Toilet training

[Guest guest]

i agree too, nathan only wears pullups to bed at night to hlep save on

laundry, and occasionally if having lots of smearing, but if he wears them

for than a day or two in a row will start wetting pants, he knows the

difference when awake anyways. shawna.

Re: Toilet Training

> Totally agree, individuals must wear clothing that allows them to

> feel wetness. With it took about 2 weeks for him to

> understand the concept of feeling wet. I started with the basic

> procedures involved in toilet training with developmental

> disabilities. Once the missing piece was discovered, it made a world

> of difference for him. Just to know I almost gave up due to not

> understanding the sensory issues, plus lots of laundry and

> shampooing the carpet which was draining me. He is not 100% trained

> but he is out of wearing pull-ups and still on a schedule with

> visual pics, no cleaning blue stuff inside the toilet, no flushing

> of the toilet before he urinates, only after his routine, no toliet

> seat changes, must be the same one, and he must have only his white

> boxer briefs. Oh, and at home all his toys of the week and video of

> the day have to tag along. Does great urinated and pooping in the

> toilet, no mess as he is Mr. Neat. Urinating accidents occur when we

> do not remind him of his schedule. Consistency is a big plus. I read

> & heard Temple Grandin's articles which inspired me to continue

> other trials which you'll find on:

> http://www.bbbautism.com/toilet.htm

> http://www.bbbautism.com/pdf_files.htm#toilet_pdf

> http://www.autism.org/contents.html#temple

> http://www.autism.org/temple/faq.html

> To all who have heard or seen Temple Grandin, you are certainly

> right, she is one fantastic person to listen and admire. I got her

> to autograph my book Thinking In Pictures. Thanks for always sharing

> info, so when we have the opportunity, its not a waste of time. Ok,

> back to the toilet-training, make going into the restroom a positive

> experience.

> Irma,14,DS/ASD

> P.S. Sara, you are one amazing person, to be there for others,

> besides your own. So proud of Elie's stories, especially

> the " Grease " scoop.: )

> Good luck with the little 5 y/o. I know this child will succeed with

> you behind with the toilet-training skills.

>

>

>

>

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> --------------------------------------------

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>

[Guest guest]

hehehe, j, you are sooo funny, i never thought of it that way, the bathroom

not being to exciting to talk about,lol nathan does talk of the bath quite

often. shawna.

Re: Re: Toilet Training

> At 05:20 PM 2/2/2003 -0800, you wrote:

> >He is

> >starting to be verbal, and he can say " bathroom " . In

> >fact, we put the PEC of the bathroom in a couple of

> >places in the house, and before we bring him to the

> >bathroom, we go to the PEC and make him say

> > " bathroom " . But for some reason he has never initiated

> >it.

>

> Marina:

>

> We started by bringing it to Andy and he would come with us usually. We

> still need to do that sometimes. But...he is beginnign to tell us in his

> very subtle ways. He'll stand outside the bathroom (mind you, he does

> almost all of it himself--not pulling up yet or wiping #2--but he seems to

> think we must BE there.). There are a couple of other things he'll do to

> get our attention--go upstairs (he used to go up there and make a big

poopy

> mess, so we run up after him). And sometimes we still ask and he will

tell

> us " Yah " (our only " word. " ).

>

> It takes time. If' you've got people whoa re really doing PECS right, it

> may come faster. But let's face it--it's nto too exciting to talk about

teh

> bathroom.

>

> Hang in there. Sounds like you're doing great.

>

> j

>

>

> --------------------------------------------------

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of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

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> --------------------------------------------

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>

[Guest guest]

nathan use to do this tooo, but he did outgorw or sjust stop eventually, it

was so bad i think i blocked it out casuse i dont remember when he stopped.

We just drilled him the same for when he messed his pants---- " where do you

go popoo? " and he would have to say " lilet " and we would reinforce this

too, -- " thats right ppoopoo in toilet NOT pants, or NOT tub poopoo goes in

the toilet. " and every time he did poopoo in the toilet ofcource we all

cheered and did the dance,lol you cant forget the fun poopy or potty dances.

shawna.

