Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Fraz is 15 years old also shes finishing up her 9th grade year shes has JRA poly i am trying to get her into talking with girls her age who also have this JRA what medicines are you taking? hows your support with your mom and dad? do you have any sisters or brothers? right now is on homebound schooling due to JRA you can email her at my email address just put in the subject what kind of JRA do you have? darlin you have to keep your head high and battle this with everything you have you are a strong one have a nice day email me anytime Robbin Robbin40@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Hi fraz, One of our members sometimes matches pen pals for kids and young adults with JRA who'd like to meet and write to others. You can get in touch with Donna to find out more about this, if you might be interested, by writing to her at: Faces1999@... The JRA World Chats are another place where you can meet up with people. Lots of lasting friendships have started there. The website is at: http://jraworld.arthritisinsight.com/ Once you register (for free) you can take part in their chats. All topics, not just JRA. Though some are specifically about JRA. When you have a chance, maybe you'll visit there? Aloha, Georgina From: fraz1999 Hi I just discovered I have JRA and I am a 15 year old female. I really confused about the affects and medication of this...but I am nore looking for a friend to talk with...If you want to help me out please e-mail me at fraz1999@...thank you for your time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 Hello Frazz..welcome! My daughter who is 17 has polyarticular jra..and was diagnosed 13 years ago. Finding out now at the age of 15 I am sure is very hard...when was your diagnosis..and may i ask what type of jra you was diagnosed with? Let your mom and dad be your leaning post they will be your best supporters maybe yall can research this disease together online. Are you currently on any meds? Good luck and I will let Tabitha read this and she will get in touch with you. karen(tab17..poly) From: " fraz1999 " <fraz1999@...> Reply- Subject: Looking for a friend Date: Fri, 26 Apr 2002 01:42:23 -0000 Hi I just discovered I have JRA and I am a 15 year old female. I really confused about the affects and medication of this...but I am nore looking for a friend to talk with...If you want to help me out please e-mail me at fraz1999@... thank you for your time. _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2010 Report Share Posted May 5, 2010 Hi ~ Our son sounds so much like yours and is the same age. Our son is in the 10th grade and has had issues with fitting in with kids his age for years. He was in public school through the 7th grade, but we finally opted to home school so that he could go off all meds for a while ~ give his body a break. What state do you live in? We're currently in CA, but have a house in CT. You mentioned your son likes to video games ~ what systems does he have. Our son has XBox 360 and we purchased a years membership with XBox Live, which has been wonderful for him. Although he games a bit more than I would prefer, he's also met a lot of kids his age online, who he talks to and games with daily. We also have a Wii, which they can also play online with others, although you can't necessarily talk to them. If your son has an XBox 360, we can exchange their user names and they can meet up on XBox Live, if he has it, and they can game together ~ just a thought. We've tried the pen pal thing, and unfortunately our son absolutely despises writing or typing, so as much as it was a great idea, and I personally love pen paling, it wasn't for him. We've had a difficult time finding home school support groups in CA, particularly in our area. They have awesome groups in CT, as CT is very home school friendly. If you'd like to chat personally, feel free to email me directly, and maybe we can figure something out. Take care and I wish you and your family well. Dawn Marie > > I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 Hi , Your son sounds so similar to ours. Where are you located? Is your son in a private high school right now? My son is starting high school in the Fall and I'm a bit nervous for all the same reasons. TX > > I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 Thank you for sharing your son's poem. It is beautiful and describes my 16yrs DS. I wish there is a group for teens as well. We are located in Southern Calfornia (S.D.) From: mybunch7 <mybunch7 (DOT) com>Subject: ( ) looking for a friend Date: Tuesday, May 4, 2010, 9:36 AM I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 > *******Forgot to mention that we live in Southern land.******* I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a > friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 I'm sorry it has taken me so long to respond. I was having trouble with my email and it has not been a good week at school for (the bullying). The poem your son wrote is awesome!! Unfortunately we live in Southern land, not even close to you. My son's OCD is mostly worring about things that might seem unimportant to most people. Anyway, please keep in touch because it is helpful to know that there are other kids out there with the same type of problem, we are not alone. From: gaaspiemom <gaaspiemom@...> Sent: Sat, May 8, 2010 12:13:23 PMSubject: ( ) Re: looking for a friend What video games does he like to play? Would he be adverse to having a 14 year old girl as a friend? My daughter is into video games (Final Fantasy, The Sims) and most girls aren't.a> > From: mybunch7 <mybunch7@.. .>> Subject: ( ) looking for a friend> > Date: Tuesday, May 4, 2010, 9:36 AM> > > > > > > > Â > > > > > > > > > > I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a> friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help?> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 I apologize for the delay in getting back to you. I have been having problems with my email. I forgot to mention that we live in Southern land.I am looking forward to the end of this school year, which will be in about 3 1/2 weeks. I am hoping that next year (10th grade) will be better. I am also hoping to find at least a couple kids that are local to us, but if not, maybe some of these kids could talk on line together like we do. What do you think? At least they would understand that there are other kids who face the same problems. From: "dweeny123@..." <dweeny123@...