Hi All!

March 15, 2005

Hi Jack

Welcome. I have only been here 1 weeks but made so welcome I feel I have

been here much longer.

I'm almost at the otherside of the land - Dorset. I work with Internet and

Computer legislation but bed bound at the moment from illness.

_________________________________________

Randle

_________________________________________

Hi All!

>

> Hi All,

>

> I'm Jack, 31 going on 32, am 6ft. 1in, 103 kg +- a couple, am on

> 2x5gms Testogel a day, have oesteopenia, Klinefelter Syndrome (KS) (my

> karo type is a standard 47 xxy), Diabetes Mellitus (Type 2/non insulin

> dependant) and I live on the Isle of .

>

> I knew from as young as 4 that I had KS, albeit back then I was not

> told the correct name, just that my orchids were underdeveloped (for a

> 4 year old).

>

> I had a bi-lateral orchidopexy done in May 2000 as I have a long

> history of orchid infections.

>

> I have been on the AAKSIS list since April/May 2000.

> I only came across this list via a recent post on AAKSIS and am glad

> that a list like this exists.

>

> I work here at the local hospital and am currently studying nursing.

> Had a number of exams this past few weeks and a few more to go till

> June.

>

> I call myself quite knowledgeable with respect to hypogonadism/KS, but

> am always willing to learn something new.

>

> Kind regards,

>

> Jack

>

> PS: Sorry for the long post.

>

March 16, 2005

Hi,

There are only a very few endocrinologists in the US that have been

treating both men and women for decades. My doctor IMHO is the very

best, Dr. R. Don Gambrell, Augusta GA. He answers questions and gives

good advice on very technical hormonal issues.

His web site is:

http://www.members.aol.com/gambr999/

His mentor was Dr. Greenblatt also of Augusta, GA. Look both up on

GOOGLE to check out their credentials.

I travel down from NY to GA every 4 months for hormone pellet therapy

which I have been receiving for more than 10 years. Now at 73 I can

tell you it has not caused me any problems and Ihave seen no adverse

side effects.

ernestnolan

>

> Hi All,

>

> I'm Jack, 31 going on 32, am 6ft. 1in, 103 kg +- a couple, am on

> 2x5gms Testogel a day, have oesteopenia, Klinefelter Syndrome (KS) (my

> karo type is a standard 47 xxy), Diabetes Mellitus (Type 2/non insulin

> dependant) and I live on the Isle of .

>

> I knew from as young as 4 that I had KS, albeit back then I was not

> told the correct name, just that my orchids were underdeveloped (for a

> 4 year old).

>

> I had a bi-lateral orchidopexy done in May 2000 as I have a long

> history of orchid infections.

>

> I have been on the AAKSIS list since April/May 2000.

> I only came across this list via a recent post on AAKSIS and am glad

> that a list like this exists.

>

> I work here at the local hospital and am currently studying nursing.

> Had a number of exams this past few weeks and a few more to go till

> June.

>

> I call myself quite knowledgeable with respect to hypogonadism/KS, but

> am always willing to learn something new.

>

> Kind regards,

>

> Jack

>

> PS: Sorry for the long post.

May 19, 2005

> Hi Everyone!

Hi, Dacia! Glad you had some time hanging with the family.

>My back was really sore for a few days -- too much driving &

I get it not just in my back but the arthritic hip and knees! Just a half

hour in the car and I can barely stand when we park.

>It hasn't helped that my allergies & sinuses are at war right now.

And my air filter picked this winter to die and we haven't found anything

affordable to replace it with. All the pundits are saying this is the worse

allergy season ever recorded, and I believe it. People here gave up on

washing their cars - they're just covered in yellow dust again within hours.

>I have been working hard at being careful about what I eat & have really

upped my exercise -- but not losing any weight.

Maybe your body is at a weight where it wants to be? Look at your family

tree - What's the general body size and shape of past generations? If

they're mostly big, you'll probably be big, too. I posting a message the

other day that included a checklist to read entitled Before You Start Your

Next Diet.

100-plus/message/24657

Scroll down past the food talk to the checklist.

>Then will start adjusting my calories accordingly.

IIRC, your calorie count is pretty low already, isn't it, like 1600 cal? How

much lower are you willing to go?

Sue in NJ

May 19, 2005

For me that is the BIG question right now. I am not sure how much lower I'm willing to go in my calories.

I think for the summer, at least, I am going to focus on adding exercise calories.

