Guest guest Posted June 6, 2000 Report Share Posted June 6, 2000 zappers at SOTA and in calif. at shrc-geoff clark. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 Hi Sandy, My name is Toni and I was diagonosed with breast cancer. I am interested to read the responses to your letter, and just wanted to greet you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Hi Traci, about the mouth sores. I have heard that sucking on ice or anything cold while you are receiving chemo can help with them. I don't really know if it worked for me because I didn't get mouth sores consistently each time I had chemo. But it is worth a shot! take care, isabelle [ ] Introduction Hi. My name is Traci. I joined this list to help find some information formy boss who was diagnosed with Non-Hodgkin's Lymphoma. He is currentlyundergoing CHOP chemotherapy with Rituxan.Through some research and some dear internet friends on other email lists, Ihave suggested he drink the Essiac Tea and take Enzymatic Therapies CellForte IP6 as well as BetaGlucan in addition to the regular multivitaminsupplements he was taking. Can anyone suggest any additional supplements?Also, after his first dose of chemotherapy, he has some mouth sores. Anysuggestions for eliminating them or at least reducing them?Thanks for any help and suggestions you might offer.Traci You are receiving this email because you elected to subscribe to the egroups. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 Welcome Kathy - You will learn more in one week on this posting group than your doctor will tell you in months. I know I have. And for me one of the biggest reliefs was to know that now there is somewhere to turn, and someone who understands. Best of luck to you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 Welcome to the group...we've all been where you are now...at the beginning of this weird and different road. You will find a lot of knowledge among the member. I am a mom/grandmother of 54 and was diagnosed 5 years ago with PA. I have had P since 76. I am in a major flare right now. You will find that everybody's body acts differently, but we all have similar pains, aches and swelling, etc. Some are on high powered drugs, some on a lot less, but we all know what you are going through. We are here to lend and ear and see you through the bad days. Each day is a surprise, we never know what we will face when we wake up. I am thankful to be still moving. If you have questions, fire away...someone will try to answer. Donna from Michigan katiekind@... wrote: Hi All, I just stumbled onto your group and signed up after being diagnosed with PA 2 weeks ago. I'm a 41 year old mom/homemaker, and the symptoms have only come up in the past 3 or 4 months. I'm in the bewildered stage, and it seems like I have new aches and pains every week. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Thanks to all for the warm welcome! Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Hi Dave, It's interesting this lack of interest you have and always feeling lazy. I feel that way too and it has worsened as my PA has worsened. Many of the postings talk about it being the result of the drugs (I'm on MX), some about it being the result of the illness. I don't know....all I do know is that being in pain all the time (I'm having a bad week) makes it difficult to be enthusiastic...... The thought of sitting in a restaurant in pain for hours....just doesn't appeal any more. Sleep seems to be my best friend. I've posted previously how changing my diet decreased fatigue.....and I still believe this to be true. However here in Melbourne the weather has been cold and very damp and my PA has been terrible. So bad in fact that watching my food has been the last thing on my mind....getting through the day has been more important. So it becomes self defeating....I feel terrible, I eat terrible, I feel more terrible.......such is the life of a PA sufferer! Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Dear Kate, Be careful as Mtx may make you very tired and depressed but keep a positive mental attitude, My cousin lived in melbourne and I went there and I found the food great, all those different cultures. I even went to the MCG(for the uninitiated the Melbourne Cricket Ground, the largest cricket stadium in Aus)to see the Sheffield Shield Final, and the four n twenty pies were great. Seriously thoguh if you are unhaappy or have bad effects talk it over with the doc and change the treatment. the new trend in treatment are the so called designer drugs which will be tailored to your indiv. needs but you can come close to it via the combination of different types of treatment. Take care and do you have any spare tickets for the Olympics? ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Hi , No unfortunately I don't have any tickets to the Olympics....anyway it is in Sydney. I think you hit the nail on the head...I am a bit down this week....the weather, pa and all. Unfortunately I have a lot of problems with taking the various drugs for pa and mtx seems to be the only one that doesn't offer too many side effects for me. I'm also going to a naturopath who has me on fish oil, Boswella and a herbal (yuk) thing.....I am vastly improved than I was 6 months ago. I guess the problem really is that my illness made me draw back from life 6 months ago, and now while still ill but so much better...I don't know where to start to get back into it. I'm still so much in the habit of staying in...if I feel slightly bad I just seem to hibernate......and winter doesn't help. I also really miss certain foods - I would love a four n twenty pie - and living in a diverse cultural city like Melbourne famous for its restaurants.....it is so depressing!!!! Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Kathy, Hope you start feeling better soon. It is nice to be able to tell you feelings to people who " feel " the same. Take Care, Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Hi Dave - It is difficult to get the docs. to understand much. I was misdiagnosed for several months and finally had to break down at my gp's office and tell her if she didn't do something I wouldn't be able to walk in a few more weeks. I am surprised you went to gold - I sort of thought MTX and Enbrel had replaced that. Your post said you were from PA. So I am. Phila. area - what part are you from? If near Phila., maybe I could give you a few docs. names you might want to try. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2000 Report Share Posted July 30, 2000 Kate - You mentioned " dropping out of life " and not knowing how to get back in - you didn't say if you had a spouse or understanding friends, but maybe some good friends or relatives who understand your limitations are a good place to start. I know that when I feel like " dropping out " my finance is a big help in getting me to go places because I know I'll be " safe " - if I can't handle something, he is right there - to get the car, to help me get up or walk - whatever I need. In stores, I use the shopping cart as a sort of walker to help me get around. Something like a walker or cane might be useful to you in feeling a little more secure. At any rate, take it slow and find someone you can trust and something simple you enjoy, and then get out there and DO IT! Even if you really don't feel like it, the sense of accomplishment you have afterwards will be worth it. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Dianne, My PA started after a bout of inflammatory bowel problems. There is some school of thought that RA/PA can be the result of a bacterial infection. A pst doctor studied the problem in London (I live in Melbourne, Australia) for over 20 years. He felt that RA/PA was the result of a bacteria that thrived on starches. Other Dr's feel it is a bacteria in the joints.....none are conclusive. However if I remove a lot of really starchy foods - flours, wheats - I seem to have less of a problem. Rice doesn't seem to be an issue.... Kate [ ] Introduction Hi, My name is Dianne. I am 48 yrs. old, have had psoriasis since I was 24 yrs. I first went to the Dr. about my arthritis in my late 30's when my hands were bothering me and was told I had osteoarthritis. I was told that I had been really hard on my body as I was a gymnast in high school and college, taught aerobic dance for many years. I taught regular p.e.and coached in Colorado. We then moved to Texas in 1990 and I have coached high school varsity gymnastics for the past 9 years. I also teach Apapted P.E. in which I teach p.e. at 6 six schools to handicapped children. I have been doing that for the past 10 years. I head up Special Olympics for my district and coach the S.O. volleyball team, but I had to give up my coaching position with my varsity gymnastics team this year as my arthritis was getting to the point where it hurt too much. This was a very difficult decision as one of my boys was State and National champion last year on high bar and I have a boy and a girl who should make it to Nationals this year. I am feeling so torn about this as now the school does not have a coach to take over. I know I have to start thinking of myself and taking care of myself, but it is so hard to do. I finally made the switch to a rheumy this past spring and found out that I have PA. Well, things are starting to come together after all these years - why my back would spasm out all the time ( I have the arthritis in my spine also), why I was never refreshed after a night's sleep, why I was always feeling achy all over, etc. I have been reading everyone's email for awhile and have found it both depressing and helpful. I don't think I am at the point that a lot of you are and hope I never will be. I have also been having pain in my right abdomen - had a CAT scan done in June, had a hemocult done in August, and now have to have a colonoscopy done in Oct. Have any of you had infalmatory