Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 >Debby - Sorry you had such a bad time with the sleep study! I had TV and it was cable! They did not put the mask on me but told me that I needed to have a CPAP. I would not be without it. I can sleep about 6 hours and feel good all day. Then there are the days I could sleep all day but it is not because of sleep apnea. I hope they help you. I had 97 episodes in 6 hours. One was getting serious and he came in and talked to me. I was awake but did not realize he was serious about the oxygen until I had the machine and the test in front of me. OR Sharon Debby said: Well, got through the " sleep study " ok. Debby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Sharon, why did he talk seriously to you? What could he do then? Just curious. Debby Re: [ ] Sleep Study >Debby - Sorry you had such a bad time with the sleep study! I had TV and it was cable! They did not put the mask on me but told me that I needed to have a CPAP. I would not be without it. I can sleep about 6 hours and feel good all day. Then there are the days I could sleep all day but it is not because of sleep apnea. I hope they help you. I had 97 episodes in 6 hours. One was getting serious and he came in and talked to me. I was awake but did not realize he was serious about the oxygen until I had the machine and the test in front of me. OR SharonDebby said: Well, got through the "sleep study" ok. Debby> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Debby, I had a sleep study too, about a year ago. They really know how to put you at a comfort level condusive of sleep don't they? I loved the pumice scrub myself, as it had been years since I had scabs on my head, I missed them so. They kept waking me up because I kept rolling over on my side. Then to put the mask on. Don't you love the dents in you face and the tape burns. But I had sleep apnea probs too. Was doing it 50 something times an hour. No wonder I had head aches! But now have the cpap machine. It works great. But was an adjustment. Had to learn how to sleep on just one pillow again. I had been propping myself up for years to assist my breathing in my sleep, but you can't prop yourself up with the cpap. You wind up feeling like you are choking if you do. Good luck! Love, Carole K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 > Debby - I think it was the look on his face that was so serioue. I realize looking back that he was coming into the room fast. He just would have put me on the CPAP machine right there so I would not stop breathing again. OR Sharon Sharon, why did he talk seriously to you? What could he do then? Just curious. > Debby > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Dear Blueflower, Wow- that is terrible! I get wild dreams and some are hilarious, but maybe you should tell your doctor about these. Something must be really bothering you and is expressing itself in your dreams. I thought only children get night terrors, but I may be wrong. [ ] Sleep Study I have a sleep problem....night terrors. I went to the doc about it a few years ago after I had doave over my husband and landed on the floor injuring my shoulder and back. The doc ordered a sleep study but I came down with strep throat and couldn't go. Then my husband lost his job and the insurance that would have paid for it. I have been wondering if it might be caused by apnea. Since everyone is talking about it I wondered if anyone has had night terrors. I had one last night that another planet was crashing into Earth. We were watching it get closer and closer on the TV in the bedroom. I woke up panicked, sat up, grabbed Hal's hand and started praying before I realized that it was only a dream :-). This happens almost every night, the setting is always in the bedroom so it seems extremely real. It is very different than regular dreams and is always very terrifying. It is usually different scenerios too. I wonder if I am halucinating because of lack of oxegen LOL. I don't drink caffine in the evening and I don't drink or do any drugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 I'm Diastrophic. Have cleft palate and have sleep apnea. I have had 2 and a half sleep studies which have all proven various degrees of severe sleep apnea. Bill's right, it's not invasive, just uncomfortable. I tried the CPAP to treat but couldn't tolerate it. I lost a significant amount of weight and tried another device which is a mouth guard that I sleep with at night. It moves my bottom jaw forward to allow airflow. I know it's not as perfect as the CPAP but I've had a study done with the device and it does work. Kate Wolters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 I have a hard time understanding yur strong position on this when you admit the test seems to affect the sleep. Plus most people say that nothing can be done about their sleep problems. Not that I don't think it is important to treat sleep, but can't you do it based on symptoms and knowing how you sleep instead of getting a study? Thanks, Doris ----- Original Message ----- From: The question is not if anyone has gotten a sleep study but has anyone not gotten a sleep study. Sleep should be the first thing anyone with CFS take care of. Having said that and having had two sleep studies I cannot see