Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hi ali I am alison too and also new to the group ( or returning ) just wanted to say welcome and that I also take lex for anxiety. i am posting under oopsy.daisy how did you determine that your feelings were anxiety and not caused by your other heath issues? i ask cause I myself have other health issues and it is very hard to tell what is what anymore > > Hi Everyone, > > I just found this group and wanted to introduce myself. I am Ali, 31, > married, with 2 kids. I live near Chicago, IL. I have been taking > Lexapro since Feb or March of this year, 2005. It has helped with my > anxiety a lot! I also have Mitral Valve Prolapse and Supraventricular > Tachycardia. Controlling my anxiety has helped with the symptoms of > those as well. I am looking forward to reading some of your stories! > > Take care, > > Ali > www.youravon.com/alisonlindsey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 > Hi, My name is Myssi and I am new to the group. Welcome, Myssi! I joined a few weeks > ago but with the holidays and school science fair I have not been able > to post or read any messages. Well, the kids are back to school now, so when you have a chance, be sure to stop by the Files and Links pages for all sorts of goodies that may help you on your way to health and happiness. > >Hoping to lose some weight this coming year. Do you have a specific food plan to follow? Many people visit their doctor for an official okie-dokie to start on a weight loss and exercise program, others just pick a plan and get started on it, even if their " plan " is to eat less junk, nothing formal. One good way to start is to keep a food and exericse journal for a week or 2 to see where your problem spots are. Be sure to mark down not only when and what you eat, but how you felt before you ate it - hungry or just bored or angry? - and how you felt afterwards - hunger satisfied, or still angry or bored and looking for more food? AS for exercise, start with baby steps if you're not already doing any. If your feet allow, just go for a walk. Start out with 5 minutes or so away form home, 5 minutes back. Each week add another 5 minutes each direction. Start doing this 3 to 5 days a week and build up. Get some toning with light weights in maybe twice a week, too. You can use something as small as 1-pound bags of beans or go whole hog and buy yourself a set of hand weights in Wal-Mart of a thrift shop. Your library might have some books on simple routines to start with (Look for Cruise's book for Real Shapes, or whatever it's called) or one from Miriam 's " Strong Women . . . " series, or just grab a video, like one of ' toning ones. Baby steps. > (ok a lot of weight ) Aim or a pound or 2 a week, no more. If it comes off fast, there's a good chance it'll just come right back on just as fast. You're going to make new habits that will last a lifetime, not a quick fix. Some weeks you'll lose more, especially in the beginning, some weeks you might gain - it's the body's normal fluctuations, so don't panic if the week before your " monthly " you gain a few pounds. Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Welcome hope you love your stay these is such a sweet group I'm sure you will Kate Hi, New to the group Hi, My name is Myssi and I am new to the group. I joined a few weeks ago but with the holidays and school science fair I have not been able to post or read any messages.I am a SAHM, and have 2 kids 13 and 5. Hoping to lose some weight this coming year. (ok a lot of weight ) I hope to be a regular member here and get to know others.thanks for allowing me to join.Myssi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Welcome Myssi, Hopefully things have slowed down enough that you can now focus on getting healthy! What goals do you have? What plan are you using? It's a great group with lots of support - Welcome again --- Myssi <justmyssi@...> wrote: I joined a few weeks ago but with the holidays and school science > fair I have not been able to post or read any messages. Live, Love, Laugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi Myssi, my name is . I am new here too. I don't know if I have introduced myself to anyone yet. I was dx'd with type 2 diabetes in September. I was told in order to help get my blood sugar under control I needed to lose weight. Also I was sent to a diabetic clinic where they taught me how I was supposed to eat for my program. In Sept I weighed in at 340. Today I weigh in around 315. I have so much weight to lose. But I can do it and so can you. We can do this together. Just really wanted to say hi to you. Hi, New to the group Hi, My name is Myssi and I am new to the group. I joined a few weeks ago but with the holidays and school science fair I have not been able to post or read any messages.I am a SAHM, and have 2 kids 13 and 5. Hoping to lose some weight this coming year. (ok a lot of weight ) I hope to be a regular member here and get to know others.thanks for allowing me to join.Myssi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Sue, Thanks for your email and welcome. i will check out the links page tongiht. I do not have a specific plan, however I have an idea of what I need/want to do. My biggest issue is I am not a good cook (downright bad and lazy with it) so fast food is a big thing in my house. Also I dont eat most foods I like maybe 2 veggies, and only a hand full of fruits, I am a meat and pasta person and so most "diet" "healthy" foods are out for me. So my plan is to NOT eat fast food (this is really gonna be hard) and to try and drink water (I REALLY hate water) and I am watching my portion sizes. So that is really where I wanna start. Then as I get used to doing those few things I will work in adding more things and hopefully go from there. I have lost weight before but always go right back to the fast food and "quick fix" foods, so if I can change that it will be a big help. I have done the diet pills (they dont work for me) I have been on a few other diets and well just never really stick with them. But I am getting older and having lots of back pain some will never fix because of my disease (fibromyalgia and arthritis) but I am really hoping to get some of the pain under control. So that is about where I stand, Thank you again for the warm welcome. I think hvaing a nice group to talk with and be supportive will be a big help! Myssi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Thank you Kate for the warm