Re: SSI application, can someone please, please help me be as negative as possible

[Guest guest]

Hi Sue,

I will share with you my story with SSI . This is for my 17 y.o. daughter who has

's Syndrome and NVLD . TS has many health issues with it. She see 7 different

specialist ...several times through out the year.

First I applied on line and got a conference call and was denied. I went to see a

SS attorney. The first initial visit is free. He recommended I go down to the SS office physically and wait to see an agent so, I did. He told me that there are

only certain months that the SS will approve applicants. Each agent is only allowed to approve X amount of applicants per year. May is a good month to apply. I go to the SS office and wait in line. The agent sent me to the DHS office to apply for Medicaid this was in Feb. I have not heard anything to date. One month before her 18th b-day (3rd time)

I go with her to the SS office and reapply for SSI. One positive is her name is in the

system ! As far as my daughter who is 11 and just got a dx of AS plus more.

I plan to apply for Medicaid for her as well. You must take the dx and all medical/therapy records that you have with you plus have all doctors names on hand. This will make the app go quicker. If my 11 y.o is denied for Medicaid . I will go back and hire the SS attorney to push it through. I thought with Obama's Health Care Reform no child / adult was to be denied Relief. I hope this helps ! Best of luck to you! I grew up in TN ! : )

Elinor mom to Maeci 11 who's confirmed dx is AS, dysgraphia, depressive disorder , enuresis nocturnal and desommia nos.

From: Mimi <sue@...> Sent: Wed, April 28, 2010 4:07:18 PMSubject: ( ) SSI application, can someone please, please help me be as negative as possible

We are trying to get SSI for son, 25 years old, who is the poster child for falls through the cracks. On IQ test, verbal in the 90s, performance in the 50s. I have been panicked at what to tell them to apply for SSI, spoke with someone today (a person who helps get ssi, doesn't work for them) who says to "stick to the facts" and tell them all things he can't do. As an eternal optimist, that is SO hard to do. Even though all my other dreams and fantasies for him have been dashed to the ground, I still hold out hope that one day, he could live on his own. She says I have to, however, convince them he CANNOT. She advised I should tell them stuff like how we have to constantly remind him to shower, shave. And then I don't know what to say! The fact that he can ride a bike makes him much less likely to get it, LOL. I thought I was Alice in Wonderland when she said that, the fact that he has to ride a bike to catch a bus because he can't drive...not

a plus. If he can ride a bus, that's another point in the "no" column! So please, anyone that has gone through this...any supported living arrangement we are looking at he would HAVE to have SSI for it to be affordable. He only makes $500/month, oh yeah, another "no" point that he has part time job.If we charge him rent, that's a plus! yes, I AM in Wonderland!Sue in TN

[Guest guest]

Hi,

My DD is 20, and she was approved for SSI when she was 18 based on mild MR and

Affective D/O. Before I applied, I took her to a well respected P.h.D. for an

independent eval. Current IQ testing and adaptive behavior scaling was

documented. The pdoc I took her to was very well versed in SSA policy. My DD's

application was processed and approved in 60 days. At age 10, she was dx with

PDD by an Associate Professor at a teaching hospital. She had collected a

monthly payment from MY SSDI, as I was found totally disabled in 1995. I had to

switch it to her own disability when she turned 18. We were lucky to get an

approval so quickly when she applied for her own SSI. I did not use an attorney.

I believe the independent eval. carried a lot of weight, along with a copy of

her IEP, and yes, the list of all the things she cannot do. She cannot ride a

bike (has epilepsy), needs adult supervision 24/7, does not work, but

volunteers, attends remedial courses in college (3-7 credits a semester)with

accommodations and a tutor that the college supplies. She has difficulty with

peer relationships, withdrawal, sensory issues, and change in plans.

She qualified for level one (most severe) for Vocation Rehab.They just leased

a basic computer with Dragon Software to help her with college.

If SSA would have turned her down,I would have handed her case over to a good

attorney.

Please don't give up! There are timelines to follow, and I believe SSA makes it

difficult to get approval, hoping some people will give up.

Take care,

Donna O., 58, Systemic Lupus, DDD

Mom to Meredith, 20,PDD, MR., Epilepsy, Sensory Integration D/O,

just dx with Rheumatoid Arthritis.

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