Introduction

[Guest guest]

Hello Edith, welcome to the group. I was just curious - what made you decide to

join the list? Was it just for general good health or do you have a specific

concern?

I myself joined a few months ago after being diagnosed with breast cancer. I

did have surgery to remove the lumps but immediately afterwards began Dr.

's 21-Day program. My doctor wanted me to have more surgery and go thru

chemo but I opted for this method instead. All of my scans have come back clear

and both my blood and saliva tests showed no cancer. I think this is a great

program and makes so much more sense than " traditional " medicine.

I also did the Master Cleanse last fall and thought it was great. I had a ton of

energy while I was on it. I now have the drink with breakfast every morning

instead of coffee or tea, which I no longer miss at all.

Karyn

Edith Chupp <bechupp@...> wrote:

Hello,

I have just joined the list. I wanted to learn more about

cleansing the liver, etc. My husband and I have just

been on the Master Cleanse and did very well. I have

had my work cut out for me since my husband was not

raised in a family where natural anything was ever considered.

He has come a long way in his thinking.

I have three dogs that are on a raw food diet, five horses

and three cats (one house and two barn). I was raised

by a holistic thinking mother and was spared any vaccinations

because of that. I look forward to learning from others who are

searching for the most natural means to solve health problems.

Edith Chupp

[Guest guest]

Thanks for sharing your story! What are his long term effects? I've wondered how, when the time comes, we will be able to separate what delays are due to 's leukemia treatment and which ones are just due to having DS.

Beth

Bethmom to , age 4, diagnosed with high-risk preB ALL 10-29-03, on CCG1961-cwww.caringbridge.org/in/kylefacts

[ ] Introduction

Hello,I just found out about this group from another list and thought I would join. My name is Thirza and I am Mum to Tristan, 10 (DS), Abigail, 3, and Ella, 5 months. Tristan was diagnosed with pre B ALL way back in February 1998 shortly after his 4th birthday. He was on POG 9605 and had 32 months of chemotherapy. He had a pretty rough start to his treatment with lots of unscheduled hospital stays for fevers and mouth sores etc, he also had bacterial meningitis 2 months into treatment which was pretty scary. He has been off treatment (OT) for 3 years and 6 months and is doing well health wise - PTL! He also has some issues (long term effect) from his treatment which we deal with. We live in Houston, TX and Tristan was treated at Texas Children's Hospital. One of the reasons I joined this list is because I hope I might be able to encourage anyone who is just starting out this journey.with Blessings,Thirza Ritter, Mum to Tristan, 10 (DS, leukemia survivor, home schooled), Abigail, 3 and Ella, 5 months and wife to Mike

[Guest guest]

Thanks Dr. Rob,

You are so very much welcomed to this list. I was hoping to get a hem/onc doc on board.

sp robpedhemeonc <robpedhemeonc@...> wrote:

I guess I'll be member #3!I'm a pediatric hematologist/oncologist in St. Louis and, more importantly, father of (5 yo, DS) and three others with one more on the way (from El Salvador!) I have had private e-mail discussions with a number of parents on the DS listserv who are dealing with leukemia. I'll monitor this list and jump in whenever I can help.Thanks for setting it up .Rob Hanson, M.D., Ph.D.Pediatric Cancer and Hematology Center607 S. New Ballas Rd., Suite 2415St. Louis, MO 63141(314) 569-6986

[Guest guest]

Hi Thirza,

My name is mom to (13) and (almost 6, DS). He

was CHD and has been off treatment for AML for 2yrs 10 months.

