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In a message dated 12/3/05 2:34:25 AM GMT Standard Time, ydhutch@...

writes:

Just have to wait and see what the outcome will be.I will certainly let you

know for sure.

Ok ,

Good luck. Lets hope that for some reason he does change his mind.

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  • 2 months later...

I can't speak for cancer, but have had tremendous success with Dr.

methodology for treating diabetes and high blood pressure. :)

Her approach just makes so much sense to me and makes connections in

things, like aids, that 'modern' medicine just doesn't seem to be able

to do. But it seems so hard for people to accept that our world is so

toxic and parasites so prevelent, that a lot of people tend to back

away from her stuff. :( At least that is what I see when I mention

her work to those around me who are dealing with health problems.

Anyway, I found her book, " Cure for all Diseases " to be both mind

opening and boggling at the same time. Still blows me away that so

few people know about it, when from my experience, it is so effective.

Annette

>

> (sorry to anyone who has received this intro on other groups

> already - I have joined several groups in hopes of finding as much

> information as possible.)

> hello, I am new to this list, please let me introduce myself...

> my name is Lara, I am a thirty year old American woman currently

> living in Scotland with

> my new Irish husband (I have also lived in the San Francisco Bay

> area and grew up in New York State). We are hoping to start a family

> soon and are committed to living in the most natural way possible,

> through

> small-scale organic farming and a simple old-fashioned lifestyle.

> In the past I have been: macrobiotic, vegan, a natural

> hygeinist, and a raw-foodist, among other things, but I currently

> subscribe to a more relaxed

> dietary philosophy loosely based on paleolithic nutrition and Dr.

> Mercola's " no Grain Diet " . I have used and seen doctors proficient

> in: irridology, homeopathy, kineseology / muscle testing,

> acupuncture / Chinese medicine, colonic irrigation, naturopathy, and

> herbalism. My husband and I are fairly healthy and do

> not need to lose weight, but we do have some long-standing digestive

> and

> skin issues, and some food intolerances. I have generally assumed

> these problems areat least partially candida-related. Currently we

> are trying to conceive, and plan to home-school our future children.

>

> I just recently found out that a relative of mine has a serious

> cancer. My husbands mother was cured of

> breast cancer through surgery and chemo (a botched job that left her

> with a horrible infection that took ages to heal, she felt it did

> more

> harm than good) and vitamin b-17 (laetrile) and bitter apricot seeds

> (where she thinks the real healing came from). I am currently hoping

> to

> find some testimonials from others who have cured themselves of

> cancer

> through natural means, so that I can better advise my relative (who

> lives in Canada.) Because I have no prior personal experience with

> cancer in my family, I have done little research in this particular

> area. I am interested in laetrile/B-17 and the methods of Hulda

> , but the jury's still out for me on whether these treatments

> have proved effective enough in cancer treatment to warrant my

> endorsement of them to my relative, who is not particularly

> experienced with alternative health care. I know that if I were to

> be diagnosed with cancer tomorrow, my first approach to healing

> myself would be through fasting, supplementation, and a strict

> avoidance of all sugars and processed/ non-organic foods, but I do

> not have enough faith in the efiicacy of my own methods to recommend

> them to someone else in grave danger. I used to have that kind of

> conviction, but after 12 years of self-experimentation with diet,

> supplements, naturopaths, etc. I remain open, but less certain and

> more sceptical. I have always felt that when in doubt it is safest

> to stick with the natural and common-sensical ways things have

> traditionally been done in the past - farming, child-rearing,

> medicating, etc., and I fervantly hope that nature does hold the

> remedies for all ills in simple and accessable forms.

> Good books I have read recently: Day's The Mind Game, and

> Milton's Alternative Science.

>

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  • 2 months later...
Guest guest

Hi Kathleen,

Nice to see a fellow Montanan on the list, though sorry for the reason. I

live in Seattle these days and I see a rheumatologist who specializes in PA.

He has pioneered studies of different medications for use in PA for almost

10 years that I have read of. His name is Philip Mease. Let me know if you

need more information.

Jayson

-- [ ] Introduction

I've been on your list for several days. My son, age 30, had a preliminary

diagnosis of PA from our local PCP. Thursday he saw a specialist -

a physician's assistant in a dermatologist's office in the nearest city -

and got a firm diagnosis of PA.

