Introduction

[Guest guest]

funny you mention the URI and strep... that's what I have right now, 3 doses per

day of penicillin.... it hurts to swallow, and my skin is going nutso!!!!

Re: [ ] Introduction

Hi Kathy welcome to the group. You mentioned a couple things that I'd like

to comment on. The first being that you are yet another example of the

effect pregnancy has on psor. We havent figured out why yet but it seems to

be the most consistent factor influencing psor seconded by upper respiratory

infection with strep b.

The other thing is your family history of cancer and contemplating MTX for

the psor. When you are taking MTX for psor it is normally advisable to take

folic acid at the same time to limit side effects namely mouth sores. But

when taking MTX as chemotherapy for cancer, at much higher doses, you would

wait until the next day after taking the MTX before taking folic acid. I

dont know if MTX in doses as used for treatment of psor might be preventitive

for cancer or what types of cancer MTX is used for but that may be something

you should look into. Orin

[Guest guest]

Thanks to all who responded to my first posting!! Pregnancy was the definite

trigger for my PA. Wierd. There is definitely some disagreement about whether

MTX makes you more open to viruses or not as I've had opposite views from

different people!

Is anyone else really grumpy in the morning until they've had a hot shower to

ease stiffness and pain? Also one of the things that really upsets me is that

I can't crouch down to play with my children anymore as my knees are

knackered. Does anyone have any tips?

[Guest guest]

Carol,

I still haven't started my MTX..it is still in the medicine cabinet. I hate the

pain I am in but am so afraid of the medicine. I recently had to undergo a

total hysterectomy and am somewhat healed. Maybe I should wait longer to start

on the meds. I also keep my great nephew during the week so will be subjected

to colds, etc more. I just don't know what to do at this point.

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

Re: [ ] Introduction

Kathy,

Nice to meet you. Welcome to the group. MTX does work for some people. I have

been on it for 3 years. However, MTX does lower your

[Guest guest]

Hi Kathy I know what you mean about morning stiffness. My brother is like a

bear awakened early from hibernation! He was diagnosed and is treated for

Reiters syndrome though I cant see the difference between that and PA. I

hadnt noticed being worse in the morning but many members do. With me either

a joint is hurting or its not. But I have noticed lately that one shoulder

that has been acting up seems to be at its worst about 1 am and I havent

been sleeping well. I've always been a bit of an insomniac and my clock is

all messed up so that may be why I am different in that way, it is 6am but my

body clock says it is 1am? Ive read up a bit on why some types of arthritis

are worse in the morning and apparantly it has to do to the naturally varying

level of cortisone produced by the body.

As for crouching down to play with your kids maybe you could trade them for

taller kids? ha ha I remember a post by a Grandmother who had taught her

Grandaughter to climb up to the arm of the sofa so that Gma wouldnt have to

bend over to pick her up. Kids may not understand what you are going through

but they will be very accepting, just love them and they will come to you. I

assure you they will grow up healthy and well adjusted even if you dont get

to play Barbie or GI Joe on the floor with them. Its against the normal

rules but maybe you could put a soft blanket on the table have them get on it

to interact with them at play? If that seems a bit dangerous for a

particularly rambunctious child, will they fall off, then maybe reading a

story book with them on your lap would be a better alternative for quality

time. Orin

In a message dated 1/18/03 10:05:46 PM Central Standard Time,

KatharineNourse@... writes:

> Thanks to all who responded to my first posting!! Pregnancy was the definite

>

> trigger for my PA. Wierd. There is definitely some disagreement about

> whether

> MTX makes you more open to viruses or not as I've had opposite views from

> different people!

>

> Is anyone else really grumpy in the morning until they've had a hot shower

> to

> ease stiffness and pain? Also one of the things that really upsets me is

> that

> I can't crouch down to play with my children anymore as my knees are

> knackered. Does anyone have any tips?

>

>

[Guest guest]

Marti --

Welcome and thanks for the tip about pliers. I will use it often as I have

trouble with my hands.

