Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Yes, the teacher I work with was trained in the P.L.A.Y. project. From: becky.desimone <becky.desimone@...> Sent: Tue, January 5, 2010 8:58:05 PMSubject: ( ) P.L.A.Y. project Has anyone had experience with this. The dr. recommended it for our 3 yr old g.s.Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Has she mentioned it being successful? We were thinking of hiring a Home Consultant through this program. They come once a month for 3 hours. I read that on their website. First I want to run it by my step-daughter for approval. > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > >  > > > > ________________________________ > From: becky.desimone <becky.desimone@...> > > Sent: Tue, January 5, 2010 8:58:05 PM > Subject: ( ) P.L.A.Y. project > >  > Has anyone had experience with this. The dr. recommended it for our 3 yr old g.s. > > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Project play is an awesome experience for the kids. Our grandson did it last year and this year at both his school and sac State U. He is in a head start program thorough the school district and signed up independently through the university He is now 4 In Sacramento it is offered for about 6-8 week sessions in head start program schools and also at Sac state University…open to all who care to register All levels of abilities and problems. I believe it was introduced by our university director… Modell. A well published and respected professor specializing in autism. His senior students actually facilitate the program under his direction Hope that helps you Teri From: [mailto: ] On Behalf Of becky.desimone Sent: Tuesday, January 05, 2010 5:58 PM Subject: ( ) P.L.A.Y. project Has anyone had experience with this. The dr. recommended it for our 3 yr old g.s. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Teri, I can't tell you how excited I am to hear that! To me it confirms what his dr recommended and makes me anxious to put him in it. Thanks a million! Becky > > Project play is an awesome experience for the kids. > > Our grandson did it last year and this year at both his school and sac State > U. > > He is in a head start program thorough the school district and signed up > independently through the university > > He is now 4 > > In Sacramento it is offered for about 6-8 week sessions in head start > program schools and also at Sac state University…open to all who care to > register > > All levels of abilities and problems. I believe it was introduced by our > university director… Modell. A well published and respected professor > specializing in autism. > > His senior students actually facilitate the program under his direction > > Hope that helps you > > > > Teri > > > > > > _____ > > From: > [mailto: ] On Behalf Of becky.desimone > Sent: Tuesday, January 05, 2010 5:58 PM > > Subject: ( ) P.L.A.Y. project > > > > > > Has anyone had experience with this. The dr. recommended it for our 3 yr old > g.s. > > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Very welcome. Grandma to Grandma….. I was in much the same situation as you in as much as we had never seen anything like this in our family at all and it seemed almost surreal that it could be happening to us. It was devastating for all of us when his diagnosis was confirmed ( PDD-NOS). My daughter became very depressed and blamed herself for his demise and for not picking it up sooner….he was three at the time. She has since got some help for herself and is coping very well now….She is just amazing with him, spends time in the classroom and is the parent representative at the school board meetings It is obviously very challenging every day although we are blessed that the little guy is just on the tippy toes of the spectrum and is extremely high functioning. Still, something new always seems to pop up and we are off on another search to find an answer. Not sure how long since you have had the diagnosis or even what that diagnosis is, but maybe your daughter needs to get some help dealing with it on a personal level…in the interim I would keep doing your research and being supportive while she is finding her feet. She needs to understand that this is a group effort now and it is not all up to her. It doesn’t matter who find the resource because it is all in the best interest of the child ….If I have learned anything over the past year it is that this in not a “sprint”….it is a long distance cross country race and there will be new obstacles popping up around every corner. Enjoy the good days and be supportive and comforting on the not so good days…..In other words….this is “life” now, so enjoy the journey…….. Our little guy has come so far in the past year, although it has taken a tremendous amount of pushing and perseverance and not taking “no” for an answer. He is enrolled in mainstream kindergarten next summer and is academically very capable to handle it. We are getting him some extra small group speech and socialization help for the next six months to help in that area, so ….we’ll see what happens and make adjustments as needed. Hope that helps T From: [mailto: ] On Behalf Of becky.desimone Sent: Wednesday, January 06, 2010 7:16 PM Subject: Re: ( ) P.L.A.Y. project Teri, I can't tell you how excited I