He has had joint and muscle pains since early childhood with different

diagnoses - growing pains, Oscgood-Schlotter, damage resulting in two

knee surgeries, and finally fibromyalgia and arthritis. The pain has grown

worse and

worse with time. His employment record is sporadic because of this, and

his college studies have also been interrupted and never completed.

He was turned down for SS disability a couple of years ago, but the

medico he saw Thursday told him there are many programs to make

Enbrel available and he probably will qualify for one of those.

He's had a recurring skin problem for about 2 years, diagnosed several

times as a form of athlete's foot, and had prescription pills that helped

but never cleared it all up. Just recently the PCP here diagnosed it

as psoriasis which led to the PA diagnosis and specialist's visit. We

found photos on the Internet of guttata psoriasis after reading about it

on this list and it looks to be exactly the skin rash he had.

There are no known cases of either PA or psoriasis on either side

of the family. My husband's mother did have lupus erthymatosis,

and one of my first cousins has MS - those are the only immune

deficiency syndromes known to me in a large family. There's a strong

family background of thyroid, fibromyalgia, allergies, asthma, and

some Bi-Polar disorder. My son has level 2 BiPolar - the mild form.

My first question is, are there any rheumatologists or clinics

specializing in PA, especially in the Pacific Northwest?

There are so many issues to sort out - medications and their various

side effects; whether a move to a milder climate and sea air is in order;

and more.

Any advice, comments, suggestions for reading and research,

advice about specialists, or any information will be greatly

appreciated.

Kathleen, grasping at straws in northwest Montana.

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Welcome Kathleen-

Unfortunately, I can tell you that rheumetologists specializing in PA are

extremely few and far between. I recommend checking the National Institutes of

Health- www.nih.gov to find where there might be PA research done. The last

time I was on it, the only place was Wake Forest- Baptist Medical Center in

Winston-Salem, NC. I highly doubt that has changed much- but maybe you'll have

some luck. Anyway, good luck.

-Larry in NJ/SC

Emerson <memerson@...> wrote:

I've been on your list for several days. My son, age 30, had a preliminary

diagnosis of PA from our local PCP. Thursday he saw a specialist -

a physician's assistant in a dermatologist's office in the nearest city -

and got a firm diagnosis of PA.

He has had joint and muscle pains since early childhood with different

diagnoses - growing pains, Oscgood-Schlotter, damage resulting in two

knee surgeries, and finally fibromyalgia and arthritis. The pain has grown

worse and

worse with time. His employment record is sporadic because of this, and

his college studies have also been interrupted and never completed.

He was turned down for SS disability a couple of years ago, but the

medico he saw Thursday told him there are many programs to make

Enbrel available and he probably will qualify for one of those.

He's had a recurring skin problem for about 2 years, diagnosed several

times as a form of athlete's foot, and had prescription pills that helped

but never cleared it all up. Just recently the PCP here diagnosed it

as psoriasis which led to the PA diagnosis and specialist's visit. We

found photos on the Internet of guttata psoriasis after reading about it

on this list and it looks to be exactly the skin rash he had.

There are no known cases of either PA or psoriasis on either side

of the family. My husband's mother did have lupus erthymatosis,

and one of my first cousins has MS - those are the only immune

deficiency syndromes known to me in a large family. There's a strong

family background of thyroid, fibromyalgia, allergies, asthma, and

some Bi-Polar disorder. My son has level 2 BiPolar - the mild form.

My first question is, are there any rheumatologists or clinics

specializing in PA, especially in the Pacific Northwest?

There are so many issues to sort out - medications and their various

side effects; whether a move to a milder climate and sea air is in order;

and more.

Any advice, comments, suggestions for reading and research,

advice about specialists, or any information will be greatly

appreciated.

Kathleen, grasping at straws in northwest Montana.

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Hi Kathleen,

Sorry to hear about your son's problems getting help. We have all been

through this in one way or another because PA is so hard to diagnose. I have a

web site that might help you find a rheumatologist. It is a directory that

includes all the states.

I apologize also for being so late in replying, but I have been down with a

bad case of fatigue. It has been hard to even pull up the energy today. (I

have fibromyalgia also.) Good luck and God Bless.

Janet in Ca.

