets)> > > > > > any suggestions?> > > > > > stacey> > >> >> > > > > > __________________________________________________>

[Guest guest]

has to rub my skin to fall asleep most of the time ... he runs his hands up and down my arms ... any peice of skin he can touch really. He does it during the day at times too. He rubs his own arms at times .. like when he is sitting in his car seat. sometimes when my husband is driving he will want to hold my hand so he can rub his hands against my arms. We can't get him to go to sleep without one of us and he is always doing the rubbing! I keep saying we are going to get him one of those cat's that have no hair ( I forget the breed of the cat) so he can rub that all night instead of my arms.... it keeps me up all night! Celiaall4cam@... wrote: Lindy,Oh my gosh! You remind me of when my son was little.We used to have to lay with him ...face to face and he'd be looking right into our eyes..what I'd do is start fluttering my eyelids and eventually close them and then he would too! For years he needed someone to be right next to him and he'd seek skin-to-skin contact and that would be comforting to him and he'd eventually fall asleep.When he was around 6months old or so he'd rub your nose with the palm of his hand and that's how he'd fall asleep! Wow,that's really something ..I never met anyone who had that same story to tell! I used to say he thought he'd miss something if he closed his eyes and went to sleep!StaceyFrom: reverseautism <reverseautism >Date: Thu Jun 22 23:14:28 CDT 2006autism Subject: Re: sleep issues---My son is 15 now, but used to have sleep problems. Up 'til 2-3 AMdoing things like taking a bag full of apples, taking bites out ofthem and spitting them into the fish aquarium 'til it isFULL...filling the tub w/water, then pouring a large bag of cheetosinto the water, emptying the ENTIRE refrigerator onto the kitchenfloor, etc. I never knew what I would wake up to! This was when he was3-6 years old. He has been falling asleep around 9PM on a regularbasis for several years.I also had many nights when I would lie down with him, and he wouldfall asleep looking into my eyes, this was one of the very few timeshe would make eye contact...it was almost like he was afraid to fallasleep, wondering if the world would be there when he woke up. I wouldalso gently run my fingers

over his face and over his eyelids, closingthem. If he has trouble falling asleep now, Melatonin works for him, butthese nights are few and far between. I noticed big changes when Istarted him on the Gluten-Casein free diet, and began usingnutritional supplements.Peace and HOPE, Lindy~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~In autism , Brad Thibodaux<daux_family@...> wrote:>> ,> > We have the same problem ... late night visits from . Notonly does it take him almost two hours to get to sleep, if not longer,he wakes up several times a night and doesn't go right back to sleep.I know he is tired because he is on the go all day and doesn't nap. Ihave an appointment this week with his doctor because I think it

wouldhelp him have a better day if he was properly rested. > > Celia> > Stacey <all4cam@...> wrote:> Hi Celia,> From what I understand it is very common.It can be due to various > health issues as well,seizures,reflux etc.In my son's case he has > always had a hard time regulating himself and when he was little (2 > or 3yrs)he would be up till all hrs (2 or 3am)when he'd finally just > pass out and go to sleep..from exhaustion I'm sure.We tried Valerian > but nothing happened.The melatonin worked really well for quite a > few years and I have suggested it to many of my friends who have > tried it with their kids with great success! > > I would just like to be able to say "goodnite" and see him in the > morning ..instead of a few hrs later ..he's in my bed! I dunno maybe > he just feels the need to be with me..kindof a parenting during

the > night sort or thing! I am a single parent so that could be a > possibility. I dont mind it sometimes..but I'd sure like to have my > bed to myself more!> > Stacey> > > > >> > > My son (9yrs old )has been using clonidine for years to help him > > go to > > >

sleep at night.I think he may have built up an "immunity" he's > > able to > > > go down for bed but just not able to stay asleep,he's up within > a > > few > > > hrs and climbs into bed with me..after a while he may go back to > > sleep > > > but most times he cannot and I have to give him a 1/2 of a > > tablet.I > > > give him 1 1/2 tablet at bedtime(0.1mg tablets)> > > > > > any suggestions?> > > > > > stacey> > >> >> > > > > > __________________________________________________>

[Guest guest]

