Hi All!

[Guest guest]

Hi Jill, Once you do your research and you decide this is what you want...STAND FIRM! Tell your husband about me...I'm one of those yo yo's that had to jump through all those hoops to get approved in the US...Well it still did not work, I was turned down not once but twice...My doctor wanted to go for number 3 but I was tired of jumping so I jumped on a plane and went to MX and didn't have to jump through any more hoops...And I'm loving it! It'll be 6 months on the 26th since my surgery and I've lost right at 50lbs...Just because you jump through all those hoops doesn't mean you'll get approved, what it does mean is you'll have more bills...I raked up the bills jumping through those hoops...They are not free...Now if you have several things wrong with you then you may get approved but I'll tell you it is not easy...In fact my insurance company told me they have stopped approving anyone regardless of there problems...Our system is so

screwed up...They would rather pay millions on drugs, high blood pressure, heart attacks, strokes, when this surgery could cut all those costs...Anywho, it's a good thing I don't work for them because I'd approve everyone who asked...LOL... Good luck...I hope you get it...It's worth every penny... Rena DOB: 9/26/06 204/157/135Jill <jjworswick@...> wrote: Thanks ,I just think that he thinks that it's a waste of money

(as if dieting all the time isn't). I am going to get that book that giftdtch (I am still learning everyones names) told me about and see if that helps. I also want to get him on here to see some of your before and after photos. Sometimes seeing is believing. I know that he would be happy with the results I think he is scared of the surgery part. Although he watched me have two c-sections and I lived through those. I have just started researching this so I am hoping that once I have enough information I can present a better argument. Also he wants me to talk to a "real doctor" about my weight before I do anything else but I am not to keen on all of those goofy hoops they make you jump through either. I did a Dr. supervised phendimetrizine diet for a year where I lost 45lbs in about 6 months and gaind it back in 4 while still on the pills. I found out that you can build up an intollerance on those things. After doing

that for so long I don't want to go through another yo-yo to prove that this is something I need. Anyway thanks for your kind words. Every bit of advice I get from you guys makes me want this even more.Jill > > Hello to

all of you,> > I am new to this site and I hope to get all of the information that > I > > need to convince my husband that banding is something that I need. > He > > still seems to think "Why don't you just eat right and exercise??? > You > > know that's what you need to do." Easier said than done I tell him > and > > his pound of See's a night hundred and fifty pound ass! He just has > no > > idea what it feels like to live in this 250 pound body. Anyway I > have > > read all of your messages and looked at all of your photos (very > > impressive) and the one question I have is why did you all choose > to > > go to Mexico for this surgery?? Was it because you were not > elligable > > per your insurance or something. I am 246lbs and 5'6" tall about a > 40 > > BMI I don't have

any major health problems other than being obese, > so > > I am not even sure that my insurance would cover this kind of > surgery > > for me or not. I am just starting my research and I have found your > > stories to be so inspiring. I almost feel as if I should just > charge > > the surgery with Dr.A and get it done rather than try to go through > my > > insurance and deal with all the hastle. Any feedback on this > feeling > > would be nice. Thanks for all of you inspiration.> > Jill> > > > > > > > > > > > > > ---------------------------------> > Don't get soaked. Take a quick peek at the forecast > > with the Search weather shortcut.> >>

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games.

[Guest guest]

>

> Hi All,

> I just joined the group and I wanted to introduce myslelf, I'm

Sara. I just started my own line of Dead Sea products. I got into this

line of business quite recently, we now have a small range of

products, all enriched with Dead Sea Minerals, specializing in travel

size moisturizers and gift sets. ...

Well, hello there. Your web site looks lovely. Do you make all those

products yourself? I enjoy using DSM in one soap I make, but it

appears that I use it in a higher concentration than in yours.

Are your lotions made with DSW?

Amy

Author , _Making Soap In Your Own Kitchen_,

a beginner's guide to soapmaking.

www.soapcrone.com/ebook.php

[Guest guest]

Hi Jeanne! I am feeling so good (besides the bad cold) Not

hungry...and yes I see a big difference in my clothes already. I

also notice in my bra (not cup) and I always had heavy legs and

chunky calfs and ankles and even my daughter said " mom you lost your

kankles " lol

How are you feeling? Did you finish phase 2 yet?

Also can't wait to meet you since you are a fellow resident of Vegas

with me...

Laurie

Hope everyone had a great

4th!

> I have lost just shy of 10 pounds in 7 days (13pounds lost if you

> count what I gained on my gorge days).

> I found a body lotion by Zia it is oil free used it all day

yesterday

> and took my lunesta to sleep and still lost a pound...so I am

thrilled!

> It wasn't hard to stay on the program yesterday, just the food

> everyone else was having smelled sooooo goooood!!!! I just told

myself

> that the next holiday Labor Day in Sept. I will be off phase 2

AND 3

> and be able to enjoy a little of everything.

> Anybody excercising? I have not started yet...but I have been

ill..and

> litterally laying down for 3 days....It is soooo hot here in

> Vegas...but I plan on starting to walk soon.

> Wish you all well,

> Laurie

>

>

>

>

>

>

> Jeanne

>

> ---------------------------------

> Fussy? Opinionated? Impossible to please? Perfect. Join 's

user panel and lay it on us.