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Hi Kathleen,

Sorry to be such a fog-brain, but I guess it goes with the territory. I

forgot to give you the website. it is www. rheumatology.org/directory/geo.asp

Another site is: my.webmd.com/find_a_phys/doctor

Hope this helps, even if it was a little late.

Janet

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Guest guest

Janet, thanks very much for the info. I'll check the websites

out. Sorry for the delay, we've been away for several days.

And I would like to thank everyone on the list who responded

to my questions. It is wonderful to have such a supportive

and knowledgeable group to turn to.

Kathleen.

Message: 1

Date: Thu, 27 Apr 2006 13:42:06 EDT

From: cameronparkmom@...

Subject: Re: Introduction

Hi Kathleen,

Sorry to be such a fog-brain, but I guess it goes with the territory. I

forgot to give you the website. it is www.

rheumatology.org/directory/geo.asp

Another site is: my.webmd.com/find_a_phys/doctor Hope this helps, even if it

was a little late.

Janet

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  • 4 weeks later...
Guest guest

In a message dated 23/04/2006 19:50:40 GMT Daylight Time,

memerson@... writes:

I've been on your list for several days. My son, age 30, had a preliminary

diagnosis of PA from our local PCP. Thursday he saw a specialist -

a physician's assistant in a dermatologist's office in the nearest city -

and got a firm diagnosis of PA.

Hi Kathleen,

A very belated welcome to the group. I'm sorry your son's diagnosis has

brought you here but you will probably know by now what a good group this is for

information, for sympathy, for understanding.

I couldn't have helped you with your question about PA clinics in the Pacific

Northwest but I hope someone was able to help. If you are ever looking for

one in Scotland though....................... lol

Good luck,

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  • 4 weeks later...
Guest guest

Lung and brain cancer usually benefit from taking certain mushrooms

like cordyceps, reishi, maitake, etc. No idea what you can get in

Italy but it's worth a look into it. Make sure enough is taken if

you go that route and take it for a long enough period of time.

Please make sure he drinks enough fresh filtered water. Avoid

plastic bottled water!!! If you can get a Pi-water system in Italy

please do so as it's very good water and works well with cancer.

It's alkaline and able to cleanse very well.

Keep your Dad happy and laughing and as stress-free as possible

too. Hope it goes well for him. I Googled a bit about the Di Bella

therapy. Who really knows except the patients? I find the internet

is not always reliable and medical studies often aren't either.

Sharon

" spudgun0 " wrote:

> I'm new to the group and just wish to introduce myself and tell

> something about my case. I'm from Rome , Italy, 38 years old

> Some days ago my dad, who is 71, has been diagnosed a lung cancer

> (microcitoma) with brain methastasis . Doctors say he has no hope.

> Today he started radiant therapy , and seems to go well with it,

> since he did not suffer particular side effects . Doctors say they

> want to wait for him to finish radiant therapy before starting with

> chemotherapy, even if they say his life expectance is no more than

6 months. I know about the horrible effect and virtual inefficacy of

> chemotherapy, and I am about to ask a special doctor , who treat

> patients with the Di Bella Therapy, what he thinks about it .

> I don't know if this Di Bella Therapy is known outside of Italy,

all I know is that many many people say it can succeed in many cases in which

chemotheray and radiant therapy generally fail .What do you

> think about it ? More, I read a bit about alternative healing

methods, and I would like to read your opinion about the efficacy of

them ... and if possible have some indication in statistics.

> Thank you all.

> Leo

>

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Hello Leo: 6/22/06

Writing from the U.S., I am not familiar with this Di Bella method

you mentioned. However, you did state that your dad has lung and

brain metastases and I can say that here in the states, we have

several technologies/therapies that are effective in dealing with

this. One is called radiofrequency ablation and the other is called

the Cyberknife. These are super-accurate methods for killing tumors

and I recommend that you at least call and talk with the medical

folks here to consider getting your father treatment in a country

that has (in my opinion) one of the best infrastructures available

for dealing with cancer. For cyberknife, call the Beth Israel

hospital in Boston and they'll give you more details. The Dana Farber

Cancer Institute (also in Boston) is another excellent place to call

and get advice from an oncologist. Perhaps they could give you an

opinion for treatment if you offered to mail them advance copies of

the x-ray studies on your dad.

Good luck, and we will pray for your success in dealing with your

cancer dilemna.

c.