Also, I hope you don't get too frustrated with the internet. This group is very

generous with help so don't wait for a year, like I did, to ask for instruction

if you need it.

Cheri

[ ] Introduction

Hi Everyone,

Found your group throught the national Psoriasis Foundation(USA).

Think it's a great idea and have already benefited from some of your

information. I'm an " old hat " at PA (35 yrs. diagnosed at age 10) but an

internet newbie. Still trying to fiqure it all out. I also have

fibromyalgia which took a long time to get properly diagnosed.

Currently taking Remicade, MTX, Ibuprofen, etc... and my skin is

clear for the first time in 27 years!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Arthritis doesn't seem to be responding as well but am still hoping.

My favorite tip to give is PLIERS They grip all sorts of things

when the hands don't.

Best Wishes and Prayers to all of you,

Marti W.

Omaha,Ne

USA

[Guest guest]

In a message dated 1/18/03 8:08:26 PM Pacific Standard Time,

goldens4life@... writes:

> Carol,

> I still haven't started my MTX..it is still in the medicine cabinet. I

> hate the pain I am in but am so afraid of the medicine. I recently had to

> undergo a total hysterectomy and am somewhat healed. Maybe I should wait

> longer to start on the meds. I also keep my great nephew during the week

> so will be subjected to colds, etc more. I just don't know what to do at

> this point.

You are more susceptible to colds and such, but you just have to be diligent

about hand washing, and not sharing cups and silverware when your nephew is

getting ill. I keep some that no-rinse hand sanitizer and use that, and I

also use Dial antibacterial liquid hand soap. My grandson is almost 2-1/2. He

and his mom (my daughter) lived with me until he was 1-1/2. I only caught one

illness from him in that time. I had a bad cold. I haven't caught anything

from him since. I think because I caught all my own kids' colds and such when

they were small I'm just not as susceptible anymore to kids stuff. I'm more

likely to catch something from someone at work than at home.

I haven't had any real problems with illness other my surgery problem. And

that was just a really weird thing. The MTX makes me fatigued the day after I

take it. I take mine on Friday night, go to work on Saturday (I work Tuesday

through Saturday), by Saturday evening I pretty tired. I go to bed early, and

by Sunday noon I'm okay. The only real side effect I have had is fatigue and

some nausea, but I take protonix now every morning and make sure that I eat

well, so the nausea isn't an issue now. Taking MTX and not eating, now that

will make you thow up (personal experience).

You're going to have side effects with any of the DMARDs, but you have to

weigh risk of permanent joint damage and worsening psoriasis against feeling

better painwise and being more mobile. For me, a little fatigue and a little

nausea is a small price to pay for feeling better otherwise.

Then MTX may not work for you. There are other drugs out there, imuran,

Arava, remicade, neoral, Kineret, Enbrel and others; just don't wait until

you have some irreversible damage to your joints before you make up you mind.

Some people are on antibiotic therapy. I did not choose to go that route

because some of the antibiotics are sulfa-based and I'm allergic to sulfa.

Antibiotics also cause me to have increased yeast infections. I figured MTX

was the best choice for me to start with.

Carol in Vancouver, WA USA

[Guest guest]

I know what you are talking about, I can't move in the morning without my

doseage of vioxx and vicadin... and I have issues with my lil one too, I

have limitations, and I'm just not willing to accept them just yet....

stubborness in me =)

Re: [ ] Re: Introduction

> Hi Kathy I know what you mean about morning stiffness. My brother is like

a

> bear awakened early from hibernation! He was diagnosed and is treated for

> Reiters syndrome though I cant see the difference between that and PA. I

> hadnt noticed being worse in the morning but many members do. With me

either

> a joint is hurting or its not. But I have noticed lately that one shoulder

> that has been acting up seems to be at its worst about 1 am and I havent

> been sleeping well. I've always been a bit of an insomniac and my clock is

> all messed up so that may be why I am different in that way, it is 6am but

my

> body clock says it is 1am? Ive read up a bit on why some types of

arthritis

> are worse in the morning and apparantly it has to do to the naturally

varying

> level of cortisone produced by the body.