am to hear that! To me it confirms what his dr recommended and makes me anxious to put him in it. Thanks a million! Becky > > Project play is an awesome experience for the kids. > > Our grandson did it last year and this year at both his school and sac State > U. > > He is in a head start program thorough the school district and signed up > independently through the university > > He is now 4 > > In Sacramento it is offered for about 6-8 week sessions in head start > program schools and also at Sac state University…open to all who care to > register > > All levels of abilities and problems. I believe it was introduced by our > university director… Modell. A well published and respected professor > specializing in autism. > > His senior students actually facilitate the program under his direction > > Hope that helps you > > > > Teri > > > > > > _____ > > From: > [mailto: ] On Behalf Of becky.desimone > Sent: Tuesday, January 05, 2010 5:58 PM > > Subject: ( ) P.L.A.Y. project > > > > > > Has anyone had experience with this. The dr. recommended it for our 3 yr old > g.s. > > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Just a thought Becky…but after you get approval, or as a way to improve your chances…...offer to take him yourself. It will give her a break for a couple of hours and will be quality fun time he spends with grandma. Not sure if you can take pictures there, but he will be all excited about it I think. Once you can show her how much fun he is having then offer to watch the little one and suggest that she take him one week With any extra classes or sessions, we tell our little man that we are going on a special play date. We don’t want him to think that he is always going to instructional classes and make him feel different than any other kid. He looks forward to it. Good Luck T From: [mailto: ] On Behalf Of becky.desimone Sent: Wednesday, January 06, 2010 4:57 PM Subject: Re: ( ) P.L.A.Y. project Has she mentioned it being successful? We were thinking of hiring a Home Consultant through this program. They come once a month for 3 hours. I read that on their website. First I want to run it by my step-daughter for approval. > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > >  > > > > ________________________________ > From: becky.desimone <becky.desimone@...> > > Sent: Tue, January 5, 2010 8:58:05 PM > Subject: ( ) P.L.A.Y. project > >  > Has anyone had experience with this. The dr. recommended it for our 3 yr old g.s. > > Becky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Hi Teri, She already gets a lot of time away from him. She works full time but believe me it's a low stress job and she calls it her break time from the kids. I have him 3 days a week and sometimes over night. They are always hoping I'll take him on the weekend too. I'll be the one taking him to ecdd pre-school when he starts and your idea of telling him it's a play date will come in handy. With the play project I was thinking of hiring the therapist to come to our home (after she approves of course). It's a 1 yr contract so I'm about to view the dvd I received yesterday to check it out more. Thanks a bunch! > > > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > > > > >  > > > > > > > > ________________________________ > > From: becky.desimone <becky.desimone@> > > @ <mailto: %40> > > > Sent: Tue, January 5, 2010 8:58:05 PM > > Subject: ( ) P.L.A.Y. project > > > >  > > Has anyone had experience with this. The dr. recommended it for our 3 yr > old g.s. > > > > Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Teri, I definitely think my step-daughter will be a wonderful advocate for him once she comes to terms with it. I think she feels like it's her fault. We will be there to assure her it isn't and that she isn't in this alone. His diagnosis is Aspergers Sydrome & Social/Pragmatic Language Disorder. It's great to hear that your little one is doing so well. All of your words help me a lot. I'm going to go view my dvd now. I'm wondering if it's the same play project that you have there. This one is on www.playproject.org Dr. is partnered with our gson's dr (Mark Bowers). Please keep in touch. Becky > > > > Project play is an awesome experience for the kids. > > > > Our grandson did it last year and this year at both his school and sac > State > > U. > > > > He is in a head start program thorough the school district and signed up > > independently through the university > > > > He is now 4 > > > > In Sacramento it is offered for about 6-8 week sessions in head start > > program schools and also at Sac state University…open to all who care to > > register > > > > All levels of abilities and problems. I believe it was introduced by our > > university director… Modell. A well published and respected professor > > specializing in autism. > > > > His senior students actually facilitate the program under his direction > > > > Hope that helps you > > > > > > > > Teri > > > > > > > > > > > > _____ > > > > From: @ <mailto: %40> > > > [mailto: @ <mailto: %40> > ] On Behalf Of becky.desimone > > Sent: Tuesday, January 05, 2010 5:58 PM > > @ <mailto: %40> > > > Subject: ( ) P.L.A.Y. project > > > > > > > > > > > > Has anyone had experience with this. The dr. recommended it for our 3 yr > old > > g.s. > > > > Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 It sounds like you have a pretty good handle on things…we seem very much alike. There are so many different facets of this disease and it is so hard to know what will work best for each child….there are similarities with all of them but definitely different little nuances that appear to require different approaches. So many times we thought we had found the right placement and it turned out to be too remedial just not “right” for one reason or another. Quite honestly we used to worry about the different things we got him involved with and finally concluded that as long as it would do him no harm,,,, we would give it a try. After almost two years of reading and calling a talking and referrals and classes and tests and just learning as much as we could about this multifaceted mess we have determined that probably better than 90% of our little guys issues are actually sensory, and should be treated with small group sensory integration therapy……. All of the symptoms are so intertwined and I have read in several books that it ideally would take a team of 5-7 professionals working together to correctly diagnose and treat an autistic child Based on everything I have experienced, I personally think that a good OT is a must for autistic kids and parents…… we are in the process of trying to find a good one who specializes in sensory integration ourselves. I guess if I was being asked to commit to a year contract I would want to talk to some other clients about services and results and maybe ask to observe a session or two to form my own opinion and picture my grandson in those circumstances. Seems like I am kind of rambling on here…hope some of it helps T From: [mailto: ] On Behalf Of becky.desimone Sent: Thursday, January 07, 2010 5:51 PM Subject: Re: ( ) P.L.A.Y. project Hi Teri, She already gets a lot of time away from him. She works full time but believe me it's a low stress job and she calls it her break time from the kids. I have him 3 days a week and sometimes over night. They are always hoping I'll take him on the weekend too. I'll be the one taking him to ecdd pre-school when he starts and your idea of telling him it's a play date will come in handy. With the play project I was thinking of hiring the therapist to come to our home (after she approves of course). It's a 1 yr contract so I'm about to view the dvd I received yesterday to check it out more. Thanks a bunch! > > > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > > > > >  > > > > > > > > ________________________________ > > From: becky.desimone <becky.desimone@> > > @ <mailto: %40> > > > Sent: Tue, January 5, 2010 8:58:05 PM > > Subject: ( ) P.L.A.Y. project > > > >  > > Has anyone had experience with this. The dr. recommended it for our 3 yr > old g.s. > > > > Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 I just checked out the web link that you sent me and it is not actually the same program. Yours is put on by Easter Seals and ours is organized by the university under the supervision of Modell……an amazing advocate for kids with disabilities. We need more people like this guy in high places http://www.csus.edu/news/031605modell.stm Easter Seals offers some great programs and you should go to their web site and contact your local office to find out what else they offer. We looked at it but it is not right for our guy. At best we may get some home services from them but I want to know a lot more about it first Also check your local university to see if they offer any programs through their behavioral sciences or health and human sciences departments T. From: [mailto: ] On Behalf Of becky.desimone Sent: Thursday, January 07, 2010 5:51 PM Subject: Re: ( ) P.L.A.Y. project Hi Teri, She already gets a lot of time away from him. She works full time but believe me it's a low stress job and she calls it her break time from the kids. I have him 3 days a week and sometimes over night. They are always hoping I'll take him on the weekend too. I'll be the one taking him to ecdd pre-school when he starts and your idea of telling him it's a play date will come in handy. With the play project I was thinking of hiring the therapist to come to our home (after she approves of course). It's a 1 yr contract so I'm about to view the dvd I received yesterday to check it out more. Thanks a bunch! > > > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > > > > >  > > > > > > > > ________________________________ > > From: becky.desimone <becky.desimone@> > > @ <mailto: %40> > > > Sent: Tue, January 5, 2010 8:58:05 PM > > Subject: ( ) P.L.A.Y. project > > > >  > > Has anyone had experience with this. The dr. recommended it for our 3 yr > old g.s. > > > > Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Keep rambling PLEASE! Hearing about your experences helps me understand that patience & perseverance are the key to helping my g'son. I'm glad you mentioned an OT because I had been wondering if we should get him one. I'm thinking now that maybe during the summer when he doesn't have pre-school, we should get him extra OT & speech. They are moving in a new house (another thing I'm worried about) in order to get in a better school district so in a few weeks he should be starting pre-school and that