any ideas?

[Guest guest]

H . Well, as far as I know there are no doctors here and so we are all

guessing. I can share that homozon does sometimes make people dizzy in the

beginning because of the extra oxygen it puts into the system. And it can move

so much yucky stuff that you can get really nauseous. In my personal

experience.

It does kill some parasites, but not all. And, I am sorry, but I don't know

which ones. I would guess smaller ones.

Black walnut hull makes me incredibly constipated. Perhaps it does you also.

Are you taking any form of probiotic? Perhaps that is an issue.

Donna

Any ideas?

Hi,

Im pretty new to the list... been reading the posts for about a

month... and had a couple of questions, hope you all could help me with.

First off, i got some homozon... Its making me deathly ill if i take

anymore than 1/2 TSP. of it... I get really sick to my stomach and

dizzy... I would like to think that its not parasites, due to the fact

that I took the wormwood, cloves, and rascal for about 3-4 weeks prior

to starting the homozon. Im all so taking 2 cloves of raw garlic 2x's a

day...IF I don't take the homozon every day I get rather constipated...

any ideas? If its still parasites... what more do i need to do? I have a

" gut feeling " it is, but shouldn't the homozon help that? or is that

what's making me so sick?

Any ideas would be greatly appreciated! Thanks!

Jenni

[Guest guest]

I've read that you can start to feel really nauseous shortly before passing

a very toxic bm (which has happened to me a couple of times!) so this is a

good indicator the homozon is working well. Hang in there!

-------------

Any ideas?

>

>

> Hi,

> Im pretty new to the list... been reading the posts for about a

> month... and had a couple of questions, hope you all could help me

with.

>

> First off, i got some homozon... Its making me deathly ill if i take

> anymore than 1/2 TSP. of it... I get really sick to my stomach and

> dizzy... I would like to think that its not parasites, due to the fact

> that I took the wormwood, cloves, and rascal for about 3-4 weeks prior

> to starting the homozon. Im all so taking 2 cloves of raw garlic 2x's

a

> day...IF I don't take the homozon every day I get rather

constipated...

> any ideas? If its still parasites... what more do i need to do? I have

a

> " gut feeling " it is, but shouldn't the homozon help that? or is that

> what's making me so sick?

> Any ideas would be greatly appreciated! Thanks!

> Jenni

>

>

>

>

[Guest guest]

Dear Ann:

My LLMD assures me that my one-sided symptoms are common amongst people with

lyme.

I experience the same symptoms, esp. around the time of a herx. Sometimes I end

up dragging one leg or just can't lift one arm.

It used to scare the crap out of me. But, I'm guess I'm getting used to it, as I

just deal with it instead of freaking out now.

I just lay low and try not to take on too much when it occurs. Best wishes to

you.

Carol a/k/a dizz

[Guest guest]

hi ann

keep your wonderful sense of humor and keep treating the lyme and

your health holistically. the pain or nagging symptoms from lyme

can indeed drive us batty.

dealing with pain...

i try to relax thru the pain, but i have to admit that often requires

a relaxed environment.

as well as your other treatments, don't forget to relax and laugh

if you can!

tension augments pain. period

>

>I usually don't take pain meds unless I absolutely need them - and

>actually, they don't usually work but this is starting to make me

>crazy (or should I say crazier!)

>

>If anyone has experienced this and found a solution to this dilemma,

>I would love to hear from you.

>

>Thanks,

>Ann

>

>

[Guest guest]

What this is called is " radiculopathy. " Meaning, it follows the path of a

spinal nerve. Probably in your neck, since it's your whole body, is a nerve

that is affected and irritated, and it causes the nerve all the way down and

all its branches to send messages of PAIN back up to your brain. spinal

nerves come out on either side of the cord, and once they leave, if only one

side if affected, you only have symptoms on that one side. That is a common

symptom of Lyme.

>From: " Ann Prow " <aprow@...>

>Reply-

> " " < >

>Subject: [ ] Any ideas?

>Date: Thu, 23 Oct 2003 00:11:35 -0700

>

>I have been treated for Lyme for app 14 months although I have had it -

>misdiagnosed - since 1983. I've been on oral antibiotics and have started

>hormone therapy and about to start heparin. I have been experiencing a

>symptom that I am not sure what to think of and am hoping that someone can

>help me know what's the best treatment to follow. I am planning to call my

>LLMDs office tomorrow for their direction but thought I'd ask all of you.

>

>I have been experiencing pain totally on my right side. This comes and goes

>(somewhat like a herx but not really since it shows up pretty

>consistently.) It starts in my right hip and radiates down my leg. About a

>day later I have pain in the right side of my jaw and gums (have had a

>tooth removed years ago only to find that it wasn't the tooth but internal

>gum pain), with a moderate continual headache. I get numbness in my right

>leg while experiencing this right side sensations.

>

>I usually don't take pain meds unless I absolutely need them - and

>actually, they don't usually work but this is starting to make me crazy (or

>should I say crazier!)

>

>If anyone has experienced this and found a solution to this dilemma, I

>would love to hear from you.

>

>Thanks,

>Ann

>

>

[Guest guest]

Hi and welcome!!

This is a great group-very compassionate and caring!! I first wanted to say

that I feel so bad for you-anyone that hasn't experience hip pain have no

idea-since it is located to the biggest bone in our body it can be the most

painful. I had a total hip replacement this past Dec. after almost three years

of pain. I was on pain pills of every kind until the replacement. After me

last surgery I couldn't believe how much pain went away. Extra Strength Vicodin

was what I mostly was on. I did have three bone scans-it shows layers of your

bones and muscles so Drs. can get a better idea where the damage is. I guess it

shows great detail. You can email me if you want if you have any questions

about your hips. Before my surgery I was walking with a walker; now I use a

cane-I'm 43 years old!! It is real painful laying on the table getting the bone

scan if you have hip and back problems...I didn't want to discourage you, but

wanted to be honest. I won't post real often here I belong

to another group now.