welcome! Myssi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi , thanks for the welcome. I dont have a specific plan yet but some ideas to try and change a few of my habits. I am trying to add sugar twin in my coffee instead of sugar, and little things like that to start slow. My goal weight would be 191, and I am at 282 now. So I have a ways to go! I would like to start exercising regularly, but again baby steps lol. I think I have found a wonderful group here and think that this will be a nice support system. Myssi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi , Thank you for the sweet email. I too have a lot to lose. I am not a diabetic but I have acanthosis Nigracansis (bad spelling I never can spell it right) and my body produces too much insulin, it comes out in the form of skin discoloration on my neck and eventually my pancreas will stop producing it so much and I will then become a diabetic. The DR has wanted to put me on medicine to try and regulate it but we have talked about the pros and cons of me going on it for the rest of my life and how bad I am about taking medicine. (I always forget) so I am not on it yet. I dont have any "huge" medical problems like thyroid or anythig like that and shockingly enough at my huge weight I have regular to low blood pressure. So I have opted not to take the pill yet and am hoping that if I lose some weight it will also help in controling this discoloration too. I will be glad talk with you anytime and you can email me anytime too. Myssi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Myssi, That fast food one is a big problem in my house too - but I am a pretty fair cook - I just don't want to eat at 10pm! Today I made a pot of pepper steak that is waiting for me to freeze in portion sizes. I made a pot roast - the left overs will go into maybe a soup or stew - also a double or so pot so that it can be froze too. I do much better when I am prepared! I too am a meat and potato kind of gal <GBG> but people are so surprised when I make a soup, stew or chili etc - a little meat (less than a pound but enough for flavor) and lots of veggies. Water will become your friend and boy won't you be surprised when it does LOL. Baby steps are a good way to start. Good Luck --- Myssi <justmyssi@...> wrote: Also I dont eat most foods I like maybe 2 veggies, and only a > hand full of fruits, I am a meat and pasta person and so most " diet " " healthy " foods are out for me. So my plan is to NOT eat fast food (this is really gonna be hard) and to try and drink water (I REALLY hate water) and I am watching my portion sizes. So that is really where I wanna start. But I am getting older and having lots of back pain some will never fix because of my disease (fibromyalgia and arthritis) but I am really hoping to get some of the pain under control. So that is about where I stand, Thank you again for the warm welcome. I think hvaing a nice group to talk with and be supportive will be a big help. Live, Love, Laugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 one more reason to get healthy --- Myssi <justmyssi@...> wrote: >eventually my pancreas will stop producing it so much and I > will then become a diabetic. The DR has wanted to put me on medicine to try and regulate it but we have talked about the pros and cons of me going on it for the rest of my life and how bad I am about taking medicine. (I always forget) so I am not on it yet. I dont have any " huge " medical problems like thyroid or anythig like that Live, Love, Laugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Thanks , I just wish there were more foods I could/would eat. It really makes it hard as the weeks go by eating the same few things over and over. There are SOOO many foods I wont eat and so that is a big burden. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Myssi.. I love the counter at the bottom of your letter..going to make me one! And hay not one in this group doesn't have a slip up or a bad day... I sure do and I just pick myself up by my boot straps and get up and move on... that is the important thing. Now chin up and today is a brand new day... lets start again K? Your New Friend Kate Re: Hi, New to the group Thanks , I just wish there were more foods I could/would eat. It really makes it hard as the weeks go by eating the same few things over and over. There are SOOO many foods I wont eat and so that is a big burden. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Thanks Kate, I actually found that weight loss counter from a link in one of the link or database sections. I was really happy with it too. Thank you so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Kymberlie, I was in the same boat as you. My daughter is now 18 and it was terrible that I couldn't do groups, church etc. I must say that our church has a strict no sick rule in the nursery and the toddler section and I found she got more sick coming to church with me. We went ahead and put her in the nursery with a cloth mask on. We decorated it to make it cute and she didn't seem to mind it. The great thing was other parents got the idea how sick our daughter was and they were way more cautious about bringing there kid even if they were a little sick. You know it is amazing that if people can see what is wrong like a wheel chair or crutches they seem to help out and understand. The hard part with our little guys is their disability can't be seen. I was a wreck thought my daughter would never go to school, etc.. I want you to know even though school has many battles in its self once she started the IVIG treatments and a year went by we had a new child in our household. Hear me well, we still have our ups and downs but you can get through it! The next year will be tough, do what you can to avoid infections it will pay off in the long run.! Best of luck, my prayers will be with you Lorri From: [mailto: ] On Behalf Of kymberlietyson Sent: Sunday, October 12, 2008 8:05 AM Subject: Hi, new to the group Hi, my name is kymberlie. I have a 1 year old daughter named Cambrie. Needless to say after a long first year of failure to thrive, recurrent infections such as ears, staph, nisseria, hemophillus, cdiff toxin, pseudomonas, strep pneumoniae, bronchiolitis, diagnosis such as asthma, gerd, hypotonia, fiber atrophy, apnea, alte...to three surgeries later and a feeding tube placed...Cambrie recently was daignosed with hypogammaglobulinemia and they are testing her for ADA syndrome. She just this week recieved her