sensory issues

October 28, 2005

I feel just the way you have described when I have sinus pressure and infection. Any kind of fever, no matter how slight, will make me touchy to noise and smells, and what not. Right now I have a bad tooth and am going through a process of having a root canal and feel this way, very irritable to everything. I say process because now I have to go to a specialist for calcified canals.

Anyway I would think that a person with underlying problems such as autism that their irritability would just be worse.

I pray your boy gets better soon! Is he on antibiotic?

Carolyn

Sensory issues

My fourteen-year-old son has been sick for a week with fever and coughing, and during that time has not been able to tolerate much light or certain odors. Even my salad was painfully smelly to him. He suffered intensely when Dad walked through the house briefly with a lit cigar. And, even a lamp light across the room and behind him bothers him.Has anyone noticed this in your child? My son was diagnosed with Asperger Syndrome two years ago, and I'm thinking this is part of it.Kathy T.

October 28, 2005

Kathy,

It may have something to do with the AS but I know that when I have the flu light and certain smells irritate me. Smoke can be especially bothersome because of an irritated throat. Throw the flu into the mix with AS and I see how it is entirely possible..... I hope he feels better soon!!!

in Lancaster, Capsalms2go4 <psalms2go4@...> wrote:

My fourteen-year-old son has been sick for a week with fever and coughing, and during that time has not been able to tolerate much light or certain odors. Even my salad was painfully smelly to him. He suffered intensely when Dad walked through the house briefly with a lit cigar. And, even a lamp light across the room and behind him bothers him.Has anyone noticed this in your child? My son was diagnosed with Asperger Syndrome two years ago, and I'm thinking this is part of it.Kathy T.

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October 29, 2005

Yes, we did finally go to the doctor yesterday, so Ray is on an antibiotic now. The doctor diagnosed it as "pre Bronchitis", so hopefully that rules out other things like menningitis.

I hope you finally get your dental situation resolved at the endodontist's office. I can't imagine having a painful condition like that drag on so long.

Thanks to all who posted replies to my sensory issues question. It was a relief to know it is widely considered part of the syndrome and not something else. Ray is tolerating the light much better now and feeling better overall.

Kathy T.Carolyn <charper777@...> wrote:

I feel just the way you have described when I have sinus pressure and infection. Any kind of fever, no matter how slight, will make me touchy to noise and smells, and what not. Right now I have a bad tooth and am going through a process of having a root canal and feel this way, very irritable to everything. I say process because now I have to go to a specialist for calcified canals.

Anyway I would think that a person with underlying problems such as autism that their irritability would just be worse.

I pray your boy gets better soon! Is he on antibiotic?

Carolyn

Sensory issues

My fourteen-year-old son has been sick for a week with fever and coughing, and during that time has not been able to tolerate much light or certain odors. Even my salad was painfully smelly to him. He suffered intensely when Dad walked through the house briefly with a lit cigar. And, even a lamp light across the room and behind him bothers him.Has anyone noticed this in your child? My son was diagnosed with Asperger Syndrome two years ago, and I'm thinking this is part of it.Kathy T.

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October 29, 2005

Thank you, . He does, now that he's been on an antibiotic for a couple days.

Kathy T.M Strahlendorf <pgnsht@...> wrote:

Kathy,

It may have something to do with the AS but I know that when I have the flu light and certain smells irritate me. Smoke can be especially bothersome because of an irritated throat. Throw the flu into the mix with AS and I see how it is entirely possible..... I hope he feels better soon!!!

in Lancaster, Capsalms2go4 <psalms2go4@...> wrote:

My fourteen-year-old son has been sick for a week with fever and coughing, and during that time has not been able to tolerate much light or certain odors. Even my salad was painfully smelly to him. He suffered intensely when Dad walked through the house briefly with a lit cigar. And, even a lamp light across the room and behind him bothers him.Has anyone noticed this in your child? My son was diagnosed with Asperger Syndrome two years ago, and I'm thinking this is part of it.Kathy T.