will get the ball rolling for us. They've been taking him to the new house to see everything several times. I told them to consult his psychologist about how to handle it so, they made an appt. I hope it won't be too traumatic for him. Thanks so much! > > > > > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > > > > > > > >  > > > > > > > > > > > > ________________________________ > > > From: becky.desimone <becky.desimone@> > > > @ <mailto: %40> > > > > > Sent: Tue, January 5, 2010 8:58:05 PM > > > Subject: ( ) P.L.A.Y. project > > > > > >  > > > Has anyone had experience with this. The dr. recommended it for our 3 yr > > old g.s. > > > > > > Becky > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Hi again, My daughter just moved to a new house too. Great idea to take him there multiple times. Be sure to solicit his input as to where the swing set will go or where his bed will go. Be ready for the days when he “changes his mind” and wants to stay at his old house. Don’t get involved in that conversation because you will have to lie to him to satisfy him. Instead, move on and distract him to something fun. You need to get him invested and excited about the move so this is something that he is doing with his mom and dad and not something that mom and dad are doing TO him We left DGS room until the very last so that nothing changed or him until the last day or so. When it was time to pack his room he actually helped to put things in boxes and wrote his name on the outside of the box. He decided what he did not need and packed that first and so on. He helped to move the packed box from his room to the van and from the van up the stairs to his new room. This way he did not get stressed and anguished about where his stuff was……Then he decided with some coaxing where to put stuff in his new room. Consider a surprise gift of a hanging door name tag….( and Doug sold at target, Kohl’s, or on line - there are different themes our GS likes dinosaurs so he was really excited about his new hanging name tag with dinosaurs all around his name) He showed everyone where his new room was………It’s all seems quite manipulative but you are teaching him acceptable behavior and that is how he learns the norm. You will be amazed how he will learn from this kind of directive input. Another example: when he fusses or throws a fit about something mom wants him to do, instead of yelling at him or getting upset you can step in and say…DGS when mommy say this you say this….lets try it……… You go through that conversation again and he gets all kinds of praise for responding correctly….thus he just learned the correct way to respond in that situation. He wants nothing more than to please but he does not always know how. I read about this technique in a book and it works. Every day is filled with teaching opportunities if you can recognize them as such. Remember he is doing the best that he can and just wants to please the people around him. He doesn’t know what the norm is like other kids, he doesn’t get it……. so you have to teach him acceptable behavior. As far as the OT goes….because DGS has a lot of sensory issues I am beginning to think we can do a lot of this retraining ourselves. We have to isolate which of his senses need help and then work with him in a fun environment to get over the fears or stress connected with it IE the texture of sand or playdoh….climbing…swinging …tumbling…Large cartoon characters like Mickey Mouse or Chucky Cheese…….loud noises…whatever it is we have to help him deal with it instead of being fearful of it. Lesson over for the day…ha ha…..hope it helps…. Do you want to correspond outside of the group as I am not sure if these lengthy dialogs are acceptable within the group format Happy to share our experiences with all but don’t want to step outside the guidelines of the group Let me know Teri t [mailto: ] On Behalf Of becky.desimone Sent: Sunday, January 10, 2010 7:16 PM Subject: ( ) Re: P.L.A.Y. project Keep rambling PLEASE! Hearing about your experences helps me understand that patience & perseverance are the key to helping my g'son. I'm glad you mentioned an OT because I had been wondering if we should get him one. I'm thinking now that maybe during the summer when he doesn't have pre-school, we should get him extra OT & speech. They are moving in a new house (another thing I'm worried about) in order to get in a better school district so in a few weeks he should be starting pre-school and that will get the ball rolling for us. They've been taking him to the new house to see everything several times. I told them to consult his psychologist about how to handle it so, they made an appt. I hope it won't be too traumatic for him. Thanks so much! > > > > > > Yes, the teacher I work with was trained in the P.L.A.Y. project. > > > > > > > > >  > > > > > > > > > > > > ________________________________ > > > From: becky.desimone <becky.desimone@> > > > @ <mailto: %40> > > > > > Sent: Tue, January 5, 2010 8:58:05 PM > > > Subject: ( ) P.L.A.Y. project > > > > > >  > > > Has anyone had experience with this. The dr. recommended it for our 3 yr > > old g.s. > > > > > > Becky > > > > > > Quote Link to comment Share on other sites More sharing options...
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