Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 My son is high functioning too and I've never done a GFCF diet on him. He's doing pretty good right now (13, starts 8th grade in the fall, plays tuba in band, successfully part of a rec soccer team, just had a great experience on a 9-day road-trip church camp where they hiked, white-water rafted, did paintball, etc... -those are my indications he's doing good.) Our "official" treatments for him through the years was a 3 year period of behavior therapy through play (kinder through 2nd), one-on-one behavior therapy (talking about it) when he was in the 4th-5th grades, and parenting training so we're dealing with him as effectively as possible. I've also read a lot on the subject and have some professional background in behavior therapy myself so I've tried to apply those techniques with him too. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: asmallbizmom <asmallbizmom@...> Sent: Monday, July 27, 2009 5:16:00 PMSubject: ( ) GFCF for Aspergers Has anyone here seen really good results with GFCF for Aspergers?My son is 9, and he's fairly high fxning.Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low frustration tolerance.I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Hi, my son is 4 yrs and we have tried the GFCF diet. He remains off of milk (casien) and as for the wheat ( gluten) it was really way to hard for us to stick too. We have alot of appts and have to go out a lot. We did notice a big change taking milk away. His speech got better, behavoir changes some. We also give him probiotics. Vitamins as well. This helps but the diet is very strict. I still make alot of gfcf cookies, biscuits, pizza. I think every thing has wheat in it now a days. It can get very time consumming making all the meals. There is websites that you can purchase the food already made. This is great, but way to expensive for me. We orginally started the gcfc diet due to his gastro system. The stomach aches went away. I still would like to know what other foods he is sensitive too. So I could eliminate those as well. I think the gastrointestional system does have alot to do with my son's behavior, and how he feels. When he eats his limited diet he is cranky, stomach aches, and can not focus at all. As those weeks he only wants junk food. When he is stricky on good food he is so much better. There is more that comes with the gfcf diet as well. Like birthday parties and when its cake and icecream time. We would take his icecream and a small cupcake make special for him. He still looked upset that he did not get what the other kids had. School is hard to manage same thing there to. the halloween parties, christmas parties etc. It is really hard to tell them not to have something that all the other kids do have. We did stay milk free and that is a lot easier and maybe when he is older we will go back to wheat free as well. My son did adapt to the gcfc food well also. It does taste different though. I started out with snack food and sweets that was gfcf due to him only wanting sweets. He really likes some of the food so we stuck with it. He usually only gets wheat when we are out and on 3 hrs doc trips and we need to eat fast food. Well, I'm kinda going on and on here so , hope I helped and best wishes to you and the fam. Take care:) From: MacAllister <smacalli@...>Subject: Re: ( ) GFCF for Aspergers Date: Monday, July 27, 2009, 3:37 PM My son is high functioning too and I've never done a GFCF diet on him. He's doing pretty good right now (13, starts 8th grade in the fall, plays tuba in band, successfully part of a rec soccer team, just had a great experience on a 9-day road-trip church camp where they hiked, white-water rafted, did paintball, etc... -those are my indications he's doing good.) Our "official" treatments for him through the years was a 3 year period of behavior therapy through play (kinder through 2nd), one-on-one behavior therapy (talking about it) when he was in the 4th-5th grades, and parenting training so we're dealing with him as effectively as possible. I've also read a lot on the subject and have some professional background in behavior therapy myself so I've tried to apply those techniques with him too. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: asmallbizmom <asmallbizmom> Sent: Monday, July 27, 2009 5:16:00 PMSubject: ( ) GFCF for Aspergers Has anyone here seen really good results with GFCF for Aspergers?My son is 9, and he's fairly high fxning.Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low frustration tolerance.I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab.I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child?Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 In my opinion (nothing in my past to back it up) it could help. Doesn't matter about hf or not. You would just not see such a dramatic improvement, since he's already on the mild end of the spectrum, but it could lessen or eliminate some of the symptoms he does have. That's my reasoning anyways. We have a DAN dr. appt scheduled. I am concerned about my son's increasing sensory issues, and to me it seems medical/biological. TJ > > Has anyone here seen really good results with GFCF for Aspergers? > > My son is 9, and he's fairly high fxning. > > Main problems are ADD type behavior, argumentative and very emotionally labile. Also has low frustration tolerance. > > I have been to the DAN doctor couple months ago and I was given a few different tests to send off for him to a lab. > > I know it is going to be very tedious, so I need to know if it's really worth it for a high fxning child? > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 Ack! I sense a bit of tension. All I will say in regard to this topic is this: Our lives can seem so out of control because the results we get from typical behavior modification, etc. are not seen with our children - I know my daughter is SO not by-the-book - and for those of us who like to feel like we're DOING SOMETHING, diet modification is one area we CAN control. It won't hurt a thing to try, although it is most definitely time consuming and extremely costly. At least then you'll have your own experience to site. Regardless of what hundreds of others results have been, you can restrict certain foods/additives, etc., for a period of time, then give the child some of the eliminated item once and observe him/her over the next few days for changes in behavior or other symptoms. Simply stated, if YOU see a reaction and can say for sure the only variable was the addition of the item, you've done your own study and it doesn't matter a bit what someone else's opinion is!!! I say remove one item first, perhaps casein (which may well be less difficult to do than gluten)and see what happens when you reintroduce it. If there is no difference, or not one big enough to warrant the hassle, scrap it. No harm done. Then do the same thing with the gluten if you think that may be an issue. Without going cold-turkey on both, it won't seem as overwhelming and you can see which, if either, he/she is intolerant of. I'm no expert, to say the least, but I have had many people from family members to doctors to people with personal experiences chime in - some for and some against - but most importantly, what I notice is that when my daughter doesn't have milk/ice cream or something of the like for a number of days, she is much more compliant, less distracted, WAY less hyper, less emotional, more tolerant of her sister.. the list goes on. And when she DOES have some (DH thinks it's all a load of crap so he refuses to play the game with me) things get ugly. She starts with her spinning, she chews holes in her clothing, her sensory issues magnify at least times 10, she becomes hyper, goofy, and is extremely intolerant of and aggressive toward her sister, again, the list goes on. That's my 2 cents. Quote Link to comment Share on other sites More sharing options...
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