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October 30, 2005

Hi. Yes my son has a keen sense of smell.

My son is 8 with Aspergers and yesterday we had a Halloween party. We had

smores/hot dogs cooked in our backyard in a bomb fire. I was preparing for our

party early afternoon and was chopping onions. My son walked through the kitchen

to eat a late lunch. Only to find he couldn’t stand the smell, holding

his nose was dramatic about it. My son couldn’t stand the smell and ate

outside of the kitchen. I didn’t make a big deal of it for I knew it was

coming when he saw the onions or first smelled of it. My son has always

been this way…if something doesn’t smell like he thinks it should…he

stands no chance in eating it or will get sick right back in his plate (sorry,

just giving info) We have had to learn the hard way and we didn’t know

any better at the time…if a person hasn’t tried a food, then how will

you know if you like it or not? We used to make him try foods and he would tell

us that he didn’t like the way it “smelt” at times I

thought he was being to finicky and didn’t want him to miss out on opportunity

not to try something new. Never failed he always would become sick (this drove

my husband crazy) but nevertheless we figured out not to push it. Sometimes to

this day when I don’t smell anything, I don’t think he should so

when he says…I smell..yada yada…I still ask him to try foods. Sometimes

he will sometimes he refuses and when he refuses, I don’t push it.

Debs J

Sensory issues

My fourteen-year-old son has been sick for a week with

fever and

coughing, and during that time has not been able

to tolerate much

light or certain odors. Even my salad was

painfully smelly to him. He

suffered intensely when Dad walked through the

house briefly with a

lit cigar. And, even a lamp light across the room

and behind him

bothers him.

Has anyone noticed this in your child? My

son was diagnosed with

Asperger Syndrome two years ago, and I'm thinking

this is part of it.

Kathy T.

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October 31, 2005

Debs,

That is identical to my son. Even if he has eaten something 100 times he still smells it before his first initial bite...LOL.....

in Lancaster, CaBarry Hitchcock <bazndeb@...> wrote:

Hi. Yes my son has a keen sense of smell. My son is 8 with Aspergers and yesterday we had a Halloween party. We had smores/hot dogs cooked in our backyard in a bomb fire. I was preparing for our party early afternoon and was chopping onions. My son walked through the kitchen to eat a late lunch. Only to find he couldn’t stand the smell, holding his nose was dramatic about it. My son couldn’t stand the smell and ate outside of the kitchen. I didn’t make a big deal of it for I knew it was coming when he saw the onions or first smelled of it. My son has always been this way…if something doesn’t smell like he thinks it should…he stands no chance in eating it or will get sick right back in his plate (sorry, just giving info) We have had to learn the hard way and we didn’t know any better at the time…if a person hasn’t tried a food, then how will you know if you like

it or not? We used to make him try foods and he would tell us that he didn’t like the way it “smelt” at times I thought he was being to finicky and didn’t want him to miss out on opportunity not to try something new. Never failed he always would become sick (this drove my husband crazy) but nevertheless we figured out not to push it. Sometimes to this day when I don’t smell anything, I don’t think he should so when he says…I smell..yada yada…I still ask him to try foods. Sometimes he will sometimes he refuses and when he refuses, I don’t push it.

Debs J

-----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of psalms2go4Sent: Thursday, October 27, 2005 1:27 PMAutism and Aspergers Treatment Subject: Sensory issues

My fourteen-year-old son has been sick for a week with fever and coughing, and during that time has not been able to tolerate much light or certain odors. Even my salad was painfully smelly to him. He suffered intensely when Dad walked through the house briefly with a lit cigar. And, even a lamp light across the room and behind him bothers him.Has anyone noticed this in your child? My son was diagnosed with Asperger Syndrome two years ago, and I'm

thinking this is part of it.Kathy T.