Hugs

> Hello,

>

> I just found out about this group from another list and thought I

would

> join. My name is Thirza and I am Mum to Tristan, 10 (DS), Abigail,

3,

> and Ella, 5 months. Tristan was diagnosed with pre B ALL way back

in

> February 1998 shortly after his 4th birthday. He was on POG 9605

and

> had 32 months of chemotherapy. He had a pretty rough start to his

> treatment with lots of unscheduled hospital stays for fevers and

mouth

> sores etc, he also had bacterial meningitis 2 months into

treatment

> which was pretty scary. He has been off treatment (OT) for 3 years

and

> 6 months and is doing well health wise - PTL! He also has some

issues

> (long term effect) from his treatment which we deal with. We live

in

> Houston, TX and Tristan was treated at Texas Children's Hospital.

>

> One of the reasons I joined this list is because I hope I might be

able

> to encourage anyone who is just starting out this journey.

>

> with Blessings,

> Thirza Ritter, Mum to Tristan, 10 (DS, leukemia survivor, home

> schooled), Abigail, 3 and Ella, 5 months and wife to Mike

[Guest guest]

Hi Loren,

Welcome to the group.

Hugs

> Hi-

>

> My name is Loren and I have 3 children, 12, n 10

(Ds),

> and a 7. n was diagnosed with ALL 10/97, when he was 3

> 1/2, and he completed his treatment 1/2001. He is now 10 and very

> healthy. We have dealt with some major behavioral issues over the

> years and I have wondered about late effects. For the most part,

> n is a happy, healthy, and competent child and I am

optimistic

> about his future.

>

> He did relatively well during his treatment, although we dealt

with

> issues familiar to all of you. He lost quite a bit of weight

(32lbs

> to 25lbs), especially during the 2 delayed intensifications. He

did

> not have any feeding issues prior, but completely stopped eating

at

> certain points. I could, however, get him to drink from a bottle

> and that sustained him.

>

> Eventhough it has been several years now, I still find myself

> thinking about those years frequently.

[Guest guest]

Kay,

Thanks for joining. This list will need some old timers.

Rick .. also dad to an old timer .. Jan (31)

Kay Cook wrote:

>

> Hi, my name is Kay and I live in Western New York with my husband Rod

> and 17 year old daughter Missy who was diagnosed with ALL in January

> 1992 when she was 4 years old. She went through 2.5 years of chemo

> and has had NO relapses. Missy is in the 10th grade and is attending

> a Special Education Culinary arts program at school. She is also

> taking her academics at her local school.

>

> Missy for fun Dances in a typical dance studio and is the only person

> with Down syndrome at the studio. She is also an assistant at the

> studio for a 3 - 4 year old acro class.

>

> She has a boyfriend and is a very outgoing young lady.

>

> As for her leukemia she goes to the oncologist once a year and has a

> check up.

>

> If any of you have any questions please feel free to ask. I will

> probably just lurk for a while until I get to know people.

>

> Kay(mom to missy 17)

>

[Guest guest]

-Hello,

welcome! Glad you found us.- You have a unique problem with your

husband overdoing the help. We usually hear the opposite. Maybe you

could talk to him and make an agreement that you will ask if you want

help,otherwise he should let you do things on your own. Regarding

pain level...it is different for all of us. I have never really had

a pain free day but if I can keep my pain at a 2-3- I am quite

happy. Some people are more agressive with pain meds and it works

great for them.

good Luck with everything,

Marti

- In , " rioskim " <kim_rios@h...>

wrote:

> Hello,

>

> I am a 35 year old female who has had PA since 1996. I was

diagnosed

> with " secondary " Fibromyalgia about two years ago. I joined this

> group because I have had a hard time finding a support group in the

> area that I live, which is in Orange County, California. The

issues

> that I face with the disease and that my husband tries so hard to

> understand are beginning to consume and overwhelm me to the point

> that it is affecting not only how I care for my family, but my work

> as well. I see a Rheumatologist who has me on Enbrel, Methotrexate

> (20mg/week), Prednisone(10mg/day), Neurontin, Lexapro, Elivil and

> Vicodin. She's concerned about the levels of Vicodin that I take

> daily and has put me on a plan to wean me off of them so that I can

> start taking Darvocet. I just cannot get to a place of remission

> that I've heard people talk about. I was close a year and a half

> ago, but acquired Meningitis, so had to go off of the Enbrel which

> led to a bad flare up from which I have yet to recover from. I

guess

> my question is this: How does one with this disease cope with the

> constant pain that never goes away? Do I strive to be pain free or

> just at a tolerable level? I just can't seem to get there.