April, is 4 now and has been having sleeping problems since as long as I can remember ... at least since he was 1yr or so. I really didn't know what was wrong. I thought it was just being hard-headed! We have just tried everything and were at the end of our rope with him when we were dignosed and heard about other children with sleep problems. I wish I would have known sooner. His behavior has improved in the last few days ... and it's nice that everyone in the house gets sleep. CeliaApril aka Gypsycatwoman <gypsycatwoman@...> wrote: Hi, New to group and wondering same thing with my son.....his diagnosis is PDD-NOS, and along with other problems, GW does not sleep consistently through the night. He always wakes up at least once or twice, especially if in his own bed. He could be out cold, but somehow realizes he is by himself, wakes up, and crawls into bed with us.....we don't know what to do to get him to sleep completely through the night, and not keep coming into our bed. AprilBrad Thibodaux <daux_family@...> wrote: , We have the same problem ... late night visits from . Not only does it take him almost two hours to get to sleep, if not longer, he wakes up several times a night and

doesn't go right back to sleep. I know he is tired because he is on the go all day and doesn't nap. I have an appointment this week with his doctor because I think it would help him have a better day if he was properly rested. CeliaStacey <all4cam@...> wrote: Hi Celia,From what I understand it is very common.It can be due to various health issues as well,seizures,reflux etc.In my son's case he has always had a hard time regulating himself and when he was little (2 or 3yrs)he would be up till all hrs (2 or 3am)when he'd finally just pass out and go to sleep..from exhaustion I'm sure.We tried Valerian but nothing happened.The melatonin worked really well for quite a few years and I have suggested it to many of my friends who have tried it with their kids with great success!

I would just like to be able to say "goodnite" and see him in the morning ..instead of a few hrs later ..he's in my bed! I dunno maybe he just feels the need to be with me..kindof a parenting during the night sort or thing! I am a single parent so that could be a possibility. I dont mind it sometimes..but I'd sure like to have my bed to myself more!Stacey>

>> > My son (9yrs old )has been using clonidine for years to help him > go to > > sleep at night.I think he may have built up an "immunity" he's > able to > > go down for bed but just not able to stay asleep,he's up within a > few > > hrs and climbs into bed with me..after a while he may go back to > sleep > > but most times he cannot and I have to give him a 1/2 of a > tablet.I > > give him 1 1/2 tablet at bedtime(0.1mg tablets)> > > > any suggestions?> > > > stacey> >> __________________________________________________

[Guest guest]

Hi Celia, GW has always been awake at night....but he didn't always come into our bed....that is what gets us now....trying to roll over and finding him there.....unfortunately, for being 6 going on 7, he is a size 8 or 9....really long....so even in a king size bed, he takes up room I know it is more of a comfort thing for him....but argh....but, we are slowly working on it.....and working...and working..... AprilBrad Thibodaux <daux_family@...> wrote: April, is 4 now and has been having sleeping problems since as long as I can remember ... at least since he was 1yr or so. I really didn't know what was wrong. I thought it was just being hard-headed! We have just tried everything and were at the end of our rope with him when we were dignosed and heard about other children with sleep problems. I wish I would have known sooner. His behavior has improved in the last few days ... and it's nice that everyone in the house gets sleep. CeliaApril aka Gypsycatwoman <gypsycatwoman@...> wrote: Hi, New to group and wondering same thing with my son.....his diagnosis is PDD-NOS, and along with other problems, GW does not sleep consistently through the night. He always wakes up at least once or twice, especially if in his own

bed. He could be out cold, but somehow realizes he is by himself, wakes up, and crawls into bed with us.....we don't know what to do to get him to sleep completely through the night, and not keep coming into our bed. AprilBrad Thibodaux <daux_family@...> wrote: , We have the same problem ... late night visits from . Not only does it take him almost two hours to get to sleep, if not longer, he wakes up several times a night and doesn't go right back to sleep. I know he is tired because he is on the go all day and doesn't nap. I have an appointment this week with his doctor because I think it would help him have a better day if he was properly rested. CeliaStacey <all4cam@...>

wrote: Hi Celia,From what I understand it is very common.It can be due to various health issues as well,seizures,reflux etc.In my son's case he has always had a hard time regulating himself and when he was little (2 or 3yrs)he would be up till all hrs (2 or 3am)when he'd finally just pass out and go to sleep..from exhaustion I'm sure.We tried Valerian but nothing happened.The melatonin worked really well for quite a few years and I have suggested it to many of my friends who have tried it with their kids with great success! I would just like to be able to say "goodnite" and see him in the morning ..instead of a few hrs later ..he's in my bed! I dunno maybe he just feels the need to be with me..kindof a parenting during the night sort or thing! I am a single parent so that could be a possibility. I dont mind it

