Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Hi everyone, Well, Caleb's first day went well. He is not happy with the fact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants. " :>) I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the only thing he felt a little uneasy about was the lunchroom. He said he felt good. Well, he just came in to talk. Going to leave right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 My son survived....but was overwhelmed and exhausted....he got upset because he doesn't know whether to use one big binder or smaller binders or this or that and then he gets upset....I worry that all this is too much on him. I can see how it can be overwhelming for them. My son's bus now comes at 6:15 a.m. (the regular bus goes by at 6:45 a.m.)....this is way too early but he doesn't want to ride on the larger bus...so he is gone from 6:15 am to 3:35 p.m. Long long long day....today he walked in...dropped his backpack...took off shoes and went into his room...closed the door ...put on his music and fell asleep. I feel so horrible for all of them....he has not eaten lunch in these two days....he asked for his "nervous" pills...anxiety...which he has not asked for in over a year.... But, i told him I am not going to bug him about homework...he has to tell me and ask me if he needs help...I told him he needs to be more responsible and I can't do it for him...he needs to step up to the plate. We'll see...I want the school to really see how he is.... On another note...today I worked with an 18 year old boy who can not read due to severe dyslexia...oh...I just wanted to cry. jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: debbieln60 <Debbieln60@...>Subject: ( ) First day of school Date: Tuesday, September 1, 2009, 6:13 PM Hi everyone,Well, Caleb's first day went well. He is not happy with thefact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants." :>)I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the only thing he felt a little uneasy about was the lunchroom. He said he felt good.Well, he just came in to talk. Going to leave right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Caleb had some issues with the lunchroom..a little overwhelming. His socialworker happened to be there and asked him if he would like to have lunch in her office. So, she let him in there and he had lunch there. But, I think it was first day jitters. What is nice it will help her see him a little more as he is and that will help when she & the other teachers talk about his IEP etc. She is a very lovely woman and obviously cares about kids. Ya know, I was at work and feeling as nervous as he did his first day of school. But, we survived and onward we go. > > > From: debbieln60 <Debbieln60@...> > Subject: ( ) First day of school > > Date: Tuesday, September 1, 2009, 6:13 PM > > > > > > > Hi everyone, > Well, Caleb's first day went well. He is not happy with the > fact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants. " :>) > I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the only thing he felt a little uneasy about was the lunchroom. He said he felt good. > Well, he just came in to talk. Going to leave right now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 It's a good feeling, isn't it, when things are going well. I'm always finding myself "waiting" for it to go bad, though. Ugh. Hope the good days continue. Robin From: debbieln60 <Debbieln60@...>Subject: ( ) First day of school Date: Tuesday, September 1, 2009, 5:13 PM Hi everyone,Well, Caleb's first day went well. He is not happy with thefact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants." :>)I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the only thing he felt a little uneasy about was the lunchroom. He said he felt good.Well, he just came in to talk. Going to leave right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 So glad everything went ok. From: debbieln60 <Debbieln60@...>Subject: ( ) First day of school Date: Tuesday, 1 September, 2009, 11:13 PM Hi everyone,Well, Caleb's first day went well. He is not happy with thefact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants." :>)I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the only thing he felt a little uneasy about was the lunchroom. He said he felt good.Well, he just came in to talk. Going to leave right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 My sons teacher told me he was really good at reading but after reading a story he couldn't tell it back to you, so last night I cut out a short story, just 5 sentences, I put them in front of him and asked if he could put the sentences in order. I noticed he put them together jigsaw style. So I cut them so they didn't fit that way and asked him to put the story together, because they didn't fit like a jigsaw he couldn't do it, just got frustraited, wouldn't even try reading the words and trying to get the sentences to fit. Any ideas how I could help him with this? From: debbieln60 <Debbieln60gmail (DOT) com>Subject: ( ) First day of school Date: Tuesday, September 1, 2009, 6:13 PM Hi everyone,Well, Caleb's first day went well. He is not happy with thefact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants." :>)I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the only thing he felt a little uneasy about was the lunchroom. He said he felt good.Well, he just came in to talk. Going to leave right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 I agree, Debbie. Sounds like processing. My youngest son is like this. It was horrible when we didn't know what to do and didn't know what was going on. Many things are "supposed" to be done verbally, now. Also, more time is "supposed" to be given to him. Ugh. Robin Normal is just a cycle on a washing machine!! From: daffymom <daffymom@...