therapists

[Guest guest]

To all,

I just want to second what has said about therapists and other docs

who have little or no experience with the disorder trying to treat

OCD. If you find someone who's open and willing to learn about the

front line treatments for OCD, they can be terrific. However, those of

us who have needlessly thrown money away on the wrong docs would like to

save others the expense and heartache.

Some of the professionals we've dealt with have been less than

forthcoming about their specialties, which really surprised me. We had

to do quite a bit of digging and interviewing before finding good people

who have OCD experience to work with our daughter.

: Don't be afraid to ask questions of your son's new

therapist, and be sure to listen to your own gut instinct, as well.

Good luck to you!

Take care,

Lesli (S. F. Bay area)

wrote:

> ,

> I'm sorry for minding your business, and my feelings

> won't be hurt if you tell me to stuff it in my ear....but

> my radar just went off while reading your posts. I certainly

> don't want to appear to be an opinionated know it all,

> but my intentions are good.

>

> You said this psychiatrist sounded knowledgeable but

> didn't have a lot of experience in treating OCD. He/she

> may be a wonderful dr. but I would be concerned about

> his lack of experience. What do I know?? Not a whole

> lot, but thousands of dollars later....I can tell you, we have

> been to several child psychiatrists, psychologists and MD's

> that specialize in adolesent behavior medicine, and we were

> spinning our wheels and going nowhere fast. We have finally

> (11 months after diagnosis) found a psychiatrist that has

> experience in treating OCD and we are finally seeing some

> good results. It just amazes me that all these professionals

> couldn't come right out and say " I know about the disorder

> but I haven't treated many cases. I will help you find someone

> that can help your child. "

>

> Please understand that I wish the best for you. I just don't want

> anyone to go through what we have gone through.

>

> Good luck and take care!

> mary from La..

>

> Ron and Simurdiak wrote:

>

>> Friends - My family and I are off on a weeks vacation to visit my

>> family in Michigan. Last weekend we hosted a weekend reunion for my

>> husbands side of the family. Most of the festivities were at our

>> farm because we have the family homestead. 158 people came and Joe

>> was actually in his glory. He got to show off his animals, and all

>> of the other fun nooks and crannies that a farm has. All of the

>> kids thought he was pretty lucky to live on a farm. The only thing

>> that seemed to bother him was that some people smoked cigarettes.

>> He wanted to put up No Smoking signs. We got into a discussion

>> about this being a free country and what it means to have the

>> freedom to choose how one wants to act or behave. His comment was

>> " A person with OCD doesn't have freedom " . That really jabbed at my

>> heart. We will be tying our visits to the therapist in Madison

>> into our vacation travels. We will stop on the way to Michigan and

>> on the way back. Joe's neurologist found a new therapist (Child

>> psych) for us that is in Marshfield, only two hours from home. I

>> have spoken with him on the phone and he seems to be quite

>> knowlegeable although he has not treated all that many children

>> with OCD. We will start seeing him when school starts so we don't

>> have to travel to Madison any more. Have to run. Will catch up

>> with all of you in a week. To be continued.

>

[Guest guest]

HI:

I just wanted to add my vote to what Lesli is saying. We also spent

thousands and thousands, as well as much heartache and sustained damage

from not being particular enough about what docs we would let treat Steve.

Think about how fussy you are about your mechanic or hair stylist and then

multiply that by several orders of magnitude and then be that careful.

A saddened and now, finally, much wiser mental health services consumer,

Kathy (Ha)

kathyh@...

At 03:00 PM 8/11/99 -0700, you wrote:

> To all, However, those of us who have needlessly thrown money away

>on the wrong docs would like to save others the expense and heartache.

>We had to do quite a bit of digging and interviewing before finding good

>people who have OCD experience to work with our daughter. Good luck to

>you! Take care,

>Lesli (S. F. Bay area)

> wrote: ,

>I'm sorry for minding your business, and my feelings

>won't be hurt if you tell me to stuff it in my ear....but

> I certainly

>don't want to appear to be an opinionated know it all,

>but my intentions are good. You said this psychiatrist sounded

>knowledgeable but

> He/she

>may be a wonderful dr. but I would be concerned about

> Not a whole

>lot, but thousands of dollars later....I can tell you, we have

>been to several child psychiatrists, psychologists and MD's

>that specialize in adolesent behavior medicine, and we were

> We have finally

>(11 months after diagnosis) found a psychiatrist that has

>experience in treating OCD and we are finally seeing some

> It just amazes me that all these professionals

>couldn't come right out and say " I know about the disorder

>but I haven't treated many cases. I will help you find someone

>that can help your child. " I just don't want

>anyone to go through what we have gone through. Good luck and take care!