sometimes..but I'd sure like to have my bed to myself more!Stacey> >> > My son (9yrs old )has been using clonidine for years to help him > go to > > sleep at night.I think he may have built up an "immunity" he's > able to > > go down for bed but just not able to stay asleep,he's up within a > few > > hrs and climbs into

bed with me..after a while he may go back to > sleep > > but most times he cannot and I have to give him a 1/2 of a > tablet.I > > give him 1 1/2 tablet at bedtime(0.1mg tablets)> > > > any suggestions?> > > > stacey> >> __________________________________________________

[Guest guest]

insomnia is goes with lyme as it efects areas of the brain that control

sleep...it sounds like you are stirring up something...best of luck

eric

jayrho74 <jayrho74@...> wrote:

My nights have become sleepless like a shark... I want to sleep like a

bear...

BUT all the protocols seem to cause insomnia or agitated sleep

paterns...

Is there any effective sleep remedy for the Lyme patient..

Would reducing Artemisinin Help?

RHONDA

[Guest guest]

I am very fortunate that I work for a doctor and I have been able to use some

samples and Rozerem really helps. It is not habit forming (addictive) and it

does not give you the hung over feeling.... Good luck...

eric schulman <eric_s11050@...> wrote: insomnia is goes with lyme

as it efects areas of the brain that control sleep...it sounds like you are

stirring up something...best of luck

eric

[Guest guest]

any input, my quick thoughts...

Sound sensitivity, maybe. With my girl, it took TWO things to wake

her up, even when on melatonin. And, two things WOULD wake her

up...a car going by (house windows open) and the phone ringing..or

phone ringing, then an older child yelling across house...furnace

kicking on, then dog barking...you get the picture ...there could

be something in his environment waking him up...we actually found

that a neighbor's phone and/or alarm clock was one of the things

waking her up...

I also found my answers & connections with the pineal gland &

flouride connections (a study by (?) Luke, provided first

clues for that one... I would look into possible sources of fluoride,

aluminum, & tin (synergistic properties)...Lead can also cause

insomnia that melatonin has a hard time getting past...another

possibility there...big sigh...and fluoride does increase lead issues

dramatically...everything is soooo connected. aarrgghh.

For us, weight had nothing to do with amount needed...my girl was

30ish lbs & taking 9 to 12 mcg in a night, for about 3-6 months...and

when she has needed melatonin here recently, she still would need 3

to 9 mcg in a nite....it has been a couple months now (fingers

crossed!)...This higher level is also comparable to what my nearly

150-200ish lb older child has needed in a night also...

I also had another older child who could have used melatonin, but did

not tolerate it...later on, tho, she did, in much smaller amounts,

(1/2 to 1 mcg, for her) with good results...

I ran into some info at acu-cell.com, that provided clues for why

this might be - things about sided-ness, accumulation & effects from

that, as it pertains to the fluoride issues...apologies, have no idea

what page that would be & not enough minutes to hunt for it - if you

are interested in that page,but can't find it, I can look for it

later

and, thanks to a tip from a previous thread, (6-12mos ago or

so...lol - do not Even remember when , tart cherries & juice are

now inhaled here, by my older kids, on a regular basis and I do think

this one food thing has made a difference for them...my migraine girl

doesn't like/tolerate the cherries at all.

fwiw

wishing you the best answers

elizabeth

>

> I know that melatonin is the supp of choice and we are using

that...but

> have run into a funny one.

>

> My son is 10 and weights about 115 lbs and about 5'4 " . He is

taking 9

> mgs of melatonin plus 9 mg of time release. He is not sleeping

much

> even with that.. If I reduce the time release...he wakes up at

about

> 3 or 4 and is awake for the day...and since he has been going to

sleep

> about midnight or 1 am....not a good idea. We are working on his

yeast

> and I am not sure what else to think. Any input would be

appreciated.

