Meds

[Guest guest]

,

I know what you mean about being alone. I felt the same way. This group has

been a blessing to me. It has also given me great information and the

confidence to bring things up to my doctor that I hadn't before.

Good luck!

Tami

[Guest guest]

I think there is much disagreement among the medical community about what is or

isn't safe for us to take. One told me to never never take any tylenol under any

circumstance. Maybe even to the point of a medic alert bracelet. Then another

told me I could take it in moderation. Who knows? But I do take the advil for

pain. Doesn't bother my stomach, but then I'm on 40 mg prilosec too.

teri

----------

[Guest guest]

Teri,

I've noticed this confusion about what's supposed to be safe and what's

not. I used to worry about it but now I've decided that I might as well

trust my doctor and hope the day doesn't come when he says " Ooops. "

Take care,

Geri

[Guest guest]

Tylenol...

Dr Czaja told me to take tylenol for pain only when it was really really

necessary so every day I have pain but I have not taken any for about three

months.

Sue AIH

Wisconsin

[Guest guest]

I am so glad to know that there are people just like me out there. I found

the strength to get through this and i would like to help someone if they

need it..

>From: Chollyfam@...

>Reply- onelist

> onelist

>Subject: Re: [ ] meds

>Date: Sat, 8 May 1999 18:48:38 EDT

>

>From: Chollyfam@...

>

>,

>

>I know what you mean about being alone. I felt the same way. This group

>has

>been a blessing to me. It has also given me great information and the

>confidence to bring things up to my doctor that I hadn't before.

>

>Good luck!

>

>Tami

>

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[Guest guest]

teri wrote:

>

> From: teri <teri@...>

>

> I think there is much disagreement among the medical community about what is

or isn't safe for us to take. One told me to never never take any tylenol under

any circumstance. Maybe even to the point of a medic alert bracelet. Then

another told me I could take it in moderation. Who knows? But I do take the

advil for pain. Doesn't bother my stomach, but then I'm on 40 mg prilosec too.

> teri

>

> ----------

I was told the same thing, by several doctors, no ibuphren, advil or

anything like that. I too was told to wear a medical bracelet to assure

that didn't happen.

PSC

[Guest guest]

Hello

because of the meds I was getting migrnae headeaches, they prescribed me

tylenol 3's and I'm aloud only one per day if needed. nothing else.

they told me tylenol is ok is moderate doses.

[Guest guest]

,

Have you asked your doctor about taking Tylenol if you are also having an

occasional drink? It's my understanding that 1 to 2 Tylenol 2 or 3 times a

day (but not every day, as needed) can be okay for someone with liver

disease who doesn't drink. However, for people who drink, it's absolutely

a no-no. My son has Hep C and he can't take Tylenol at all. He doesn't

drink anymore, but he used to drink way too much - started when he was a

teen. You might ask your doctor about it just to be safe, or have you

already?

Take care,

Geri

[Guest guest]

Hi ,

No, you don't sound to me like you're popping pills and boozing it up on a

regular basis! I agree with you and I think that my doctors believe the

same way yours do. Moderation is what's important. I haven't been warned

not to eat or drink anything. I always ask about medications including

OTC, because I've had some bad experiences and my doctor told me that both

Tylenol and Advil are okay in very small amounts, if needed, occasionally.

Actually, I think my body would let me know quickly enough if I did the

wrong thing. I never have drank much or often because it's always made me

sick but otherwise, I have nothing against alcohol for the average person.

Of course, anyone with a tendency towards alcoholism shouldn't drink even

if they have a perfect liver. Last night we went out to dinner and I

couldn't figure out what to drink so ended up with grapefruit juice - which

almost always upsets my stomach. Probably, that means I shouldn't drink

grapefruit juice.

Take care,

Geri

[Guest guest]

Geri

I'm aloud only one tylenol 3 if I have a headache (only one) they are

controlled.

