Re: GF diet

June 25, 2000

hey everyone, well bdalton didnt have the book i was looking for at the

store but they had it in stock and ordered it will get in 5-7 days, i am

eager to try this, my sister inlaw moody today, i mentioned trying it, all

she could say does it do anything for the ds? and the reminder that nathan

loves bread, practically his whole food group, they keep forgetting that he

is autistic too, or maybe they choose not to hard to say. but i figure, even

if it doesnt help with his behaviors, it will help control his wght, he is

not huge, but according to docs graphs he is a little overweight, he looks

soo slender, one would never guess. Does anyone have a good info site on gf,

ive found lots of sites with brief helps this.... and recipies but no real

info, im going to try the cileac tonight. shawna

>From: okieleah@...

>Reply-egroups

>egroups

>Subject: Re: Visitors/growing older

>Date: Sun, 25 Jun 2000 13:49:42 EDT

>

>nancy, i dont mean to be nosey, but hold old is garry and his lovely

>brother(not)........... the gf diet made jj lose how much weight, how

>fast??????????are you going to put the whole family on the fg

>diet................leah

>

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November 27, 2001

In a message dated 11/27/01 12:18:08 PM Eastern Standard Time,

hsmyangels@... writes:

> Just got a call from the doctor that his test came back positive. He was a

> strong positive on the Iga and a weak positive on the Igg. Now we wait for

> the consult from the Pediatric GI (and they are trying to get the same one

> that saw ).

Gosh, sorry Loriann. Well, glad that you know what to do about it, but

sorry that it's just one more thing to deal with! I hope that it makes a

difference in 's behaviors soon. Are they going to do an endoscopy on

?

Donna

November 27, 2001

I'll add both you and your husband need to get tested for CD. With both

boys having it one of you or both have it in your genes.

& Garry, parents of (11 ds), (10 ds), JJ (8

ds/autism/celiac), (7 ds/ADHD/Celiac), and Esther (4 ds). All adopted.

----------

>From: duffey48@...

>

>Subject: Re: GF diet

>Date: Tue, Nov 27, 2001, 10:34 AM

>

>In a message dated 11/27/01 12:18:08 PM Eastern Standard Time,

>hsmyangels@... writes:

>

>> Just got a call from the doctor that his test came back positive. He was a

>> strong positive on the Iga and a weak positive on the Igg. Now we wait for

>> the consult from the Pediatric GI (and they are trying to get the same one

>> that saw ).

>

>Gosh, sorry Loriann. Well, glad that you know what to do about it, but

>sorry that it's just one more thing to deal with! I hope that it makes a

>difference in 's behaviors soon. Are they going to do an endoscopy on

>?

>Donna

>

November 27, 2001

True, either you or your husband has the gene.

--- Scherbert <Scherb@...> wrote:

> I'll add both you and your husband need to get

> tested for CD. With both

> boys having it one of you or both have it in your

> genes.

>

> & Garry, parents of (11 ds), (10

> ds), JJ (8

> ds/autism/celiac), (7 ds/ADHD/Celiac), and

> Esther (4 ds). All adopted.

=====

__________________________________________________

November 27, 2001

Well, they put in a consult with a Ped GI, the same one who did 's

endoscopy. I don't know if he'll look at the results and say, Yep, he's

celiac, or he'll want to do the 'scope. Either way, I just pray it comes

quickly. One of the signs is lose of muscle, and he's skinny enough now, he

doesn't need to lose any more muscle. He's only 29 pounds at almost 2 and a

half (of course, his brother was 4 when he weighed 28 pounds - I remember

because that's when they did the heart surgery and he had gained 4 pounds of

fluid around his heart). I have the feeling though, that he'll want to do

the 'scope. He's a real nice doctor, though. From Australia, love the

accent. So it's a waiting game until the consult goes through Tricare, then

they send an authorization number, and then they call the hospital and

request, and the hospital calls for an appointment. At least it's something

I've been through. They hard part is knowing he is, and not being able to

put him on the diet. I have started with getting him used to the different

taste of the bread....

Well, it's off to the shower.....

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

November 23, 2010

Just wanted to mention that they can do a blood test to check for gluten

intolerance. A co-worker of mine just had her son tested as the school

suggested a gf diet and he has all the tummy issues. Came back negative which

saved a lot of effort and money trying the gf diet! Maybe this is common

knowledge, but I had no clue.

>

> If u have dealt with this diet before or are now, can u please give me some

advice and insight on it? I am wanting to start it with my son. He keeps

getting hive like spots on his body and we have been to the doc more than once.

We believe its something he is eating that is causing them to keep coming back.

Don't hurt, just look like an allergic rash of some sort.

> I could use any advice or insights on the diet u have. Thanks so much!