>

> Thanks

> Ronni

>

[Guest guest]

ps to post...*thinking, and wanted to add...my older kids did have

excessive exposure to lead (pipes, scraping paint, renovations of

same house, you name it...aarrgh land indeed) anyway, blood tests for

the toddlers, at that time, confirmed this...After that, we often

addressed sleep problems, too much or not enough, with

calcium/mag/zinc supps, and upping the calcium/iron foods...Our food

ways - apples, romaine, cantaloupe, eggs, and peanut butter were

the " big " staple foods I used during the years after I found out just

how high their levels were...urg...

as a side note, romaine & most greens are not well tolerated during

more recent years - I link this bit to the fluoride related

issues/exposures...

fwiw

wishing all the best answers

elizabeth

>

> any input, my quick thoughts...

>

> Sound sensitivity, maybe. With my girl, it took TWO things to wake

> her up, even when on melatonin. And, two things WOULD wake her

> up...a car going by (house windows open) and the phone ringing..or

> phone ringing, then an older child yelling across house...furnace

> kicking on, then dog barking...you get the picture ...there

could

> be something in his environment waking him up...we actually found

> that a neighbor's phone and/or alarm clock was one of the things

> waking her up...

>

> I also found my answers & connections with the pineal gland &

> flouride connections (a study by (?) Luke, provided first

> clues for that one... I would look into possible sources of

fluoride,

> aluminum, & tin (synergistic properties)...Lead can also cause

> insomnia that melatonin has a hard time getting past...another

> possibility there...big sigh...and fluoride does increase lead

issues

> dramatically...everything is soooo connected. aarrgghh.

>

> For us, weight had nothing to do with amount needed...my girl was

> 30ish lbs & taking 9 to 12 mcg in a night, for about 3-6

months...and

> when she has needed melatonin here recently, she still would need 3

> to 9 mcg in a nite....it has been a couple months now (fingers

> crossed!)...This higher level is also comparable to what my nearly

> 150-200ish lb older child has needed in a night also...

>

> I also had another older child who could have used melatonin, but

did

> not tolerate it...later on, tho, she did, in much smaller amounts,

> (1/2 to 1 mcg, for her) with good results...

>

> I ran into some info at acu-cell.com, that provided clues for why

> this might be - things about sided-ness, accumulation & effects

from

> that, as it pertains to the fluoride issues...apologies, have no

idea

> what page that would be & not enough minutes to hunt for it - if

you

> are interested in that page,but can't find it, I can look for it

> later

>

> and, thanks to a tip from a previous thread, (6-12mos ago or

> so...lol - do not Even remember when , tart cherries & juice are

> now inhaled here, by my older kids, on a regular basis and I do

think

> this one food thing has made a difference for them...my migraine

girl

> doesn't like/tolerate the cherries at all.

>

> fwiw

> wishing you the best answers

> elizabeth

>

>

>

[Guest guest]

My son never slept more than two straight hours until he was 4 1/2 years old.

Around that time, I started treating yeast, reducing phenols, and feeding for

hypoglycemia. Of those three, feeding for hypoglycemia was the most helpful

in getting him to sleep longer but the others tied in as well. Within three

days of feeding for hypoglycemia he was sleeping through the night for the first

time in his life. Now, seven years later, if she has restless nights, just t

reating for yeast or reducing phenols does the trick.

Just my experience - all kids are dfferent!

Debbie

**************Planning your summer road trip? Check out AOL Travel Guides.

(http://travel.aol.com/travel-guide/united-states?ncid=aoltrv00030000000016)

[Guest guest]

These symptoms mean yeast overgrowth in our

household. We use Candex with good results.

We give the adult dose and follow the

instructions exactly.

An entire anti-yeast regime is important in

our house.

--- <dhdudley@...> wrote:

> Our daughter is 11 years old and weighs 104 lbs.

> She had sleep issues

> from the time she was 8 mo. to 4.5 years old. Since

> starting super nu

> thera at 4.5 she has done better. We started

> bio-med 1.5 years ago.

> We are gf/cf/sf.. also not eating other things her

> blood work indicated

> was a problem. She takes a multi vitamin from

> metamatrix, Buffered

> magnesuim glycinate 400 mg, fish oil, vit. c 1400

> mg, and a med for

> allergies. She also had been taking melatonin, only

> 2.5 mg. Nothing

> has changed for months in her regime. She started

> having sleep

> problems 5 nights ago, and on Sat. and Sun. nights

> sleeping NONE.