I have had the same prescription of 30 for almost 8 months, gives you an

idea of how often I take them.

maybe once or twice a month??

And I'm not drinking every day?? or week for that matter?? I have the

occasional drinks once every few months!! and if I'm having the drinks,

i don't have a headache??

My doctor is aware?? He said one or two would not hurt??

And threw the last three years, it has not hurt.??? it's not like ui'm

popping pills and drinking??

I guess I given the impression that I don't care about my liver?? that's

not the case. I am very aware of my condition and that drinking is not

a good idea. but the doctors have said in moderation these things will

not cause any problems.

[Guest guest]

Dear :

I'm a chocolate milk buff too! Living up here in 'Latte Land,' I still have

been known to stop at the local Starbucks for my weekly 'mocha latte.' To

cut down on the negative aspects of it I always order decaf, nonfat. I mix

my own at home too so that I can make it nonfat. It's my only vice! I use

the calcium excuse all the time too! LOL!

Kathy (AIH)

Seattle area

[Guest guest]

switch to a litre of Ben & Jerrys. It may still be fattening, but

atleast it will be more worth it.

--- " .Hutchinson " <brandy.hutchinson@...> wrote:

> From: " .Hutchinson "

> <brandy.hutchinson@...>

>

> Hello

>

> I think the worst thing I drink and in large sums is

> Chocolate Milk!!!

> lol but I can not help it!! I love the stuff!!

> It's so fattening and

> the liver and the chocolate etc... I just went to

> the store and bought a

> liter of it!! I love it!! I know it's bad!! But

> really it is the

> worst thing I do on a regular basis and in incess!!

> Any words of

> advice?? Hey I'm getting my calcium so it can't be

> all that bad lol

>

>

>

>

>

>

------------------------------------------------------------------------

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>

> ...ONElist IS the place where the world talks!

>

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>

> 1.) To subscribe send e-mail to

> -subscribeonelist

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> -unsubscribeonelist

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===

Elena Pheasant

_________________________________________________________

[Guest guest]

Hello

I think the worst thing I drink and in large sums is Chocolate Milk!!!

lol but I can not help it!! I love the stuff!! It's so fattening and

the liver and the chocolate etc... I just went to the store and bought a

liter of it!! I love it!! I know it's bad!! But really it is the

worst thing I do on a regular basis and in incess!! Any words of

advice?? Hey I'm getting my calcium so it can't be all that bad lol

[Guest guest]

Dear :

Yummmy! Sounds great. They have a fat free Blizzard at the DQ here. It's

called a Breeze. Once in a great while, I will splurge and get one (with

Butterfinger! MMM).

I had an appointment with my GI today and he decided I should have another

biopsy before I go to see the hepatologist at the University of Washington.

That way I can take that info with me. So they scheduled it for next

Thursday. I requested to stay overnight because of problems I had the last

time. Now I have a whole week to dread it! At least I will know where I

stand in terms of the progression of the damage.

Hope you're having a good day. I'm kind of bummed and scared and relieved

and anxious and you name it! All at the same time! Aaaaauuuurrrgggghhhhh!

Kathy (AIH)

Seattle area

[Guest guest]

Kathy

I just got home from a day from hell, and jeff is sending me to DQ lol

they have just started seving chocolate serve lol, wow a skor blizzard

with chocolate ice cream!!! mmmmmmmmmmmmmm well I did have a hard day!!

lol and it's actually 1% ice milk lol

[Guest guest]

Kathy

I hate all those feelings, go get a breeze!!!!!!!! You no if they had

those here I still get the regular ones lol might as well go for broke

lol

Many on the list have many biopsy's??? me I have had only one!! My doc

does not really see the point and neither do I!

Were doing all we can, so why depress me even more and make me go threw

that!! I am getting curious to see now after almost three years to see

how much damage there is now!! And it's up to me!! I have gone on

strike, no tests other then blood to be done until September!! and that

is for my sanity!! He fine with this!! He asked if I was getting

curious, and I said yes, And when ever I'm ready!! So I'm thinking Sept

or October, all need a couple days off work lol.

