Re: diets-Caroline

[Guest guest]

Wow, I thought I was the only one whose child did badly on Omega 3.. I even tried different brands thinking it was the brand.. It makes him sooo cranky... Thanks for sharing this.

In a message dated 2/17/2011 4:48:46 P.M. Eastern Standard Time, c2cats@... writes:

I totally agree with you . There are too many people making money off special diets, supplements and treatments that are totally unproven. I've been tempted a few times but after research found no real evidence of proven results. That said, even things like Omega 3 supplements which have health benefits can impact each person differently. I belonged to a speech listserv and many folks swore that their child's speech had improved vastly after starting Omega 3 supplements. Well, for my son the supplement made him irritable and whiny and had no impact on his speech.So as long as parents search for that elusive magic bullet to help their child there will be folks trying to sell it to them. Caroline>> I totally agree, . Being a nurse, I am usually the one that gets on my soapbox about people advocating special diets or treatments that have no scientific studies to back them up. People can waste tons of money on this kind of stuff.> > > > > > > > From: [mailto: ] On Behalf Of MacAllister> Sent: Thursday, February 17, 2011 8:58 AM> > Subject: Re: ( ) diets> > > > > > My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself.> > > > > > > > > _____ > > From: md l <dontblinkhs@...>> > Sent: Wed, February 16, 2011 8:18:01 PM> Subject: Re: ( ) diets> > > > Hi Tania,> > Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html> > > > To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet)..> > > > You can test through Great Plains Labs http://www.greatplainslaboratory.com or Alletess http://www.foodallergy.com . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago!> > > > The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above.> > > > There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters.> > > > Some other good books on this subject would be...> > > > The Autism & ADHD Diet by Barrie Silberberg> > Healing the New Childhood Epidemics by Brock> > Children With Starving Brains by McCandless> > Is This Your Child? by Rapp> > > > I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL..> > > > You might also google "leaky gut" or "gut & psychology syndrome". > > > > Misty> > > > > > > _____ > > From: sopranotania <sopranotania@...>> > Sent: Wed, February 16, 2011 8:18:13 AM> Subject: ( ) diets> > > > Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on G F or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!> > -Tania>

[Guest guest]

ummm.. totally unproven?? so all the parents that say it did help their childs behavior are .....lying? Dont discourage other people on here from doing something , because you dont "agree" with it! Or try and make the gfcf diet into some big conspiracy money scam!! Because it may not have worked for some of you , but it has helped alot of kids!! Also i dont appreciate the comment about the parents who are "searching for the magic bullet" i cant speak for other parents , but i know that i am not that out of touch with reality that i think " oh wow this will surely cure my child this is super :)"ANd as far as being concerned for new people on here reading about the diet , i would certainly hope that they would be able to do their own research on it and make that decision for themselves , being

concerned of someone new reading about the diet , to me just sounds like saying" dont do it because I dont agree with it" thats fine you dont agree with it , its fine you dont think there is science to back it up, but dont make the people that do the diet sound like they are crazy or gullible for wanting to try it! Every person doing the diet would admit it doesnt work for every child , because it doesnt , but it believe it or not it has helped alot of kids!MeaghanFrom: "boogermeanie@..." <boogermeanie@...>To:

Sent: Thu, February 17, 2011 5:13:12 PMSubject: Re: ( ) diets-Caroline

Wow, I thought I was the only one whose child did badly on Omega 3.. I even tried different brands thinking it was the brand.. It makes him sooo cranky... Thanks for sharing this.