God Bless, Sue.

sheeba452003 <sheeba452003@...> wrote:

Hi,

I'm new to posting here but not to reading, I've been doing that

for over a year now.

Currently I am on Enbrel, relafen and darvocet for PA. I tried a

few other DMARDS first to no avail, have been on this combo

since June. I also go to PT 2x a week for gentle stretching, deep

massage and phonophereis ( deep heat ultrasound w/cortisone )this is

being done on my hips and spine since December. This is my second

round of PT, the first was last year from June-August and yet the

problem still exists. I have erosion of my hip joints, but not to

the extent of hip replacement. I have seen two orthopedics, one for

my hips and one who specializes in the lower lumbar area. Although I

have hip erosion my rheumy and both ortho's feel that my continued

pain is stemming from bursar inflammation and sacroiliac issues. I

have also had cortisone injections into my hips on two different

occasions, the first was wonderful but it only lasted an six days,

the second round even less.

I have had x-rays & MRI's and nothing significant shows other than

the erosion that we've known about for a while now, and S4, S5, L1

disc buldge which is pretty common for anyone over 30 ( So the ortho

told me ) Our next plan is to have a bone scan, has anyone had one?

And what differences if any would that show as compared to an x-ray

or MRI...? Nothing really seems to kill the pain entirely, although

I will have to say the combo that I'm on is helpful ( I found this

out by going off Enbrel for 3 weeks due to a cold and could barely

walk by the third week due to a full flare up ) My hips/spine wake

me up every night, yet all my other joints seem ok, with a lil flare

up here and there in different areas, why would my drug combo work

o.k. on some joints and not my hips/spinal area? Do you all still

experience ongoing pain depsite treatment? Maybe this is normal?

Would minor hip erosion alone cause constant pain?

Has anyone had cortisone injections into the sacroiliac area and

found it to relieve pain in your hips too?

Sorry for all the questions, not sure what to do....

Thanks.

[Guest guest]

Dear Sheeba,

Well first of all, I’m glad you are finally posting. Sorry to hear the PA

is so bad though. As far as I know a bone scan shows more details of

inflammation than an X-ray or an MRI. The bone scan I had basically lit up

the screen on most of my joints. For example, you could have severe

inflammation in your joints, but everything looks fine on an x-ray since

there might not be any actual bone damage yet. A bone scan also shows if

the blood flow is blocked to certain bones, and I believe this is one of the

ways they look for bone tumors as well. In our case, though it’s normally

used for inflammation.

As far as your hips and back area still hurting more than your other joints,

all I can say is some joints just hurt more than others and you might have

more involvement with PA in those painful joints. I also have had several

cortisone injections into my spine and sometimes it does help the hip pain,

if the hip pain if referred pain from the spine. Most of the time on the

shots, you sort of take a chance of them helping you or not. Some people

get a lot of relief from the shots and then others can’t tell any

difference.

I’m probably not giving you the answers you want, but this is one

frustrating disease. I think the physical therapy you are doing is great

and as long as you can keep that up, you’ll hopefully stay pretty active. I

hope things improve for you soon. Good luck and I hope I helped a little.

Love, Fran

* Hi,

I'm new to posting here but not to reading, I've been doing that

for over a year now.

Currently I am on Enbrel, relafen and darvocet for PA. I tried a

few other DMARDS first to no avail, have been on this combo

since June. I also go to PT 2x a week for gentle stretching, deep

massage and phonophereis ( deep heat ultrasound w/cortisone )this is

being done on my hips and spine since December. This is my second

round of PT, the first was last year from June-August and yet the

problem still exists. I have erosion of my hip joints, but not to

the extent of hip replacement. I have seen two orthopedics, one for

my hips and one who specializes in the lower lumbar area. Although I

have hip erosion my rheumy and both ortho's feel that my continued

pain is stemming from bursar inflammation and sacroiliac issues. I

have also had cortisone injections into my hips on two different

occasions, the first was wonderful but it only lasted an six days,

the second round even less.

I have had x-rays & MRI's and nothing significant shows other than

the erosion that we've known about for a while now, and S4, S5, L1

disc buldge which is pretty common for anyone over 30 ( So the ortho

told me ) Our next plan is to have a bone scan, has anyone had one?

And what differences if any would that show as compared to an x-ray

or MRI...? Nothing really seems to kill the pain entirely, although

I will have to say the combo that I'm on is helpful ( I found this

out by going off Enbrel for 3 weeks due to a cold and could barely

walk by the third week due to a full flare up ) My hips/spine wake

me up every night, yet all my other joints seem ok, with a lil flare

up here and there in different areas, why would my drug combo work

o.k. on some joints and not my hips/spinal area? Do you all still

experience ongoing pain depsite treatment? Maybe this is normal?

Would minor hip erosion alone cause constant pain?

Has anyone had cortisone injections into the sacroiliac area and

found it to relieve pain in your hips too?

Sorry for all the questions, not sure what to do....

Thanks.

..