how anyone sleeps well all wired up and with the knowledge you are being watched all the time. I understand that sleep studies are the gold standard for determining if sleep apnea is a problem but with CFS related problems it is hard for me to see how they can determine how you sleep from the data gathered in a sleep study since the environment effects sleep so strongly. But get one anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Hi Sleeping pills don't work for me. If I try to knock myself out with them to try to keep a normal sleep pattern they simply don't work. I just lay awake feeling very drugged - its horrible. I just have to go with the vampire sleep patterns and the drugs are only useful to stop me moving further and further forward Sleep study Sleeping pills work for me. I slept almost 12 hours last night and feel much better. Drs may be reluctant to give you sleeping pill but a sleep study gives them a green light. If you have something keeping you up like neuropathy then strong plain pills will block the sensation. But I will not let my slept cycle change like some CFSers do. I would rather knock myself out with drugs than live like a vampire. But I do not need to knock myself out with drugs. I sleep fine with a modest amount of help with drugs. cheers Luckyd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 I am annoyed by sleep studies because w/ me, I have a " huge oral leak " (according to the RT/lab person) and they always wanna " try " to correct it w/ a chin strap! I've been on BiPap 10 yrs and love it, couldn't imagine being w/o it. I use the nasal pillows, they're comfy if in the nose right. Sincerely, s, the Unique Princess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 Hi Mee Ling, No need to be very concerned. Sleep study is easy. It's been done to me many times. I go to the hospital and they hook up some machines on me. There's an pulse oxymeter which is a rubber tube on one finger which measures the pulse and the amount of oxygen in the blood stream. And there are other wires and gadgets, too, but nothing invasive, in the sense that there are no needles or anything. All these gadgets record information about the way you sleep through the night. The info is stored on a computer and printed out in the morning for the doctors to analyse. I've seen the graphs which show the amount of oxygen in my blood for the duration of the night. Sleep studies are done on people with muscular diseases in order to find out how they breath during the night. You are probably aware that SMA may affect certain breathing muscles, too. At night time, everybody's breathing becomes more shallow. The study is used to measure if it becomes excessively shallow for someone with a muscular disease. If the breathing becomes too shallow, sleep is interrupted, you wake up a little bit, catch your breath, and go back to sleep again. You may not remember this yourself in the morning. If it happens too many times during the night, it is not good for your health, because you do not get enough sleep (and it is a warning signal in other ways, too). If it is found in a sleep study that your breathing is too shallow then you are given a Bi-Pap which helps you breath during sleep. Often, this is all that is needed and no day time ventilatory support is needed. BUT the fact that a sleep study is recommended for your daughter does not mean by any means that your daughter would need a Bi-Pap now. The doctors just want to be on the safe side and make sure they check everything that is necessary. I've been in a sleep study many times in my life (and I do not use any kind of ventilatory support now). It means spending one night in a hospital which in itself is stressful. Other than that, the study is not stressful at all and there is no pain involved, for instance. Hope this lessens your concerns, Taya Taija Heinonen UUSI POSTIOSOITE Seilimäki 17 B 8 02180 Espoo puh. 0400 911 686 e-mail: taija.heinonen@... URL:http://personal.inet.fi/koti/juha.heinonen/ Sleep Study and Contracture Hi Everyone, My daughter (age 4 SMA II) is told to have a sleep study on the 20th this month. This is the first time she is told to do so. I am wondering if anyone can share with me on his/her experience/knowledge on sleep study and how often she has to do this ? Besides that, can anyone tell me are all SMAers will have contracture in their lifetime, it is a matter of time only ? At what age normally for a SMA type II to get this ? Any input will be much appreciated. Thanks. LOL From a very concerned mum, Mee Ling --------------------------------- Want to chat instantly with your online friends? Get the FREE Messenger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Brother. If I could have a dime for everytime I said or I heard some other patient say this about sleep, I'd have a bigger bank account than Hillenbrant got from the royalties off Seabiscuit! Our dear dear friend " retorative sleep " . Where have you gone? I miss her soooo much! Where or where or where can she be? I did a sleep study back in 1999. It didn't show anything useful. I don't think the sleep experts(Stanford et al) know too much about what to make of this type insomnia. There are lots of new GABA agonist meds. coming out this coming year for sleep which include