> Monday night I gave her 10 mg. before bed. After a

> while she fell

> asleep only to wake after six hours. I need advise!

> She is also very

> hyper. What brands of timed released melatonin do

> you use. Any other

> thoughts would be so appreciated. We are getting

> desperate!

>

> Connie

>

>

>

[Guest guest]

Some remarks you might be interested in here:

http://www.healthgazelle.org/sleepissues.shtml

and here: http://www.healthgazelle.org/bed.shtml

Also, I will suggest something you probably won't hear from anyone

else: Perhaps he isn't getting enough mental stimulation.

My oldest is very aspie and has a long list of learning disabilities

but also has a very high IQ. He can't sleep until he is mentally

tired. It took us several years after learning he had a very high

IQ to figure out how to effectively meet his intellectual needs. He

was quite a pain until we got a handle on that. It was a challenge

because of the combination of high IQ and lots of learning

disabilities. That made it tough to find things that were

sufficiently intellectually challenging to make his mind tired but

didn't trip him up somehow over one of his disabilities.

My other website talks about some of my challenges homeschooling and

raising my sons: www.kidslikemine.org

HTH and good luck,

Michele

>

> I know that melatonin is the supp of choice and we are using

that...but

> have run into a funny one.

>

> My son is 10 and weights about 115 lbs and about 5'4 " . He is

taking 9

> mgs of melatonin plus 9 mg of time release. He is not sleeping

much

> even with that.. If I reduce the time release...he wakes up at

about

> 3 or 4 and is awake for the day...and since he has been going to

sleep

> about midnight or 1 am....not a good idea. We are working on his

yeast

> and I am not sure what else to think. Any input would be

appreciated.

>

> Thanks

> Ronni

>

[Guest guest]

oh, just want to say I found good stuff here ...we actually used

some of the ideas already, but picked up new things that helped

immensely too...at this point, don't remember all the details, but do

remember how much I did like these two sites

fwiw

wishing all the best answers

elizabeth

>

> Some remarks you might be interested in here:

> http://www.healthgazelle.org/sleepissues.shtml

> and here: http://www.healthgazelle.org/bed.shtml

(snipped)

> My other website talks about some of my challenges homeschooling

and

> raising my sons: www.kidslikemine.org

>

> HTH and good luck,

>

> Michele

>

[Guest guest]

WOW!!!! Can ya hear me say WOW!!! I would have never thought this for

a moment. I just reduced the kids from 200 mgs of COq10 to 100

mgs...and that's incredible....man this job sure has a learning curve!!!

Thanks .

Ronni

> > Some remarks you might be interested in here:

> > http://www.healthgazelle.org/sleepissues.shtml

> > and here: http://www.healthgazelle.org/bed.shtml

>

> (snipped)

>

> > My other website talks about some of my challenges homeschooling

> and

> > raising my sons: www.kidslikemine.org

> >

> > HTH and good luck,

> >

> > Michele

> >

>

[Guest guest]

> Our daughter is 11 years old and weighs 104 lbs. She had sleep issues

> from the time she was 8 mo. to 4.5 years old. Since starting super nu

> thera at 4.5 she has done better. We started bio-med 1.5 years ago.

> We are gf/cf/sf.. also not eating other things her blood work indicated

> was a problem. She takes a multi vitamin from metamatrix, Buffered

> magnesuim glycinate 400 mg, fish oil, vit. c 1400 mg, and a med for

> allergies. She also had been taking melatonin, only 2.5 mg. Nothing

> has changed for months in her regime. She started having sleep

> problems 5 nights ago, and on Sat. and Sun. nights sleeping NONE.

> Monday night I gave her 10 mg. before bed. After a while she fell

> asleep only to wake after six hours. I need advise! She is also very

> hyper.

SuperNuThera, multi vitamin, fish oil, vitamin C all can cause sleep

issues for various reasons. The vitamins tend to increase yeast,

which usually causes sleep issues

http://www.danasview.net/yeast.htm

SNT is notorious for phenol issues, but if it helped your child, you

might not be dealing with that

http://www.danasview.net/phenol.htm

Dana

[Guest guest]

Thanks. I revamped the sites recently. A new look, hopefully

easier to find your way around, and a few new things. For example,

I added a few links on the " mental models " page of Health Gazelle

and added a new page to Kids Like Mine.