In a message dated 2/17/2011 4:48:46 P.M. Eastern Standard Time, c2cats@... writes:

I totally agree with you . There are too many people making money off special diets, supplements and treatments that are totally unproven. I've been tempted a few times but after research found no real evidence of proven results. That said, even things like Omega 3 supplements which have health benefits can impact each person differently. I belonged to a speech listserv and many folks swore that their child's speech had improved vastly after starting Omega 3 supplements. Well, for my son the supplement made him irritable and whiny and had no impact on his speech.So as long as parents search for that elusive magic bullet to help their child there will be folks trying to sell it to them. Caroline>> I totally agree, . Being a nurse, I am usually the one that gets on my soapbox about people advocating special diets or treatments that have no scientific studies to back them up. People can waste tons of money on this kind of stuff.> > > > > > > > From: [mailto: ] On Behalf Of MacAllister> Sent: Thursday, February 17, 2011 8:58 AM> > Subject: Re: ( ) diets> > > > > > My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself.> > > > > > > > > _____ > > From: md l <dontblinkhs@...>> > Sent: Wed, February 16, 2011 8:18:01 PM> Subject: Re: ( ) diets> > > > Hi Tania,> > Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html> > > > To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet)..> > > > You can test through Great Plains Labs http://www.greatplainslaboratory.com/ or Alletess http://www.foodallergy.com/ . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago!> > > > The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above.> > > > There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters.> > > > Some other good books on this subject would be...> > > > The Autism & ADHD Diet by Barrie Silberberg> > Healing the New Childhood Epidemics by Brock> > Children With Starving Brains by McCandless> > Is This Your Child? by Rapp> > > > I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL..> > > > You might also google "leaky gut" or "gut & psychology syndrome". > > > > Misty> > > > > > > _____ > > From: sopranotania <sopranotania@...>> > Sent: Wed, February 16, 2011 8:18:13 AM> Subject: ( ) diets> > > > Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on G F or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!> > -Tania>

[Guest guest]

Diet have worked for my son and I am founder and leader of a large support for almost 6 years now and I share my son's amazing journey from non verbal to what he is today: hs freshman on varsity basketball, soccer, baseball teams who does so many things doctors told us were never ever gonna be possible.It's not all or nothing but I need parents to know doctors were wrong and every single time they tell me diet isn't what helped they are wrong.Sent from my Palm Pre on the Now Network from SprintOn Feb 18, 2011 12:56 AM, Meaghan Larson <meaghanlarson@...> wrote:

ummm.. totally unproven?? so all the parents that say it did help their childs behavior are .....lying? Dont discourage other people on here from doing something , because you dont "agree" with it! Or try and make the gfcf diet into some big conspiracy money scam!! Because it may not have worked for some of you , but it has helped alot of kids!! Also i dont appreciate the comment about the parents who are "searching for the magic bullet" i cant speak for other parents , but i know that i am not that out of touch with reality that i think " oh wow this will surely cure my child this is super :)"ANd as far as being concerned for new people on here reading about the diet , i would certainly hope that they would be able to do their own research on it and make that decision for themselves , being

concerned of someone new reading about the diet , to me just sounds like saying" dont do it because I dont agree with it" thats fine you dont agree with it , its fine you dont think there is science to back it up, but dont make the people that do the diet sound like they are crazy or gullible for wanting to try it! Every person doing the diet would admit it doesnt work for every child , because it doesnt , but it believe it or not it has helped alot of kids!MeaghanFrom: "boogermeanie@..." <boogermeanie@...>To:

Sent: Thu, February 17, 2011 5:13:12 PMSubject: Re: ( ) diets-Caroline

Wow, I thought I was the only one whose child did badly on Omega 3.. I even tried different brands thinking it was the brand.. It makes him sooo cranky... Thanks for sharing this.

In a message dated 2/17/2011 4:48:46 P.M. Eastern Standard Time, c2cats@... writes:

I totally agree with you . There are too many people making money off special diets, supplements and treatments that are totally unproven. I've been tempted a few times but after research found no real evidence of proven results. That said, even things like Omega 3 supplements which have health benefits can impact each person differently. I belonged to a speech listserv and many folks swore that their child's speech had improved vastly after starting Omega 3 supplements. Well, for my son the supplement made him irritable and whiny and had no impact on his speech.So as long as parents search for that elusive magic bullet to help their child there will be folks trying to sell it to them. Caroline>> I totally agree, . Being a nurse, I am usually the one that gets on my soapbox about people advocating special diets or treatments that have no scientific studies to back them up. People can waste tons of money on this kind of stuff.> > > > > > > > From: [mailto: ] On Behalf Of MacAllister> Sent: Thursday, February 17, 2011 8:58 AM> > Subject: Re: ( ) diets> > > > > > My son has never eaten "3 or so" foods. He was pickier when he was younger, but not to that point. I don't think it's a good idea to talk about "our kids" when you talk about this stuff that hasn't been scientifically proven. If this was so true, why aren't their scientific studies backing it up? I've been trying to hold my tongue but I feel like me not saying something means I agree and I do not. There is a lot of money to be made by docs/labs in this field and I don't want someone new on here to invest a lot of time and money on something that hasn't been scientifically proven. If I'm wrong and there are studies out there published in reputable journals, please point me in that direction so I can see for myself.> > > > > > > > > _____ > > From: md l <dontblinkhs@...>> > Sent: Wed, February 16, 2011 8:18:01 PM> Subject: Re: ( ) diets> > > > Hi Tania,> > Here is a good informative link that may answer some questions.. http://www.newvisionautismcenter.com/page814.html> > > > To answer a few myself.... A negative celiac test does not mean your child is not reacting to gluten. This is because our kids are usually having an IgG antibody delayed response to gluten and casein. Celiac testing looks for IgA antibodies. A pediatrician cannot do IgG testing. They just aren't experienced with it (yet)..> > > > You can test through Great Plains Labs http://www.greatplainslaboratory.com/ or Alletess http://www.foodallergy.com/ . We tested through GPL and our insurance paid 100%. My daughters all tested very highly sensitive to gluten and casein. One of them also tested high for soy. But they all tested negative to celiac disease and traditional food allergies. All three girls improved dramatically when those foods were removed. It was really like night and day. In fact, one of my daughters was given two donuts at school a couple of weeks ago and I am seeing behaviors now that I have not seen in over a year (Since before we went GFCF). Her OCD is back, stimming, aggression, jumping off of furniture over and over again, very oppositional, very irritable, raging, screaming, attacking people, etc. She was not at all like this all last year when the diet was 100%. But she WAS like this BEFORE we ever went on the diet over a year ago!> > > > The reason most kids on the autism spectrum will only eat 3 or so foods is because they are having opiate responses to those 3 foods.. Those foods are usually a wheat or dairy product. My daughter was down to just crackers and milk (completely addicted to those two foods) when we went GFCF. It was extremely difficult, but we had to do it for her health and well-being. Now she eats more variety and is much more healthy. You might read a little about the opiate affect in that link I provided above.> > > > There are plenty of books on this subject that are very, very informative. Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which explains A LOT about how our kids are affected by gluten and casein in the first few chapters.> > > > Some other good books on this subject would be...> > > > The Autism & ADHD Diet by Barrie Silberberg> > Healing the New Childhood Epidemics by Brock> > Children With Starving Brains by McCandless> > Is This Your Child? by Rapp> > > > I would be happy to answer any other questions.. Removing gluten and casein is not a cure by any means, but it does eliminate many of the behaviors seen in our children. Okay, I will say *most* children because I'm sure there are some out there it doesn't do a lick of good for. My daughter is so much easier to live with when her diet is 100%. She is almost like a normal child during this time. It really is phenomenal. When she is on gluten and/or casein, she is impossible and everyone just wants to scream or die or run away, LOL..> > > > You might also google "leaky gut" or "gut & psychology syndrome". > > > > Misty> > > > > > > _____ > > From: sopranotania <sopranotania@...>> > Sent: Wed, February 16, 2011 8:18:13 AM> Subject: ( ) diets> > > > Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on G F or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!> > -Tania>

[Guest guest]

Meghan, don't know where you are coming from but you took what I said and

totally twisted it. Unproven = not backed by scientific studies. Heck for years

people have believed that vitamin C helps prevent colds despite studies that

show it's inconclusive. Does that stop me from taking vitamin C - no. But when I

see many parents post questions on certain diets, certain treatments there are

many people who post that it is the cure all. Yes, I do agree that anyone

interested in a diet or treatment should fully research it before deciding what

to do. No one should rely on just a few others experience. I've belonged to a

speech listserv for over 10 years. As new folks join I keep seeing the newbies

ask about Omega 3's. Many folks reply back with how it drastically improves

their kids speech. What I've found is that many people write in to share their

positive experiences but few if any bother to post that it didn't work for them.