> As for crouching down to play with your kids maybe you could trade them

for

> taller kids? ha ha I remember a post by a Grandmother who had taught her

> Grandaughter to climb up to the arm of the sofa so that Gma wouldnt have

to

> bend over to pick her up. Kids may not understand what you are going

through

> but they will be very accepting, just love them and they will come to you.

I

> assure you they will grow up healthy and well adjusted even if you dont

get

> to play Barbie or GI Joe on the floor with them. Its against the normal

> rules but maybe you could put a soft blanket on the table have them get on

it

> to interact with them at play? If that seems a bit dangerous for a

> particularly rambunctious child, will they fall off, then maybe reading a

> story book with them on your lap would be a better alternative for quality

> time. Orin

>

[Guest guest]

Carol,

Thanks so much for the info. I think I may start it this Friday as I don't have

on Saturday and if I am tired I can rest. I am so sick of all the pain I

am in.

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

Re: [ ] Introduction

In a message dated 1/18/03 8:08:26 PM Pacific Standard Time,

goldens4life@... writes:

> Carol,

> I still haven't started my MTX..it is still in the medicine cabinet. I

> hate the pain I am in but am so afraid of the medicine. I recently had to

> undergo a total hysterectomy and am somewhat healed. Maybe I should wait

> longer to start on the meds. I also keep my great nephew during the week

> so will be subjected to colds, etc more. I just don't know what to do at

> this point.

You are more susceptible to colds and such, but you just have to be diligent

about hand washing, and not sharing cups and silverware when your nephew is

getting ill. I keep some that no-rinse hand sanitizer and use that, and I

also use Dial antibacterial liquid hand soap. My grandson is almost 2-1/2. He

and his mom (my daughter) lived with me until he was 1-1/2. I only caught one

illness from him in that time. I had a bad cold. I haven't caught anything

from him since. I think because I caught all my own kids' colds and such when

they were small I'm just not as susceptible anymore to kids stuff. I'm more

likely to catch something from someone at work than at home.

I haven't had any real problems with illness other my surgery problem. And

that was just a really weird thing. The MTX makes me fatigued the day after I

take it. I take mine on Friday night, go to work on Saturday (I work Tuesday

through Saturday), by Saturday evening I pretty tired. I go to bed early, and

by Sunday noon I'm okay. The only real side effect I have had is fatigue and

some nausea, but I take protonix now every morning and make sure that I eat

well, so the nausea isn't an issue now. Taking MTX and not eating, now that

will make you thow up (personal experience).

You're going to have side effects with any of the DMARDs, but you have to

weigh risk of permanent joint damage and worsening psoriasis against feeling

better painwise and being more mobile. For me, a little fatigue and a little

nausea is a small price to pay for feeling better otherwise.

Then MTX may not work for you. There are other drugs out there, imuran,

Arava, remicade, neoral, Kineret, Enbrel and others; just don't wait until

you have some irreversible damage to your joints before you make up you mind.

Some people are on antibiotic therapy. I did not choose to go that route

because some of the antibiotics are sulfa-based and I'm allergic to sulfa.

Antibiotics also cause me to have increased yeast infections. I figured MTX

was the best choice for me to start with.

Carol in Vancouver, WA USA

[Guest guest]

Glad to be of help. I just saw my rheumy today. I have been put on the list

for Enbrel, I have had my TB test today, and I will be starting injectable

MTX on Friday. I came away with a bag of syringes, a sharps container, extra

needles heads and caps, and 2 vials of MTX. I have to go to the nurse's

treatment injection room on Friday and learn how to inject the MTX.

Hopefully, this will work better than oral MTX which has begun to lose some

of its umph in the past few months. Then in about 2-3 weeks I should receive

my Enbrel and get instructions for mixing, injecting, and storing it. I think

the thinking is to start the Enbrel and slowly taper off the MTX.