>

[Guest guest]

Good Morning,I have not quite finished phase 2, and I am feeling wonderful. I have been doing this 33 days and have lost 23 pounds. My goal for this time is another 4 or 5 pounds. Keeping my fingers crossed. Then I will have 30 more to lose the next time I do phase 2. The biggest thing for me has been when I am working around the house and I am on the floor, I don't have to struggle to get off the floor. !!Hugs,Jeannenichlaurie <nichlaurie@...> wrote: Hi Jeanne! I am feeling so

good (besides the bad cold) Not hungry...and yes I see a big difference in my clothes already. I also notice in my bra (not cup) and I always had heavy legs and chunky calfs and ankles and even my daughter said "mom you lost your kankles" lol How are you feeling? Did you finish phase 2 yet? Also can't wait to meet you since you are a fellow resident of Vegas with me... Laurie Hope everyone had a great 4th! > I have lost just shy of 10 pounds in 7 days (13pounds lost if you > count what I gained on my gorge days). > I found a

body lotion by Zia it is oil free used it all day yesterday > and took my lunesta to sleep and still lost a pound...so I am thrilled! > It wasn't hard to stay on the program yesterday, just the food > everyone else was having smelled sooooo goooood!!!! I just told myself > that the next holiday Labor Day in Sept. I will be off phase 2 AND 3 > and be able to enjoy a little of everything. > Anybody excercising? I have not started yet...but I have been ill..and > litterally laying down for 3 days....It is soooo hot here in > Vegas...but I plan on starting to walk soon. > Wish you all well, > Laurie > > > > > > > Jeanne > > --------------------------------- > Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel

and lay it on us. >

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

Hi Jina and welcome. Hope you all had a good New Year!

I am confused, if your Dad had an ICD put in in 2002 -- then had a "larger Medtronic" unit implanted recently... The units get smaller - not larger. So I guess I would ask what kind of unit he has now? The heat and pain in the area could be an infection. If the unit hasn't charged or delivered a shock, I cannot imagine why the area would be hot, unless it is infection. I would not think he would feel heat from the unit charging or delivering therapy.

Keep asking your questions and remember the Doc and the nurses work for you!

Keep us posted.

~guin

Hi All!

I just joined. My Dad is 82 & had a Guidant ICD put in in 2002. In September of this year, the ICD started to zap continously. We thought it was the end for him. Finally, they realized both the battery & ICD unit were gone. They replaced it with a larger Medtronic unit. No more zaps. He is feeling heat & some pain in the area quite often though. It leads to panic attacks & often his BP gets elevated. Once they called 911 & rushed him to the ER. We have been trying to teach him relaxation techniques because the ICD clinic said his ICD unit is fine & the heat & discomfort is due to a larger unit being place where a much smaller unit was. He thinks they are "full of it". Is anyone else familiar with this? I think the ICD clinic is so tired of seeing us. Thanks for any assistance/ Jina

[Guest guest]

Hi Guin-The stronger Guidant unit was taken off the market last year,

so they switched to a stronger (now larger) Medtronic unit. It is

larger. They have checked my Dad many times. They have run bloodwork.

He seems to be ultra sensitive & feels heat there. He has a bigger unit

in a spot where there was a small unit. I really wish I could find

people going thru the same thing, because my Dad just will not believe

it. Jina

[Guest guest]

This humidity has your asthma going crazy?

Support your friendly local autistics...........I'm one of them.

HI ALL!

i WANT TO THANK ALL FOR THE RECENT SUPPORT AND I AM TRYING TO BE MORE ACTIVE IN THE GROUP.I HOPE EVERYONE HAS PLANS FOR A NICE WEEKEND.I HAVE A PICNIC TO GO TO ON STAURDAY BUT THIS HUMIDITY HAS MY ASTHMA GOING CRAZY AND NASAL ALLERGIES SO I'LL HAVE TO SEE HOW I FEEL. I ALSO TOLD YOU ABOUT MY REHAB STINT AND THIS IS AT A COUSINS WHERE THEY ALL DRINK AND I JUST GOT AN EMAIL ABOUT WHO ALL TO BRING WHAT BOOZE. OIIYYYYYY! I WOULD SIMPLY NOT GO BUT THIS COUSIN IS THE TYPE WHO IS TOTALLY OFFENEDED IF YOU DONT SHOW UP AT SOMETHING AND THEN WONT HELP YOU THE NEXT TIME YOU HAVE CAR TROUBLE OR SOMETHING. VERY MATURE. AND RIGHT NOW THEY ARE THE ONLY PEOPLE I HAVE FOR HELP UP HERE. SO WHATEVER, I WILL DECIDE ON FRI OR SAT MORN. HOPE EVERYONE IS DOING WELL HELATHWISE AND HAS FUN PLANS FOR THE 4TH. EVERYONE TAKE CARE AND LET'S HERE

ABOUT YOUR PLANS! SOME POSITIVE NEWS!HUGS COLLEEN C************ **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker. com!(www.tourtracker. com ?NCID=aolmus0005000 0000112)

[Guest guest]

This humidity has your asthma going crazy?

Support your friendly local autistics...........I'm one of them.