Re: Toilet Training

> The worst thing is when she goes poop in

> > the tub. She does it all the time. It is disgusting. I don't know

> if I should

> > discipline her for it or what. We always put her on toilet before

> bathtime. I

> > give her very short baths if she hasn't gone recently.

> > Diane

> >

> > Hi Diane. did this for years!!!! I hated to leave her

> alone in the bath tub, but she played so well in there......Anyway, I

> would always tell her " icky, icky " as I got her out, cleaned out the

> tub and then washed her again. Then one day she was in the tub and I

> came around the corner and smelled it. When I got into the bathroom

> was getting the poop out of the tub by herself and putting it

> on the bathroom floor. When I yelled, " , what are you doing? "

> She pointed to it and said " icky " . She hasn't pooped in the tub for

> over a year!

>

>

> >

[Guest guest]

Hi Carolyn,

I am just going to begin potty training Sara (ds almost 5). I finally have

admitted to myself that I need to intervene. With her twin brother (not ds)

and her older brother, potty training came so easy. I have tried every

couple of months for the past year and a half and same as your Emma, it is a

power struggle to get her to sit on the potty consistently. If I do suceed

in getting her there, she will usually go; however, she will not initiate.

During her IFSP, yesterday, her teachers encouraged me to begin getting

serious about it before she enters Kindergarten. They said they would work

with me. They gave me a book that she really enjoys having read to her when

she is at school called the Princess and the Potty and said that she

definitely needs to be out of pull-up diapers and then a reward system. We

tried last night and were not successful. (She wouldn't sit on the potty for

me, then wet in her panties). We will try this weekend, when she has four

days off from school. Keep me informed as to how it is going with you and

what works for you and I will do the same. The pictures you have shown are

great--Our scanner is not working right now, when it does, I will post some

of our family.

Marcia

Mom to Sara (ds) Gabe age 4 and Lucas 9.

[Guest guest]

tonycarolyn wrote:

>

> - Hi! I play around with my photos after they are scanned using

> Photoshop (you need a licence to drive it but I get great results!!).

>

> Hi Everyone

>

> Thanks for your kind remarks re family!! We are heading into summer

> here in New Zealand and this year it will bring the joys and

> tribulations of the dreaded............potty training!

> AAARRRGGGHHHHH!!!!! My least favourite part of raising children!

> Emma has only just started to take notice of whats going on below and

> tells me if there is something in her nappy. She has also learned

> that it's rather fun telling Mum that there is something in her nappy

> when there isn't or vice versa!! Quite the little comedienne is our

> Emma!

>

> I suppose it depends on the child how you approach toilet training and

> I think with Emma, I'm going to go cold turkey and stay home for 2

> weeks.....if she doesn't understand what we are trying to do, we'll go

> back to the nappies (I hope not). At this stage she absolutely

> refuses to sit on a toilet or potty. We have tried to distract her

> with books, toys etc but she won't even sit, she goes really stiff and

> bends backwards - Does anyone on the list have any stories of

> encouragement for me before I launch off into the unknown world of a

> nappy free Emma?!

>

> Carolyn - Mum to on, , Emma 3 1/2ds and Nicki 2 1/2ds

Hi Carolyn, well first you have 2 older children so you have done this

before, like me. My tricks were to take short trips with cotton training

pants on, and if he/she was dry when we came home, it was a big

celebration! Also, I used cotton training pants so they could feel being

wet, and being uncomfortable, when an accident occured. The other method

I used was, like you, just make your mind up to devote{say 2 weeks}to

using cotton pants, no diapers, and just prepare to do massive amounts

of laundry all the time, and get a real good video on potty training{I

have a good one that I used for my older 2 kids}that they loved to watch

and we would sing these stupid potty songs together all day long!!!

Hope any of this helps?