I kind of excited about it, and I'm not squimish about needles, so it

shouldn't be a problem.

Carol in Vancouver, WA USA

In a message dated 1/20/03 12:10:50 PM Pacific Standard Time,

goldens4life@... writes:

>

> Carol,

> Thanks so much for the info. I think I may start it this Friday as I don't

> have on Saturday and if I am tired I can rest. I am so sick of all

> the pain I am in.

>

> Robin, Penny, Chance, Heidi, and Hope (Florida)

> http://www.geocities.com/goldens4life2000/index.html

[Guest guest]

I am in the same boat as you are. I have the methotrexate in my closet now

for two months. I also was approved for Embrel and just need to make a

phone call to start it. I always have problems with medicine. I am

allergic to several antibiotics. I presently take thyroid, HRT, a diuretic

and Lodine which is an anti-inflamatory. Some nights I need vicodin for

pain. The thought of more meds is bothering me but now I have a bone spur

on my finger and my knees are not healing right from surgery on Sept 9.

Please let me know what you do.

Janet

[Guest guest]

Keep in touch goldens4life. Maybe we can start the meds at the same time and

compare notes. I am leaning towards Embrel. That is what the dermatologist

thinks is the better of the two.

Janet

[Guest guest]

Janet,

For now the MTX is staying in my medicine cabinet. I am going to get a second

opinion before I start taking. I too am on a ton of meds including HRT. Fun,

fun!!

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

http://www.geocities.com/goldens4life2000/MemoryofGrizz.html

http://www.geocities.com/goldens4life2000/MemoryofMuffy.html

Re: [ ] Introduction

I am in the same boat as you are. I have the methotrexate in my closet now

for two months. I also was approved for Embrel and just need to make a

phone call to start it. I always have problems with medicine. I am

allergic to several antibiotics. I presently take thyroid, HRT, a diuretic

and Lodine which is an anti-inflamatory. Some nights I need vicodin for

pain. The thought of more meds is bothering me but now I have a bone spur

on my finger and my knees are not healing right from surgery on Sept 9.

Please let me know what you do.

Janet

[Guest guest]

Janet,

That sounds like a good idea to me. When do you plan to start the meds? I am

thinking I may start them tomorrow. Let me know...I am just so scared of the

MTX!!

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

http://www.geocities.com/goldens4life2000/MemoryofGrizz.html

http://www.geocities.com/goldens4life2000/MemoryofMuffy.html

Re: [ ] Introduction

Keep in touch goldens4life. Maybe we can start the meds at the same time and

compare notes. I am leaning towards Embrel. That is what the dermatologist

thinks is the better of the two.

Janet

[Guest guest]

Hello e, Weight loss is a symptom of cancer. Montreal has a Chine

town- right? You could start with a Chinese doctor and chinese herbs.

The budwig diet would be a good idea, as well. Good luck with the

tobacco addiction- it's so tough. Be strong,

Virginia

> Hello,

>

> My name is e and I live in Montreal, Canada. I am 52 years old.

>

> Why am I here? Simply because I want to exchange information and

support with people who may be facing the same challenges. I have

been an on-and-off smoker for most of my life. I have quit smoking

(yet again) 10 months ago.

>

> Due to this background, I am very much aware of the possibility

that I may, sooner or later, develop a tobacco-related cancer. In

fact, I have begun to wonder if something is happening with me.

Since mid-December, I have lost 9 lbs (and counting) for no apparent

reason. I cannot say that I otherwise feel unwell, but I *am*

feeling concerned.

>

> Now, I am the type of person who normally gravitates toward natural

solutions and is very receptive to alternative therapies (I always

need very little convincing that the profit seekers out there will do

anything to suppress whatever does not further their own agendas.) If

I have begun to develop a cancer, I want to start treating it now.