Those who do post about positive experiences tend to rave about how well it

worked for their child.

For the record I wasn't posting specifically about the GCF diet as I have no

experience or any current knowledge of it. I did research it briefly years ago

and on the advice of doctors decided against it. I was commenting in general

about about various diets, supplements and programs being sold to folks as the

cure to their kids issues. There are a lot of folks making money off these

parents hopes and fears. Are all the diets, supplements or programs worthless -

of course not. But any parent should fully research something before spending

any money on it. Many things are short money - supplements etc but some programs

require a major investment in both time and money by the parent. That's the

stuff that I am most leery of and that's who usually advertises how much they

can help a child with certain issues.

As to the elusive magic bullet, I've always hoped to find one but believe me I

am totally a realist. I know that nothing is a magical cure all but always hoped

something would help make my son's life a little easier. Would I have ever

considered giving my son Omega 3 supplements if I hadn't been searching for

something to help him with his speech. The answer is no. Using the term a magic

bullet is just a saying and not commenting on anyone's grasp of reality.

BTW, I ran a local support group for many years. I can't tell you how many of

the newbies looked to me to tell them what to do. I always told them that this

was just my experience and they needed to consult with an expert and/or do

research before deciding what to do. One mother wanted me to do all the research

for her. I told her where to find it but she said that she didn't have the time.

It's amazing at how many folks are willing to go with the flow if it means less

effort on their part. Plus when you're a newbie and have no idea what to do it's

very tempting to just take the advice or experience of the others in the group

and go with it.

Caroline

> >>

> >> I totally agree, . Being a nurse, I am usually the one that gets

on

> >>my soapbox about people advocating special diets or treatments that have

no

> >>scientific studies to back them up. People can waste tons of money on

this

> >>kind of stuff.

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >> From:

> >>[mailto: ] On Behalf Of

MacAllister

> >> Sent: Thursday, February 17, 2011 8:58 AM

> >>

> >> Subject: Re: ( ) diets

> >>

> >>

> >>

> >>

> >>

> >> My son has never eaten " 3 or so " foods. He was pickier when he was

younger,

> >>but not to that point. I don't think it's a good idea to talk about " our

> >>kids " when you talk about this stuff that hasn't been scientifically

proven.

> >>If this was so true, why aren't their scientific studies backing it up?

I've

> >>been trying to hold my tongue but I feel like me not saying something

means I

> >>agree and I do not. There is a lot of money to be made by docs/labs in

this

> >>field and I don't want someone new on here to invest a lot of time and

money

> >>on something that hasn't been scientifically proven. If I'm wrong and

there

> >>are studies out there published in reputable journals, please point me in

> >>that direction so I can see for myself.

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >> _____

> >>

> >> From: md l <dontblinkhs@>

> >>

> >> Sent: Wed, February 16, 2011 8:18:01 PM

> >> Subject: Re: ( ) diets

> >>

> >>

> >>

> >> Hi Tania,

> >>

> >> Here is a good informative link that may answer some questions..

> >>http://www.newvisionautismcenter.com/page814.html

> >>

> >>

> >>

> >> To answer a few myself.... A negative celiac test does not mean your

child

> >>is not reacting to gluten. This is because our kids are usually having an

IgG

> >>antibody delayed response to gluten and casein. Celiac testing looks for

IgA

> >>antibodies. A pediatrician cannot do IgG testing. They just aren't

> >>experienced with it (yet)..