Gail mom to Bobby-5 1/2, Jillian-3, and Tara{Ds}7 1/2 months

[Guest guest]

Hi Marcia!

By the way I love your name....same as my mothers!!! Don't hear it very

often. Do you pronounce it Marsha or Marcia?

Both my older 2 basically potty trained themselves. on was 3 when he

decided that he'd have enough of nappies - he had his fair share of

accidents though and came home from preschool in different clothes from when

he arrived! potty trained herself at 2 years so I'm a real novice at

this 'training' lark!! As you say, half the battle is getting them just to

sit. I try and make it a pleasant experience and because Emma non-verbal I

don't even know if she understands the concept. She often goes into the

bathroom with - she's a really good sport and seems to understand

but when it comes to Emmas turn on the toilet ....NO WAY JOSE!! We are

lucky too that the teachers at Emma preschool are prepared to assist in the

process. I'm dreading the accidents on the carpets and furniture but I

guess I have to start sooner or later!

Good luck this weekend - let me know how you get on!

Carolyn - Mum to on, , Emma(ds) 3 1/2 and Nicki(ds) 2 1/2

Re: Toilet Training

> From: Rrietmann@...

>

> Hi Carolyn,

>

> I am just going to begin potty training Sara (ds almost 5). I finally

have

> admitted to myself that I need to intervene. With her twin brother (not

ds)

> and her older brother, potty training came so easy. I have tried every

> couple of months for the past year and a half and same as your Emma, it is

a

> power struggle to get her to sit on the potty consistently. If I do

suceed

> in getting her there, she will usually go; however, she will not initiate.

> During her IFSP, yesterday, her teachers encouraged me to begin getting

> serious about it before she enters Kindergarten. They said they would

work

> with me. They gave me a book that she really enjoys having read to her

when

> she is at school called the Princess and the Potty and said that she

> definitely needs to be out of pull-up diapers and then a reward system.

We

> tried last night and were not successful. (She wouldn't sit on the potty

for

> me, then wet in her panties). We will try this weekend, when she has four

> days off from school. Keep me informed as to how it is going with you and

> what works for you and I will do the same. The pictures you have shown

are

> great--Our scanner is not working right now, when it does, I will post

some

> of our family.

>

> Marcia

> Mom to Sara (ds) Gabe age 4 and Lucas 9.

>

> > http://DSyndrome.com/Multiples

[Guest guest]

>Hi Marcia!

>

>By the way I love your name....same as my mothers

My moms name too

[Guest guest]

No, you don't have the only 10 year old not potty trained. was potty

trained at 4-5, but lost it. He very seldom has BM accidents, but he wears

pull-ups during the day. Doesn't have accidents at night. He also can't take a

shower unsupervised, and I wouldn't dream of letting him in the bath tub

unsupervised. I made the shower strip for him to remind him, but the first time

we went over it, he squirted shampoo (about a quarter of the bottle) into the

shower curtain, trying to put it on his head like Daddy does to him. We had to

work on that one. I thought I'd try to get potty trained at the same time

I do (who is 15 months - just about ready).

I was starting to feel like was the only one who had to be supervised,

too.

Loriann from Hawaii

Wife to Dewight

Mom to , 10 years old, DS-ASD, ADHD, ODD

And , 15 months old

[Guest guest]

Jeannie

At 6 JJ is not potty trained and I am not even thinking about it.

, with 3 in diapers

& Garry, parents of (10 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (6 ds), and Esther (3 ds). All adopted.

[Guest guest]

has some sensory issues with the shower. He used to be really bad. He

didn't like the water any where near the hotness I like. 'Course DH says I have

an asbestos back, but I always thought liked the water pretty cold. He's

also inconsistent about how he wants the shower adjusted, sometimes he likes the

fine mist, sometimes he likes the pulsator on. I just let him decide. When he

gets in, if it's not like he likes it, he'll hold his hand up and twist, like

he's turning the shower head. I know to put it on the one it's not....