Right now I am going to focus on building up my strength training regime. It will be easier during the summer time to add some additional cardio into my evenings. I do most of my exercising right now in the mornings. Planning on using the summer to readjust my exercise schedule/routines.Sue in NJ <sparticles@...> wrote:

IIRC, your calorie count is pretty low already, isn't it, like 1600 cal? Howmuch lower are you willing to go?

Dacia <><

For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord. Romans 8:38-39

www.DeafJesus.org

May 25, 2005

Cute blog fuzzyelf!

Your dog is adorable! Check out the page with my pets on my silly

little site: http://fairydogmother.tripod.com/id5.html

> I've just started a blog, thanks chevygirl! - goodness! I only

> thought I was computer literate...anyway, it's a work in progress,but

> if anyone would like to check it out and gimme feedback, here she

> goes: http://fuzzyelfone.blogspot.com/

May 25, 2005

very handsome pets

Ruth wrote:

> Cute blog fuzzyelf!

>

> Your dog is adorable! Check out the page with my pets on my silly

> little site: http://fairydogmother.tripod.com/id5.html

>

> > I've just started a blog, thanks chevygirl! - goodness! I only

> > thought I was computer literate...anyway, it's a work in progress,but

> > if anyone would like to check it out and gimme feedback, here she

> > goes: http://fuzzyelfone.blogspot.com/

>

> ------------------------------------------------------------------------

>

June 20, 2005

is it mx weight you are gaining? how long have you been eating the way

you are now?

Em wrote:

> I've been lurking for a bit and have finally decided to introduce

> myself. :-D I've been trying to do the workout/eat right thing for

> about 2 years now. I tried high-carb and lots of running, tried low

> carb and lots of lifting. . . tried it all. And I'm still at about

> 135lb and 22%bf, give or take. I lost a lot of fat on a " contest-

> prep " type diet-- basically protein, veggies, and not much else, and

> got down to 18.5% before I lost control and went nutzo on the carbs

> for a while. Now I'm trying Eating for Life, but it seems like I

> keep gaining weight. If I Eat for Life much longer, none of my

> jeans will fit!

>

> Here's the deal-- I'm doing 1500cal/day, give or take, on a 40/40/20

> split. Usually 3 of my meals, the carbs come from fruit and

> veggies, while the other 2 or 3, carbs come from more " processed "

> sources.

>

> I teach a Spinning class 4x a week, so that takes care of my cardio,

> and lift weights 3x a week.

>

> I'm hoping that the weight gain is just my body responding to

> increased cals and water and pretty soon things will start going

> back down. I mean, I can't gain forever on 1500 cals/day, can I??

>

> ------------------------------------------------------------------------

>

June 20, 2005

Not sure what mx means, but I assume you mean muscle. . . I'm mostly

gaining in the hips/waist area, which leads me to think it's water

and not muscle. I've been doing EFL for maybe 2 weeks now.

> > I've been lurking for a bit and have finally decided to introduce

> > myself. :-D I've been trying to do the workout/eat right thing

for

> > about 2 years now. I tried high-carb and lots of running, tried

low

> > carb and lots of lifting. . . tried it all. And I'm still at

about

> > 135lb and 22%bf, give or take. I lost a lot of fat on

a " contest-

> > prep " type diet-- basically protein, veggies, and not much else,

and

> > got down to 18.5% before I lost control and went nutzo on the

carbs

> > for a while. Now I'm trying Eating for Life, but it seems like I

> > keep gaining weight. If I Eat for Life much longer, none of my

> > jeans will fit!

> >

> > Here's the deal-- I'm doing 1500cal/day, give or take, on a

40/40/20

> > split. Usually 3 of my meals, the carbs come from fruit and

> > veggies, while the other 2 or 3, carbs come from more " processed "

> > sources.

> >

> > I teach a Spinning class 4x a week, so that takes care of my

cardio,

> > and lift weights 3x a week.

> >

> > I'm hoping that the weight gain is just my body responding to

> > increased cals and water and pretty soon things will start going

> > back down. I mean, I can't gain forever on 1500 cals/day, can

I??