> >>

> >>

> >>

> >> You can test through Great Plains Labs

http://www.greatplainslaboratory.com/ or

> >>Alletess http://www.foodallergy.com/ . We tested through GPL and our

> >>insurance paid 100%. My daughters all tested very highly sensitive to

gluten

> >>and casein. One of them also tested high for soy. But they all tested

> >>negative to celiac disease and traditional food allergies. All three

girls

> >>improved dramatically when those foods were removed. It was really like

night

> >>and day. In fact, one of my daughters was given two donuts at school a

couple

> >>of weeks ago and I am seeing behaviors now that I have not seen in over a

> >>year (Since before we went GFCF). Her OCD is back, stimming, aggression,

> >>jumping off of furniture over and over again, very oppositional, very

> >>irritable, raging, screaming, attacking people, etc. She was not at all

like

> >>this all last year when the diet was 100%. But she WAS like this BEFORE

we

> >>ever went on the diet over a year ago!

> >>

> >>

> >>

> >> The reason most kids on the autism spectrum will only eat 3 or so foods

is

> >>because they are having opiate responses to those 3 foods.. Those foods are

> >>usually a wheat or dairy product. My daughter was down to just crackers and

> >>milk (completely addicted to those two foods) when we went GFCF. It was

> >>extremely difficult, but we had to do it for her health and well-being. Now

> >>she eats more variety and is much more healthy. You might read a little

about

> >>the opiate affect in that link I provided above.

> >>

> >>

> >>

> >> There are plenty of books on this subject that are very, very

informative.

> >>Right now, I am reading The Kid-Friendly ADHD & Autism Cookbook, which

> >>explains A LOT about how our kids are affected by gluten and casein in

the

> >>first few chapters.

> >>

> >>

> >>

> >> Some other good books on this subject would be...

> >>

> >>

> >>

> >> The Autism & ADHD Diet by Barrie Silberberg

> >>

> >> Healing the New Childhood Epidemics by Brock

> >>

> >> Children With Starving Brains by McCandless

> >>

> >> Is This Your Child? by Rapp

> >>

> >>

> >>

> >> I would be happy to answer any other questions.. Removing gluten and

casein

> >>is not a cure by any means, but it does eliminate many of the behaviors

seen

> >>in our children. Okay, I will say *most* children because I'm sure there

are

> >>some out there it doesn't do a lick of good for. My daughter is so much

> >>easier to live with when her diet is 100%. She is almost like a normal

child

> >>during this time. It really is phenomenal. When she is on gluten and/or

> >>casein, she is impossible and everyone just wants to scream or die or run

> >>away, LOL..

> >>

> >>

> >>

> >> You might also google " leaky gut " or " gut & psychology syndrome " .

> >>

> >>

> >>

> >> Misty

> >>

> >>

> >>

> >>

> >>

> >>

> >> _____

> >>

> >> From: sopranotania <sopranotania@>

> >>

> >> Sent: Wed, February 16, 2011 8:18:13 AM

> >> Subject: ( ) diets

> >>

> >>

> >>

> >> Ok, so here is my question: I have had my HFA son(9) tested for celiac

and

> >>yeast imbalance and both came up negative. I tend to feed both my kids a

> >>pretty healthy and balanced diet with whole grains, no high fructose corn

> >>syrup (except tiny allowances of candy), organic sugars (limited),

fruits,

> >>veggies (yes, they do eat these!),lean meats, etc. I will often complain

> >>about DS's pickiness because he used to eat *everything* except tomatoes

and

> >>mushrooms and has gradually gotten narrower and narrower and will

suddenly

> >>hate things for no apparent reason. He also used to throw things up at

will

> >>until I put the kibosh on that with consequences which (remarkably)

worked!