HI ALL!

i WANT TO THANK ALL FOR THE RECENT SUPPORT AND I AM TRYING TO BE MORE ACTIVE IN THE GROUP.I HOPE EVERYONE HAS PLANS FOR A NICE WEEKEND.I HAVE A PICNIC TO GO TO ON STAURDAY BUT THIS HUMIDITY HAS MY ASTHMA GOING CRAZY AND NASAL ALLERGIES SO I'LL HAVE TO SEE HOW I FEEL. I ALSO TOLD YOU ABOUT MY REHAB STINT AND THIS IS AT A COUSINS WHERE THEY ALL DRINK AND I JUST GOT AN EMAIL ABOUT WHO ALL TO BRING WHAT BOOZE. OIIYYYYYY! I WOULD SIMPLY NOT GO BUT THIS COUSIN IS THE TYPE WHO IS TOTALLY OFFENEDED IF YOU DONT SHOW UP AT SOMETHING AND THEN WONT HELP YOU THE NEXT TIME YOU HAVE CAR TROUBLE OR SOMETHING. VERY MATURE. AND RIGHT NOW THEY ARE THE ONLY PEOPLE I HAVE FOR HELP UP HERE. SO WHATEVER, I WILL DECIDE ON FRI OR SAT MORN. HOPE EVERYONE IS DOING WELL HELATHWISE AND HAS FUN PLANS FOR THE 4TH. EVERYONE TAKE CARE AND LET'S HERE

ABOUT YOUR PLANS! SOME POSITIVE NEWS!HUGS COLLEEN C************ **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker. com!(www.tourtracker. com ?NCID=aolmus0005000 0000112)

[Guest guest]

I HOPE THAT YOUR 4TH WENT OK;;YOU WANTED TO HEAR POSITIVE;; WELL MY KIDS & I DID A SURPRIZE B-DAY PARTY FOR MY HUBBY AT ONE OF MY DAUGHTERS HOME BY HER POOL;; WE HAD WALKING TACOS PLUS OTHER FOOD & A CAKE FOR HUBBY;; WE GOT HIM GOOD;; HIS B-DAY ISNT TILL THE 23RD BUT WE KNEW IF WE WAITED TILL AROUND THAT TIME HE WOULD KNOW;; WE ALWAYS GET TOGETHER FOR THE 4TH SO THOT IT A GOOD TIME TO DO IT;; MY OLDEST DAUGHTER MADE A VIDEO OF PICTURES OF HIM FROM WHEN HE WAS YOUNG TO NOW;; WITH THE G-KIDS OVER THE YEARS ;; & THE KIDS;; TURNED OUT AWESOME;;HAD IT PLAYING ON MY G-SONS LAP TOP DURING THE PARTY SO EVERY ONE COULD WATCH IT;; WAS A GREAT DAY;; WEATHER ALSO;; HUGS DORTccomm777@... wrote: i WANT TO THANK ALL FOR THE RECENT SUPPORT AND I AM TRYING TO BE MORE ACTIVE IN THE GROUP.I HOPE EVERYONE HAS PLANS FOR A NICE WEEKEND.I HAVE A PICNIC TO GO TO ON STAURDAY BUT THIS HUMIDITY HAS MY ASTHMA GOING CRAZY AND NASAL ALLERGIES SO I'LL HAVE TO SEE HOW I FEEL. I ALSO TOLD YOU ABOUT MY REHAB STINT AND THIS IS AT A COUSINS WHERE THEY ALL DRINK AND I JUST GOT AN EMAIL ABOUT WHO ALL TO BRING WHAT BOOZE. OIIYYYYYY! I WOULD SIMPLY NOT GO BUT THIS COUSIN IS THE TYPE WHO IS TOTALLY OFFENEDED IF YOU DONT SHOW UP AT SOMETHING AND THEN WONT HELP YOU THE NEXT TIME YOU HAVE CAR TROUBLE OR SOMETHING. VERY MATURE. AND RIGHT NOW THEY ARE THE ONLY PEOPLE I HAVE FOR

HELP UP HERE. SO WHATEVER, I WILL DECIDE ON FRI OR SAT MORN. HOPE EVERYONE IS DOING WELL HELATHWISE AND HAS FUN PLANS FOR THE 4TH. EVERYONE TAKE CARE AND LET'S HERE ABOUT YOUR PLANS! SOME POSITIVE NEWS!HUGS COLLEEN C**************Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com!(www.tourtracker.com ?NCID=aolmus00050000000112)

[Guest guest]

the important thing to remember about these drugs is that even though they have

serious side effects just like everything else.does the risk outweigh the

relief?my answer would be no just because i have been on just about everything

known to man(no EXAGERATION).and really didn't get any significant relief until

i was put on remicade.the most serious side effect from that is MS>which i now

have to a very small degree.i can no longer have remicade because of this.but i

was on it for 3 years.great success.now i am back on diclofinac and prednisone

which i despise but i am having minimal results with the prednisone and none

with the diclofinac.humira works like remicade just not as potent.so as with any

drug you have to weigh the pros and cons.to me it was worth it.i am no longer

bed ridden and i am leading a very active,minimal pain free life.there is hope!-

On Sun, 8/24/08, <jlv1062000@...> wrote:

From: <jlv1062000@...>

Subject: Hi all!

Date: Sunday, August 24, 2008, 6:34 PM

I have had AS for aproximatelly 7 years. I was first diagnosed with

fibromyalgia, which may be a part of my issues, but I think most of my

pain is actually from the AS.I have been through an ocean of doctors

over the last 7 years, and finally found a great Rhuemy in a

neighboring town. My AS has been active for the greater part of 7

years, with highs and lows/flares more common than not. I am on Lodine,

sulfasalazine, tramadol, tylenol, and ocassionally on Sexlaxin.I have

tried Enbrel with little sucess and am planning on starting Humira and

Mobic. I am extremely worried about the side effects of these two

drugs, mostly because I suffer from other autoimmune diseases which

lower my immune system. However, with the current flare I am having

which has lasted the last 2 months,I have become extremely tired, and

the pain and inflammation are overwhelming. I have needed to take

medrol dose packs 4 times in the last 2 months.