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April 15, 2007

From the last of your post, it sounds like she's needing that deep pressure input. My 4ds is much like that. When the OT put the pressure vest on him for the 1st time, you could actually see the release within him. He constantly requires that deep pressure on him. So far, we've found the weighted vest to suit him best. I would try having her sleep with the heavier blankets on her to begin with. DS is quite oral too. in fact, instead of buying something, we've invented our own chew.. It's working like a charm!!! It's a pull away shoe lace type necklace with chew resistant tubing (about 2 inches in length) strung through it. He wears it always (waking hours only) and chews it often! However, his clothes and fingers are now being spared. Also, because he has Celiac disease and other strong allergies, we found this suited him best instead of him becoming sick from chewing on what ever he found! I would try to talk with the OT or who ever is

working on the sensory, and see if they can incorporate more deep pressure/heavy body works in to the therapy. I hope this helps some! Kristie M. "The truth of God's love is not that he allows bad things to happen.... it's his promise that he will be there with us when they do!"

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April 16, 2007

Sensory issues are all part of autism. When my son was diagnosed

right after his 2nd birthday, he attended a toddler school for

special needs that particularly focused on Sensory Integration (they

branched off of the Ayers Institute). During the year there, they

made me become aware of why he did some of the things he did that

were sensory related and helped him adjust a bit but there were no

major improvements. He has continued to have OT through this clinic

for almost 6 years and he still has some sensory issues but nowhere

near as many as he had in the past.

Over these 6 years, I have discovered that each sensory issue is a

different puzzle. I have uncovered the mystery of most but not all.

Most of them ended up either being diet related or due to a

deficiency. Comparing notes with other parents has helped

tremendously. For example, like you daughter, my son mouthed things

alot. He also would bite things. I heard from other parents this is

commonly due to a zinc deficiency. After struggling for a year with

redirection, making things taste bad, telling him firmly no etc, the

answer was so simple. What I thought was a behaviour was actually a

physical need. I started giving my son 10mg of zinc per day (opened

up the capsule and mixed in his juice) and by day 2, the biting

stopped. Another surprising benefit was he has his first solid stool

in his life. After a few months, I forgot to give it to him for a

few days and the biting returned. Zinc is the most common deficiency

that causes mouthing/biting/eating non-food items but some find it is

calcium or magnesium.

I am aspergers and also have sensory issues. My biggest problem is

my skin is sensitive - especially the top of my feet. It makes it

difficult to wear shoes and after having had 5 kids, I can honestly

say it hurts more when someone steps on my foot than it does to

deliver a baby. The pain shoots up my spine and makes my head feel

like it is going to explode. I get dizzy and confused for 20-30

minutes. This sensitivity has greatly decreased since I removed food

additives (MSG, nitrates & red food dye) from my diet.

>

> I am sure this is a normal question, and I am sure I will get a ton

> of yesses, but, is anyone else's child going through or already

gone

> through sensory integration therapy??? Mine is and she doesn't

seem

> to be improving. Does anyone else have any help with this???

> Paisley, my daughter, is 2 and 1/2 and she was diagnosed with ASD

in

> December 2006. She is in speech therapy and sensory integration

> therapy. They just haven't been doing alot with the sensory part.

> Her only therapy right now is through the ECI program. She

actually

> seems to have gotten worse, mouthing more and feeling almost

> everything. Even things before that she didn't, she puts anything

> with a vibration to her cheek to feel and she has this toy that she

> has had forever and she does that now, she mouths everything and

now

> is sucking her fingers, whereas she has never done this until the

> past few weeks and her sleeping patterns are getting even worse. I

am

> not sure if this is sensory related, but I figured some advice from

a

> btdt parent would help me nonetheless. She actually sleeps under

her

> pillow, so last night when she awoke screaming(as always), I moved

> her to the couch where she was pointing to, and laid her there and

> put a heavy fur/suede blanket on her and covered her torso and legs

> with throw pillows and she went to sleep and slept good after

that.

> Is this normal with ASD children?