Leo wrote:

> I'm new to the group...I'm from Rome , Italy, 38 years old

> Some days ago my dad, who is 71, has been diagnosed a lung cancer

> (microcitoma) with brain methastasis . Doctors say he has no hope.

> Today he started radiant therapy... Doctors say they

> want to wait for him to finish radiant therapy before starting with

> chemotherapy, even if they say his life expectance is no more than 6 months.

..... I read a bit about alternative healing methods, and I would like to read

your opinion about the efficacy of them ... and if possible have some indication

in statistics.

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I second this. Pi-Water would be the best. Also Protocel 23 would be a good way

to slow down the metastasis so the body can start digesting this extra protein.

Johanne

Lung and brain cancer usually benefit from taking certain mushrooms

like cordyceps, reishi, maitake, etc. No idea what you can get in

Italy but it's worth a look into it. Make sure enough is taken if

you go that route and take it for a long enough period of time.

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Guest guest

Thank you Sharon

I saved your reply and 's since I plan to show them to my

sister and take a decision together .... I 'll be looking for such

mushrooms ... if it's some kind of Japanese food, as I seem to

understand from their names, I can contact a friend of mine, who is

from Japan , and ask her about it. Luckily, my dad hates bottled

water, and I'm fighting to bring him to eat plenty vegetables and

fresh fruit, and keep him away from meat ....

Sadly , I can hardly " make my dad laugh and stay away from stress " .

My dad is a particular personality, and keeping quiet or calm makes

him feel crazy, he always needs to argue , fight with someone,

criticize anyone ... I'm starting now to try to make him understand

that this approach to life is wrong , but he doesn't want to listen... years

ago, he made it impossible for me to stay with him and chocked me out of home

....this is to illustrate the situation.....

Today, I live on my own, and it's different , but it's very difficult to deal

with him anyway .....

Speaking about the Di Bella therapy, it's based on somatostatine, and melatonine

(I don't know if the terms are correct), the fact that its' poorly known outside

of Italy is due to the ostracism Di Bella suffered in 1998, when after years of

evidence, the experimentation began, but the result where poor ,and the Di Bella

Therapy was declared inefficient . Some months later , it was discovered that

the procedure of the trial was incorrect, since many patients had been given

samples of corrupted somatostatine (and many of them died)....

So, it's clear that someone tried to stop Di Bella ...If you want to know more

and know some italian :

www.metododibella.org

Thank you very much for your support

Leo

Lung and brain cancer usually benefit from taking certain mushrooms

like cordyceps, reishi, maitake, etc.

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Guest guest

Hi ,

Yes I already read about CyberKnife (is it the same or similar to

Gamma-Knife?), and less about radiofrequency ablation.

I think these methods dont rely directly on high freqeuncy radiation

(at least for radiofrequency ablation), but do they cause harm to the cells

surrounding the tumor ?

And more, can the treatment be repeated in time , if the cancer

starts again ? My main problem however, is the price of the treatment , and the

difficulty of traveling to the US with my dad , who will be hard to convince

.....

Anyway I'll try to call the centers you talk about and ask them the

details. Thank you very much

Leo

In , " jcrowderedu " <jcrowderedu@...>

wrote:

Hello Leo: 6/22/06

Writing from the U.S., I am not familiar with this Di Bella method

you mentioned. However, you did state that your dad has lung and

brain metastases and I can say that here in the states, we have

several technologies/therapies that are effective in dealing with

this. One is called radiofrequency ablation and the other is called

the Cyberknife.

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  • 6 months later...

Meg,

Sounds like you're on the right track. I've always seen better results

with TOA-free Samento than with regular Cat's Claw. I'm aware of

Buhner's discussion of the issue, but I would still not hesitate to go

with TOA-free first, based on research and results. I use Nutramedix.

Thank goodness for the persistence of your friend. When dealing with

this disease, there's not a moment to lose. I would give your friend a

big sloppy kiss, if I were you. :) He may have saved you from a lot

more problems down the road. It was definitely a good choice to begin

Samento right away, but it's even better that you're now exploring

additional options. It sounds like you're responding well to even this

limited amount of treatment so far, so I would be hopeful that things

will continue to improve even more as you continue developing a more

comprehensive protocol.