I look forward to meeting others who have AS to share stories,

experiences, and possible solutions. I am so happy to have found this

group, and am very excited to meet you all!

Jen

[Guest guest]

, I don't know as I have never had muscle ache, but my 5 sisters

all have fibermyalgia and they have muscle ache, and for awhile until

diagnosed with hep c, my doc had me on lyrica for the stiffness and

joint ache, and he too thought I might have fibermyalgia. Finally I

found out it seems my hep c has caused me to have arthritis in my

hands. I have very stiff joints there, also have little nodules on

each knuckle and the other joints in my fingers.So you might have an

underlying condition other than the hep c or something that the hep c

has caused. I would mention it to my doc if I were you. Sorry if I

havent been very helpfull.

Marsha

>

> Just a question for anyone who finds the time to answer.... is it

> normal to have extreme muscle and joint pain? I have been diagnosed

> recently, and it seems as though since I was diagnosed my symptoms

> have gone through the roof. I wake up in the night with leg cramps

and

> pain and upon waking they don't feel much better. Also lately my

right

> side (liver area) has been throbbing like crazy. I'm scheduled to

see

> a specialist September 11th, but I'm not sure....should I be seen

> sooner? What is everyone's take on this. I know the fatigue is also

> normal, but this is unbelievable....what gives?

>

[Guest guest]

, I don't know as I have never had muscle ache, but my 5 sisters

all have fibermyalgia and they have muscle ache, and for awhile until

diagnosed with hep c, my doc had me on lyrica for the stiffness and

joint ache, and he too thought I might have fibermyalgia. Finally I

found out it seems my hep c has caused me to have arthritis in my

hands. I have very stiff joints there, also have little nodules on

each knuckle and the other joints in my fingers.So you might have an

underlying condition other than the hep c or something that the hep c

has caused. I would mention it to my doc if I were you. Sorry if I

havent been very helpfull.

Marsha

>

> Just a question for anyone who finds the time to answer.... is it

> normal to have extreme muscle and joint pain? I have been diagnosed

> recently, and it seems as though since I was diagnosed my symptoms

> have gone through the roof. I wake up in the night with leg cramps

and

> pain and upon waking they don't feel much better. Also lately my

right

> side (liver area) has been throbbing like crazy. I'm scheduled to

see

> a specialist September 11th, but I'm not sure....should I be seen

> sooner? What is everyone's take on this. I know the fatigue is also

> normal, but this is unbelievable....what gives?

>

[Guest guest]

, I don't know as I have never had muscle ache, but my 5 sisters

all have fibermyalgia and they have muscle ache, and for awhile until

diagnosed with hep c, my doc had me on lyrica for the stiffness and

joint ache, and he too thought I might have fibermyalgia. Finally I

found out it seems my hep c has caused me to have arthritis in my

hands. I have very stiff joints there, also have little nodules on

each knuckle and the other joints in my fingers.So you might have an

underlying condition other than the hep c or something that the hep c

has caused. I would mention it to my doc if I were you. Sorry if I

havent been very helpfull.

Marsha

>

> Just a question for anyone who finds the time to answer.... is it

> normal to have extreme muscle and joint pain? I have been diagnosed

> recently, and it seems as though since I was diagnosed my symptoms

> have gone through the roof. I wake up in the night with leg cramps

and

> pain and upon waking they don't feel much better. Also lately my

right

> side (liver area) has been throbbing like crazy. I'm scheduled to

see

> a specialist September 11th, but I'm not sure....should I be seen

> sooner? What is everyone's take on this. I know the fatigue is also

> normal, but this is unbelievable....what gives?

>

[Guest guest]

,

The leg cramps are part of the HCV - I get them so bad sometimes I wake up screaming! I get them in my feet & hands too. My doctor suggested I try taking 400 I U of Vitamin E daily & drinking tonic water & the cramping has lessened. Good Luck with it - ask your doctor what he/she suggests.

SuZie

Your future depends on your dreams. Don't waste time, go to sleep NOW!

From: sparky111_26003 <sparky111_26003@...>Subject: Re: Hi all!Hepatitis CSupportGroupForDummies Date: Thursday, August 28, 2008, 12:28 PM

, I don't know as I have never had muscle ache, but my 5 sisters all have fibermyalgia and they have muscle ache, and for awhile until diagnosed with hep c, my doc had me on lyrica for the stiffness and joint ache, and he too thought I might have fibermyalgia. Finally I found out it seems my hep c has caused me to have arthritis in my hands. I have very stiff joints there, also have little nodules on each knuckle and the other joints in my fingers.So you might have an underlying condition other than the hep c or something that the hep c has caused. I would mention it to my doc if I were you. Sorry if I havent been very helpfull.Marsha>> Just a question for anyone who finds the

time to answer.... is it > normal to have extreme muscle and joint pain? I have been diagnosed > recently, and it seems as though since I was diagnosed my symptoms > have gone through the roof. I wake up in the night with leg cramps and > pain and upon waking they don't feel much better. Also lately my right > side (liver area) has been throbbing like crazy. I'm scheduled to see > a specialist September 11th, but I'm not sure....should I be seen > sooner? What is everyone's take on this. I know the fatigue is also > normal, but this is unbelievable. ...what gives?>

[Guest guest]

,

The leg cramps are part of the HCV - I get them so bad sometimes I wake up screaming! I get them in my feet & hands too. My doctor suggested I try taking 400 I U of Vitamin E daily & drinking tonic water & the cramping has lessened. Good Luck with it - ask your doctor what he/she suggests.