Michele

> >

> > Some remarks you might be interested in here:

> > http://www.healthgazelle.org/sleepissues.shtml

> > and here: http://www.healthgazelle.org/bed.shtml

>

> (snipped)

>

> > My other website talks about some of my challenges homeschooling

> and

> > raising my sons: www.kidslikemine.org

> >

> > HTH and good luck,

> >

> > Michele

> >

>

[Guest guest]

Hi Ronni,

I took between 400mg and 600mg for some months. As I understand it,

it is also good for the heart and lungs, both of which I was working

to repair. In recent weeks, I only take between 50 and 150mg most

days. Sometimes, I forget entirely. I've come a long way.

Good luck with your journey.

Michele

>

> WOW!!!! Can ya hear me say WOW!!! I would have never thought this

for

> a moment. I just reduced the kids from 200 mgs of COq10 to 100

> mgs...and that's incredible....man this job sure has a learning

curve!!!

> Thanks .

> Ronni

>

>

>

> > > Some remarks you might be interested in here:

> > > http://www.healthgazelle.org/sleepissues.shtml

> > > and here: http://www.healthgazelle.org/bed.shtml

> >

> > (snipped)

> >

> > > My other website talks about some of my challenges

homeschooling

> > and

> > > raising my sons: www.kidslikemine.org

> > >

> > > HTH and good luck,

> > >

> > > Michele

> > >

> >

>

[Guest guest]

Have you considered NAET for allergies? www.naet.com

S S

sleep issues

Posted by: " " dhdudley@... hndnfd

Tue Apr 8, 2008 5:51 am (PDT)

Our daughter is 11 years old and weighs 104 lbs. She had sleep issues

from the time she was 8 mo. to 4.5 years old. Since starting super nu

thera at 4.5 she has done better. We started bio-med 1.5 years ago.

We are gf/cf/sf.. also not eating other things her blood work indicated

was a problem. She takes a multi vitamin from metamatrix, Buffered

magnesuim glycinate 400 mg, fish oil, vit. c 1400 mg, and a med for

allergies. She also had been taking melatonin, only 2.5 mg. Nothing

has changed for months in her regime. She started having sleep

problems 5 nights ago, and on Sat. and Sun. nights sleeping NONE.

Monday night I gave her 10 mg. before bed. After a while she fell

asleep only to wake after six hours. I need advise! She is also very

hyper. What brands of timed released melatonin do you use. Any other

thoughts would be so appreciated. We are getting desperate!

Connie

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Connie, I found something it's helping some children with sleeping

issues please check

Reversingautism/message/3189

.

>

> I wanted to say thank you to all who responded to our e-mail. We

are

> treating for yeast, looking into the phenol information and other

> things as well. Thank you for all your help and support. We will

let

> you know what happens!

>

> Connie

>

> -------------------------------------------------------------------

-

>

> Posted by: " " dhdudley@... hndnfd

> Tue Apr 8, 2008 5:51 am (PDT)

>

> Our daughter is 11 years old and weighs 104 lbs. She had sleep

issues

> from the time she was 8 mo. to 4.5 years old. Since starting super

nu

> thera at 4.5 she has done better. We started bio-med 1.5 years

ago.

> We are gf/cf/sf.. also not eating other things her blood work

indicated

> was a problem. She takes a multi vitamin from metamatrix, Buffered

> magnesuim glycinate 400 mg, fish oil, vit. c 1400 mg, and a med

for

> allergies. She also had been taking melatonin, only 2.5 mg.

Nothing

> has changed for months in her regime. She started having sleep

> problems 5 nights ago, and on Sat. and Sun. nights sleeping NONE.

> Monday night I gave her 10 mg. before bed. After a while she fell

> asleep only to wake after six hours. I need advise! She is also

very

> hyper. What brands of timed released melatonin do you use. Any

other

> thoughts would be so appreciated. We are getting desperate!

>

> Connie

>

[Guest guest]

Could you please share how you feed him for hypoglycemia? I am dealing

with same issues on my front. Please let me know what you did? Thanks

in advance!!!

Sunny

>

> My son never slept more than two straight hours until he was 4 1/2

years old.

