Re: question about maintenance

September 24, 2008

Chloe (ALL dx 12/06) is on Maintenance now, and hasn't had any issues with vomiting (once...after a spinal a few months back, but I related that to getting her up too quickly after the spinal) I am not sure if they are on the same protocol or not, but none of the meds she is on have made her vomit. Since diagnosis we have had two major vomiting days, once after that spinal during maintenance, and the other back in DI, after she got one of the first doses of either the Ara-C or maybe it was the Doxorubicin. Those were the only two times we needed Zofran. I am sorry you guys are going through this!!

, Mom to Chloe (age 5 Down Syndrome and Pre B Cell ALL dx 11/30/06 COG AALL-0331 low risk standard arm. 8 more months to go!!!!)

CaringBridge.org/visit/Chloemalena

**************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

September 24, 2008

My son just finished treatment for ALL. He had no problems with vomitting, and we're not sure about the nausea because he was never able to tell us. He may have been nauseated at times and those were just times when he didn't eat, but we can't be sure.

Bridget's little guy has been having problems with vomitting. Maybe she can give you some guidance.

Ann

From: conniegliott@...Date: Wed, 24 Sep 2008 10:36:39 -0700Subject: [ ] question about maintenance

My son , PreB ALL diagnosed 8/11/07, age 6 has been struggling with vomiting ever since he started maintenance and got his G tube inserted. We have never really been able to tell if it was the oral drugs for maintenance that is causing his vomiting or his G tube. He is taking zofran constantly and it does seem to help some. Has anyone else had this problem or can you give me an idea how your children respond to the maintenance program. It is as if he is sicker now then before. The nurse said most children don't throw up on maintenance but maybe down syndrome children do not do as well. I don't know but I would love your opinions and stories.

Connie Gliott

September is Leukemia Awareness Month" S. Pearson" <stpearson@sbcglobal .net>Date: Thursday, September 18, 2008, 3:58 PM

3520 Lake AvenueSuite #202Wilmette, IL 60091-1064 Phone: (888) 558-5385 Fax: (847) 424-0606 Privacy PolicyYour Email Preferences

September is Leukemia and Lymphoma Awareness Month

Dear Friend:

We appreciate your past support of the Leukemia Research Foundation and, although remarkable progress has been made resulting in more effective treatments for those suffering from blood cancers, we still have not found a cure.

September is Leukemia and Lymphoma Awareness Month and the fact remains that leukemia and lymphoma will strike more than 100,000 people this year. Every five minutes someone is diagnosed with blood cancer; every ten minutes someone dies.

The Leukemia Research Foundation provides essential funding for innovative investigators, who are the primary source of new ideas - the new ideas that can result in the next great leap forward in the battle against blood cancers.

At a time when New Investigators are heavily impacted by federal and state funding cut backs, private funding becomes even more critical. So, please, help during Leukemia Awareness Month – to help fund new investigators and empower them to continue the fight against blood cancers.

Please to help save lives and to help ensure that the best medical research is funded so that soon a cure will be found.

Please to ensure the financial strain of undergoing medical treatment does not devastate families.

Please to ensure that patients receive the information they need to make informed treatment decisions.

Please in memory of a loved one, friend, co-worker or neighbor.

The Leukemia Research Foundation is committed to finding cures for leukemia, lymphoma and myelodysplastic syndromes and to enriching the quality of lives of those touched by these diseases.

Help the Leukemia Research Foundation provide essential funding for innovative investigators during Leukemia and Lymphoma Awareness Month – . Thank you. Sincerely,

ezBoard PresidentLeukemia Research Foundationinfolrfmail (DOT) org

September 24, 2008

had a lot of nausea and urpiness and some vomiting in LTM (long term maintenance). Our onc nurses also said that it's not normal to have that in LTM. He ended up on Zofran too and that helped. He also was on a reflux drug. We weren't sure if it was the drugs or some other GI issue. But as soon as he went off treatment, like within a month, all that was gone, he was off Zofran, off the reflux drug, and feeling fine. Everyone agrees that for some reason, the LTM oral chemo drugs were what was bothering him.

Beth, mom to , age 8, DS/ALL/autism, diagnosed 10-29-03 with highrisk preB ALL, treated according to protocol 1961c, off treatment March 9, 2007!www.caringbridge.org/in/kylefacts