As far as testing is concerned, it's clear that you have Lyme, but

something to also consider are coinfections. You certainly have Bb,

but what of babesia, bartonella, or ehrlichia, etc.? Coinfections are

the norm, and a little more information in this area might shed some

light on how to better develop a treatment plan that's specific to

you. It's something to think about.

And congratulations on meeting " Mr. Right. " Hopefully he won't be too

jealous when you give your " Lyme friend " that big sloppy kiss. ;)

>

> Hi all,

>

> I'm new to this group and while the group owner informs me that it

isn't necessary to write an introductory message, I thought it might

be better than just jumping in to the conversations as if I've been

here all along.

>

> I just joined the group this morning as I am still in the process of

acquainting myself with Buhner, his book Healing Lyme, and the

protocols he suggests therein. I've never had a blood test that

confirmed Lyme (and in fact have never even had one for Lyme at all; I

told several of my many doctors that I thought I had Lyme and they

pretty much laughed in my face and refused to test me since I don't

live in a CDC defined endemic area, even though I gave them a lengthy

" Lyme disease check list " on which I had very nearly all of the

symptoms to some degree or another and also have had many tick bites

in my life), but I have spoken with a LLMD and after listening to all

my symptoms and the order of their progression, he had absolutely zero

doubt that Lyme disease was the primary cause of my health problems.

He reminded me that Ld is a clinical diagnosis primarily since testing

is still so touch-and-go and that if I were actually his patient, he

would have diagnosed me

> as having Lyme based off of what I told him alone. Aside from the

fact that I couldn't get my doctors to even test me for Lyme disease,

I'm also pretty strongly against the use of pharmaceuticles whenever

possible. I believe that " alternative " medicine should be our first

resort, not our last! I've done a ton of research on Lyme disease and

I don't doubt that antibiotics are helpful for many people (especially

early in the disease -- but based off of several of my symptoms, the

doctor I've been in contact with as well as my friend who is basically

an expert in the area both said I've probably had it for years and am

already in the late/chronic stage with definite neurological

involvement -- which I suppose was obvious to me too, but having

others confirm it was actually nice, especially after some of my

doctors - and my dad - told me that all of my symptoms were in my

head! I guess in a way they were right though. ;)), but being strongly

against antibiotics I decided to

> look for alternative options. I think God " naturally " provides us

with more of the answers to various illnesses than doctors, the drug

companies, and the government want us to think! My dearest friend in

the whole world also had Lyme disease and had had it for many years

already when I first became symptomatic. He was being treated by a

LLMD along with his mother. He was the one who helped me to see that

Lyme disease is a much bigger problem than the CDC is really

admitting. When I was still in denial about the possibility (and boy,

was I!), he kept on it. Eventually after more talks with him, and more

research on my own and with his help (not to mention going to doctor

after doctor after doctor and getting no answers!), I became

thoroughly convinced. When I was honest with myself about it, Lyme

disease really was the only thing that fit my symptoms perfectly.

Every other disease left at least a few of my symptoms unaccounted

for. After a brief period of being nearly

> symptom free (this, after almost a year of constant illness) I

relapsed, and took on new symptoms. My friend told me to start taking

Samento ASAP, if I did nothing else. I've been taking it since

September of 2006 and in general I feel better than I had in many,

many months. I am actually able to work part time now, as long as I

take it easy. I'm no longer sleeping 18+ hours a day among so many

other things! I still have flares though, so I've been looking for

other natural medicines that might help -- that's when my friend told

me about Buhners book! I haven't started on any of the herbs

he suggests yet, but I'm seriously considering trying a few and

thought I'd like to hear what people who are on his protocol have to

say about it before I make any decisions.

>

> Oh, and on the more personal side, I'm 23 and live in southeast

Texas with my parents. I'm hopeful that the latter half of this

statement will change in the near future though, as I've finally met

Mr. Right. :)

>

> I look forward to learning about your experiences with

Buhner's protocols!

>

> -Meg

>

>

> ---------------------------------

> We won't tell. Get more on shows you hate to love

> (and love to hate): TV's Guilty Pleasures list.

>

>

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,

Interestingly, that is precisely what my friend told me about the TOA-free

Samento -- and I read a lot of things that seemed to support that position, not

to mention my personal experience with the TOA-free. I'm using NutraMedix too,

and found it slightly cheaper at TheGreenPharmacy.com as opposed to NutraMedix'

site.