> Around that time, I started treating yeast, reducing phenols, and

feeding for

> hypoglycemia. Of those three, feeding for hypoglycemia was the most

helpful

> in getting him to sleep longer but the others tied in as well.

Within three

> days of feeding for hypoglycemia he was sleeping through the night

for the first

> time in his life. Now, seven years later, if she has restless

nights, just t

> reating for yeast or reducing phenols does the trick.

>

> Just my experience - all kids are dfferent!

>

> Debbie

>

>

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

>

(http://travel.aol.com/travel-guide/united-states?ncid=aoltrv00030000000016)

>

>

>

[Guest guest]

I agree with about sleep issues. Those of us who have had good

experiences usually don't write to tell about it, but people who have

had bad experiences are very likely to write about that.

I'm a newbie. I'm 70 years old and have been taking LDN for three

weeks for ulcerative colitis. I had one vivid dream the first night

and none since. The first three nights on LDN I woke up at 6 AM, 6

AM, and 4 AM. I suppose it was when the endorphin surge completed.

In spite of the short night, I felt good all day. Since then I sleep

better than I have in years. I used to love sleeping, then grew to

dread and hate going to bed at night. Sleeping was hard work and I

would wake up hurting. Now my love of sleeping is back. In 7 hours or

a little more I'm awake and ready to rise, and I feel good all day.

I've learned through my illnesses (severe ulcerative colitis with

auto-immune attacks in other parts of my body, and prostate cancer)

that everybody's story is different, so I must not get trapped by

another person's story. I learn from the experience of other people,

but what happens to me will never be an exact repeat of what happened to them.

Listening to too many stories and getting trapped by them is like

reading the side-effects listed for a drug in the Physicians Desk

Reference and thinking you are going to have several of them. It can

be good to know what the side-effects are in case you get one of

them, but most of them are rare, and most users don't get even one.

[Guest guest]

Well done !

- In low dose naltrexone , " R. ston " <pastorj@...> wrote:

>

> I agree with about sleep issues. Those of us who have had good

> experiences usually don't write to tell about it, but people who have

> had bad experiences are very likely to write about that.

>

> I'm a newbie. I'm 70 years old and have been taking LDN for three

> weeks for ulcerative colitis. I had one vivid dream the first night

> and none since. The first three nights on LDN I woke up at 6 AM, 6

> AM, and 4 AM. I suppose it was when the endorphin surge completed.

> In spite of the short night, I felt good all day. Since then I sleep

> better than I have in years. I used to love sleeping, then grew to

> dread and hate going to bed at night. Sleeping was hard work and I

> would wake up hurting. Now my love of sleeping is back. In 7 hours or

> a little more I'm awake and ready to rise, and I feel good all day.

>

> I've learned through my illnesses (severe ulcerative colitis with

> auto-immune attacks in other parts of my body, and prostate cancer)

> that everybody's story is different, so I must not get trapped by

> another person's story. I learn from the experience of other people,

> but what happens to me will never be an exact repeat of what happened to them.

>

> Listening to too many stories and getting trapped by them is like

> reading the side-effects listed for a drug in the Physicians Desk

> Reference and thinking you are going to have several of them. It can

> be good to know what the side-effects are in case you get one of

> them, but most of them are rare, and most users don't get even one.

>

[Guest guest]

So good to hear you've done well with this.  I as well seem to be sleeping better after 4 weeks on LDN and it seems I'm less fatigued than I've been in a long time.  I seem to be able to do more every day.  When I first began the LDN I was a zombie by 3 or 4 in the afternoon.  It is now almost 9 pm, I was out all day, and I'm tired and going to bed soon, but I'm functioning!  It's the little progresses we make that count, even if some days we seem to backslide.

 

robin

On Sun, May 24, 2009 at 10:13 PM, R. ston <pastorj@...> wrote:

I agree with about sleep issues. Those of us who have had good experiences usually don't write to tell about it, but people who have had bad experiences are very likely to write about that.I'm a newbie. I'm 70 years old and have been taking LDN for three

weeks for ulcerative colitis. I had one vivid dream the first night and none since. The first three nights on LDN I woke up at 6 AM, 6 AM, and 4 AM. I suppose it was when the endorphin surge completed. In spite of the short night, I felt good all day. Since then I sleep

better than I have in years. I used to love sleeping, then grew to dread and hate going to bed at night. Sleeping was hard work and I would wake up hurting. Now my love of sleeping is back. In 7 hours or a little more I'm awake and ready to rise, and I feel good all day.