[Guest guest]

try the coconut flour bread . it is so good you could slice it and use

it like pancakes . so eays to make and quick . takes alot of eggs

tho .. I also like the muffins they are both in Bruces books cooking

with coconut flour

[Guest guest]

HI ',

Yes, it would be your 150 mcgs L-thyroxine that was working to make your TSH level drop from 3.6 to 0.66. This is to be expected. Your pituitary has to send out Thyroid Stimulating Hormone (TSH) to your thyroid to tell it to secrete more thyroid hormones, so your level of TSH rises. The less thyroid hormone is being excreted the more your TSH will go up and the more thyroid hormone you excrete, the more your TSH will drop. Probably also, your Free T4 might be rising because it is not actually converting through your liver to the active hormone T3 - probably the reason you are feeling so lousy right now. T3 is needed to get into every cell to make your body and brain function. You should worry more about your Free T3 and get this checked again to see if it is dropping further. If yes, then this might mean you need a T4/T3 combination therapy (either synthetic or natural) or you might be a candidate for T3 only.

luv - Sheila

This may seem a stupid question but I am trying to find out the answer, does anyone know what make the TSH level drop? Mine has dropped a lot from 3.6 to 0.66 in just six weeks, would that be the meds working? With each 25mcg increase that I have had my T4 has upped by 2 everytime quite consistantly its now 18.1 so I suspect with my lastest increase it will be around 20 at next blood test, T3 doesnt seem to change a great deal but have only had that tested twice and it was 4.16 and 4.06 so stayed about the same,all within range but on the low side, I did stop all meds for 48hrs this last test when I used to only stop for 24hrs, I know test results dont show the whole picture but I was amazed at the TSH drop!No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.12/1597 - Release Date: 07/08/2008 05:54

[Guest guest]

I wonder what my new dose of 175mcg will do Sheila? I am keeping my eye on the T3 level as I know it is the important one, hoping fully when I see this NHS endo he might help but I am not holding my breath as my T3 is in range, is T3 the same as FT3? I have only had my T3 done and there is also reverse T3 that I dont understand. The hospital might run these tests if I ask them when I go. but if all else fails I will go it alone with the help of you all on here and of course dr p

From: sheilaturner <sheilaturner@...>Subject: Re: Any ideas?thyroid treatment Date: Friday, 8 August, 2008, 8:40 AM

HI ',

Yes, it would be your 150 mcgs L-thyroxine that was working to make your TSH level drop from 3.6 to 0.66. This is to be expected.

luv - Sheila

This may seem a stupid question but I am trying to find out the answer, does anyone know what make the TSH level drop? Mine has dropped a lot from 3.6 to 0.66 in just six weeks, would that be the meds working? With each 25mcg increase that I have had my T4 has upped by 2 everytime quite consistantly its now 18.1 so I suspect with my lastest increase it will be around 20 at next blood test, T3 doesnt seem to change a great deal but have only had that tested twice and it was 4.16 and 4.06 so stayed about the same,all within range but on the low side, I did stop all meds for 48hrs this last test when I used to only stop for 24hrs, I know test results dont show the whole picture but I was amazed at the TSH drop!No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.12/1597 - Release Date: 07/08/2008 05:54

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]



Hi

You can but wait and see - it might drive you over the top so you suddenly start showing hypERthyroid symptoms, or it might help you enormously, or it might suddenly decide that the L-thyroxine for your particular case just isn't what you need. It is, unfortunately, a case of waiting and seeing.

As I am always saying to members please write down a list of all your symptoms, signs, medications, family history, especially if there is an autoimmune problem or other thyroid problem in the family. Write down all your questions so you don't forget what you need to ask him. There is Total T3 and there is Free T3 and yes, there is also Reverse T3, but as I have to go out, I am hoping somebody else will come along and give you an explanation of what each of these do.

Luv - Sheila

I wonder what my new dose of 175mcg will do Sheila? I am keeping my eye on the T3 level as I know it is the important one, hoping fully when I see this NHS endo he might help but I am not holding my breath as my T3 is in range, is T3 the same as FT3? I have only had my T3 done and there is also reverse T3 that I dont understand. The hospital might run these tests if I ask them when I go. but if all else fails I will go it alone with the help of you all on here and of course dr p

a

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.12/1599 - Release Date: 07/08/2008 20:49

[Guest guest]

Hello Sheila, I've just had my results back for my 24 hr adrenal saliva test and I just wanted to see what you thought. Salivary Cortisol 8 am 12 noon 4pm midnight 10.7(12.0-33.0) 7.0(10.0-28.0) 6.3(6.0-11.8) 3.3(1.0-5.0) Salivary DHEA Sulphate 5.1(9.0-24.3) 4.3(6.0-10.9) 5.5(4.5-8.0) 7.1(2.3-5.0) There were the following comments on the report: Salivary Cortisol profile: All values are either borderline or below reference range indicating poor/compromised hormone output on the cortisol pathway. Salivary DHEA-s profile: Erratic hormone output. In view of these results do you still think I should take some sort of adrenal support and if so what? Thanks Lindsey

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]

Hi ,

It is the presence of adequate T4 that makes TSH production

reduce. Now that your T4 levels are in the top quarter of the range,

then it is not surprising that TSH production has tapered off.

Subject: Any ideas?

This may seem a stupid question but I am trying to find out the answer,

does anyone know what make the TSH level drop? Mine has dropped a lot

from 3.6 to 0.66 in just six weeks, would that be the meds working?

With each 25mcg increase that I have had my T4 has upped by 2 everytime

quite consistantly its now 18.1 so I suspect with my lastest increase

it will be around 20 at next blood test, T3 doesnt seem to change a

great deal but have only had that tested twice and it was 4.16 and 4.06

so stayed about the same,all within range but on the low side, I did

stop all meds for 48hrs this last test when I used to only stop for

24hrs, I know test results dont show the whole picture but I was amazed

at the TSH drop!

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

That can only be a good thing I guess but I am wondering if I really need the T4 increase that I have started this week, I think T3 is the one that needs looking at or maybe the increase in T4 might help with the T3 conversion? The last thing I want right now is to go toxic or hyper! Still have funny heads and tiredness but slighty better than they were, only slight improvements but I am treating my adrenals now so that is probably helping

From: jenny stenning <jennystenning@...>Subject: RE: Any ideas?thyroid treatment Date: Friday, 8 August, 2008, 1:25 PM

Hi ,It is the presence of adequate T4 that makes TSH productionreduce. Now that your T4 levels are in the top quarter of the range,then it is not surprising that TSH production has tapered off.Subject: [thyroidpatientadvo cacy] Any ideas?This may seem a stupid question but I am trying to find out the answer, does anyone know what make the TSH level drop?------------ --------- --------- ------TPA is not medically qualified. Consult with a qualified medicalpractitioner before changing medication.