Lunesta, TAK-375, Indiplon and at least one other I'm forgetting. They might knock you out if you want to venture a try, but for restorative sleep for us I guess they won't have much to offer. the worst one by far is > walking around like a zombie and nervous exhaustion, like battle fatigue, also > called dissasotiation....its a horrible symptom; feeling like I am dreamily making > my way through life for the last several years. Feels like if I could get > deep stage 3 and 4 sleep things would be much better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Oh where oh where are the Drs that would even take the results of a sleep study seriously? I had a sleep study done in the mid-90's of which it showed that I didn't get to stage 3 and 4 of my sleep and yet every Dr here where I've moved to that I've shown the sleep study results to have said that it's normal. Oh where oh where are the " normal " drs? N. Re: sleep study Brother. If I could have a dime for everytime I said or I heard some other patient say this about sleep, I'd have a bigger bank account than Hillenbrant got from the royalties off Seabiscuit! Our dear dear friend " retorative sleep " . Where have you gone? I miss her soooo much! Where or where or where can she be? I did a sleep study back in 1999. It didn't show anything useful. I don't think the sleep experts(Stanford et al) know too much about what to make of this type insomnia. There are lots of new GABA agonist meds. coming out this coming year for sleep which include Lunesta, TAK-375, Indiplon and at least one other I'm forgetting. They might knock you out if you want to venture a try, but for restorative sleep for us I guess they won't have much to offer. the worst one by far is > walking around like a zombie and nervous exhaustion, like battle fatigue, also > called dissasotiation....its a horrible symptom; feeling like I am dreamily making > my way through life for the last several years. Feels like if I could get > deep stage 3 and 4 sleep things would be much better. This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 What are you taking for sleep? As I'm sure you know it is one of the worst things to deal with for us people with CFS. I have found a combination that works for me but it took a bit of experimenting and occassionally it doesn't work either. I know someone will ask, so FYI it is: klonopin 1mg, doxepin 50mg, 5-HTP, 6 mg sublingual melatonin, all taken about 2 hours before sleep. Then right when I go to sleep, 1000mg Valerian root and 3mg long acting melatonin. The 5-HTP was the last thing I added that made a big difference for me. But if I miss any one of these things I suffer bad sleep. Without klonopin I feel like I wake up every few minutes; without doxepin I wake up after 5 or 6 hours instead of sleeping longer, without the others I can't get to sleep. Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 A very Happy new year to all: Thanks Blake, No, I've not tried a sleep specialist. When I lived in another State a few years ago the Drs there took my situation seriously but since here, it's another story but will keep searching. the Drs here in this State are most reluctant to actually do anything or even prescribe anything. I'm not trying to seek medical advice but am wondering if anyone has experienced a strange kind of pain? My right shoulder, neck, and on right side of head have this most unusal kind of pain. an almost tired kind of pain. I remember as a child I would be crying so hard because both of my legs were in such agony-that extreme over tired down to the bone kind of pain that was considered 'growing pains'. I'm curious as I just don't know how to express it in a logical way- Please forgive me moderator if I'm out of bounds as that is not my intentions and I know that that makes more work for you and I don't wish that on you- Thanks all, N. Re: sleep study > > > > > > Brother. If I could have a dime for everytime I said or I heard some other patient say this about sleep, I'd have a bigger bank account than Hillenbrant got from the royalties off Seabiscuit! > > > > Our dear dear friend " retorative sleep " . Where have you gone? I miss her soooo much! Where or where or where can she be? > > > > I did a sleep study back in 1999. It didn't show anything useful. I don't think the sleep experts(Stanford et al) know too much about what to make of this type insomnia. > > > > There are lots of new GABA agonist meds. coming out this coming year for sleep which include Lunesta, TAK-375, Indiplon and at least one other I'm forgetting. They might knock you out if you want to venture a try, but for restorative sleep for us I guess they won't have much to offer. > > > > > > > > the worst one by far is > > walking around like a zombie and nervous exhaustion, like battle fatigue, also > > called dissasotiation....its a horrible symptom; feeling like I am dreamily making > > my way through life for the last several years. Feels like if I could get > > deep stage 3 and 4 sleep things would be much better. > > > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 N. Have you seen a sleep medicine specialist. These are the only doctors who are truly qualified to do this. I did not have a sleep study, but I saw a sleep medicine specialist who diagnosed me on the first appointment