>

> Thanks for your feedback

[Guest guest]

Hi and welcome to the group. I have gotten to a tolerable pain level

with enbrel, sulfasalizine and vioxx. these are just the meds for

the Pa. oh and folic acid. I don't think the pain ever goes away. I

just don't understand why people have to go off the enbrel it seems

when they do they have a bad relapse of pa or flare. Maybe it's just

my oppion. Good luck to you.

Keli

> Hello,

>

> I am a 35 year old female who has had PA since 1996. I was

diagnosed

> with " secondary " Fibromyalgia about two years ago. I joined this

> group because I have had a hard time finding a support group in

the

> area that I live, which is in Orange County, California. The

issues

> that I face with the disease and that my husband tries so hard to

> understand are beginning to consume and overwhelm me to the point

> that it is affecting not only how I care for my family, but my

work

> as well. I see a Rheumatologist who has me on Enbrel, Methotrexate

> (20mg/week), Prednisone(10mg/day), Neurontin, Lexapro, Elivil and

> Vicodin. She's concerned about the levels of Vicodin that I take

> daily and has put me on a plan to wean me off of them so that I

can

> start taking Darvocet. I just cannot get to a place of remission

> that I've heard people talk about. I was close a year and a half

> ago, but acquired Meningitis, so had to go off of the Enbrel which

> led to a bad flare up from which I have yet to recover from. I

guess

> my question is this: How does one with this disease cope with the

> constant pain that never goes away? Do I strive to be pain free

or

> just at a tolerable level? I just can't seem to get there.

>

> Thanks for your feedback

[Guest guest]

Hi Kim,Floyd,gergnamhel (Sorry, don't know your name. Is it Ger?) Emma (and

your boyfriend) , (and your husband) and (and your wife) If

I have missed anyone, sorry.

There...........eh............Iv'e forgotten what I was going to

say............Oh yes, welcome to the group. Hope the expertise of the people on

it help

you in some way.

Kim,

A friend of mine once asked me if I thought if he or anyone else was to

suddenly get the pain that I was feeling at that time, would they be able to

cope. I said that they probably wouldn't cope very well because (Don't know if

anyone else will agree with this) the pain gradually gets worse (usually) and as

a result your pain threshold increases. I kinda look on it like this. Think

of the part of your body currently suffering the most pain and then say to

yourself. " If I didn't have PA and this pain suddenly appeared, would I go to

work? Would I do the housework or would I say forget it today because my hands

are killing me? You know what I mean? Having said that I know we are all at

varying stages of this disease. Some can still work, doing quite physical

jobs (I am a maint technician for instance although I've recently went on to

LTD) Some are in wheelchairs. Personally speaking, although I can't remember

ever being in remission (pain free) there are some very bad times and there can

also be tmes that you actually feel reasonable. I don't suffer from Fibro

(Although I can identify with some of the symptoms) and from what I have read

here, that adds to your problems obviously. I hope you get to that place you

are striving for one way or another.

Floyd,

I don't know but I have read on the board here that there are some people

who got PA before P. Hopefully they will answer too. I would have thought from

what I have read here previously that you must have Rheumatoid Arthritis

although that would not discount you also having Psoriatic Arthritis. Calling

the

more knowledgeable! Whatever happens, hope you're treatment works well for

it.

Gergnamhel,

Good to hear your doing well. Hope it stays that way.

Emma and

Hope the board helps your boyfriend. Hopefully his docs will find something

that will help him soon. What kind of medication are you on ?

and ,

Hope you get the help and/or info you are looking for to help your partners.

