Re: I really need some help.

[Guest guest]

Hi there...

Not that I know much, but it sounds like AS,,,,,,,not ADHD.

For me, this is simply because ADHD was characterized to us, by "the inability to 'wait'".

I remember one of the tests my son took. It was on the computer and he was told many times before it stated, that he wasn't supposed to click on the "button" until he saw a certain "flash" after he saw the answer. He could NOT do it!!! The minute he saw the answer,,,,he pressed the button.

This was, the docs said, one of the basic "tell-tale" signs.

I'd keep the 1st dx..........what kind of a doc was he/she? As far as being sent to a developmental ped,,,,well,,,,,,that doesn't mean they have an understanding of an autism spectrum disorder.

Robin

From: DeGraff <reneendegraff@...>Subject: ( ) I really need some help. Date: Wednesday, January 13, 2010, 8:42 PM

Hello Everyone.

I sent out an introduction email last week and have not had any replies. I am in a huge dilemma.

I have one doctor that has diagnosed my daughter (9 1/2) with Aspergers/High Functioning Autism. That doctor sent us to see a developmental pediatrician. When we saw doctor 2 he says that he sees more ADHD, speech delay, fine motor delays, and sensory issues in my daughter.

So which diagnosis is right? I do not see ADHD in her. I do see agitation, frustration, lack of others understanding her, lack of friends. very poor social interaction, huge anxiety issues. She can focus on challenging activities (math tests) for 3 hours and get a perfect score when everyone else in her class gave up an hour prior to her finishing. She can and loves to play games - you just have to follow the rules that come with the game and not make up rules or variations to the game. You have to talk with her when she is ready to listen or you are just talking to a brick wall and end up with her having a huge melt down.

Please help. I dont know what to do.

Thanks, (Idaho)

[Guest guest]

Hi

Sorry you didn't get any replies before...

I'm a little worried about that Developemental Pediatrician, because

what he should have told you is that he sees the ADHD, speech delay and

fine motor delays, but that they are all VERY COMMON co-diagnoses with

Aspergers/High Functioning Autism. My son also has all of those things

and OCD & Anxiety. In our case, that was the original diagnosis and it

took a long time to get the more appropriate PRIMARY Dx.

I know you said you don't see the ADHD, and I don't want to second-guess

that. My suggestion there is give it time and another perspective and

see if you're sure about that. Meanwhile, it's my recommendation (based

on experience) that you run with the 1st doctor's diagnosis on paper, so

that you can access whatever services and resources are available in

your area and approrpiate for your daughter. Keep the other doc's dx on

paper too, as that will help you accessing other services that it sounds

like you need (like OT and ST).

I wish you the best! Hope that helps!

Lori Lashley

(mom to Noah (8) PRimary: Aspergers/High Functioning Autism; Secondary

:ADHD, OCD w/Anxiety)

On Wed, Jan 13, 2010 at 7:42 PM, DeGraff wrote:

> Hello Everyone.

>  

> I sent out an introduction email last week and have not had any

> replies. I am in a huge dilemma.

>  

> I have one doctor that has diagnosed my daughter (9 1/2) with

> Aspergers/High Functioning Autism. That doctor sent us to see a

> developmental pediatrician. When we saw doctor 2 he says that he sees

> more ADHD, speech delay, fine motor delays, and sensory issues in my

> daughter.  

> So which diagnosis is right? I do not see ADHD in her. I do see

> agitation, frustration, lack of others understanding her, lack of

> friends. very poor social interaction, huge anxiety issues. She can

> focus on challenging activities (math tests) for 3 hours and get a

> perfect score when everyone else in her class gave up an hour prior to

> her finishing. She can and loves to play games - you just have to

> follow the rules that come with the game and not make up rules or

> variations to the game. You have to talk with her when she is ready to

> listen or you are just talking to a brick wall and end up with her

> having a huge melt down.

>  

> Please help. I dont know what to do.  

> Thanks, (Idaho)

[Guest guest]

:

Hang on. Humans have rules that they work with in their interactions, the problem is figuring out these rules. Hang on. I say this with my long struggle. I am sure that there will be things to come allong. Brain exercise is all I can say now.

( ) I really need some help.

Hello Everyone.

I sent out an introduction email last week and have not had any replies. I am in a huge dilemma.

I have one doctor that has diagnosed my daughter (9 1/2) with Aspergers/High Functioning Autism. That doctor sent us to see a developmental pediatrician. When we saw doctor 2 he says that he sees more ADHD, speech delay, fine motor delays, and sensory issues in my daughter.

So which diagnosis is right? I do not see ADHD in her. I do see agitation, frustration, lack of others understanding her, lack of friends. very poor social interaction, huge anxiety issues. She can focus on challenging activities (math tests) for 3 hours and get a perfect score when everyone else in her class gave up an hour prior to her finishing. She can and loves to play games - you just have to follow the rules that come with the game and not make up rules or variations to the game. You have to talk with her when she is ready to listen or you are just talking to a brick wall and end up with her having a huge melt down.