[Guest guest]

Kathy,

You said you had a hard time with your previous biopsy? So did I. I was

just wondering what you experienced?

>From: KATBERCOO@...

>Reply- onelist

> onelist

>Subject: Re: [ ] meds

>Date: Thu, 13 May 1999 19:34:33 EDT

>

>From: KATBERCOO@...

>

>Dear :

>

>Yummmy! Sounds great. They have a fat free Blizzard at the DQ here. It's

>called a Breeze. Once in a great while, I will splurge and get one (with

>Butterfinger! MMM).

>

>I had an appointment with my GI today and he decided I should have another

>biopsy before I go to see the hepatologist at the University of Washington.

>That way I can take that info with me. So they scheduled it for next

>Thursday. I requested to stay overnight because of problems I had the last

>time. Now I have a whole week to dread it! At least I will know where I

>stand in terms of the progression of the damage.

>

>Hope you're having a good day. I'm kind of bummed and scared and relieved

>and anxious and you name it! All at the same time! Aaaaauuuurrrgggghhhhh!

>

>Kathy (AIH)

>Seattle area

>

>------------------------------------------------------------------------

>ONElist: where the world talks!

>

>Join a new list today.

>------------------------------------------------------------------------

>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

Have you tried Celebrex yet? Celebrex is an antiimflannatory that is easier

on your stomach. I've tried NSAIDS before but always had either upset

stomach or they just didn't work. Celebrex has given me new hope. As far as

Methotrexate goes, this pill scares the heck out of me (possible lung

failure). As an ex smoker, I don't feel comfortable about taking a med that

might kill a part of me that has already been subjected to cruel and

unusaual punishment. Methetrexate is supposed to be pretty good for

psoriasis let alone PA but I got no affect on either. Right now I am taking

Sulfasalazine which seems to hold back the PA for now.

Does anyone know of anything that is effective on Psoriasis of the nails?

Right now I only have one fingernail that is not affected by the Psoriasis,

in case you were wondering I've had all my toe nails removed twice because

they were so thick and sensative.

I guess I should introduce myself. My name is , I'm 34 and diagnosed

with Psoriasis at age 18, recently diagnosed with PA last January.

[Guest guest]

Hi Gillian!

In a message dated 1/12/00 11:32:52 AM, roweg@... writes:

<< I do not know, that MTX seems to be the FIRST treatment given? Am I correct

in my assumption? >>

No, my Rheumy put me on pred, sulfasalazine and Indocin at first. We then

progressed to the antibiotic therapy when the 1st course didn't work. He

still hasn't decided to put me on MTX, that may be the next step. I only

have one spot of P on my scalp but my ankles, heels, toes, hand and knee have

PA. Something is helping this time. It's either the SAM-E, EPO, antibiotic

or the green tea capsules that mentioned. Hey, I'll try anything if I

think it will help!

diane

[Guest guest]

I was diagnosed with P at 6, used creams, ointments, light treatment first

and began MTX at 12. So far over here, the only FDA approved drug for PA is

MTX, so they just continued using that as treatment for the PA at age 19 and

added in a muscle relaxer (for neck and back spasms at night) and the anti-

inflammatory.

Anyways, hope that helps.

MELISSA

[Guest guest]

gillian inquires about the American way:

1. When you erupted in psoriasis, was initial treatment given creams,

ointments?

Yes, creams, ointments and lotions. So many I can't possible remember them

all. I also had injections, but I've since learned that is a rather

atypical treatment.

2. The first signs of arthritis, did you take anti inflammatory medication?

Yep. I had significant swelling in my knee for about four months before we

figured out I might have PA. Through all that time I was taking an NSAID.

3. What time did you start the third line DMARs?

Shortly after I was referred to my RD, and then when it became apparent to my

RD that what we now figured was PA was laughing in the face of the NSAIDS.