> Sent: Thu, May 6, 2010 11:37:27 AMSubject: ( ) Re: looking for a friend Hi ,Your son sounds so similar to ours.Where are you located? Is your son in a private high school right now?My son is starting high school in the Fall and I'm a bit nervous for all the same reasons.TX>> I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help?> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Hi Dawn I forgot to mention in my email that we live in Southern land. There are no support groups that I know of either anywhere near us. I would really like to keep in touch with you because it is great to know that there are other people out there that are having the same problems as we are. We have the XBox 360, but not the XBox 360 live membership, however, I am going to consider signing him up for it because it sounds like a great idea. I would definitely like to keep in touch. Thanks for your email. From: holling1992 <holling1992@...> Sent: Wed, May 5, 2010 2:01:42 PMSubject: ( ) Re: looking for a friend Hi ~ Our son sounds so much like yours and is the same age. Our son is in the 10th grade and has had issues with fitting in with kids his age for years. He was in public school through the 7th grade, but we finally opted to home school so that he could go off all meds for a while ~ give his body a break.What state do you live in? We're currently in CA, but have a house in CT. You mentioned your son likes to video games ~ what systems does he have. Our son has XBox 360 and we purchased a years membership with XBox Live, which has been wonderful for him. Although he games a bit more than I would prefer, he's also met a lot of kids his age online, who he talks to and games with daily. We also have a Wii, which they can also play online with others, although you can't necessarily talk to them. If your son has an XBox 360, we can exchange their user names and they can meet up on XBox Live, if he has it, and they can game together ~ just a thought. We've tried the pen pal thing, and unfortunately our son absolutely despises writing or typing, so as much as it was a great idea, and I personally love pen paling, it wasn't for him.We've had a difficult time finding home school support groups in CA, particularly in our area. They have awesome groups in CT, as CT is very home school friendly. If you'd like to chat personally, feel free to email me directly, and maybe we can figure something out. Take care and I wish you and your family well.Dawn Marie>> I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help?> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Is an immature 24, a young adult... I am all for gaming, even with younger goofballs . From: holling1992@...Date: Wed, 12 May 2010 18:05:39 +0000Subject: ( ) Re: looking for a friend Anyone interested in having their teen/young adult boys or girls join in on gaming on XBox Live, shoot me a personal email. Our son is 16 and loves to game and meet new friends on XBox Live. He loves Halo, and a lot of war type games. He also plays the Wii online and races with others on Cart with friends all over the world. Maybe we can get a little gaming group together ~ sort of a safe haven for our kids. If anyone is interested, feel free to email me privately.Dawn Marie> > > > From: mybunch7 <mybunch7@ .>> > Subject: ( ) looking for a friend> > > > Date: Tuesday, May 4, 2010, 9:36 AM> > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a> > friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help?> > > > > >> The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Can u do this world wide? Sent from my iPhoneOn 13/05/2010, at 4:05 AM, "holling1992" <holling1992@...> wrote: Anyone interested in having their teen/young adult boys or girls join in on gaming on XBox Live, shoot me a personal email. Our son is 16 and loves to game and meet new friends on XBox Live. He loves Halo, and a lot of war type games. He also plays the Wii online and races with others on Cart with friends all over the world. Maybe we can get a little gaming group together ~ sort of a safe haven for our kids. If anyone is interested, feel free to email me privately. Dawn Marie > > > > From: mybunch7 <mybunch7@ .> > > Subject: ( ) looking for a friend > > > > Date: Tuesday, May 4, 2010, 9:36 AM > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a > > friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help? > > > > > > > Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (14) Switch to: Text-Only, Daily Digest • Unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 My son has a PS3, no xbox but may get him one this summer. He likes to play some things online, he does love his video games and is quite good at most of. We're in NJ > > I have a 16 year old son with Aspergers. He is a freshman in high school. This has been a tough school year, transitioning from middle school to high school. The biggest problem for my son, , is feeling lonely. He does very well in school (all enrichment classes) and does not have any behavior issues. Along with the Aspergers, he has OCD and severe disgraphia (not sure if I spelled that right or not). is one of the nicest kids ever. He is always very considerate of everyone, not wanting to hurt anyone's feelings. However, he feels he does not fit in with the other kids, and when he tries to be part of the conversation, they treat him differently. He feels like the kids think he is stupid, which of course he isn't. I think if he had one or two good friends, he would be much happier. loves playing video games and is very computer savy. I'm trying to find someone else who might have similar interest and could use a friend. I'm not aware of any social/support groups for teens with AS, but I would be willing to try and set one up with some help? > > Quote Link to comment Share on other sites More sharing options...
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