first IVIG infusion. They've also mini- isolated her...no church nursery, mothers day out, day care, such as that...otherwise, she's doing well. Not eating, but walking everywhere and getting into everything . I've not really met alot of others who are involved in the care with an immunodeficient child. I was wondering if alot of you with infants out there who are immunodeficient had feeding issues and failure to thrive issues also? It would really be nice to hear other's stories. Thanks so much! Kymberlie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 As for cedarcide fogging, I found once a week to be too long an interval. Every 3 to 4 days would be more effective. I mixed in an ounce of nylar in w/ a gallon of cedarcide. you can mix small amts of other essential oils too, like tea trea, clove, lavendar, etc. The fog will still be very thick. I don't think nickel and diming on cedarcide is effective. I can't use mine anymore b/c of my neighbors complaining but if I could I'd just buy 8 gallons worth and fog every 3-4 days. Heat treating has been done by a few ppl and has killed 100% over repeated sessions (one member did it once every week for 5 straight weeks). You'll need a gas powered blower heater and connect that into your home and cars. You should do a search for " heat treating " esp around sept/oct of last year. I think you'll find many posts. Look for posts or responses from zmooks. > > How is the heating the house up to 150-200 done? I am really interested in this since I read here some one almost rid them selves of the bugs in 3 weeks. I am now thinking about this option and don't really want to burn the house down (or any one else's). I am also not really mechanically, or handyman inclined but will still work my way through anything I have to get rid of this. I have a 1500 square foot 2 level town house, two cars, and work space infested. I have a child, two dogs(indoor), cat (indoor) and fish, so my options on chemicals is limited. I have fogged 2 x with the Cedarcide and had the PCO come out and retreat(everyone was slightly sick, but it was better than me bombing). We were ok for a couple of days after the PCO sprayed and fogged the attic. I plan on fogging again this Sunday, and calling the PCO again. Should I fog once a week or twice a week? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Hi, Zmooks and her family were able to rid their home of the mites by Heat Treating. You may want to do a search to find her posts on how it's done. It would have been about a year or more ago that they did this. I think she said that they had gotten rid of them within 3 weeks, but continued the treatment for another 2, just to make sure. If you plan on having a PCO come to your home, which is what we did, here is a list of the chemicals that we used: Demize CC <sp?> .03% Conc. 3oz. Suspend SC .06% Conc. 1.5oz. Precor IGR .0078% Conc. 1oz. Kicker .023% Conc. 3oz. per 1 gallon of water. (A word of Caution: DO NOT use a product called Bedlam... this stuff drove our mites wild. I surely thought they would eat us alive.) They fogged every square inch including all attics and basement, and they sprayed the inside of the house as well every 7 days (instead of the normal 10 day span) for 5 weeks I think. Don't call a Big name company. Call your local mom and pop PCO who has tons of years of experience and make sure they turn your house upside down... spraying under the rugs, furniture, under the cushions... I mean everywhere. Leave nothing unturned. During this time, our cats were also being treated with Ivermectin for 6 weeks and then switched off to the Lime sulfur dips for 5 weeks I believe. They were treated on the exact same day as when the PCO came to fog and spray. (You may need to move your fish to a temporary home until after all of the treatments are done.) This treatment for us really knocked the numbers WAY down. We got rid of the rest of the " stragglers " by Slop Mopping with a Bleach and Epsom Salts mix. (We haven't had any environmental problems since abt. the end of June. Only internal issues.) Good luck to you! Trly > > How is the heating the house up to 150-200 done? I am really interested in this since I read here some one almost rid them selves of the bugs in 3 weeks. I am now thinking about this option and don't really want to burn the house down (or any one else's). I am also not really mechanically, or handyman inclined but will still work my way through anything I have to get rid of this. I have a 1500 square foot 2 level town house, two cars, and work space infested. I have a child, two dogs(indoor), cat (indoor) and fish, so my options on chemicals is limited. I have fogged 2 x with the Cedarcide and had the PCO come out and retreat(everyone was slightly sick, but it was better than me bombing). We were ok for a couple of days after the PCO sprayed and fogged the attic. I plan on fogging again this Sunday, and calling the PCO again. Should I fog once a week or twice a week? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Hi HsQuilter Did you find the heat treating links , there is a search box on the main page of birdmite forum . I myself use heat to bake things clean. It works. Zooks & #39;s husband put heaters in the windows. $12.00 remote thermometer can be used to gauge the heat in each room . I searched heat treating to kill bugs & found a company that does it professionally , I called & the man was very helpful explainng the process , & the fans involved to move the air evenly thru out the house. Very ingenius. I will look for his Companys number & post it . Here is the post from zooks , it is wonderful to read , she is stilll free today , Praise God ...! Re: Can Couch Be Saved? From: zmooks bird mites Date: Tue Dec 23 15:08:15 2008 I agree with frito, its just stuff....when we were at the height of our infestation I would have lit a match and just walked out the door if it ment that this plague would be gone from our lives. But as it doesnt work that way....we had to fight the hard fight just like everyone else..... Last year people were using high heat in their environment to kill this & #39;thing & #39;..... this is what we did, and it worked for us...total elemination of what ever mite we had in 3 consecutive saturdays of using propane heaters to heat the interior of our house to 170-200F. Yes its radical, yes its extreme....but I do bring it up now and again because it does work and we managed to save not only our house and contents, but we were able to