[Guest guest]

Hi Lindsey

Hello Sheila,

I've just had my results back for my 24 hr adrenal saliva test and I just wanted to see what you thought.

Salivary Cortisol

8 am 10.7(12.0-33.0) Too low. Cortisol should be at its highest at this time of day to give you the energy to do your daily tasks.

12 noon 7.0(10.0-28.0) Too low. It should be around half way in the middle of this range

4pm 6.3(6.0-11.8) Getting there - cortisol starts to lower towards the evening as you calm down after a days work.

midnight 3.3(1.0-5.0) To high. Cortisol should be at it's lowest at this time so you can sleep.

Salivary DHEA Sulphate

5.1(9.0-24.3) DHEA should be lowest first thing in the morning, but this is too low and way outside of the range.

4.3(6.0-10.9) DHEA still outside the bottom of the range

5.5(4.5-8.0) DHEA still not changed much but getting there. It should be higher in the range at this time.

7.1(2.3-5.0) WOA! Now it should be at its highest at midnight because this is the time you are making DHEA, but this is high outside the top of the range.

There were the following comments on the report:

Salivary Cortisol profile: All values are either borderline or below reference range indicating poor/compromised hormone output on the cortisol pathway.

Salivary DHEA-s profile:

Erratic hormone output.

In view of these results do you still think I should take some sort of adrenal support and if so what?

I think you most definitely do need some adrenal support, but whether NAR or other adrenal supplement would get your DHEA sorted sufficiently you would need to ask an expert. Once people start to supplement their adrenals, then often the cortisol and DHEA will both come back into line, so you could try this and see how you feel in say, 3 months time. Some people might suggest you need to supplement oyour DHEA and this might work.

When I needed this, I used 25 mcgs DHEA which I purchased from Pharmwest.

Thanks

Lindsey

Not happy with your email address? Get the one you really want - millions of new email addresses available now at

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.12/1599 - Release Date: 07/08/2008 20:49

[Guest guest]

Donna:

I wish had some good advice for you   The only thing I can share is that when

my nephew was in high school he tore his ACL in his very first football game he

ever played.  Now he did not have the mean attitude you describe (at least not

that Mike's sister ever told me about) but he did have the PT resistance.  They

finally told him do the exercises or face permanent damage and more surgery. 

The thought of more surgery really scared him and that helped a lot.

Good luck to all of you.  Stay tough my friend...hugs.

 

Beth

" We can't direct the wind, but we can adjust our sails " -author unknown

________________________________

From: " ajaoky@... " <ajaoky@...>

; ajao_young_adults

Sent: Tuesday, August 25, 2009 8:20:17 AM

Subject: any ideas?

 

a lil off topic...but my son had surgery last Thursday to repair his

torn meniscus. He has not done as well as anticipated. Despite pain meds he is

in horrific pain, has not ate, refuses to exercise his knee because it hurts and

I am so worried. He is beginning to lose weight and at 6'2 " and 150 he dont ned

to lose any. I spoke with his doc yesterday and he went to his first PT session

(didnt go well). Doc changed pain meds, no huge difference. I have never seen

like this and not only is he being mean and bitter he is hateful. he has

never had anything like this done before. No surgery, injury to this degree,

etc. I was hoping maybe some of you have experienced something like this with

yourself, child,friend, someone....any advice???

~Donna~

[Guest guest]

Hi, Donna. How is your son doing? Sorry I have no real suggestions to offer, but

did want to let you know I've been thinking of you and praying things are

getting better. Perhaps a talk with the physical therapist or dr might help?

hearing (again I am sure) that he needs to do the PT will help or a

reminder that the pain will get better from someone other than mom might help.

Good luck, please let us know how it is going, Michele ( 22, spondy)

________________________________

From: [mailto: ] On Behalf Of

ajaoky@...

Sent: Tuesday, August 25, 2009 8:20 AM

; ajao_young_adults

Subject: any ideas?

a lil off topic...but my son had surgery last Thursday to repair his

torn meniscus. He has not done as well as anticipated. Despite pain meds he is

in horrific pain, has not ate, refuses to exercise his knee because it hurts and

I am so worried. He is beginning to lose weight and at 6'2 " and 150 he dont ned

to lose any. I spoke with his doc yesterday and he went to his first PT session

(didnt go well). Doc changed pain meds, no huge difference. I have never seen

like this and not only is he being mean and bitter he is hateful. he has

never had anything like this done before. No surgery, injury to this degree,

etc. I was hoping maybe some of you have experienced something like this with

yourself, child,friend, someone....any advice???

~Donna~

[Guest guest]

Yes I have a suggestion, put him

in a sound prove room, with

a revolving food panel then bar the doo!

LOL or a large Rubber malet! A great

alternative to sleeping pills! LMAO!

Rusty Old man

p.s. don't even threaten to send him to

stay with me.....hplta!r

____________________________________________________________

Get an Unsecured Loan - Fast and Low Cost. Click here!

http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTIqYwbZSmgcEtai5yH9KbGcDe9hJz2\

IUAyAHw58o7RLLs4yD51arm/

[Guest guest]

Hi all, we believe my girlfriends daughter has aspergers. Our relationship of 5 years is not looking good, there are constant disagreements over her daughter, who has no made a new friend in 4 years and wants to spend all her time at the bookstore. Anyway, she wrote this on her website the other day. We all lived together, and, I moved out. They had no place to go, so, they were with me, but, recently moved away. I feel terrible for her daughter, but, its a daily battle. Does anyone see signs of auspergers in her writing? Her mom mentioned aspergers to her and she laughed at it. I have tried to talk to her over the years, tell her how great she is, she has been to two counselors. She will not look anyone in the eye and is content with playing video games all day. She is a great artist, but, has no

confidence in her art. I could continue with many other stories, but, after reading what she wrote, I am worried about her, as I always have been. By the way, she will be 20 in June. She can literally go days without saying a word, but, when i text her or send her an email, she writes me long answers and that is the only time I learn anything about her.