I quite agree about what my friend deserves, and will do my best to follow your

excellent suggestion whenever I can -- and fortunately that friend also happens

to be Mr. Right, so no worries on the jealousy front!

I agree too that testing for coinfections at some point would probably be a wise

move -- I'm not having the best time finding a doctor who is actually willing to

work with me on these issues though! As soon as I act like I might know a little

bit about what's wrong with me, or what I'm talking about in general, they kind

of tend to freak out.

I've been having more nerve " issues " lately -- funny feelings here and there,

but especially in my face. I've also been getting these really painful

" twinges " ; it feels like a nerve just under my jaw is spasming or something, and

sending fairly severe pain up the side of my face, down my shoulder, etc. I

don't want to blame everything on the Lyme, but I've been wondering if it isn't

related. Fortunately these " twinges " only last a couple seconds each time, but

I'd still love for them to let up. Anybody have any ideas or suggestions on

this?

Thanks!

-Meg

drostollan <drostollan@...> wrote: Meg,

Sounds like you're on the right track. I've always seen better results

with TOA-free Samento than with regular Cat's Claw. I'm aware of

Buhner's discussion of the issue, but I would still not hesitate to go

with TOA-free first, based on research and results. I use Nutramedix.

Thank goodness for the persistence of your friend. When dealing with

this disease, there's not a moment to lose. I would give your friend a

big sloppy kiss, if I were you. :) He may have saved you from a lot

more problems down the road. It was definitely a good choice to begin

Samento right away, but it's even better that you're now exploring

additional options. It sounds like you're responding well to even this

limited amount of treatment so far, so I would be hopeful that things

will continue to improve even more as you continue developing a more

comprehensive protocol.

As far as testing is concerned, it's clear that you have Lyme, but

something to also consider are coinfections. You certainly have Bb,

but what of babesia, bartonella, or ehrlichia, etc.? Coinfections are

the norm, and a little more information in this area might shed some

light on how to better develop a treatment plan that's specific to

you. It's something to think about.

And congratulations on meeting " Mr. Right. " Hopefully he won't be too

jealous when you give your " Lyme friend " that big sloppy kiss. ;)

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  • 9 months later...

" tom28oi " wrote:

> I have just recently diagnosed with primary liver cancer. My wife and I are

gearing up for natural treatments so if you have any tips..they are welcome.

Tom:

You can beat this using alternative treatments. Read this page

thoroughly:

http://www.newswithviews.com/Howenstine/james14.htm

Look into everything that builds your immune system. Paw Paw,

colloidal silver, Low Dose Naltrexone (LDN), pancreatic enzymes.

Avoid radiation, including CT scans, radiation treatments and chemo

therapy. These conventional things break down your immune system and

weaken you. The opposite of what you want to do.

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Tom,

Go to: http://www.royalrife.com

Please be sure to read everything on this site AND watch the video's. I too

am batteling liver cancer along with a couple of other cancers. This is the

site which I have been following for the last 14 months. My numbers are all

going in the right direction and I feel great.

Best wishes,

Ray

" tom28oi " wrote:

I have just recently diagnosed with primary liver cancer. My wife and I are

gearing up for natural treatments so if you have any tips..they are welcome.

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Dear Tom

Please use hyderogen Peroxide 30% medical grade 5 drops in glass of water.

I am sure you will get good results. Also you can use Cow urine simultanously 2

spoons in water.

Take care

Kumar

[ ] Introduction

Hello,

I thought I would introduce myself. Tom is my name and I have just

recently diagnosed with primary liver cancer.

My wife and I are gearing up for natural treatments so if you have any

tips..they are welcome. Thanks

Tom

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Kumar -

How often do you drink the HP and the cow's urine?

Thanks,

Lainey

On Nov 18, 2007, at 10:14 PM, Kumar Africa wrote:

> Dear Tom

> Please use hyderogen Peroxide 30% medical grade 5 drops in glass of

> water. I am sure you will get good results. Also you can use Cow urine

simultanously 2 spoons in water.

> Take care

> Kumar

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Daily morning and evening.

Take care

Kumar

[Moderator's note: Kumar tried to send a manual on cow urine, but it

it too long to post on this forum.]

From: Lainey

Kumar - How often do you drink the HP and the cow's urine?