get our lives back.... (of course we were working just as hard internally and on on our skin itself during the time we were elemenating them from our home...its a three prong attack, internal, external, environmental) z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Didn't Ray also heat treat using blower heaters? If someone has pictures of the setup, will you send it to hsquilter? > > > Hi HsQuilter > > Did you find the heat treating links , there is a search box on the main page of birdmite forum . > > > I myself use heat to bake things clean. It works. Zooks & #39;s husband put heaters in the windows. $12.00 remote thermometer can be used to gauge the heat in each room . I searched heat treating to kill bugs & found a company that does it professionally , I called & the man was very helpful explainng the process , & the fans involved to move the air evenly thru out the house. Very ingenius. I will look for his Companys number & post it . > > Here is the post from zooks , it is wonderful to read , she is stilll free today , Praise God ...! > > > > > > > > Re: Can Couch Be Saved? > From: zmooks > bird mites > Date: Tue Dec 23 15:08:15 2008 > I agree with frito, its just stuff....when we were at the height of our > infestation I would have lit a match and just walked out the door if it > ment that this plague would be gone from our lives. > But as it doesnt work that way....we had to fight the hard fight just > like everyone else..... > Last year people were using high heat in their environment to kill > this & #39;thing & #39;..... this is what we did, and it worked for us...total > elemination of what ever mite we had in 3 consecutive saturdays of > using propane heaters to heat the interior of our house to 170-200F. > Yes its radical, yes its extreme....but I do bring it up now and again > because it does work and we managed to save not only our house and > contents, but we were able to get our lives back.... > (of course we were working just as hard internally and on on our skin > itself during the time we were elemenating them from our home...its a > three prong attack, internal, external, environmental) > z > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Welcome Kim sounds like you are on the right track! Great job How long are you off of work for the surgery? what is your email off line? God's Blessings Rettig (Army Mom of 2) Hi, New to the group Hello everyone, My name is Kim and I am new to the group. I have been an avid exerciser for years (traditional stuff, you know: weights, ellipitical, jogging, aerobics classes). Presently i am 3 weeks postop recovering from an elective surgery and have not been able to do my formal program. I have the instructional tape and to be honest I have had it for almost 2 years but did not think it would work - sorry [] . It did not seem hard enough! However, I have been unable to do my normal routine and have been doing the LifeLift breathing exercises for 5 days and I have lost 2 pounds and my clothes are looser. I wear an 8 and just want to maintain and not gain during my recuperation. I am amazed and trust me, I am eating plenty because the pain medication makes me very nauseous if I do not have food in my belly! To be honest I don't know how many I do per day because usually in the am I lose count after 20 or so. I usually breath for 1/2 hour to 45 minutes in the morning. I love how awake it makes me feel! All bright eyed and bushy tailed! I like to do the breaths in different yoga positions as well as what Rashelle shows on the instructional tape. Plus if no one is around when I am at home and it has been a couple of hours since I have eaten I will do some breaths and if I am alone in the car I will do some as well. To do it in front of my family is hard because they kinda make fun of my noisiness and get me laughing. Today i added some light weights --3 pounds to my legs and used 3 pound dumbells for my arms-- to my positions. I am over 40 now and that underarm flapping is irritating! I am hoping that this will be all I need because honestly I do not have time for my 1.5 hour workouts anymore -- I work full-time, am enrolled in a Masters program and have a family. Like most women, I am very busy but want to stay healthy and look good. I have enjoyed reading the posts and the positive, supportive tone of the group [] Thanks for " listening " ! Take Care and Many Blessings, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi all, I just want to introduce myself. My name is and I have a 6 1/2 yr old DD () who recently started the process of getting diagnosed w/ PDD. We do not have an official diagnosis but the more I read about it, the more things make sense. Originally I had brought her to the Dr. because of her extreme refusal to eat most any food (not your typical pickiness) She won't do anything w/ certain textures, no meat, no vegis or fruit. I had been complaining about this for years and was told she is picky, starve her and she will eat, you spoil her and my favorite "only child syndrome" I always sensed there was a texture issue but no one would listen. Once again I was told that she will outgrow it but the PA seemed to feel that she had ADHD and wanted me to do the questionnaires about that. When I returned w/ the questionnaires, we saw the Pediatrician who suggested that it was not ADHD but actually PDD and sent me home w/ more questionnaires to fill out. It was amazing how many of the questions on those forms I could say yes to which scared me. Now the more I am researching it, the more things are making sense. Things I have been complaning about all along. She always had a texture issue w/ foods since baby food. (she was still eating stage 2 till she was almost 2), She went through a stage of licking everything in sight (for over a year) Now has moved on to smelling things) She lines everything up and arranges things by color, size etc. She used to spend hours in the backyard moving her ride on toys from one side of the patio to the other and "parking" them in straight lines. She now does it w/ her bikes and scooters but backs them into spots. She collects everything under the sun and has an odd attachment to certain things. Pinecones, rocks, receipts, paint samples are some of her favorites. She will spend hours lining them up and counting them. I begged them to check her hearing as she will go into panic mode w/ to loud of sounds. Even having the TV on to a volume that we can hear sitting on the couch is often to loud for her. We