Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 I work..for now Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Leona Singleton <lona@...> wrote: > > From: Leona Singleton <lona@...> > > Question: HOW MANY OF OUR GROUP WORK? > > > >Sue AIH > >Wisconsin > hya sue... i work about 60 hrs a week 6 days 3 jobs > keeps my mind off things and i am saving for house, family etc... > i dont know how i manage i guess it is a denial thing but the more i work the > less i have to think about my health and the healthier i believe i am as i can > work that long > > i do get tired a lot but i can handle it.. > i had bad pain yesterday though so i got my bloodwork done.. i got the > results back today i am over 100 again so looks like i will have to go back on > pred.. i think ill leave it for another month though because i want to see if they > come down by themselves as i really dont want to go on pred for no reason at > all > > can someone please add Dr Geoffery , Gastroenterologist. > St Of God Hospital, Subiaco, Western Australia, Australia. > to the list for me as i cant really contribute to the list.. as all i have experienced > has alwready been noted > > anyways all be good > Regards > Leona Singleton AIH Australia > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 I work..for now Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Leona Singleton <lona@...> wrote: > > From: Leona Singleton <lona@...> > > Question: HOW MANY OF OUR GROUP WORK? > > > >Sue AIH > >Wisconsin > hya sue... i work about 60 hrs a week 6 days 3 jobs > keeps my mind off things and i am saving for house, family etc... > i dont know how i manage i guess it is a denial thing but the more i work the > less i have to think about my health and the healthier i believe i am as i can > work that long > > i do get tired a lot but i can handle it.. > i had bad pain yesterday though so i got my bloodwork done.. i got the > results back today i am over 100 again so looks like i will have to go back on > pred.. i think ill leave it for another month though because i want to see if they > come down by themselves as i really dont want to go on pred for no reason at > all > > can someone please add Dr Geoffery , Gastroenterologist. > St Of God Hospital, Subiaco, Western Australia, Australia. > to the list for me as i cant really contribute to the list.. as all i have experienced > has alwready been noted > > anyways all be good > Regards > Leona Singleton AIH Australia > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Hi, I don't work. I worked for about 10 years and was sick all the time. Elevated LFT's and every virus around. I stopped working in 1994. I went back to work part time in 1995 and promptly had a relapse. I stopped working (again) in 1997 prior to the birth of my daughter who is now 18 months. I don't plan on going back to work. I have had it with the no quality of life bit - being sick all the time just to have a little extra money. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 I do not work....... Dixie Leona Singleton wrote: > From: Leona Singleton <lona@...> > > Question: HOW MANY OF OUR GROUP WORK? > > > >Sue AIH > >Wisconsin > hya sue... i work about 60 hrs a week 6 days 3 jobs > keeps my mind off things and i am saving for house, family etc... > i dont know how i manage i guess it is a denial thing but the more i work the > less i have to think about my health and the healthier i believe i am as i can > work that long > > i do get tired a lot but i can handle it.. > i had bad pain yesterday though so i got my bloodwork done.. i got the > results back today i am over 100 again so looks like i will have to go back on > pred.. i think ill leave it for another month though because i want to see if they > come down by themselves as i really dont want to go on pred for no reason at > all > > can someone please add Dr Geoffery , Gastroenterologist. > St Of God Hospital, Subiaco, Western Australia, Australia. > to the list for me as i cant really contribute to the list.. as all i have experienced > has alwready been noted > > anyways all be good > Regards > Leona Singleton AIH Australia > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Sue, I work, but from home. We have our own business so I am lucky that I can do all that needs to be done from home. Although I was working full time outside when I took sick the first time. I would dearly love to do that again, but know in my heart that will never be. SueB. ---------- > From: Leona Singleton <lona@...> > onelist > Subject: [ ] everyone > Date: Thursday, 15 July 1999 20:50 > > From: Leona Singleton <lona@...> > > Question: HOW MANY OF OUR GROUP WORK? > > > >Sue AIH > >Wisconsin > hya sue... i work about 60 hrs a week 6 days 3 jobs > keeps my mind off things and i am saving for house, family etc... > i dont know how i manage i guess it is a denial thing but the more i work the > less i have to think about my health and the healthier i believe i am as i can > work that long > > i do get tired a lot but i can handle it.. > i had bad pain yesterday though so i got my bloodwork done.. i got the > results back today i am over 100 again so looks like i will have to go back on > pred.. i think ill leave it for another month though because i want to see if they > come down by themselves as i really dont want to go on pred for no reason at > all > > can someone please add Dr Geoffery , Gastroenterologist. > St Of God Hospital, Subiaco, Western Australia, Australia. > to the list for me as i cant really contribute to the list.. as all i have experienced > has alwready been noted > > anyways all be good > Regards > Leona Singleton AIH Australia > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 1999 Report Share Posted July 17, 1999 No I do not work ............. out in public works any more because of all of these side effects and symptoms.... Love and Light Dixie meles@... wrote: > From: meles@... > > I do not work....... Dixie > > Leona Singleton wrote: > > > From: Leona Singleton <lona@...