>

> Autism Spectrum Hope~Owner

> www.autismspectrumhope.com

>

> Autism Society of Greater Austin~Secretary

> www.autism-society.org/chapter244

>

November 23, 2010

I had my son on it for about 6 weeks and had to take him off. He is very picky about food and wouldn't eat a lot of the gluten free stuff as well as being very unhappy with giving up his favorites. He ended up losing too much weight (he is already tiny). The blood test isn't always very accurate, but if you decide to do it, have him be full of gluten before hand so that you don't end up with a false negative. The better way to test for gluten intolerance is via an endoscopy. My son came back negative that way and the GI still said that it's now 95% certain he doesn't have an intolerance because there is always a chance that the part they biopsied just wan't affected. We have kept him on gluten due to the weight issues, but many people I have talked to have had good luck with it, both for GI issues as well as for

relieving concentration issues in their children with AS.

Good luck!Debbie

From: cmt263 <gina9431@...>Subject: ( ) Re: GF diet Date: Tuesday, November 23, 2010, 2:50 PM

Just wanted to mention that they can do a blood test to check for gluten intolerance. A co-worker of mine just had her son tested as the school suggested a gf diet and he has all the tummy issues. Came back negative which saved a lot of effort and money trying the gf diet! Maybe this is common knowledge, but I had no clue.>> If u have dealt with this diet before or are now, can u please give me some advice and insight on it? I am wanting to start it with my son. He keeps getting hive like spots on his body and we have been to the doc more than once. We believe its something he is eating that is causing them to keep coming back. Don't hurt, just look like an

allergic rash of some sort. > I could use any advice or insights on the diet u have. Thanks so much!> > > Autism Spectrum Hope~Owner> www.autismspectrumhope.com> > Autism Society of Greater Austin~Secretary> www.autism-society.org/chapter244> > > > > >

November 24, 2010

My son is currently gfcf, and does pretty well on it. The key is finding

substitutions for the fav foods - I make my own chicken nuggets with GF flour,

pizza crust, waffles,and all baked goods. Jules flour substitutes well in most

recipes, except breads. Those are still very tricky, and that's the one thing he

misses. It's not easy, but is beneficial for some. I don't know if he has an

'allergy', but I do think he has an intolerance - I can tell a difference in his

behavior when he has had gluten. Also, don't go cold turkey! Gradually take the

gluten out of his diet - less reaction this way. Good luck!

-

>

> If u have dealt with this diet before or are now, can u please give me some

advice and insight on it? I am wanting to start it with my son. He keeps

getting hive like spots on his body and we have been to the doc more than once.

We believe its something he is eating that is causing them to keep coming back.

Don't hurt, just look like an allergic rash of some sort.

> I could use any advice or insights on the diet u have. Thanks so much!

>

> Autism Spectrum Hope~Owner

> www.autismspectrumhope.com

>

> Autism Society of Greater Austin~Secretary

> www.autism-society.org/chapter244

>

November 24, 2010

Hello Debbie,

There is an itchy rash that sometimes occurs with gluten intolerance if the GF

diet is not observed. I have never had it myself but I understand it looks more

like small, itcy clear bumps than hives. It's called dermatitis herpetiformis.

You might want to google it and check it out.

in Colorado

>

> If u have dealt with this diet before or are now, can u please give me some

advice and insight on it? I am wanting to start it with my son. He keeps

getting hive like spots on his body and we have been to the doc more than once.

We believe its something he is eating that is causing them to keep coming back.

Don't hurt, just look like an allergic rash of some sort.

> I could use any advice or insights on the diet u have. Thanks so much!

>

> Autism Spectrum Hope~Owner

> www.autismspectrumhope.com

>

> Autism Society of Greater Austin~Secretary

> www.autism-society.org/chapter244

>

November 24, 2010

My daughter has been GFCF since she was two and it has eliminated

her skin rashes and reduced her hyperactivity. Someone can have

celiac's disease (diagnosed via blood testing and biopsy via

endoscopy) but most of the human population is gluten 'sensitive'

and gluten is really rough on the body. If the child is already

dealing with a lot, it can help ease the burden. Have you had GOOD

allergy testing done? There are a lot of great things out there that

are gluten free that taste great. Bread tho needs to be made... by

hand or in a breadmaker (love mine!). There is tons of info online

and books for it.

Jen

On 11/23/2010 9:59 AM, Debbie wrote:

If u have dealt with this diet before or are

now, can u please give me some advice and

insight on it? I am wanting to start it with my

son. He keeps getting hive like spots on his

body and we have been to the doc more than

once. We believe its something he is eating

that is causing them to keep coming back. Don't

hurt, just look like an allergic rash of some

sort.

I could use any advice or insights on the

diet u have. Thanks so much!

Autism Spectrum Hope~Owner

www.autismspectrumhope.com

Autism Society of

Greater Austin~Secretary

www.autism-society.org/chapter244

November 27, 2010

My daughter-in-law has celiac's and she also doesn't allow her children to have gluten, so we had a gluten free Thanksgiving this year since they came to visit. It is possible. I used the bought gluten free bread to make dressing. You just have to read labels carefully .. food starch is gluten. corn starch and rice starch is ok. Most grocery stores have gluten free products either in a section by themselves or mixed in with the regular stuff. Also in the frozen food section as I found out today with the bagels and pizza dough..From: <jenuhferr@...> Sent: Wed, November 24, 2010 5:03:43 PMSubject: Re: ( ) GF diet