First Post and our Story

[Guest guest]

Hello All,

I'm the mother of a 5 year old boy with a possible diagnosis of Aspergers. Our

story is lengthy, but I'll try and summarize in the interest of time.

We have (as I'm sure most of you have) always found our guy to be somewhat

" different " . We have noticed things since he was 18 months old (which we now

know are a result of HFA or Aspergers) He obsessed over things to in depth

degrees, he has lengthy meltdowns over things we found well " crazy " for lack of

a better word. He would (and does)repeat lines from shows or the computer

adnauseum. He would (and does) what we now know as stimming by bouncing on a

ball endlessly or jumping and clapping. The things he did just made him " Jordan "

(that's his name) to us. We lived life just " Putting up " with these quirks. For

years I suspected some type of Autism or PDD-NOS, but he never fit the criteria.

He began reading at 18 months, taught himself to write at age 2 and use a

computer. He is VERY high functioning. He is a master at pretend play almost

obsessive really. The problem really escalated when he started Kindergarten.It

has been an off and on disater. He has trouble listening and following

directions or making eye contact with the teacher. He has constant meltdowns

where he has had to be carried down to the Principals office that usually stem

from him making a " mistake " on his paper and he can't erase it or really any

number of (what we now know are Aspie triggers). We've had round tables with the

Principal, psycologist etc. it wasn't until Christmas break that I decided to

contact my good friend who has a daughter with Aspergers. She brought in two

long time ASD professionals to take a look at my son. After spending 3.5 hours

with them BOTH said that is was obvious to them that he has High Functioning

Autism particularly Aspergers. They recommended that we have him evaluated

immediately. We are now going through the eval process. My hubby and I have

poured through books on Aspergers and HFA, our son is so textbook it's not even

funny. I've actually begun video tapping him. We were told that his High

Intelligence is what throws many off (especially at his school). His teacher is

not familar wit Aspergers, so he gets in trouble for " making silly noises "

(Jordan hums constantly it's one of his stems) when in fact he can't help it. I

don't know what the testing will reveal, but for now we are just taking it one

day at a time. Thanks for reading this long winded post!