>Subject: ( ) Re: First day of school Date: Wednesday, September 2, 2009, 8:31 AM It sounds like there is a processing problem. Talk to the school and to your doctor. He can read the words but somewhere between reading them and you asking a question, the message gets lost in space. This makes things very difficult when the child is asked to read something off of the board as there is a further distance for the message to travel to the brain. We found that vision therapy helped, as did making sure that he would sit in front of the classroom. Due to his frustration, he would then begin to act up. With the change of seats, and the therapy things improved. At one time, an aid even sat next to him to tell him what was on the board and that did compute for him and he would follow through like a champ. Today he is at the local community college. He is not the school's top student, but he is going to class with no prompting from anyone, does his homework, and has been passing the classes including 2 honors classes he decided to take last semester since he either wanted another class with the teacher, or the class fit into the schedule he wanted (no classes after noon so he was out of school early).Debbi in SO CA>> My sons teacher told me he was really good at reading but after reading a story he couldn't tell it back to you, so last night I cut out a short story, just 5 sentences, I put them in front of him and asked if he could put the sentences in order. I noticed he put them together jigsaw style. So I cut them so they didn't fit that way and asked him to put the story together, because they didn't fit like a jigsaw he couldn't do it, just got frustraited, wouldn't even try reading the words and trying to get the sentences to fit. Any ideas how I could help him with this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Sorry to hear she had a rough day. Has she been around other kids much (in playgroups, siblings)? Does the school have fluorescent lights? Any cleaning/paint/new flooring/pesticide smells? Does she have auditory hypersensitivity? Do you think she understands that you'll be back? Tell us what you see at home and what the environment is like there. How does she respond at home when asked to do things she doesn't want to do? Did she development typically and then regress? Are you dealing with other metals in addition to mercury? S S First Day of School Posted by: " michellebondy " myrubygirl@... michellebondy Wed Sep 2, 2009 9:12 am (PDT) My daughter had her first day of junior kindergarten today. She is in a self contained class with about 6 other asd kids. I met the other kids today and my daughter was the most severe. Mine had a huge tantrum going in simply because we asked her to walk into the school rather than being carried. She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on top of that. None on the kids in her class are on any special diet and none of them do biomeds. In fact I am one of the only people in this city doing this stuff and everywhere I go my kid seems to be the worst one. When do I just give this stuff up? I thought being so close to 50 rounds she would be different but not much has changed. There is more language and her motor skills are amazing. But her cognition is horrible. Her teacher said all she did was a high pitched scream all morning when any demands were put on her. She disrupted the other kids and was in the hallway on the floor screaming when I got there. Her teacher told me she thinks my daughter has severe autism, not moderate. At home my daughter is a completely different kid. So, now I'm not sure if she can go to school at all. We are going to try, but her IEP will have to be extremely light and she may not be able to do the school thing. I thought she was doing well and then she starts school and I see the other kids. One little boy came up to me to show me the necklace he made. I don't understand why every single kid in her class were all high functioning with not a single biomed. I feel like either driving off a bridge or quitting all of this stuff and just accepting that this is how life is going to be. At 48 rounds, do I stop now? Has ANYONE else had a child like mine who recovered? I just don't see this happening. Thanks for letting me vent. ------------------------------------------------------------ Easy-to-use, advanced features, flexible phone systems. Click here for more info. Business Phone System http://tagline.excite.com/fc/FgElN1g6lTcCi7BKJjYhq4rqQaa0F27D1vFKgH83JA0HOgCAUsc\ p6BTGQL2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 , I had this in the spring at a school event, where my son appeared to be the worst kid in the class too - and all of the other kids who were vaxed and not doing biomed seemed so superior. Take heart, do not give up. I revisited my son's supp regimen over the summer, and had to take away a lot of things that unbeknownst to me were troublesome, overhauled the whole regimen, added a few important things, and significantly, after I did that my son was able to tolerate much higher doses of chelator, most especially ALA. At round 47 he