Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 Janet, I'm sorry about that. I do know someone who was reimplanted after their implant migrated and they heard even better with their second CI than they did their first. They were very pleased with their hearing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 My daughter just had her fourth implant put in. On Apr 23, 2009, at 5:55 PM, Janet wrote: > > > It's been over two years since I was activated and I have not > progressed as I should have. I visited my audi today to do some > tweaking of my current programming and some weird stuff happened > while my audi was trying to load the new programming. To make a long > story short, it looks like I may have to have the implant replaced. > Has anyone else here had to have their implant replaced? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Dennis, If you don't mind my asking, why was your daughter re-implanted 4 times? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Sorry Dennis. I meant to type " implanted " -- not " reimplanted. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 She was bilaterally implanted with AB. Then when they failed we reimplanted with Cochlear. On Apr 24, 2009, at 5:44 PM, <lkozlik@...> wrote: > > > Dennis, > > If you don't mind my asking, why was your daughter re-implanted 4 > times? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Dennis, Thank you for answering my question. How is your daughter doing now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2009 Report Share Posted April 25, 2009 Alyssa was activated with her Freedom last September and has done wonderful!! She would never keep her Harmony on. She said it was to loud and things didn't sound right. When we received the report back on her AB device it was a confirmed failure. She had her 4th surgery on Wednesday and won't be activated until May 8th. She is so excited about it! Oh, and Dennis is not the one writing this. My husband's name is on the email address, but I am the one who belongs to all the groups. He says it is way to much e-mail to sort through.LOL Thanks for asking about her. On Apr 24, 2009, at 10:14 PM, <lkozlik@...> wrote: > > > Dennis, > > Thank you for answering my question. How is your daughter doing now? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Jen, My heart and prayers go out to you. It is all so difficult. When I feel so down with things that happen with my son....I read and find people with even more difficult situations. I will keep you in my prayers and hope that some day your son will come to terms with his past. Never give up hope and keep going on. You are doing the best you can and that is all you can do! Jan "In the Midst of Difficulty lies Opportunity" Albert Einstein From: moonfly_jenn <moonfly_jenn@...> Sent: Tue, June 22, 2010 6:14:58 PMSubject: ( ) Got bad news today My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a "normal" functioning teenager. I am lost.It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children.My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 (((hugs))) so sorry! I'm wondering - with past abuse, has he gotten any therapy for PTSD re the abuse? Guess I'm just wondering if that's been addressed, might have triggered his OCD and the ODD behaviors. And/or if the homes are not addressing his OCD and his AS the right way, then that alone can trigger outbursts, anger, frustration.... My son, 21, has OCD and AS. He has poor insight into his OCD (bad thoughts type) and it does block getting them to participate, progress with any therapy. I imagine they've tried changing around any medication he's on? If not the *right* med(s), that can cause behavior problems, anger, etc., too. I know, I know, you've tried all, I'm just brainstorming here! Is he in a group home type setting or with a type of therapeutic foster parents? > > My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a " normal " functioning teenager. I am lost. > > It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children. > > My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Please hang in there. We are doing all that we possibly can. Your a great mother!! This is such a touch thing to deal with. I am not sure how any of us manage sometimes. Remember, "In the midst of Difficulty lies Opportunity" I am praying for you!!On Jun 22, 2010, at 5:47 PM, rushen janice wrote: Jen, My heart and prayers go out to you. It is all so difficult. When I feel so down with things that happen with my son....I read and find people with even more difficult situations. I will keep you in my prayers and hope that some day your son will come to terms with his past. Never give up hope and keep going on. You are doing the best you can and that is all you can do! Jan "In the Midst of Difficulty lies Opportunity" Albert Einstein From: moonfly_jenn <moonfly_jenn > Sent: Tue, June 22, 2010 6:14:58 PMSubject: ( ) Got bad news today My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a "normal" functioning teenager. I am lost.It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children.My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Thanks