> Thanks,

>

April 19, 2007

Dear , Thank you. You have actually given me more info than her current therapists, who have told me to blow bubbles and all these other activities. They told me to tell her, okay dinner will be ready in 5 minutes and set a timer, which made no sense to me because she's 2, and they never once mentioned diet. Not once, but it makes sense because if you think about pregnancy related pica it is due to a lack of some nutrient, usually iron. Do you know if I can have her tested to find out what she is lacking in her diet??? Or is it just test and see? She is also very sensitive to the touch, especially her head, it really sets her off and then she reacts, by having an outburst or episode, whatever u call it, I don't call them tantrums because she's not doing it for a power struggle. Also her feet are sensitive as well, like she never ever wants to wear shoes, I put them on and as soon as we are in the car shoes and socks are

off. When she was still in daycare I would pick her up we would get home she would put her foot up at me for me to take off her shoes and socks and she wanted her feet rubbed, strange for a 2 year old, but not for my girl, because it soothes her. I just wanted to say thank you for really helping me, because no therapist or doctor had even really explained the sensory therapy to me or what it meant. cubicmonica <cubicmonica@...> wrote: Sensory issues are all part of autism. When my son

was diagnosed right after his 2nd birthday, he attended a toddler school for special needs that particularly focused on Sensory Integration (they branched off of the Ayers Institute). During the year there, they made me become aware of why he did some of the things he did that were sensory related and helped him adjust a bit but there were no major improvements. He has continued to have OT through this clinic for almost 6 years and he still has some sensory issues but nowhere near as many as he had in the past.Over these 6 years, I have discovered that each sensory issue is a different puzzle. I have uncovered the mystery of most but not all. Most of them ended up either being diet related or due to a deficiency. Comparing notes with other parents has helped tremendously. For example, like you daughter, my son mouthed things alot. He also would bite things. I heard from other parents this is commonly due to a

zinc deficiency. After struggling for a year with redirection, making things taste bad, telling him firmly no etc, the answer was so simple. What I thought was a behaviour was actually a physical need. I started giving my son 10mg of zinc per day (opened up the capsule and mixed in his juice) and by day 2, the biting stopped. Another surprising benefit was he has his first solid stool in his life. After a few months, I forgot to give it to him for a few days and the biting returned. Zinc is the most common deficiency that causes mouthing/biting/eating non-food items but some find it is calcium or magnesium.I am aspergers and also have sensory issues. My biggest problem is my skin is sensitive - especially the top of my feet. It makes it difficult to wear shoes and after having had 5 kids, I can honestly say it hurts more when someone steps on my foot than it does to deliver a baby. The pain shoots up my spine

and makes my head feel like it is going to explode. I get dizzy and confused for 20-30 minutes. This sensitivity has greatly decreased since I removed food additives (MSG, nitrates & red food dye) from my diet.>> I am sure this is a normal question, and I am sure I will get a ton > of yesses, but, is anyone else's child going through or already gone > through sensory integration therapy??? Mine is and she doesn't seem > to be improving. Does anyone else have any help with this??? > Paisley, my daughter, is 2 and 1/2 and she was diagnosed with ASD in > December 2006. She is in speech therapy and sensory integration > therapy. They just haven't been doing alot with the sensory part. > Her only therapy right

now is through the ECI program. She actually > seems to have gotten worse, mouthing more and feeling almost > everything. Even things before that she didn't, she puts anything > with a vibration to her cheek to feel and she has this toy that she > has had forever and she does that now, she mouths everything and now > is sucking her fingers, whereas she has never done this until the > past few weeks and her sleeping patterns are getting even worse. I am > not sure if this is sensory related, but I figured some advice from a > btdt parent would help me nonetheless. She actually sleeps under her > pillow, so last night when she awoke screaming(as always), I moved > her to the couch where she was pointing to, and laid her there and > put a heavy fur/suede blanket on her and covered her torso and legs > with throw pillows and she went to sleep and slept good after that.

> Is this normal with ASD children? > Thanks,> >

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

July 4, 2007

what about a tight tank top? i assume you've tried sports bras?