Thanks for reading!

Here is what she wrote:

I don't know what to do.I hate this. I hate this situation. I hate this situation I've been thrown into. I wish my life was easy. I wish it was as easy as some of my friends seem to have it. Their parents have good, steady jobs and they can afford to go to school. They have everything together. They're content.This homelessness thing- it's terrible. Staying with other people- moving from city to city- we can't be doing this. Not the rest of our lives. We have to be alone. We work better alone. I feel helpless because at this point there's not much I can do. If there is, I don't know where to begin. There's so many things I don't know. There's so many things I wish I knew.I wish the doctors my mom deals with weren't stingy and lazy and would give her more working hours. Enough to keep us stable and together again.I wish we could find a nice, affordable flat. Someplace where we'd have

privacy, the way we like it.I wish I could find a job-and finally start being self reliant.And getting things done. By myself.It could be like it was before.Maybe then I could be happy.Maybe we could be happy.But I'm wishing for too much.I just submitted an application to be enrolled into a new college- miles away from my old one at Mesa. Mira Costa College in Oceanside. The thing is- I didn't do too well in any of my last classes (partly my fault, partly the fault of my terrible instructors and the fact I put up with them the entire year), and I'm afraid that I'd be required to submit transcripts of my humiliating grades. Or worse, that they'd be brought to upfront attention. That's one thing I don't like about myself- I can't accept it. I can't let other people know that I make mistakes, that I of all people have failed at something. I can't let people know that, it burns me.

It burns me inside. I was smart as a kid, and I'm supposed to be smart now. Where did that promise go? I'm supposed have everything together. I'm 20 years old, why don't I have my life figured out? what am I doing with myself? What am I going to do with myself? Why can't I do this? Why can't I have everything together?This superiority complex I have- it's getting the better of me. I know it's there. It's there everyday- so why won't it go away if I want it to?No one would want to put up with my insecurity. I don't know how they have before. I'm positive it's why I keep my distance from people. It saves them the trouble. I'm such a good person.About the college itself- I applied like I was a completely new student. I sincerely hope I'm not berated or won't be allowed to register for classes for withholding information or anything like that. I got into a spat with my mother this morning. I

can't even register at Mesa like I should as a back-up plan- like I promised my mother- because I've been put on academic suspension. I'd have to see a counselor in person to lift the hold, but I'm 200 miles away in an unescapable city and I have no transportation. I'm trapped here. And I can't ask her. And no one else would do that for me.Because we live day-to-day, there's no saying where we'll be tomorrow, or the day after that, or the week after that. How can I figure out where I go to school If I don't even have a stable home? I can't be asking mom about these things- she's under a lot of pressure and rarely has an answer. And when she does its never, ever pleasant.She tells me to work something out, because what If we couldn't get the money (and financial aid) for a private art school? What if It doesn't work out? I should be prepared to go to a UC. I know she wasn't criticizing my artistic merit, but I can't help

but feel like she is anyway.Applying, keeping track of everything, this process is so confusing. I aware that there's not much to really even do, but it seems like a lot to me. A lot to remember- especially because I'm pressured to know everything already. And I'm too embarrassed to ask for help. I can't let people know I need help. Not me. You can't set the world at someone else's feet/ and not be trampled on underneath.I can't tell my mother. Not so much that I'm afraid of her but... I feel so ashamed. After all she's done and still is trying to do for me, I can't give her anything. I'm not productive, I have no job, I don't make art, I can drive but don't have a car or license, I'm not in school... just... ugh. How can I live with myself everyday? What am I going to do? If she knew, she'd be so disappointed in me. She's counting on me so much- I'm her only child. I have to do this right.I feel like I

don't deserve anything. Anything that I'm lucky enough to have.The working process for the application to go in is about 5-7 days. Let's see, It's the 7th today. I won't be able to register for classes until well into next week- and by then all the classes I want/need to take might already be gone. Or maybe they won't. I hope they aren't. I really hope not.Maybe I'll just take any classes open to fulfill the 12 unit requirement. But I've done that before- and when I take classes in a subject that doesn't interest me I don't apply myself. And thus the grade hits the ground. Cycle repeats.I'm going to try getting a schedule together anyway. It's the least I can do. I'll tell my mother that I have everything figured out and I can do it on my own. I can't bear to tell her the truth. I'm not strong enough. We would be over.And if you kids are reading this- I'd appreciate it if you didn't tell her either. That wouldn't

make me look any better in her eyes. She can't know I don't have everything together. What would she think? She has her own problems she's dealing with. I don't need to be another one. Besides, I'm an adult. I'm supposed to figure my problems out like an adult should. By myself. Please respect my wishes.I feel like I'm exposing so many insecurities of myself by posting this, but this a journal and its purpose is to record my life and how I see it. This is a public journal, and anyone can see them. My flaws. The least I can do is post- and let people know I'm not as great as I like to think I am.I could watch a youtube video to make me feel better... but that won't make my problem go away deep down.I feel like I want to cry right now. I'm so tired.

And now they sent me to give an explanationIt had to happen to ensure you were readyPrepare to take on a foe that was most deadlyAnd for that foe, you'll recieve no helpMega Ran, your last enemyis yourself.

[Guest guest]

Some kids have a Non Reading Learning Disorder and struggle

in school and with making friends. Many AS kids have NLD.

I think having NLS is close enough to AS to call it AS for

purposes of treatment. Usually the treatment for AS is

social skills and theory of mind type of teaching (see Michele Winner).