Take care all,

(another one line mail that got out of hand!!!)

[Guest guest]

greg will do

lol

[Guest guest]

Hi Alana,

Welcome to the group. Sorry about the circumstances that have brought you

here but you have come to the right place. I am twenty

something.......................well ok i was twenty something 18 years ago. lol

Seriously though

there is a few of around that age in the group. So hopefully they will say

hello

too.

Good luck,

[Guest guest]

---

Hi Alana and welcome,

I'm a bit older than you-I'm 43 years old. This is a good group.

God Bless, Sue in Michigan.

In , " alana " <alana@l...> wrote:

>

>

> hello nice people.

>

> i just found and joined this list yesterday and i thought i'd

> introduce myself.

>

> i am alana, from melbourne australia. i'm 29 and i live with my

lover

> and our five cats in a nice old house.

>

> my story is this: i had JA from ages 4-14, and i have always had

> psoriasis. i had no arthritis until about four years ago when PA

was

> diagnosed. i've not had a break from it since then. in fact it's

just

> getting worse. it affects all my lower joints and my hands and

> sometimes my elbows. within the past week, the psoriasis has gone

> crazy all over my right knee and my ears. i'm having trouble

sleeping

> and walking. GRRRR! i also have various other chronic health issues

> like depression, epilepsy and

> migraine and other stuff.

>

> my treatment regime is like this: i was on vioxx (50mg p/d) but

have

> changed to celebrex (400mg p/d), methotrexate (25mg p/w),

painkillers,

> chinese herbs, acupuncture weekly and swimming and massage

whenever i

> can.

>

> i am on a disability pension because my body is too unreliable to

keep

> a job. australia has amazing healthcare/pension support systems.

every

> day i think to myself how blessed i am to be in australia where

> everyone has equal access to these facilities.

>

> i haven't met anyone else in melbourne with PA, but i'd be keen to.

> are there any other 20 somethings on the list?

>

> ok. that is all.

>

> i hope your day is really good.

>

> alana x

>

> http://www.jonze.org

[Guest guest]

Hello Alana and welcome to the group.

I'm not from melbourne and I'm 49 but - I'm an Aussie.

Yes I agree with you the Australian system for disability seems to

work better than the American one - though we definitely have a lot

of people who like to abuse it.

Suzie

[Guest guest]

susieesue <susieesue@...> wrote:

---

Hi Alana and welcome,

I'm a bit older than you-I'm 43 years old. This is a good group.

God Bless, Sue in Michigan.

In , " alana " <alana@l...> wrote:

>

>

> hello nice people.

>

> i just found and joined this list yesterday and i thought i'd

> introduce myself.

>

> i am alana, from melbourne australia. i'm 29 and i live with my

lover

> and our five cats in a nice old house.

>

> my story is this: i had JA from ages 4-14, and i have always had

> psoriasis. i had no arthritis until about four years ago when PA

was

> diagnosed. i've not had a break from it since then. in fact it's

just

> getting worse. it affects all my lower joints and my hands and

> sometimes my elbows. within the past week, the psoriasis has gone

> crazy all over my right knee and my ears. i'm having trouble

sleeping

> and walking. GRRRR! i also have various other chronic health issues

> like depression, epilepsy and

> migraine and other stuff.

>

> my treatment regime is like this: i was on vioxx (50mg p/d) but

have

> changed to celebrex (400mg p/d), methotrexate (25mg p/w),

painkillers,

> chinese herbs, acupuncture weekly and swimming and massage

whenever i

> can.

>

> i am on a disability pension because my body is too unreliable to

keep

> a job. australia has amazing healthcare/pension support systems.

every

> day i think to myself how blessed i am to be in australia where

> everyone has equal access to these facilities.

>

> i haven't met anyone else in melbourne with PA, but i'd be keen to.

> are there any other 20 somethings on the list?

>

> ok. that is all.

>

> i hope your day is really good.

