Re: At what age did you tell your child about diagnosis? AND

[Guest guest]

Our son was dx when he was 5, and we just told him a few months ago at age 8.

He seemed happy to put a name to it and understand why he had all these little

quirks, why some things were difficult for him. I " m glad we did, wish we did it

a bit earlier.

Laurel

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> From: jdarawi <jenniferdarawi@...>

> Subject: ( ) At what age did you tell your child about

diagnosis? AND Behavior advice please

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> Date: Wednesday, May 26, 2010, 10:21 PM

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> Hello,

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> I haven't posted or read lately, I'm sorry to say. Our third child was born 15

months ago with Goldenhar Syndrome, including many different health problems, so

that has taken a lot of our time.

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> My first question:

> At what age did you tell your child about Asperger Syndrome?

>

> I wondered if telling her about her diagnosis might help with dealing with her

behavior through self-awareness.

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> Our daughter is 6.5. We haven't done any therapy or anything specific to help

her with AS since our son was born. We finished off a behavior plan we had

started around that time, and it has helped to reduce her tantrums.

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> However, she struggles (and we parents struggle) with a lot of other behavior

challenges, some days more than others. Six months ago her pediatrician gave me

a name of a developmental behavioral pediatric specialist, but I haven't

contacted her yet, due to our busy family life. Do you think this is a good next

step?

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> We homeschool her, and she has many good qualities, and we enjoy her, but

there are also many challenges. These include: screaming, anxiety, impulsivity,

distractibility, being silly and wild etc.

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> She was in OT a couple of years ago, but we haven't returned to that lately.

She no longer follows a sensory diet, but we do know a lot of those choices, and

encourage her to be active throughout the day (outdoor activity, swinging,

mini-trampoline etc.)

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> What would you do next?

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> Thanks,

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