Even if I am still cancer-free, I would like to start doing something

to prevent future cancers. Navigating the Internet, I have come

across various natural therapies, including Laetrile/B17 which

appears to show great promise for staving off cancer or induce full

remission of existing cancers.

>

> Any thoughts about the above (all of it)?

>

> e

[Guest guest]

Hi ,

I have three suggestions:

1- Diet

2- Diet

3- Diet

Eat organic fruits and vegetables and stop eating processed foods,

especially white sugar and flour. Learn the truth about culinary fats

and oils. This involves turning everything you have heard about

saturated and unsaturated oils to its opposite to get closer to the

truth. A good source of information is The Weston A. Price Foundation

Website <http://www.westonaprice.org/splash_2.htm>. Avoid soy and soy

products like the plague! The same for artificial sweeteners,

especially Aspartame.

Just because it's in a Natural Food Store doesn't mean that it's

healthy!

The following is a short excerpt from the Price Foundation Website:

Confused About Fats?

These nutrient-rich traditional fats have nourished healthy

population groups for thousands of years:

Butter

Beef and lamb tallow

Lard

Chicken, goose and duck fat

Coconut, palm and sesame oils

Cold pressed olive oil

Cold pressed flax oil

Marine oils

These new-fangled fats can cause cancer, heart disease, immune system

dysfunction, sterility, learning disabilities, growth problems and

osteoporosis:

All hydrogenated oils

Soy, corn and safflower oils

Cottonseed oil

Canola oil

All fats heated to very high temperatures in processing and frying

On Wednesday, February 12, 2003, at 12:25 PM,

<jose.larose2@...> wrote:

> Hello,

>

> My name is e and I live in Montreal, Canada. I am 52 years old.

>

> Why am I here? Simply because I want to exchange information and

> support with people who may be facing the same challenges. I have

> been an on-and-off smoker for most of my life. I have quit smoking

> (yet again) 10 months ago.

>

> Due to this background, I am very much aware of the possibility that I

> may, sooner or later, develop a tobacco-related cancer. In fact, I

> have begun to wonder if something is happening with me. Since

> mid-December, I have lost 9 lbs (and counting) for no apparent reason.

> I cannot say that I otherwise feel unwell, but I *am* feeling

> concerned.

>

> Now, I am the type of person who normally gravitates toward natural

> solutions and is very receptive to alternative therapies (I always

> need very little convincing that the profit seekers out there will do

> anything to suppress whatever does not further their own agendas.) If

> I have begun to develop a cancer, I want to start treating it now.

> Even if I am still cancer-free, I would like to start doing something

> to prevent future cancers. Navigating the Internet, I have come

> across various natural therapies, including Laetrile/B17 which appears

> to show great promise for staving off cancer or induce full remission

> of existing cancers.

>

> Any thoughts about the above (all of it)?

>

> e

>

--

Neil Jensen: sumeria.net

The WWW VL: Sumeria http://www.sumeria.net/

" Soy serves as meat and milk for a new generation of

virtuous vegetarians. " Sally Fallon and G. Enig, PhD

[Guest guest]

Welcome ,

I too found this group only a few months ago. I have had PA for 15

years (diagnosed 10 years ago) and had also never known anyone else

with PA. This forum is the first place I was able to obtain

information other than what my rheumy told me or my own research

revealed. That left out an element of personal experience concerning

dealing with the doctors and different treatments that have proved

very helpful to me. Perhaps you will find similar benefit.

I was interested to note that you are taking plaquenil (plus an

NSAIDS). This is the same med regiment as I am on. I have noted

that very few of the people in this forum are taking plaquenil. I

believe that is because plaquenil can make your P flare, although it

doesn't do that for everyone. For example, in the ten years I have

taken plaquenil, it has not happened to me.

I have one point to make about NSAIDS. I went through several. All

of which therapeutically improved my condition. However, the stomach

problems required me to eat more and gain weight. Even though there

was improvement, the success had limitations. I was significantly

limited in my physical activities. For example, I was unable to play

tennis at all. Shortly after Celebrex became available, I tried it,

first at the lower dose of 200 mg / day. I very quickly went to 200

mg two times per day. The therapeutic results have been wonderful.