>mary from La.. Ron and Simurdiak wrote:

>

>

>

[Guest guest]

Hi Kay,

Thanks for the update about your family. A couple of weeks ago, Sara came

home from Kindergarten and said, " Listen " . She started counting in Spanish

and made it all the way to eight. I was so surprised. They are having some

Spanish-speaking lessons in their class, but it took me forever to get her to

count to three in English, so I figured I had been teaching her in the wrong

language.

Have a great weekend!

Marcia

Mom to Sara (DS) and 6 and Lucas 10

[Guest guest]

Well, Happy Friday to you too!!

That was an AWESOME story about knowing Spanish!! WAY TO GO ANNA! That

is a HUGE skill that is sooo handy! How cool!! I know a mother in Israel

who is concerned about this. Her youngest daughter has DS and her 3 older

(ages 9, 5, and 3) all speak at least 2 languages (two oldest speak 3). She

wants her daughter with DS to be able to do the same (she is 16 months

old), but everyone she speaks to in Israel say it can't be done! Can I pass

on your story to her?? You two may want to chat??

Also... is getting her teeth as fast as ?? That's pretty

neat! Usually kids with DS are slow to get their teeth. (Wow! Sorry for the

generalization there!)

Good luck with the Nutritionist! I'll keep my fingers crossed!!

Have a nice weekend!

Sara

--On Friday, May 11, 2001, 6:35 AM -0600 " Tiernan, Kay M "

<kay.tiernan@...> wrote:

> Fabulous news Katy!

>

> Happy Friday to all. I guess my only excitement is that I took to

> visit the three therapists that will work with her in preschool. They had

> to do a prelim. evaluation for her IEP. I took copies of 's current

> therapists visits with me for them to review. They were happy about that!

> The ST spoke Spanish and we were talking about our nanny who speaks

> Spanish. I said I really didn't know how many words understood in

> Spanish. While the 3 of us were sitting on the floor playing, picked

> up a toy. The ST ask to give it to her in Spanish. looked right

> at her and handed it over. The ST and I were surprised and pleased! She

> probably knows more than I do!! )

>

> I am so glad it is Friday. Hope to sleep in tomorrow morning. The girls

> have been a little fussy this week. They are getting in their 3rd and 4th

> two year molars. Ugh!

>

> Also, wish us luck. Tomorrow morning a Nutritionist is coming to meet with

> us regarding 's poor feeding habits (solids). Hope she comes with some

> good ideas. We're at a loss as to what else to try to get her to eat

> solids - something besides crackers anyway! )

>

> Kay Tiernan- Mom to , , -ds-25 mos. old

[Guest guest]

I cant remember if I posted it here or not but... my kids are all Hispanic

and speaking Spanish has always been a part of our lives. Rudy says many

things in Spanish because I believe they are easier like pata for foot, pan

for bread, aqua for water etc. He does know the English word but some

Spanish words just flow easier for him. He is fluent in his ability to

understand both languages.

Hugs

[Guest guest]

Hey Marcia, Tell Sara Congrats for counting in

Spanish.Isn't she amazing??

--- Rrietmann@... wrote:

> Hi Kay,

>

> Thanks for the update about your family. A couple

> of weeks ago, Sara came

> home from Kindergarten and said, " Listen " . She

> started counting in Spanish

> and made it all the way to eight. I was so

> surprised. They are having some

> Spanish-speaking lessons in their class, but it took

> me forever to get her to

> count to three in English, so I figured I had been

> teaching her in the wrong

> language.

>

> Have a great weekend!

>

> Marcia

> Mom to Sara (DS) and 6 and Lucas 10

>

__________________________________________________

[Guest guest]

Wishing you luck with the nutritionist Kay!! Sounds

like 's meeting with the therapists went well.

Spanish at 25 months!! Wow!! Our kids understand more

than we think at times. Thanks for sharing!!

mom to Landon (Ds) anmd Ashton 35 months

--- " Tiernan, Kay M " <kay.tiernan@...> wrote:

> Fabulous news Katy!