> >

> > -----------------------------------------------------------------

-------

> >

June 21, 2005

Here's a re-post about gaining/getting bigger. Maybe something in it will

help you.

~~~~~~

Getting bigger before you get smaller is a very common phenomenon, but

at 4 weeks things should be turning around. If they're not, you need

to pay close attention to your portion sizes, carb choices, and free

day.

Of course, PMS can do a number on your weight and the way your clothes

fit. So can creatine products like Betagen. So can taking measurements

or trying on clothes the day after free day. And never weigh, measure,

or try on anything at night if you can help it, because that's when

you'll be at your biggest and heaviest. It's best to do that kind of

thing first thing in the morning on free day before you've had

anything to eat or drink. That way you'll always have a full week of

clean eating behind you.

Here's a post from a couple of weeks ago when we were talking about

the " getting bigger " issue. The links at the end might give you some

ideas for stepping up your progress. Hang in there!

~~

If you're feeling

big and bulky, the problem isn't your new lean muscle, it's the old

familiar fat that's still covering it. It's easy to gain some muscle

in the beginning. Once the fat loss catches up, you'll have some

sleek, rock hard, jiggle free legs that are smaller than what you

started with. Witness the fat and muscle comparison photo:

http://skwigg.tripod.com/fat_and_muscle.jpg

Quite a few women never get there though. They gain an inch in their

thighs the first couple weeks of training, wig out, and go back to

being flabby and soft. If they'd stuck it out for 12 weeks, they'd

have found that the fat loss catches up and their legs start looking

amazing! It's not unusual for the measurements in your arms, legs, and

hips to go up slightly at first but then drop like rocks. At the end

of a 12 week transformation you'll be inches smaller all the way

around. Most people don't stick it out though. The " I'm getting bulky "

phenomenon is an excellent excuse to quit and go back to something

safely ineffective.

Double check your meals, your portion sizes, and free day, and make

sure you're creating a substantial calorie deficit every week. You

have to have a calorie deficit in order to strip the fat off. If

you're training your guts out but you've increased your calories to

meet the demands, it's possible that you're accidentally doing a

" bulking " phase. That's all about your diet though.

If you're near your ideal weight, the ballpark estimates are that your

calories should be 8-10 times your body weight for fat loss, 12 times

your body weight for fat loss with some muscle gain, and 15 times body

weight for muscle gain only. Here's the BFL calculator:

http://www.bodyforlife.com/exercise/calcalc.asp

Remember, those numbers are only going to be close if you're already

near your ideal weight. Anybody more than 20-30 pounds over might want

to enter a goal weight instead of your current weight.

Here are some other links to help you maximize your results:

Uh-oh, a Plateau

http://www.skwigg.com/id66.html

How to Have a Dramatic Transformation... or not

http://www.skwigg.com/id64.html

Do You Want to Lean Out or Swell Up?

http://www.skwigg.com/id55.html

On 6/20/05, Em <Southernlady17@...> wrote:

>

> Not sure what mx means, but I assume you mean muscle. . . I'm mostly

> gaining in the hips/waist area, which leads me to think it's water

> and not muscle. I've been doing EFL for maybe 2 weeks now.

>

June 21, 2005

Thanks for the replies. I think that what I'm gaining is mostly

water, because I went straight from very low carb to EFL. It's

starting to go down some, though.

One more question. Is the cottage cheese/yogurt combo a lean out or

swell up food?

> >

> > Not sure what mx means, but I assume you mean muscle. . . I'm

mostly

> > gaining in the hips/waist area, which leads me to think it's

water

> > and not muscle. I've been doing EFL for maybe 2 weeks now.

> >

>

June 21, 2005

Well cottage cheese is on the LEAN OUT menu. I am not sure where

yogurt would fall. We're hearing alot about how diary is so important

for losing fat, so I'd consider low/no fat yogurt to be ok. Watch the

sugar content though.

What do others think about yogurt???

> > >

> > > Not sure what mx means, but I assume you mean muscle. . . I'm

> mostly

> > > gaining in the hips/waist area, which leads me to think it's

> water

> > > and not muscle. I've been doing EFL for maybe 2 weeks now.

> > >

> >

June 21, 2005

I would think that an even better option would be fruit to go with the

cottage cheese.

~Candy

-- Re: Hi all!

Well cottage cheese is on the LEAN OUT menu. I am not sure where

yogurt would fall. We're hearing alot about how diary is so important

for losing fat, so I'd consider low/no fat yogurt to be ok. Watch the