This would have been about one month after my first visit to the RD, or 6

weeks after my orthopedic surgeon got his inkling that I had PA. I figure I

had active arthritis for about 5 months before I started the DMARD.

Patty

[Guest guest]

Hi Gill,

I think RDs used to be much slower to treat with MTX

because not so much was known about the benefits

versus risks. Also these things do vary from country

to country and doctor to doctor. From what my RD has

told me current thought is try MTX and if the patient

tolerates it well with good results blood wise then go

with it. Hope this helps.

--- Gillian Rowe <roweg@...> wrote:

> Hi All

> I need educating on the American way, so can I ask

> you a few questions.

> When you erupted in psoriasis, was initial treatment

> given creams,

> ointments?

> The first signs of arthritis, did you take anti

> inflammatory medication?

> What time did you start the third line DMARs?

> Perhaps I am just an oldie at 41, but I spent

> several years at the above

> stages. Having read the messages I am getting the

> impression, right or wrong

> I do not know, that MTX seems to be the FIRST

> treatment given? Am I correct

> in my assumption?

> Love and God Bless

> Gillian

>

>

=====

C McCullough

thelockhorns@...

__________________________________________________

[Guest guest]

Gillian,

Your description is pretty much how it happened with me. When I was

diagnosed with PA in 1988, MTX was then a 3rd line of defense after NSAIDS

and others. By the time my PA was serious in 1992, MTX had been proven to

be safer than they expected and they started using as a 1st line of defense

in severe cases. Why? Because they found in significantly reduced

deformation levels when used early on as apposed to waiting for other drugs

to not work first. I am fortunate that it both works for me and that I

tolerate it. After 7 years I barely feel a blip in my week when I take it.

Then again that may be because I feel like #$@!? all the time. I can't tell

anymore. Seriously, inflammation, morning stiffness and acute pain are at a

minimum except for short term flares now and then. It's the fatigue that is

still consuming me. And, of course if I don't get my rest or overdo, I

flare regardless. I am considered " under control " but not in a state of

remission.

When my P flared a few years ago, they put me on Dovenex and I improved.

Then I had a total body experience for the first time and we went straight

to lights--3 times a week into the doctor with two preschoolers. My boys

are never going to want to " be " with a woman after seeing me disrobe in

front of them that many times in their early lives (horror memories)...see

my sense of humor is not all lost!

[Guest guest]

In a message dated 7/26/00 11:46:38 AM, eplekake@... wrote:

<<

My doctor gave me a prescription for Diflucan and Nystatin.

Anyone here tried these?

If so: any " bad " experiences?

>>

***I've had (it with) Diflucan. A single dose was supposed to kill vaginal

yeast, but it always came back in a few days. I think it may be useful for

killing a VAGINAL (only) case of yeast, but if you have it systemically, and

it if has grown " roots " in your GI tract, it's pretty useless. Also, about

the Nystatin, I have heard from several sources, that there are more and more

strains of yeast that are Nystatin-resistant. I know that it surely didn't

do anything for the yeast *I* had.

I've been dealing with this " yeast-problem " for years, and I've had more luck

with the diet and herbals than ANYTHING. I think it's pointless to do

anything about the yeast (if you have it systemically) unless you are going

to alter your diet to exclude sugar and easily available sugar-sources for

the yeast. Otherwise (without giving up sugar) it's like painting over a rust

spot on your car...... it makes it look better temporarily, but it WILL be

back with a vengance.

Lynn

[Guest guest]

Hi beth,

Diflucan is a wonderful drug for alot of women who get vaginal yeast

infections.However,if you have recurrent yeast,,,the infection seems to clear

up and return again and again.I still do take it from time to time,though.

Love,Sparkey

48 years old

LAVH/BSO

11-16-99

DH-Stanley

Estratest and Prometrium and Estrace

Uterine fibroids

5 dogs

1 cat

2 guinea pigs

1 bird

Sparkeyjb@...