Loriann

[Guest guest]

In a message dated 9/21/00 11:45:17 PM Eastern Daylight Time, JVal987@...

writes:

<< Hello,

I was wondering if I am the only one who has a child that is not potty

trained? Mark is very low functioning, infact he IS supervised at

everything

he does ;( He used to have beginning bathing skills, lost them also years

ago. He is 10 and we bathe him. I am feeling mighty stupid now.

Jeannie

Mom to Mark and

>>

Jeannie,

Gosh, why are you feeling stupid? There are adults who aren't potty trained!

I don't think in the case of our kids that 10 is very old. Actually, I'm

very anxious to see the poll here. I would guess that we're not the

minority. (((((hugs))))) you are not alone on this one.

Gail

[Guest guest]

dont feel stupid, our kids are how god made them, there are many times we,

my spouse and me, feel that nathan isnt very high functioning, infact at his

last appointment, the doc asked according to intelligence testing if they

have ever decided other than mild-moderate mental retardation not otherwise

specified, i said no its still states that, but that there are many times we

feel he is in the moderate range, i see many others with just ds who are soo

more advanced than him, sometimes i think the autism makes it soo much

harder for him and others dual diagnosed like him, remember it has taken us

years since he was about three of constant training just to get him this far

and we still work hard everyday on our activities of daily living, fine

tuning them, assisting when needed. nathan may be potty trained day time

only remember, but he still has horrible FMS and requires " help " doing his

jeans, i have noticed him trying to do this himself lately before he goes

" help " but then i remind him what do we say, and he says " i want help

please " , im trying to add things like pants to his vocab, he know what they

are but like any of his vocalizations its very braod as of yet. One final

note to this long letter, sorry, ive noticed nathan goes in plateu like

cycles, he does great for a while learning and doing many new things, then

all of a sudden he is stuck in a slump not doing new things and often

regressing a step but then after awhile he starts up again, i not sure if

others children are the same or not. shawna.

>From: JVal987@...

>Reply-egroups

>egroups

>Subject: Toilet training

>Date: Thu, 21 Sep 2000 23:43:38 EDT

>

>

>Hello,

>I was wondering if I am the only one who has a child that is not potty

>trained? Mark is very low functioning, infact he IS supervised at

>everything

>he does ;( He used to have beginning bathing skills, lost them also years

>ago. He is 10 and we bathe him. I am feeling mighty stupid now.

>Jeannie

>Mom to Mark and

>

>

>

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[Guest guest]

In a message dated 9/21/00 11:16:34 PM Pacific Daylight Time,

hsmyangel@... writes:

<< I was starting to feel like was the only one who had to be

supervised, too. >>

Loriann,

Thanks, and thanks to all who replied on this one.

Jeannie

Mom to Mark and

[Guest guest]

i find have nathan do things with his little brother helps him catch on

bunches, they use to shower together but it became a " personals " issue, so

that had to stop, oh i remember nathan use to squirt a bunch of shampoo on

his head too, i just showed him a few times how to squirt into his hand,

also that baby shampoo/body wash, comes in a pump bottle, this is very

helpful until masters the squeeze techniques, shawna.

>From: " Lori " <hsmyangel@...>

>Reply-egroups

><egroups>

>Subject: Re: Toilet training

>Date: Thu, 21 Sep 2000 20:09:19 -0000

>

>

>No, you don't have the only 10 year old not potty trained. was potty

>trained at 4-5, but lost it. He very seldom has BM accidents, but he wears

>pull-ups during the day. Doesn't have accidents at night. He also can't

>take a shower unsupervised, and I wouldn't dream of letting him in the bath

>tub unsupervised. I made the shower strip for him to remind him, but the

>first time we went over it, he squirted shampoo (about a quarter of the

>bottle) into the shower curtain, trying to put it on his head like Daddy

>does to him. We had to work on that one. I thought I'd try to get

>potty trained at the same time I do (who is 15 months - just about

>ready).