turned a corner, as posted, I felt, there is light at the end of the tunnel finally. I feel like my son is now coming out of a coma almost, that is what autism seems like to me, he is noticing people, things, commenting on everything, even the wallpaper in our house, in our bathroom, which has sheet music, which has been there all of his life, he says " Mommy, there is music on our walls " in wonderment. Everything is new and interesting to him. He is finally participating in and appreciating his world. I really do feel that our kids are the walking wounded, they are in a waking coma if you will. We are doing the tough work of bringing them out of that heavy metal induced coma. It is a long, hard road, with many bumps along the way. Some people I know turned the corner at 20 rounds, some at 30, some at 40 or 50 rounds, some longer. But I believe that corner is there for all of us to turn. Remember those other kids in the class? Well, sad to say they are going to continue to be vaxed and get more and more Hg and who knows what else. They may never be able to be more functional than they are with this looming in the future. Your daughter with perseverence will one day be metal and virus free and able to fully participate in her world. My advice to you, would be to regroup, go over your regimen, see what is working and what is not. And just keep going, trying to raise the chelators to the accepted AC dose as your daughter can tolerate it. Just keep count, logging in your rounds. Let the school do what they do, while you do what you do. Remember, the first days of school can be very traumatic for any kid, NT or not. She may require an adjustment period, time to settle in. My son at the beginning was not a happy camper, but now he is in his program a year and a half and absolutely loves school You need to do what you do, so her mind can be open to what the school has to offer. Don't let anyone tell you she is severe or mild or whatever. What she is, is heavy metal poisoned. You have the tools to reverse that, thanks to Andy. Just stay the course, try not to let it overwhelm you. Better days will surely be ahead. I am sure of it. Regards, Irene > > My daughter had her first day of junior kindergarten today. She is in a self contained class with about 6 other asd kids. I met the other kids today and my daughter was the most severe. Mine had a huge tantrum going in simply because we asked her to walk into the school rather than being carried. She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on top of that. > > None on the kids in her class are on any special diet and none of them do biomeds. In fact I am one of the only people in this city doing this stuff and everywhere I go my kid seems to be the worst one. When do I just give this stuff up? I thought being so close to 50 rounds she would be different but not much has changed. There is more language and her motor skills are amazing. But her cognition is horrible. > > Her teacher said all she did was a high pitched scream all morning when any demands were put on her. She disrupted the other kids and was in the hallway on the floor screaming when I got there. Her teacher told me she thinks my daughter has severe autism, not moderate. At home my daughter is a completely different kid. So, now I'm not sure if she can go to school at all. We are going to try, but her IEP will have to be extremely light and she may not be able to do the school thing. > > I thought she was doing well and then she starts school and I see the other kids. One little boy came up to me to show me the necklace he made. I don't understand why every single kid in her class were all high functioning with not a single biomed. I feel like either driving off a bridge or quitting all of this stuff and just accepting that this is how life is going to be. > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who recovered? I just don't see this happening. > > Thanks for letting me vent. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 ----- Original Message ----- From: michellebondy School At 48 rounds, do I stop now? ===>It's just the first day, give it some time. On the way home from kindergarten ours asked me.....why we signed her up for this place, anyway, lol. She loves it, but first days/weeks/months are hard. Has ANYONE else had a child like mine who recovered? I just don't see this happening. ===>IMO, nicely.....stop comparing her to other kids and freaking out when she doesn't improve as quickly as some, she's on her own timetable, she'll get there. Concentrate on the improvements, empathize with her about how new places and people are sometimes scarey. Thanks for letting me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Thanks Irene, As I was pouring out her meds for the morning I was thinking the same thing. She gets A LOT of things. I just don't know what to cut. I don't think she needs some of the vitamins she is getting anymore. I do need to find a good multi, but can't seem to. I need one without copper that doesnt cost a million dollars. She still gets yeast, but it's nowhere near what it was in the past. I feel like she is taking so many things. When I saw those kids today I was so depressed. They obviously get nothing (maybe meds) and they were so calm and able to function in class on the first day. It just killed me. So, I guess I will start cutting things. Anything you suggest? Any multi you would suggest? I was considering the Klaire multi, but I