> > > > > Question: HOW MANY OF OUR GROUP WORK? > > > > > >Sue AIH > > >Wisconsin > > hya sue... i work about 60 hrs a week 6 days 3 jobs > > keeps my mind off things and i am saving for house, family etc... > > i dont know how i manage i guess it is a denial thing but the more i work the > > less i have to think about my health and the healthier i believe i am as i can > > work that long > > > > i do get tired a lot but i can handle it.. > > i had bad pain yesterday though so i got my bloodwork done.. i got the > > results back today i am over 100 again so looks like i will have to go back on > > pred.. i think ill leave it for another month though because i want to see if they > > come down by themselves as i really dont want to go on pred for no reason at > > all > > > > can someone please add Dr Geoffery , Gastroenterologist. > > St Of God Hospital, Subiaco, Western Australia, Australia. > > to the list for me as i cant really contribute to the list.. as all i have experienced > > has alwready been noted > > > > anyways all be good > > Regards > > Leona Singleton AIH Australia > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 hi my name is peggy and im new im am scheduled for a liver bx soon and im a nervous wreck . i always seem to have complications for the simplest procedures. my liver functions have been abnormal for some time now with unexplained rashes and lots of lethargy the doctors suspect autoimune hepititis should i be nervous about the bx ? alsodoes anyone take milk thistle with other meds ? i hope someone answers my mail thank you god bless peggy my email is detoxpj@... bye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Dear Peggy: Welcome to the group! I can sure understand your being nervous about your biopsy. If you are really concerned about complications, ask your doctor if you can stay over-night at the hospital after the procedure. They have to keep you there a certain amount of time after anyway. My doctor approved an overnight stay for me the last time that I was scheduled for a biopsy. I felt better about it because that way if any complications arose afterward, I'd be right there. Either that, or make sure that someone is home with you that day and the next. It should go just fine! It will help with your diagnosis, too. Good luck! Let us know how it goes! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Dear Peggy: Welcome to the group! I can sure understand your being nervous about your biopsy. If you are really concerned about complications, ask your doctor if you can stay over-night at the hospital after the procedure. They have to keep you there a certain amount of time after anyway. My doctor approved an overnight stay for me the last time that I was scheduled for a biopsy. I felt better about it because that way if any complications arose afterward, I'd be right there. Either that, or make sure that someone is home with you that day and the next. It should go just fine! It will help with your diagnosis, too. Good luck! Let us know how it goes! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Peggy, I had a liver biopsy in July when I was first diagnosed with AIH. I had a lot of anxiety about having it, but it really was not that bad. They did a sonogram first and marked with ink where to insert the needle. Then they deadened the area where the needle would go which is the worst part. Then it was all done in a matter of 20 seconds. I stayed in the hospital for a couple of hours and then they let me go home. I was a little sore, but not bad. I won't be near as nervous next time. Hope this helps. Audra, AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Peggy, I had a liver biopsy in July when I was first diagnosed with AIH. I had a lot of anxiety about having it, but it really was not that bad. They did a sonogram first and marked with ink where to insert the needle. Then they deadened the area where the needle would go which is the worst part. Then it was all done in a matter of 20 seconds. I stayed in the hospital for a couple of hours and then they let me go home. I was a little sore, but not bad. I won't be near as nervous next time. Hope this helps. Audra, AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 I also had two bx's. The first one in Duluth and one at the Mayo. I will have one again at the Mayo in the spring. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Hi Peggy, I've had 2 bx's. I was very anxious for the first. I expected pain and kept waiting for it. I heard a loud snap and waited for the pain. It never came. The " hole " was so tiny, it was close with a bandaid! After about 4 hours, to make sure there was no internal bleeding, I was released. I was pretty tired afterward and was glad I didn't go back to work. The 2nd bx was so quick, I was in and out in less than 2 hours. Complications can occur, but they are very rare. Don AIH Minneapolis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Hi Peggy, I am the same way. I had a liver transplant this past June everything that could go wrong did. Take things as they come, try not to fear the unknown.And stay strong you found a good group. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Peggy, I had a transplant on 3~11~97 due to AIH and I have had 5 liver biopsies, and each one of them I ahve had no problems with. I do remember the very first one though. I never had one before transplant. My first one was 6 days out from transplant and I was still in the hospital, I was so nervous I could barely eat or take my meds the night before. But then when I had the biopsy done, I thought to myself, " You got yourself all worked up for nothing " . Many of the other tests I had done were much worse. So relax, and don't worry!! Take Care! Lori C. AIH transplanted 3~11~97 Re: [ ] Everyone >From: DETOXPJ@... > >hi my name is peggy and im new im am scheduled for a liver bx soon and im a >nervous wreck . i always seem to have complications for the simplest >procedures. my liver functions have been abnormal for some time now with >unexplained rashes and lots of lethargy the doctors suspect autoimune >hepititis should i be nervous about the bx ? alsodoes anyone take milk >thistle with other meds ? i hope someone answers my mail thank you god >bless peggy my email is detoxpj@... bye > >>Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Peggy, I had a transplant on 3~11~97 due to AIH and I have had 5 liver biopsies, and each one of them I ahve had no problems with. I do remember the very first one though. I never had one before transplant. My first one was 6 days out from transplant and I was still in the hospital, I was so nervous I could barely eat or take my meds the night before. But then when I had the biopsy done, I thought to myself, " You got yourself all worked up for nothing " . Many of the other tests I had done were much worse. So relax, and don't worry!! Take Care! Lori C. AIH transplanted 3~11~97 Re: [ ] Everyone >From: DETOXPJ@... > >hi my name is peggy and im new im am scheduled for a liver bx soon and im a >nervous wreck . i always seem to have complications for the simplest >procedures. my liver functions have been abnormal for some time now with >unexplained rashes and lots of lethargy the doctors suspect autoimune >hepititis should i be nervous about the bx ? alsodoes anyone take milk >thistle with other meds ? i hope someone answers my mail thank you god >bless peggy my email is detoxpj@... bye > >>Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 Peggy, I've only had one liver biopsy (and no transplant, of course). I was already fairly well sedated from another procedure, but they wanted me awake for the biopsy. They said that I'd feel a " little " pressure and they were right. I don't remember pain at all and in fact made jokes to the doctors while it was being done. Of course, I was a little foggy brained in general at the time and I probably would have joked if they were amputating one of my legs. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 Peggy Do not worry about liver biopsy is simple and not painful. I had mine as an out patient after I WAS DONE MY HUSBAND CAME AND PICKED ME UP, i made him stop at the bakery shop so I could go in and get some goddies. Try not to worry. Pa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 Dear Peggy, I had two liver biopsys in September. The first was done with CAT Scan and the second was done with ultra sound. Both times they gave me an injection of Versaid (sp)? (it is similar to Valium) It makes you a heck of a lot more relaxed. They numbed the spot topically, then a little deeper, then a lot deeper. I can honestly say that it hurt less than numbing at the dentist. Then they positioned an instrument that was like a spring loaded gun that very precisly when in & came out so fast I could hardly believe it. I would call the sensation more like pressure than pain. The anticipation is the worst part. After it is over I honestly said " piece of cake " . I wish I could be there to hold your hand. Let me know how it goes. Get the drowsie drugs if you are a chicken like me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 hi lori thanks for the answer. ive had so many bad experiences in the hospital before for just simple tests. there are always complications it seems but thanks for your encourgement. i guess what else im scared of is the thought of taking predisone and other meds, they seem to cause a lot of problems too. im in denial big time , thinking everythig will be o k if i just loose weight or something.like that will make everything fine. can you tell me how things happened with you to let you think something was wrong with your liver? my functions have been elevated and my a n a for quite a while, they misdiagnosed me with lupus for the past 9 years so im quite frustrated as you canimagine.... well thanks again hope to hear from you soon peggy detoxpj@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 hi gayle thanks for your words of support and kindness. is it true that everone with aih has a transplant? peggy detoxpj@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 geri thanks for the support about bx did they find out you had aih? and can you please your symptoms with me thans a lot peggy detoxpj@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 hi marlene ill try not to worry and the bakery stop sounds real good to me just what i need for my liver more fat ha ha ha peggy take care detoxpj@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 Peggy, I'm glad you've found this group, they will all help to calm your fears as much as is possible with these diseases! I too am very afraid of going on the meds, but I want to live, so there is no choice. I take heart in the fact that some people have done rather well on them, and that the doctors don't keep us on a high dosage for long. It's a necessary evil, but its got to be better than this constant joint pain, fatigue and weakness. Don't anyone correct me if I'm wrong, I gotta have hope!!! LOL! I think my fears calmed down considerably when I accepted the fact that I was sick, and nothing I could do would change that. Hang in there... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 1999 Report Share Posted November 7, 1999 this has got to be a gift from God that you answered my letter jenny my name is peggy jones ,coincidence or what now tell me the truth is it like being shot ive heard horror stories.... please write back thanks peggy later detoxpj@... Quote Link to comment Share on other sites More sharing options...
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