with 'circadian rhythm shift'. He recommended 'bright light therapy' from http://www.northernlighttechnologies.com My sleep latency went from 2-4 hours to 1 hour after my first bright light use. I beleive many people with CFS have this condition and would benefit from bright light therapy. Regards, Blake Natasha Vidan wrote: >Oh where oh where are the Drs that would even take the results of a sleep study >seriously? > >I had a sleep study done in the mid-90's of which it showed that I didn't get to >stage 3 and 4 of my sleep and yet every Dr here where I've moved to that I've >shown the sleep study results to have said that it's normal. > >Oh where oh where are the " normal " drs? > >N. > > > Re: sleep study > > > > > > Brother. If I could have a dime for everytime I said or I heard some other patient say this about sleep, I'd have a bigger bank account than Hillenbrant got from the royalties off Seabiscuit! > > > > Our dear dear friend " retorative sleep " . Where have you gone? I miss her soooo much! Where or where or where can she be? > > > > I did a sleep study back in 1999. It didn't show anything useful. I don't think the sleep experts(Stanford et al) know too much about what to make of this type insomnia. > > > > There are lots of new GABA agonist meds. coming out this coming year for sleep which include Lunesta, TAK-375, Indiplon and at least one other I'm forgetting. They might knock you out if you want to venture a try, but for restorative sleep for us I guess they won't have much to offer. > > > > > > > > the worst one by far is > > walking around like a zombie and nervous exhaustion, like battle fatigue, also > > called dissasotiation....its a horrible symptom; feeling like I am dreamily making > > my way through life for the last several years. Feels like if I could get > > deep stage 3 and 4 sleep things would be much better. > > > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 that is quite disturbing to read.....I would be thinking incompetence lawsuit for such a blatently ignorent remark from a MD......like if your blood pressure was super low and they said it was normal; how awful. Joe In a message dated 1/1/2005 4:04:45 AM Pacific Standard Time, writes: Date: Fri, 31 Dec 2004 14:41:57 -0500 From: " Natasha Vidan " <prayjerusalem@...> Subject: Re: Re: sleep study Oh where oh where are the Drs that would even take the results of a sleep study seriously? I had a sleep study done in the mid-90's of which it showed that I didn't get to stage 3 and 4 of my sleep and yet every Dr here where I've moved to that I've shown the sleep study results to have said that it's normal. Oh where oh where are the " normal " drs? N. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 We only do an ECHO every-other year so none was needed this year. Last year he wouldn't cooperate for the BP or EKG and we literally laid on top of him to do the ECHO. >>>>>>>>>>>>>>>>. Hi Di, btdt...have you tried taking one of his favorite videos for him to watch during the echo. Also, a good idea is for them to get him in right away and not have to wait..that seems to make a hugh difference for , she's much more cooperative when she hasn't had to sit in the waiting room forever. :-/ I think most places now have the little tv's for the kids to watch don't they? And many carry a selection of videos for them to watch but I would think you could bring one that he picked out at home or maybe a new release that you buy on the way to have the echo done stressing that wow he can watch this while they take pictures of his chest or whatever.... :-) Don't ya just love having to come up with ideas on how to trick the kids into doing what you want???? ABout the leads, if you're close enough could you meet with the technician who would work with him a coupld of times to let him 'observe' and learn what they want and learn to trust the person working with him. Some techs are better working with troublesome kids then others to. As for attaching them after he falls asleep you probably should call the sleep lab and ask. :-) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 We only do an ECHO every-other year so none was needed this year. Last year he wouldn't cooperate for the BP or EKG and we literally laid on top of him to do the ECHO. >>>>>>>>>>>>>>>>. Hi Di, btdt...have you tried taking one of his favorite videos for him to watch during the echo. Also, a good idea is for them to get him in right away and not have to wait..that seems to make a hugh difference for , she's much more cooperative when she hasn't had to sit in the waiting room forever. :-/ I think most places now have the little tv's for the kids to watch don't they? And many carry a selection of videos for them to watch but I would think you could bring one that he picked out at home or maybe a new release that you buy on the way to have the echo done stressing that wow he can watch this while they take pictures of his chest or whatever.... :-) Don't ya just love having to come up with ideas on how to trick the kids into doing what you want???? ABout the leads, if you're close enough could you meet with the technician who would work with him a coupld of times to let him 'observe' and learn what they want and learn to trust the person working with him. Some techs are better