SuZie

Your future depends on your dreams. Don't waste time, go to sleep NOW!

From: sparky111_26003 <sparky111_26003@...>Subject: Re: Hi all!Hepatitis CSupportGroupForDummies Date: Thursday, August 28, 2008, 12:28 PM

, I don't know as I have never had muscle ache, but my 5 sisters all have fibermyalgia and they have muscle ache, and for awhile until diagnosed with hep c, my doc had me on lyrica for the stiffness and joint ache, and he too thought I might have fibermyalgia. Finally I found out it seems my hep c has caused me to have arthritis in my hands. I have very stiff joints there, also have little nodules on each knuckle and the other joints in my fingers.So you might have an underlying condition other than the hep c or something that the hep c has caused. I would mention it to my doc if I were you. Sorry if I havent been very helpfull.Marsha>> Just a question for anyone who finds the

time to answer.... is it > normal to have extreme muscle and joint pain? I have been diagnosed > recently, and it seems as though since I was diagnosed my symptoms > have gone through the roof. I wake up in the night with leg cramps and > pain and upon waking they don't feel much better. Also lately my right > side (liver area) has been throbbing like crazy. I'm scheduled to see > a specialist September 11th, but I'm not sure....should I be seen > sooner? What is everyone's take on this. I know the fatigue is also > normal, but this is unbelievable. ...what gives?>

[Guest guest]

,

The leg cramps are part of the HCV - I get them so bad sometimes I wake up screaming! I get them in my feet & hands too. My doctor suggested I try taking 400 I U of Vitamin E daily & drinking tonic water & the cramping has lessened. Good Luck with it - ask your doctor what he/she suggests.

SuZie

Your future depends on your dreams. Don't waste time, go to sleep NOW!

From: sparky111_26003 <sparky111_26003@...>Subject: Re: Hi all!Hepatitis CSupportGroupForDummies Date: Thursday, August 28, 2008, 12:28 PM

, I don't know as I have never had muscle ache, but my 5 sisters all have fibermyalgia and they have muscle ache, and for awhile until diagnosed with hep c, my doc had me on lyrica for the stiffness and joint ache, and he too thought I might have fibermyalgia. Finally I found out it seems my hep c has caused me to have arthritis in my hands. I have very stiff joints there, also have little nodules on each knuckle and the other joints in my fingers.So you might have an underlying condition other than the hep c or something that the hep c has caused. I would mention it to my doc if I were you. Sorry if I havent been very helpfull.Marsha>> Just a question for anyone who finds the

time to answer.... is it > normal to have extreme muscle and joint pain? I have been diagnosed > recently, and it seems as though since I was diagnosed my symptoms > have gone through the roof. I wake up in the night with leg cramps and > pain and upon waking they don't feel much better. Also lately my right > side (liver area) has been throbbing like crazy. I'm scheduled to see > a specialist September 11th, but I'm not sure....should I be seen > sooner? What is everyone's take on this. I know the fatigue is also > normal, but this is unbelievable. ...what gives?>

[Guest guest]

Hi

,

The

muscle and joint pain can be caused by the hep itself. Those were my major

symptoms before I was dx’d.

Or, sometimes

your potassium is out of whack and can cause leg cramps, as does a lack of or

too much calcium. You might try taking some over the counter potassium and see

if it helps. I take one potassium every other day, if I do it every day I get

worse cramping. Weird.

Almost

a year after I finished tx I started having some really major muscle and joint

pain, at first dx’d with rheumatoid arthritis, then more testing showed poly-arthritis

which affects both muscle and joints. The docs feel it was likely caused by the

hep c virus itself.

Moral

of the story is make a list for the specialist and make sure he/she understands

how bad it is. If you are really in bad shape, phone your Gp doctor for advice

now.

And

good luck! My body is aching just thinking of you L.

Just a question for anyone who finds the time

to answer.... is it

normal to have extreme muscle and joint pain? I have been diagnosed

recently, and it seems as though since I was diagnosed my symptoms

have gone through the roof. I wake up in the night with leg cramps and

pain and upon waking they don't feel much better. Also lately my right

side (liver area) has been throbbing like crazy. I'm scheduled to see

a specialist September 11th, but I'm not sure....should I be seen

sooner? What is everyone's take on this. I know the fatigue is also

normal, but this is unbelievable....what gives?

[Guest guest]

Hi

,

The

muscle and joint pain can be caused by the hep itself. Those were my major

symptoms before I was dx’d.

Or, sometimes

your potassium is out of whack and can cause leg cramps, as does a lack of or

too much calcium. You might try taking some over the counter potassium and see

if it helps. I take one potassium every other day, if I do it every day I get

worse cramping. Weird.

Almost

a year after I finished tx I started having some really major muscle and joint

pain, at first dx’d with rheumatoid arthritis, then more testing showed poly-arthritis

which affects both muscle and joints. The docs feel it was likely caused by the

hep c virus itself.

Moral

of the story is make a list for the specialist and make sure he/she understands

how bad it is. If you are really in bad shape, phone your Gp doctor for advice

now.

And

good luck! My body is aching just thinking of you L.

Just a question for anyone who finds the time

to answer.... is it

normal to have extreme muscle and joint pain? I have been diagnosed

recently, and it seems as though since I was diagnosed my symptoms

have gone through the roof. I wake up in the night with leg cramps and

pain and upon waking they don't feel much better. Also lately my right

side (liver area) has been throbbing like crazy. I'm scheduled to see

a specialist September 11th, but I'm not sure....should I be seen

sooner? What is everyone's take on this. I know the fatigue is also

normal, but this is unbelievable....what gives?