bowel disease as a side affect? I am not even sure what my gastroenterologist will find, but I was told that can be a side effect of PA. I am glad that I finally wrote as I wasn't sure I would, but just writing to people who have a sense of what I feel is important. I don't really think my family understands it and what I am feeling. Well, thanks for listening. Take care, DiannePlease visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 whole grains would not be an issue so that's why rice is cool. Stick to brown rice, quinoa, spelt anything like that no wheat gluten and no moldy cheese like blue or gorgonzola. Better to stick to no dairy except for sheep and goat seem ok but, again keep away from them for the most part. _Adriel if I remove a lot of really starchy foods - flours, > wheats - I seem to have less of a problem. Rice doesn't seem to be an > issue.... > > Kate > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Kate, Thanks for the information. I go in on Thursday for my colonoscopy so will hopefully see what the problem is. Dianne [ ] Introduction Hi, My name is Dianne. I am 48 yrs. old, have had psoriasis since I was 24 yrs. I first went to the Dr. about my arthritis in my late 30's when my hands were bothering me and was told I had osteoarthritis. I was told that I had been really hard on my body as I was a gymnast in high school and college, taught aerobic dance for many years. I taught regular p.e.and coached in Colorado. We then moved to Texas in 1990 and I have coached high school varsity gymnastics for the past 9 years. I also teach Apapted P.E. in which I teach p.e. at 6 six schools to handicapped children. I have been doing that for the past 10 years. I head up Special Olympics for my district and coach the S.O. volleyball team, but I had to give up my coaching position with my varsity gymnastics team this year as my arthritis was getting to the point where it hurt too much. This was a very difficult decision as one of my boys was State and National champion last year on high bar and I have a boy and a girl who should make it to Nationals this year. I am feeling so torn about this as now the school does not have a coach to take over. I know I have to start thinking of myself and taking care of myself, but it is so hard to do. I finally made the switch to a rheumy this past spring and found out that I have PA. Well, things are starting to come together after all these years - why my back would spasm out all the time ( I have the arthritis in my spine also), why I was never refreshed after a night's sleep, why I was always feeling achy all over, etc. I have been reading everyone's email for awhile and have found it both depressing and helpful. I don't think I am at the point that a lot of you are and hope I never will be. I have also been having pain in my right abdomen - had a CAT scan done in June, had a hemocult done in August, and now have to have a colonoscopy done in Oct. Have any of you had infalmatory bowel disease as a side affect? I am not even sure what my gastroenterologist will find, but I was told that can be a side effect of PA. I am glad that I finally wrote as I wasn't sure I would, but just writing to people who have a sense of what I feel is important. I don't really think my family understands it and what I am feeling. Well, thanks for listening. Take care, DiannePlease visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks Please visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Hi Theresa, I'm new to the group also. I'm 30 years old and have had PA for six years, psoriasis for seventeen years. Your story sounds very familiar, the slow increase of pain and tiredness until it takes over, you feel helpless. Recently I started massage therapy and this week I am starting yoga classes. I don't know if either will help with the pain and tiredness but others haven told me that it has helped them. I think it is true that it does no good to worry about things that might not even happen. Don't get me wrong sometimes I worry about the future with PA, but I feel it makes the situation worse. I hope you find something that helps you feel better. Take care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Hello Everyone, I am new to this list and was delighted to see that there actually is a Dr Hulda discussion list. I've been looking for a discussion forum like this one for ages. I was dx with stage 4 Ovarian Cancer in April/99. I also had massive pulmonary embolisms (wasn't expected to live). When a friend first introduced me to the therapies of Dr Hulda ,(she sent the zapper to me as a gift) I already had 2 chemo's under my belt. One of the symptoms of the cancer (at diagnosis) was a severe arthritic condition that moved from one joint to another. It was a throbbing excruciating pain and each joint was red and very swollen. I was a mess! After zapping 2 weeks (every day), all the pain and swelling was gone! I had 3 chemo's before surgery and after surgery, all the tumors originally seen on the CT scan were virtually gone, just one small tumor was left. The ascites (fluid) in my stomach was gone. I sailed through the 6 post surgery chemo's with few side effects and declared 'disease free' in October 99. I continue to zap every day and have noticed a huge improvement to my health. 