>

>I was starting to feel like was the only one who had to be

>supervised, too.

>

>

>Loriann from Hawaii

>Wife to Dewight

>Mom to , 10 years old, DS-ASD, ADHD, ODD

>And , 15 months old

>

>

>

[Guest guest]

nathan is 9yrs too, is very reliable days, mostly at night now, occasional

wet pull-up when he wakes up, only wears one to bed, often he will have a

little bm in he pull-up, he will go in the tiolet too but i think there is

another problem sphincter wise but the docs dont beleive me i guess, its a

very big deal around here still every time he poo poos in the toilet, he

gets all excited " seee " making those surprise breath noises, we are still

working on the wiping, i found those pamper pop-ups are a godsend, they pop

up like kleenexes so he can grap them unlike the other baby wipes, i even

have a hard time getting those out. shawna.

>From: gboughton@...

>Reply-egroups

>egroups

>CC: egroups

>Subject: Re: Toilet training

>Date: Fri, 22 Sep 2000 08:17:49 -0400

>

>

>. <<Actually, I'm

>very anxious to see the poll here. >>

>

>Ted is 9.3 and we are getting into the clearing so to

>speak,...I cold turkey took Ted out of diapers 15

>months ago. I agree with Gail. Our kids have a

>different time table. The kicker for me is that Ted

>is 5 years advanced bone age! He is in early puberty!

>He had pubic hair before he was out of diapers!

> I still help Ted to shower if I

>want him clean.

>The other Gail

>

>

>

[Guest guest]

I don't get an upload option when I click on files. I can view 2 pictures

already there, but I can't upload anything.

Loriann

[Guest guest]

Does this mean only you can upload? We can always send them to you and let you

do it.. . .

Loriann

[Guest guest]

In a message dated 9/22/00 10:13:56 AM Eastern Daylight Time, paul.3@...

writes:

<< the good thing about elastic waist pants for boys is that they can be more

independent for bathroom skills...but it also gives them easier and faster

access to that flipper of all flippers, little though it might be! >>

LOL Beth! LOL I will have to remember this one! Is this early

development common in our kids? Is that what you are saying? Hmmm...wonder

why?

Gail

[Guest guest]

In a message dated 9/22/00 7:13:48 AM Pacific Daylight Time, paul.3@...

writes:

<< And keeping them clean can be tough, depending on where those busy

hands have been...hahahaha! >>

Thank you all for responding and giving me my Friday laugh

Jeannie

Mom to Mark and

[Guest guest]

.. <<Actually, I'm

very anxious to see the poll here. >>

Ted is 9.3 and we are getting into the clearing so to

speak,...I cold turkey took Ted out of diapers 15

months ago. I agree with Gail. Our kids have a

different time table. The kicker for me is that Ted

is 5 years advanced bone age! He is in early puberty!

He had pubic hair before he was out of diapers!

I still help Ted to shower if I

want him clean.

The other Gail

[Guest guest]

Jeannie,

Matt is just about totally reliable about wetting, but refuses to poop in

the toilet! He has perfect control (Except for when he has diahreeah, or

is very gassy), and my DD , is trying to convince him a little at at

time, to go in the toilet. He has a fairlly regular schedule now, of

going after school. He will come home, get a pull up and ask for help

getting it on. (Usually just throws the pull up at me! But I understand)

will tell him he has to " go a little bit in the toilet first " then

he gets it on. So she spends up to 1/2 hour in the bathroom with him,

convincing him to try. He farts, looks to see if he did anything, and

farts somemore. But he will only go " One little bit " , then gets his pull

up and finishes with in 2 minutes. I know this is gross, and I am glad no

one has a microphone in our bathroom as we try to convince him to go " 2

or 3 little bits for a pull-up "

S

>

> Hello,

> I was wondering if I am the only one who has a child that is not

> potty

> trained? Mark is very low functioning, infact he IS supervised at

> everything

> he does ;( He used to have beginning bathing skills, lost them

> also years

> ago. He is 10 and we bathe him. I am feeling mighty stupid now.