Her writing has a longing for a more normal life.

I would guess she is very smart in some areas her reasoning skills

perhaps and verbal skills perhaps but has some kind of LD that

made it hard for her to keep up and she feels lost.

She may be shy or inhibited to talk openly about herself in public

I can understand this since she is still struggling so and so

young.

I hope you can stay a part of there life. You may really make the difference in

their life. Encourage her to get out. Get involved in life. Get a part time job

or get her GED. You can be a force for

change in their life even if you don't give it a name.

If she needs medication for anxiety it can be helpful.

Pam

>  

>

>

>

>

> .ExternalClass .ecxhmmessage P

> {padding:0px;}

> .ExternalClass body.ecxhmmessage

> {font-size:10pt;font-family:Verdana;}

>

>

>

>

> I don't know what to do.

>

> I hate this. I hate this situation. I hate this situation I've been thrown

into. I wish my life was easy. I wish it was as easy as some of my friends seem

to have it. Their parents have good, steady jobs and they can afford to go to

school. They have everything together. They're content.

> This homelessness thing- it's terrible. Staying with other people- moving from

city to city- we can't be doing this. Not the rest of our lives. We have to be

alone. We work better alone. I feel helpless because at this point there's not

much I can do. If there is, I don't know where to begin. There's so many things

I don't know. There's so many things I wish I knew.

>

> I wish the doctors my mom deals with weren't stingy and lazy and would give

her more working hours. Enough to keep us stable and together again.

> I wish we could find a nice, affordable flat. Someplace where we'd have

privacy, the way we like it.

> I wish I could find a job-

> and finally start being self reliant.

> And getting things done. By myself.

> It could be like it was before.

> Maybe then I could be happy.

> Maybe we could be happy.

>

> But I'm wishing for too much.

>

> I just submitted an application to be enrolled into a new college- miles away

from my old one at Mesa. Mira Costa College in Oceanside. The thing is- I

didn't do too well in any of my last classes (partly my fault, partly the fault

of my terrible instructors and the fact I put up with them the entire year), and

I'm afraid that I'd be required to submit transcripts of my humiliating grades.

Or worse, that they'd be brought to upfront attention. That's one thing I don't

like about myself- I can't accept it. I can't let other people know that I make

mistakes, that I of all people have failed at something. I can't let people know

that, it burns me. It burns me inside. I was smart as a kid, and I'm supposed to

be smart now. Where did that promise go? I'm supposed have everything together.

I'm 20 years old, why don't I have my life figured out?  what am I doing with

myself? What am I going to do with myself? Why can't I do this? Why can't I have

> everything together?

> This superiority complex I have- it's getting the better of me. I know it's

there. It's there everyday- so why won't it go away if I want it to?

> No one would want to put up with my insecurity. I don't know how they have

before. I'm positive it's why I keep my distance from people. It saves them the

trouble. I'm such a good person.

>

> About the college itself- I applied like I was a completely new student. I

sincerely hope I'm not berated or won't be allowed to register for classes for

withholding information or anything like that. I got into a spat with my mother

this morning. I can't even register at Mesa like I should as a back-up plan-

like I promised my mother- because I've been put on academic suspension. I'd

have to see a counselor in person to lift the hold, but I'm 200 miles away in an

unescapable city and I have no transportation. I'm trapped here. And I can't ask

her. And no one else would do that for me.

> Because we live day-to-day, there's no saying where we'll be tomorrow, or the

day after that, or the week after that. How can I figure out where I go to

school If I don't even have a stable home? I can't be asking mom about these

things- she's under a lot of pressure and rarely has an answer. And when she

does its never, ever pleasant.

>

> She tells me to work something out, because what If we couldn't get the money

(and financial aid) for a private art school? What if It doesn't work out? I

should be prepared to go to a UC. I know she wasn't criticizing my artistic

merit, but I can't help but feel like she is anyway.

> Applying, keeping track of everything, this process is so confusing. I aware

that there's not much to really even do, but it seems like a lot to me. A lot to

remember- especially because I'm pressured to know everything already. And I'm

too embarrassed to ask for help. I can't let people know I need help. Not me.

You can't set the world at someone else's feet/ and not be trampled on

underneath.

>

> I can't tell my mother. Not so much that I'm afraid of her but... I feel so

ashamed. After all she's done and still is trying to do for me, I can't give her

anything. I'm not productive, I have no job, I don't make art, I can drive but

don't have a car or license, I'm not in school... just... ugh. How can I live

with myself everyday? What am I going to do? If she knew, she'd be so

disappointed in me. She's counting on me so much- I'm her only child. I have to

do this right.

>

> I feel like I don't deserve anything. Anything that I'm lucky enough to have.

>

> The working process for the application to go in is about 5-7 days. Let's see,

It's the 7th today. I won't be able to register for classes until well into next

week- and by then all the classes I want/need to take might already be gone. Or

maybe they won't. I hope they aren't. I really hope not.

> Maybe I'll just take any classes open to fulfill the 12 unit requirement. But

I've done that before- and when I take classes in a subject that doesn't

interest me I don't apply myself. And thus the grade hits the ground. Cycle

repeats.

>

> I'm going to try getting a schedule together anyway. It's the least I can do.

I'll tell my mother that I have everything figured out and I can do it on my

own. I can't bear to tell her the truth. I'm not strong enough. We would be

over.

>

> And if you kids are reading this- I'd appreciate it if you didn't tell her

either. That wouldn't make me look any better in her eyes. She can't know I

don't have everything together. What would she think? She has her own problems

she's dealing with. I don't need to be another one. Besides, I'm an adult. I'm

supposed to figure my problems out like an adult should. By myself. Please

respect my wishes.

>

> I feel like I'm exposing so many insecurities of myself by posting this,

but this a journal and its purpose is to record my life and how I see it. This

is a public journal, and anyone can see them. My flaws. The least I can do is

post- and let people know I'm not as great as I like to think I am.

