Re: Re: GFCF for Aspergers

[Guest guest]

I agree:) Even if helping some of the symptoms its worth it!!! God bless:)

From: T <juice00000@...>Subject: ( ) Re: GFCF for Aspergers Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.TJ>> Has anyone here seen really good results with GFCF for Aspergers?> > My son is 9, and he's fairly high fxning.> > Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low

frustration tolerance.> > I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.> > I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?> > Thanks!>

[Guest guest]

There is no evidence that a special diet cures or improves autism. I have never heard it matters if one is HF or not as to whether it would improve more or less. I just saw this article on my home page this morning - more evidence that this is not true -->

http://tinyurl.com/krq5qd

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low

frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?

>

> Thanks!

>

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[Guest guest]

I cannot get your tinyurl to work.However as a an occupational therapist with an extensive background in human nutrition and physiology, and having done extensive research, as well as anecdotal experience, I must reject your position out of hand.

From: T <juice00000msn (DOT) com>

Subject: ( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low

frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your score. See now!

[Guest guest]

oops, forgot to add my credentials...I'm just a mom. My anecdotal evidence is that I have yet to see any of these kids improve taking all the pills, peeing in refrigerated bottles or having their joints yanked around to "remove their allergies." But then, I'm just a mom. A lot of people have done it in my area and their kids are still the same as they were before. Too bad.

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low

frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your score. See now!

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[Guest guest]

Well, I'll just say that instead of trying to discourage people from trying the diet, you should just say what people need to keep in mind, in general, and that is that not every approach is going to work for every child.As you can imagine, or maybe not, as an occupational therapist, I determined early on that my child, yes, I have a child on the spectrum as mentioned in my original post, would not be seeing a chiropractor for anything to do with autism. However, to assume that no important information can be found in urine is short sighted.You really do make it sound as though people who know that they're seeing good results with the diet are off their rockers.Perhaps some are, but all of them?That is illogical.100% of these people cannot be mistaken.Many

of them are "just" moms, and I have faith in them.

From: T <juice00000msn (DOT) com>

Subject: ( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low

frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your score. See now!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

I think I will say what I said originally - it's not proven that this works at all. People can decide to ignore the proof and do it anyway if they want. Obviously, people still do that. I have no idea why you are saying that your child will never see a chiropractor or underscoring that you have a child on the spectrum since I didn't say anything about either of those things. We were discussing the DAN protocol/diet, I gave my observations and then linked to a new article that I just saw that day related to the discussion.

But I think it's odd that you just said I should tell people that not every approach works for every child, then say you won't have your kid see a chiropractor, although I have no clue why we are discussing chiropractors now? Also, I never said you could not find out information from urine. Instead of being able to say that this is proven to work or discussing the article I linked to, you seem to be throwing all this other stuff into the conversation and taking what I said out of context or adding meaning that I did not intend. I don't think people are "off their rockers" at all. I think they see what they want to see. There is a reason why it's always anecdotal and not scientifically proven.

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low

frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your score. See now!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

I am not at home so I don’t have access to my other

computer or I would pull up the email I sent a year or so ago on this subject. 

But, in a nutshell here is what I said then:  the DAN protocol and the GFCF

diet have no scientific research/testing to back up their claims.  I am not

saying there is no research or testing as DAN doctors and other proponents of

these methods have done “research” but it is done by them and

therefore is not scientific.  True scientific research is done by a neutral

third party who is an authority on the subject, uses standardized scientific

methods, analyzes the data without prejudice, and it has to be reproducible (every

time you do it you get same results or results within an acceptable margin/another

researcher could follow same steps and get same results).  Not only am I a mom,

I am also a registered nurse, and my husband is a physician and we want to see

the scientific research to treatments, medications, protocols, procedures,

etc. 

Everyone is free to believe whatever they want and free to do

whatever they want but I take exception when people say something is “proven”

when it really isn’t.  I really don’t want to get this argument

started again, as I am sure Roxanna doesn’t want to either.  This group

is pretty mainstream and most of us aren’t into the DAN stuff, GFCF diet,

etc.  I do believe there is another group out there that consists mainly of

people who are more in to this philosophy than most of us on this list.

From:

[mailto: ] On

Behalf Of Roxanna

Sent: August 01, 2009 11:27 AM

Subject: Re: ( ) Re: GFCF for Aspergers

I think I will say what I said originally - it's not proven

that this works at all. People can decide to ignore the proof and do it

anyway if they want. Obviously, people still do that. I have no

idea why you are saying that your child will never see a chiropractor or

underscoring that you have a child on the spectrum since I didn't say anything about either of those things.

We were discussing the DAN protocol/diet,

I gave my observations and then linked to a new article that I just saw that

day related to the discussion.

But I think it's odd that you just said I should tell people that not

every approach works for every child, then say you won't have your kid see a

chiropractor, although I have no

clue why we are discussing chiropractors now? Also, I never said

you could not find out information from urine. Instead of being able to say that this is proven to work

or discussing the article I linked to, you seem to be throwing all this other

stuff into the conversation and taking what I said out of context or adding

meaning that I did not intend. I don't think people are " off their

rockers " at all. I think they see what they want to see. There

is a reason why it's always anecdotal and not scientifically proven.

Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it

could help. Doesn't matter about hf or not. You would just not see such a

dramatic improvement, since he's already on the mild end of the spectrum,

but it could lessen or eliminate some of the symptoms he does have.