[Guest guest]

Hi

,

The

muscle and joint pain can be caused by the hep itself. Those were my major

symptoms before I was dx’d.

Or, sometimes

your potassium is out of whack and can cause leg cramps, as does a lack of or

too much calcium. You might try taking some over the counter potassium and see

if it helps. I take one potassium every other day, if I do it every day I get

worse cramping. Weird.

Almost

a year after I finished tx I started having some really major muscle and joint

pain, at first dx’d with rheumatoid arthritis, then more testing showed poly-arthritis

which affects both muscle and joints. The docs feel it was likely caused by the

hep c virus itself.

Moral

of the story is make a list for the specialist and make sure he/she understands

how bad it is. If you are really in bad shape, phone your Gp doctor for advice

now.

And

good luck! My body is aching just thinking of you L.

Just a question for anyone who finds the time

to answer.... is it

normal to have extreme muscle and joint pain? I have been diagnosed

recently, and it seems as though since I was diagnosed my symptoms

have gone through the roof. I wake up in the night with leg cramps and

pain and upon waking they don't feel much better. Also lately my right

side (liver area) has been throbbing like crazy. I'm scheduled to see

a specialist September 11th, but I'm not sure....should I be seen

sooner? What is everyone's take on this. I know the fatigue is also

normal, but this is unbelievable....what gives?

[Guest guest]

This discussion on here is really valuable for me right now. Kezia is doing

some things which I consider annoying because they add to the work load but

I just take them in stride. Her father and step mother are really angry

with me because they say I don't consequence her because my expectations are

too low and that I don't create structure . They use time out. I think

that is absolutely crazy as she would sooner be off by herself and it holds

no meaning. I do try to ger her to help clean up when she throws and dumps

objects, soiled diapers, plates of food or whatever. This week I put her

into my room with some books while I disinfected her room. She got into my

clothes closet and pulled my clothes off hangers and threw them out the

second story window into the snow band and it was 30 below. Also threw out

her glasses and hearing aids, lamps toys, clock radio, books, etc etc. I

had a fever with the flu so as you can imagine not too pleased. But it was

my fault for not supervising better and for forgetting that I had left the

window open for fresh air. She loves to throw everything. I can't leave

her alone in the tub or she dumps the contents of the bathroom, towels,

diapers, everything into the water. But I can't always be with her every

second so as much as I try, other things in the home call me to attend to

them. I dressed Kezia up for the cold and had her help me retrieve the

things. But the next day, she opened the window herself and did it again.

Any suggestions? Talking does not work, I've tried but she doesn't have

cognition of a two year old. Her throwing things is very expensive. She

throws away shoes and glasses on outings on a regular basis. Any ideas to

de=escalate this?

-- Re: Hi all!

danielle you got it and now remember too her non verbals will not amtch

typical non verbals they will be of a language all her own. so donot try to

interpret it to typical non verbals as it may never match up... try to read

her ways of showing you anxiety, her way of showing you too loud, her way of

showing you hungry, she is of showing you but as a interpretur of her

language you will have of to study of it after all that is of how all

cultures begin to learn another cultures language is of to study it, not

just the spoken as it is of learned through study of the observations and

learning of the patterns of actions, symbols and sounds, that latter is of

understood as true language that can be of understood. we on the spectrum

have of to do this daily to the NT worlds way of using words and things and

is of how we can at times be of good recepters but not good expressors.

sondra

[Guest guest]

This discussion on here is really valuable for me right now. Kezia is doing

some things which I consider annoying because they add to the work load but

I just take them in stride. Her father and step mother are really angry

with me because they say I don't consequence her because my expectations are

too low and that I don't create structure . They use time out. I think

that is absolutely crazy as she would sooner be off by herself and it holds

no meaning. I do try to ger her to help clean up when she throws and dumps

objects, soiled diapers, plates of food or whatever. This week I put her

into my room with some books while I disinfected her room. She got into my

clothes closet and pulled my clothes off hangers and threw them out the

second story window into the snow band and it was 30 below. Also threw out

her glasses and hearing aids, lamps toys, clock radio, books, etc etc. I

had a fever with the flu so as you can imagine not too pleased. But it was

my fault for not supervising better and for forgetting that I had left the

window open for fresh air. She loves to throw everything. I can't leave

her alone in the tub or she dumps the contents of the bathroom, towels,

diapers, everything into the water. But I can't always be with her every

second so as much as I try, other things in the home call me to attend to

them. I dressed Kezia up for the cold and had her help me retrieve the

things. But the next day, she opened the window herself and did it again.

Any suggestions? Talking does not work, I've tried but she doesn't have

cognition of a two year old. Her throwing things is very expensive. She

throws away shoes and glasses on outings on a regular basis. Any ideas to

de=escalate this?