>

> I could watch a youtube video to make me feel better... but that won't make my

problem go away deep down.

>

> I feel like I want to cry right now. I'm so tired.

>

>

>

>

>

> And now they sent me to give an explanation

>

> It had to happen to ensure you were ready

> Prepare to take on a foe that was most deadly

> And for that foe, you'll recieve no help

> Mega Ran, your last enemy

> is yourself.

>

[Guest guest]

Thanks Pamela, I looked at the Michele Winner site, interesting stuff. I'm not sure if we will all live together again, but, I still text and email her and see how she is. At least I get some response that way.I still think she should see a specialist, mostly so she can get some suggestions on how to deal with things. Suggestions that do not come from her mom or I. She says she liked going to the other psychologists because they were experts and she respected that. Hopefully her mom follows through with that.She is enrolled in community college for the semester, so that is a good thing.Thanks again for your response.From: Pamela <susanonderko@...>Subject: ( ) Re: any ideas? Date: Tuesday, January 12, 2010, 2:15 PM

Some kids have a Non Reading Learning Disorder and struggle

in school and with making friends. Many AS kids have NLD.

I think having NLS is close enough to AS to call it AS for

purposes of treatment. Usually the treatment for AS is

social skills and theory of mind type of teaching (see Michele Winner).

Her writing has a longing for a more normal life.

I would guess she is very smart in some areas her reasoning skills

perhaps and verbal skills perhaps but has some kind of LD that

made it hard for her to keep up and she feels lost.

She may be shy or inhibited to talk openly about herself in public

I can understand this since she is still struggling so and so

young.

I hope you can stay a part of there life. You may really make the difference in their life. Encourage her to get out. Get involved in life. Get a part time job or get her GED. You can be a force for

change in their life even if you don't give it a name.

If she needs medication for anxiety it can be helpful.

Pam

>

>

>

>

>

> .ExternalClass .ecxhmmessage P

> {padding:0px; }

> .ExternalClass body.ecxhmmessage

> {font-size:10pt; font-family: Verdana;}

>

>

>

>

> I don't know what to do.

>

> I hate this. I hate this situation. I hate this situation I've been thrown into. I wish my life was easy. I wish it was as easy as some of my friends seem to have it. Their parents have good, steady jobs and they can afford to go to school. They have everything together. They're content.

> This homelessness thing- it's terrible. Staying with other people- moving from city to city- we can't be doing this. Not the rest of our lives. We have to be alone. We work better alone. I feel helpless because at this point there's not much I can do. If there is, I don't know where to begin. There's so many things I don't know. There's so many things I wish I knew.

>

> I wish the doctors my mom deals with weren't stingy and lazy and would give her more working hours. Enough to keep us stable and together again.

> I wish we could find a nice, affordable flat. Someplace where we'd have privacy, the way we like it.

> I wish I could find a job-

> and finally start being self reliant.

> And getting things done. By myself.

> It could be like it was before.

> Maybe then I could be happy.

> Maybe we could be happy.

>

> But I'm wishing for too much.

>

> I just submitted an application to be enrolled into a new college- miles away from my old one at Mesa. Mira Costa College in Oceanside. The thing is- I didn't do too well in any of my last classes (partly my fault, partly the fault of my terrible instructors and the fact I put up with them the entire year), and I'm afraid that I'd be required to submit transcripts of my humiliating grades. Or worse, that they'd be brought to upfront attention. That's one thing I don't like about myself- I can't accept it. I can't let other people know that I make mistakes, that I of all people have failed at something. I can't let people know that, it burns me. It burns me inside. I was smart as a kid, and I'm supposed to be smart now. Where did that promise go? I'm supposed have everything together. I'm 20 years old, why don't I have my life figured out? what am I doing with myself? What am I going to do with

myself? Why can't I do this? Why can't I have

> everything together?

> This superiority complex I have- it's getting the better of me. I know it's there. It's there everyday- so why won't it go away if I want it to?

> No one would want to put up with my insecurity. I don't know how they have before. I'm positive it's why I keep my distance from people. It saves them the trouble. I'm such a good person.

>

> About the college itself- I applied like I was a completely new student. I sincerely hope I'm not berated or won't be allowed to register for classes for withholding information or anything like that. I got into a spat with my mother this morning. I can't even register at Mesa like I should as a back-up plan- like I promised my mother- because I've been put on academic suspension. I'd have to see a counselor in person to lift the hold, but I'm 200 miles away in an unescapable city and I have no transportation. I'm trapped here. And I can't ask her. And no one else would do that for me.

> Because we live day-to-day, there's no saying where we'll be tomorrow, or the day after that, or the week after that. How can I figure out where I go to school If I don't even have a stable home? I can't be asking mom about these things- she's under a lot of pressure and rarely has an answer. And when she does its never, ever pleasant.

>

> She tells me to work something out, because what If we couldn't get the money (and financial aid) for a private art school? What if It doesn't work out? I should be prepared to go to a UC. I know she wasn't criticizing my artistic merit, but I can't help but feel like she is anyway.

> Applying, keeping track of everything, this process is so confusing. I aware that there's not much to really even do, but it seems like a lot to me. A lot to remember- especially because I'm pressured to know everything already. And I'm too embarrassed to ask for help. I can't let people know I need help. Not me. You can't set the world at someone else's feet/ and not be trampled on underneath.

>

> I can't tell my mother. Not so much that I'm afraid of her but... I feel so ashamed. After all she's done and still is trying to do for me, I can't give her anything. I'm not productive, I have no job, I don't make art, I can drive but don't have a car or license, I'm not in school... just... ugh. How can I live with myself everyday? What am I going to do? If she knew, she'd be so disappointed in me. She's counting on me so much- I'm her only child. I have to do this right.