sugar content though.

What do others think about yogurt???

> > >

> > > Not sure what mx means, but I assume you mean muscle. . . I'm

> mostly

> > > gaining in the hips/waist area, which leads me to think it's

> water

> > > and not muscle. I've been doing EFL for maybe 2 weeks now.

> > >

> >

June 22, 2005

The cottage cheese and yogurt meal actually falls kind of in the middle,

leaning toward the swell up side. There's quite a bit of sodium in the

cottage cheese, and a piece of fruit would definitely a better option than

yogurt in terms of trying to get in whole foods with fiber and potassium.

Everybody kind of has to see what they can get away with. If you're

consistently losing 1-2 pounds a week eating canned soup, frozen dinners,

and whole wheat bagels, then you don't need to be nearly as freaky about

watching the sodium and carbs. They obviously don't have much of an impact

on how much water you retain. But if your progress is stalled or really

slow, then you start backing off on the processed foods. Once you're seeing

changes in your muscle definition and the way your clothes fit, then you can

tell where you need to draw the line.

right now some lean out meal combos would look more like:

scrambled eggs and grapefruit

chicken breast in a big salad with berries or mandarin oranges

tuna, chopped apple, raisins, light mayo (sounds weird, tastes good)

chicken, chopped apple, dried apricots, light mayo (see above ;-)

turkey breast, celery & peanut butter, peach

veggie burger, tomato/cucumber/onion salad, grapes

steak, sweet potato, asparagus

protein shake w/strawberries and mango

lettuce wraps (ham, tomato, honey mustard), apple

chicken, southwest veggies (corn, peppers, onion) salsa

Just a few more ideas. :-)

On 6/21/05, kikboxxxr <no_reply > wrote:

>

> Well cottage cheese is on the LEAN OUT menu. I am not sure where

> yogurt would fall. We're hearing alot about how diary is so important

> for losing fat, so I'd consider low/no fat yogurt to be ok. Watch the

> sugar content though.

>

> What do others think about yogurt???

>

July 4, 2005

On Sun, 3 Jul 2005 5:16 pm, fuzzyelfone wrote:

> I finished my 1st 12 weeks yesterday! yeah!!!

You did an awesome job! (( ^_^ ))/)

July 5, 2005

WOW! Four and a half inches off your waist! Great job!

On 7/3/05, fuzzyelfone <fuzzyelf@...> wrote:

> I finished my 1st 12 weeks yesterday! yeah!!! I posted all my results

> on my blog page http://fuzzyelfone.blogspot.com/ Look out next 12 weeks!

> I hope everyone is having a great day!

August 3, 2005

,

Thank you for posting. If nothing else, I feel vindicated! This is

what happens to me when I have a " flare up " and it doesn't seem that

anyone gets it. I literally feel your pain!! If you do find something

that helps, please let me know. Sitting at my desk most of the day

definitely does not help any.

I am sorry you won't get to hook up with the others, but I am glad you

are listening to your body tell you to slow down. Gosh that is a hard

thing to do.

Here's hoping that IBS (snicker snicker) clears up quickly!

kam

August 3, 2005

Val,

Do they say the IBS will be improved if you are able to improve your

gait post revision? It has been shocking to me how long it took to get

my hip and psoas muscles to feel okay...but, in fact, they do now. I

am sure I was really loading those joints in a funky way walking

around in flatback posture...I don't think all that much harm was done

after all...but I guess time will tell.

Sorry your week has been a bummer. I hope we can chat tonight and

cheer your day a little. Cam

August 3, 2005

, a couple of times my massage therapist has given extra attention to

my iliotibial bands because they were " stuck down " . If I understood her

correctly, they can get full of adhesions so the muscles can't move properly

under them. I don't know if that's what I. T. band syndrome is, but she was

able to get them loosened up (though I imagine they'll need it again

eventually.) I've got so much stuff going on in my legs, the I. T. band

stuff is just a part of it.

I do know how it is, feeling like you're falling apart. I'm 47 today, and

in many ways I feel more like 67.

I just keep taking my pills, going for massages, swimming and working out.

I tried something a little different today while I was working out. I

grabbed a high bar on one of the weight machines with both hands and let my

body hang a bit. I hadn't tried that for so long, I'd forgotten how good it

can feel. I think the little back stretch helped me get through the

workout.

Sharon

[ ] Hi All!

> Hi everybody - I've been away from the computer for a few days

> because I haven't felt well. Last week was a very busy one and on

> Friday morning I woke up with everything hurting me at once. I went

> to PT shere she massaged my neck back and knees while I practically