working with troublesome kids then others to. As for attaching them after he falls asleep you probably should call the sleep lab and ask. :-) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Di, Nicky had 2 sleep studies and at both the leads were put on while he was awake. He absolutely hated every minute of it but we held him down and they got them on. I had to keep him from taking them off too but he fell asleep rather quickly. We only went in at 9pm so it was bedtime for him by then. He was only 3 y/o for the first one and 4 1/2 the second time. I never asked about waiting til he was asleep because the minute they touched him he would wake. After the T & A the second study showed a tremendous improvement and no indication of sleep apnea. However, after awhile I thought he seemed very restless again when he slept and he seemed not well rested. His snoring was better but still present. I asked if they could do an echo under sedation to make sure his pressures were normal under the deepest sleep. His cardiologist was in agreement and we completed the sedated echo. His pressures were normal. I have an appointment with the cardiologist on the 18th and I must tell him that NIcky is sleeping 1 hour a day in school. He wakes during the night and puts his TV and DVD palyer on and watches Spongebob. I get up at about 4 and hes wide awake playing. I dont know how long hes been up for but by 530-6 he is dead asleep and we need to get the bus at 8. I have been called to the school 3 times this year to pick him up since he falls asleep at about 9am and wont wake up for anything. Once i get him home hes a maniac and doesnt tire at all. I hope the cardiologist will have some insight. I have heard that some children get their days and nights mixed up but they grow out of it. I cant keep coming home from work to pick him up everytime he falls asleep. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Di, Nicky had 2 sleep studies and at both the leads were put on while he was awake. He absolutely hated every minute of it but we held him down and they got them on. I had to keep him from taking them off too but he fell asleep rather quickly. We only went in at 9pm so it was bedtime for him by then. He was only 3 y/o for the first one and 4 1/2 the second time. I never asked about waiting til he was asleep because the minute they touched him he would wake. After the T & A the second study showed a tremendous improvement and no indication of sleep apnea. However, after awhile I thought he seemed very restless again when he slept and he seemed not well rested. His snoring was better but still present. I asked if they could do an echo under sedation to make sure his pressures were normal under the deepest sleep. His cardiologist was in agreement and we completed the sedated echo. His pressures were normal. I have an appointment with the cardiologist on the 18th and I must tell him that NIcky is sleeping 1 hour a day in school. He wakes during the night and puts his TV and DVD palyer on and watches Spongebob. I get up at about 4 and hes wide awake playing. I dont know how long hes been up for but by 530-6 he is dead asleep and we need to get the bus at 8. I have been called to the school 3 times this year to pick him up since he falls asleep at about 9am and wont wake up for anything. Once i get him home hes a maniac and doesnt tire at all. I hope the cardiologist will have some insight. I have heard that some children get their days and nights mixed up but they grow out of it. I cant keep coming home from work to pick him up everytime he falls asleep. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Hi did great with both of his sleep studies and has done really well with the C Pap Machine. He has been on it since January and the sleep apnea has greatly improved. Dad to , Kristi, (all three Down syndrome) and (Cri du chat) Husband to C. in Mo. Uncle Daddy to and in Calif. (both Down syndrome) Re: sleep study > > Di, > > Nicky had 2 sleep studies and at both the leads were put on while he was > awake. > He absolutely hated every minute of it but we held him down and they got > them on. I had to keep him from taking them off too but he fell asleep rather > quickly. We only went in at 9pm so it was bedtime for him by then. He was only > 3 y/o for the first one and 4 1/2 the second time. > > I never asked about waiting til he was asleep because the minute they touched > him he would wake. After the T & A the second study showed a tremendous > improvement and no indication of sleep apnea. However, after awhile I thought he > seemed very restless again when he slept and he seemed not well rested. His > snoring was better but still present. I asked if they could do an echo under > sedation to make sure his pressures were normal under the deepest sleep. His > cardiologist was in agreement and we completed the sedated echo. His pressures > were normal. I have an appointment with the cardiologist on the 18th and I > must tell him that NIcky is sleeping 1 hour a day in school. He wakes during > the night and puts his TV and DVD palyer on and watches Spongebob. I get up at > about 4 and hes wide awake playing. I dont know how long hes been up for but > by 530-6 he is dead asleep and we need to get the bus at 8. I have been > called to the school 