Please help. I dont know what to do.

Thanks, (Idaho)

[Guest guest]

My son is 8 and recently got an asperger diagnosis -- In fact the diagnose says : cognitive disorderasperger syndromefine motor dyspraxiaanxiety adhdAnother doctor said the aspergers presupposes the adhd since symptoms overlap.Kids can focus when they want to -- and adhd kid can spend hours playing video games but may not be able to focus on school -- and more than just the typical kid who doesn't want to be there.Asperger kids are complex and it's often hard to get a read on them... More important than the diagnoses are the therapies that help with the social skills, behavior & rigidity. From: DeGraff <reneendegraff@...>Subject: ( ) I really need some help. Date: Wednesday, January 13, 2010, 9:42 PM

Hello Everyone.

I sent out an introduction email last week and have not had any replies. I am in a huge dilemma.

I have one doctor that has diagnosed my daughter (9 1/2) with Aspergers/High Functioning Autism. That doctor sent us to see a developmental pediatrician. When we saw doctor 2 he says that he sees more ADHD, speech delay, fine motor delays, and sensory issues in my daughter.

So which diagnosis is right? I do not see ADHD in her. I do see agitation, frustration, lack of others understanding her, lack of friends. very poor social interaction, huge anxiety issues. She can focus on challenging activities (math tests) for 3 hours and get a perfect score when everyone else in her class gave up an hour prior to her finishing. She can and loves to play games - you just have to follow the rules that come with the game and not make up rules or variations to the game. You have to talk with her when she is ready to listen or you are just talking to a brick wall and end up with her having a huge melt down.

Please help. I dont know what to do.

Thanks, (Idaho)

[Guest guest]

Hi ,

I'm in the UK, so I'm not sure if the actual diagnosis makes a huge difference to your medical insurance, I'm pretty sure my son has Aspies, although he has not been diagnosed yet, but his teachers just look through me if I say it. I'm not hung up on putting a name on what makes him different, just on helping him and trying to make his life as stress free as it can be, so I guess what I'm saying is, does it really matter if the Drs have a difference of opinion about your daughters diagnosis, it might just depend on their own views or what books they have read, as long as the are trying to get her support and help.

Lor B

From: DeGraff <reneendegraff@...>Subject: ( ) I really need some help. Date: Thursday, 14 January, 2010, 2:42

Hello Everyone.

I sent out an introduction email last week and have not had any replies. I am in a huge dilemma.

I have one doctor that has diagnosed my daughter (9 1/2) with Aspergers/High Functioning Autism. That doctor sent us to see a developmental pediatrician. When we saw doctor 2 he says that he sees more ADHD, speech delay, fine motor delays, and sensory issues in my daughter.

So which diagnosis is right? I do not see ADHD in her. I do see agitation, frustration, lack of others understanding her, lack of friends. very poor social interaction, huge anxiety issues. She can focus on challenging activities (math tests) for 3 hours and get a perfect score when everyone else in her class gave up an hour prior to her finishing. She can and loves to play games - you just have to follow the rules that come with the game and not make up rules or variations to the game. You have to talk with her when she is ready to listen or you are just talking to a brick wall and end up with her having a huge melt down.

Please help. I dont know what to do.

Thanks, (Idaho)

[Guest guest]

Hi there,

This sound like you are describing my grandson….a brilliant little boy at

5 years old

Two years ago at three years old, my

grandson was diagnosed PDD-NOS…An autistic spectrum disorder.

We were devastated…what is that exactly…what

do we do now?

If it were a broken leg we would have casted

it, if it were a tumor we would schedule surgery, but how do we deal with this.

After the initial disbelief and reeling, and

running into a road block at every corner, we began reading, reading, reading

and more reading about every aspect of the autistic spectrum……….

It has taken a concerted effort by his

whole family to listen, learn, try different classes or groups, go to parent

support groups, etc etc, and after two years we have determined that 90% of his

problems are sensory.

It was not until we picked up books for

sensory processing disorders that we started to see his “picture”

on every other page………

Call it what you will, it doesn’t

need a name. Typically spectrum kids have a lot of the same issue but are still

individuals who need to be dealt with on a one by one basis

The important thing is to determine what

parts of this mental mess are stopping your youngster from functioning and get

them help.

Knowing what I know now I would have found

a skilled OT from day one and she would have picked this up in two sessions and

he would have been getting treatment for at least a year

However, the greatest benefit is that we

all better understand him and his daily challenges and can recognize when he is

having a bad day.

In a nutshell…find a good OT asap

and start reading….The more you understand the better it is all round

Incidentally, Our little guy is scheduled

for mainstream kindergarten in the summer and with ongoing help from

professionals to “survive” the social issues we expect him to

thrive

Good luck

Teri

From:

[mailto: ] On Behalf Of Lorraine son

Sent: Thursday, January 14, 2010

6:57 AM

To:

Subject: Re: ( ) I

really need some help.