>

> alana x

>

> http://www.jonze.org

[Guest guest]

Hi Alana,

Im 39 and live in Sydney. I agree with you about the Disability

services in Australia. But when is the Government goint to put

Embrel or the Like on the PBS. It is giving great relief to people

over the world but there is no way i can afford 16K a year for it

here!. I too am on celebrex 400mg day and MTX 20mg a day but the Pa

is still springing up in different parts of my body. I wish that i

could try embrel which is only approved for RA even though studies

have shown it is actually more effective in PA than RA. oh well we

just have to live in hope and endure the pain until it gets listed!

[Guest guest]

Hi ,

i'm in canada and we have the same type of thing here vis a vis

enbrel and pa coverage - my rheumy has told me i am heading towards

needing enbrel and said he would put the diagnosis as ra. any

chance your rheumy could/would do the same? just a thought.

good luck,

karen

>

>

> Hi Alana,

> Im 39 and live in Sydney. I agree with you about the Disability

> services in Australia. But when is the Government goint to put

> Embrel or the Like on the PBS. It is giving great relief to people

> over the world but there is no way i can afford 16K a year for it

> here!. I too am on celebrex 400mg day and MTX 20mg a day but the

Pa

> is still springing up in different parts of my body. I wish that i

> could try embrel which is only approved for RA even though studies

> have shown it is actually more effective in PA than RA. oh well we

> just have to live in hope and endure the pain until it gets listed!

>

>

[Guest guest]

In a message dated 9/7/05 1:00:56 PM GMT Daylight Time, math_nawi@...

writes:

New member, recently diagnosed with PA. I've had occasional knee,

ankle, and hand pain for over 20 years, but always assumed it was due

to some past injury -

Hi ,

Welcome to the group. Yes I know you are not exactly new any more but I'm so

far behind just now its not true.

My name is . I am a Scot. P hit me at the age of 23 and its big cousin

PA decided to move in too, seven years later. So the three of us have been

inseparable ever since! lol I am now 48

I hope the MTX is working for you if you did start it. I came to the same

assumption as you when the Arthritis started. I was a runner and thought I had

just injured my heel because I was training a lot more on the road than I had

in the past. I was going to a Physio for over a year. During that time he

helped something like 10 or 11 other athletes. Two visits and they were saying,

" This guy is brilliant! My thigh, calf, foot, whatever, feels much better! " I

was left saying to myself, " What is going on here! " lol Obviously I

eventually found out why he wasn't able to help me.

I hope you can get what you are looking for from the group. You should. Its

big enough now and full of people who are knowledgeable and caring.

Good luck,

[Guest guest]

Hi

Thanks for the reply, glad to see you are now able to get online a bit.

Since my introduction I've been having quite an adventure - both

wrists, one ankle, and one wicked case of tendonitis in my right

hand... Yucko. Not on MTX yet, rheumy started me on plaquenil,

although he agreed to start me on MTX in a month and possibly enbrel

after that. Considering how long it can take to find a combo that

works, I feel optimistic that he's willing to take this approach and

add a biologic reasonably early.

Be well -

[Guest guest]

In a message dated 10/25/05 11:12:52 AM GMT Daylight Time,

math_nawi@... writes:

Since my introduction I've been having quite an adventure - both

wrists, one ankle, and one wicked case of tendonitis in my right

hand... Yucko. Not on MTX yet, rheumy started me on plaquenil,

although he agreed to start me on MTX in a month and possibly enbrel

after that. Considering how long it can take to find a combo that

works, I feel optimistic that he's willing to take this approach and

add a biologic reasonably early.

Hi ,

Sounds good. I think a lot of us would agree that getting on to a biologic

early could really be the difference between ending up with joint damage or

not. I hope you manage to get on it soon and it works wonders for you.

Good luck,

[Guest guest]

Thanks !