That's my reasoning anyways. We have a DAN dr. appt scheduled. I am

concerned about my son's increasing sensory issues, and to me it seems

medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally

labile. Also has low frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a

few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's

really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your

score. See now!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

True scientific research is done by a neutral

third party who is an authority on the subject, uses standardized scientific

methods, analyzes the data without prejudice, and it has to be reproducible (every

time you do it you get same results or results within an acceptable margin/another

researcher could follow same steps and get same results). Can you please explain to me how, an experiment involving the GFCF diet for any given autistic child could be reproducible?For any given child in the study, said child cannot, for instance, be the same age he was in the original experiment. So how do we know if the child would or would not have made the same progress with without the diet? And so, it is impossible to prove one way or another whether it works or not.This is why it is difficult, if

not impossible, to always be able to use only evidencebased treatments.Also, because of this, anecdotal evidence becomes all the more important and to assume that all people expect to see results and therefore do is utterly insulting to people who report improvements with the diet.The

insinuation that mainstream medicine knows all is wasted on me.My original question has to do with Aspergers, so it is appropriate for this forum.

From: T <juice00000msn (DOT) com>

Subject: ( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it

could help. Doesn't matter about hf or not. You would just not see such a

dramatic improvement, since he's already on the mild end of the spectrum,

but it could lessen or eliminate some of the symptoms he does have.

That's my reasoning anyways. We have a DAN dr. appt scheduled. I am

concerned about my son's increasing sensory issues, and to me it seems

medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally

labile. Also has low frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a

few different tests to send off for him to a lab.

>

> I know it is going to be very tedious, so I need to know if it's

really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your

score. See now!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

Ok, last post on the subject because this does get old. Just like said, you are welcome to join a diet group and be among like minded people if you want to do that. People can discuss what has worked for them here, even the diet. But you can't really make claims about it that are not factual.

Of course you can do studies on people, it is done all the time. And if you think it is insulting to believe that people see what they wish to see, I can't say it any other way to make it appear more palatable for people. I certainly am not calling people names or making light of their desires. I take this seriously.

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) Re: GFCF for Aspergers

Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it

could help. Doesn't matter about hf or not. You would just not see such a

dramatic improvement, since he's already on the mild end of the spectrum,

but it could lessen or eliminate some of the symptoms he does have.

That's my reasoning anyways. We have a DAN dr. appt scheduled. I am

concerned about my son's increasing sensory issues, and to me it seems

medical/biological.

TJ

>

> Has anyone here seen really good results with GFCF for Aspergers?

>

> My son is 9, and he's fairly high fxning.

>

> Main problems are ADD type behavior, argumentative and very emotionally

labile. Also has low frustration tolerance.

>

> I have been to the DAN doctor couple months ago and I was given a

few different tests to send off for him to a lab.

>

> I know it is going to=2

0be very tedious, so I need to know if it's

really worth it for a high fxning child?

>

> Thanks!

>

A bad credit score is 600 below. Checking won't affect your

score. See now!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

The last statement/question on your original post was this...

"I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?"

I think what and Roxanna (and me) are trying to say is that this type of intervention has not been scientifically proven to be effective. Most of us have limited time and money so if you're asking if you should do something that costs money and time and we know it hasn't been scientifically proven, we're going to say you probably shouldn't. Might be better to put your time and money into interventions that have been proven to be effective. My son is also high functioning and getting parenting training for me was a really, really good investment. Helped me feel like I could do something to make things better for him, at least at home. He also had one-on-one play therapy for a few years which I think helped. Not that it necessarily helped him immediately, but it added to the foundation of knowledge that he needed to build on so when he got older and

was able to stop and think a little more quickly and decide what to do, he had a good foundation to draw from.

Hope you find something that helps...

"Over-optimism is waiting for you ship to come in when you haven't sent one out."

From: asmallbizmom <asmallbizmom@...> Sent: Saturday, August 1, 2009 8:55:05 PMSubject: RE: ( ) Re: GFCF for Aspergers

True scientific research is done by a neutral third party who is an authority on the subject, uses standardized scientific methods, analyzes the data without prejudice, and it has to be reproducible (every time you do it you get same results or results within an acceptable margin/another researcher could follow same steps and get same results). Can you please explain to me how, an experiment involving the GFCF diet for any given autistic child could be reproducible?For any given child in the study, said child cannot, for instance, be the same age he was in the original experiment. So how do we know if the child would or would not have made the same progress with without the diet? And so, it is impossible to prove one way or another whether it works or not.This is why it is difficult, if not impossible, to always be able to use only evidencebased treatments.Also, because of this, anecdotal evidence becomes all the more important and to assume that all

people expect to see results and therefore do is utterly insulting to people who report improvements with the diet.The insinuation that mainstream medicine knows all is wasted on me.My original question has to do with Aspergers, so it is appropriate for this forum.

From: T <juice00000msn (DOT) com>Subject: ( ) Re: GFCF for Aspergers Date: Wednesday, July 29, 2009, 3:26 PM

In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological.TJ>> Has anyone here seen really good results with GFCF for Aspergers?> > My son is 9, and he's fairly high fxning.> > Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low frustration tolerance.> >

I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.> > I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?> > Thanks!>

A bad credit score is 600 below. Checking won't affect your score. See now!

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!