> sobbed. I was having horrific spasms in my " gluteus medius " , my

> knees were acting up and I couldn't tun my neck for anything. I was

> feeling a little better yesterday and managed to get out of bed and

> go to PT again. She stretched me and told me that she has spoken

> with the doc and they also feel that besides the chondrocalcinosis

> in my knees that I also have IBS! Ha! Ha! I thought, " What the heck

> does Irritable Bowel Syndrome have to do with my knees and back? " I

> cracked her up, it is actually Iliotibial Band Syndrome!!! She said

> that people prone to it are avid runners (certainly not me!) and

> indivicuals with mechanical problems of their gait. So, I know I

> need to suck it up here - I mean it is not a cancer diagnosis or

> anything, but here I was trudging along thinking I am going to feel

> better soon and boom...I have another thing wrong with me. I feel

> sooooo defective!! Is there anything right in our bodies?? I feel

> like my whole body is just wearing down before my eyes and I'll

> never be able to catch up, almost like it is down hill from here. I

> know I am depressing here today and I do apologize for that - I am

> NOT looking for anything sympathy, if anything I wish I lived closer

> to one of you so that you could slap some sense into me! I should be

> thankful that I am not " too " depressed, since I know I am depressed?

> Does that make any sense? OK, so the point of my post was to note to

> Dianne in RI and Theresa in TX, whose is visiting in Connecticut, I

> am not going to meet up tomorrow. The thought of sitting and driving

> a car for any extended period of time isn't in my realm of

> possibility at this time. I am sorry as I was looking forward to

> meeting the two of you - I just feel that I have to stop pushing

> myself to the degree that I do at times and take better care of

> myself. I hope you understand. Thanks for letting me vent everyone -

> and I hope to " chat " with all of you tomrrow night. If it turns out

> anything like last Wednesday night, I'll be laughing before I know

> it!! Take care!

>

> scoliosis veterans * flatback sufferers * revision candidates

>

August 4, 2005

Hi, !

I know you don't want pity, so I won't give you any. I will send out

waves of empathy though. Here's to a better day tomorrow! Or at

least a different day and a chance for a different outlook!

Deb M.

> Hi everybody - I've been away from the computer for a few days

> because I haven't felt well. Last week was a very busy one and on

> Friday morning I woke up with everything hurting me at once. I

went

> to PT shere she massaged my neck back and knees while I

practically

> sobbed. I was having horrific spasms in my " gluteus medius " , my

> knees were acting up and I couldn't tun my neck for anything. I

was

> feeling a little better yesterday and managed to get out of bed

and

> go to PT again. She stretched me and told me that she has spoken

> with the doc and they also feel that besides the chondrocalcinosis

> in my knees that I also have IBS! Ha! Ha! I thought, " What the

heck

> does Irritable Bowel Syndrome have to do with my knees and back? "

I

> cracked her up, it is actually Iliotibial Band Syndrome!!! She

said

> that people prone to it are avid runners (certainly not me!) and

> indivicuals with mechanical problems of their gait. So, I know I

> need to suck it up here - I mean it is not a cancer diagnosis or

> anything, but here I was trudging along thinking I am going to

feel

> better soon and boom...I have another thing wrong with me. I feel

> sooooo defective!! Is there anything right in our bodies?? I feel

> like my whole body is just wearing down before my eyes and I'll

> never be able to catch up, almost like it is down hill from here.

I

> know I am depressing here today and I do apologize for that - I am

> NOT looking for anything sympathy, if anything I wish I lived

closer

> to one of you so that you could slap some sense into me! I should

be

> thankful that I am not " too " depressed, since I know I am

depressed?

> Does that make any sense? OK, so the point of my post was to note

to

> Dianne in RI and Theresa in TX, whose is visiting in Connecticut,

I

> am not going to meet up tomorrow. The thought of sitting and

driving

> a car for any extended period of time isn't in my realm of

> possibility at this time. I am sorry as I was looking forward to

> meeting the two of you - I just feel that I have to stop pushing

> myself to the degree that I do at times and take better care of

> myself. I hope you understand. Thanks for letting me vent

everyone -

> and I hope to " chat " with all of you tomrrow night. If it turns

out

> anything like last Wednesday night, I'll be laughing before I know

> it!! Take care!

>

August 4, 2005

Hi Deb - Today is a much better day and thank you so much for