>

>

> In a message dated 10/25/05 11:12:52 AM GMT Daylight Time,

> math_nawi@y... writes:

>

>

> Since my introduction I've been having quite an adventure - both

> wrists, one ankle, and one wicked case of tendonitis in my right

> hand... Yucko. Not on MTX yet, rheumy started me on plaquenil,

> although he agreed to start me on MTX in a month and possibly enbrel

> after that. Considering how long it can take to find a combo that

> works, I feel optimistic that he's willing to take this approach and

> add a biologic reasonably early.

> Hi ,

>

> Sounds good. I think a lot of us would agree that getting on to a

biologic

> early could really be the difference between ending up with joint

damage or

> not. I hope you manage to get on it soon and it works wonders for you.

>

> Good luck,

>

>

>

>

>

[Guest guest]

,

My DH has P and PA (we think) they have also called it poly arthritis.

Anyhoo, he has taken met. injectables and had to stop b/c of the nausea.

It was horrible. Just the thought of taking the shot was nausiating.

He then

tried Remicade and as of a few weeks ago, developed a SEVERE allergic

reaction to it and ended up in the hospital for a few hours.

In a few weeks he will now try Humira. We are praying it will help him. It

is supposed to help 60-75% of the pts who fail on Remicade.

Currently he is on 35mg of Prednisone for TX (treatment). THe side effects

are so horrible. He is not happy.

Just know you are not alone. Ali in CT, USA

ydhutch wrote:

> Hi-My name is and I have had psoriasis since age 13.I was also

> diagnosed with Pa at the age of 35.I had been on prendesone for

> approx.2 years prior to being diagnosed. I then began methotrexate

> treatment(Pill) form up until 4 monts ago when I began the injection

> form.I have also been injecting Enbrel since Feb of 2003.It took quite

> sometime for me to see results of the Enbrel almost a year actually.It

> did improve my Psoriasis greatly and also the joint swelling and

> pain,but now I am back to square 1.My Psoriasis is extremely bad and

> all the other symptoms are back to where they were.It is very

> frustrating to say the least.I am 43 years old and have not been able

> to work since April of 2002 and also had whiplash from an accident at

> that time.Basically my Rhume is trying to get my p & pa under control

> while the other doc's try and correct my neck problem.For years my

> psoriasis has been extremely bad during the fall and winter,so bad that

> it actually hurt to wear cloths at times.It started out in the

> beginning just in my scalp,knees and elbows and as the years went on it

> got wosre and spreads everywhere now.I am being told that the form of

> pa that I have is Spondilitis.I had worked for 24 years and was also so

> active and very hyper.I would work a 12 hour shift sometimes then go

> home to clean house.It seems the more I try to do now the worse I

> get.It seems everything I do now is limited to minutes.I am in constant

> pain ,feel very useless and very frustrated and depressed most times.I

> will be seeing my rhume again next month and don't now what's next in

> terms of treatment for me.

> I have to say also that I do get very nausated from the injection form

> of the methotrexate as opposed to the pill form.I am presently

> injecting 25 mg of methotrexate once weekly,injecting Enbrel 25 mg

> twice weekly,and taking folic acid 6 days per week.When the pain is so

> severe that I cannot sleep I will occassionally take a Flexeril 10mg.

>

> I would certainly like to hear from anyone who is in a similar

> situation as mine and would like to talk to people in general about

> Pand PA.This is a great opportunity to speak to people who actually

> know what it's like to be living daily with different types of P & Pa.

> Thanks

> Hutchings

> Newfoundland,Canada

[Guest guest]

In a message dated 11/16/05 1:34:08 AM GMT Standard Time, ydhutch@...

writes:

Hi-My name is and I have had psoriasis since age 13.I was also

diagnosed with Pa at the age of 35

Hi ,

Welcome to the group. Sorry I am late with the welcome but that is par for

the course with me.

I am sorry that you have gone downhill again with the P and PA, especially

when you were doing pretty well on it for a while.