can forget the surround sound as that throws her into a complete meltdown. All I was told was that her ears have just not gotten damage like ours so her hearing is better. UGH!!! I can't even run the vacuum when she is home because of the meltdowns. If something changes in her routine or something is not what she expects, She will go into a full blown panic attack and say she can't breath. She got a tiny piece of hash brown in her scrambled eggs one time and it threw her for such a loop that she had a meltdown at the restaurant and then refused to eat eggs for 3 months. She is also not at all affectionate w/ us. I don't know if she has ever said "I love You" To either me or my hubby. She does not give kisses although will allow us to kiss her most of the time. I recently got her to say "I heart you" which she says is just like I love you. She never did the wave bye bye as a baby and still does not say bye to people. She is above grade level in school. She was in an advanced Kindergarten program last year. They observed the kids and moved those that they felt were ready to the full day k/1st grade class. She is one of the top students in her 1st grade class this year. Her Teacher is blown away by some of the stuff that she comes up w/ on her own. She is already doing basic multiplication and has figured out problems like 1-13-17= -29 in her head. (she saw a part number that hubby had written down and thought it was a math problem). She is also quite high in English and is reading at a mid 3rd grade level. Her writing is sort of all over the place and she still reverses some letters like b/d and she does her 9 and 6 backward. She has made Honor roll for both for the past 2 trimesters. Her Principal and Vice Principal seem to feel that she might be genius level. One of my biggest issues is that she seems to do best at school which really screws w/ the questionnaires when I am saying one thing and her teachers are saying the opposite. I think because of the high structure that they just do not see the issues we see. They do not deal w/ the food issues, they do not observe her in play. I guess there are no loud sounds that drive her nuts there. Her Dr. referred her to another place that is for kids w/ disabilities such as this but all I got when I called was " well does she have an IEP or special ed? No, well then we can't help her" She doesn't have an IEP because she is doing awesome academically and does not need one. She may not have full Autism but that is why there is a spectrum. I am still working on trying to get this paperwork pushed through w/ them and praying that we get some answers. Well anyway, thanks for listening if you have gotten this far. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 Welcome ! I got this exact same line from our pediatrician about my son's ultra sensitive hearing: " All I was told was that her ears have just not gotten damage like ours so her hearing is better. " It actually turned out to be sensory processing disorder, which later turned out to be part of an Asperger's diagnosis. You are a smart mom to trust your instincts and to reject the attempts of people who want to placate you. Once you get an official diagnosis, be sure to educate yourself about special education law - schools try to say that a child who does well academically cannot have an IEP, but that is not how the law is written, and " twice exceptional " children (gifted + learning disabled,on the spectrum, etc.)should be able to get services based on their other needs. slaw.com is a good place to start learning. Take care, Bridget > > Hi all, I just want to introduce myself. My name is and I have a 6 1/2 > yr old DD () who recently started the process of getting diagnosed w/ PDD. > We do not have an official diagnosis but the more I read about it, the more > things make sense. Originally I had brought her to the Dr. because of her > extreme refusal to eat most any food (not your typical pickiness) She won't do > anything w/ certain textures, no meat, no vegis or fruit. I had been complaining > about this for years and was told she is picky, starve her and she will eat, you > spoil her and my favorite " only child syndrome " I always sensed there was a > texture issue but no one would listen. Once again I was told that she will > outgrow it but the PA seemed to feel that she had ADHD and wanted me to do the > questionnaires about that. When I returned w/ the questionnaires, we saw the > Pediatrician who suggested that it was not ADHD but actually PDD and sent me > home w/ more questionnaires to fill out. It was amazing how many of the > questions on those forms I could say yes to which scared me. Now the more I am > researching it, the more things are making sense. Things I have been complaning > about all along. She always had a texture issue w/ foods since baby food. (she > was still eating stage 2 till she was almost 2), She went through a stage of > licking everything in sight (for over a year) Now has moved on to smelling > things) She lines everything up and arranges things by color, size etc. She used > to spend hours in the backyard moving her ride on toys from one side of the > patio to the other and " parking " them in straight lines. She now does it w/ her > bikes and scooters but backs them into spots. She collects everything under the > sun and has an odd attachment to certain things. Pinecones, rocks, receipts, > paint samples are some of her favorites. She will spend hours lining them up and > counting them.  I begged them to check her hearing as she will go into panic > mode w/ to loud of sounds. Even having the TV on to a volume that we can hear > sitting on the couch is often to loud for her. We can forget the surround sound > as that throws her into a complete meltdown. All I was told was that her ears > have just not gotten damage like ours so her hearing is better. UGH!!! I can't > even run the vacuum when she is home because of the meltdowns. If something > changes in her routine or something is not what she expects, She will go into a > full blown panic attack and say she can't breath. She got a tiny piece of hash > brown in her scrambled eggs one time and it threw her for such a loop that she > had a meltdown at the restaurant and then refused to eat eggs for 3 months. She > is also not at all affectionate w/ us. I don't know if she has ever said " I love > You " To either me or my hubby. She does not give kisses although will allow us > to kiss her most of the time. I