-------

Kumar Africa wrote:

> Dear Tom

> Please use hyderogen Peroxide 30% medical grade 5 drops in glass of

> water. I am sure you will get good results. Also you can use Cow urine

simultanously 2 spoons in water.

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Dear Peggy,

Sorry to hear your news. My son and I have battled Lyme for 14yrs. He was an

8 month old preemie when I was bit and passed the spirochetes to him thru my

breast milk. We have tried abx, hyperbaric, chinese herbal, etc. Some short term

relief with most but no long term success.

We have been using the PERL from Resonant Light Technology

(www.resonantlight.com). This machine technology is based on integreated sound

frequencies (rife) and light. has several active Rife groups. I

researched " rifing " for two years before deciding to go with the PERL. We have

used it since June 2006. We are both better and experiencing continued success

with diminishing symptoms physically and mentally. If you would like more info

you can email me. Best to you. Blessings, Jillian

Peggy Blumhagen <peggyblumhagen@...> wrote:

Dear Parents of Children with Lyme:

I am a 50 year old single mother with four children. In July, I became

incapacitated with Lyme and Bartonella. Once the fog lifted with treatment, I

got my children's CD57 checked. The 13 year old is 18 1 percent Lymph and the 15

year old is 46 with 2 percent Lymph.

Their symptoms are demonstrating GI and neuro involvement.

I'm not sure how to proceed for treatment. Next week we have a Doug coil machine

arriving. I'm not sure if I should Rife and do antibiotics...or just go straight

to IV antibiotics?

HELP!

Peggy

---------------------------------

Be a better pen pal. Text or chat with friends inside . See how.

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Hi Peggy,

I concur with Fin about the CD-57 not being reliable in children. My

family's LLMD who treats many children told me the test does not work

with children. The IgeneX Western Blot is the most common test used

to aid in diagnosis. The florescent antibody test (QRIBb) is

another, but not yet FDA approved. The QRIBb has shown that healthy

people might be carriers of lyme, but not be symptomatic. I believe

treating healthy (even potentially lyme positive) patients is not

advised. Thus a clinical diagnosis is the best tool. It does sound

like you see some lyme symptoms. At this point, I would agree with

Fin to seek out a LLMD.

My same LLMD did not want me to try rife on my son (now 6 years

old). Very short rife times can cause horrible herxs. The problem

with rife is that it may work too well at killing the bugs, thus

releasing too many toxins into the body at once. If you do try the

Doug Machine, be very very careful. I'm sure you have read

Rosner's books before you bought the Doug. If not, here is a link:

http://www.lymebook.com/

I personally like the Cowden protocol. There is too much to learn

from Dr. W. Lee Cowden. Since he charges $600/hr, I seek out what I

can without his help. He's also in Arizona, which is a very long

drive. But if you can afford it, it may be worth seeing him. He

also treats many children. He sees a lot of autistic and lyme

children (some with both).

I hope I was of some help.

Take care,

Rich (skiweasel7)

>

> Dear Parents of Children with Lyme:

>

> I am a 50 year old single mother with four children. In July, I

became incapacitated with Lyme and Bartonella. Once the fog lifted

with treatment, I got my children's CD57 checked. The 13 year old is

18 1 percent Lymph and the 15 year old is 46 with 2 percent Lymph.

>

> Their symptoms are demonstrating GI and neuro involvement.

>

> I'm not sure how to proceed for treatment. Next week we have a

Doug coil machine arriving. I'm not sure if I should Rife and do

antibiotics...or just go straight to IV antibiotics?

>

> HELP!

>

> Peggy

>

>

>

>

> ---------------------------------

> Be a better pen pal. Text or chat with friends inside .

See how.

>

>

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Wow, thank you Rich. I'll take what you have to say to heart.

Please remember that the CD57 is reliable in the fact that it measures the

immune system. If a child or adult is strong, eating well, and drinking right,

and sleeping well, he/she may not have the same symptoms with the same CD57

results as someone who is not healthy. Also, length of time is a factor, plus

genetics and blood coagulation, and so many other things.

Thanks for the warning on the Doug machine.