-- Re: Hi all!

danielle you got it and now remember too her non verbals will not amtch

typical non verbals they will be of a language all her own. so donot try to

interpret it to typical non verbals as it may never match up... try to read

her ways of showing you anxiety, her way of showing you too loud, her way of

showing you hungry, she is of showing you but as a interpretur of her

language you will have of to study of it after all that is of how all

cultures begin to learn another cultures language is of to study it, not

just the spoken as it is of learned through study of the observations and

learning of the patterns of actions, symbols and sounds, that latter is of

understood as true language that can be of understood. we on the spectrum

have of to do this daily to the NT worlds way of using words and things and

is of how we can at times be of good recepters but not good expressors.

sondra

[Guest guest]

This discussion on here is really valuable for me right now. Kezia is doing

some things which I consider annoying because they add to the work load but

I just take them in stride. Her father and step mother are really angry

with me because they say I don't consequence her because my expectations are

too low and that I don't create structure . They use time out. I think

that is absolutely crazy as she would sooner be off by herself and it holds

no meaning. I do try to ger her to help clean up when she throws and dumps

objects, soiled diapers, plates of food or whatever. This week I put her

into my room with some books while I disinfected her room. She got into my

clothes closet and pulled my clothes off hangers and threw them out the

second story window into the snow band and it was 30 below. Also threw out

her glasses and hearing aids, lamps toys, clock radio, books, etc etc. I

had a fever with the flu so as you can imagine not too pleased. But it was

my fault for not supervising better and for forgetting that I had left the

window open for fresh air. She loves to throw everything. I can't leave

her alone in the tub or she dumps the contents of the bathroom, towels,

diapers, everything into the water. But I can't always be with her every

second so as much as I try, other things in the home call me to attend to

them. I dressed Kezia up for the cold and had her help me retrieve the

things. But the next day, she opened the window herself and did it again.

Any suggestions? Talking does not work, I've tried but she doesn't have

cognition of a two year old. Her throwing things is very expensive. She

throws away shoes and glasses on outings on a regular basis. Any ideas to

de=escalate this?

-- Re: Hi all!

danielle you got it and now remember too her non verbals will not amtch

typical non verbals they will be of a language all her own. so donot try to

interpret it to typical non verbals as it may never match up... try to read

her ways of showing you anxiety, her way of showing you too loud, her way of

showing you hungry, she is of showing you but as a interpretur of her

language you will have of to study of it after all that is of how all

cultures begin to learn another cultures language is of to study it, not

just the spoken as it is of learned through study of the observations and

learning of the patterns of actions, symbols and sounds, that latter is of

understood as true language that can be of understood. we on the spectrum

have of to do this daily to the NT worlds way of using words and things and

is of how we can at times be of good recepters but not good expressors.

sondra

[Guest guest]

Thanks again sondra. This information from you is so helpful. Her school called

today to tell me she was having a fit and they don't know why. I'm gonna meet

with her teacher and tell her the things you have shared with me. I think this

is gonna really help us help Cali. Thanks

le

Sent from my BlackBerry® smartphone powered by Centennial Wireless.

Re: Hi all!

danielle you got it and now remember too her non verbals will not amtch typical

non verbals they will be of a language all her own. so donot try to interpret it

to typical non verbals as it may never match up... try to read her ways of

showing you anxiety, her way of showing you too loud, her way of showing you

hungry, she is of showing you but as a interpretur of her language you will have

of to study of it after all that is of how all cultures begin to learn another

cultures language is of to study it, not just the spoken as it is of learned

through study of the observations and learning of the patterns of actions,

symbols and sounds, that latter is of understood as true language that can be of

understood. we on the spectrum have of to do this daily to the NT worlds way of

using words and things and is of how we can at times be of good recepters but

not good expressors.

sondra

[Guest guest]

I'm like you -- typically I can keep it together during tough times

unless someone comes up and starts talking nice to me. Then I start to

cry. You're doing the right things. The lady at church who talked to

you sounds like she'd really like you to stay and she really means that

it's okay for Cali to come. People who aren't familiar with kids with

disabilities often do feel sorry for us but when they get to know us and

our kids better they see our kids more as normal people with problems

(if that makes any sense.) Then they see the good things about our kids

too and that our life can be good even though it's hard at times.

So often and in so many places we have to deal with social rejection

based on our kids' behaviors. And even if our kids behave wonderfully

we're still on edge somewhat because we're looking for signs that the

situation is going to deteriorate. A lot of our families quit church

because it's optional -- unlike the grocery store and the doctor's

office. That's what I did (though I had theological differences too.)

When I look back on it I realize that most of the tension I felt there

was because I was worried how people would react more than because of

their actual reactions. Also " proper " church behavior is typically very

formal and demanding -- more so than at school or anywhere else. Our

kids' behavior really shows up there and it's in much greater contrast

compared to all the other kids who are sitting still & listening (or at

least pretending to).

Some of the big churches in our town have been developing ministries for

families with special need kids. Special sunday school classes or

training for their teachers and probably other stuff I don't know

about. You could check out the other churches in your town and see if

any look like a good fit for you. Or you could do an internet search on

special needs ministry and see what churches are doing, then talk to

your church about implementing some of those programs. You could also

ask the minister for a few minutes to stand up and talk to the

congregation. You could briefly describe your daughter and list her

behaviors that might happen at church and assure them that if things get

too disruptive you'll take her out. Tell them you really think church

is important for you and your daughter and you'd like very much to

continue there -- but you will also address difficulties as they come

up. I bet you'll have everyone on your side in no time. I also bet

you'll have at least three people come up to you afterward and say they

have relatives with autism and they'll ask a whole lot of questions.

Whatever you decide to do, don't neglect your spiritual needs. If

attending church doesn't work out, try a bible study group or something

similar. Good luck!

-- Cassie

pinkcallieblind@... wrote:

>Hi everyone! I haven't posted anything in a while..been so busy with the kids..

Today was such a bad day for my daughter- age 6-blind and autistic. I took her

to church like always, and today I guess she didn't want to be there. She

started fussing so I let her sit with my dad, which usually makes her happy. It

didn't help. I gave her headphones to listen to her favorite music and that

didn't help either. She started screaming and having a huge meltdown in church.