3 times this year to pick him up since he falls asleep at > about 9am and wont wake up for anything. > > Once i get him home hes a maniac and doesnt tire at all. I hope the > cardiologist will have some insight. I have heard that some children get their days > and nights mixed up but they grow out of it. > > I cant keep coming home from work to pick him up everytime he falls asleep. > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Hi did great with both of his sleep studies and has done really well with the C Pap Machine. He has been on it since January and the sleep apnea has greatly improved. Dad to , Kristi, (all three Down syndrome) and (Cri du chat) Husband to C. in Mo. Uncle Daddy to and in Calif. (both Down syndrome) Re: sleep study > > Di, > > Nicky had 2 sleep studies and at both the leads were put on while he was > awake. > He absolutely hated every minute of it but we held him down and they got > them on. I had to keep him from taking them off too but he fell asleep rather > quickly. We only went in at 9pm so it was bedtime for him by then. He was only > 3 y/o for the first one and 4 1/2 the second time. > > I never asked about waiting til he was asleep because the minute they touched > him he would wake. After the T & A the second study showed a tremendous > improvement and no indication of sleep apnea. However, after awhile I thought he > seemed very restless again when he slept and he seemed not well rested. His > snoring was better but still present. I asked if they could do an echo under > sedation to make sure his pressures were normal under the deepest sleep. His > cardiologist was in agreement and we completed the sedated echo. His pressures > were normal. I have an appointment with the cardiologist on the 18th and I > must tell him that NIcky is sleeping 1 hour a day in school. He wakes during > the night and puts his TV and DVD palyer on and watches Spongebob. I get up at > about 4 and hes wide awake playing. I dont know how long hes been up for but > by 530-6 he is dead asleep and we need to get the bus at 8. I have been > called to the school 3 times this year to pick him up since he falls asleep at > about 9am and wont wake up for anything. > > Once i get him home hes a maniac and doesnt tire at all. I hope the > cardiologist will have some insight. I have heard that some children get their days > and nights mixed up but they grow out of it. > > I cant keep coming home from work to pick him up everytime he falls asleep. > > Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Sleep Studies, Natascha has one or two a year for the last 8 or 9 years. She doesn't go sleep early, usually not before midnight and usually has problems falling asleep. She was diagnosed in addition to sleep apnea (is on bi-pap)with delayed sleep phase syndrome. Her body clock is set on a different time. Also continous sleep issue can have many reasons, if already on c-pap or bi-pap setting maybe it is time for another sleep study, also medications, anxiety, too much stimulation etc... the list is long. As for a sleep study, try to use/pick a pediatric lab. Natascha dumped a $500 equipment down the toilet the first time and it took actually a few times before we got a good study done. We have no problems with this now, Natascha actually looks forward to this event. So not sleeping well has many reasons. There is a good book out called " Sleep Better! " the author is V. Mark Durand. This books gives an overview of sleep, sleep problems, identifying sleep problems, strategies for change et ..... Hope this helps, Heike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Sleep Studies, Natascha has one or two a year for the last 8 or 9 years. She doesn't go sleep early, usually not before midnight and usually has problems falling asleep. She was diagnosed in addition to sleep apnea (is on bi-pap)with delayed sleep phase syndrome. Her body clock is set on a different time. Also continous sleep issue can have many reasons, if already on c-pap or bi-pap setting maybe it is time for another sleep study, also medications, anxiety, too much stimulation etc... the list is long. As for a sleep study, try to use/pick a pediatric lab. Natascha dumped a $500 equipment down the toilet the first time and it took actually a few times before we got a good study done. We have no problems with this now, Natascha actually looks forward to this event. So not sleeping well has many reasons. There is a good book out called " Sleep Better! " the author is V. Mark Durand. This books gives an overview of sleep, sleep problems, identifying sleep problems, strategies for change et ..... Hope this helps, Heike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hi Tommy had his tonsils and adenoids taken out when he was 8. He was snoring really bad and also did stop breathing. He was really having trouble sleeping. He is doing a lot better now. He still gets into that sitting up position at night but I just make him lay back down. I don't know how he can sleep like that and also some nights he gets up a lot. I will wake up at 3 or 4 in the morning sometimes and he will have his TV on. I will just tell him its still dark outside you need to go back to bed and it seems to work. K. Tommy 11 DS Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.