Maybe your Rheumy will decide to try you on one of the other biologics if he

reckons that the Enbrel/MTX mix is no longer working.

You have made a good move in joining us here. Its a great group, whether you

want to vent or need information or advice.

I hope all goes well for you at your next appointment. Let us know how you

get on if you can.

Good luck,

(Aged 48, P since 23, PA since 30, live in Scotland)

[Guest guest]

Hi -Thanks so much for the welcome. I'm so thrilled to have found this

group. Great to know that finally there is a place to seek info and to get

support from those who understand. Just fround out today actually that my Rhumey

will be leaving the area for good when he does return from a month of annual

leave on Dec 5th. Not good news for all of us arthritic people. The nearest

Rhumey then will be in our capitol city which is St.'s approx 900 miles

away. For some reason these past 2 years the Health Care sysyem here are having

difficulty finding Specialty Doctor's and retaining them for long periods of

time.Oh well , ,just have to wait and see if they do find a replacement for him

.. If not I will have to get use to the travel again and the added expense for

sure. I do hope however he does prescribe another method of treatment for me.

It's so frustrating to say the least,but I know it 's all trial & error finding

the right one that works for all of us, individually.

I will certainly let you know the out come. Nice to hear from you .Thanks!

martincoyless@... wrote:

Hi ,

Welcome to the group. Sorry I am late with the welcome but that is par for

the course with me.

I am sorry that you have gone downhill again with the P and PA, especially

when you were doing pretty well on it for a while.

Maybe your Rheumy will decide to try you on one of the other biologics if he

reckons that the Enbrel/MTX mix is no longer working.

You have made a good move in joining us here. Its a great group, whether you

want to vent or need information or advice.

I hope all goes well for you at your next appointment. Let us know how you

get on if you can.

Good luck,

(Aged 48, P since 23, PA since 30, live in Scotland)

[Guest guest]

In a message dated 11/25/05 1:02:42 PM GMT Standard Time, ydhutch@...

writes:

The nearest Rhumey then will be in our capitol city which is St.'s

approx 900 miles away. For some reason these past 2 years the Health Care

sysyem

here are having difficulty finding Specialty Doctor's and retaining them for

long periods of time.

Hi again ,

I hope it doesn't come to that, that you have to travel 900 miles to get to

a Rheumy. From where I live in Scotland, I could travel to anywhere on the UK

mainland and it would still be well under a 900 mile trek so to me that is a

terribly long journey even if I was fit enough to do it. I hope you can

manage to get someone closer and hopefully they will be as good.

Best of luck to you.

Take care,

[Guest guest]

Hi Again ,

I failed to mention in my last e-mail to you that my Rheumy also announced

last October that he was leaving in January of this year but changed his mind.

He is suppose to announce his definate departure time when he gets back from

vacation soon. I will have one last visit with him as I've been told .He has

been the only Rhuemy that has been on the West coast of our province since I was

diagnosed.Then, it will be back to the approx 900 mile drive for those who

choose not to fly, and may not be able to afford to fly to our Capitol St.'s

.. It will be very difficult for many people to say the least. Very sad, that in

order for anyone to see a Rheumy is this province we will all have to travel to

St.'s , that is providing he is not replaced or changes his mind again. We

didn't have enough stress in our lives already, now this. As you can imagine our

Health Care system is something to be desired......I don't even want to think

how long it will actually take for all of us patients

here on the west coast to be referred to seeing someone new, on the east coast

, if it comes to that. Just have to wait and see what the outcome will be.I will

certainly let you know for sure.

Thanks,Take Care

martincoyless@... wrote:

In a message dated 11/25/05 1:02:42 PM GMT Standard Time, ydhutch@...

writes:

The nearest Rhumey then will be in our capitol city which is St.'s

approx 900 miles away. For some reason these past 2 years the Health Care

sysyem

here are having difficulty finding Specialty Doctor's and retaining them for

long periods of time.