> >>After reading posts here about kids who will only eat three foods I will

do

> >>my best to shut up about that! Seriously, any Mom who can get her

autistic

> >>son to eat brussel sprouts really has no right to complain, huh? Anyway

the

> >>point of this post (finally!) is that I know a lot of people have their

kids

> >>on G F or GFCF diets and I have resisted this feeling that I wanted to

have

> >>some basis for a major life change before we did it. I also worry about

> >>cutting out huge sources of nutrition like grains and dairy with growing

> >>children without due cause. Clearly behavior is an issue- DS has problems

> >>with aggression, anxiety, sensory, etc.- but I always try to consider the

> >>total health of my child. Someone mentioned sensitivity testing to

cassein

> >>and gluten. Can these be done through the regular pediatrician or are

they

> >>specialty lab only? I would appreciate some input so I can make an

informed

> >>decision for my family. Thanks!

> >>

> >> -Tania

> >>

> >

> >

>

[Guest guest]

I could write your post without crediting "the diet". My two ds's both made amazing progress and we never did diets or supplements. Instead we did therapies. Both my ds's started out non-verbal too and with a dx of autism.

Roxanna

“Our lives begin to end the day we

become silent about things that matter.†- Luther King, Jr.

( ) diets

>

>

>

> Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on G F or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!

>

> -Tania

>

[Guest guest]

Meaghan, calm down. maybe eat less sugar. lol. Parents can see what they want to see at times. When they do actual scientific studies, then they test for specific factors and can figure out wishful thinking from actual fact, which is more helpful. They can also work out what is cause/what is effect.

People can do this diet stuff whether some folks on a list serv agree with the diet or not. So there are no worries there. There are entire lists devoted to the cause.

I'm not sure what the problem is with the "magic bullet" phrase but it seemed appropriate in context the way it is being used here. As for not thinking there is science to back it up, there isn't. It's not that she made that part up. Dealing with fact would be a good first step in having a rational discussion on the subject, IMO.

Unproven means it is anecdotal. That is a good start to a theory, great! I personally feel if there is so much anecdotal "evidence", there should be endless studies showing it is working. But there aren't. To me, that says a lot. I don't know why this is such a debate when it comes to "the diet" stuff. It's not a problem to me to discuss this in terms of fact vs. anecdotal but I don't ever get the same in return from people who advocate that this works. It becomes some sort of crusade to people to outshout those who are questioning it. It's like, "We are the proof and it works and you better not say it doesn't!"

Everyone who is yelling from here on out will have to moderated until things calm down. Just a FYI. I don't have time to personally send emails to people whose posts are not going through if they are going to provide no new information and just tell the rest of the people who disagree that they are stupid/slow/ignorant/mean/whatever....You can email me directly to complain at madideas@... Thanks!

Roxanna

“Our lives begin to end the day we

become silent about things that matter.†- Luther King, Jr.

( ) diets

>

>

>

> Ok, so here is my question: I have had my HFA son(9) tested for celiac and yeast imbalance and both came up negative. I tend to feed both my kids a pretty healthy and balanced diet with whole grains, no high fructose corn syrup (except tiny allowances of candy), organic sugars (limited), fruits, veggies (yes, they do eat these!),lean meats, etc. I will often complain about DS's pickiness because he used to eat *everything* except tomatoes and mushrooms and has gradually gotten narrower and narrower and will suddenly hate things for no apparent reason. He also used to throw things up at will until I put the kibosh on that with consequences which (remarkably) worked! After reading posts here about kids who will only eat three foods I will do my best to shut up about that! Seriously, any Mom who can get her autistic son to eat brussel sprouts really has no right to complain, huh? Anyway the point of this post (finally!) is that I know a lot of people have their kids on G F or GFCF diets and I have resisted this feeling that I wanted to have some basis for a major life change before we did it. I also worry about cutting out huge sources of nutrition like grains and dairy with growing children without due cause. Clearly behavior is an issue- DS has problems with aggression, anxiety, sensory, etc.- but I always try to consider the total health of my child. Someone mentioned sensitivity testing to cassein and gluten. Can these be done through the regular pediatrician or are they specialty lab only? I would appreciate some input so I can make an informed decision for my family. Thanks!

>

> -Tania

>