>

> I feel like I don't deserve anything. Anything that I'm lucky enough to have.

>

> The working process for the application to go in is about 5-7 days. Let's see, It's the 7th today. I won't be able to register for classes until well into next week- and by then all the classes I want/need to take might already be gone. Or maybe they won't. I hope they aren't. I really hope not.

> Maybe I'll just take any classes open to fulfill the 12 unit requirement. But I've done that before- and when I take classes in a subject that doesn't interest me I don't apply myself. And thus the grade hits the ground. Cycle repeats.

>

> I'm going to try getting a schedule together anyway. It's the least I can do. I'll tell my mother that I have everything figured out and I can do it on my own. I can't bear to tell her the truth. I'm not strong enough. We would be over.

>

> And if you kids are reading this- I'd appreciate it if you didn't tell her either. That wouldn't make me look any better in her eyes. She can't know I don't have everything together. What would she think? She has her own problems she's dealing with. I don't need to be another one. Besides, I'm an adult. I'm supposed to figure my problems out like an adult should. By myself. Please respect my wishes.

>

> I feel like I'm exposing so many insecurities of myself by posting this, but this a journal and its purpose is to record my life and how I see it. This is a public journal, and anyone can see them. My flaws. The least I can do is post- and let people know I'm not as great as I like to think I am.

>

> I could watch a youtube video to make me feel better... but that won't make my problem go away deep down.

>

> I feel like I want to cry right now. I'm so tired.

>

>

>

>

>

> And now they sent me to give an explanation

>

> It had to happen to ensure you were ready

> Prepare to take on a foe that was most deadly

> And for that foe, you'll recieve no help

> Mega Ran, your last enemy

> is yourself.

>

[Guest guest]

Well she is certainly intelligent. I think she's got pretty good insight too

about herself. How has she been in social situations you may have been around,

does she just not " connect " to other peers, is she awkward about it in any way

(what she says or other)? She states she purposely keeps a distance from

people, do you think that's always been the case?

My Aspie son (who'll be 21 this month) would try in social situations. I can't

really find the words to describe it. When younger it was maybe just the odd

things he'd say, and maybe not the age/peer interests as others had. I even

found myself wanting to roll my eyes sometimes. I think he's gotten better as

he got older but still can't seem to connect. And he's also very intelligent,

nice (too nice sometimes), and he still tries to socialize. Thinking back to

myself at that age (I'm past 50) and then comparing to my other 2 sons, all I

can say is he just isn't the average person, he's different. And the nicest

person I know. I have 2 other sons, by the way, " typical, " one is a twin to

him (not identical).

Back to you, it does seem to me she's depressed. And I wish she didn't feel she

can't ask for help with things. Though at that age I think I found it harder to

also if everyone else seemed to just " know. " She does seem to feel overwhelmed

and frustrated. With herself and apparently her mom/her living situation. I

wish she could find a counselor/therapist to talk to. How do you feel about

her ability to hold a job, be able to drive a car, live on her own (pay bills,

clean home, cook...)?

Well, you know all this! I wonder has she read any descriptions of Aspergers

or even Nonverbal Learning Disorder (similar), and if she would be able to

identify with anything mentioned. I wouldn't rule out Aspergers. I'm glad she

has her journal to vent in, I'm sure it helps. Are you living in the same city,

any way to spend time with her, take her out to lunch or something?

At her age, she'd have to want to get herself evaluated. I wonder if you found

a place for her to go, would she be interested.

Just some random thoughts,

>

> Hi all, we believe my girlfriends daughter has aspergers.  Our relationship of

5 years is not looking good, there are constant disagreements over her daughter,

who has no made a new friend in 4 years and wants to spend all her time at the

bookstore.  Anyway, she wrote this on her  website the other day.  We all lived

together, and, I moved out.  They had no place to go, so, they were with me,

but, recently moved away.  I feel terrible for her daughter, but, its a daily

battle.  Does anyone see signs of auspergers in her writing?

[Guest guest]

Thank you Notan your post to was very interesting. I have similar

problems but my stomach was made into a tube after the ectomy and is in my

chest. I sympathise with s husband greatly. and am following their

progress with avid interest. The medications prescribed by surgeons at my last

review 3 months ago for my reflux, stomach emptying and aspirations into my

lungs are not working as i had hoped and now i have problems with side effects

because i am maxed out on all of them.

from the UK

________________________________

From: notan ostrich <notan_ostrich@...>

achalasia

Sent: Thu, October 7, 2010 5:42:48 PM

Subject: Re: Any ideas?

 

STEPHANIE wrote:

> ... The endoscopies and dialations helped with the spasms and is allowing the

>food to pass a little better but it is still sitting in his stomach to long,

>causing bloating and rotten egg burps. ...

If food is getting to the stomach fast enough but it is not emptying

from the stomach then the problem is no longer the esophagus. Have they

done anything to speed the emptying of the stomach? Beyond taking a look

with a scope to see what action is in the stomach, a barium X-ray is

used to see if food stays in the stomach after a fast. It is often used

when gastroparesis is suspected. There is also gastric emptying

scintigraphy. It is one type of gastric-emptying study. If stomach

motility is a problem, treatment options generally include: diet,

medications, surgery, and dilatation or Botox of the pyloric sphincter.

Also, but experimental, there is Electrical Gastric Stimulation. It is

like a pacemaker for your stomach. Diet is usually the first choice --

less fat, less fibrous food, more water and small meals.

There are other, less common tests that can also be done:

Gastric duodenal manometry -- to test the contractions of the stomach.

Scintigraphic Gastric Accommodation -- to test how well the stomach relaxes.

Small Intestinal X-ray -- to see if something in the small intestines is

blocking the outlet of the stomach.

Stomach motility problems can be caused by damage to the vagus nerve. It

is possible to damage the vagus nerve during a heller myotomy for achalasia.

I recommend reading:

http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/

notan