>

> Happy Friday to all. I guess my only excitement is

> that I took to visit

> the three therapists that will work with her in

> preschool. They had to do a

> prelim. evaluation for her IEP. I took copies of

> 's current therapists

> visits with me for them to review. They were happy

> about that! The ST spoke

> Spanish and we were talking about our nanny who

> speaks Spanish. I said I

> really didn't know how many words understood in

> Spanish. While the 3 of

> us were sitting on the floor playing, picked up

> a toy. The ST ask

> to give it to her in Spanish. looked right at

> her and handed it over.

> The ST and I were surprised and pleased! She

> probably knows more than I do!!

> )

>

> I am so glad it is Friday. Hope to sleep in tomorrow

> morning. The girls have

> been a little fussy this week. They are getting in

> their 3rd and 4th two

> year molars. Ugh!

>

> Also, wish us luck. Tomorrow morning a Nutritionist

> is coming to meet with

> us regarding 's poor feeding habits (solids).

> Hope she comes with some

> good ideas. We're at a loss as to what else to try

> to get her to eat solids

> - something besides crackers anyway! )

>

> Kay Tiernan- Mom to , , -ds-25

> mos. old

>

__________________________________________________

[Guest guest]

> Spanish-speaking lessons in their class, but it took me forever to get

> her to count to three in English, so I figured I had been teaching her

> in the wrong language.

LOL! How cute!! Way to go Sara!!

Sara

[Guest guest]

,

I forgot that the Rudman speaks and understands Spanish!! Way cool!!

Sara

--On Saturday, May 12, 2001, 12:35 PM +0000 lesfevr21@... wrote:

> I cant remember if I posted it here or not but... my kids are all

> Hispanic and speaking Spanish has always been a part of our lives. Rudy

> says many things in Spanish because I believe they are easier like pata

> for foot, pan for bread, aqua for water etc. He does know the English

> word but some Spanish words just flow easier for him. He is fluent in

> his ability to understand both languages.

> Hugs

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Kay,

That's great that understands both languages. My next door

neighbor's boss has an 8yr old with DS that speaks both english and

german fluently.

Katy

Mom to 4yrs and twins and Tyler(DS) 18months

[Guest guest]

I think that even though we are the parents of children with OCD, we have to

respect the confidentiality of our children's' relationship with their

therapist. Kids need a place to vent too and if they knew that we had access to

the conversations they hold with their therapists, they would definitely hold

back. Only when there is a possibility of danger should that confidence ever be

broken.

Two years ago, I received a call from my sister's therapist. She explained to

me the situation, asked for my help, called some other family members and

together we managed to intervene at a very difficult time in my sister's life.

told me that her psychologist told her that their conversations were

private and the same is true whenever my kids see professionals without me in

the room. Both myself and my kids are asked first if it is okay and I have

always agreed. That is not to say that I am not sitting in the waiting room

wondering what horrible things my kids are saying about me.

nne

[Guest guest]

Hi, My dd, 10 yrs, went through a phase of saying " i love you " to

me constantly. It was really annoying and I felt awful saying this

to her therapist! Her CBT homework was to try to say it only in the

morning and at bedtime. I was not to respond at any other time. It

only took a week for it to stop. I think the biggest help for her

was to admit to her therapist that she/OCD was doing it. I just kept

reminding myself that she could be saying much worse things to me...

in MA

> Hi,

>

> I received my list from OC Foundation today. There are some

listed 100

> miles and two hours away in the Seattle area. I e-mailed the

support

> group people and asked if they knew anyone closer to me. I was

> beginning to give up on getting the list.

>

> I'm not sure her condition is serious enough to warrant going that

far.

> She seems to boss back her thoughts pretty well. I do think

kissing

> and saying " I love you " is a compulsion though or at least

something in

> response to bad thoughts.

>

> Peggy

>

>

>

> Peggy Olsen-Missildine, M.Ed, M.S.

> Mom to Haleigh and

> Washington Online Instructor

> Grays Harbor College and Walla Walla Community College

> -------------------------------------------------------------------

---

> " The world in which you were born is just one model of reality.

Other cultures are not failed attempts at being you. They are unique

manifestations of the human spirit. " - Wade

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

[Guest guest]

, Lindsey does this too.

I must be the luckiest mom alive since I get told this a hundred times a day

lol! whenever she's anxious she says it,and she's anxious a lot!