recently got her to say " I heart you " which she > says is just like I love you. She never did the wave bye bye as a baby and still > does not say bye to people. She is above grade level in school. She was in an > advanced Kindergarten program last year. They observed the kids and moved those > that they felt were ready to the full day k/1st grade class. She is one of the > top students in her 1st grade class this year. Her Teacher is blown away by some > of the stuff that she comes up w/ on her own. She is already doing basic > multiplication and has figured out problems like 1-13-17= -29 in her head. (she > saw a part number that hubby had written down and thought it was a math > problem). She is also quite high in English and is reading at a mid 3rd grade > level. Her writing is sort of all over the place and she still reverses some > letters like b/d and she does her 9 and 6 backward. She has made Honor roll for > both for the past 2 trimesters. Her Principal and Vice Principal seem to feel > that she might be genius level. One of my biggest issues is that she seems to do > best at school which really screws w/ the questionnaires when I am saying one > thing and her teachers are saying the opposite. I think because of the high > structure that they just do not see the issues we see. They do not deal w/ the > food issues, they do not observe her in play. I guess there are no loud sounds > that drive her nuts there. Her Dr. referred her to another place that is for > kids w/ disabilities such as this but all I got when I called was " well does > she have an IEP or special ed? No, well then we can't help her " She doesn't have > an IEP because she is doing awesome academically and does not need one. She may > not have full Autism but that is why there is a spectrum. I am still working on > trying to get this paperwork pushed through w/ them and praying that we get some > answers. Well anyway, thanks for listening if you have gotten this far. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2011 Report Share Posted March 12, 2011 If all else fails by the age of 9 she can have a neuropsch evaluation and you will get your answers. She has a lot of sensory issues, doesn't she have anxiety about going to school? My daughter's first diagnosis was anxiety, then OCD, then at age 9 we did the nueropsych test and have the DX of AS. Even if she is academically doing OK she is not socially and that gets more noticeable as she gets older. You want first a diagnosis from a neuropsychologist that will come to the school and advocate for social skill classes, she may need OT too. Once you have a DX then you can advocate her social development and emotional development is impaired. You don't want her punished as issues come up that are due to her DX, you want accomodations. good luck, Pam to see the issues Get > > Hi all, I just want to introduce myself. My name is and I have a 6 1/2 > yr old DD () who recently started the process of getting diagnosed w/ PDD. > We do not have an official diagnosis but the more I read about it, the more > things make sense. Originally I had brought her to the Dr. because of her > extreme refusal to eat most any food (not your typical pickiness) She won't do > anything w/ certain textures, no meat, no vegis or fruit. I had been complaining > about this for years and was told she is picky, starve her and she will eat, you > spoil her and my favorite " only child syndrome " I always sensed there was a > texture issue but no one would listen. Once again I was told that she will > outgrow it but the PA seemed to feel that she had ADHD and wanted me to do the > questionnaires about that. When I returned w/ the questionnaires, we saw the > Pediatrician who suggested that it was not ADHD but actually PDD and sent me > home w/ more questionnaires to fill out. It was amazing how many of the > questions on those forms I could say yes to which scared me. Now the more I am > researching it, the more things are making sense. Things I have been complaning > about all along. She always had a texture issue w/ foods since baby food. (she > was still eating stage 2 till she was almost 2), She went through a stage of > licking everything in sight (for over a year) Now has moved on to smelling > things) She lines everything up and arranges things by color, size etc. She used > to spend hours in the backyard moving her ride on toys from one side of the > patio to the other and " parking " them in straight lines. She now does it w/ her > bikes and scooters but backs them into spots. She collects everything under the > sun and has an odd attachment to certain things. Pinecones, rocks, receipts, > paint samples are some of her favorites. She will spend hours lining them up and > counting them.  I begged them to check her hearing as she will go into panic > mode w/ to loud of sounds. Even having the TV on to a volume that we can hear > sitting on the couch is often to loud for her. We can forget the surround sound > as that throws her into a complete meltdown. All I was told was that her ears > have just not gotten damage like ours so her hearing is better. UGH!!! I can't > even run the vacuum when she is home because of the meltdowns. If something > changes in her routine or something is not what she expects, She will go into a > full blown panic attack and say she can't breath. She got a tiny piece of hash > brown in her scrambled eggs one time and it threw her for such a loop that she > had a meltdown at the restaurant and then refused to eat eggs for 3 months. She > is also not at all affectionate w/ us. I don't know if she has ever said " I love > You " To either me or my hubby. She does not give kisses although will allow us > to kiss her most of the time. I recently got her to say " I heart you " which she > says is just like I love you. She never did the wave bye bye as a baby and still > does not say bye to people. She is above grade level in school. She was in an > advanced Kindergarten program last year. They observed the kids and moved those > that they felt were ready to the full day k/1st grade class. She is one of the > top students in her 1st grade class this year. Her Teacher is blown away by some > of the stuff that she comes up w/ on her own. She is already doing basic > multiplication and has figured out problems like 1-13-17= -29 in her head. (she > saw a part number that hubby had written down and thought it was a math > problem). She is also quite high in English and is reading at a mid 