Re: [GFCFKids] Re: thinking of stopping mb12 and folinic acid

[Guest guest]

For my son folinic acid caused aggression like you are talking about.

It was right away, not after awhile of using it. Our DAN at the time -

Neubrander - said that about 30 percent of his patients had issues

like this. We moved to folic acid with no issues. Good luck!

Amy

On 2/21/10, Yarkoni <tanya.yarkoni@...> wrote:

> Thank you Sara. This is all so inspirational. I am still deep in the hole

> searching for some light.

>

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>

>

>

> From: sebrown1126a <sarabrown@...>

> Subject: Re: thinking of stopping mb12 and folinic acid

>

> Date: Sunday, February 21, 2010, 2:47 PM

>

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> Personally, I think this is where a good partnership with DAN and patient is

> essential. Your DAN should listen to you, look at your child, and make

> changes accordingly.

>

> Are you still seeing any benefits from the MB12? Our challenge was that we

> did not see any benefits, only aggression. We stopped it (with our DAN's

> blessing) and tried to tackle methylation another way. We gave it a go for

> almost four months.

>

> For us, working on the sulfation pathway led to recovery (amongst a lot of

> other things!) My son responded to salt baths, magnesium sulfate cream, and

> other things along that pathway.

>

> For DAN to be effective, I think it needs to be highly individualized. I

> also think people have to go fairly slow and give things a try, and also

> realize the synergistic effect of some supplements.

>

> Recently, we did a NutraEval from Genova. That test was soooooo fascinating.

> More than any of the others, it gave us a good indication of what

> minerals/supps he really needed, so we could tailor the program to his

> actual need. That being said, we are two years into biomed and our son is

> considered recovered. This test helped us to some final-type tweaking.

>

> Could your son's gut be getting unhealthy? Aggression for us signaled either

> yeast or bacteria (my son doesn't always fit the mold symptom wise).

> Usually, aggression and bacteria go together, and silliness and yeast go

> together.

>

> If I could offer one other suggestion.. .don't by swayed by what other

> people think/say. If I had a penny for every ridiculous comment or unhelpful

> criticism, I'd be a rich, rich girl....with a very sick little boy. Instead,

> I am an arrogant woman who wouldn't listen to unhelpful or mean comments,

> and now have a healed little boy who will live a full life without AUTISM!!!

>

> All the nay-sayers are big believers in biomed now!

>

> Sara

>

>

>>

>> My son has been on mb12 and folinic acid along with other supplements for

>> over a year, noticed change for better at first, but over the last 6

>> months or so gotten VERY aggressive especially last 2 months.  Thinking

>> about stopping for a while but not sure if I should, DAN says no but I

>> don't see changes for better recently and can't keep putting out money for

>> things not sure are working.  Although this week my sis in law hit me with

>> her observation that he has not had any changes that she sees (mind you

>> she sees him once or twice a year) my did notice his temper this week and

>> thinks that I should just keep medicating him with risperdal and not do

>> any supp or diet because no benefits and just wasting money, says just

>> spinning my wheels.  boy did that make me feel miserable

>>

>> barbara

>>

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