In a message dated 07/04/2007 9:15:31 A.M. Eastern Daylight Time, slbernzott@... writes:

Hi, my name is and I am desperate for help with my fourteen year old daughter with severe sensory issues. She cannot tolerate underwear of anykind. The problem is that her breasts are really beginning to develop, we have tried at least 50 different bras (Goodwill has lots of donations), and nothing has worked. When I finally get one on her, she gets on the bus, removes her arms from the straps and wears it around her waist until she can get to schooll and take it off. We have been through sensory integration therapy, and have also racticed strategies at home. He discomfort is very real, but socially, at school, it is affecting her. i am open to alternative suggestions and am very frustrated, not to mention, much poorer for all the underwear. I look forward to your suggestions.

I LOVE SOMEONE WITH AUTISM See what's free at AOL.com.

July 4, 2007

Dear ,

Have you tried camisoles? They're stretchy, with spaghetti straps and a shelf bra inside. I can't stand bras either, and wear these. They are supercomfortable, and come to your waist. They're making them longer, and you can always cut them to the waist.

Ditto underpants. Uncomfortable things that always ride up your butt.

Years ago J.Crew had a bathing suit bottom that was soft, stretchy, and comfy. They are so easy to make. Picture a trapezoid. I don't know if J.Crew still carries them, so you'd have one to use for a pattern if she's okay with it.

If nothing works, remember that people didn't always wear underwear! I think underpants came in in the 1800's.

Francine

p.s. I just went to J.Crew's website, and they don't have those kind of suits any more. If you think it might work for your daughter, it's an easy sew. (I'm no seamstress!) I could send you a sketch, since I don't know how to do that in an email.

In a message dated 7/4/2007 9:15:32 A.M. Eastern Daylight Time, slbernzott@... writes:

Hi, my name is and I am desperate for help with my fourteen year old daughter with severe sensory issues. She cannot tolerate underwear of anykind. The problem is that her breasts are really beginning to develop, we have tried at least 50 different bras (Goodwill has lots of donations), and nothing has worked. When I finally get one on her, she gets on the bus, removes her arms from the straps and wears it around her waist until she can get to schooll and take it off. We have been through sensory integration therapy, and have also racticed strategies at home. He discomfort is very real, but socially, at school, it is affecting her. i am open to alternative suggestions and am very frustrated, not to mention, much poorer for all the underwear. I look forward to your suggestions.

See what's free at AOL.com.

July 4, 2007

,

I know how she feels! Bra's are torture devices, but not wearing

one can be torture too. I honestly think it is cruel that society

requires women to wear them, when the male equivalent (the jock strap)

is reserved for sports only. (And no man on this planet would

wear one of those all day long!) That said, I do own one bra that

I can wear for a whole day (but I can't wear it every day - I feel like

my breasts are suffocating from the fabric if I try to - but I can

manage every other day if I try really hard) and it was very expensive

as bras go. It is the IPEX wireless -

http://www2.victoriassecret.com/commerce/application/prodDisplay/?namespace=productDisplay & origin=onlineProductDisplay.jsp & event=display & prnbr=ZU-191194 & page=1 & cgname=OSBRPBBVBRA & rfnbr=10

I almost didn't buy it because of the cost but I really needed to have

one comfortable bra for special occasions and I'm so glad I spent the

money on it.

Are you sure you've picked out the right size for her? Here's a

good picture demo of how to measure:

http://www2.victoriassecret.com/braguide/how_to_measure.cfm You

can also check with the local department stores - sometimes they run

bra sizing days where you can get a professional to do the

measurements, and you don't normally have to buy anything to

participate. Having the right size is vital to having a

comfortable bra and it is fairly common for a woman to be wearing the

wrong size bra.

For the most part, I don't wear anything. Here's some suggestions

that may help reduce the visibility of her nipples when not wearing a

bra:

-Tube tops serve a similar purpose and can be a lot more

comfortable. They also make a " bandeau " style now, which is a

shorter tube top.