I exercise most days, participate in sports with my kids and ski.

Although I would have to say, I do have some minor symptoms, I

participate without problems. I do limit activities that are high

impact do to long term susceptibility to joint damage, which I have

not experienced.

In short, if you haven't tried all the NSAIDS, particularly Celebrex,

I would suggest trying that before moving to other treatments. If

200 mg / day don't work, try the higher dosage.

Good luck.

[Guest guest]

I too have problems with TMJ.

Unlike RON :-) I can close my mouth, but it hurts when

I do a big yawn.

Also my PA started in my hips. I know what you mean by

not be able to do everything.

Anyway, I am on Methotrexate (MTX) Enbrel, Azulfidine,

Prednisone, Folic Acid some other HUGE pills that I

have to break in half :-) etc...

WELCOME TO THE GROUP!!!

=====

in Atlanta, GA

[Guest guest]

In a message dated 3/7/2003 10:15:09 AM Eastern Standard Time,

fred.hurwitz@... writes:

> I was interested to note that you are taking plaquenil (plus an

> NSAIDS). This is the same med regiment as I am on. I have noted

> that very few of the people in this forum are taking plaquenil.

Hi Fred,

When I was diagnosed my doctor advised me against plaquenil. He said that it

is only about 20 percent effective and since I was in so much pain, that I

should either choose MTX or Embrel. I have already taken two Embrel

injections. It is probably in my head but I think I am a little better. It

could also mean that I am just having a better day today.

Janet

[Guest guest]

In a message dated 3/7/2003 2:55:30 AM Eastern Standard Time,

cmcknight@... writes:

> TMJ) for the first time. I haven't read anything about the jaw being

> involved. Does anyone have any experience/information on that? My

> left TMJ aches a lot, especially with yawning or opening wide; the right

> side tends to subluxate when I open too far, but is not as painful as

> the left.

I have had problems with TMJ for quite some some time now. I don't know if

it is related to the PA or not. My dentist referred me to an oral surgeon

who made a bite plate for me. It worked wonders. I wore it until all the pain

subsided. Now I only put it in if I feel an attack coming. It takes care

of the TMJ right away.

Janet

[Guest guest]

In a message dated 4/10/2003 7:46:40 AM Eastern Standard Time,

heatherbrae@... writes:

> Looking forward to

> meeting everyone and responding to issues as I am able. Would be glad to

> help anyone out in any way I can. The arthritis community

> is so supportive.

> Blessings

Thanks ,

That is so kind of you to offer. This is the greatest board and if anyone can

help you in any way, please ask.

Janet

[Guest guest]

Never heard of Bob . Can you post his URL??

Have you gone to www..com and looked at what she says about

cancer? Also go to www.altcancer.com Lots of info here and great

support by these people.

The folks on this list will have a lot of other info for you, too, I'm

sure. Also, go to where you subscribed to this list and look in

the files.

Hopefully, it's not too late for your brother to do some less toxic

treatments.

My best to you and your family. If things don't work out this time,

may-be if you or another loved one is diagnosed with cancer, you'll have

a plan from what you'll learn this time trying to help your brother.

That would be a tribute to him....that nobody else in your family will

die from cancer. It is curable but the drug cartel and cancer industry

is still suppressing the info.

Keep in touch and let us know how things go.