the " empathy " . The greatest thing about all of you, is knowing that

much empathy abounds - when we tell each other that we are not

feeling well, we KNOW that we understand one another completely!

Have a good day yourself!

> > Hi everybody - I've been away from the computer for a few days

> > because I haven't felt well. Last week was a very busy one and

on

> > Friday morning I woke up with everything hurting me at once. I

> went

> > to PT shere she massaged my neck back and knees while I

> practically

> > sobbed. I was having horrific spasms in my " gluteus medius " , my

> > knees were acting up and I couldn't tun my neck for anything. I

> was

> > feeling a little better yesterday and managed to get out of bed

> and

> > go to PT again. She stretched me and told me that she has spoken

> > with the doc and they also feel that besides the

chondrocalcinosis

> > in my knees that I also have IBS! Ha! Ha! I thought, " What the

> heck

> > does Irritable Bowel Syndrome have to do with my knees and

back? "

> I

> > cracked her up, it is actually Iliotibial Band Syndrome!!! She

> said

> > that people prone to it are avid runners (certainly not me!) and

> > indivicuals with mechanical problems of their gait. So, I know I

> > need to suck it up here - I mean it is not a cancer diagnosis or

> > anything, but here I was trudging along thinking I am going to

> feel

> > better soon and boom...I have another thing wrong with me. I

feel

> > sooooo defective!! Is there anything right in our bodies?? I

feel

> > like my whole body is just wearing down before my eyes and I'll

> > never be able to catch up, almost like it is down hill from

here.

> I

> > know I am depressing here today and I do apologize for that - I

am

> > NOT looking for anything sympathy, if anything I wish I lived

> closer

> > to one of you so that you could slap some sense into me! I

should

> be

> > thankful that I am not " too " depressed, since I know I am

> depressed?

> > Does that make any sense? OK, so the point of my post was to

note

> to

> > Dianne in RI and Theresa in TX, whose is visiting in

Connecticut,

> I

> > am not going to meet up tomorrow. The thought of sitting and

> driving

> > a car for any extended period of time isn't in my realm of

> > possibility at this time. I am sorry as I was looking forward to

> > meeting the two of you - I just feel that I have to stop pushing

> > myself to the degree that I do at times and take better care of

> > myself. I hope you understand. Thanks for letting me vent

> everyone -

> > and I hope to " chat " with all of you tomrrow night. If it turns

> out

> > anything like last Wednesday night, I'll be laughing before I

know

> > it!! Take care!

> >

August 4, 2005

, I hope you'll ask about Elavil, if you haven't tried it.

It is not a narcotic or an anti-inflammatory. It's an older

anti-depressant, whose usefulness for pain was discovered accidentally. I

take it at bed time, because it has a drowsying effect. It can make your

mouth a bit dry, but that's about it for side effects for me. (Of course

everyone is different.) It may make me tend to gain weight; not real sure

on that one. (Too much food makes me gain, that's for sure!)

Between the Elavil (whose other great property is that it is available as a

cheap genetric) and the Celebrex (which is not, and may require " prior

autorization " ), I'm able to keep the pain level pretty low.

Sharon

[ ] Re: Hi All!

> Hi, !

>

> I know you don't want pity, so I won't give you any. I will send out

> waves of empathy though. Here's to a better day tomorrow! Or at

> least a different day and a chance for a different outlook!

>

> Deb M.

>

>> Hi everybody - I've been away from the computer for a few days

>> because I haven't felt well. Last week was a very busy one and on

>> Friday morning I woke up with everything hurting me at once. I

> went

>> to PT shere she massaged my neck back and knees while I

> practically

>> sobbed. I was having horrific spasms in my " gluteus medius " , my

>> knees were acting up and I couldn't tun my neck for anything. I

> was

>> feeling a little better yesterday and managed to get out of bed

> and

>> go to PT again. She stretched me and told me that she has spoken

>> with the doc and they also feel that besides the chondrocalcinosis

>> in my knees that I also have IBS! Ha! Ha! I thought, " What the

> heck

>> does Irritable Bowel Syndrome have to do with my knees and back? "

> I

>> cracked her up, it is actually Iliotibial Band Syndrome!!! She

> said

>> that people prone to it are avid runners (certainly not me!) and

>> indivicuals with mechanical problems of their gait. So, I know I

>> need to suck it up here - I mean it is not a cancer diagnosis or

>> anything, but here I was trudging along thinking I am going to

> feel

>> better soon and boom...I have another thing wrong with me. I feel