-Putting a tank top under a tee-shirt can help too, and this seems to

be in style recently (with the straps showing out the top and a bit of

the fabric peeking out from under the shirt at the bottom).

-Sticking to shirts made of thicker materials like short sleeve knits instead of tees

Good luck!

-Lana

On 7/4/07, slbernzott <slbernzott@...> wrote:

Hi, my name is and I am desperate for help with my fourteen year

old daughter with severe sensory issues. She cannot tolerate underwear

of anykind. The problem is that her breasts are really beginning to

develop, we have tried at least 50 different bras (Goodwill has lots of

donations), and nothing has worked. When I finally get one on her,

she gets on the bus, removes her arms from the straps and wears it

around her waist until she can get to schooll and take it off. We have

been through sensory integration therapy, and have also racticed

strategies at home. He discomfort is very real, but socially, at

school, it is affecting her. i am open to alternative suggestions and

am very frustrated, not to mention, much poorer for all the underwear.

I look forward to your suggestions.

July 4, 2007

Have you tried a sports type bra? They are soft, they do not bind and

some can really hold up a larger framed woman.

>

> Hi, my name is and I am desperate for help with my fourteen year

> old daughter with severe sensory issues. She cannot tolerate underwear

> of anykind. The problem is that her breasts are really beginning to

> develop, we have tried at least 50 different bras (Goodwill has lots of

> donations), and nothing has worked. When I finally get one on her,

> she gets on the bus, removes her arms from the straps and wears it

> around her waist until she can get to schooll and take it off. We have

> been through sensory integration therapy, and have also racticed

> strategies at home. He discomfort is very real, but socially, at

> school, it is affecting her. i am open to alternative suggestions and

> am very frustrated, not to mention, much poorer for all the underwear.

> I look forward to your suggestions.

>

July 4, 2007

Hello ,

When my dd was going through this we had to use all cotton only. We used the sport bras specifically the ones that go over your head, with no clips or buckles as they drove her crazy. If your daughter likes camisoles then get the ones that have the spaghetti straps, my dd hates thin straps too. For the underwear we had the same problem and they have to be all cotton as well.

The other thing we did was we started her with them over the summer when she was home and it didn't matter who saw her or who didn't. We started with her wearing it only for an hour at first then once she managed with that we increased it for her to 2hrs etc. You can use your own time frames that work for you. Also whenever she went out she had to put it on too and leave it on. You can do a reward for doing leaving it on as well to help give her an incentive.

Cotton is a natural fabric and allows the skin to breathe more easily. All of my 3 children with ASD all use cotton only for all their undergarments, shirts and most of their clothes. They prefer the natural fabric. Nothing knitted or yarn and no denim for any of them either so I know what you are going through.

Hope this helps some.

Marie

Helping People Find...

www.Freedom4Families.com

sensory issues

Hi, my name is and I am desperate for help with my fourteen year old daughter with severe sensory issues. She cannot tolerate underwear of anykind. The problem is that her breasts are really beginning to develop, we have tried at least 50 different bras (Goodwill has lots of donations), and nothing has worked. When I finally get one on her, she gets on the bus, removes her arms from the straps and wears it around her waist until she can get to schooll and take it off. We have been through sensory integration therapy, and have also racticed strategies at home. He discomfort is very real, but socially, at school, it is affecting her. i am open to alternative suggestions and am very frustrated, not to mention, much poorer for all the underwear. I look forward to your suggestions.

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July 5, 2007

Hi ,

I don't know if this will work for you, but I started with a camisole (they

are pretty and comfortable) and had her wear her bra at short intervals at

home. She can tolerate wearing a bra now and puts up with it although she

still struggles and would rather not wear one. Also, she seems to do better

with sports bras over the regular one. Hanes makes one that doesn't give a

whole lot of support but she is more likely to wear it because it is a light

cotton and doesn't seem to irritate her. It is better than nothing!