Peace and blessings,

Peggy

Rich R <skiweasel7@...> wrote:

Hi Peggy,

I concur with Fin about the CD-57 not being reliable in children. My

family's LLMD who treats many children told me the test does not work

with children. The IgeneX Western Blot is the most common test used

to aid in diagnosis. The florescent antibody test (QRIBb) is

another, but not yet FDA approved. The QRIBb has shown that healthy

people might be carriers of lyme, but not be symptomatic. I believe

treating healthy (even potentially lyme positive) patients is not

advised. Thus a clinical diagnosis is the best tool. It does sound

like you see some lyme symptoms. At this point, I would agree with

Fin to seek out a LLMD.

My same LLMD did not want me to try rife on my son (now 6 years

old). Very short rife times can cause horrible herxs. The problem

with rife is that it may work too well at killing the bugs, thus

releasing too many toxins into the body at once. If you do try the

Doug Machine, be very very careful. I'm sure you have read

Rosner's books before you bought the Doug. If not, here is a link:

http://www.lymebook.com/

I personally like the Cowden protocol. There is too much to learn

from Dr. W. Lee Cowden. Since he charges $600/hr, I seek out what I

can without his help. He's also in Arizona, which is a very long

drive. But if you can afford it, it may be worth seeing him. He

also treats many children. He sees a lot of autistic and lyme

children (some with both).

I hope I was of some help.

Take care,

Rich (skiweasel7)

>

> Dear Parents of Children with Lyme:

>

> I am a 50 year old single mother with four children. In July, I

became incapacitated with Lyme and Bartonella. Once the fog lifted

with treatment, I got my children's CD57 checked. The 13 year old is

18 1 percent Lymph and the 15 year old is 46 with 2 percent Lymph.

>

> Their symptoms are demonstrating GI and neuro involvement.

>

> I'm not sure how to proceed for treatment. Next week we have a

Doug coil machine arriving. I'm not sure if I should Rife and do

antibiotics...or just go straight to IV antibiotics?

>

> HELP!

>

> Peggy

>

>

>

>

> ---------------------------------

> Be a better pen pal. Text or chat with friends inside .

See how.

>

>

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  • 2 months later...

Tish

I just wanted to say hi and welcome and I hope you feel better soon.

It seems like a lot of members on the board lately are from NJ maybe

there is something in the water HAHA.

from South Jersey

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  • 1 month later...
Guest guest

Hi Darla,

May I recommend Low Dose Naltrexone (LDN) as a possible treatment. To learn

more, visit

http://tinyurl.com/2p57xv

With best wishes,

Dudley Delany, R.N., M.A., D.C.,

dudley_delany

[ ] Introduction

Hi,

I'm new here... obviously have a lot to learn and need to learn

fast. Anyone wishing to email suggestions, pointers, etc, please feel

free.

Recently diagnosed with adenocarcinoma of the cervix. So... here's

how the story goes.... something felt " wrong " --- long history of

abnormal pap smears starting 20 years ago and normalizing about 10

years ago. Have had multiple LEEPS, so, when something just wasn't

quite right I figured I was in trouble. I attempted to self refer to

an oncologist/gynocologist, with no luck. So jumped through the hoops

of finding a Primary Care Provider (pap smear, indicative of

adenocarcinoma in situ) who made a referral for follow up, gave me

the choice of a provider who works approx 90 miles away from me (I

live VERY remotely, so everyone is a distance to travel) and a

provider who was about 130 miles away from me. Without any checking

into it, I quickly chose the nearer provider. A colposcopy was

done... visible lesion. The Provider (who I assumed would be

following me throughout this whole situation) was like a happy

gardener and pruned away at anything that looked abnormal. So...

biopsies came back as fragmented adenocarcinoma and I'm told that NOW

I need to go see the oncologist/gynocologist. So... I go see the onco

doc who does another coloposcopy and tells me that there are no

visible signs of a lesion, so based on that, I will need to have a

cone biopsy to determine whether or not it is in situ or invasive.

She told me prior to the exam that if she saw any visible lesion that

the adenoma would be considered to be invasive and I would be treated

for that.

The treatments that she lined out for me are:

in situ-- cone biopsy, followed by a simple hysterectomy 4-6 weeks

later after healing has taken place from the cone.

invasive--if identified on biopsies from coloposcopy then there is no

cone biopsy is done, a PET scan is done to get some idea of the

spread and then radiation and chemo are given, then a radical

hysterectomy is done. How radical depends on the results of the Pet

scan.

Looking for... treatment options, both conventional and

nontraditional.

Darla

------------------------------------

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