Everyone starts staring, some are giving me dirty looks and some look so sad for

me and Cali. I take her as quickly as possible to the nursery, but they can all

still hear her. I feel like she is interrupting everyone so I decide to leave. I

was doing really well keeping myself together, till an aunt came meet me. She

started saying that my daughter was " special " and that everyone understands that

cali will have these " moments " and they aren't mad, they feel sorry for her.

That made me break down crying. I was told be all her therapists not to feel

sorry for her, to treat her as a " normal " child. I don't want others to feel

sorry for her. Am I wrong for that? I go to a very small church, and cali is the

only child they know with disabilities. The same goes with my family- cali is

the only child in family with any kind of disability, so most of them baby her

and cry in front of her. Should I just let it go? And should I continue to allow

her to attend church with the family? I'd hate to break that weekly ritual but I

don't wanna make others uncomfortable. I'm sorry for going on about this, but it

really upset me and I know I can count on this group for support and advise.

Thanks for listening everyone. I feel better just for talking bout it.

>Sent from my BlackBerry® smartphone powered by Centennial Wireless.

>

>------------------------------------

>

>Autism_in_Girls_and_Women-subscribe

>------------------------

>Autism_in_Girls_and_Women-unsubscribe@...! Groups Links

>

>

>

>

>

--

-- Cassie Zupke

Director, Open Doors Now

Click the link below to join our new Open Doors Now group information site to

access all our group news, calendar, forums, and current autism information.

http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a46063592584264652878\

e483a3a1cf2

[Guest guest]

I'm like you -- typically I can keep it together during tough times

unless someone comes up and starts talking nice to me. Then I start to

cry. You're doing the right things. The lady at church who talked to

you sounds like she'd really like you to stay and she really means that

it's okay for Cali to come. People who aren't familiar with kids with

disabilities often do feel sorry for us but when they get to know us and

our kids better they see our kids more as normal people with problems

(if that makes any sense.) Then they see the good things about our kids

too and that our life can be good even though it's hard at times.

So often and in so many places we have to deal with social rejection

based on our kids' behaviors. And even if our kids behave wonderfully

we're still on edge somewhat because we're looking for signs that the

situation is going to deteriorate. A lot of our families quit church

because it's optional -- unlike the grocery store and the doctor's

office. That's what I did (though I had theological differences too.)

When I look back on it I realize that most of the tension I felt there

was because I was worried how people would react more than because of

their actual reactions. Also " proper " church behavior is typically very

formal and demanding -- more so than at school or anywhere else. Our

kids' behavior really shows up there and it's in much greater contrast

compared to all the other kids who are sitting still & listening (or at

least pretending to).

Some of the big churches in our town have been developing ministries for

families with special need kids. Special sunday school classes or

training for their teachers and probably other stuff I don't know

about. You could check out the other churches in your town and see if

any look like a good fit for you. Or you could do an internet search on

special needs ministry and see what churches are doing, then talk to

your church about implementing some of those programs. You could also

ask the minister for a few minutes to stand up and talk to the

congregation. You could briefly describe your daughter and list her

behaviors that might happen at church and assure them that if things get

too disruptive you'll take her out. Tell them you really think church

is important for you and your daughter and you'd like very much to

continue there -- but you will also address difficulties as they come

up. I bet you'll have everyone on your side in no time. I also bet

you'll have at least three people come up to you afterward and say they

have relatives with autism and they'll ask a whole lot of questions.

Whatever you decide to do, don't neglect your spiritual needs. If

attending church doesn't work out, try a bible study group or something

similar. Good luck!

-- Cassie

pinkcallieblind@... wrote:

>Hi everyone! I haven't posted anything in a while..been so busy with the kids..

Today was such a bad day for my daughter- age 6-blind and autistic. I took her

to church like always, and today I guess she didn't want to be there. She

started fussing so I let her sit with my dad, which usually makes her happy. It

didn't help. I gave her headphones to listen to her favorite music and that

didn't help either. She started screaming and having a huge meltdown in church.

Everyone starts staring, some are giving me dirty looks and some look so sad for

me and Cali. I take her as quickly as possible to the nursery, but they can all

still hear her. I feel like she is interrupting everyone so I decide to leave. I

was doing really well keeping myself together, till an aunt came meet me. She

started saying that my daughter was " special " and that everyone understands that

cali will have these " moments " and they aren't mad, they feel sorry for her.

That made me break down crying. I was told be all her therapists not to feel

sorry for her, to treat her as a " normal " child. I don't want others to feel

sorry for her. Am I wrong for that? I go to a very small church, and cali is the

only child they know with disabilities. The same goes with my family- cali is

the only child in family with any kind of disability, so most of them baby her

and cry in front of her. Should I just let it go? And should I continue to allow

her to attend church with the family? I'd hate to break that weekly ritual but I

don't wanna make others uncomfortable. I'm sorry for going on about this, but it

really upset me and I know I can count on this group for support and advise.

Thanks for listening everyone. I feel better just for talking bout it.

>Sent from my BlackBerry® smartphone powered by Centennial Wireless.

>

>------------------------------------

>

>Autism_in_Girls_and_Women-subscribe

>------------------------

>Autism_in_Girls_and_Women-unsubscribe@...! Groups Links

>

>

>

>

>

--

-- Cassie Zupke

Director, Open Doors Now

Click the link below to join our new Open Doors Now group information site to

access all our group news, calendar, forums, and current autism information.

http://www.bigtent.com/hosted/opndrs/invitation?hosted_key=a46063592584264652878\

e483a3a1cf2