Jennie,

mom to lindsey-9

In a message dated 9/12/2005 9:29:00 P.M. Eastern Daylight Time,

Bobcath4@... writes:

Hi, My dd, 10 yrs, went through a phase of saying " i love you " to

me constantly. It was really annoying and I felt awful saying this

to her therapist! Her CBT homework was to try to say it only in the

morning and at bedtime. I was not to respond at any other time. It

only took a week for it to stop. I think the biggest help for her

was to admit to her therapist that she/OCD was doing it. I just kept

reminding myself that she could be saying much worse things to me...

in MA

> Hi,

>

> I received my list from OC Foundation today. There are some

listed 100

> miles and two hours away in the Seattle area. I e-mailed the

support

> group people and asked if they knew anyone closer to me. I was

> beginning to give up on getting the list.

>

> I'm not sure her condition is serious enough to warrant going that

far.

> She seems to boss back her thoughts pretty well. I do think

kissing

> and saying " I love you " is a compulsion though or at least

something in

> response to bad thoughts.

>

> Peggy

>

>

>

> Peggy Olsen-Missildine, M.Ed, M.S.

> Mom to Haleigh and

> Washington Online Instructor

> Grays Harbor College and Walla Walla Community College

> -------------------------------------------------------------------

---

> " The world in which you were born is just one model of reality.

Other cultures are not failed attempts at being you. They are unique

manifestations of the human spirit. " - Wade

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

[Guest guest]

, Lindsey does this too.

I must be the luckiest mom alive since I get told this a hundred times a day

lol! whenever she's anxious she says it,and she's anxious a lot!

Jennie,

mom to lindsey-9

In a message dated 9/12/2005 9:29:00 P.M. Eastern Daylight Time,

Bobcath4@... writes:

Hi, My dd, 10 yrs, went through a phase of saying " i love you " to

me constantly. It was really annoying and I felt awful saying this

to her therapist! Her CBT homework was to try to say it only in the

morning and at bedtime. I was not to respond at any other time. It

only took a week for it to stop. I think the biggest help for her

was to admit to her therapist that she/OCD was doing it. I just kept

reminding myself that she could be saying much worse things to me...

in MA

> Hi,

>

> I received my list from OC Foundation today. There are some

listed 100

> miles and two hours away in the Seattle area. I e-mailed the

support

> group people and asked if they knew anyone closer to me. I was

> beginning to give up on getting the list.

>

> I'm not sure her condition is serious enough to warrant going that

far.

> She seems to boss back her thoughts pretty well. I do think

kissing

> and saying " I love you " is a compulsion though or at least

something in

> response to bad thoughts.

>

> Peggy

>

>

>

> Peggy Olsen-Missildine, M.Ed, M.S.

> Mom to Haleigh and

> Washington Online Instructor

> Grays Harbor College and Walla Walla Community College

> -------------------------------------------------------------------

---

> " The world in which you were born is just one model of reality.

Other cultures are not failed attempts at being you. They are unique

manifestations of the human spirit. " - Wade

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

[Guest guest]

Me too, my Cass does this. I never thought it was her ocd.

Re: Re: Therapists

, Lindsey does this too.

I must be the luckiest mom alive since I get told this a hundred times a day

lol! whenever she's anxious she says it,and she's anxious a lot!

Jennie,

mom to lindsey-9

In a message dated 9/12/2005 9:29:00 P.M. Eastern Daylight Time,

Bobcath4@... writes:

Hi, My dd, 10 yrs, went through a phase of saying " i love you " to

me constantly. It was really annoying and I felt awful saying this

to her therapist! Her CBT homework was to try to say it only in the

morning and at bedtime. I was not to respond at any other time. It

only took a week for it to stop. I think the biggest help for her

was to admit to her therapist that she/OCD was doing it. I just kept

reminding myself that she could be saying much worse things to me...

in MA

> Hi,

>

> I received my list from OC Foundation today. There are some

listed 100

> miles and two hours away in the Seattle area. I e-mailed the

support

> group people and asked if they knew anyone closer to me. I was

> beginning to give up on getting the list.

>

> I'm not sure her condition is serious enough to warrant going that

far.

> She seems to boss back her thoughts pretty well. I do think

kissing

> and saying " I love you " is a compulsion though or at least

something in

> response to bad thoughts.

>

> Peggy

>

>

>

> Peggy Olsen-Missildine, M.Ed, M.S.

> Mom to Haleigh and

> Washington Online Instructor

> Grays Harbor College and Walla Walla Community College

> -------------------------------------------------------------------

---

> " The world in which you were born is just one model of reality.