for your words Chris. Jake had been in therapy for years before we had even learned of the abuse 3 years ago. Shortly after that he went into his first placement and he has had intensive therapies since. He has progressed at times, althought it has been painfully slow and frustrating for everyone involved. It's so hard for us on the other side to understand his thought processes. He has been on various meds since the age of 5. His first dx was ADHD and the meds were for that. He is currently on depakote and prozac. His placements have always been therapeutic. We have participated in family therapy with everyone and at this point the therapy aspect is no longer something the county worker is pursuing. It was be a bonus but not a requirement. She is looking for a long term placement that will be able to provide the needed supervision. I just hope it isn't too far away. For 1-1/2 years he was 4 hours away and that sucked! Thanks again! From: <@...>Subject: ( ) Re: Got bad news today Date: Tuesday, June 22, 2010, 6:32 PM (((hugs))) so sorry! I'm wondering - with past abuse, has he gotten any therapy for PTSD re the abuse? Guess I'm just wondering if that's been addressed, might have triggered his OCD and the ODD behaviors. And/or if the homes are not addressing his OCD and his AS the right way, then that alone can trigger outbursts, anger, frustration.... My son, 21, has OCD and AS. He has poor insight into his OCD (bad thoughts type) and it does block getting them to participate, progress with any therapy. I imagine they've tried changing around any medication he's on? If not the *right* med(s), that can cause behavior problems, anger, etc., too. I know, I know, you've tried all, I'm just brainstorming here! Is he in a group home type setting or with a type of therapeutic foster parents? >> My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a "normal" functioning teenager. I am lost.> > It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children.> > My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 I don't know what to say......I'm so sorry for you. Wish I could give you a hug. Bless you. Attack and enjoy every minute of life. Try everything.....protect everything. Robin From: moonfly_jenn <moonfly_jenn@...>Subject: ( ) Got bad news today Date: Tuesday, June 22, 2010, 5:14 PM My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a "normal" functioning teenager. I am lost.It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children.My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 ((Hugs)) i hope thing get better For your entire family. I also agree with the meds possibly making his behavior worse. prozac Made me horribly malicious! I could see my self from the outside almost like i was not there. My husband was on depicote as a teenager and his mother has 3 patched spots in her hall where ha punched them during a fit me said. It was med induced. Zach my ds Has had the same reaction to adderal. As for your 6 year old remember not ever one with as will travel the same road, so just focus on the now with him because he could in on to do just the opposite. Jen Mercer <moonfly_jenn@...> wrote: >Thanks for your words Chris. Jake had been in therapy for years before we had even learned of the abuse 3 years ago. Shortly after that he went into his first placement and he has had intensive therapies since. He has progressed at times, althought it has been painfully slow and frustrating for everyone involved. It's so hard for us on the other side to understand his thought processes. > >He has been on various meds since the age of 5. His first dx was ADHD and the meds were for that. He is currently on depakote and prozac. > >His placements have always been therapeutic. We have participated in family therapy with everyone and at this point the therapy aspect is no longer something the county worker is pursuing. It was be a bonus but not a requirement. She is looking for a long term placement that will be able to provide the needed supervision. I just hope it isn't too far away. For 1-1/2 years he was 4 hours away and that sucked! > >Thanks again! > > > > >From: <@...> >Subject: ( ) Re: Got bad news today > >Date: Tuesday, June 22, 2010, 6:32 PM > > > > > > >(((hugs))) so sorry! I'm wondering - with past abuse, has he gotten any therapy for PTSD re the abuse? Guess I'm just wondering if that's been addressed, might have triggered his OCD and the ODD behaviors. And/or if the homes are not addressing his OCD and his AS the right way, then that alone can trigger outbursts, anger, frustration.... > >My son, 21, has OCD and AS. He has poor insight into his OCD (bad thoughts type) and it does block getting them to participate, progress with any therapy. > >I imagine they've tried changing around any medication he's on? If not the *right* med(s), that can cause behavior problems, anger, etc., too. > >I know, I know, you've tried all, I'm just brainstorming here! Is he in a group home type setting or with a type of therapeutic foster parents? > > > > >> >> My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a " normal " functioning teenager. I am lost. >> >> It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children. >> >> My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Hi, Have you heard Son Rise Program? It is where they come home and help you and your child. It does not matter what age the child is? If you need more information let me know. Good luck. pad ( ) Got bad news today Date: Tuesday, June 22, 2010, 5:14 PM My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a "normal" functioning teenager. I am lost. It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children. My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 I feel so sorry this has happened. I can't imagine it. There is always hope for the future b/c he is still young. Don't forget that. He could one day be functioning and happy...Jen H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Hi Jen, I'm curious - since also has OCD - what OCD behaviors does he have? On the Aspergers side, what do you think are his biggest " problems " from AS? For , the AS seems to affect just his everyday living skills (self-help, other), though I'm sure it probably figures in to his schoolwork sometimes too. Besides the social stuff. Living skills, I mean like how we " typicals " generally know how to do, such as housework, pay bills, follow up on things, cook, shop, drive.... > > Thanks for your words Chris. Jake had been in therapy for years before we had even learned of the abuse 3 years ago. Shortly after that he went into his first placement and he has had intensive therapies since. He has progressed at times, althought it has been painfully slow and frustrating for everyone involved. It's so hard for us on the other side to understand his thought processes. >  > He has been on various meds since the age of 5. His first dx was ADHD and the meds were for that. He is currently on depakote and prozac. >  > His placements have always been therapeutic. We have participated in family therapy with everyone and at this point the therapy aspect is no longer something the county worker is pursuing. It was be a bonus but not a requirement. She is looking for a long term placement that will be able to provide the needed supervision. I just hope it isn't too far away. For 1-1/2 years he was 4 hours away and that sucked! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 I'm so sorry to hear this. > > My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a " normal " functioning teenager. I am lost. > > It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children. > > My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Thanks. I am doing much better. I talked to Jake last night and explained the latest developments and he was so awesome I was blown away. I asked him what he thought about what I was saying and he said it didn't sound too bad! If he was able to be in some type of group home and still have home visits and not have all the intensive daily therapy programs, he was fine. I am so proud of him right now!! I just hope the worker can find a good place. I will keep you all posted! From: mimasdprofile <callis4773@...>Subject: ( ) Re: Got bad news today Date: Thursday, June 24, 2010, 8:08 PM I'm so sorry to hear this.>> My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a "normal" functioning teenager. I am lost.> > It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children.> > My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 I'm glad the news is better today. I'll be thinking of you. Keep us posted. Miriam > > > > My sons mental health case worker called today and said that his latest placement isn't working out. I have known for a while now that the group home was in over their head with Jake but today it became offical. This was his 3rd placement and his last therapeutic possibility. She is now looking for a new placement that will be indefinite. It is heartbreaking. He will probably never get to come home and I am devastated. He is 16 and he has AS, OCD, ODD and more. THe biggest problem is he was abused when he was young and that totally altered his thinking and nothing we have tried has gotten him back into reality. Our fear is that he will harm someone and we need to protect him and those around him. This is a child with an IQ of 139, but he is unable to connect within his mind the changes that need to happen for him to be a " normal " functioning teenager. I am lost. > > > > It's exceptionally hard when I have an older daughter whome I no longer have a relationship with due to her past and current behaviors. I have now lost 2 children. > > > > My youngest is 6, also an aspie. He is going to be crushed. I worry so much that he will think that he's going to have to live somewhere else like his older brother although I have done my best to explain. I know in my head and in my heart that I have been the best mother I could but I still fear that I will fail for the 3rd time. Time will tell ... > > > Quote Link to comment Share on other sites More sharing options...
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