1. Heart palpitations... GONE! 2. Migraines... GONE! 3. Renaulds syndrome .... (white fingers and toes) GONE! 4. Varicose veins ... GONE! 5. Migratory Arthritis ... GONE! 6. Cancer ... GONE! Hopefully for ever (1 year in remission) 7. Don't get colds or flu. Unfortunately, I don't follow everything 'in the book' word for word. I haven't had the dentistry work done (yet), but will 'one of these days.' I also follow (loosely) the Dr Johanna Budwig Flax oil and cottage cheese protocol, with success (I think). Overall, I feel fantastic! I would be very interested to hear other stories about their cancer cure using the zapper. Obviously, I'm a great believer in the Zapper and hope you all have many great stories to share. I have read some of the recent archival posts and found that the zapper isn't mentioned a lot, so I hope I've joined the right list? I hope there are many people on this list who are as serious as I am about Dr Hulda and her Zapper. Please share your experiences, I'd love to hear from you. Bye for now... Sandy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Sandy, That's a MARVELOUS testimonial! How long ago did you start zapping? Chuck All life is a conjugation of the verb " to eat " On Mon, 13 Nov 2000 12:40:39 -0700, " Sandy Lightfoot " <spp@...> wrote: > I sailed through the 6 post surgery chemo's with few >side effects and declared 'disease free' in October 99. I continue to zap >every day and have noticed a huge improvement to my health. > >1. Heart palpitations... GONE! >2. Migraines... GONE! >3. Renaulds syndrome .... (white fingers and toes) GONE! >4. Varicose veins ... GONE! >5. Migratory Arthritis ... GONE! >6. Cancer ... GONE! Hopefully for ever (1 year in remission) >7. Don't get colds or flu. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Sandy, I am excitied to hear about your success! Wonderful! I am new to the list also and have had a zapper for about one week. I did the herbal parasite program before the zapper and on day 12 I was startled in the night to " something " in the liver area dying and falling like a rock trickling down. I dont know how to put that sensation to words but I know something major happened that night. Anyway since I have had the zapper we turned on the heat (we have a forced air) and all the dust was settleing when my lip started swelling like a balloon. I was going to break out in a cold sore. I got my zapper out and the cold sore did not form. I was so excitied due to only haveing a zapper for a short time. I know this is nothing compared to what you describe in your post with cancer and all. I applaud you. Wanda At 12:40 PM 11/13/00 -0700, you wrote: >Hello Everyone, > >I am new to this list and was delighted to see that there actually is a Dr >Hulda discussion list. I've been looking for a discussion forum like >this one for ages. I was dx with stage 4 Ovarian Cancer in April/99. I >also had massive pulmonary embolisms (wasn't expected to live). When a >friend first introduced me to the therapies of Dr Hulda ,(she sent the >zapper to me as a gift) I already had 2 chemo's under my belt. One of the >symptoms of the cancer (at diagnosis) was a severe arthritic condition that >moved from one joint to another. It was a throbbing excruciating pain and >each joint was red and very swollen. I was a mess! After zapping 2 weeks >(every day), all the pain and swelling was gone! I had 3 chemo's before >surgery and after surgery, all the tumors originally seen on the CT scan >were virtually gone, just one small tumor was left. The ascites (fluid) in >my stomach was gone. I sailed through the 6 post surgery chemo's with few >side effects and declared 'disease free' in October 99. I continue to zap >every day and have noticed a huge improvement to my health. > >1. Heart palpitations... GONE! >2. Migraines... GONE! >3. Renaulds syndrome .... (white fingers and toes) GONE! >4. Varicose veins ... GONE! >5. Migratory Arthritis ... GONE! >6. Cancer ... GONE! Hopefully for ever (1 year in remission) >7. Don't get colds or flu. > >Unfortunately, I don't follow everything 'in the book' word for word. I >haven't had the dentistry work done (yet), but will 'one of these days.' I >also follow (loosely) the Dr Johanna Budwig Flax oil and cottage cheese >protocol, with success (I think). Overall, I feel fantastic! > >I would be very interested to hear other stories about their cancer cure >using the zapper. Obviously, I'm a great believer in the Zapper and hope >you all have many great stories to share. I have read some of the recent >archival posts and found that the zapper isn't mentioned a lot, so I hope >I've joined the right list? I hope there are many people on this list who >are as serious as I am about Dr Hulda and her Zapper. Please share >your experiences, I'd love to hear from you. > >Bye for now... >Sandy. > > > >Learn more from: >http://home.online.no/~dusan/gallstones/ >http://home.online.no/~huldakli/ >http://www..net/ >http://home.online.no/~dusan/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Glad to hear from you. Check out HuldaEnthusiasts for really positive, serious discussions. Leo. ---------------------------------- > Hello Everyone, > > I am new to this list and was delighted to see that there actually is a Dr > Hulda discussion list. I've been looking for a discussion forum like > this one for ages. I was dx with stage 4 Ovarian Cancer in April/99. I > also had massive pulmonary embolisms (wasn't expected to live). When a > friend first introduced me to the therapies of Dr Hulda ,(she sent the > zapper to me as a gift) I already had 2 chemo's under my belt. One of the > symptoms of the cancer (at diagnosis) was a severe arthritic condition that > moved from one joint to another. It was a throbbing excruciating pain and > each joint was red and very swollen. I was a mess! After zapping 2 weeks > (every day), all the pain and swelling was gone! I had 3 chemo's before > surgery and after surgery, all the tumors originally seen on the CT scan > were virtually gone, just one small tumor was left. The ascites (fluid) in > my stomach was gone. I sailed through the 6 post surgery chemo's with few > side effects and declared 'disease free' in October 99. I continue to zap > every day and have noticed a huge improvement to my health. > > 1. Heart palpitations... GONE! > 2. Migraines... GONE! > 3. Renaulds syndrome .... (white fingers and toes) GONE! > 4. Varicose veins ... GONE! > 5. Migratory Arthritis ... GONE! > 6. Cancer ... GONE! Hopefully for ever (1 year in remission) > 7. Don't get colds or flu. > > Unfortunately, I don't follow everything 'in the book' word for word. I > haven't had the dentistry work done (yet), but will 'one of these days.' I > also follow (loosely) the Dr Johanna Budwig Flax oil and cottage cheese > protocol, with success (I think). Overall, I feel fantastic! > > I would be very interested to hear other stories about their cancer cure > using the zapper. Obviously, I'm a great believer in the Zapper and hope > you all have many great stories to share. I have read some of the recent > archival posts and found that the zapper isn't mentioned a lot, so I hope > I've joined the right list? I hope there are many people on this list who > are as serious as I am about Dr Hulda and her Zapper. Please share > your experiences, I'd love to hear from you. > > Bye for now... > Sandy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Dear Sandy: I hope you don't mind another question. How long does it take before you get an approval on the other Dr site you sent me? It still says approval pending. What is there to approve? Thank you, Christel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2000 Report Share Posted November 15, 2000 Hi. I am new. Where is the other site? thanks. Christelti@... wrote: > > Dear Sandy: > I hope you don't mind another question. > How long does it take before you get an approval on the other Dr site > you sent me? > It still says approval pending. > What is there to approve? > Thank you, Christel > > > Learn more from: > http://home.online.no/~dusan/gallstones/ > http://home.online.no/~huldakli/ > http://www..net/ > http://home.online.no/~dusan/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 Hi Sandy, Did your cancer treatment protocol include the Dr. 's herbal parasite program in addition to zapping procedures, or did you use only zapping? Christo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 Since you are spry at 81, you don't believe you have diabetes, your diet is fine, and you walk a mile every day, I don't believe you have a problem. If you think you have a problem, read Hulda 's book The Cure For All Diseases. Leo ------------------------------------ > Hello! > > I am a spry 81 year-old retired college professor who > wants to see 100. I have been doing the cleanses for > about six months and want to learn more about what I > should do next. > > My gall bladder went west about forty years ago, and > my blood pressure is a bit of a problem. I was told I > have diabetes but don't believe them, and don't want > to take pills or insulin for it. My diet is fine. > One relative had cancer and another one has > Alzeheimer's. > > I walk a mile every day except when it is icy. > > Belle > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 > I was told I > have diabetes but don't believe them Hi -- You sound great. I am curious how in what basis they told you you have diabetes? Regards, JALyons Quote Link to comment Share on other sites More sharing options...
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