Other cultures are not failed attempts at being you. They are unique

manifestations of the human spirit. " - Wade

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

[Guest guest]

Same here. My son did this too and would also have to hug me many,

many times - had to be a hug just the moment he was walking out the

door - if he hugged me and said I love you too soon, he'd have to do

it again. That is when I got the clue it was OCD.

> > Hi,

> >

> > I received my list from OC Foundation today. There are some

> listed 100

> > miles and two hours away in the Seattle area. I e-mailed the

> support

> > group people and asked if they knew anyone closer to me. I was

> > beginning to give up on getting the list.

> >

> > I'm not sure her condition is serious enough to warrant going

that

> far.

> > She seems to boss back her thoughts pretty well. I do think

> kissing

> > and saying " I love you " is a compulsion though or at least

> something in

> > response to bad thoughts.

> >

> > Peggy

> >

> >

> >

> > Peggy Olsen-Missildine, M.Ed, M.S.

> > Mom to Haleigh and

> > Washington Online Instructor

> > Grays Harbor College and Walla Walla Community College

> > ---------------------------------------------------------------

----

> ---

> > " The world in which you were born is just one model of

reality.

> Other cultures are not failed attempts at being you. They are

unique

> manifestations of the human spirit. " - Wade

> >

> >

> >

> > __________________________________

> > - PC Magazine Editors' Choice 2005

> > http://mail.

>

>

>

>

>

>

[Guest guest]

We are in S.E. Michigan. Besides what is offered in our school district, how

would I find a private speech & occupational therapist for our 3 yr old grandson

with AS?

Becky

[Guest guest]

Your pediatrician should be able to provide you with referrals. I also got a few referrals from our school social worker for speech/language skills.

I am in SE Michigan, there is a local autism support group that may be able to help as well.

Autism Society of America—Macomb/St Clair Chapter—www.macombasa.org— Jo Boughton (586) 447-2235

~~~~~~~~~~~~~~~~~~~~~~

Suzanne

suzmarkwood@...

From: becky.desimone <becky.desimone@...>Subject: ( ) therapists Date: Tuesday, January 5, 2010, 5:56 PM

We are in S.E. Michigan. Besides what is offered in our school district, how would I find a private speech & occupational therapist for our 3 yr old grandson with AS?Becky

[Guest guest]

Where, exactly are you, Becky? The Guidance Center in offers support. Also the Dearborn Speech and Sensory Clinic offers what you are looking for.

Jillian

From: becky.desimone <becky.desimone@...> Sent: Tue, January 5, 2010 8:56:28 PMSubject: ( ) therapists

We are in S.E. Michigan. Besides what is offered in our school district, how would I find a private speech & occupational therapist for our 3 yr old grandson with AS?Becky

[Guest guest]

Thank you so much Suzanne. We are so new to this and trying to find our way.

Becky

>

>

> From: becky.desimone <becky.desimone@...>

> Subject: ( ) therapists

>

> Date: Tuesday, January 5, 2010, 5:56 PM

>

>

>  

>

>

>

> We are in S.E. Michigan. Besides what is offered in our school district, how

would I find a private speech & occupational therapist for our 3 yr old grandson

with AS?

> Becky

>

[Guest guest]

Thanks; I'll call her.

>

>

> From: becky.desimone <becky.desimone@...>

> Subject: ( ) therapists

>

> Date: Tuesday, January 5, 2010, 5:56 PM

>

>

>  

>

>

>

> We are in S.E. Michigan. Besides what is offered in our school district, how

would I find a private speech & occupational therapist for our 3 yr old grandson

with AS?

> Becky

>

[Guest guest]

We're in Riverview. Thank you so much; I'll call them both.

I feel like an idiot not knowing these things myself. I'm so glad this on line

support group was in the book I'm reading.

Becky

>

> Where, exactly are you, Becky?  The Guidance Center in offers

support.  Also the Dearborn Speech and Sensory Clinic offers what you are

looking for. 

> Jillian

>

>

>

>

> ________________________________

> From: becky.desimone <becky.desimone@...>

>

> Sent: Tue, January 5, 2010 8:56:28 PM

> Subject: ( ) therapists

>

>  

> We are in S.E. Michigan. Besides what is offered in our school district, how

would I find a private speech & occupational therapist for our 3 yr old grandson

with AS?

> Becky

>