>> sooooo defective!! Is there anything right in our bodies?? I feel

>> like my whole body is just wearing down before my eyes and I'll

>> never be able to catch up, almost like it is down hill from here.

> I

>> know I am depressing here today and I do apologize for that - I am

>> NOT looking for anything sympathy, if anything I wish I lived

> closer

>> to one of you so that you could slap some sense into me! I should

> be

>> thankful that I am not " too " depressed, since I know I am

> depressed?

>> Does that make any sense? OK, so the point of my post was to note

> to

>> Dianne in RI and Theresa in TX, whose is visiting in Connecticut,

> I

>> am not going to meet up tomorrow. The thought of sitting and

> driving

>> a car for any extended period of time isn't in my realm of

>> possibility at this time. I am sorry as I was looking forward to

>> meeting the two of you - I just feel that I have to stop pushing

>> myself to the degree that I do at times and take better care of

>> myself. I hope you understand. Thanks for letting me vent

> everyone -

>> and I hope to " chat " with all of you tomrrow night. If it turns

> out

>> anything like last Wednesday night, I'll be laughing before I know

>> it!! Take care!

>>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

August 5, 2005

Hi Sharon -Perhaps I will check out the Elavil with A doctor. I say

that, because I don't really have one. I haven't had a true physical

or anything in years and years and you might even say I really don't

even have a doctor at this time. In regards to my flatback, I

basially just refer to my ONE appointment with Dr. Glazer and my

local orthopedic here in regards to my knees. I know - don't yell at

me - I know I need a doctor! But I will keep the Elavil in mind!

> >> Hi everybody - I've been away from the computer for a few days

> >> because I haven't felt well. Last week was a very busy one and

on

> >> Friday morning I woke up with everything hurting me at once. I

> > went

> >> to PT shere she massaged my neck back and knees while I

> > practically

> >> sobbed. I was having horrific spasms in my " gluteus medius " , my

> >> knees were acting up and I couldn't tun my neck for anything. I

> > was

> >> feeling a little better yesterday and managed to get out of bed

> > and

> >> go to PT again. She stretched me and told me that she has spoken

> >> with the doc and they also feel that besides the

chondrocalcinosis

> >> in my knees that I also have IBS! Ha! Ha! I thought, " What the

> > heck

> >> does Irritable Bowel Syndrome have to do with my knees and

back? "

> > I

> >> cracked her up, it is actually Iliotibial Band Syndrome!!! She

> > said

> >> that people prone to it are avid runners (certainly not me!) and

> >> indivicuals with mechanical problems of their gait. So, I know I

> >> need to suck it up here - I mean it is not a cancer diagnosis or

> >> anything, but here I was trudging along thinking I am going to

> > feel

> >> better soon and boom...I have another thing wrong with me. I

feel

> >> sooooo defective!! Is there anything right in our bodies?? I

feel

> >> like my whole body is just wearing down before my eyes and I'll

> >> never be able to catch up, almost like it is down hill from

here.

> > I

> >> know I am depressing here today and I do apologize for that - I

am

> >> NOT looking for anything sympathy, if anything I wish I lived

> > closer

> >> to one of you so that you could slap some sense into me! I

should

> > be

> >> thankful that I am not " too " depressed, since I know I am

> > depressed?

> >> Does that make any sense? OK, so the point of my post was to

note

> > to

> >> Dianne in RI and Theresa in TX, whose is visiting in

Connecticut,

> > I

> >> am not going to meet up tomorrow. The thought of sitting and

> > driving

> >> a car for any extended period of time isn't in my realm of

> >> possibility at this time. I am sorry as I was looking forward to

> >> meeting the two of you - I just feel that I have to stop pushing

> >> myself to the degree that I do at times and take better care of

> >> myself. I hope you understand. Thanks for letting me vent

> > everyone -

> >> and I hope to " chat " with all of you tomrrow night. If it turns

> > out

> >> anything like last Wednesday night, I'll be laughing before I

know

> >> it!! Take care!

> >>

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

August 5, 2005

Oh, dear, I know how that is. Going to walk-in clinics and emergency rooms.

I got lucky to find an internist I like just 5 minutes from home, but for

years I didn't have a primary doctor either.

My husband didn't go for physicals for the first 10 years of our marriage.

He got declined when he tried to renew his life insurance, because of

undiagnosed, severe diabetes!

Everyone needs a primary doctor.

Lecture over.