would love even something just regular with no copper in it, they're just hard to find. I know in the long run Ruby will be okay. It just seems to be taking a while longer for her to turn that corner. We are doing round 49 this weekend and I think you're right, I think it's time to cut things, I just have no idea where to start. > > > > My daughter had her first day of junior kindergarten today. She is in a self contained class with about 6 other asd kids. I met the other kids today and my daughter was the most severe. Mine had a huge tantrum going in simply because we asked her to walk into the school rather than being carried. She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on top of that. > > > > None on the kids in her class are on any special diet and none of them do biomeds. In fact I am one of the only people in this city doing this stuff and everywhere I go my kid seems to be the worst one. When do I just give this stuff up? I thought being so close to 50 rounds she would be different but not much has changed. There is more language and her motor skills are amazing. But her cognition is horrible. > > > > Her teacher said all she did was a high pitched scream all morning when any demands were put on her. She disrupted the other kids and was in the hallway on the floor screaming when I got there. Her teacher told me she thinks my daughter has severe autism, not moderate. At home my daughter is a completely different kid. So, now I'm not sure if she can go to school at all. We are going to try, but her IEP will have to be extremely light and she may not be able to do the school thing. > > > > I thought she was doing well and then she starts school and I see the other kids. One little boy came up to me to show me the necklace he made. I don't understand why every single kid in her class were all high functioning with not a single biomed. I feel like either driving off a bridge or quitting all of this stuff and just accepting that this is how life is going to be. > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who recovered? I just don't see this happening. > > > > Thanks for letting me vent. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 > > > > > > > > > > > > > > > > My daughter had her first day of junior kindergarten today. She is in a self contained class with about 6 other asd kids. I met the other kids today and my daughter was the most severe. Mine had a huge tantrum going in simply because we asked her to walk into the school rather than being carried. She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on top of that. > > > > > > > > > > > > > > > > None on the kids in her class are on any special diet and none of them do biomeds. In fact I am one of the only people in this city doing this stuff and everywhere I go my kid seems to be the worst one. When do I just give this stuff up? I thought being so close to 50 rounds she would be different but not much has changed. There is more language and her motor skills are amazing. But her cognition is horrible. > > > > > > > > > > > > > > > > Her teacher said all she did was a high pitched scream all morning when any demands were put on her. She disrupted the other kids and was in the hallway on the floor screaming when I got there. Her teacher told me she thinks my daughter has severe autism, not moderate. At home my daughter is a completely different kid. So, now I'm not sure if she can go to school at all. We are going to try, but her IEP will have to be extremely light and she may not be able to do the school thing. > > > > > > > > > > > > > > > > I thought she was doing well and then she starts school and I see the other kids. One little boy came up to me to show me the necklace he made. I don't understand why every single kid in her class were all high functioning with not a single biomed. I feel like either driving off a bridge or quitting all of this stuff and just accepting that this is how life is going to be. > > > > > > > > > > > > > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who recovered? I just don't see this happening. > > > > > > > > > > > > > > > > Thanks for letting me vent. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 ROFL. Don't you love that " we don't want him to look different " remark. What is even worse is when they stop saying that because he is so obviously different. lol! You can't win that one... You might be dealing with hyperlexia. It is when a child is reading well before the developmental age. These kids also have speech delays and other problems as well. You can read about it here --> http://www.hyperlexia.org/aha_what_is.html  Roxanna " The only thing necessary for the triumph of evil is for good men to do nothing. " E. Burke ( ) First day of school Date: Tuesday, September 1, 2009, 6:13 PM  Hi everyone, Well, Caleb's first day went well. He is not happy with the fact that he has homework in georgraphy on the first day, or as in his words 'searching the meaning or history of my name seem rediculous when doing geography. But, I'll do it because that is what she wants. " :>) I asked him how the bus went. How he generally felt. He said that he sat in the front of the bus and that was fine. He said the on ly thing he felt a little uneasy about was the lunchroom. He said he felt good. Well, he just came in to talk. Going to leave right now. Quote Link to comment Share on other sites More sharing options...
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