New to group- intro

[Guest guest]

Hi All-

My name is and I am married and have 2 boys- ages 6 & 3.5- my older son-

age 6, was dx with Asperger's back in April by a ped. neuro that we went to for

a 2nd opinion. We also rec'd a dx later on in June from a Dev. Ped. Both dr's

have been a little fuzzy in their dx- one said AS with HFA (I thought there is a

difference) and the other said he is borderline between AS & PDD-NOS. Problem

is- he can change at a moments notice-in a very unpredictable way. So it all

depends on what day he is being evaluated!

Here is a " brief " version of our journey:

As a baby and toddler- I noticed very odd behaviors- but everyone brushed it off

as he was just " quirky " and I was worrying too much. He was obsessed with

things that spun, he never interacted or even seemed to notice other kids or

people unless it was in some way a benefit to him (i.e. you were willing to turn

on the fan for him or a child had something that spun) and he started to speak

at an early age and had/still has a vocabulary that was/is off the charts.

By age 2.75- he became a big brother... the quirkiness continued and his

behavior (i.e. 6+ daily meltdowns) continued. At age 3 he started pre-school.

We had to scramble at the last moment for another pre-school because he was not

potty trained. We were lucky- I guess to find another school to take him. By

this time- the struggles were immense- but as usual- there was always an excuse.

Now everyone was saying that he was just having issues adjusting to his new baby

brother. I did not agree- but was so overwhelmed and exhausted that I just went

along with it all. I finally broke down in May of 2008 and went to my ped for a

consult and cried my eyes out. She said I was not an effective parent. I left

feeling despair. I tried soem of things she suggested- but it didn't work. I

was reading every book I could get my hands on. I went back to her 2 months

later- again- it was my bad parenting and she blamed my hubby too. She sent us

to a bunch of specialists- but still no one was helping us. Six months of

struggling- and then one day- a dear friend of mine suggested I read 'The

Out-of-Sync Child " . I typed it into my search engine. I was skeptical. I

decided it wasn't for me. Then I began to randomly type " behavior issues " in

children and ironically the Out-of-Sync child kept coming up. I got the book &

read it in one night. I went to the SPD website an did the check lists. I was

awestruck- How come I didn't know about this!!!?

Let the battle begin... I printed out all kinds of stuff and brought to our ped-

she would'nt even look at it. So I pursued it on my own. I found an OT clinic

to do the testing and in June of 2009 he was dx with SPD. We started OT and then

later added BT & LT. In OCt. 2009 we began the CST process at out local school

district. On Christmas Eve 2009- they called me and said these words: " We are

seeing Asperger's acros the board here. We need to do further testing. "

When we finally got the dx this past Spring/Summer- it was a relief and

overwhelming at the same time. It has taken me a long time to adjust.

[Guest guest]

Hi and welcome to the group. Your journey sounds so familiar. Many of us in this group have had the same or similar journeys so far. I hope you enjoy being part of the group and that it offers you a safe place to go when you need it. <<hugs>>ne

From: nicolea102602 <nicolea102602@...>Subject: ( ) New to group- intro Date: Saturday, December 11, 2010, 10:25 AM

Hi All-My name is and I am married and have 2 boys- ages 6 & 3.5- my older son- age 6, was dx with Asperger's back in April by a ped. neuro that we went to for a 2nd opinion. We also rec'd a dx later on in June from a Dev. Ped. Both dr's have been a little fuzzy in their dx- one said AS with HFA (I thought there is a difference) and the other said he is borderline between AS & PDD-NOS. Problem is- he can change at a moments notice-in a very unpredictable way. So it all depends on what day he is being evaluated!Here is a "brief" version of our journey:As a baby and toddler- I noticed very odd behaviors- but everyone brushed it off as he was just "quirky" and I was worrying too much. He was obsessed with things that spun, he never interacted or even seemed to notice other kids or people unless it was in some way a benefit to him (i.e. you were willing to turn on the fan for him or a child had something that spun)

and he started to speak at an early age and had/still has a vocabulary that was/is off the charts. By age 2.75- he became a big brother... the quirkiness continued and his behavior (i.e. 6+ daily meltdowns) continued. At age 3 he started pre-school. We had to scramble at the last moment for another pre-school because he was not potty trained. We were lucky- I guess to find another school to take him. By this time- the struggles were immense- but as usual- there was always an excuse. Now everyone was saying that he was just having issues adjusting to his new baby brother. I did not agree- but was so overwhelmed and exhausted that I just went along with it all. I finally broke down in May of 2008 and went to my ped for a consult and cried my eyes out. She said I was not an effective parent. I left feeling despair. I tried soem of things she suggested- but it didn't work. I was reading every book I could get my hands on. I went back to her 2 months