I've learned through my illnesses (severe ulcerative colitis with auto-immune attacks in other parts of my body, and prostate cancer) that everybody's story is different, so I must not get trapped by

another person's story. I learn from the experience of other people, but what happens to me will never be an exact repeat of what happened to them.Listening to too many stories and getting trapped by them is like

reading the side-effects listed for a drug in the Physicians Desk Reference and thinking you are going to have several of them. It can be good to know what the side-effects are in case you get one of them, but most of them are rare, and most users don't get even one.

[Guest guest]

Sleep issues are a small (VERY SMALL) part of side effects. I only had it for three nights and the benefits far outweigh the 3 or 4 nights of vivid dreams. Stick with it - it will be soooo worth it!!! Not everyone has sleep issues or vivid dreams, but most of those who do will tell you to not worry about it.

I agree with about sleep issues. Those of us who have had good experiences usually don't write to tell about it, but people who have had bad experiences are very likely to write about that.I'm a newbie. I'm 70 years old and have been taking LDN for three weeks for ulcerative colitis. I had one vivid dream the first night and none since. The first three nights on LDN I woke up at 6 AM, 6 AM, and 4 AM. I suppose it was when the endorphin surge completed. In spite of the short night, I felt good all day. Since then I sleep better than I have in years. I used to love sleeping, then grew to dread and hate going to bed at night. Sleeping was hard work and I would wake up hurting. Now my love of sleeping is back. In 7 hours or a little more I'm awake and ready to rise, and I feel good all day.I've learned through my illnesses (severe ulcerative colitis with auto-immune attacks in other parts

of my body, and prostate cancer) that everybody's story is different, so I must not get trapped by another person's story. I learn from the experience of other people, but what happens to me will never be an exact repeat of what happened to them.Listening to too many stories and getting trapped by them is like reading the side-effects listed for a drug in the Physicians Desk Reference and thinking you are going to have several of them. It can be good to know what the side-effects are in case you get one of them, but most of them are rare, and most users don't get even one.

[Guest guest]

I have not researched studies, , so I can't refer you to anything.

Noah has had cyclical sleep issues for about 20 of his 23 years...

He has been on a variety of antipsychotics, anti-depressants and more recently,

prescription sleep meds...nothing works consistently and most of the meds alter

his personality and his cognitive status and not in a good way! He develops a

very flat affect, becomes sluggish, sometimes combative or more testy, he

develops tremors, rashes, flushing...I could go on, but you get the idea.

He is currently taking a benzodiazapine (Lorazepam) and Lyrica (this was a lark

to see if any body aches or pains may be causing sleeplessness...we will likely

stop this med shortly)...we are trying 5 mg of Melatonin again but to be honest,

the best we can do at present is the benzo, which helps Noah to stay calm (most

of the time) while he waits to fall asleep...what he is currently taking is not

affecting his cognitive ability, that I can see...

He often does fall asleep in about an hour or two, but often wakes...anywhere

from 3-6 hours after falling asleep...

This cycle has lasted about 6 months...other, better cycles, which have lasted

up to two years, are when he has 1 bad night to every 3-4 good nights...a good

night being defined as 6-8 hours of sleep and falling asleep within an hour...

Hope this helps...my prince awaits

Oh, and I forgot to mention...he comes in my room repeatedly when he cannot

sleep...sometimes he will watch a video for a few hours and not bother me, but

he doesn't entertain himself all that well or for all that long...

I used to think Noah's sleep issues were seasonal, but not any longer...

Needless to say, I am often a walking zombie.

Ellen

Ellen Garber Bronfeld

egskb@...

Sleep Issues

Taking a break from politics! Ellen, you have mentioned sleep difficulties

with Noah in a few posts....have you found any herbals or supplements that will

provide more than 3 or 4 hours sleep each night? Does Noah keep you awake, or

does he quietly occupy himself? Is this chronic for months, or is it problematic

at certain times or seasons of the year? Has anyone else discovered what this is

about and/or ways of managing it? I would also be interested in knowing whether

those with sleep issues are on prescription meds. If anyone can refer me to any

studies about sleep/autism/psychiatry connection, I'd be most grateful.

W