> Jeannie

> Mom to Mark and

>

>

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[Guest guest]

Ben (10) is in pull-ups at night. he tends to -over-hold his urine

during the day, and so will have some " dribbles " but then can't relax long

enought to fully empty his bladder.

He is ALWAYS supervised in the bathroom. ALWAYS. There is never any

telling what he might decide to play with in there, and esp. since he is

fascinated with electrical outlets, he likes to take the hairdryer and plug

it in. (If we hide he he tears up our bedroom looking for it. You can't

win!)

So far as bathing goes, we use a cheap moisturizing bubblebath for him- he

soaks clean in about 20 minutes. Dad has been working with him to use a

washcloth to soap up. He can't gauge amounts of shampoo, so we still do

all of that. He has been getting better about tolerating the shower (we

have an adjustable hand-held shower that can be left on overhead or used by

hand) and so we are getting him used to the feel of the shower.

Jeannie, there is NOTHING to feel stupid about! Our kids safety comes

first. And keeping them clean can be tough, depending on where those busy

hands have been...hahahaha!

So far as PB's " busy hands " , he is definitely touching himself more.

Mostly it's confined to bathroom time. However, my sis pointed out that

the good thing about elastic waist pants for boys is that they can be more

independent for bathroom skills...but it also gives them easier and faster

access to that flipper of all flippers, little though it might be! We will

also be getting some tests done for PB- this pre-pubescent develpment

that's been apparent for the last year as well. I told our doc that this

seems to be increasingly common for boys with DS- funny, but a number of

them have DS and autism as well. HHHMMMM. Wonder if Dr. Capone is on to

any of this?

Take care, all,

Beth

[Guest guest]

In a message dated 9/22/00 7:42:36 AM Eastern Daylight Time,

smilinggail@... writes:

<< Jeannie,

Gosh, why are you feeling stupid? There are adults who aren't potty

trained!

I don't think in the case of our kids that 10 is very old. Actually, I'm

very anxious to see the poll here. I would guess that we're not the

minority. (((((hugs))))) you are not alone on this one. >>

I agree Jeannie. Don't feel stupid. Maddie will be 7 and is nowhere near.

We are starting, but she hasn't the slightest clue. And she is also nowhere

near dressing herself OR feeding herself. These are issues that are going on

her IEP. I'm a very upbeat and optimistic person, but it's at IEP planning

meetings that I always get down. I remember Maddie's first few IEP's, I

thought... " I'LL Teach her life skills; the school can teach her academics " .

Life is taking a major turn and her IEP sure looks a lot different than I had

planned.

But, But But. I'm still upbeat and optimistic; just about different things

now!!

Donna

[Guest guest]

In a message dated 9/22/00 11:11:58 AM Eastern Daylight Time,

Scherb@... writes:

<< >we are still

>>working on the wiping, i found those pamper pop-ups are a godsend, th

a,

I thnk all males need to work on thisLOL

& Garry, parents of (10 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (6 ds), and Esther (3 ds). All adopted.

>>

LOL , you said it!!!!!!! LOL

Gail

[Guest guest]

Hi a, i notice this with my son that for awhile hes doing great

and really whizzing by stuff then for no reason he stops and plateus

for a ltitle bit. hubby mentioned that he notices jared do this

around a growth spurt time. he will learn something new, eat more

and and see a little more hyperactive, then when he's through the

spurt he might have a down time where he almost seems to regress.

I understand and relate to what you said about other kids with just

DS seem to be moving right along. it's hard to see that and know that

and having the added ASD makes it harder for us but especially for

out kids. i totally agree.

MARIE

> note to this long letter, sorry, ive noticed nathan goes in plateu

like

> cycles, he does great for a while learning and doing many new

things, then

> all of a sudden he is stuck in a slump not doing new things and

often

> regressing a step but then after awhile he starts up again, i not

sure if

> others children are the same or not. shawna.

>

>

>

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