later- again- it was my bad parenting and she blamed my hubby too. She sent us to a bunch of specialists- but still no one was helping us. Six months of struggling- and then one day- a dear friend of mine suggested I read 'The Out-of-Sync Child". I typed it into my search engine. I was skeptical. I decided it wasn't for me. Then I began to randomly type "behavior issues" in children and ironically the Out-of-Sync child kept coming up. I got the book & read it in one night. I went to the SPD website an did the check lists. I was awestruck- How come I didn't know about this!!!? Let the battle begin... I printed out all kinds of stuff and brought to our ped- she would'nt even look at it. So I pursued it on my own. I found an OT clinic to do the testing and in June of 2009 he was dx with SPD. We started OT and then later added BT & LT. In OCt. 2009 we began the CST process at out local school district. On Christmas Eve 2009- they called me and

said these words: " We are seeing Asperger's acros the board here. We need to do further testing."When we finally got the dx this past Spring/Summer- it was a relief and overwhelming at the same time. It has taken me a long time to adjust.

[Guest guest]

Thanks. I hope to gain new insight and one day maybe I will be the one offering

advice! lol

>

>

> From: nicolea102602 <nicolea102602@...>

> Subject: ( ) New to group- intro

>

> Date: Saturday, December 11, 2010, 10:25 AM

>

>

>  

>

>

>

> Hi All-

>

> My name is and I am married and have 2 boys- ages 6 & 3.5- my older

son- age 6, was dx with Asperger's back in April by a ped. neuro that we went to

for a 2nd opinion. We also rec'd a dx later on in June from a Dev. Ped. Both

dr's have been a little fuzzy in their dx- one said AS with HFA (I thought there

is a difference) and the other said he is borderline between AS & PDD-NOS.

Problem is- he can change at a moments notice-in a very unpredictable way. So it

all depends on what day he is being evaluated!

>

> Here is a " brief " version of our journey:

>

> As a baby and toddler- I noticed very odd behaviors- but everyone brushed it

off as he was just " quirky " and I was worrying too much. He was obsessed with

things that spun, he never interacted or even seemed to notice other kids or

people unless it was in some way a benefit to him (i.e. you were willing to turn

on the fan for him or a child had something that spun) and he started to speak

at an early age and had/still has a vocabulary that was/is off the charts.

> By age 2.75- he became a big brother... the quirkiness continued and his

behavior (i.e. 6+ daily meltdowns) continued. At age 3 he started pre-school. We

had to scramble at the last moment for another pre-school because he was not

potty trained. We were lucky- I guess to find another school to take him. By

this time- the struggles were immense- but as usual- there was always an excuse.

Now everyone was saying that he was just having issues adjusting to his new baby

brother. I did not agree- but was so overwhelmed and exhausted that I just went

along with it all. I finally broke down in May of 2008 and went to my ped for a

consult and cried my eyes out. She said I was not an effective parent. I left

feeling despair. I tried soem of things she suggested- but it didn't work. I was

reading every book I could get my hands on. I went back to her 2 months later-

again- it was my bad parenting and she blamed my hubby too. She sent us to a

bunch of specialists-

> but still no one was helping us. Six months of struggling- and then one day-

a dear friend of mine suggested I read 'The Out-of-Sync Child " . I typed it into

my search engine. I was skeptical. I decided it wasn't for me. Then I began to

randomly type " behavior issues " in children and ironically the Out-of-Sync child

kept coming up. I got the book & read it in one night. I went to the SPD website

an did the check lists. I was awestruck- How come I didn't know about this!!!?

> Let the battle begin... I printed out all kinds of stuff and brought to our

ped- she would'nt even look at it. So I pursued it on my own. I found an OT

clinic to do the testing and in June of 2009 he was dx with SPD. We started OT

and then later added BT & LT. In OCt. 2009 we began the CST process at out local

school district. On Christmas Eve 2009- they called me and said these words: "

We are seeing Asperger's acros the board here. We need to do further testing. "

> When we finally got the dx this past Spring/Summer- it was a relief and

overwhelming at the same time. It has taken me a long time to adjust.

>