Hi ,

I'm in the UK, so I'm not sure if the actual

diagnosis makes a huge difference to your medical insurance, I'm pretty sure

my son has Aspies, although he has not been diagnosed yet, but his

teachers just look through me if I say it. I'm not hung up on putting a name

on what makes him different, just on helping him and trying to make his life

as stress free as it can be, so I guess what I'm saying is, does it really

matter if the Drs have a difference of opinion about your daughters diagnosis,

it might just depend on their own views or what books they have read, as long

as the are trying to get her support and help.

Lor B

From: DeGraff <reneendegraff >

Subject: ( ) I really need some help.

Date: Thursday, 14 January, 2010, 2:42

Hello Everyone.

I sent out an introduction email last week and

have not had any replies. I am in a huge dilemma.

I have one doctor that has diagnosed my daughter

(9 1/2) with Aspergers/High Functioning Autism. That doctor sent us to see

a developmental pediatrician. When we saw doctor 2 he says that he sees

more ADHD, speech delay, fine motor delays, and sensory issues in my

daughter.

So which diagnosis is right? I do not see

ADHD in her. I do see agitation, frustration, lack of others

understanding her, lack of friends. very poor social interaction, huge

anxiety issues. She can focus on challenging activities (math tests) for 3

hours and get a perfect score when everyone else in her class gave up an

hour prior to her finishing. She can and loves to play games - you just

have to follow the rules that come with the game and not make up rules or

variations to the game. You have to talk with her when she is ready to

listen or you are just talking to a brick wall and end up with her having a

huge melt down.

Please help. I dont know what to do.

Thanks, (Idaho)

[Guest guest]

How about brain gym exercises. We are doing that now with an OT for my son who

is PANDAS ADHD and anxiety with newly diagnosed aspergers. It seems to help with

his motor delays and focus also.

>

> :

> Hang on. Humans have rules that they work with in their interactions, the

problem is figuring out these rules. Hang on. I say this with my long struggle.

I am sure that there will be things to come allong. Brain exercise is all I can

say now.

>

>

> ( ) I really need some help.

>

>

>

>

> Hello Everyone.

>

> I sent out an introduction email last week and have not had any

replies. I am in a huge dilemma.

>

> I have one doctor that has diagnosed my daughter (9 1/2) with

Aspergers/High Functioning Autism. That doctor sent us to see a developmental

pediatrician. When we saw doctor 2 he says that he sees more ADHD, speech delay,

fine motor delays, and sensory issues in my daughter.

>

> So which diagnosis is right? I do not see ADHD in her. I do see

agitation, frustration, lack of others understanding her, lack of friends. very

poor social interaction, huge anxiety issues. She can focus on challenging

activities (math tests) for 3 hours and get a perfect score when everyone else

in her class gave up an hour prior to her finishing. She can and loves to play

games - you just have to follow the rules that come with the game and not make

up rules or variations to the game. You have to talk with her when she is ready

to listen or you are just talking to a brick wall and end up with her having a

huge melt down.

>

> Please help. I dont know what to do.

>

> Thanks, (Idaho)

>

[Guest guest]

My opinion....

Don't worry about the diagnosis unless you need it for services. Asperger's is

tough to diagnose because there is a lot of variation in their behaviors, and it

is pretty common for these kids to get labeled as ADHD. Asperger's probably has

an ADHD component, but I tend to think of it as a differential focus as opposed

to a deficit or hyperactivity. I was reading something about how Aspies tend to

be good at finding the tricks in magic shows because they don't attend to what

they are supposed to attend to, but they are attending. What is important is

getting your child the services that they need.

Personally, I would read up on Asperger's and ADHD and decide for yourself where

your child fits. Also, does your child have the same issues as other kids with

Asperger's? For example, sensory issues, problems socializing with same age

peers, sleep issues, etc.

I agree about getting OT if he has those issues. Also, consider ABA (behavior

modification) therapy to help with behavior issues.

-

>

>

> Hello Everyone.

>  

> I sent out an introduction email last week and have not had any replies. I am

in a huge dilemma.

>  

> I have one doctor that has diagnosed my daughter (9 1/2) with Aspergers/High

Functioning Autism. That doctor sent us to see a developmental pediatrician.

When we saw doctor 2 he says that he sees more ADHD, speech delay, fine motor

delays, and sensory issues in my daughter.

>  

> So which diagnosis is right? I do not see ADHD in her. I do see agitation,

frustration, lack of others understanding her, lack of friends. very poor social

interaction, huge anxiety issues. She can focus on challenging activities (math

tests) for 3 hours and get a perfect score when everyone else in her class gave

up an hour prior to her finishing. She can and loves to play games - you just

have to follow the rules that come with the game and not make up rules or

variations to the game. You have to talk with her when she is ready to listen or

you are just talking to a brick wall and end up with her having a huge melt

down.

>  

> Please help. I dont know what to do.

>  

> Thanks, (Idaho)

>