3rd grade > level. Her writing is sort of all over the place and she still reverses some > letters like b/d and she does her 9 and 6 backward. She has made Honor roll for > both for the past 2 trimesters. Her Principal and Vice Principal seem to feel > that she might be genius level. One of my biggest issues is that she seems to do > best at school which really screws w/ the questionnaires when I am saying one > thing and her teachers are saying the opposite. I think because of the high > structure that they just do not see the issues we see. They do not deal w/ the > food issues, they do not observe her in play. I guess there are no loud sounds > that drive her nuts there. Her Dr. referred her to another place that is for > kids w/ disabilities such as this but all I got when I called was " well does > she have an IEP or special ed? No, well then we can't help her " She doesn't have > an IEP because she is doing awesome academically and does not need one. She may > not have full Autism but that is why there is a spectrum. I am still working on > trying to get this paperwork pushed through w/ them and praying that we get some > answers. Well anyway, thanks for listening if you have gotten this far. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2011 Report Share Posted March 15, 2011 Sounds like she has Sensory Processing issues, have you read " the out of synch child " by Carol Kranowitz? It help us understand some of these eating, hearing and smelling sensitivities and it has great ideas to try to help the kids cope. Why do so many doctors sound like that.... your just over protective, there is nothing wrong with their eating habits, they'll grow out of it, blah, blah, blah..... Sandy > > Hi all, I just want to introduce myself. My name is and I have a 6 1/2 > yr old DD () who recently started the process of getting diagnosed w/ PDD. > We do not have an official diagnosis but the more I read about it, the more > things make sense. Originally I had brought her to the Dr. because of her > extreme refusal to eat most any food (not your typical pickiness) She won't do > anything w/ certain textures, no meat, no vegis or fruit. I had been complaining > about this for years and was told she is picky, starve her and she will eat, you > spoil her and my favorite " only child syndrome " I always sensed there was a > texture issue but no one would listen. Once again I was told that she will > outgrow it but the PA seemed to feel that she had ADHD and wanted me to do the > questionnaires about that. When I returned w/ the questionnaires, we saw the > Pediatrician who suggested that it was not ADHD but actually PDD and sent me > home w/ more questionnaires to fill out. It was amazing how many of the > questions on those forms I could say yes to which scared me. Now the more I am > researching it, the more things are making sense. Things I have been complaning > about all along. She always had a texture issue w/ foods since baby food. (she > was still eating stage 2 till she was almost 2), She went through a stage of > licking everything in sight (for over a year) Now has moved on to smelling > things) She lines everything up and arranges things by color, size etc. She used > to spend hours in the backyard moving her ride on toys from one side of the > patio to the other and " parking " them in straight lines. She now does it w/ her > bikes and scooters but backs them into spots. She collects everything under the > sun and has an odd attachment to certain things. Pinecones, rocks, receipts, > paint samples are some of her favorites. She will spend hours lining them up and > counting them.  I begged them to check her hearing as she will go into panic > mode w/ to loud of sounds. Even having the TV on to a volume that we can hear > sitting on the couch is often to loud for her. We can forget the surround sound > as that throws her into a complete meltdown. All I was told was that her ears > have just not gotten damage like ours so her hearing is better. UGH!!! I can't > even run the vacuum when she is home because of the meltdowns. If something > changes in her routine or something is not what she expects, She will go into a > full blown panic attack and say she can't breath. She got a tiny piece of hash > brown in her scrambled eggs one time and it threw her for such a loop that she > had a meltdown at the restaurant and then refused to eat eggs for 3 months. She > is also not at all affectionate w/ us. I don't know if she has ever said " I love > You " To either me or my hubby. She does not give kisses although will allow us > to kiss her most of the time. I recently got her to say " I heart you " which she > says is just like I love you. She never did the wave bye bye as a baby and still > does not say bye to people. She is above grade level in school. She was in an > advanced Kindergarten program last year. They observed the kids and moved those > that they felt were ready to the full day k/1st grade class. She is one of the > top students in her 1st grade class this year. Her Teacher is blown away by some > of the stuff that she comes up w/ on her own. She is already doing basic > multiplication and has figured out problems like 1-13-17= -29 in her head. (she > saw a part number that hubby had written down and thought it was a math > problem). She is also quite high in English and is reading at a mid 3rd grade > level. Her writing is sort of all over the place and she still reverses some > letters like b/d and she does her 9 and 6 backward. She has made Honor roll for > both for the past 2 trimesters. Her Principal and Vice Principal seem to feel > that she might be genius level. One of my biggest issues is that she seems to do > best at school which really screws w/ the questionnaires when I am saying one > thing and her teachers are saying the opposite. I think because of the high > structure that they just do not see the issues we see. They do not deal w/ the > food issues, they do not observe her in play. I guess there are no loud sounds > that drive her nuts there. Her Dr. referred her to another place that is for > kids w/ disabilities such as this but all I got when I called was " well does > she have an IEP or special ed? No, well then we can't help her " She doesn't have > an IEP because she is doing awesome academically and does not need one. She may > not have full Autism but that is why there is a spectrum. I am still working on > trying to get this paperwork pushed through w/ them and praying that we get some > answers. Well anyway, thanks for listening if you have gotten this far. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011  My son refuses to brush because the feeling of the bristles. An electric toothbrush is even worse! But at least his reaction is 100% giggles not so much anger or anything (he's 7) We are still only at a point of once a day instead of 2x so we ask him to use ACT mouthwash. The mint is too strong *he just rinses with water after so it's a waste and defeats the purpose) and he hates the bubble gum so we're struggling with that right now. Why are there only 2 flavors??? Have you thought of natural toothpaste from health food store? Is there a Whole foods or Henry's near you? I have family in France and when I was little and would visit for the summer I used a toothpaste that was most commonly used there and it tasted like liqorice. I think some of the natural ones they sell here are similar. Would that be something she might like? ( ) Re: Hi, New to the group Sounds like she has Sensory Processing issues, have you read "the out of synch child" by Carol Kranowitz? It help us understand some of these eating, hearing and smelling sensitivities and it has great ideas to try to help the kids cope.Why do so many doctors sound like that.... your just over protective, there is nothing wrong with their eating habits, they'll grow out of it, blah, blah, blah.....Sandy>> Hi all, I just want to introduce myself. My name is and I have a 6 1/2 > yr old DD () who recently started the process of getting diagnosed w/ PDD. > We do not have an official diagnosis but the more I read about it, the more > things make sense. Originally I had brought her to the Dr. because of her > extreme refusal to eat most any food (not your typical pickiness) She won't do > anything w/ certain textures, no meat, no vegis or fruit. I had been complaining > about this for years and was told she is picky, starve her and she will eat, you > spoil her and my favorite "only child syndrome" I always sensed there was a > texture issue but no one would listen. Once again I was told that she will > outgrow it but the PA seemed to feel that she had ADHD and wanted me to do the > questionnaires about that. When I returned w/ the questionnaires, we saw the > Pediatrician who suggested that it was not ADHD but actually PDD and sent me > home w/ more questionnaires to fill out. It was amazing how many of the > questions on those forms I could say yes to which scared me. Now the more I am > researching it, the more things are making sense. Things I have been complaning > about all along. She always had a texture issue w/ foods since baby food. (she > was still eating stage 2 till she was almost 2), She went through a stage of > licking everything in sight (for over a year) Now has moved on to smelling > things) She lines everything up and arranges things by color, size etc. She used > to spend hours in the backyard moving her ride on toys from one side of the > patio to the other and "parking" them in straight lines. She now does it w/ her > bikes and scooters but backs them into spots. She collects everything under the > sun and has an odd attachment to certain things. Pinecones, rocks, receipts, > paint samples are some of her favorites. She will spend hours lining them up and > counting them. I begged them to check her hearing as she will go into panic > mode w/ to loud of sounds. Even having the TV on to a volume that we can hear > sitting on the couch is often to loud for her. We can forget the surround sound > as that throws her into a complete meltdown. All I was told was that her ears > have just not gotten damage like ours so her hearing is better. UGH!!! I can't > even run the vacuum when she is home because of the meltdowns. If something > changes in her routine or something is not what she expects, She will go into a > full blown panic attack and say she can't breath. She got a tiny piece of hash > brown in her scrambled eggs one time and it threw her for such a loop that she > had a meltdown at the restaurant and then refused to eat eggs for 3 months. She > is also not at all affectionate w/ us. I don't know if she has ever said "I love > You" To either me or my hubby. She does not give kisses although will allow us > to kiss her most of the time. I recently got her to say "I heart you" which she > says is just like I love you. She never did the wave bye bye as a baby and still > does not say bye to people. She is above grade level in school. She was in an > advanced Kindergarten program last year. They observed the kids and moved those > that they felt were ready to the full day k/1st grade class. She is one of the > top students in her 1st grade class this year. Her Teacher is blown away by some > of the stuff that she comes up w/ on her own. She is already doing basic > multiplication and has figured out problems like 1-13-17= -29 in her head. (she > saw a part number that hubby had written down and thought it was a math > problem). She is also quite high in English and is reading at a mid 3rd grade > level. Her writing is sort of all over the place and she still reverses some > letters like b/d and she does her 9 and 6 backward. She has made Honor roll for > both for the past 2 trimesters. Her Principal and Vice Principal seem to feel > that she might be genius level. One of my biggest issues is that she seems to do > best at school which really screws w/ the questionnaires when I am saying one > thing and her teachers are saying the opposite. I think because of the high > structure that they just do not see the issues we see. They do not deal w/ the > food issues, they do not observe her in play. I guess there are no loud sounds > that drive her nuts there. Her Dr. referred her to another place that is for > kids w/ disabilities such as this but all I got when I called was " well does > she have an IEP or special ed? No, well then we can't help her" She doesn't have > an IEP because she is doing awesome academically and does not need one. She may > not have full Autism but that is why there is a spectrum. I am still working on > trying to get this paperwork pushed through w/ them and praying that we get some > answers. Well anyway, thanks for listening if you have gotten this far.> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3509 - Release Date: 03/15/11 19:34:00 Quote Link to comment Share on other sites More sharing options...
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