Re: Chemo and diarrhea

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In a message dated 6/19/08 8:21:36 AM, bremerann@... writes:

I guess I'm really hoping it's some kind of

sensitivity that will go away once he's off chemo, but realize that's

probably wishful thinking. (We've done multiple stool samples for all

kinds of different things, including several for c-diff, but they all

came back negative.) Has anyone else had a similar experience?

I haven't. But you know I have been following s story and I feel SO bad for you guys. The gluten free diet sounds like a nightmare....Hopefully its just a chemo side effect, but don't have any experience as far as that goes. Chloes poops are nasty only during Steroid week.

, Mom to Chloe (age 5 Down Syndrome and Pre B Cell ALL dx 11/30/06 COG AALL-0331 low risk standard arm. One more year to go!!! )

CaringBridge.org/visit/Chloemalena

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[Guest guest]

had terrible diarrhea during chemo for AML. We did not know where it all came from. They told us it was a side effect of the chemo and all the extra fluids he got during treatment.

Hope you figure it out. His poor little bottom must be raw.

In a message dated 6/19/2008 8:21:36 A.M. Eastern Daylight Time, bremerann@... writes:

My son is 3 years into treatment for ALL. After six months of unexplained horrible diarrhea and a negative celiac biopsy, the diarrhea has finally stopped but only after being on a gluten free diet for two months. I guess I'm really hoping it's some kind of sensitivity that will go away once he's off chemo, but realize that's probably wishful thinking. (We've done multiple stool samples for all kinds of different things, including several for c-diff, but they all came back negative.) Has anyone else had a similar experience?www.caringbridge.org/visit/johnbremer Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

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No (but was treatment was for AML). This sure sounds like celiac. bremerann <bremerann@...> wrote: My son is 3 years into treatment for ALL. After six months of unexplained horrible diarrhea and a negative celiac biopsy, the diarrhea has finally stopped but only after being on a gluten free diet for two months. I guess I'm really hoping it's some kind of sensitivity that will go away once he's off chemo, but realize that's probably wishful thinking. (We've done multiple stool samples for all

kinds of different things, including several for c-diff, but they all came back negative.) Has anyone else had a similar experience? www.caringbridge.org/visit/johnbremer

[Guest guest]

My son five, just went on maintenance and had a G tube inserted after being on an NG tube for 5 months. He has had diarrhea ever since. I think its the maintenance drugs because he was getting the same feedings through the NG tube. We have had a stool sample too with negative results. is very thin and this new symptom isn't helping any. So didn't start getting diarrhea until well into maintenance? How has his counts been during maintenanace. has been on maintenance for about two months and so far it has been rough. Connie Gliott

[ ] Chemo and diarrhea

My son is 3 years into treatment for ALL. After six months of unexplained horrible diarrhea and a negative celiac biopsy, the diarrhea has finally stopped but only after being on a gluten free diet for two months. I guess I'm really hoping it's some kind of sensitivity that will go away once he's off chemo, but realize that's probably wishful thinking. (We've done multiple stool samples for all kinds of different things, including several for c-diff, but they all came back negative.) Has anyone else had a similar experience?www.caringbridge. org/visit/ johnbremer

[Guest guest]

My daughter had bouts of severe diarhea, with her it turned out to be c-diff, She tested positive at least twice during her course of treatment. I looked through her journal and other then the c-diff we struggled with constipation. hope you get results soon. ettebremerann <bremerann@...> wrote: My son is 3 years into treatment for ALL. After six months of unexplained horrible diarrhea and a negative celiac biopsy, the diarrhea has finally stopped but only after being on a

gluten free diet for two months. I guess I'm really hoping it's some kind of sensitivity that will go away once he's off chemo, but realize that's probably wishful thinking. (We've done multiple stool samples for all kinds of different things, including several for c-diff, but they all came back negative.) Has anyone else had a similar experience?www.caringbridge.org/visit/johnbremer

[Guest guest]

That's the weird part about this -- it isn't acidic so his bottom isn't raw. I don't know if that's significant and keep forgetting to tell the GI specialist.

From: Bluyz1966@...Date: Thu, 19 Jun 2008 10:03:00 -0400Subject: Re: [ ] Chemo and diarrhea

had terrible diarrhea during chemo for AML. We did not know where it all came from. They told us it was a side effect of the chemo and all the extra fluids he got during treatment.

Hope you figure it out. His poor little bottom must be raw.

In a message dated 6/19/2008 8:21:36 A.M. Eastern Daylight Time, bremerann@... writes:

My son is 3 years into treatment for ALL. After six months of unexplained horrible diarrhea and a negative celiac biopsy, the diarrhea has finally stopped but only after being on a gluten free diet for two months. I guess I'm really hoping it's some kind of sensitivity that will go away once he's off chemo, but realize that's probably wishful thinking. (We've done multiple stool samples for all kinds of different things, including several for c-diff, but they all came back negative.) Has anyone else had a similar experience?www.caringbridge.org/visit/johnbremer

Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. The other season of giving begins 6/24/08. Check out the i’m Talkathon. Check it out!

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's counts have been OK during maintenance. There were a couple times when his ANC was very low for no reason, and his HGB has been on a steady decline (at 8.0 today), but for the most part they've been OK. He hasn't gained weight in about 18 months although he's gotten taller. They told me today they aren't as concerned about the lack of weight gain as they would be if he started to lose weight.

I'm sorry is having a rough time. Sometimes it takes a while to get everything regulated in maintenance. But it seems weird that his diarrhea started right after the G tube went in. Do you ever feel like a detective trying to put all the clues together and come up with ideas about what might be going on?!!! It can be exhausting!

From: conniegliott@...Date: Thu, 19 Jun 2008 09:24:24 -0700Subject: Re: [ ] Chemo and diarrhea

My son five, just went on maintenance and had a G tube inserted after being on an NG tube for 5 months. He has had diarrhea ever since. I think its the maintenance drugs because he was getting the same feedings through the NG tube. We have had a stool sample too with negative results. is very thin and this new symptom isn't helping any. So didn't start getting diarrhea until well into maintenance? How has his counts been during maintenanace. has been on maintenance for about two months and so far it has been rough. Connie Gliott

[ ] Chemo and diarrhea

My son is 3 years into treatment for ALL. After six months of unexplained horrible diarrhea and a negative celiac biopsy, the diarrhea has finally stopped but only after being on a gluten free diet for two months. I guess I'm really hoping it's some kind of sensitivity that will go away once he's off chemo, but realize that's probably wishful thinking. (We've done multiple stool samples for all kinds of different things, including several for c-diff, but they all came back negative.) Has anyone else had a similar experience?www.caringbridge. org/visit/ johnbremer Introducing Live Search cashback . It's search that pays you back! Try it Now