One last thing, watch out for people selling one product that will

nourish the immune system or whatever they might say about it. The cure

for cancer is complex and requires a lot more then one or two products.

www.altcancer.com will give you an idea of what is required but it and

Dr. are not the only resources.

introduction

Hi Everyone, I just joined this group. In a nutshell, I am writing on

behalf of my brother (57 yrs) who was diagnosed with Non-Hodgkins

Lymphoma

three years ago. He has been through all the treatments, chemo,

radiation,

and the latest - a stem cell transplant. As you can imagine his life

and

that of his family has been in a turmoil for these three years. He was

a

stout man for the last 15 years of his life and is now down to 165 lbs

and

frankly looks like hell! He was released from the hospital the middle

of

March and I got a call from him two days ago.... the cancer is back,

his

throat feels like it is closing up and he went to the doctor who claims

the

cancer is spreading, gave him some steriods to make his throat feel

better

and essentially said that he wasn't strong enough to undergo any more

chemo.

Go home to die is essentially what they are telling him.

I got on the internet and started doing some research.... I came across

the

site of Bob . I wrote him and he wrote back. He wants me to call

him

tonight after 6 PM or he said he would call me if I gave him my phone #.

Does anyone have any experience with this gentlemen?

If anyone can offer me some advice to help my brother, please, please

write

me. Our hearts are all broken!

Thank you,

Jeanne

Jeanne McNally

Maine

[Guest guest]

introduction

Hi Everyone, I just joined this group. In a nutshell, I am writing on

behalf of my brother (57 yrs) who was diagnosed with Non-Hodgkins

Lymphoma

three years ago. He has been through all the treatments, chemo,

radiation,

and the latest - a stem cell transplant. As you can imagine his life

and

that of his family has been in a turmoil for these three years. He was

a

stout man for the last 15 years of his life and is now down to 165 lbs

and

frankly looks like hell! He was released from the hospital the middle

of

March and I got a call from him two days ago.... the cancer is back,

his

throat feels like it is closing up and he went to the doctor who claims

the

cancer is spreading, gave him some steriods to make his throat feel

better

and essentially said that he wasn't strong enough to undergo any more

chemo.

Go home to die is essentially what they are telling him.

I got on the internet and started doing some research.... I came across

the

site of Bob . I wrote him and he wrote back. He wants me to call

him

tonight after 6 PM or he said he would call me if I gave him my phone #.

Does anyone have any experience with this gentlemen?

If anyone can offer me some advice to help my brother, please, please

write

me. Our hearts are all broken!

Thank you,

Jeanne

Jeanne McNally

Maine

[Guest guest]

Hi , Thank you for replying... for some strange reason I have

not been receiving e-mail from the list directly to my mailbox -- I

am typing this on the web (where I found your reply also). I am

checked off as receiving individual e-mails so ??

Anyway, Bob ' website is here:

http://www.cancer-success.com

I will be calling him tonight to see what info he can provide me with

before I call my sister in law and get her hopes up. I will keep the

list informed but in the meantime I would love to hear any and all

suggestions on how to get started on what products I need to be

suggesting to my brother. Thank you all!

Jeanne

[Guest guest]

Hi Jeanne,

I have been on Dr. 's cancer program for nearly 4 years. I have

never heard of Bob , sorry I can't help you there.

I am in Maine, also. If you would like to talk about Dr. 's

cancer protocol, feel free to email me offlist.

I came across the

> site of Bob . I wrote him and he wrote back. He wants me to

call him

> tonight after 6 PM or he said he would call me if I gave him my

phone #.

> Does anyone have any experience with this gentlemen?

>

> If anyone can offer me some advice to help my brother, please,

please write

> me. Our hearts are all broken!

>

> Thank you,

> Jeanne

> Jeanne McNally

> Maine

[Guest guest]

Thank you for writing ... I would love to write you however I

cannot seem to get msgs sent to me from the list -- I am once again

writing from the " groups " page (archives). Part of your e-mail

address is missing. My e-mail is jnamcnally@.... If you

would please write me directly I would appreciate it. Thank you!

Jeanne

> Hi Jeanne,

>

> I have been on Dr. 's cancer program for nearly 4 years. I

have

> never heard of Bob , sorry I can't help you there.

>

> I am in Maine, also. If you would like to talk about Dr. 's

> cancer protocol, feel free to email me offlist.

>

>

>

>

>